please help
Comments
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Karen, I hope your dad comes around...but they have meds for strokes that need to be administered soon afterwards, so maybe you could get him to the dr on a pretense? My father's been very cranky lately...everything has to be his way and on his schedule, so I know how parents can be a worry.
They just gave me a brand new LCD monitor at work...oooh, I'm in heaven. My old one was getting blurry through the middle and everything had to be moved to the sides to read. Now I'll be spoiled and my old one at home will have to be replaced
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Everyone must be trying to catch up at work from the weekend. For me, it was five days, so I have some extra catching up to do. But I'll be working at home tomorrow 'cause I've got my surgeon's appt. to see about the next phase in this unwanted but incredible journey.
Kaloni, I'm a late-comer, too, but I think this is the kind of thread that enjoys "new blood". It keeps it lively and always at the top of the page.
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DERA SISTERS,,,AM HAPPPPYYYYYY...I MADE IT..I PASSED...YOOOOHOOOOOOOOO,,,YYEEPPPYYYYY
MY TEACHERS WERE REALY SHOCKED WEN SAW MY PAPERS,,I GOT 93/100,,IT WASNT EASY AT ALL AS IT IS NOT ABOUT WAT U STUDY OR HOWLONG OR HOWMUCH,,ITS JUST ABOUT UR ABILITY TO UNDERSTAND AND EXPRESS URSELF,,PHEWWWW..
NOW AS MY TEACHERS SAW WAT I WAS ABLE TO ACHIEVE AFTER 1 MONTH ONLY IN THE SCHOOL THEY TOLD ME THAT THEY WILL MAKE A SPECIAL PLAN FOR ME TO HAVE THE LVEL D(THE HIGH SCHOLL LEVEL)DURING THE SUMMER,,SO I WILL BE WITHEN THE SAME TIME TABLE AS I WAS NEVER IN MEDICAL LEAVE,,
I GOT MY PORT AREA CHECKED TODAY WITH THE REMOVL OF THOSE NASTY STICKERS,,IT WAS HEALING VERY WELL BUT THE DR SAID THAT THESE BLUISH AREAS R BRUISES DUE TO REMOVAL AND THAT I HAVE VERY SENSATIVE SKIN THAT BRUISED EASILY,,THE PAIN ALSO IS DUE TO THAT BRUISING..
2MORO I HAVE MY 1ST APPT WITH THE NEW PROFESOR ONKY FOR MY 1ST 3 MONTHS CHECK UP..
HOPE EVERYTHING OK..
DEAR MEL..AM THINKING ABOUT U..
SHIRLAN..LOVE UR WORDS AS EVER
LISA,,WAT A MORNNING,,IMAGINE ME WAKING UP EVERY MORNNING FEELING LIKE U FELT COZ I TAKE THESE PILLS WITH THE TAMOX AND MY STOMACH PILLS,,SO TILL NOW THE HARDEST THING FOR ME IS WAKING UP AND LEAVING THE BED,,..
KALONI ,,PLZ DONT SAY THAT U R LATE ,,WE R SISTERS ,,HOW CAN U FEEL THAT U R LATE AMONG UR SISTERS??
SUE,,HOW R U HONEY?
JUDIE ,,THANKS ALOT FOR THE BOOK OFFER..I WILL PM U MY ADRESS,,NEED THAT BOOK TO HAVE REAL LAUGH..I LIKE COMICS
EVERYBODY ELSE FORGIVE ME IF I FORGET SOMEONE,,
I STARTED TO FEEL SO SLEEPY NOW..
OFF TO BED AND GOODNIGHT
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OH DEAR KAREN,,I POSTED BE4 I SAW UR POST,,SORRY TO HEAR ABOUT UR DAD ,,THE GOOD THING IS THAT U R NOT LIVING SO FAR ,,U KNOW WAT..??I FEEL THAT OUR PARENTS LISTEN TO US MORE THAN THEY DO LISTEN TO EACH OTHER,,SO U STILL CAN TRY WITH HIM..HOPE HE FEELS BETTER SWEETY..
