please help
Comments
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Congrats Honeygirl!! I hope your sister is fine too!
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Judie, what a beautiful, moving poem! Thank you so much for letting us enjoy it. I am blown away by your many talents. You also expressed so well how I feel about this thread of wonderful, funny, sensitive, wise and supportive women. Thank you all of you for being here.
Lisa, I hate to hear you speak of yourself like that. I know what you mean though, the way you feel about your scars. However, you come across as being vibrant, funny, young and beautiful. And that's just in your writing! Keith is lucky to be getting to know you and it will be his great loss if this doesn't progress into a relationship.
Nancy, great to hear that you are sporting your own hair again. It must feel very liberating to ditch the wigs.
Love to all
Jane
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Mel! Great news! I am praying that your sister gets the same. I had no idea that skin tags showed up in mammos.
Sue - I'm so glad you are feeling better. Wow - 3 mile power walk! You should have more days off and go to more birthday parties!
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Thumbs up! Its great news. Now remember to breathe again
Judie....This is a special place, not like any other I have seen or visited. So open and welcoming, a place for sharing the good and the sad, and there is always someone who really understands. I can't tell you, all of you, how much I appreciate that. No demands for explanations, no pooh-poohing of the crazy thoughts and worries...just acceptance, support, hugs, prayers and laughter. I feel so rich in the gift I have been given of this place.
Sue, so glad to hear you are feeling better!
Ulla, good to hear from you, hope you are feeling better, stronger.
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Hi ladies and UB. Thanks so much for celebrating with me. I talked to my sister. The girl that did the mammo said , she didn't see anything that would need more pics , but thats all she could say. I think its fine. Cause they usually do more pics if they see something "abnormal". Thanks for all the prayers and good wishes.xxxx
Hi Sue , Makraz , and Jane! So good to see you here. Sue , its OK that you didn't go to the docs. Just as long as you are feeling better. We just get so concerned for you when you are feeling so bad. But I know what its like to feel better and know its gonna be OK. You trust your "gut". Thats a good thing. I know you have gone to the docs when you needed to. So , glad you are better! And so glad you could go to your sweet nieces birthday party. Aren't nieces great? I have two that I kinda grew up with. And they mean the world to me. Sorta like the daughters I never had. And she will always remember how "Auntie" spent her special day with her!xxxx
Judie , you are soooo soulful. I love reading your posts. Sometimes I read your words and I feel like "yes , thats how I feel" , but couldn't get it out right! Thank you for your wonderful insight. Love you sister...
Oh , and that poem you wrote about your daughter. Simply beautiful!
Hi Makraz , aww , gerbils are sooooo cute! I never had one. We had a hamster named Oliver. I guess a hamster is one up from a gerbil.lol Then a ginnea pig... But they are still pets. What are the're names? I guess because of apartment living most of my life , I have a passion for cats. But , I love them all cats , rats , dogs , gerbils , ginnea pigs , pigs , fish , oh yea and snakes! I tried to get my son one when he was in his "snake phase' , but I couldn't find one that was a vegetarian! So , we setttle for Oliver. How old are your children Linda? I'm thinking they are young from looking at your avatar. You look very young. Hope you are off to a great start on the weekend.
Hi Jane , so good to see you here. Thanks for all your support. Please post some pics soon of Blossom and your mountain home. I am so anxious to see them. Is your summer winding down there? Our winter is here. It was 50 degrees here today. But tonight , it is snowing and cold again. But that is how spring is here. So maybe its not to far away....
Ulla , sooo good to see you and Tender here! Now , if only fumi would show up...
OK ladies , gotta go for now.
Blessings to you all , Debbie , Fumi , Wren , Shirlann , Karen , Cheryl , Nets , Sheila , Nancy , Jule , Janet , Lisa , AE and UB , and all my sisters here. Love you , Mel
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Hi EWB! Sorry , I missed your post before I posted! Hope you are having a relaxing Friday. Thanks for your support. Yes I am breathing again!
