please help

geebung

Judie, I meant to comment on your photos - they are beautiful - particularly the ones of the flowers and the cathedral in the background. You have a great view from your apartment. Paper narcissus - is that a type of flower or do you mean that they are narcissus made of paper? Oh, and I will be so interested to know how the implants go. I hope it is a great success and everything goes smoothly. Maybe I will take the plunge this year and have recon as I'm sick of being lop-sided and tired of my hot, heavy prosthesis.

Karen - Wow! Your hair looks so pretty!

Love to all,

 Jane xoxox

NanaOfTen

My gf, when she went through rads, her skin burnt horribly. Now, her reconstructed breast has the texture of leather and she says there is no feeling in that breast. Now I don't know if that's because it is reconstructed or because of the rads.

My mom, she no longer has hair that grows under her arms after 15 years from having rad tx. She used to have those brown spots on her face from hormones, those are gone, too. Are they good se's? Well, I wonder what the rads did that caused the hair to stop and the spots to go away.

My skin is horribly sensitive. A bandaide will eat my skin, topical saline solution will blister my skin (there is boric acid in it and I am allergic to it). The docs have to use sterile water during surgery. Radiation tx would tear my skin up! I have gotten sunburns with a pair of jeans on. I have never had a tan in my life b/c I burn too easy. Knowing how rad tx can harm your lungs, heart, bones, etc., on top of that, I am doing all I can to avoid radiation tx. Lumpectomy or mastectomy ... either one I would have to have chemo. Lumpectomy I would still worry more about the cancer coming back in the same breast, have chemo and rad tx. My oncologist recommended the mast over the lump. b/c of the size of the tumor and it being invasive. and this way, a very very small chance of having rad tx. 

6 more days . . . 

Cheryl

mumito

Nanaoften

I have similar diag to yours.  Had the chemo, mast, and am now halfway through my rad treatments.  I am already quite burnt.  I find the rad treatments more stressful than chemo.  I now wish I had never agreed to do them.  The extra stress is not worth the % outcome.

1Cathi

Thinking of you every day Nana, my skin burned bad with the boosts from rads, the texture I thought returned pretty much back to normal, but even now 3 months after MX I am still at times breaking down on that side (L) in the scar line and the BS does admit that is because of tissue/skin damage from rads at least this time I was educated  enough to make a good decision for me as not to reconstruct, there for sure would have been complications on that side,  my tumor was also very agressive, yet smaller than your but so much ILCS throughout, but I was assured Lump/rads was a good choice, as Shirilan said "my ass".  Oh well have to live with those choices now can't turn back the clock - if only we could.

Good Day to all.

portiasproudmom

Where the heck IS everyone??????

nowheregirl

                

Karen, I'm sitting here in disbelief. Got a text message earlier today with the most horrible news of our Deb's (AlaskaDeb) passing. I just can't believe nor accept this. What should I do with tons of PM's she had sent me? What should I do with the cards she had sent me in the mail? Actually been looking and re-reading them and it only makes me feel like she's still there, laughing out loud with that beautiful smile on her face. This just can't be happening. F *ing bastard. This needs to stop. 

             

Sorry for being such a downer but I can't even think straight right now. 

Many hugs to all of my friends, 

Fumi

portiasproudmom

(((((Fumi))))).  I know--I can't believe it either.  I never communicated with Deb directly, but she just stood out.  She was so funny and sweet.  That avatar with her silly paper hat always made me smile.  It's such an incredible loss.  I'm in shock.

Love and hugs,

Karen

portiasproudmom

Have I mentioned lately how much I HATE this evil, dispicable disease??

Ka-Loni

Hello There, I better pop in. It has been a while. Oh, thank you on the Avator. Actually, this is a older picture of me. I surely do not look that way anymore. Oh Dear God! Please pray for me. I am having some Depression and Anxiety going on here. I sure hope I get to feeling better soon.

God Bless,  

Love,

Kaloni  

livesstrong

My heart is breaking over Deb's passing. I hate this f'en disease.

