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  • geebung
    geebung Member Posts: 1,851
    edited February 2009

    Nets - so sorry to hear that some of your nodes were positive. They were doing just what they should - catching the nasties before they got loose and the chemo will kill any cells that are left.

    Karen, I think you are really NORMAL. I used to find my old dog's fur caught in the cracks of the verandah a year or so after she passed and I'd get misty-eyed. I have kept her lead and bowl.

    Lisa - can't wait to hear all about your hot date! Hope you have a fantastic time!

    Jane xxxx 

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  • cloudhowe
    cloudhowe Member Posts: 236
    edited February 2009

    Hi Guys,

    Nettie again.

    Karen,I have 3 cats, my furry, purry posse. Are all siblings, tho Whispa (the Big Grey) is a year older. I DO NOT think you are weird. When my old cat Pepe died I was inconsolable, and kept hearing him too.  I kept one of his teeth, he was  old and it was loose and stopping him from eating, so he let me gently remove it, purring all the time. I don't know what I would do if anything were to happen to my wee feline family. They are 8 (Whispa) and 7 (Pat the Cat - or, his posh name, Patrick the Catrick, and wee Ted the Ned) And like all of you wonderful chappies they provide such fun, love and comfort. Whispa and Tedi are wee whores and go to everybody and if anyone stays over, well they just have to welcome them by sleeping with them (sorry ON them) demanding cuddles! Definitly a case of love me, love my cats!!

    Lisa good luck on your date! Gory details to follow, I hope!

    I can't believe how tired I have become so quickly - thought that would be further down the line. Also have no appetite, but am living on fruit smoothies, so getting my 5 a day, a few times a day! ALso yoghurts and probiotic drinks - any suggestions? I don't want to be too weak to not go thrrough FEC next month.

    Just 4 sessions, and one down!

    Buy pets,

    Speak soon.

    xxxxxxNettiexxxxxx

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  • NanaOfTen
    NanaOfTen Member Posts: 191
    edited February 2009

    Hi Everyone! So much in the time I've been away.

    Sue, hope you are feeling better ... I'm right with you, I do not like going to the docs, but the past weeks, I see one almost each day of the week, if not at their office, I have a nurse at my house checking on me. too much

    Karen, sorry about your little furbaby. 

    so, anyway . . . 

    Nets, sorry about the positve node result, dayum this beastSince I've been here, there's been so much going on. Finally made it home. Be it ever so humble, there is no place . . .

    Will be four weeks this Thursday since my surgery. I still have the tubes in me. I have so much fluid building up, it's hard like a rock from my collar blade to the center of my chest, to under my arm pit it starts to feel like a water balloon and is starting to circle around to my shoulder blade in the back. Last Thursday morning I woke up soaked, the lymph fluid was leaking from the tube holes in my body - not draining into the bulbs like it should be, nasty! my night shirt, sport bra, bed linens were all soaked!! I didn't know if I should call EMS or what, so I called the nurse center that comes to my home. I was scheduled for one to come out on Thursday, so we decided to wait. She calls me in the morning, tells me to call my doc. Now, why they had me see this plastic surgeon, I don't know. His main office is a 1 and 1/2 hour drive away and he is only in a local office one afternoon each week, and of course that was Wednesday, the day before this happened. I call and talk to his nurse, she said I better call his other office and try to catch him before he leaves for surgery b/c he'll probably want me to go to the ER. Instead, he says I need to get to his office in less than an hour. Surprised I'm supposed to transport myself there? First off, I don't drive, I have a head injury, he knows this! and even if I did, no one could drive that fast! So he says, very rudely - almost yelling at me, I don't know what you want me to do!!!??? I tell him about the nurse coming out and he says she can unplug the drains.