And I sooo appreciate this place like you do. So wonderful to be a part of something so special and heartfelt.xxxx Mel
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Mel - great news re your sister! I'll bet she's breathing easier now too. Yes, it's the last day of summer here and the days have a delightful crispness to them. I love autumn! I picked some apples off my tree the other day - the flavour matches the season. I don't have a camera or the equipment to plug one into the computer. When I see my sons next weekend I am going to ask them for assistance.
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Hi ladies. First off, I have a huge WHOO HOOOOOO for Mel and her sister. I totally know the relief that you're feeling. Now you can relax and enjoy your weekend. Love you, Mel!
Judie, that poem was absolutely beautiful. I had tears in my eyes as I read it. Your daughter must be so grateful to have you as her mom.
I'm so glad you're feeling better, Sue! I guess we won't have to send those flying monkeys after all!
Aaaahhhhh...I love Autumn too, Jane. It must be beautiful where you are. It was about 45 here today, with blue skies and lots of sunshine. I'm looking forward to Spring.
Sisters, I'm really nervous. My hip started to hurt a little bit several months ago. It was just a catching, cracking thing at first. Then it started to hurt when I moved my leg certain ways. Now it pretty much hurts all the time. It's not a sharp or deep pain. It's just a sore, achy pain. It doesn't keep me up at night--in fact, when I'm resting it doesn't hurt at all. Also, my lower abdomen has been hurting (where my ovaries are). Again, not all the time, but occasionally. My back and chest are sore too. There are spots on my collarbone and just below my ribcage that are sore as well. I just envision myself totally engulfed in bootface. My next onc appt isn't until April. I don't want to schedule sooner. Honestly, I'm afraid. I'm afraid she'll send me for x-rays and scans. I'm afraid of what she'll find. Every time I turn around, there's another stressful thing to deal with in my life. I don't know if I can handle any more sh*t.
Sorry everyone. I've been worried for a while now, but didn't want to be a downer. This bootface garbage is just so stinking scary!!
Hugs,
Karen
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Hi Mel,
Glad to hear your sisters mam was clean too! It's awful to have to worry about those things. I'm in the worrying stage myself. I had my 6 month mamo (posted on another thread) 2 weeks ago and they found calcifications in both breasts, so now I wait 6 months to see if there are any changes. Isn't that great! SARCASM!! I may have an MRI done to check them out but can't quite yet since it's too soon after rads to have it done. ANother month or so and I should be able to do it.
My boys are 10 and 13. Thanks for thinking I'm young but I'm 42, clearly not young! My boys gerbils name is Marshy. They had another one named Jesse but she passed about a month ago. Funeral services were tough in the Boston Area in January. It's hard to dig a hole for the burial under a couple feet of snow......but I did! What part of the world are you from, Mel? Perhaps close to me, it was 60 here today!!!!! but will snow on Sunday, UGH! Any kids??
Geebung - Ahhh SUmmer and Fall. I have several apple trees and look forward to my fall harvest every year. I've got a long way to go before the apple trees even bloom. Happy to hear yuo are enjoying yours. Can you send some my way?
Sueps - We love you too!
Have a great weekend everyone!
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Good evening sisters!
Mel...I knew your sister would have good news. No retakes are a very good thing!!
Makraz...42 is young!! Younger than me! Mel and I are both in Ohio..so you get much of the weather we do...just a bit later. I am sure you are ready for spring as well! Don't worry about the mammo's and calcifications. I just went through that..and they even did a biopsy..and it was all clear! Keep the faith!
Jane...I can just picture you walking in the fall crisp air, and picking apples. You always give us such clear pictures to visualize. I love fall too...I just don't like our brutal winters that follow. So..most of us that deal with them...are very ready for spring and summer!
Karen, honey, I am sure you are worried about some of the pain and discomfort you are feeling. But, try not too. Don't you think it's just part of your medication side effects? What are you on tamoxifin? Karen, I hurt almost everyday. And it's never in the same place. Sometimes its worse than other times. I really think it is just part of the crap we have to deal with after all that we have been through. Try not to let it get to you. Just let your oc know about it in April...I know it will all be fine. Love you Karen!
Susie Q...so glad you are feeling better!!! I feel better now! Have you thought anymore about coming to the US this summer?? Let us know ahead of time.