NANCY ,,ITS SO NICE TO KNOW ABOUT UR NEW LCD,,ENJOY IT,,
NOW MY EYES STARTED TO BE BLUREY,,NITY GIRLS
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Kaloni, you will be like another little sister we need to help along the yellowbrick road.
Ulla, Congrats on passing your test. That is something I can't do, communicate in another language and you are working on your third!!! sometimes I barely can communicate in English. I have however tried to learn American sign language but I am not fluent in it. Good night Ulla, have a good night's sleep.
Karen, I hope you dad will be ok. My gfather had a lot of TIA strokes before he had the big stroke that put him in the nursing home. As Nancy said there are new drugs to help stroke patients.
Nancy, I have 2 LCD monitors on my desk, a square 15 inch and an oblong 17 inch. I love them and when I get home, I can barely see my old cpu screen. (I need 2 screens for the order entry - one for the fax image of the paper order and one screen for the order entry) Some people who come in can't believe that I use 2 screens at once.
Sheila
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Sheila, I am jealous! I thought these video cards that support two monitors were just for gaming, but my son explained how you I could keep my Photoshop "tools", etc. on one and the image I'm working on on the other. The possibilities are endless.
Judie
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I have my computer set up so my outlook and the faxed images come up on the small screen, and my Corsair (the program that runs the company) comes up on the big screen. I have other programs (word, excel, etc.) that open on the screen in the area I want it to. Last year when I was out for my surgery, they moved my computer to another office and took out the video card so someone else could enter orders. I was released to go back to work the week of July 4, but the office was closed, my boss told me that if I was released I could come in and work a few hours a day to build up to an 8 hour day. When I came in that first day, I could not find my computer and he told to work on a different computer in another office, I could not get my settings right to view the images, so I gave up and did not work any more that week. I admit the IT director has us spoiled.
Sheila
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Ulla - congratulations! I'm so happy you got such a brilliant pass! It won't be long until you work as a dentist again - I wish you were my dentist!
Karen, I'm sorry your father is not well but so glad that you are nearby and can help in this way. I'm sure it means a lot to your mother to know that she can have her hair done while you check in with your father. So many older people don't want to see doctors or bother anyone. It would be great if you could somehow get him to a doctor but I know hard hard it is. I hope your dear dad is feeling better soon.
My mother is 91 and she is very frail, has early dementia and is not at all well. It's particularly hard on my sister as she lives nearby and visits her every day (she is in a nursing home now). She has frequent small strokes. Also she has had a couple of epileptic fits - I don't know why she has developed epilepsy so late in life...
Kaloni - you are so very welcome here and are already a very valued part of this group. I really like what Nancy said about this group benefitting from 'new blood' - I totally agree! Please stay with us! And that goes for everyone else who has joined along the yellow brick road!
Lisa - you poor thing! Such an easy thing to do when you are tired. You must have slept very well and I hope your day got better. I am quite excited about you and Mel meeting up - can't wait to hear about your own special Nordies at Noon!
Mel - thinking of you - how did your appointment go? Please give Sweet Pea and Lilly a cuddle from me.
Hi also to Sheila, Shirlann, Jule, Judie, Suebee, Stephanie, AE & UB, Lucy, Mia, Sue, AnnNYC, AnnW, Annie, Wren, Angie and everyone.
Love to you all,
Jane xxx
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Hi everyone. OK , thanks for all the prayers and good wishes. I'm good for another three months! Boy , when do I stop getting "butterflies" the night before my check ups!? Will this ever ease up? I think it is the memories of last year and the tx I had. As soon as I walk in there I have to start talking myself down from the anxious feelings. And now , I get to have a colonoscopy! Since I'm 50 , and bc raises the risk for colon cancer , they are suppose to call me and set up an appt. I've heard the "prep" is the worst part of it. Oh boy , more test results to be anxious about! For anyone who has had one , do they tell you right away your results or do you have to wait? Man , I came home and ate and ate and ate. I am such an emotional eater. And of course now I wish I hadn't. But I had to have the "comfort" feeling I get at the moment. Oh well , enough about me.
