please help

cloudhowe

Hi Girls

Thanx for your prompt replies and good wishes, feeling much better today! Nancy (I love that name, such a warm friendly kind of old fahioned name.  I always think of Oliver Twist!, thank you so much to you and everyone. for your support. This is so cathartic!

Cathi prayers winging across the pond for your wee lassie. She is lucky to hace a mum s lovley as you. Glad the fur kids are getting on. My 3 cats are all sibs, the Big Grey is one year older, but for some reason they barely tolerate wee Patrick the Cattrick (my wee 'special needs') though they adore each other!! Makes me vexed for wee Pat, he's such a nervous wee bundle. I'm sure your girl will be ok though/ I ordered a wig from an internet company and the sweet wee lass I spoke to had cancer of hte cervix 4 years ago, no chemo needed or anything, just laser and she is ABSOLUTLY fine now. Got the wig on sale for £49!!!!! 1/4 price in the sale.  Getting my fitting on Monday for my custom one.

Luck and licks sweet Sue on your appointment. I always use tea bags too. That's why they started to make them round, I'm convinced, to sit on the eye orbit. I think it's the tannins in them that tackle inflamation.  I've always found bicarb useful for the dreaded cyctstatis. It neutralises the acid. Horrible to take though!

To each and every one of you blessed ladies, my warmest regards. WIll probalby sleep tonight and get my shots for the next 6 days. They worked miracles last time.

God bless and keep you

Nettie 

1Cathi

Hi All, thanks for your wonderful thoughts for Jaclyn, back from the DR and I can't say we got good news, more unknowns and the waiting game begins. %$#$#@# ,  thinking and living in fear that your child maybe facing something as terrible as CA, so SUCKS!!!!!!!!!!!!!!!!!!!!!!!!

She has "High-Grade" changes in the cells of her cervix, next Thursday she is scheduled for a Colposcopy, to determine if Pre-Cancer or the cells have "broke away" and are actual CA. Thats more waiting for results to determine treatmenst that might be needed.

I just do not know how I am going to deal with this, I have spent 3 years thinking and learning about BC, now do I have to learn about Cervical cancer, I don't want to,  I HATE THIS!!!!!!!!!!!!!

Jaclyn seems to be handeling ok, but we know how that is, maybe just putting on a brave face for me,  as I am for her.  I just can't stop crying now,  why would God do this.

geebung

((((((((((Cathi)))))))))).  It really stinks that you have to wait yet again for the final result. Isn't that the worst part of this - the not knowing and the waiting? I know it's no consolation but I have read many times that cervical cancer is one of the most curable. So that is something to consider in the worst case scenario. I'm still hoping and praying that it isn't CA.

Hugs to you both,

Jane 

sueps

Cathi xxxx 

I am sorry to read about Jaclyn... if its any comfort... I had to have a coposcopy when I was age 21... and then went on to have the cells lasered off.... they were abnormal...I havent had any trouble since...in fact now I actually think about it ... I dont remember being shocked... how naive I was....I am praying for Jaclyn .... nobody deserves to go through so much....I will be praying hard for you both throughtout xxxxxxxx

My visit to the onc was non eventful... he wants me to have the genetic testing so I could have my ovarys etc removed...and he has prescribed some arthritic drugs.... thanks for your kind thoughts xxx   I go back to see him in a year .... I just hope the year is non eventful ! 

barbe1958

Ah Cathi crap! ))))))))))))))))))))))))SQUEEZE HUG((((((((((((((((((((((((((

I know you'll be sick as a dog until you know. My thoughts are with you. Go hug Margo.

sueps

Barbe ... I love seeing animals interact lol...especially if there is a new addition... 

geebung

Sue, what a relief. I knew it would be ok at the onc's but what a relief for you! Good idea to have the genetic testing although I am sure the last thing you want is more surgery. Hopefully, you won't have to have it.

portiasproudmom

Well, S#@T!!!  I'm so sorry that you didn't get good news, Cathi.  Poor Jaclyn!  She's way too young to have to worry about this sort of garbage!  It's probably no consolation, but a good friend and co-worker of mine had the same problem in her late 20's.  Luckily it was all pre-cancerous stuff.  She totally sweats it every time she goes in for a pap now.  God, I hate BOOTFACE!!!  Hang in there, hon!  Let sweet Margo give you big, wet puppy kisses.  It will make you feel better.