    The nurse comes out, she works on them for over an hour, no luck. Says I need to go to the ER. My daughter gets off work and takes me. They decide to admit me to observe overnight and would more than likely do surgery in the a.m. to replace the JP tubing b/c of so much fluid collecting in me. ok, we sort of figured that but dayum, don't want surgery again but it is so uncomfortable. IN the meantime, they are calling my surgeons. The general surgeon is hands off the JP drains, says the ps is taking care of them. so they call him, and he says ... 'she's called my offce a coupld of times (which I didn't, unless he counts talking to his nurse as one and then him and the second!) and then tells the doc that he told me to come in and see him, but I wouldn't and I can just wait till I see him next week' (which is tomorrow) so when the doc is telling me this, they have this attitude like I am a drama queen!  I'm just doing what I am being told - have the nurse handle it and she says go to the ER .... I so wish I could see a different plastic surgeon to finish the work.

    When I saw him last, I told him about the horrible burning pain I was having. Felt like a huge open wound, ripped open. He blamed it on the cold weather. Even my son n law chuckled at that as I was not in the weather, I stayed inside, nice warm fireplace running, etc, and he knew how bad it hurt me. The night it was worst, I could get no sleep and the drainage was so dark bloody it was almost black! the next couple of days it finally started to turn to the yellow color and when it finally changed color, the burning stopped, so there was a connection there.

    I need a doctor who will listen to me.

    Yesterday I had my first chemo treatment. So anxious. my bp was 148/84 when I arrived. They started me on just the saline, then piggy backed it with benedryl, pepcid and a steroid. after that was done, he added a piggy back of the taxol. lucky me, he said most people only get 100 units, I get 300 (I believe he is giving so much because I go every 4 weeks, not more often as most people do), so I have to get my hair cut this week or i won't be able to donate it. after a couple of hours, my bp was back to normal 114/70. I got scripts for anti nausea meds and pain meds, taking the nausea now as a preventative,was up at 2:30 this morning feeling it already, and made sure I took it so I didn't get worse and the muscles are aching flue like already.

    My son just came by to change the litter box. My oc doesn't want me to do anything with it, even with the face mask, because of my immune system - i'm prone to MRSA infections, which is why the chemo is 4 weeks apart and b/c of my seizures. So I stayed in my bedroom until he was done as the powder floats in the air when it's changed, but he took the whole box outside to empty it so it wasn't too bad. He will come by a few days a week to take care of it. I am thinking of getting a littermaid so it's scooped each time she uses it and then he just empties it and changes the litter when needed. We'll see.

    Tomorrow should be in the 40's, so hoping to get a walk in, hopes it helps relieve some aches. I know next week will be my down week and am preparing for it.

    Hugs to all, will be here more often, just having been feeling too well lately.

    Cheryl

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  • geebung
    geebung Member Posts: 1,851
    edited February 2009

    Cheryl, hearing about that doctor made me so mad. How dare he speak to you like that and expect you to be somewhere in an impossibly short space of time! Idiot! I'm sure he's technically brilliant but he seems to have completely lost his heart. You DO need a doctor who will listen to you. I am sure that being treated with kindness helps treatment and recovery. Any chance you can find a doctor whose heart hasn't been turned to stone?

    Hugs,

    Jane 

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited February 2009

    Cheryl, that doctor is a heartless jerk!  Jane's right--you need to find a new doc who's an actual human being with a heart!  I'm so sorry you've had such a difficult time.  It must feel wonderful to be home!

    Hang in there!

    Hugs,

    Karen

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited February 2009

    Thanks everyone for reassuring me that I'm not strange in wanting to save any and all reminders of Tinker.  Portia has her bed, bowl, leash and collar in her room.  I don't think she'll ever let me get rid of any of it.

    Sleep well, everyone.  Love you all!

    Hugs,

    Karen

    PS  I hope you had a great time tonight Lisa!  We want a full report tomorrow!

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  • geebung
    geebung Member Posts: 1,851
    edited February 2009

    (((((((Karen))))))) Sleep well.

    Nets, I loved hearing about your furry, purry posse! Great names too - particularly Patrick the Catrick - just wonderful!