AE

lvtwoqlt

I just checked in and saw Fumi's post about Deb. I thought so much of her spunk. This disease is terrible we have lost so many lately it just isn't fair!!!!

Sheila

1Cathi

Like you Karen I never directly spoke with Deb, but I always read her posts, her avatar (the hat) drew me to them, I had been keeping up on the horrible times she had been having -  how awful, how sad, will this disease ever stop.

NancyD

I signed on this morning from work and heard the news about Deb. I'm still in shock. Never having met someone does not mean you don't know them, love them, and miss them.

She was a fighter and had a great sense of humor...things I really appreciate in people. Damn, damn, damn this disease.

Anonymous

I too found the news about Deb this morning...

She and I conversed some when I was first dx'd in 2006 as I have friends that live in the same community as she.

It is such a waste and such a sad thing that this F-ING CRAP is taking people away from their families and those who love them.....

I find it hard to believe that she's gone as she was such a powerful source on this site as well as in person.

Anonymous

Karen-I love your hair!!!

Judie-Glad to see your post...also happy to see that you are doing something for you!!!! I think of you often and hope that when spring breaks and the roads get better we can meet up again....How is Devin? Back in class again?

AE-How are you and Bill? Dont seem many posts from you so assume you are busy with life?

Cheryl-Your counting down the days...I will keep you in my thoughts...

Kaloni-Sorry you are feeling so down, wish I had the words to make you feel better.

Nancy-I hope all is well in your world.

Cathi-Happy to see your finely feeling better and starting to get back that spirit!!!

Jane-the paper narcissus in Judies pic is actually the name of the flowers...they are easily grown indoors in pots as they are a bulb instead of a root plant. They bring such a wonderful feeling of spring just around the corner dont they...

I sure wish spring was around the corner!!!!! Our weather has turned YUKKKKKKYYYYY again....it was -3 degrees when I looked at 10:30 last night before going to bed...we got snow over the last weekend so have a couple inches still on the ground that was beautiful...my 4 yr old granddaughter informed me that "her snow looked like diamonds, all sparkly and pretty"....but I would much rather have spring as Im really sick of the winter already....they are saying it is suppose to be in the 40's here by mid week so am hoping they are right.

I know I missed many in this post and I dont post as often as I should but I think of you all often...

Hugs

Jule

1Cathi

NANA -  I am thinking about you and will be saying special prayers everyday and espically Thursday. 

XOXOXOXOXO -Cathi

NanaOfTen

Hi my friends,

I didn't know Deb, so I went to her home and read her posts. I came here after she posted and it looks like I really would have enjoyed her a lot. I am so sorry for all of you and for her dh.

Dang this beast!

Thanks Cathi and Jule for your well wishes. I am busy getting the finishing touches on my home for the after surgery readiness. I will be staying with my daughter and her family for a few days but I am sure I will be in a hurry to get home. No place like home ... yellow brick road journeys

xoxoxox to all,

Cheryl

1Cathi

I am passing this on to you because it definitely
works, and we could all use a little more calmness in our
lives. By following simple advice heard on the Dr. Phil
show, you too can find inner peace.

        Dr Phil proclaimed, 'The way to achieve inner
peace is to finish all the things you have started and have
never finished.' So, I looked around my house to see all
the things I started and hadn't finished, and before
leaving the house this morning, I finished off a bottle of
White Zinfandel, a bottle of Bailey's Irish Cream, a
package of Oreos, the remainder of my old Prozac
prescription, the rest of the cheesecake, some Doritos, and
a box of chocolates. You have no idea how good I feel right
now.

NanaOfTen

Cathi, thanks for the hearty laugh! Love it

1Cathi

Your welcome Nana -think we can all use a chuckle.

I know you said your gonna wanna get home ASAP after surgery, but please do try and let your daughter or who ever help you out for awhile,  I know I am one to talk and very impatient, BUT speaking from experience  - you need time to heal, you deserve to be pampered for awhile -take all the help you can get for a few weeks. 