Ulla , Yeah!!!!!!!!!!!!!!!!!!!! Congrats to you! I had no doubt you would do well. You are so intelligent and expressive , I know your gonna be a dentist again before you know it! Love you honey.xxxx
(((((((((Karen)))))))))) so sorry to hear your dad is feeling bad. And your poor mom has to be feeling so anxious. I know its hard on you too , but am glad you are close to help out and be there with them. I hope he sees a doc soon. My prayers and thoughts are with all of you.Love you Karen.xxxx
Kaloni!!! You are soooo welcome here. And you fit right in. Remember , you were one of the first "angels" here that helped me through my travels down the "yellowbrick road"! You are so sweet , caring and compasionate and you have such cute graphics!lol Seriously , you fit right in sister. Love you Kaloni. xxxx
Jane , so good to hear from you. I will deffinately give the "girls" a hug and kiss from auntie Jane! They are such a handful right now , but it will be worth it as Sweetpea gets bigger. Love you Jane.xxxx
OK ladies and UB , its late. And I am very tired. I love you all. And hope everyone is having a good moment. Lisa , can't wait to see you!xxxx Melody
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Mel, Yes the prep is the worst part...drinking a gallon of fluid in a couple of hours is HARD. And then a few hours later you're on the toilet for an eternity. Then you can't eat until after the exam.
But the actual exam itself is a breeze as they put you in twilight sleep. You don't remember anything after they get you up on the exam table.
My dr gave me a verbal report of his findings right after the exam. Basically, they'll let you know if everything was clean (mine was), they found and removed any polyps, or they saw something that needs further investigating. A formal letter came a few days later saying the same thing and "see you in five years", and a written report went to my PCP.
Ulla -- CONGRATULATIONS!!! I am so impressed that you've picked up Swedish so quickly. I know you'll be a great dentist there. I may have to fly to Sweden to get my teeth done. Do they take Delta Dental insurance?
Karen, how's your Dad? When I see changes like that in older people, it has me thinking that they "know" something is wrong, but are weary of life. Sometimes, you have to inspire them back into the presence of the living. Does that make sense? If you can, bring him something that will engage him...a book on a subject he enjoys, a gadget, even a new pet...it might help.
Well, in a couple of hours I go to see my surgeon about this summer's surgery. I haven't seen him since I started my neoadjuvant chemo, so this will be an interesting conversation. I've got pages printed out from the Web about new approaches to breast surgery, and there's no tumor to remove.
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Nancy - hope your visit to the surgeon went well. You sound very well informed so you should have a great conversation with him - I hope he appreciates patients like you. I thought your comment about inspiring an older person "back into the presence of the living" was so well expressed.
Mel - I had a colonoscopy last year and it went really well. The preparation actually wasn't too bad. I think the stuff I had to drink was 'Picoprep' - so I didn't have to drink very much. It seemed to take ages to work - I thought it wasn't going to... but then it did! I had some worrying symptoms beforehand so it was a relief to get the all-clear results.
It's late and I have to get up at 5am to catch an early train to the city to see the dentist - wish it was Ulla!
