I can't get my act together and I don't know why

Harley44

(((Wish)))

I'm sorry that it has been a rotten day!  What happened?

Sending lots of HUGS your way!!!

HUGS
Harley

wishiwere

Just some crap around here I can't do, and still can't!   Borrowed the neighbors weed-wacker, b/c I can't do the gas with my shoulders this year and then there is the pulling on the ripcord to start it that I'm not capable now either.  So, I have 2 acres remember? 

I did what I could with his 150 feet of cord, then grabbed another 150 feet from our garage, get it out there, and hooked up and start working again, and the danged thing runs out of the little cord that cuts stuff!!!!!!!!!!!!!!!!!!!!!  And the guy is off golfing now till dark..... Just more of the same ol' crap!  I HATE depending on men for sh*t!

sueper13

Wish,

Sorry.  I wuz workin.  Now am dog ass tired.  Swollen ankles, chemo belly.  Nurse sez it's the Taxotere.  What are the symptoms of congestive heart failure, as I am an obsessive worrier and am taking Adriamycin.  Anybody know?

Wishing for the sanitarium for real.....

Love,

Sue

hunkydory

Sue. congrats on your negative test.  Good news.  I kind have been following a long on your trt and s/e's cause TAC's what i'm on.  I'm NOT really a stalker.  I was pleased because it seemed like you were doing fairly well.  I am quite disturbed however, hearing about the swollen ankles and chemo belly.  That is something I don't and cannot use as I am only 5'2.  Have you ever seen those miniture Pot Bellied Pigs.  That is what I am picturing for me.  GAWD!
OTOH, I like your sanitarium idea but I think there might be a handful of us that would be partioned off for either electro-shock thereapy or Lobotomy.  Take care....have fun on your trip.  Glad your ds is getting his sh&t together.  Very good thing for a moms heart.....I know....I have a grown up son as well.  HunkyD

wishiwere

Okay worrywart....do NOT read into this, okay?  I'm sure it's a combo of all you've been through and NOT CHF, but here's what I find:

Symptoms of congestive heart failure depend upon the side of the heart that is affected.  Left-side congestive heart failure causes fatigue and shortness of breath during even mild exertion.   Other symptoms include a wheezing or hacking cough and shortness of breath during sleep, called orthopnea.  One particularly serious symptom is pulmonary edema, a condition in which fluids accumulate in the lungs.  Right-side congestive heart failure reduces the amount of blood returning to the heart. The main symptom is swelling, usually of the feet, ankles, legs, and abdomen, as the veins and tissues throughout the body fill up with the excess fluid.  Patients with right-heart failure often feel tired, have little appetite, and experience weight gain because they retain so much salt and water.  With treatment, patients may live with right-heart failure for many years.  Because of the risk of pulmonary edema, left-heart failure is more life threatening.

I've known a few with it, and they do cough a lot and hack and hack like smokers!  It's the pulmonary edema building up and causing that.  When do you see your doc next?  Can you call their office and explain the problems you are having?

When you press on your ankles with a finger and hold it a few seconds, then release it, does it spring right back? Or does it slowly fill back in? The skin and tissue I mean?

sueper13

wish,

it slowly fills back in.  is that bad?  I asked the nurse about the swelling today and she seemed convinced it was the taxotere...and didn't seem at all concerned.  I have the swelling of the feet and ankles, it's worse on the right side, I still have a good appetite.......I worked thirteen hours yesterday and twelve the day before so I can take some days off next week.  I am thinking I overdid and my body is letting me know. I have no shortness of breath and am still able to walk daily with no discernible difference in perceived exertion.  But, you pegged it when you said worrywart.  I don't see the doctor until Thursday and am planning on flying to Tennessee Saturday, and back on Tuesday.  But I will get pampered there by my good favorite aunt, my wonderful uncle, and cousins too numerous to mention.....

wishiwere

If the nurse is aware of it and isn't concerned, or believes it's the chemo, she's more knowledgeable than even your pcp on that most likely.  It's not good when you have pitting edema, but I think that's what the neuropathy is in some of the chemo's that you ladies are you on.  You don't have shortness of breath and can move around walking and working, so you are probably fine.  Just try to cut back on salt and keep up the fluids, even though your having these problems.  Flushign these chemicals OUT is a good thing and you need to stay hydrated.