XOXOXOXOXO -Cathi

livesstrong

ladies - if you are interested some ladies are purchasing a $10.00 rose for AlaskaDeb's service.  The info is on the Met's thread.

sueps

Hi Sisters xxx

I come here day and night and read all your posts.... xxx

I know we all belong together... on this journey.... we all walk hand in hand... no matter what we do or where we go...we can all regroup with love and support xxx

I read the sad news this morning about Deb ....and I have been thinking about you all..wondering what you are all up to.... and trying to send my love in telepathic mode from UK...wondering if you can hear or feel me .... (I do this often ...am I insane) xxx

God Bless Debs family friends sisters and all that are touched by this truly beautiful sister ... XXX

AE  I would love to buy a rose.... how do I get one if I am here in the UK .... X

ohhhhh you all ALL of you mean the absolute earth to me xxx 

sueps

despicable ..you are the dogs of dispicable....

and Deb is resting now away from your shadow...and will live on in our hearts...forever AND EVER ..

YOU DISGUST ME ..

sueps

I CANT EVEN TYPE THE UGLY WORD I use for you ... I cant even associate you

with Deb... she is free

of you now 

I am so so sad x 

sueps

GET OFF OUR YELLOWBRICKS LOWLIFE

livesstrong

Sue - I will call tomorrow and order one from you.

Hu

livesstrong

Sue - I will call tomorrow and order one from you.

Hugs

AE

my3girls

Hi dear sisters!  I am so saddened to log on and read the news about dear Deb. Like most of you, I didn't know her well...but knew her fun posts and fun avatar. She was such a fighter and upbeat.  I am SOOOOOOOOOOOO ANGRY WITH THIS F*%^ING DISEASE!!!!  God bless our dear sister Deb and her family.  May she be free of pain now and rest in our dear Lord's comforting arms.

I am back from Arizona, and feeling much renewed! Except for the fact that we have about a foot of snow that has fallen since last night!!! Driving into work this morning, I went off the highway and down an embankment.  I am fine...just needed a tow truck!

Cheryl...my thoughts are with you tomorrow.  You will come out just fine dear.

Cathi..so good to see you back.

Much LOVE to all of my dear sisters here. I think of all of you daily.

Sue..I do feel your telepathy...really I do!

xoxo

Lisa

my3girls

Hi dear sisters!  I am so saddened to log on and read the news about dear Deb. Like most of you, I didn't know her well...but knew her fun posts and fun avatar. She was such a fighter and upbeat.  I am SOOOOOOOOOOOO ANGRY WITH THIS F*%^ING DISEASE!!!!  God bless our dear sister Deb and her family.  May she be free of pain now and rest in our dear Lord's comforting arms.

I am back from Arizona, and feeling much renewed! Except for the fact that we have about a foot of snow that has fallen since last night!!! Driving into work this morning, I went off the highway and down an embankment.  I am fine...just needed a tow truck!

Cheryl...my thoughts are with you tomorrow.  You will come out just fine dear.

Cathi..so good to see you back.

Much LOVE to all of my dear sisters here. I think of all of you daily.

Sue..I do feel your telepathy...really I do!

xoxo

Lisa

my3girls

Hi dear sisters!  I am so saddened to log on and read the news about dear Deb. Like most of you, I didn't know her well...but knew her fun posts and fun avatar. She was such a fighter and upbeat.  I am SOOOOOOOOOOOO ANGRY WITH THIS F*%^ING DISEASE!!!!  God bless our dear sister Deb and her family.  May she be free of pain now and rest in our dear Lord's comforting arms.

I am back from Arizona, and feeling much renewed! Except for the fact that we have about a foot of snow that has fallen since last night!!! Driving into work this morning, I went off the highway and down an embankment.  I am fine...just needed a tow truck!

Cheryl...my thoughts are with you tomorrow.  You will come out just fine dear.

Cathi..so good to see you back.

Much LOVE to all of my dear sisters here. I think of all of you daily.

Sue..I do feel your telepathy...really I do!

xoxo

Lisa