Goodnight all,
Jane xxx
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oh Jane it would be my pleasure to be ur dentist,,u too sweet Nancy..well who knows..i cant keep talking about my good work but just need o say that my mother never accepted to have any extracted tooth by someone other than me,,my sisters used to accuse me that am hard hearted ,,how can i extract my own mothers teeth..??but she answered them clearly,,she told them that wat she is sure about is that no one is going to be more carefull and kind with her than i am..so they started to come to my clinic to have thier teeth filled ...and once they start with me they cant try any other dentist ,,i too have the same effect withmy patients,,they all tell me that i have a silky ,light hand specially with the anasthesia injection,,(infact i know that i have a very special technic that i used to do so my patient never feel the injection..lol)its my own proffessional secret that kept my patients comming to me during 10 years,,
now,my really good news..i met my new great ,kind,intellegent onky proffessor who examnied me and said everything looks great,,he said that my tamox SEs will ease with time ,,our meeting last for 80minutes,,and he told me that they r arranging to fix an appointment for me with a highly quilified famous plastic surgeon who s visiting the city were my hospital is comming to train some surgeons ,,and that they choosed me to meet him as he will start to work for me,,can u belive that..ppl travel to c that PS from all around sweden and have a very long waiting time for him,,but i have the chance that he work for me personally just in my time,,
it was really a good sign that i started to have good luck at last
our talk was very comfortable,,he changed my diagnosis again to stage 2 not 3 and he said that he dont believe in A B C llevels ,,according to his researchs during 30 years working on breast cancer in young women he said its more important believe in wat we can,,becoz he could never expect wat would be the outcome of his patients from their staging..he said that its just b%%ll $H1t and that he still have patients with wat he considered it advanced stage cancer that he thought it will reccure easily but they r still NED after 15 years,,he was so realistic and so hopefull in the same time
wev discussed my tamox and zoladex he said that it would be wise to keep on it for 30 months then have a full body check up.scans,x.rays..then start to conceieve,,and have medically monitored pregnancy,,and may be complete my treatments after iy..he said that the zoladex will help me to keep as much as i can of my eggs as long as he dont want me to lose them while am not thinking about being pregnant in the next 30 months,,
he gave me great hope,,,he was so kind and very helpfull in thinking with me..
i love u sisters
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SISTERS AM SO HAPPY,,HAPPY,,HAPPY TODAY ..
I WANT TO GIVE THE WORLD A BIG HUG..
MY HEART FILLED WITH LOVE..
AM FILLED WITH JOY AND I LOVE MYY LIFE..
I FEEL LIKE AM NEWLY BORNED BABY,,
LOVE U ALLLLLL
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Ulla, I am so happy that you finally got some straight answers for your questions from someone who is willing to listen to your concerns. It is also great that the best PS in the country is going to see you about possible reconstruction. I don't know what I would have done if I couldn't have the 'immediate' reconstruction.
I did find that the se's from the tamox did lessen the longer I was on it, but I was only on it 6 months after my 2nd biopsy and was taken off of it after my bilat mast.
Sheila
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Hello everyone! Thanks to all of you for your kind and reassuring words regarding my dad. Chase and I went over there yesterday and sat with him until my mom came home. I don't know if it was just my imagination, but he seemed more "with it" than he has in over a week. He was even wearing his dentures! You know he's not doing well when he won't even put those in. He seemed in decent spirits, but still hadn't eaten much. He told me he'd had a few grapes, but that was it. I told him that he absolutely HAD to eat some dinner, which he did, according to my mom. He has an appointment with his cardiologist on Tuesday, so I'm sure he'll be sent for a CAT scan or something.
Ulla, I'm so happy for you! Congrats on passing your test! I knew you'd do great. You're so incredibly smart and express yourself so well.
Yipeeeee, Mel!! You're good for another three months! It's crazy how we make ourselves nuts over these things. I'm due for a mammogram, and I'm already sweating bullets.
How did your visit with the surgeon go, Nancy? Sounds like you went into it well prepared. Good for you!!
Jane, I was so sorry to hear about your mum. It's just so sad to see them deteriorate, isn't it? My dad was always this big, strong man. Now he's just a shell of the man he used to be.
I came upon a video that had me BAWLING this morning. For anyone who's ever lost a pet, I'm sure it will touch your heart like it did mine.
http://www.petplace.com/dog-videos.aspx?p=65
Hugs,
Karen
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I'm thrilled for you, Ulla!!! I just knew that this new onky would have good news for you!
Love and hugs,
Karen
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Ulla you sound so-o-o happy. That makes me happy! Happy is infectious!
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Just a quick post as I don't want to miss my train...ULLA!!!! I am SOOOOO HAPPY for you!!! Nancy is right - happy is infectious!
Karen - so glad your father is feeling a bit better and that he is seeing the cardiologist.
Love to all
Jane xxx
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Ulla!
That is wonderful news! I am happy that you are finally getting some quality care and that you are so hopeful!
Hooray!!!
