please help

Anonymous

Thank you Shirlann,

I thought I was ready for it as I could hear it in her voice when we spoke on the phone.....I got the email from Jenny early this morning.....it has made for a really rough day for me as Im teary eyed and heart broke over this.

A very heavy in the heart Jule

sueps

Hello Sisters xxx

This is the first time I have not felt too tired and able to post.

Jule ... How very very sad... Valsul helped me so much before surgery... I am extremely saddened ...

Please accept my love for the loss of your close sister.

I am taken a back xxx

(((Jule)))  xxx

lvtwoqlt

I hate to hear that about anyone I have grown close to since my dx. Valsul was one who followed along with us on our wonderful trip. It is hard to hear about somebody else losing their fight to this awful bootface.

Sheila

Anonymous

Sue and Sheila

Thank you for your condolenses....I posted about Val here because I knew she had been involved directly with this trip to Oz and I thought you who remembered her might want to know.

Its kind of stange that I joined this group after she stopped posting here....so Im going to take it as her way of leading me to a wonderful group of woman!!!

Jule

portiasproudmom

Oh, Jule.....my heart is in my throat.  Valsul was such a sweet lady.  I'm so sad.  I HATE bootface!  It makes me sick to my stomach when I think about all the wonderful women who've been taken by this disease.

{{{{{{{Jule}}}}}}}

Love and hugs,

Karen

Anonymous

Thank you Karen

Wren

Jule,

Thank you for letting us know. I'm so sad to hear of this. Group hug for us all. This bootface is so nasty.

Sue,

good to hear from you. I hope you are getting some rest.

Hugs!

geebung

Jule, I was so sad to hear about Valsul's passing. I remember her so well - she was always so supportive and kind to everyone. My prayers are particularly with her family and friends at this sad time.

Jane  

Anonymous

Oh, Jule! I am sitting here crying and I didn't know Jenny very well...just from the early days of the YBR. A strong, good, caring woman has been taken. Why? I'm so sorry to know that the world has lost a good soul. What she brought to this board, the women she helped, will live on. This is good.

Hugs,

Judie 

NancyD

Jule,

Your sadness is ours when it comes from the loss of one of us to this disease. I'm very touched when someone is so moved by their friendships on this board. It truly is a blessing to have this place, make these friends, know these other women (and a few men) who are living, fighting, and sometimes dying. But we all continue to hope for the best and live our lives to the fullest.

livesstrong

Ladies,

It truly is a sad night.  Jule - I am in shock.

Valsul & I traveled the yellow brick road together the fall of 2006 to late winter 2007.  She was  the kindest woman I have ever known.  I felt like she was my older sister.  My heart is breaking.

Valerie - you will be missed, my friend.

Love,

Valerie 

livesstrong

Ladies,

It truly is a sad night.  Jule - I am in shock.

Valsul & I traveled the yellow brick road together the fall of 2006 to late winter 2007.  She was  the kindest woman I have ever known.  I felt like she was my older sister.  My heart is breaking.

Valerie - you will be missed, my friend.

Love,

Valerie 

livesstrong

Ladies,

It truly is a sad night.  Jule - I am in shock.

Valsul & I traveled the yellow brick road together the fall of 2006 to late winter 2007.  She was  the kindest woman I have ever known.  I felt like she was my older sister.  My heart is breaking.

Valerie - you will be missed, my friend.

Love,

Valerie 

sueps

So true Nancy xxx

Valsul is with us in spirit and she is a guardian on the yellow brick road.

I will never forget you Val , you were a very special sister I thought about you last week when I was driving to work...I never expected this xxx

 It is 1 am here in the UK and I cant get Val out of my head .... xxx

livesstrong

Sue - she was a very special lady.  Very funny, very tough, but had a heart of gold. 

my3girls

Hi sisters,

I am very saddened by the news of Valsul! I knew she wasn't on here for quite awhile, but I didn't realize things were that bad with her.  Funny you mentioned Sue, how you thought of her the other day, I did too.  She was one of the first people who gave me advice about how to prevent lymphadema.  She was very sweet and very helpful on this thread.  She will be missed.  I hate hearing news like this...it puts so much reality to how horrible this disease is.

Jule, please let her family know that we are all thinking of and praying for them.  I am sorry too, for you...losing your friend.

Getting allot of vitamin D here.  I will visit a friend who lives out here tomorrow then it's off to California on Thursday.

By the way...Danni got her bag back yesterday.

Much love to you all.

xoxo

Lisa

livesstrong

"

Anonymous

Thank you all...I will let Jenny and George know you are all thinking of them..

I dont have all the details just yet this is a portion of what Jenny sent to me in her email this morning...she has also posted this on a yahoo web site that a few of us migrated to when they changed the boards here.

It's with great sadness that I'm sending this message to you.

Mum passed away peacefully on Friday 13th June 2008 at approximately 11:15am.  Since receiving her gift from you, the patch-work blanket never left Mum's side so your thoughts and hugs were with her throughout her journey.