Nettie, I'm so glad to hear that you're feeling a bit better today.  You are such a breath of fresh air.  I love your posts, and agree with Jane--they are never too long.  I love your "accent" and the way you speak.  I read your posts and it's as if you're right here in the room with me and I can actually here you talking.  I hope the Neupogen shots do the trick for you again this time.  Take care and get lots of rest!

Sue, I'm so glad your visit to the onky was uneventful.  Wow!  A full year until your next visit!  That's wonderful!  I'm dreading my appt next month.  Maybe my doc will prescribe some arthritis meds for me as well, or at the very least, refer me to a rheumatologist.  I hurt so badly.  The hip aches all the time now.  I'm sitting here with a heating pad on it.  I hate feeling to achy and old.  DAMN BOOTFACE!  This is all your fault!!!!!!!!!

We had to take Chase to the after-hours medical clinic down the road from our house, last night.  He woke up congested and kept complaining about his tongue hurting.  I let him stay home from school and didn't make him play in his soccer game last night (it was POURING down rain, and he was feeling yucky),  We met Rhuel's parents for dinner, and his dad noticed that Chase had a large lump on his neck.  I immediately freaked out and we took him to the clinic.  It's a swollen lymph node.  The doc prescribed antibiotics, and seems to think that it will go down on its own.  He said that in rare occasions, these things need to be drained.  We'd have to go to the hospital for that.  Hopefully, it won't come to that.  Anyway, by the time we left the clinic, and found a 24 hour pharmacy to fill the rx, it was 11:00.  We let our goldens in at night, and Rusty (the pup) was covered in mud when we got home.  Rhuel tried to clean him off, but Rusty kept wiggling, so Rhuel gave up and said he was staying outside.  It was 37 degrees out, and he was soaking wet from being out in the rain and mud all day.  I brought him in and bathed him at 11:15.  Rhuel was mad because I went against his wishes, but oh well.  I think that's one of the reasons the old girlfriend and he broke up.  She couldn't stand his "my way or the highway" attitude.  I just ignore it and do what I want anyway.  LOL!!!!!!!!!  He always gets over it.

I feel like poop today.  I'm queasy, achier than usual, and tired as a dog.  I think I'll take a bath in my garden tub later.  May even turn on the water jets. 

Love and hugs to everyone,

Karen

Makratz

Congrats Sue!

Cathi, So sorry to hear the news.  That really sucks!!! I will be praying for you and your daughter.  Big hugs to you and please send one to Jaclyn.  I hope your new puppy can take you mind off this for a few minutes anyway.  Give her a hug too!

dink

Cathi, I;m sorry to hear about your daughter, I will keep her in my prayers. 

Sue - I'm gladd about your visit.  One whole year to wait to see him again - what are you going to do? LOL  You know it seems like I go to a doctor every time I turn around and when one says I don't have to see them again for a year or for a long while, I'm lost.  Isn't that weird?

I went to the arthritis doctor today for my check up and all of my labs were normal so I have "tendonitis" for almost two years.  I put my on valtoren gel and I use it four times a day.  I have had the best day today - I haven't felt this good or had this much fun in a while.  It was full of surprises and funny things.  At the arthritis doctor this morning I was talking to the receptioninst and she asked for my co-pay and I told her no not until I had been served and her mouth dropped and she didn't know what to say.  I started laughing and said here's your money so she started laughing.  Then I wne for my yearly check up 9GYN) and I told me I looked and sounded better than he had ever seen me or at lease in a long time.  He was a little saddened about the failed reconstruction but smiling.  While doing my exam he was just a talking then he said yes, Leesa you are beautiful and even smell good, I raised up and pushed the sheet down and I said excuse me.  He realized that he was rambling and jsut talking then he realized what he had said and turned red.  I said I appreciated the  compliment and I would tell Donnie so he could look.  We all laughed.  He didn't even charge me for my visit.   Then my PS was trying to pre-cert my new surgery and was having problem so I called the insurance company and I told the young lady I would love to have boobs and could she help me.  I explained what happened with the doctor's office.  The lady said excuse me and she put me on hold and called my PS and came back on the phone and told me, your boobs have been ordered..  I then went to the sonic to get a dring and cheese stick and the gentleman gave me a discount on my order.  I got to work and one of my doctor's was back from vacation and he hugged me and said I was glowing and looked great and sound great.  Then I saw my other doctor, these were my bosses, and his administrator in the office told him that my GYN said I was beautiful and he said I was then my husband showed up, brought me lunch and told me he really missed our times alone and he thought I looked special today.  Boy it was really a good day. 