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Oh Ulla, I am SOOOO haappyyy!!! I have prayed and prayed that you would have a new doctor. I have had times when I just knew that for whatever reason, the chemistry just wasn't working with a certain doc. That just happens.
And NOW, all this wonderful news!!! I am so glad. It brings tears to my eyes, life is hard enough without jerks in it.
God bless you, I need a dentist too.
Hugs and kisses, Shirlann
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Ulla, add me to the list of happy ladies!!! WOW - 80 minutes!! And the best PS in the country!!! FABULOUS!!!
Karen - glad to hear you Dad is better. Sorry, can't watch the video if its about animals and going to make me cry!!
Mel - my colonoscopy was a breeze. The stuff I had to drink was nasty but I hear they have pills now you can take. Just an FYI - I took some colon cleanse pills for a week beforehand so the prep day wasn't so bad if you know what I mean.
You need to take someone with you- UB went with me and the doctor told him everything was fine right after the procedure.
By the way, Congrats on the 3 month!!
I went for an ultrasound last night to check for endometrial(sp) cancer (sorry ladies, its a possible side effect of Tamoxifen) and NED came for a visit. Needless to say I was very relieved.
Where is our Sue?? I would have loved to talk to you the other night but I don't have your number. Could have sworn I did...................
Hope everyone is having a great night.
Hugs,
AE
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Dear Sisters xxx
Just want you to know I am thinking of you loads ...it is my bad few days ...10 days after tx and I am crashing big time ..... I have slept eat and work for the last 48 hours ... I am soooo tired and ughhhhh god .... fatigue kills me....my back is so bad too...too much lifting bending working.... I cant wait to take pix and post.... my day off is Saturday ...so am hoping to catch up with everything and start to be on the up xxxx
love to everyone..... I think of you loads when I am not here....
it is nearly 2 am ...am back off to bed...my sleeping pattern is diabolical ....
LOVE YOU LOVE YOU LOVE YOU ALLLLLLLLLLLL XXXXXXXX
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Good Morning Sisters !!!
RISE AND SHINE .....!!
Congrats to everyone with brilliant news this week.x x x x .....We done well ain't we!!! This week has been full of great news for us....xxx
Anyway off to work soon....but hey TGIF .....WOOP! WOOP!
Have a great day... I will see you the other side of a busy day @ EAT FRESH !....and a million Halal sandwiches
later !!
Much Love x x x
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Good morning ladies!!! Ooohhh, that sandwich looks good, Sue. Can I have one to go, please?
Just wanted to wish you all a happy Friday!
Buddy says, "Smile!!! Life is good!!"
Hugs,
Karen
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Hello all!
Well not so good news here.I will be starting chemo this month as a preventative. Scared out of my mind!
The percentages are just better to do it, I just can't grasp it though.
I am a hairdresser and can't come to terms with the hair loss. Maybe I'm vein but I would rather cut off my big toe than do this. lol
Can anyone help me get over this fear? I have cried too much and want my positive approach back, but it feels like I've been kicked when I'm already down.
Please help!!!!!!
Hope you all are having a wonderful week and enjoy your weekend!
HUGS AND KISSES!
Suebee -
Hi Suebee--I'm so sorry to hear your news. I remember the fear and it was just paralyzing--but for a very short period of time. My emotions ran the gamut....and in retrospect it wasn't long before I mustered up the energy to pull out an arsenal of fight! Lean on these girls and do your research....I found the more information I had and knew about the more powerful I felt.
Take care and know you're in our thoughts--Erin
PS--I was dx last summer and wish I knew all the ladies here before now. This has been so therapeutic for me--I hope its also helpful to others. So many reached out to me....so I hope I'm giving back in some small way.
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Awww, Suebee. I'm sorry about the chemo. I know it's scary--I've been there, but you can do it! Looking back on it now, it wasn't nearly as horrible as I thought it would be. As for the hair loss, it really is a much bigger deal for some ladies than it is for others. For me, it wasn't awful. I had my niece cut it all off as soon as it started to fall out. I hated my wigs and wore hats throughout my chemo, which I finished up on Jan. 30. My hair is about 1 1/2" long now and just recently I've had the confidence to start leaving the house without a hat. The hair was only really an issue for six months. Six months, Suebee!! What is six months?? Nothing, in the grand scheme of things. You'll be FINE! Trust me--you're a lot tougher than you give yourself credit for!
