please help

honeygirl

Karen! YEAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Good riddens to that damn port! Like my bs said when he saw my onc hadn't taken my port out because "you never know". They can always put one back in. And you need to feel positive and let go. Keeping a port in isn't gonna make cancer stay away , or taking it out won't keep it from coming back. Its just a thing that helped through treatment. So feel the relief. Enjoy being one step closer to tomorrows rememberance of what you went through , but its over. And remember Karen , when you feel those aches and pains. One , we are getting older , and its normal to feel them. Treatment , weather we like it or not , has aged us faster than we would have been. So that is bringing on more(especially) joint aches. And our meds plays a roll in it all. So sweet sister , onward and upward! Have a great weekend. Love you Karen. Melody

1Cathi

Yeah on the port removal Karen,  hoping I am right behind you with the drains coming out Tuesday. 

It is so hard not to worry about our aches and pains I wish you a happy and quite and pain free weekend.

XOXOXOXOXOXOX

GOOD NIGHT ALL.

Sue hope all is well.  I have been trying to stay caught up on all the posts - ut am sure I have missed a few.

OH Yes - Judie we darn tootin did do "MOUTH FULL" the pre-op nurse almost peed in her pants, she did however remove it and replace it with a "yes" on each breast - but it was a great laugh. The nurses at the hospital are so awesome in surgery - sad to think they have come to recognize me -hopefully will  never have to go back again.

footprintsangel

 I am so happy for you Karen, I know how it feels to be free. God bless you as you live each day as a gift. And like Melody said aches and pains are normal, After chemo I felt older but grateful. God bless you as you finish  a winner. To everyone here I wish you a very restful night and peaceful day. Angel hugs to all, Debbie

sueps

Hello Sisters xxx

I am here HOPING you will all have a nice Saturday.

I have been busy with work etc. It is Davids bday today so I am off. We are going to buy a bike for him today... etc. I am going on holiday to the Canaries in 11 days , and as usual I just know I will leave everything to the last minute!!! I am looking forward to having 2 weeks off work .... and slobbing like theres no tomorrow ...LOL....

BBL ...I love you all.xxx 

portiasproudmom

Thank you Mel, Cathi, and Debbie for the supportive words.  Silly, but I feel such a huge sense of relief.  Like the port was a daily reminder of bootface (like I could ever forget). 

I'm so excited for you Sue.  A holiday to the Canaries sounds heavenly.  You SOOO deserve it.  Wish that sweet boy a happy birthday for me!

Love to everyone,

Karen

geebung

Dear, sweet Karen, congratulations on having your port removed. I can imagine your relief to see it gone and not have that constant reminder. It's one more step to recovery and healing. Thank you for your warm words to me too!

Sue - thrilled to hear that you are going on holidays. Will it be warm there? I hope you have a fantastic time - with lots of sun, delicious food, fun with your dear boys and total relaxation.

Ulla - how was the exam? Please let us know how you went. I am so happy that you are doing so well.

My best wishes to Cathi - you are having a rough time. Be prepared to have emotional ups and downs after your surgery and be gentle with yourself.

Mel - how are things with you? I do hope that your SO is doing ok and that you are having some happy moments. Hugs to you, sweet one. Sorry to you and everyone else if I am out of touch - I just don't have the time to catch up on all your posts over the last few weeks.

Hi to AE & UB. How are your preparations going for the move to Florida? You must be keen to go before the really cold weather starts...or does it not get very cold where you are now? I love the springtime in the mountains - amazed at the variety of flowers in my garden. I wonder how I will cope with my first winter there?! I say I like cool weather but...mmm, we will see!

Hi Judie, I often think of you. Hope you have settled in better and are having some happy times. You are responsible for naming my sweet cat (Blossom) so she reminds me of you! Bloss is staying in a cattery at the moment. It is run by some really sweet English people who do a fantastic job. The cats are so so happy there. 

I have to admit that moving house can be quite challenging. It's easy to feel isolated and alone in a new town. My partner works in Sydney all week and I only see him at weekends. So I am starting to make an effort to get to know some people in the area. I am going to put my name down for some casual teaching, do some volunteer work, etc. I am doing a post breast surgery exercise class and have met some nice women there. I have some lovely neighbours who have made me feel very welcome but I still feel a bit alone sometimes.

It's time to wake up my SO - he is such a sleeper-inner! There is a lot of work to be done today and then we have to drive back to the mountains.

Love to all of you - not just the ones I have mentioned here!

Jane xoxx 

my3girls

Good evening sisters!