Well, I just thought everyone could use a laugh.  Jane, you are very correct, grandkids are my life and I love them dearly.

So about the rambling but I'm just so happy about today.

Leesa

Anonymous

Bad day, good day. Happy stuff, sad stuff. Life. All of it counts.

Cathi, there is no comfort, I know, but try to maintain hope. And breathe. That's it. As Linda said, hug Margo for a while. I love you!

Karen your avatar is adorable. Rhuell is a pain sometimes, but aren't we all?!!1

Leesa, I can imagine how great you looked...it comes across in your words. What a refreshing breeze.

Happy day for me, too. Dinner at a nice seafood place with family, including a newly introduced family member who is charming, intelligent, handsome, and fun. I had a wonderful time.

Very, very, very tired tonight. My love to each of you. I did read all the posts and send warm hugs to all.

cloudhowe

Hi Kiddos,

Yes it's me again. Another sleepless night. Had the family up for the evening - it's our Wednesday date, and dosed (watching Dancing on Ice - yes, I am addicted!!!) after they left and I cleared up.

I was worried that my Auntie might have been upset at me wearing a bandana (I love her to fragments, but she is very appearance concious, and I did have nice hair) and my wee niece The Claire Bear, who has hair down to her wee bum, but they were absolutly cool!!!! So we had great craric (Irish for FUNTIME). So much easier if you don't feel that your are passing pain on to your special folk.

I am getting my new (BRAND NEW) TV replaced - it has developed a fault, so they will be replacing it tomorrow, any time between 7am and 6pm!! It's 6.02 just now so I think I will have a steep in a boiling hot bath (got a jaccuzi type thing) for an hour. I LOVE boiling hot baths, so much that I almost crawl to bed hyperventilating,  Have to stop once I get the lymph nodes removed so I am just packing in as much of a boiled lobster-fest before I have to be more sensible! Nurse usually comes about 10ish. Think I'll learn to give my jabs myself. I'll need the nurses post op and they are great, but it'a kind of tying waiting in ....

My nephew is coming up to take delivery of my tv and install it into the Virgin box, DVD and all that happy crappy. Once he extracts himself from hia 'scratcher' (bed) What is it about boys and waking/getting up????? Is that just a Scottish thing????

That'll give me time to get my rug trimmed (bought one today over the Intenet as a stopguard) and - all being well - take a trip down to Glasgow to Maggies Centre. That's a FABOULOUS place for all of those afffected by Cancer (sufferers, family, friends ....) - it's a converted gatehouse to a hospital and it warm and welcoming beyond belief.  I am soon to be booked into a 2 hour pampering session with a trained make up artist and therapist and we get about £400 of make up to take home - all top brands. Carol, the Welfare Rights Officer is also based there and she is an absolute warrior an she will be acting on my behalf. So that's the plan. Provisional plan .. See if any of it works out.

Cathi my wee pet. I  don't know if this will give you any solace, but I know DOZENS of girls who have had abnormal PAP's (including a mix up myself at one point) and I do not know of anyone for whom it turned out to be serious. We used to call it 'erosion' and laser just burned off the cells.  I was speaking to my sis, who is a nurse, last evening, and she, too, knows of lots of girls who have been through this, including sweet Sue. Telling you not to worry would be like telling you not to exhale, but it's probably nothing like our journey. The waiting is purgatory I know. On a lighter note, how's wee Margot? I still think that pic of her wee sorry face after a bath is a hoot?

Sue - have a boring year off, running marathons and being a yummy mummy with absolutly no tummy.

Ok - off for my boiling session - how red can a wee white woman go - you have no idea!. I look like I have Scarlett Fever. Know it's bad but it feels soooooo good. Lots of flower essential oils and a good dash of Philosopy's Pure Grace Both Smellies- I love that smell - and water so hot it'll take the skin off you.

Lovely, as always catching up on everything.

Nettie xx 

1Cathi

Thanks everyone for your wonderful thoughts, Sue I am so happy for your wonderful Onco visit, and Leesa sounds like you had a good luck day. We need those.

Thank goodness for Margo, she sure is a mind healer, I know for sure I would have spent last evening googling Cervical Cancer had it not been for her, she was way to playful to allow that. She, Ed and I "wrestled" for almost 2Hrs, even the cat joined in for a brief few minutes.