I'm sorry you're having these problems, and I was just KIDDING about the worrywart!   Truly, we all panic, b/c know one knows what to expect on this poison! 

sueper13

Wish, thanks.

HunkyD, I don't think you're a stalker.  How many TACs have you had and how many to go? I've had four and two more to go....four weeks from today I will be done!!!

Hopefully I will have fun on my trip, thanks. 

Off to bed.  G'night, John-Boy.

Love,

Sue 

hunkydory

Sueper13:  I hope you get all flushed out and have a good trip.  I just had trt #2 and am a long ways behind you.  You are much more energetic than I am at this point.  Maybe thats why you are getting more edema than normal.  Hell of a road ahead for me I know.  My prayers are with ya girl and try not to overdue.  What about diuretics?  Can't they help.  Seems like I am taking so many drugs one more should not mean jack squat.  I don't know.  I just do what they tell me.  But I have a sneakin idea that we are getting a little bit more than a happy meal.  Anyway...good luck....and I still think John Boy Walton should have had that mole looked at.  HunkyD

Hanna60978

,

kes

Hi Ladies,   I have not posted in a while so please forgive me if I forget someone. 

Sue, I am going to Nashville at the end of Sept. Have never been there. Congrats on the gene testing negative. Sounds like you are working too much and your body is telling you to slow down. Have a good vacation. I love your idea of the sanitorium. There is an old TB sanitoriun in the city close to me. I can ask if we can use it. I think that mint julips on the front porch would be good. And young men massaging our feet.

Wish,  Hope that your shoulder feels better. Oh please be careful, your don't need any more problems. Your place probably looks great. We have 1 acre, and I cannot imagine looking after 2 acres. I would move to the beach if my DH wanted more land.Hope your test results come back soon.

Harley,  I have had an endometrial biopsy done at the OB-GYN's office. It felt like a little pinch. Not too bad. She just took the tinest piece. No pain after. Hope it goes well for you.

Hanna,  I love your "energy conservation mode"  I have absolutely no energy and I cannot keep up with the pace of my life. I am tired all the time. I want things to go back to normal and they will not and I do not like the new normal. I want the old normal. I did not have chemo or rads and I am whipped. Love the cat video.

I have had my endometrial ablation today. Another general anaesthetic today. My 4th surgery in 10 months. I think that I have anaesthetic brain. I really do not like to be wheeled into the O.R. I look at all the big machines and I know what they are for and I start to get anxious. And then they tell you to breathe in the oxygen. I said "ya the infamous oxygen. That is NOT oxygen" They told me that it started out being oxygen and then I got the funny taste in my mouth, and I told them that NOW it was not oxygen, and then I was out. It went well and I am glad that it is over with. I told them to be careful of my implants as they were just put in on June 6/08. They probably all had a good look at them. I should have taken a black magic marker and wrote on my upper chest above the implants "Whatcha Think"  LOL. That would have freaked them out! I would have had a good laugh. Have also had a UTI and I am on my second round of antibiotics for 7 days. The OB-GYN put me on a different antibiotic today so I hope it starts to resolve soon.  I told the nurse that I had to be home for dinner today as I was very hungry. She said "Oh no. You will eat dinner and then throw up. Just eat jello."  JELLO!!!! Are you kidding me. I packed a lunch to eat on the way home in the car and I ate it. Then we picked up KFC on the way home and my DD and MOM made us dinner, so I came home and had a great big feast with the family. It was so kind and thoughtful ot the little 8 year old to want to cook dinner for me. Gramma helped and they made scalloped (sp?) potatoes, cut up cucumbers, shelled peas, and fruit salad, and they were going to BBQ hamburgers when we got home. Bless her little heart!!  And I also had a bedtime snack. I have eaten enough for a week. Back to the diet tomorrow.