This is short and sweet, very busy today at work, and I tried to catch up on all the posts..but no time to comment.  I just wanted to say hi!

Karen..no port!!!! Yeah!!! Jane...welcome back!

Love to each and everyone of you!  I prayed for all of you this morning!! You are always in my thoughts...even if I am not on here as much as I would like.  So busy lately!

xoxo

Lisa

sueps

sueps

Yes Jane xxx It will be in the 80s and I is gonna get a nice tan lololll xx

sueps

 

honeygirl

Oh Sue , those pics are so darn cute!  And when you get back from the "islands" , I want to see pics of you and your savage tan! Eat , drink , and make merry! You so deserve it. It always feels good to "get outa dodge" for awhile. I bet you and the boys are so excited. Nothin' like a good , long holiday.

Hi Karen , hi Lisa , hi Jane. Hi everyone. bbl Mel

NancyD

Hi all!  Taking a weekend break from my work life to do some house chores. We're having a birthday dinner for my father in two weeks, and we're having a house full of my brothers and sisters. So I have to get cleaning. Tonight's the main bathroom (ugh). Tomorrow's the den where two will be sleeping. The rest of this house I'm leaving to the two brothers who live here, too.

Dad is turning 90...yes 90!  He's slowed down a lot, but the one thing I can't get him to do is give up driving. He hit my car last weekend pulling out of the driveway. I was parked next to him and he turned too tightly. He didn't even know he had done it until I pointed out the scrape on my car and the white paint on his dark green car. He said his hearing aides block noises like that (go figure!).

Other than little annoyances like that, I'm doing fine. Still on meds for my UTI...second week, but so much better.

Karen, I'm so-o-o envious. I want my port out, too. I wanted it out as soon as I finished chemo, but the surgeon said only when the onc said yes, and my onc said he had a superstition about keeping them in for A YEAR!  But I don't know if that means a year from when it was put in (early March) or when I started chemo (late March) or when I ended chemo (late August). It better be March, because I just can't deal with the flushing every four-six weeks much longer than that.

I'm still wearing a wig, but hope to be wigless by Thanksgiving. I still haven't decided to go with whatever color comes in or dye it back to my regular color...or something NEW. How long does you hair have to be before you can get extentions?  Didn't Britney get them just a month or so after she shaved her head?

Sue, I love the doggie ghosts photo. I should show that to my brother and sister-in-law who have three dogs. It may give them some ideas for Halloween.

Val, I hope your mammo came back OK.

Ulla, how'd you do on your tests (I feel like I'm talking to my 17 year old daughter)

Jane, I love hearing about the changes down under that complement ours in the US. I seem to want to be in whatever season you're having rather than the one I'm in here. Now that's escapism for you.

Cathi, take it easy. The drains will come out in their own time. Remember...don't lift anything heavier than a gallon of milk. But a walk along the beach would be just fine.

Judie, Mel, Lisa, Ann, Anne, Wren, Shirlann, and the rest of the crew...wishing the best for each of you. If you're down in the dumps, here's hoping you rise above it. If you're riding on a high, here's hoping it stays with you.

geebung

Just one more quick post!

Sue - please wish David a happy birthday (I think I am a day late as it's already Sunday here!). The animal shots are too cute. Yes - it would be great to see photos of you after your holiday. I bet you go a lovely colour in the sun. By the way, I love your photo near your posts.

Lisa - great to see you there. Hope you are doing ok. I don't know what has been happening in your life lately - still working hard I see. Are you feeling better after your last surgery? Is Dennis still on the scene? How are all your beautiful daughters?

Nancy - sounds like a huge weekend at your place. Your dad is doing well to be still driving at 90 - wow! However, maybe he shouldn't be! So many older people find it very difficult to give up the freedom of driving. I can understand why but when they put themselves and others in danger, it's time to find another mode of transport. Hope you have fun with all your rellies (relatives). I too, wonder at what length you can get hair extensions. Brittany seemed to go from bald to long locks overnight - maybe she wore a wig for a while? By the look of your pretty face, you will look good in whatever colour or length you decide to go with. 

Ok, back to the grindstone before it gets too hot.

Love you all!

