please help

Ulla

dear sisters

i kept trying to put the pix here but its not working,,,dont know but the laptop seems soooo slow today ,,

i will try 2moro..

did i told u that my onk staged my BC again stageII??????i dont know if i told u that or not?cant remember

love u girls and off to bed

NancyD

Aw, Suebee...As everyone has said, it's not fun but it's nothing to be really scared about. Maybe because it was the first thing my dr's decided to do in my cancer treatment, but I coudn't wait to get started.

The side effects are controled with other meds...and they have side effects, too. But, all-in-all, you just push yourself through it and deal with it.

The hair loss has not been my biggest issue, but I guess everyone has their cross to bear. Since you are a hairdresser, I can see it being a big issue. But, wow, wouldn't it be cool to have a couple of wigs styled perfectly all the time?  NO BAD HAIR DAYS! And, depending on the chemo cocktail, you may not lose you hair at all.

So don't get too discouraged until you have your plan in hand. Then come back here and we'll help you get to the Emerald City...the place where bc doesn't exist...where surgery, chemo, and rads are all things you pass through before you can get inside.  I'm still traveling that road to EC, too.

geebung

Ulla, my computer has been slow the last couple of days too. I hope you can post your pics - would love to see them. It was so great to hear that the new, lovely onky downgraded your bootface to stage2. I was amazed that he spent 80 minutes talking to you - that is so wonderful!

Suebee - Just wanted to let you know that I am thinking of you and praying that you will find reserves of strength to face all of this. Of course you are not vain! So much of our self image is to do with our hair and, as a hairdresser, you have an especially important relationship with it. I'm sending you many hugs and lots of love right now.

ltuenge and Erin - it was so good to see your posts. It's great to have people here who are at different stages - first dx, having tx, finished tx and years  past treatment. Ituenge - please keep posting and let us know how things are with you and your next surgery. Erin - I know what you mean about wishing to have been here when first dx. I didn't even know such forums existed when I was dx last year and it was a very lonely time. I had family support but I didn't like to let them know all my fears...

Sue - hope you have a wonderful, restful and happy Saturday. Yum! I feel like subway! I am on my own today so I might treat myself!

Karen - I love the photo of Buddy - what a sweet, happy face! Hope you have a great weekend.

Love to you all and also AE and UB, Shirlann, Jule, Sheila, Kaloni, Lisa, Lucy, Wren, Melody, AnnW, Mia, Judie, Stephanie's mum (and Stephanie - would love to hear how you are both doing), AnnNYC, Dawn, Valsul, Angie and everyone.

Jane xxx 

geebung

Ulla, my computer has been slow the last couple of days too. I hope you can post your pics - would love to see them. I was amazed that he spent 80 minutes talking to you - that is so wonderful!

Suebee - Just wanted to let you know that I am thinking of you and praying that you will find reserves of strength to face all of this. Of course you are not vain! So much of our self image is to do with our hair and, as a hairdresser, you have an especially important relationship with it. I'm sending you many hugs and lots of love right now.

ltuenge and Erin - it was so good to see your posts. It's great to have people here who are at different stages - first dx, having tx, finished tx and years  past treatment. Ituenge - please keep posting and let us know how things are with you and your next surgery. Erin - I know what you mean about wishing to have been here when first dx. I didn't even know such forums existed when I was dx last year and it was a very lonely time. I had family support but I didn't like to let them know all my fears...

Sue - hope you have a wonderful, restful and happy Saturday. Yum! I feel like subway! I am on my own today so I might treat myself!

Karen - I love the photo of Buddy - what a sweet, happy face! Hope you have a great weekend.

Love to you all and also AE and UB, Shirlann, Jule, Sheila, Nancy, Kaloni, Lisa, Lucy, Wren, Melody, AnnW, Mia, Judie, Stephanie's mum (and Stephanie - would love to hear how you are both doing), AnnNYC, Dawn, Valsul, Angie and everyone.

Jane xxx 

honeygirl

Hi all! Welcome newbies , please feel free to jump in anytime!

Wow , so much to catch up on. My little Sweetpea is so much work! Really its trying to keep peace with her and "big sister" Lilly.