Cathi..I just went back to look at your Halloween pics...I wish I was there...it looks like you all had so much fun!! I think we could do some serious partying girl. I will tell you all a little secret (well not really anymore..haha) I was voted (for the females) CLASS PARTIER my senior year in High School! Did I shock anyone?? Or could you tell by my spunk I had it in me!! lol. Yeah..my dad was not too proud of that accolade! haha!
Jane...thanks for your sweet comments. It is hard to have a reconstructed body..lol. But I have so much more to give than that. I think somewhere out there..God has someone for me. I just can't wait to find him!
Well..going to go hang with the little Oliver. Olivia flew down to Florida this morning to check out a school near Orlando..and to visit her boyfriend. So just me and Oliver this evening..but I work in the morning.
Nancy...so glad to hear you have ditched the wig!! Doesn't it feel good? Happy for you!
Love to all of you!
xoxo
Lisa
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Lisa,
Thanks for telling me about your similiar situation. It's good to hear that it quite possibly could be nothing. Of course, I always think the worst!
I too love Cathi's Halloween pictures and would like to have a party with both of you...and everyone else for that matter.
NancyD - I keep forgetting to congratulate you on your hair. You must be thrilled. Enjoy your hair. Is it the same as before? I hear a lot of woman say there hair come back a different color or curly when they always had straight hair. I hope you are loving it!
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Makraz..did you have to have chemo tx's? If so, did you lose your hair? I had 8 rounds...lost my hair, and it came back with more gray..well maybe it was always there..I highlight all the time..haha. But it also came in curly. I heard that most of the time that changes..and it goes back to straight if yours was straight. I wear it both ways..so I am enjoying having the option.
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Doesn't surprise me one bit that you were voted class partier, Lisa! That's funny! I did my share of partying in my day too. Now I poop out at 9pm every night. LOL!!!!!!!!!!!!!!
Thanks for the encouraging words. Yes, I'm on Tamoxifen. It has aggrevated my arthritis, but I just seem to be hurting ALL over lately. It used to be here, then there, but not EVERYWHERE!
Love to all,
Karen
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I did not have chemo, oncotype dx score of 15, so onc said it wasn't worth it. My tumor was small less than 1 cm, grade 1 stage 2. I often wonder if I should have done chemo, I guess we will always second guess iur decisions. I did have 35 radiation treatments.
Your hair is beautiful! Of course it came back with more gray, look at all you went though! Mine has a lot of gray in it now too, not sure if it's the BC or my boys! I decided the other day that I don't like teenage boys and I definitely do not like teenage girls!
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Hmmmm. I always blamed all the gray hairs on chemo. Now I'm wondering if my 15 yr old daughter has more to do with it. She was going to go see her dad in CA over Spring break. Her grandma was going to go with her, but fell and broke her hip earlier this week. Needless to say, the reservation has been canceled. Now we have to take her with us wherever we end up going. Whaaaa!!!!!!!! I love her, but she's a pain in my butt!
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Little sh*t just asked me how old I'd be on my birthday----50? Very funny! There's nothing wrong with being 50, but don't make me older than I am! Of course, I feel more like 70 with all these damn aches and pains. Sigh.........................
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It's defintiely your daughter!! Sorry to hear about her grandma, I hope she's OK! I love my boys too, but wish some one would taken them from age 13 to say, 19?? Maybe 20?? When do they start to listen their momma's again??
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they start to listen when they are in their mid 20's..haha. But it's still not like when they were little. Karen, I started getting grey when my girls were younger...so I think it's the kids! I know what you mean about Portia being a pain...trust me I know!! Raising 3 girls...I have BEEN THERE DONE THAT!! haha. I have to say, I am really going to miss Olivia when she leaves this summer. My house really won't be the same without her. I will be lonely. She can be a pain sometimes, but mostly, I really enjoy her company.
Karen...I didn't shock you?? How could you tell....lol. I agree, I am tired everynight, esp. after I get home from work. I talked on the phone tonight with another guy from that dating site..he said what are you doing home on a Friday night? I said..well, no plans..and I work in the morning...oh well..tired, boring me..haha. Just kidding.
xoxo
Lisa
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Mel, I'm so happy for you and your sister. That is truly awesome.