I just wonder how bad my familt "pedigree" is, my maternal GM had leukemia, my mom Liver CA, me and now perhaps my daughter.

Hope everyone has a good day.

XOXOXOXOXOXOX -Cathi

livesstrong

Thought you all would like this

.

my3girls

Hi sisters...checking in. Did not get a chance to read ALL the posts.

Karen..LOVE, LOVE the new pic!! I love the color of your hair too!  It may stay curly..some people do. Mine is still curly as can be. I still need to post a new pic! I have decided to wear it curly more than straight. Seems like the women always compliment it curly. Men..prob. like it straight..but MEN...I don't care anymore..I am doing whatever I LIKE!!

Well..met Michael..went well. We talked, kissed. But the issue is...he is an hour away..like Dennis was. So..not sure if either one of us want to pursue anything with the distance.

I got asked on a date for tonight..meeting a 57 yr old guy for a drink. Looks and seems nice. No expectations though...I GIVE UP ON THAT!!! Just going...see if and what may happen..if nothing..no big deal!!

Nettie..hope each day gets better for you!!

Cathi..praying for your daughter...fill us in as soon as you know something.

Sue..good luck on your gyno apt.

How is our UB?????

my3girls

DARN IT...I SENT MY POST AND DIDN'T READ THE LAST PAGE...I WILL AND CATCH UP...SHOOT...STUPID ME!

my3girls

((((((((((((((((CATHI))))))))))))))))))) hugs to you my sweetie!!! I am still praying that things will be easy on poor Jaclyn. I agree, way too young for this garbage! As Judy said...cervical cancer, is if is for sure..is an easy one to cure. Love and hugs to you and Jaclyn!!!

Karen...sounds like you can control Rhuel as needed!! Good for you...poor Rusty..it would have been too cold being out there all wet like that. You have such a good heart! Love ya Karen.

Judy..glad you had a nice dinner!! You so deserve many happy days!

Sue..glad things went well with the onky.  I don't think I go until this summer sometime?? haha

ok..here is my stupid scary story!! I ran out of my scrip of effexor the other day, so I missed a day..then I got it filled but thought at 7pm it was too late to take it, that it might keep me up. So 2 days w/out this med...and I woke up feeling so off! I felt like I was having a stroke on my left side. Vision off, balance off...tingling in my hands and feet..really tired...hard to walk straight. I went to work (not sure how..don't remember driving...I know..bad girl) got here..and right away, everyone was saying..what is wrong with you. They  said I was pale, eyes not focused. They wanted to call doctor etc. They started asking me questions, and I said it was hard to describe how I felt..but what I thought it was. They asked about medications..etc..that is when I remembered missing 2 doses of the effexor. There is a girl here that takes it..she came running out...got one for me..opened it up and made me take it ASAP!! She said missing 300 mg like that..can put you into convulsions..and in the hospital!! I had no idea. It took most of the day for me to feel much better. I went home and slept for hours and hours!! I will never ever forget a medicine like that again!!!

back to work!!

love to you all!

xoxo

Lisa

1Cathi

Gee Lisa don't forget a dose again, thats scary stuff.  Hey if you and Michael really like each other and see something happening down the road,  I know an hour is a long trip, but it's worth it. When I first met Ed he lived an hour away, but he did work very close to my apartment, at first he would just stop by after work, we would hang out, go out to dinner what ever, then he would drive home, I did drive up to him a couple times, of coarse as time went on we would have a sleep over or 2 during the week -  LOL. Some how he started leaving more and more things at my apartment,  I had a VERY small apartment when we met, he had a huge house.  Anyway it worked out, but yeah gotta do whats right for you.

Makratz

Lisa,

Have fun on your date!  I also agree that an hour seems long, but not for Mr. Right. 

Keep taking those meds....scary!  Be sure to refill early.