First of all , Ulla , I am so proud of you and happy for you! Way to go girl!!! And I am soooo happy about to new onky. And he staged you at II. Very good news. I can't wait to see the pics of the houses you visited. Get some rest. And sweet dreams.xxxx

(((((((((Suebee))))))))) Believe me , we all know just how you feel. I hated having to loose my hair. I was all summer last year without it. I hated my wig too. So , like Karen , I wore scarves and hats. My last tx was Aug.1st. And I went scarfless to my first mammo in Oct. And I had hair to dye by Christmas. And now it is very thick and curly. I think the worst part is before it actually happens. And then , of course when it does. But I seemed to get use to it , because thats all I could do. And believe me , there is no one more anxious about losing there hair than I was. And yes , we were here online with Sue when she buzzed hers off! And we will be here for you to sister.Xanax really helped me through the worst days. Do you have anything for anxiety? Hang in there Suebee. It will be OK. Yes , it must be really hard for you to be a hair stylist and going through this.xxxxx Melody

honeygirl

Hi all! Welcome newbies , please feel free to jump in anytime!

Wow , so much to catch up on. My little Sweetpea is so much work! Really its trying to keep peace with her and "big sister" Lilly.

First of all , Ulla , I am so proud of you and happy for you! Way to go girl!!! And I am soooo happy about to new onky. And he staged you at II. Very good news. I can't wait to see the pics of the houses you visited. Get some rest. And sweet dreams.xxxx

(((((((((Suebee))))))))) Believe me , we all know just how you feel. I hated having to loose my hair. I was all summer last year without it. I hated my wig too. So , like Karen , I wore scarves and hats. My last tx was Aug.1st. And I went scarfless to my first mammo in Oct. And I had hair to dye by Christmas. And now it is very thick and curly. I think the worst part is before it actually happens. And then , of course when it does. But I seemed to get use to it , because thats all I could do. And believe me , there is no one more anxious about losing there hair than I was. And yes , we were here online with Sue when she buzzed hers off! And we will be here for you to sister.Xanax really helped me through the worst days. Do you have anything for anxiety? Hang in there Suebee. It will be OK. Yes , it must be really hard for you to be a hair stylist and going through this.xxxxx Melody

geebung

Mel - that's strange - your comment posted twice and so did mine!

honeygirl

I don't know Jane , but it is sure taking along time to post.

Karen , I so love Buddy!!!! What a sweetheart. Thanks for posting that pic and making me smile!xxxx

suebee92

Thanks guys!

I really want to believe that I can do it but I'm afraid! Very afraid! I will only, only as if I want to at all, have 4 cycles every three weeks. That's three months out of my life, you'd think i'd just want to do it, I've already had a double mast.,and chemo is the right decision. I just don't want to do it. I was on the sites for wigs today. They looked great on that women. I'm gonna look into finding a place around home to see if I can try some on? Don't know? Really never thought I'd have to think about all this?

Anyways I'll quit babbling and get to bed, gotta work in the morning.

Thanks everyone for your support and help.

HUGS AND KISSES!

Suebee

my3girls

Hi ladies!!

A quick hello, I am working today.  I will catch up on posts later...I did read a few...so....

Ulla!!! Congrats!!!! I am sooooo happy for you!! An answer to prayers..a good onky..and the best PS!!! Girl..things are going your way!! God bless!!

Suebee....I am sooo sorry you have to go thru chemo now.  Listen, I am here...actually very close to you.  You live in Akron area right? I am only minutes away!  PM me...if I have not given you my cell...I will.  I have been through all of it.  If you need someone to take you to your chemo tx's...let me know.  If I am not working...I would be happy to go with you.  If you just need someone to talk to...I will give you my cell # so you can call just to chat, or get support.  You can do this.  I was freaking about the whole hair loss too...but in all honesty...it was not bad at all!! It really was allot easier than I thought it would be.

Ok..I have to run...will catch up with all of you later today!

Please say a prayer or two for Danni....I saw her off early this morning.  She is in Philadelphia now, and leaves for Rome at 6pm!! 2 weeks...seeing Europe!! I will worry some...but I leave her in God's hands!  Thanks sisiters!

xoxo

Lisa

my3girls

Suebee....there is a great wig place near Summit Mall...I will get the name of it and let you know.  That is where I got mine.

sueps

sueps

sueps

Thankyou sisters ...hope the pix are OK .... you are all amazing xxx

I am crashing big time zzzzzzzzz lol.... been to get David some new shoes for school...wow he has bigger feet than me....and is almost as tall as me!!