Judy - the poem was really beautiful. You are one of those people I could just sit and listen to everyday.
Lisa - congrats on the new man. I hope things go well. I can see you smiling in the words that you write. You seem to be happy and laughing/smiling a little more these days. You are also a very pretty lady and when you find the right one, no matter the age, he will love you scars or no scars - but I do understand how you feel.
Karen - I have aches in my left hip and left thigh and it's been going on for a long time - I had an MRI performed on my back and the L5 vertbra is broken on both sides so the top portion of the vertebrae soes one way and the bottom portion goes the opposite direction and the muscle that stretches from the back around the hip and down the thigh has contracted where is tries to hold everything in place so now my hip pops out of the joint so I have learned how to pop it back and it hurst for about an hour after popping it back then it feels better for a few days or weeks then we do it again. Both of my arms hurt from the elbows down to the hands and when I stretch my arms out theey hurt so bad and the right forearm swells. My hands and feet burn so bad. My GP sent me to a rheumatoid sepcialist and I'm waiting for lab results and x-rays to come back. I'm like you, I feel that there is something really wrong but I don't want to know it.
Nancy - I'm glad to hear that the hair has grown out and the wig is gone. I've been talking to my grandaughter (7 y/o) and we've been talking about her cutting her hair to donote to Locks of Love for the children with cancer. We are going to try to look into this program. Her hair grown so fast. We had an intense discussion on cancer and why I don't have boobs at this time. My MIL died of lung cancer and she asked, "Why couldn't they just cut hers out." We had to have a brief anatomy class. Boy, you can see the wheels moving as she is thinking about what we were discussing. Just how in depth do you go with a child that age?
Makraz - I think my son was a little easier at times to raise than my daughter. He and I were very close as he was going through the teenage years. He could never lie to me but I had to ask the correct questions to get the information out of him but he wouldn't lie to me. My daughter was sneaky. I would tell her no and she would go to her dad and only tell him partially what her plans were or whose she was with or where she was going. She is alot like me in that she gets demanding and wants everything done yesterday and she gets impatient quickly. She is self motivated and very smart. HA! HA! We are much closer now than when she was a teenager. She went through a lot growing up and it was hard because I was mad at her dad for not asking and supervising better and at myself for working nights.
Sue - I;m so glad you are feeling better.
AE, EWB, Ulla, Wren, and everyone else including the party lady herself - Cathi- I hope things are going weel for you all. XOXO
Leesa
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hello all my sisters ... Sue, Karen, Nets, Sheila, Nancy, Jule, Janet, Lisa, Cathi, Mel, AE and UB, and all any of my sisters not listed here ... I can't remember them all, but you are all loved and needed,
Well, I saw my ps on Wednesday and I told him just what I thought, he sat there grinning while I vented. He claimed that was not what he said to the ER doc ... I said then why would they have said that? Any way ... we got things sorted out. He listened to me, for the first time since all this began. The tubes were still left in as they are still draining - 4 weeks yesterday since the surgery, and yesterday one of the stitches came out and one drain fell out, freaked me out, then I started to drain lymph fluid from the hold again, YUK He said the final exchange is planned for 3 months from now. I should get my first fill next week, then every two weeks after that. He said 100 cc's each time ... that sound about right? At the time of the surgery, he put in 300 cc's. He said he will fill to 750 for the exchange.
Mel, congrats on your normal mammo! what a relief!
Lisa, I grin as I listened to you lately tell of your experience with your new date. Gives me hope. I wonder if I will one day . . . right now, it's not in the cards, not yet.
And Karen, what Mel said about Tinker's poo, I was thinking that but thought you all would think I was nuts! I used my pup's poo one time to fertilize my garden, the sweetest produce ever that year! LOL
I had to call my dgf in Kentucky today. She is always one to get my mind off things. I love her so much, I miss her. Haven't seen her in years.
I am really starting to feel the Taxol from Monday. And when I was at the councelor's office today, I noticed my hair is shedding ... it has to stay until Tuesday, when I get it cut! I blow my nose and it bleeds! Is it because of sores starting already? So tender to move, to walk. And my oc thought it wouldn't start until next week. ooooo bouy,
My son is coming over tomorrow to help clean house and do laundry for me. I already walk with a cane so it will be a challenge going through chemo. Chin up, right?