Ulla

well ,,dear sisters ..am sorry to say that i dont think am gonna pass this really hard test..it was byond stressing ,,the questions were realy difficuilt,,it was not the ordinary MSQ way and free time for the test ,,it was something about filling the blanks from our memory and the time was a really stressing factor,,the whole invironment looked hostile for me,,just not as friendly as my school here..i dont like the way they treated us with..they said in the first we need to have the D level to be admitted to that university course,,then i sent my papers to them as i just passed the D level..2days later (in wed 22 okt)they sent me a post saying that i will be having an admittion test in friday 24okt,,!!!WTF CANT THEY SAY THAT LIL BIT EARLIER SO MAN CAN STUDY OR PREPARE???

the test was 5 hours (3pm-8pm)with a rest for about 20 minutes..i cant say that they were nice with us who came to develope our language knowing that we need that,,we didnt say that we r experts and we didnt say that we can talk swedish fluently,,i am very angry as i used to do bad with the listenning part and do good with reading the texts and answering short q,,the problem this time that i did very good in the listenning in the first then i started to feel tired and couldnt organize my time to read the text and answer the short q,,i left it with out answers,,i am soo furstarted,,i feel so stupid,,and angry,,they said (dont call us about the results )we will send them to let u know if u made it or not..one of the 2 ladies was in a high heal boot ..when she was moving in the hall all the time i felt that she was walking on my exposed nerves,,

i realy wanted to get in that course as it might be more intensive and shorter that the other way,,

we were 30 persons comming from all around the world,,i can say that i dont think that they did better that me..i even cant guess how will they decide who will get in if most of us didnt pass??

this test filled me with all kinds of negative feelings,,,

am sorry for this long post but i didnt know where to go else??

my hubby was so worried (he was sitting all the time with my dear mom in baghdad .in our family home)and they were hopping that i will do it,,i just feel like i failed both of them..

i still dont know if i passed or not but i prefere to expect the worse...

life still unfair,,,grrrrrrrrrrrrrrrrr

NancyD

Oh, Ulla, that's such an awful feeling...to come out of a test so sure you did badly. And to have the negative environment--time pressure, high-heel booted warden--it's just too much sometimes.

OK, when can you take the test again? That's what I would ask.

Ulla

dear nancy,,its just a one time yearly test,,

so i cant have a second chance till next oktober,,which seems too long for me..

i cant take my mind out of the test environment..i was dreaming about the questioneers all the night yday and in friday too...

its not nice to feel like i feel now...

i would feel better if i know for sure that i didnt make it,,,the whole problem is this uncertainity which angers me so bad,,

anyway thanks for asking dear sister..i guess i will keep bubbling about it till i know the result....grrrrrrrrrrrrrrrrrrrr

Anonymous

Oh, poor Ulla. A five hour test would just kill me. And only 20 minute rest? That is torture. When will you get the results? Waiting will be terrible, especially with your husband gone. What are you doing to fill the time?

Huge hugs dear one. (((((((Ulla))))))))

Judie

geebung

Ulla, I feel so concerned for you. What a truly horrible experience - so exhausting, stressful and upsetting. I think you are fabulous to work so hard. Just reading your post made me think how much your English has improved since you first started to post here. However, everything about this test seems unfair. You should have been given more notice to give you time to prepare, they should have provided a more relaxing environment and you should not have to wait so long to do the test again. Not knowing how you did is so stressful. I wonder how long they will keep you waiting for the result? I agree with you - it would be better to know that you had definitely failed than to be kept waiting for who knows how long.

I hate the sound of high heels tapping - especially when you are trying to concentrate - grrrrrr!

I hope your husband can be with you soon. I wish I could give you a hug. You are wonderful.

Love and hugs, Jane xoxox 

Ulla

dear sisters ,,thanks alot for the supporting words..i feel realy better after reading all ur posts,,

the results should be given to us during the next week but they didnt say which day,,as the course starts in 3rd nov..next monday!!!!so the next week will be so hard  for me...

anyway i would rather think that i didnt made it,,,

oh god only knows howmuch i do love all of u sisters ..

huggsssss

Wren

Ulla, that sounds like an overwhelming test! I'm sending good wishes your way that this week just flies by so you can find out one way or the other.

Sue, I can't wait to see pictuers of your vacation! I sooooo want to go too.

Hugs to you all!

1Cathi

Dear Ulla,  my heart is with you. 

Nancy wow how exciting your dad is going to be 90 (a good blood line there for you) My husbands dad lived to 89 and also a quite health man as well -loved him so much. Sounds like yo will be busy and thats good most of the time - brings the normal into play.  I am being as patient as I can about the drains, but counting every second these past few days, oh they just pinch pull and tug so much. I want a shower so bad, my BS says not until they come out, so yucky spone baths it has been -  but when I consider the big picture and the wonderful outcome -it is all well worth it.  And the whole thing has not been all that horrible.