Wish,  You said that you were 50. I am 1 year older than you and I have an 8 year old. No wonder why I am tired all the time. Puts things into perspective for me. I am taking the next week off to rest.

Take care All. Hope that I did not miss anyone. Must go to bed and get some sleep.

Kerry

sueper13

Kerry,

Hope you sleep well.  I've missed your posts and am glad you're back.

HunkyD, you are hysterical.  I agree, he should have had it looked at.  You know what though, I watched that show for years and really loved it.  There was so much love in that family.  We should all be so lucky.

Love,

Sue 

sueper13

Kerry,

Hope you sleep well.  I've missed your posts and am glad you're back.

HunkyD, you are hysterical.  I agree, he should have had it looked at.  You know what though, I watched that show for years and really loved it.  There was so much love in that family.  We should all be so lucky.

Love,

Sue 

kes

Hi Ladies,

Here are a list of the shows that I have never watched. May seem out of ordinary, but I have never watched The Waltons, Cheers, M.A.S.H., Friends, Little House on the Prairie, Touch by an Angel, Seinfeld.

Shows that I have watched, Bewitched, I Dream of Jeannie, Hill Street Blues, The Sopranos, Lost(My very Favorite all time show in the world) NYPD Blue, Crime Story, Survivor, The Amazing Race, The Monkeys (Davie Jones was my favorite) Twilight Zone, Johnny Quest, Romper Room, and The Friendly Giant, Gray's Anatomy (Love McDreamy) (I think that Meredith is a Flake, and I love Christina)

Kerry

Harley44

Kerry,

Oh my!  An endometrial ablation!  Sounds horrible!  Since you ate in the car, afterwards, it sounds like you got through it ok, without too much problems.  I'm glad you were able to eat afterwards!  That reminds me of my bi-lateral mast., after I came out of the anesthesia, I was SO hungry!  They gave me lunch, and I started to try to eat it, but when I opened my mouth, I just threw up all over my lunch!  So no lunch for me that day!  By dinner time, I was starving!

I didn't get the biopsy, because the gyn refused to do it.  He referred me to a gyn onc in Wilmington, and I now have an appt. to see him on July 22nd.  I saw my regular onc's P.A. today and she is giving me a break from Tamoxifen until after I see the gyn onc. 

Someone I work with told me that she went to this same gyn onc, and he is very nice, and he did her hysterectomy.  I think I will ask for a hysterectomy, since these parts have never worked right, and I just don't want to have to go through any of this again. 

I hope you are feeling better soon!  That UTI sounds pretty yucky, too! 

Hugs

Harley 

kes

Thankx Harley,

The endometrial ablation was not too bad at all. No cramping or flow today and I am only taking Ibuprofen today. I even emptied out the DD's medium sized swimming pool also. This was a walk in the park after the bilat mast. Like the Surgeon said to me "This is becoming old hat to you". Tomorrow I am taking the DD to the movies to see Journey to the Center of the Earth. Should be fun. I can sit and eat!!!!   LOL LOL

Take Care

Kerry

Harley44

Glad to hear that the ablation went smoothly, and no cramping. 

I hate the idea of more surgeries, but as a friend told me... you have been through chemo, everything else is a piece of cake!  I am just worried that this is cancer and I don't want to have to get rads or chemo...  I hope they can just take everything out, and I can be done with all this crap finally!!  It is like I have been just waiting for the other shoe to drop... now this!

Have fun at the movies! 

Harley

sam408

Kerry - Good to see you back and glad your ablation went smoothly. My gf had that done and said it was the easiest and best thing she'd done for herself. It's been 4 years and she still doesn't have periods and she's only in her 40s. BTW, I'm 51 and have an almost 5 year old grandson who wears me out when I have him. You're taking care of an 8 year old full time. . .you have every right to be tired!