    I have one furry angel. Her name is Blossom. She is the most loving cat I have ever known. What would we do without our dear sweet furry friends? 

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  • NanaOfTen
    NanaOfTen Member Posts: 191
    edited February 2009

    I know our furry friends miss us as much as we miss them. After being gone for the two weeks, coming  home, my lil Sophie gave me a scolding for almost an hour, the little thing wouldn't stop letting me know how much she didn't like being left alone that long. LOL

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited February 2009

    Nana that DR. should be strung up by his "TOU KNOW WHATS". What a jerk. Glad you are home.

    XOXOXOXO- Cathi

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2009

    Cheryl - OMG - what an ordeal you went through.  I am sitting here fuming.  Please try and change doctors asap. 

    Just keep taking your med's on schedule and you should be OK.  Expect to have some jitters from the steroids and some fatigue.

    Hang in there - you have one down and are one step closer to OZ.

    AE

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2009

    Karen, I am sorry about the loss of tinker. When we had Snoopy put to sleep, my brother put a large flat stone on the grave and that summer carved Snoopy in the stone like a grave marker. When we left Statesville, we brought the stone along and my mom has it in the edge of her flower garden. My sister had a miniature collie mix for 12 or 14 yrs and when Danny had to be put down, they kept his tags, she found a cute biscuit shaped porcelain trinket box and has his tags in it with a picture of him sitting next to the box.

    Cheryl, I would find a ps that listens to you. You need to have a good communication between him/his office staff and yourself to make sure that you get the results that you want.

    Sheila

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  • my3girls
    my3girls Member Posts: 3,766
    edited February 2009

    Ok girls...quick report!  I have to take many tests online today at work!

    First...Cheryl...that doc is a jerk!! Find another..and quick!! NO EXCUSES for that behavior!

    Ok...I was a tad late for my date..only about 10 min.  Before that he text me to be sure we were still getting together...and we text msgs back and forth for about 10 minutes...they were funny and light hearted...and sweet!! He makes me smile, and laugh even through a text message.

    Anyhow..I walked in, looking pretty good..wore my hair straight, but curled with hot rollers..it's almost touching my shoulders...I had on my straight legged jeans, tucked in knee high black leather boots. I wore a white cami v-neck, had to show a little peak of "the girls..lol", and then a red form fitting cardigan over it. I saw him sitting at at table straight ahead..and recognized him right away. He saw me and stood up..and was like "wow..your hair is so much longer". (my pic on the dating site is my avatar here). He gave me a hug..and we sat down and ENJOYED each others company with great conversation and many laughs for the next 2 hours!! It was as if we knew each other for years...VERY EASY!!

    He is as handsome if not better than his picture showed. Tall, dark and handsome..lots of hair...and a complete gentleman. Dressed very nicely, sport coat, dress shirt and pants. We had a few drinks and a few hourderves. At one point..he leaned over the table and said.."can I give you a little kiss?"...of course I said yes!  Just a little one on the lips...he said it was hard to wait..he liked my lips..lol.  We had to leave, since his son had a sitter.  He walked me to my car, gave me a few more kisses, and a hug.  It was great!! I know we will see each other again..very soon!!!

    Don't want to get my hopes up...but it went very well!!

    xoxo

    Lisa

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2009

    oh no! Lisa's got a new boy friend! At my first date with my now dh, we took my son along to a local family oriented BBQ barn (literally in the barn). They have a stage area and dance floor for cloging and a loft area that over looks the dance floor. We were sitting in the loft and John dared Donald to kiss me. then John got jealous of him after we started getting serious.

    Sheila

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  • my3girls
    my3girls Member Posts: 3,766
    edited February 2009

    well..not sure I would call him a "boy friend" just yet...lol

    I called my daughter Danni..on the way home last night..she said..Mother..you sound giddy!! She loved it.

    John was young then right Sheila? I can see him getting jealous.