bingbing

Hi, I do not post very often, usually on the lymphedema thread, but I read  this thread every day. Love the comraderie spelling ? you guys have going. Something caught my eye and thought you would not mind a question. Leesa you mentioned valtoren jel. After I started arimidex my knees, espedially one hurt when I walked or got up from sitting. Then about 7 months after I started the arimidex my wrist hurt something awful. I already have arthritis where the thumb reaches the wrist. That area anyway. But then I noticed swelling on the top of the hand right by the wrist and awful pain in the knuckles of my hand. I went to ortho dr and he gave me declofanac. Boy did that help, I took it for about  a month and then had my blood checked at my regular onc appt. Found that  my hemoglobun was on the low side one of the side effects of declofanac, so I stopped taking it. I have been good since, except for the area up from the thumb, but I can live with that. However this week I noticed swelling and pain in the wrist area, same as before. I have been waiting for a topical declofanac called pennsaid to be approved by the fda. Supposed to be in August. Didn't know there was another topical declofanac out there. Does voltaren work for reducing pain and inflamation of the joints. I looked it up on internet and was impressed but thought I would ask someone who has first hand expierence before I ask my dr for a prescription. If you would respond i would appreciate. Thank you   :Sharon

barbe1958

Hey, I drive an hour to WORK! And then an hour BACK! I'd certainly drive an hour for a good man. It's even better if you don't feel like seeing him as an hour is enough distance to keep him from just "dropping in". On the other hand, if it works out, a great reason to say stay...

my3girls

well....I guess if HE felt I was worth it...it wouldn't be an issue for him. So I have a feeling, it's an excuse for him....oh well...his loss!

Makratz

That's right, Lisa!!

1Cathi

Thats right on Lisa, because I never drove up to Ed's for a good few months, until I knew he was willing to make the effort. And he was. Smart Move Ed -LOL

portiasproudmom

Geez, what's an hour??  I live in a rather rural area, so it takes about an hour or more to get to the "big city" of Tacoma.  Most of the years that I worked, I commuted either to Tacoma or to Federal Way.  Both took about an hour.  That seems like nothing to me.  If he's using that as an excuse, Lisa, don't waste any more time on him.  Like you said-----his loss!

Hugs,

Karen

portiasproudmom

Hey, can I bitch about Rhuel again?  I know--I've been doing a lot of that lately, but he makes me SOOO mad sometimes!  The other night, when we were at the medical clinic with Chase, waiting to see the doc, I moved and my hip did it's very loud popping.  I commented that it's been hurting a lot lately and that I really need to see a rheumatologist.  He had the nerve to tell me that I'm a hypocondriac!!  I said "excuse me??  I guess I imagined my cancer too."  GRRRRRRR!!!  He said that I'm totally paranoid, so I said that he'd probably be too if he'd had cancer and had to live in fear of it coming back.  What the hell is wrong with men?? 

Okay, I'm done venting.  Thanks for listening! 

Hugs,

Karen

1Cathi

HUSBAND BITCHING  - is always allowed Karen  That was a not so nice thing to say, but I guess sometimes others just don't get it. I have been having alot of rib tenderness, hip, back and leg pain/discomfort for several weeks now,  need to make appointment with Onco,  one of these days,  Ed hasn't and I am sure wouldn't say anything like that (not saying perhaps he is not thinking it), but when its a really bad day with the discomfort I feel some how impelled to hide it as best I can, just because in my mind I think he has gotta be saying "paranoid" some where deep inside.

The thing is  - at times we are - but we have earned that right in my book.

1Cathi

HERES MARGO - She love attacking the big mouse a toy my cat has never touched once.

Shirlann

Oh Karen, Mandalay Bay is my favorite!  It is soooo nice!  You will love it.  Have you seen a Cirque show? The one called "O", (stupid name) is the best one.  I liked Mystere too, though.  Try to get tkts.  Even now on the Net. Honey, hubby is suffering from not being "superman", and not being able to solve your fears.  So the next best thing for these CAVEMEN is to tell you it is nothing.  See, you scared him, that's all.

Yes, Cathi, let us know about daughter!  Danged female crap, wish all mine was gone.  My hip is better, I made the mistake of telling him we have a pool in our complex, so I have to trudge out there every day, no one else is in there, and do excercises!  ARGHH, I do think my hip is better, though.

So we are all fine, having a ball with Cleo, who runs to the door with Dusty, she thinks she is a dog, she wants to go with us when we take him.  I feel so bad leaving her, but cats usually hate car engines, she doesn't know that, but she meows behind the door and I feel like a cad.

Lisa, don't feel bad, I woke up one morning and began to bring up old, old things I had done, wrong in my life, started crying, just fell apart, and I NEVER do that.  I went up to make the bed and in the dark I had tossed my Paxil towards my mouth, but it was on the rug!!!!!  I felt like a nitwit.

Hugs and kisses to all, Shirlann

geebung

Cathi - those are the cutest pics of a pup I have seen for a long time! I love her pink, spotted tummy! She looks like she has SO much personality. What a delight!