Sue - Hope you enjoy your trip. Sounds like you need to slow down a little girl. I got tired just reading how many hours you worked!

Wish - You amaze me with all your yard work. My flower beds are overflowing with weeds because we've had so much rain and working in them is just a muddy mess. My dh has one of those gas powered weed whackers and I can't even lift the thing.

HunkyD - I just about spit my coffee over John Boy's mole. Too funny!

I really need to get myself moving this morning. I've just been sitting here reading and enjoying my coffee but I need to get off my butt and go exercise a little. I recently bought a Wii and the Wii Fit board. I absolutely love it and so far it's motivating me to get it on it everyday. Hope I keep it up!

Hope everyone has a nice weekend!

wishiwere

Sam, I can't do the gas whacker any more.  I messed up the right shoulder last spring, and then this one from the mast/sln is still far from full ROM, and although I can hold weight next me, I still can't lift a full gallon of milk and put it in or out of the frig b/c the strength isn't there at all. I hate that! Makes a lot of the outside work have to be done in stages..... and carefully or I am in pain.  Like today   Motrin and tylenol coctails are a constant for my life now, I think

Ker, Hope you feeling better as each day passes, but please, don't push yourself lady.  YOu are still recovering...whether you feel it or not!

Enjoy the weekend ladies.  We're 'supposed' to get rain.  I'm hoping so, as my house needs a little attention and if it's not raining, I'd rather be outside!

kes

Harley,  The thought of more surgery is just the pits. I was really NOT looking forward to this one as it was only 5 weeks from the last one. And I just HATE getting wheeled into the O.R. I asked if I could wear my glasses (no to contact lenses) and of course the answer is "NO". I said "Great, they want you blind, naked and dry (no drinks). What a fun date I will be" It is like you are always waiting for the next shoe to fall. I thought that I had sore lymph nodes in my collarbone area. I don't even think that I can think about this now. Must be from all the driving that I was doing. I will mention it to the PS when I see her on Thursday. Try and have a good weekend. The movie was good.

Sheila,  Too funny. You are 51 and have an almost 5 year old grandson. I am 51 and have an 8 year old. No wonder why I am soooo tired all the time. Off to the beach tomorrow. She keeps me young and moving. I was definitely of advanced maternal age when I had her. And a part time job to boot. I just have NO time for myself. I need to go to a spa for 6 months and relax. That would be wonderful.

Wish, I will try and take it more easy. My chest was sore this am after emptying the pool and trying to roll it up and hose it off. Too heavy for me to lift so it is still out on the grass. DH is working 12 hour days this W/E so will have to get him to move it in the shop soon. I gave up on the outside work a long time ago. As my Mom always used to say "Kerry, you are just as weak as pee"  Oh well. What can you do? At least I was smart. HA, HA, HA.

Take Care All,

Kerry

wishiwere

I bet it was sore woman!  SLOW it down!  You can do long term damage if you don't listen up, you hear me!   BE GOOD DANGIT!  I know after all that weed-whacking I had to take a couple days.  My MUSCLE in the chest and bi-ceps hurt!  It was a good hurt, but dang...... I didn't want to hurt myself long term!   soooooo  I'm still not finished and have the neighbors whacker still in my shed! 

Well....great news!  Called this morning to the gyn and left a nasty message about not getting a call back for 3 1/2 weeks! HA!  The gyn man himself called at lunch time to discuss a cream.  I mentioned another problem that I noticed today so I have ANOTHER appt on wednesday afternoon!  Geepers!  Guess I asked for that though!   Oh well....HOPE we get to the bottom of this crap!

kes

Wish,  I will take it more easy. The pool really did me in. I see the PS on Thursday and I will ask her if I can get back to physio. The physio used to stretch me out weekly and I have been seeing her for 10 years for back and neck issues. She usually does the trick for me and the stretch feels sooo good afterwards. We use muscles that we are not even aware we are using until they tighten up and give us pain and then it is the big OUCH!!!