Anyway I really want to post to you Suebee....and let you know I am thinking of ya...I was exactly where you are now...way back in November....I was in fear of losing my hair too...but it wasnt my biggest fear...my biggest was my boys ...and with that I had the power to move a mountain and they have been my focus...it has not been easy...the hard days were the tx day ...and then the crashes ....the worst bit was having to do it 12 times ...over  6 or 7 months....  the best bit ...the sisters here......astonishinly heart warming and the biggest most loving support system on this EARTH!!

...WE WILL GET YOU THRU THIS the next bestest bit is the peace that I did it....and I am so much stronger....in my opinion I feel a lot healthier too....xxx

You can do this Sue....look what you did already....my you should have seen me before my op LOL.... LIVE IN THE MOMENT.....all moments pass .... the wig I had was fantastic and nobody knew any different xxx

Another thing....I still insisted that I didnt think I would do it ...cos I didnt want to...after doing the very first one LOL....like you are thinking....and for similar reasons...hair ...inconveinience....but I guess deep down I knew and then I just accepted...even tho I lost my rag at every session ...which was my way of coping...

Honestly ....we are all here and Nancy is a wonderful strength as she skips along the yellow brick road ... xxx

livesstrong

HeySue - LOVE the pictures!!!!  You are so cute!!!!  I can see Toto peeking out of the basket!!  lol.  I can't believe how long your hair is!!!  I am so proud of you - I wish you were here so I could squeeze you to pieces.

AE 

livesstrong

Suebee - check with your insurance - my wig was coverd up to $500.00.  I went to a Wellness Center that specialized in bc patients to get mine. 

AE 

livesstrong

Hey Sue -

AE 

livesstrong

Love this song -

http://www.youtube.com/watch?v=1FdB5Adws78

AE 

portiasproudmom

I love the pics, Sue!  You're so cute and the shoes look great on you.  Your hair has grown so much--I'm amazed!

Lisa, I'll say a little prayer for Danni, that God keeps her safe during her travels.  I can certainly understand your nervousness, but she'll be fine.  She's a very smart girl!

Love to all my dear sisters!  Have a great weekend!

Hugs,

Karen

Ulla

hi girls..i need to be so quick as my connection is realy bad..at last i managed to upload the pix of yesterday 

my3girls

Sue...the pics are wonderful!!! You look adorable in your ruby slippers!  I agree...your hair has really grown!! Before you know it, you will have a pony tail!  Sue...you have made it honey.  Looking good, feeling good..well soon you will be!  Enjoy your day off tomorrow!! Sleep!! Karen, thanks for the prayers. I know Danni will be fine...I will feel better when I get an email!  It will be a wonderful trip. Ulla...Oh honey...you look radiant!! So happy!  I am so glad.  I saw your pics...and thought...I want to come visit you in Sweeden!  I love the old Sweedish homes.  I am happy things are going so well for you! Karen...how is your dad today?  I am glad your mom got him to eat.  It's hard to see our parents get older.  I had my dad over for dinner the other night (since all 3 girls were here!)  And Danni and I both noticed how much older his body looks.  He still looks great for 81, but it's hard, because we still picture our parents as they were when we were young. I got off work early.  I was at the airport at 6am with Danni.  I am supposed to go out with a friend tonight, but I am so tired.  I have not heard back from her.  So, it looks like I can crash and go out another time!  I am off for the next 3 days.  But then I work four day's straight, 10 hrs each. Have a great night to all my sisters. Much love to you all! xoxo Lisa

honeygirl

Hi Sue! Love the pics! You are so darling and petite. I love you wearing the shoes. It completes us all on this journey we were all on together. And Sue , I love your yard. How manicured it looks. And in the next couple of weeks , you should start feeling more and more energy. Hugs to you and the boys. Love you.xxxx Mel

Suebee , you're gonna be just fine. And I can say that , cause I had the same tx as you are having and it really does go fast. We are here for you honey , and you have all of us"experienced" sisters to help you through it. Love ya Suebee.xxxx

Thanks Karen , hope you have a great weekend too.xxxx

Lisa! I wanted to be a chaperone for Danni!!lol I would love , love , love to be in Italy! I will pray for her safety , but I hope she experiences everything dear to her heart. Have a relaxing three days off. ahhhhhhhh, you deserve it!xxxx