Mum's funeral is due to take place on Thursday 19th June 2008 at 12:45pm.

The quilt she is referring to is one that I made with the help of the ladies in our yahoo group when Val was dx'd the last time and going through a hard time with treatment.

Im thinking it would be nice if everyone would say an extra prayer at the time of the services on Thursday for her...she will be missed more than she will ever know.

thanks

jule

portiasproudmom

Good morning (afternoon for most of you) everyone!  Do you want to hear a pathetic story?  I went to the pharmacy yesterday to fill my RX for Fosamax (bone strengthener used mostly by seniors with osteoperosis).  Since I'd never taken it before, I had to see the pharmacist for a consult.  She obviously assumed that I was filling the RX for my mother, because she kept saying, "tell her to take it on an empty stomach.....etc..etc...  I didn't correct her.  Sigh....now I REALLY feel like a rickety old lady!

Have a great day ladies (and UB)!

Hugs,

Karen

lvtwoqlt

Karen, You are not a rickety old lady. My dr did not want me to go on the AI's because of the bone density problem. I don't want to mess up my back any more than it already is.

Let me tell you what this old lady did last night. I got home to the faint smell of burning wires/something hot. I could not pinpoint the source of the smell but kept looking. when I went to feed Penelope, I noticed that the kitchen rug I keep under her food/water dish was soaking wet. I know her too well and she doesn't spill her water, she drinks it up to the last drop. I checked and the counter/table water heater (looks like a metal base cabinet on the outside) had water dripping from the front and her dish sets to the side of it. My hubby was sleeping, getting ready for an all night drive to TX, so I had to figure out what to do on my own. I cut the power to the heater at the breaker box, I got to the water cut off valve to the water heater/bathroom and shut it off (I still have cold water to the kitchen sink), and figured out how to drain the tank (slowly into the bathtub) so I would have water close to flush the toilet. I called my handy-man (cousin) to see if he could install a new water heater today. I am waiting on his call, he said that he would be free this afternoon to put in the heater. To replace the water heater with the same type will cost $400 for just the water heater, if I want to go with the energy efficient tankless water heater it will cost me $450 just for the heater. I don't have room for a traditional water heater, unless I want it in the middle of my kitchen.

I am going crazy waiting for Steve to call and say that he is on his way to the house and check things over.

Boy, is this a long post. I just am crazy wondering what else will break at my house, first it was the AC now the water heater.

Sheila

sueps

Good Evening Sisters xxx

(((Jule)))  I am feeling your sadness ... Val was such a wonderful sister .... she used to PM me whenever she knew I was struggling...and she was like a breath of fresh air with her words xxx

I HATE YOU BOOTFACE ...I REALLY HATE YOU AT THIS MOMENT ...YOU MAKE MY BLOOD BOIL AND MY HEAD MAD!!

Valsul will always be with us .... xxx

Well it is my week off WOOP ...WOOP ....it has rained for TWO DAYS ....who stole the sun !!!!  It was blazing last week ...grrrr.... hehehe

Anyway I am off to see Claudia my b/c nurse tomorrow for a fitting and she is going to arrange my lymphedema specialist ...etc ...sigh ...I have such a heavy heart ...I knew I would on my week off..... too much thinking time!!!  It's way not me to stop and stand still...URGHHH .... I need to scream ....

Karen LOL.... thats so funny hehehe... you are not old!!!

Sheila .... I am praying nothing else breaks!!! Hopefully Steve will have called you by now xxx  I love Penelopes' name.... and your doggy stories are so alive with love....

AE my table is finished ...I need some batteries for ma camera....and then I will take a pic...its beautiful just like you xxx

How is Ub getting on back at work .... I hope he is doing well ....give him a slap ... xxx hahahaha..... you know when I say that I dont mean a wallop...just a little slap from Sue ...tell him ... he is in my heart xxx

Hello to everyone ....all of you .... you are all amazing sisters....and I love you xxx

Much Love...xxx

Oh god ...Valsul ....we will always hold you close ....so close .... Bootface can't break your spirit xxx  We are all as one xxx

livesstrong

Sue - I hate bootface too, .  But Valsul would tell us to keep our chin up, and not be sad and live life to the fullest.

I will definitely give UB a slap tonight!!hahahaha  He has been very tired as well since he went back to work.  We both can't wait till our lives get back to "normal" once again.

So Sue, are you ever going to come and visit us???  We simply must meet someday. I have to talk you into moving here - don't forget my cousin who owns all the Subways in Texas - I'm sure she could hook you up!  Eat fresh!!! hahahaha.

Gotta get back to work,

bbl

AE

portiasproudmom

Oh!  Forgot to mention that we finally decided on a house to build.  It was a tough choice.  It's not our favorite, but it's nice and big (2,600 sq ft) and has everything we need.  The ones we really liked would end up being way too expensive.  We could do it, but we'd have no money left over for anything else--including nursing school for me in the future.