Glad the gyn man finally listened to you. To have the man himself call is something. Hope that you can get this figured out. You do not need any more issues.  Good luck on Wednesday.

Take Care All,

Kerry

wishiwere

THanks Kerry!   Hope you get your appt with the physio too.  I thought I was going to have to go back to one, but the frozen shoulder is starting to work out finally.  Crapolas It should.  IT's been a long nearly 9 months of this stuff!

Harley44

Wish,

I am so glad to hear that your dr. called you, and that you are getting in to see him about the other problem that you mentioned on the other thread!  You are making me feel much better about the medical world! 

I just saw a new opthalmologist who I just will never see again!  I went to be evaluated for cataracts, since tamoxifen can cause them and three of my siblings have them.  He asked me Why do you have Tricare PRIME?  I thought that was an odd question, and now I'm wondering...  He decided that my "optic nerve looks weird" and now he wants more tests to see if I have GLAUCOMA !   I think this will have to wait til I go back for my yearly exam, in March, and then I will see a different dr...   I am thinking that he just wanted MORE MONEY, because with TRICARE PRIME, he only gets what they deem to be ALLOWABLE CHARGES...  thus the additional tests...

GRRR.... I am so sick of drs.!!

Harley 

spar2

I know the feeling.  My eye dr. says I have cataracts but don't have to have surgery until they get worse. (just knowing makes me nervous)  Have found 2 round lumps and 1 long and narrow thickening in my good breast so now have to go the the dr. the 22nd for that.  DH and I both have dental appts tomorrow at 1:45 and an electrical engineer is coming at 10AM to see what it is going to cost and if they can even put up a pole and meter and get electricity to where our new house will be.  It is always somethinng.  GRRRRR is right it reminds me of my grandkids acting like pirates.   Harley, have enjoyed your input on the humor section, please continue, you make me smile

Harley44

Thanks, Spar!  You are so sweet!  I am sending you a pm, since I just realized I didnt' reply to your last one...  Just want you to know that I'm thinking of you, and praying that these lumps are b-9!!

Hugs

Harley

wishiwere

Wow, {{{Spar}}} I remember that feeling. I had just started chemo about 30 days after the L mast and felt a long narrow odd shaped but hard thing in the R breast.  It's never been there before, but it remained all the time I was on chemo.  So, I finally called the BS to get it checked out, and the people at the BClinic were so sweet that I freaking broke down!  First time I'd cried since this whole thing started and I couldn't stop. Felt the fool.  Ended up doing an ultrasound and they decided it was a 'ridge'?  A ridge?  Why would a ridge show up at 10-11 o'clock on a R breast?  I thought ridges were under the breast?  Hm...still not comfortable with it all as I had IDC in the original lump, but a 1 cm ILC that wasn't found through the mammo or US, only when I had a lump pre-op MRI.  Anyway....they say it's nothing and I don't go back till oct, and don't get another mammo til next april! EEekkkkk!

I"m praying you get that B9 result and get it soon after you do the mammo, b/c we all HATE waiting!

{{Harley}} sorry it went bad at the optho....darn it...we can't catch a break, can we! I did though, and so wish he follows through well on wed.  He really apologized for the delay, but he better again on wednesday, b/c he owes me I figure on that account!  It wasn't right!  BUT....if he can help me find a solution, I'll be happy!

gsg

Hey, everyone.  Just popping in to say I'm so HAPPY you all are keeping this thread going.  Hopefully in August I'll have some time to catch up on here!  I'm working too many hours until then to do any boarding.  Miss you all!

sueper13

Hello!  I'm back!! Harley, kerry, wish, sheila--I missed you guys!  I went to Tennessee for the family reunion. it was great.  Nobody even said anything really stupid.  What are the odds of that?  My Aunt Charlotte nurtured and pampered me to within an inch of my life, I ate too much good southern food, had a great, rejuvenating trip.  I worked 10 hours today and have my next-to-last chemo tomorrow.  My SIL is coming again on Saturday, and I'll be off work now until the 28th.  Sounds weird to look forward to chemo, but I sure do love the staying-home-afterwards part!