Ulla , oh thank you for sharing the pics. You look absolutely radiant! And I love the house pics. Especially the last one where they cook. I would love to see that. Oh Ulla. You have gone through so much tragedy in your life so far , God is truly blessing you with greatness. I hope life only gets better and better for you.xxxx

Judie , Jule , Shelia , Shirlann , Jane , AE , UB , Nancy , Newbies , and anyone I forgot to mention , Lucy , Mia , Stephanie , Karyll , Valsul , I love you ladies and gentleman , Hope you all are having a good moment.xxxx Melody

honeygirl

OK , I am feeling quite "buzzed" right now! For whatever reason , my significant other asked me to go to a casino today!!!! Believe me , he hasn't wanted to go or do anything in a long time. Of course I say YES.

We really had fun. We lost our a$$es , but it was so good to get out with him , and enjoy ourselves. I had quite a few beers while I was gambling. So I really need to get something to eat. I have some pics of my furbabies I will share with you all. Love you , Mel

my3girls

Haha...Mel....I love it...you are buzzed!!! I am so happy you were out enjoying yourself today!! How fun!! You deserve a good fun day (with a buzz) out!  You better get some food in that tummy to absorb the alcohol!  A beer sounds good.  I should go get some...I don't have any in the house.  I am too tired to go out, and my friend never did call back.    Sorry you lost some money...but you had a great time doing it right?? Suebee..what is your chemo tx?  If you said it, I didn't read that part. Mel... I am sorry I forgot to have you go along with Danni!! She will have a great time! Seeing southern Italy her first 3 or 4 days, then heading to Paris and northern France, then on to Belgium (I think) and ending in Amsterdam.  Just a back pack, very simple!! She already has a hook-up in Italy.  A friend of her boss is picking her up in souther Italy at the bus station and taking her to her B&B.  She told me to get my passport, because in a year or so...her and I are doing an overseas trip.  So...where should we go?? England to visit Sue....then Sweden to see Ulla??  I would love it!! I also want to go to my first love....and explore Australia!! So....Jane...I may be visiting..lol. Let's see the pics of the furbabies Mel!!

my3girls

Hey Sue.....where does all the chocolate go that you eat?? You are so very tiny!  It must be in your big toe! lol.  Lucky girl, you must have a high metabolism!

honeygirl

My Sweetpea

Sweetpea on the quilt my sister made

My two little angel furbabies

my3girls

OH MEL!! HOW ADORABLE!! I WANT TO HOLD AND CUDDLE SWEET PEA!! LILLY...WHAT A GOOD BIG SISTER SHE IS!! TOOOOO CUTE!!!! anybody else having problems postin?? For me...it is going soooooooooo slowwwwwwwwwwwwwwwwwww!

honeygirl

Oh Lisa , it took me FOREVER to post the pics. And then I had to put in the dimensions , cause they were off. Its so funny , Lilly is running from the "terrible" Sweetpea! Lilly is really a laid back kinda girl , and Sweetpea is such a brusier. Sweetpea is so little , but she is jumping into the window sills and off the loveseat! Nothing is gonna stop her!

my3girls

Well...I am glad to hear it's not me and my slow computer!  Guess what Mel...I just found 3 corona's that I had hidden in the garage!! I just put them in the freezer for a bit!  I am so happy! I hope I don't fall asleep, before  they are cold enough to drink...lol. Sweetpea is full of kitty energy!  Hopefully as she get's older, she will take on Lilly's laid back attitude. I am tracking Danni's flight online!  She is over the ocean!! Ahhhh.....to be young again!  I am so happy for her...she so deserves this trip.  I bought her ticket for her..as a grad gift for grad school.  It only cost me $56.00!! Can't beat that!  She was hoping she would be bumped up to first class, but it was full.  She would have had a reclining seat with a foot rest, a 3 course meal, on real plates, eye cover, and a whole toiletrie pack along with movies and more!  Oh well...maybe on the way home from Amsterdam...if she is lucky!

honeygirl

Oh Lisa , you are such a good Mom. Your girls are sooo lucky to have you. And you have been blest with three angel-girls. Are kids can be a handful sometimes , but they really are great kids. I thank God for blessing me with such a great son. He can be lazy , and messy , but the core of him is so special and compasionate. I have had people call me after church , and say "I'm not going to tell you what he did , but you have a very wonderful child. Thats all I needed to hear!