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited February 2009

    Lisa that sounds very romantic,  and he sounds sweet. So I have a question about him walking you to your car -did he open your door for you? It doesn't really matter, but Ed is the first man who ever did that for me, and he still does, I knew then he was a keeper (ha-ha), I always remembered my dad opening my moms door. 

    Happy for you - XOXOXOXOXOXOXO -Cathi

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  • my3girls
    my3girls Member Posts: 3,766
    edited February 2009

    It wasn't really romantic as it was fun! Well....I kinda walked towards the car and hit the remote..so no..he didn't...I had said goodbye. He did offer to help me with my coat..and even wanted to serve my food to me, before helping himself.

    I like the opening of doors also. Dennis did that.

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited February 2009

    Sounds promising, Lisa!  There's a lot to be said for feeling instantly comfortable with someone.  Who wants to sit in awkward silence?  Been there, done that!  He sounds really sweet.  I'll keep my fingers crossed for you!

    Hugs,

    Karen

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  • NancyD
    NancyD Member Posts: 3,562
    edited February 2009

    Ah, Lisa!  So good to hear about a nice date, a nice man, a nice evening. I'm so glad it went well, and hope you have many more.

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2009

    Yes Lisa John was 10 when we started dating and married less than a year later.

    Sheila

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  • my3girls
    my3girls Member Posts: 3,766
    edited February 2009

    Sheila, that is how old his son is...almost 10.

     Thanks girls..I hope we have many more too! It's nice to be with someone that I can talk at ease with..like he said..it's rare to find that.

    I will pray that God will lead me in the right direction...we shall see.

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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited February 2009

    Just dropping by to say hello to all you ladies. I still check on this thread from time to time, and am glad it's still upbeat and carrying on. Belated good 2009 wishes to each of you, and of course to dear sister Sue.

    Tender 

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited February 2009

    HEY SUE, good to hear from you!  Remember, it is only 6MONTHS more for you and then you cannot blame ANYTHING on cancer.  WHOOPEEE!!!

    Its a coming fast, sweet Sue.

    Hugs and kisse to all, Shirlann 

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  • EWB
    EWB Member Posts: 2,927
    edited February 2009

    Lisa,

    How sweet, so glad you had a good time and enjoyed the evening! Nice to hear good things, happy things :D

    Elaine

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited February 2009

    Ok Lisa the helping with the coat qualifies as a gentelman, I am happy now - LOL.  Being able to talk with someone /friendship are so very important "first date" things. 

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  • Makratz
    Makratz Member Posts: 12,678
    edited February 2009

    Lisa,

    That sounds like a perfect first date.  You must be so happy!  When's the next one, any plans??

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  • geebung
    geebung Member Posts: 1,851
    edited February 2009

    Woohoo Lisa! Sounds like a hot date! How great to be able to talk so easily and with a touch of romance as well... hope you get together again soon. Thank you for your description - I could just see you both meeting - you painted a good picture!

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  • geebung
    geebung Member Posts: 1,851
    edited February 2009

    I just realised that today (26th) is exactly 2 years since my dx. Funny that I forgot until after mid day!

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  • my3girls
    my3girls Member Posts: 3,766
    edited February 2009

    I am glad you had a good visual Jane!! You guys said you wanted details..haha.

    You were right before me Jane...my 2 yrs for dx is 3/6/07. That's good you forgot...that means you have truly moved along nicely!

    Not sure when the next date is..but he did call me today. Possibly this weekend?? I will keep you informed!!

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited February 2009

    Congrtas on the 2Yr mark Jane -  absolutely awesome!!!!!!!!!!!!!!!!!!!

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  • NancyD
    NancyD Member Posts: 3,562
    edited February 2009

    Since we're in a celebratory mood here, Saturday is my 1 year dx anniversary. Hey, a dx isn't anything to really celebrate about, but the way I look at it is, if I hadn't been diagnosed, I might be dead from cancer already!

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