Sorry for all the doctor-y suckage going on and the insurance stuff too.

My son's probation got dismissed today, and he is packing for Pittsburgh.  He's going to go up there and be with his girlfriend (NOT live with her) and go to school.  We will have a truly empty nest, as he is taking the greyhound and the little husky dog with him!  Sometime within the next week or ten days is when he is leaving, and I am actually okay with it---it's time.  We'll see if I still feel that way when it actually happens!!

Love you guys,

Sue 

Anonymous

I've been away so long I don't know where to start. I believe I'd have to at least start on page 37.  But I won't. LOL  Can't get my act together to read all those pages.

Welcome to any newcomer. 

Harley, sorry to hear about your eye appointment.  I  have baby cataracts.  I need to make an appointment with the ophthalmologist (I have the hardest time spelling that long word..spell check fixes it) because my deductible has been met.  She had me do an eye (I think it's a vision field test).  Then she had me get a picture taken that showed stuff behind the eye.  She said with much relief...no nerve damage. LOL  When I did that field vision test my right eye was inconclusive.  Also, watching for glaucoma.  So much fun!

Hanna, you REALLY should not be doing so much work after such a short time from surgery.  Of course I can't remember WHEN you had surgery so it may have been two weeks ago..been away from this thread way too long.

Sue, so glad you enjoyed your trip.  And, as far as chemo..it's cumulative.  Don't be so hard on yourself if you're tired.  Heck, I was tired before I started chemo.  LOL  And even if you DON'T work everyday YOU DO WORK!  I take my hat off to you.  It is our time to be spoiled!  And it seems your sweet aunt did just that.  Oh, and I'm sure you son will be so happy to "meet up" with his gf again.  Just try to remember that....that he'll be happy.  My gypsy children finally left AGAIN for their trip throughout the West and Midwest this morning.  I'll miss them.  They'll be gone 2-3 months, but I told dd it would probably be 6 months!

Patrice, yep, I know you must be VERY busy at work.  Lots going on there in the Senate.  Election time is almost here.  Things are popping!  I think I read back there somewhere where you shredded some papers from your table and mopped.  Oh, and hung out sheets!  I say, WELL DONE!

Wish, it's about time your gyn got back with you.  And whatever issue you're dealing with now I hope it's nothing serious.  It's really bad when you have your act together and WANT to weed and the wacker gives out.  Still need weeding over here.  And, if I got up at 4:30 each morning...well, I wouldn't get up.  I'd go back to bed.  No way uless I HAD to.  Call me lazy and I'll answer.

Nothing going on much here.  My db and his wife came in (staying with her son).  They came by yesterday for a visit and also today.  So, my dd and sil left, plus my brother will be leaving Friday.  Seems like everyone left me all at once.  I did have my act together just a little bit.  I kept the house straight, kitchen clean, vacuumed some, dusted a bit in the den.  Then, yesterday I said to heck with it.  I didn't even to the lunch dishes.  I didn't cook dinner.  So, SURPRISE!  Here comes my brother and his wife.  Oh, well.  They know I'm a slob.  LOL AND I wasn't dressed YET.  My gyspy children sort of made me keep my act together becaused they came over every couple of days to have dinner with us.  I griped about it, but I'm gonna miss them and my act is gone!

I know I've missed a bunch of people.  I'm going to try to keep up IF I can get my act together.  Sometimes I'm too tired to type. LOL  Or think. 

Ya'll be good and don't do too much work.  I'll be glad to join you on the front porch at the plantation.  Sounds heavenly.

Shirley