Ok, enough, joints are achey, gonna lay backand watch tv, chat later, you are all in my thoughts,
Cheryl
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Cheryl, I actually did put my dear little Tinker's poo in the flower bed. If my hydrangeas do extra well this year, I'll know why.
I've been thinking about calling a Rheumatologist, Leesa. It's just so nerve wracking. I want to know what's going on with me, but then I don't, because I'm scared. Sigh...........I'll say a prayer that we're both okay...just getting old and rickety. LOL!!
Rest well everyone!
Karen
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Linda, I think Lisa's right. They don't start listening until they're in their 20's. My SIL and niece butted heads constantly as she was growning up. Once she turned 21 or so, something changed and now they're the best of friends. I guess there's hope!
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Mel! I am so thrilled with your news. Of course I knew that you and your sister were just fine and I didn't worry for a moment. (lie) Relief is such a great feeling! (truth) Even when you ask for support when facing something tough, you manage to bring warmth.
As to boys/girls/teenage I will refrain from offering my own experiences. I don't want to scare anyone. Suffice it to say that I had to run away from home because they refused to. But yes, it does eventually morph into humanity and you realize that maybe you have actually managed to contribute a fine specimen or two (or more) to the world.
Hang in there Makraz. BTW, 42 is so young as to be almost underage, IMO!!! A couple of months ago I went through the "should I have done chemo" crisis. I even asked my onc if I could still re-visit that decision, but she said it was too late. I soon settled back into my original rationale 'cause it was the right thing for me.
Karen, diagnostic possibilities:
1. Tamoxifen...it can get worse over time and can cause constant pain.
2. Canceritis phobialis...a common affliction here
3. Something autoimmune.
7. Bootface
So are you trying to imitate Sue? Get thee to a doc my dear. If nothing else, that much pain needs management. Suffering is non-productive. Knowledge is power. Head in the sand won't change a thing. I'll come with you if you like. I have lots of courage when it's not me
. I'd be happy to lend you some. Put Portia on the bus and I'll keep her for a few days. She'll be SO glad to get home and be your sweet angel after what I put her through! Great job confronting the PS, Cheryl. It sounds like he is on board now. You've sure had the complications, but this, too, shall pass. How wonderful to have a son willing to clean for you. Good job, mom!
Leesa...leave it to a nurse to discuss anatomy and surgery with a 7-year-old. I laughed out loud. But hey, she asked, didn't she? I hope you figure out what's going on with your body soon so that you can get treatment.
LIsa, I assumed you were a partier in high school and beyond. Your eyes give you away. And here you are dating one guy and chatting up another already. I'm so jealous. Of course you have my permission to share anything I write with your daughter. I admire her so much. Can there be anything harder than to do the right thing for a child regardless of your own desires? She rocks!
Elaine, your description of this place is beautiful. Very, very well said. And you are a part of the gift.
Sue, how dare you get well before seeing a doctor!!! Are you trying to embarrass us? Sheesh! 3 miles. Good going! I'm working on achieving 3 blocks in one go.
Cathi, you are a kick. I LOVE the photos. I love your style in general...ass-kickin', sexy grandma wrapped up in a cozy cuddle-kitten package.
Happy LifeSaver Day, Nancy! How's life with the "boys" these days?
Today the Sun came out in Seattle and brought light into my world. It's been a very good day.
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Gosh Judie you made me cry -a good cry though. XOXOXOXOXOXOXO
Mel, so happy for you and I just know your sis will have the same great news.
Hoping everyone enjoys a wonderful weekend. Off to bask in a sunny 76 degree day.
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Cathi....I am so jealous!!! I want 76 and sunny! I't sunny here..but only in the 20's!! BRRRR. But like Judie said...the sun came out and brought "light" into my world. Darn it Judie...I just LOVE, LOVE reading your posts!!! I so wish you lived closer to me!!! I wish we all did....darn it what ever happened to our possible OPRAH union??? I so wish it could happen!!