LOVE YOU ALL. XOXOXOXOXOX

footprintsangel

To My New Friends, I just wanted you to know that I thank you for helping me see the support this family on-line has. To all that need and extra hug and pray,,,,,,,,,,there you are.  I need to rest my lung is sore.  Please take care, Luv, Debbie

livesstrong

Hi all,

  I just got back from the bs and it looks like I'm heading for another biopsy.  Seems once you have bc they are overly cautious. They will call by the end of the week with the date. Let's see - this will be #3 since 10/2007 - its getting really old.

AE

shari1232

So sorry AE.  I hope all turns out well.  Hang in there....

1Cathi

OH AE-  That stinks,  it is a doubled edged sword, your right they become over cautious with the biopsies and yet if they slump us off we are in fear.  All the biopsies do become so old -  I for sure know that had 9 lesions done in the R side "the good boob" in 2 years  - I am thinking of you - 

xoxoxoxoxoxoxoxo

nowheregirl

Hi dear family,

Sorry I have been MIA
but the wound in my heart is still raw,
work has been super hectic,
my mp3 player fucked up out of the blue
(though bought a brand-new iPod nano 8GB so that's a good thing),
the results from the follow-up scans I had last week still haven't been available.
Then guess what?
On top of all these, now my abdomen to lower back area is full of nasty rash
and it literally itches like hell.
To make it worse, I noticed the rash on Friday night
so no matter how badly it itched,
there was no way I could have met with the dermatologist
as it was the weekend and no doctors were open except the ER.
I really wanted to cry like a baby
'cause the itching was beyond what I could have tolerated.

Then this morning, I went to the dermatologist.
Turned out it was shingles!!!
He did give me cream and some antiviral pills
but I was warned that the itching might not go right away
'cause unlike for other rashes,
the use of steroid to relief the itching wasn't the option
as it might be rather harmful.
So the cream I've got is more about killing viruses than itching.
According to him, it may take 2-3 weeks until the rash is gone.
WTF? Does that mean I will have to cope this itching for another 2-3 weeks?
Bloody hell! It's already unbearable and it's only been 3 days.
No way I could tolerate this any longer.

Any kind of diseases makes you feel miserable
especially when you live by yourself.
Plus if that's something that would make you look ugly or gross,
it could really get you down.
I have never liked looking at myself in a mirror
since my breast was gone
but sadly I have to look at myself anytime I put cream on the rash.
And no matter how badly it itches and irritates me like hell,
I still have to do all the housework, chores and work by myself.
No one will drive 1.5 hours for me to get me the Lupron shot tomorrow.
(I should be able to get the results from my follow-up as well.)
Not only physically but more emotionally it gets to me.
I can't even be a good mom to my cats as I'm always somewhat irritated.

I really want to cry.

Thanks for listening.

xo
Fumi

livesstrong

Fumi - go ahead and cry ----

AE

portiasproudmom

Oh, Fumi.  How miserable!  I certainly hope it doesn't take a full two weeks for you to get some relief.  Hang in there, sweetie.  AE is right--have a good cry.

Yuck!  A FIVE hour test with only a 20 minute break?  That's horrible, Ulla!  I'll keep my fingers crossed that you passed.  ((((((((Ulla))))))))

How frustrating that you have to have yet another biopsy, AE!  That would get old really fast!  I wish there was a less invasive way of testing for bootface.  Grrrrr!!! 

Sue, those pics are adorable!  The kitty with the chainsaw cracks me up!

Hi Nancy, Judie, Jane, Cathi, Shari, Debbie, Lisa, Mel, and everyone else!  I love you all!

Hugs,

Karen

1Cathi

Hi Fumi- my mom had shingles and a very close family friend as well,  what really helped my mmoms itching was a warm old meal bath soak -  AVENO makes a really great one and it did help her a great deal, unfortunately shingles can last several weeks.  FYI also if you are around any children (or anuone) who has not had chicken pox or the vaccanie they are very likely to get chicken pox -it is the same virus. When my mom had them  every child in our family cam down with Chicken Pox, she had them around Thanksgiving it was a very itchy holiday for all. Good luck. 

xoxoxoxoxox

sueps

Sisters

PLEASE PRAY PRAY PRAY FOR ZIPPY. HE IS IN THE ANIMAL HOSPITAL ...I JUST HAD TO PAY £400 FOR ONE NIGHTS CARE...AS HE IS COLLAPSED WITH A LOWER URINARY BLOCKAGE......

PRAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1

PLEASE ZIPS I LOVE YA ...I CANT LIVE WITHOUT YA MATE XXX