Take care and have a wonderful weekend, sweetheart!
Hugs,
Karen
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Hi to all the newbies - stick around, we don't bite!!!
(((((((((((((((((((((((((((((Suebee))))))))))))))))))))))))))))))))
I remember my very first post on this site was about being petrified about losing my hair. I just couldn't stand the thought of it. But you know what, you do what ya gotta do and take things as they come. I got my hair cut short in anticipation and then UB did the rest when it really started coming out. Allot of ladies gather all their friends and have a hairing cutting party!! I even know someone who, once bald, had her sister do a henna tattoo on her head. If I remember, our Sue cut her hair when allot of the ladies were on line rooting her on.
The wigs they have nowadays are amazing - everyone I know commented on how natural mine looked. You can even go crazy with hats and scarves. There are plenty of websites out there to help you.
You would be surprised - you might like the way you look o'natural, there sure is allot less upkeep!!
Hang in there - we're here for you.
AE
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Sueps,
I also have/had invasive and insitu ductal that is/was intermediate.I had a lumpectomy but have to go back for another one on June 10th (my guess is they didn't get all of the DCIS). They did a sentinel node biopsy and, then, took out the 2 lymph nodes that the radioactive ions drained to (info. on that at http://www.mayoclinic.com/health/sentinel-node-biopsy/BC00017 ). The pathology report said that my glands were negative (I was very relieved)! I will, at least, need radiation and I don't know what else. I asked for a double masectomy but they thought that would be pretty ridiculous. Have you ever checked out: https://www2.mdanderson.org/sapp/contact/selfreferral/index.cfm
(#1 in the USA). I can't imagine having to wait so long! The wait is harder than anything else! I am 54 and cancer runs in my family, too. My mom had bladder cancer, my dad had prostrate cancer and my younger sister had breast and skin cancer. They are ALL still very alive and heathy although my parents are almost 90. My sister had her breast cancer 16 years ago. I did also have a sister with a spinal tumor but she died 33 years ago (the
dinosaur age when dealing with cancer). So, don't give up
) . . . but actually I know how you feel; I have 4 kids (one still at home) and 2 grandkids that need me.
ltuenge
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SueBee, If Sue can get through this you can get through losing you hair. As an 18 yr old it was traumatic seeing my aunt lose her hair then as as 41 seeing my mom lose her hair was still traumatic. When my aunt was dx with her ovarian cancer her family moved in with my family so we could help take care of her. We had planned a trip to Asheville to see the Biltmore Mansion after school let out. The morning of the outing was the day my aunt started losing her hair. We had joked about the projected hair loss prior to that, but that day she said to go on with our lives, she put a hat on and would not take it off until we got home, then she had my mom cut her hair after getting the wig. When my mom lost her hair, we had gone out for supper with her and dad, the next day she came to the office after lunch. I was not expecting her at work that day and at first I did not notice her wig, it was so close to her natural hairstyle and color.
You can make it through this trial.
Sheila
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dear sue
i know how it might feel to know that u will lose ur hair,,i cant say it was easy ,,but i didnt ait till it happen..i shaved once felt it will fall out
my husband was in a busness trip ,,i was putting my wig wen he came..and he thought its just my new short hair cut be4 it fall out..
i kept the wig till bed time,,i told him that i just coulnt let IT happen to me and i wanted to DO IT TO MYSELF..for me this was realy helpful..this was in 18 october 2007..
after that i kept using my 2 wigs till i finished my rads in 27 march..this wen i stopped putting the wig coz i couldnt stand it any more there was SEMI HAIR but i didnt use hats,,
believe me it will end b4 u know it,,
hope all the best for u
now about my day
our swedish teacher took us to old swedish houses since 1800 ,,something was realy nice,,we had very good time,,here is some of the pix
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