Judie..now how in the world would you guys have any idea that I was a partier?? My eyes..come..on..don't I look all sweet and innocent?? NOT!! lol! Can't say I party much now...but I do on occasion. This second guy, that I talk to, lives about 2 hrs away..too far for me..but he is really nice...and interested..but that's too far. Keith is not feeling well. He sent me an email here at work to let me know that is why I didn't hear from him yesterday..running a temp of 102...said..he is never ever sick..hasn't been in years. Want to know my response?? Haha..well besides the..I hope you feel better, rest and drink lots of fluids..I was naughty..and said...ahhh...sounds like you need a nurse..or at least someone pretending to be a nurse!! haha..I am bad, arent I? Oh well..gotta have some fun! Right?
Judie..thanks for saying you admire my Alise. I do too! That was one of the most selfless things she could have done. I know even though it's been 4 yrs and she see's him...it's still very tough for her. She has had things the hardest. She was the one that her dad took out his anger on. He was very abusive physically and verbally. Damn him!!! She has given the adoption agency her name and phone number, wanting them to use her for any other women or girls who are not sure about what to do when pregnant or about open adoption. She really is hoping God will use her experience in a positive way for all! She does rock!!!
Leesa...I am sorry you are hurting so bad too. Thanks for the nice compliments...you are too sweet!
Cheryl...I hope you rest after this tx...you really need to take good care of yourself. As Judie said..good job mom...raising a son that is so loving and caring that he comes over to clean and help you!! Drink lots and lots of water, or some kind of fluid.
Ok...back to work ...last day of 6 in a row!!! woohooo....2 days off after this!
Love you sisters!! You all rock in my world!
xoxo
Lisa
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Good afternoon everyone. Hi Lisa! You little "party animal' you!lol Two hrs is to far? Not for love! Sorry to hear Keith is sick. Yes "nurse Lisa" you better go and attend to his fever. On second thought , you might make it spike! Oh well , take some tylenol just in case....
Karen , I know exactly how you are feeling. I had some aches and pains before tamox , but it seems to have increased it. And right now , I am having intense pain in my thumb and wrist. I have a docs appt Monday. I'm thinking maybe its carpal tunnel , or arth. thumb , but I definately have to get it checked out. I just can't take the pain anymore. Especially at work. I have been wearing a compression glove , that helps some. This has been going on for a month now. And I need relief. HATE going to the docs , but sometimes you just gotta. I hope your pain lessens. I really think its the tamox aggravating to arth. This happens to so many of us on tamox. And you just got a clean bill of health not to long ago. We all are in the same "canceritis" boat. Our minds always run there first. Remember , we always tell Sue to get to the docs , we have to too. Don't make me wine Karen , "If I have to go , so do you"!!!lol Hang in there.xxxx Mel
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Dear Karen - a 15 year old daughter - well let me tell you about those. MOST OF THE TIME YUCK -YUCK AND DOUBLE YUCK (LOL). My oldest (who is now 28) actually started her "Exorcist Behavior" at about 13, OMG!!!!!!!!!!!!!!!!!!!!!!!!!!! I thought for several years nothing could be any worse. THEN it happened.
My youngest......, (now 26) who was absolutely the sweetest, most lovable content child, she was just a slow bloomer I guess. She went to bed one evening @ 16yrs old I went in to say good night as I had done for 16 years. And no lie - I saw her head spin on her shoulders, she floated up to the ceiling, she started spitting green slime from her mouth and I am pretty sure she said "Satin Will Get You" I wore garlic around my neck and carried a cross for several years
Those days have long passed, and the most wonderful thing that I can say about it all is NOW THEY BOTH HAVE DAUGHTERS - HA-HA
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Cathi - you're right with the "Now they have daughters, LOL" My daghter and I went on a shopping spree at Grapevine Mall which is an outlet mall in Dallas. Madison (7) began whining about, "I'm sleepy, I want to be by momma, I don't want to be here, I want to lay down, I don't want my seat belt on and KaLee, my daughter looked at me and said "OMG I can't believe the way she is acting and she is so loud, we never did that!!!" Needless to say, I had to remind her that she did do that and many times she was "unhappy" like Madison was coming home. Mel, Hello you, you sure are a sweetie. I haven''t read anything from Sue - Sue are you OK, I know you said you were feeling better - just checking. Judy, you are so sweet, Yes, I think my children ask more questions than normal because my husband and I are both nurses and they always see us reading something regarding health or watching TV about ER Trauma or whatever. Right now they are seeing me read alot on the eyes and retina since that is what the Surgery Center will be working on. She is very inquisitive and wants to know how things work and the what if's and anything else. LOL. Connor (5) just wants to make sure he 'never get a shot." Oh, I have to brag - I was so tired last night that when I sat down in my recliner, my little Madison gave me the best foot massage with lotion and then the best hair combing and fixing "Not."