Hugs,

Karen

sueps

AE

OF COURSE I AM GOING TO VISIT !!!!

JUST TRY AND STOP ME!!!  hehehehe

It will more than likely be after Autumn .... xxx

My plan is to take the boys on a hol abroad ... in Europe in September ...then my next hol I will be planning to come to see yas.

I get 5 weeks hol a year and so I will have 2 weeks to use up between Europe and January xxx   plus we should all be feeling better eh ....  xxx

I am soooooo sick of the chemo sit down and fall asleep before ya even parked ya ass feeling ....hahaha...IT IS SO ANNOYING .... my eye lids just wont stay open ... GRRRRRRRRRRRRRRRRRRRR

A N N O Y I N G ....  V E R Y ! ! !

I hope you are all having good moments  xxx

Karen I am so happy you have finally decided on your house...and you will make a truly wonderful nurse!!!  x x x

Much Love xxx

livesstrong

Woop!! Woop!!! Sue is coming!!!! Yippee!!!!

geebung

Jule - am praying for Valerie's family and all who are mourning her. Words are just inadequate... this is so tragic.

(((Karen))), I"m so sorry to hear about your bones. Stinking bootface! On the light side though, the pharmacist probably thought you were about 30 so all the crap you have gone through hasn't made you look any older...! So happy that you have chosen the plans for your house. When will they start to build it? It's so exciting!

Sue - glad you have a week off but not good that you are mulling over things too much - I wonder when you will see lymph specialist?

Is it UB's birthday today? (It's already the 19th here) If it is - happy birthday! If it isn't just ignore my senility - I am sure that someone said their husband shared their birthday with my mother...and I think it was UB! 

Sheila - hope nothing else breaks at your place. I can identify - the thermostat in my oven keeps breaking - first sign is that it reaches maximum temperature and stays there so I can't use it - tried to make a pavlova (meringue) in it once - turned it down reallly low and within 10 minutes I had a black tar-like mess! Then, some time later it makes a small explosive sound and won't work at all. My hot water system blew up a few months ago...cost nearly $1000 to replace it! (Our Aussie $ is just slightly less than yours) - Modern electrical gadgets just don't last very long... I heard that Thomas Edison's original light bulb is still working!

Hugs to all

Jane xxx 

livesstrong

Jane - yes UB's B- day is the 19th.  Guess what?  Edison' bulb IS still burning - I'm pretty sure its here in Jersey.  We have a monument to him I few miles from here where he had one of his labs.  lol.

Karen - how exciting - planning your new house.  I'm such a "house" person - I'm constantly thinking of new things I could do around here. 

Sheila - sounds like that black cloud traveled from my place to yours.  Sure hope it moves on quickly.  

Shout out to Nancy, Wren & Suebee -  hope you are all OK.

Lisa - enjoy Ca.!!

Ulla - miss you sweetie.

Shirlann - how is Walt? 

Mel & Judie - where are you?? 

Its getting late, sweet dreams everyone.

Hugs,

AE 

Wren

I think I'm having a tough day... I just don't feel good. I'm still in a lot of pain from the liposuction and all bloated. The implants don't hurt though.

I hate the side effects from the pain meds (constipation, etc) so I had been trying to take less, but that's not good either. I am definitely hurting, so I'm taking meds...

Today I have done nothing but rest, sleep, eat, and I am still tired.

I know my foobies are not done healing but one is migrating north and one is going south. (where the expanders were too, darn it)

I'm glad I see my PS tomorrow to get stitches out if they are healed because I'm cranky and sore. I hope she will give me some good news.

I feel so fortunate to have anything that resembles breasts at all, but all the soreness just gets me down... I'm trying to keep my chin up and all, but today, I just can't.

I do not know how you remain so strong and active, Sue. I am beaten down by the least thing...

Karen, you must look very young for your pharmacist to think the meds were for your mother. That is a compliment. I think you look cute in your photo--and would probably have made the same assumption.

Surgery just takes so much out of me. It messes up my hormones and I have hot flashes for a good week; the side effects from pain meds, my digestion (nausea, etc, too)... then getting used to this body -- which right now is barrel shaped and swollen...

I hope that I feel better soon. I have tears thinking about how much this stupid bootface messes up for us.

I hope my PS lets me take a shower tomorrow...  

Sorry, I guess I just needed to have a little rant.

Tomorrow will be better. I just know it.

livesstrong

Rest in Peace ValRose - you will be missed.

BBValerie

NancyD

Hi all,

I'm doing fine...just busy at work while I wind up my projects before I go out on short-term disability for my mx. And trying to get to bed in time to get 8 hours sleep. I read that your immune system is severely compromised if you don't get enough sleep, and lord knows I've only gotten about 5-6 hours for last few years. So, since I have to get up a 5:30 am, I've been trying to get to sleep by 9:30 pm. That cuts severely into my evening computer time, LOL.