Karen, Cheryl, Nancy are you doing ok. Lisa, I went to party and mainly watched, I had to be careful because when your dad is a police officer for 30 years, all of his friends know you and feel the need to watch you, then all of my brother's friends were all like big brothers, so I still didn't get to party. Hey maybe you ladies can teach me, any takers? lol. Hey, Cathi, the children are going to Disney World March 11 through March 21, how's the weather going to be. Tuesday, Wednesday and Thursday were all in the 80's then Friday the high was in the 60's and today, I don't believe it has gotten out of the 50's. Crazy huh?
Everyone have a good evening. Leesa
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To all the wonderful people here, God bless you all. The way you work together as a family and care make the fight alittle easier. Karen sending an extra hug, Mel thanks for the nice note. Cathy, I am jealous too, its cold where I live. Lisa I wish I had your energy to work 6 days a week, Thats great. Cheryl, good luck with your fight, You can do it! To all the other wonderful friends
Jane, EWB, Makraz, Sue, Jane, Nancy, Leesa, etc,.....................Hugs, Debbie
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Hi sweet things
Nettie here
Well that's the first week of FEC over - I should have been admistered an immune boosting drug daily by the district nurse for 7 days after chemo but left without it! So I had to pick them up when I went to get my results of the biopsy - 4 days later. They were refrigerated in the same small ward where my brother died, and I was looking at the open door in which he died. Because there were injections and other drugs, the onc sister was on the phone for 10 mins to see if arrangements had been made for home visits etc and I just said that I had to leave. And told them why.
They gave profuse apologies - no one's fault, just the luck that has followed me like a bad fart on a string for the last couple of years!
Getting some of the side effect now, tiredness, tender gums at the back of my teeth,no swelling or pain just a wrong kind of gritty feeling. My eyes are a bit sore and light sensitive and am very, very pale. But ..and I blush to say this .. I AM SEVERLY CONSIPATATED !!!!!!!! I have been living on homemade smoothies with shedloads of fruit for the last month, but my big tum is bloated and my wee bum is sore, even with the aid of, again I blush, gylcerin suppositories. Why didn't I anticipate this?? I am awash with water, tea and all sortsa fluids -a few wee drams as well!! We can't be unsociable when we go out with friends now!
Getting my wig fitting on Wed next, and next chemo on - I kid you not - Friday 13th March. Isn't it ironic, doncha think? 'Like rain on a wedding day, a free ride when you've already paid ...'
Great to hear about anniversaries and continuing good health - totally inspirational.
Lisa, hope things work out. Confirmation names are picked by the child at confirmation and are, traditionally, the name of a saint whose life to which they aspire. I speak as a convent educated, Irish Catholic -Scot. Lots of Irish folk live in Scotland. I am now agnostic, but utterly respectful of the traditions in which I was raised. I would perhaps ask him why he picked his confirmation name. Just to test/tease him. Do let me know his reponse .. It could be telling? Or at least a talking point. Cannot hurt to ask,my dear brave friend.
Gotta try and sleep. nurse coming to give me a shot tomorrow.
Nana - I am outraged at the treatment to which you were subjected. Like you,I have just stepped onto the the Yellow brick road and don't know what to expect but you were bullied and should take action. This is quite hard enough on it's own without the FECing bullying - or patronising - or condecending or dismissive attitude that that is deemed to be our lot. I know squat about the system in the U.S. but there must be a way that you can register your experience. Motto - oraganize - don't agonize!
Love you lots like jellytots.
Nets xx
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