I can't get my act together and I don't know why

wishiwere

Harley~  What a slow first day hey? I'm surprised NO else noticed the problem earlier! What did the people do when they wanted to look at them? OR are they coming in to stay at the properties?  Guess it's easy to confuse me tonight!

Just finished rolling over $600 in coins tonight tonight for dd at her house!  Oh my!  What fun! NOT! I'd forgotten what it was like to wait table and throw your change in a jar and watch it add up!  Maybe I should wait table again!   UGH!  With this bum arm, lopsided body and butch haircut,  I'd be lucky to get the hostess job!  Wahhhhhhhhhhhhhhh...I should be on the moan site tonight

So glad you are over your first day.  Have you heard about your TVUS last week yet? And how did it go at the dentist!  I do NOT want to hear who much damage chemo did to my mouth yet...later for that trip

Harley44

Wish

WOW!!  $600 in coins?!  Maybe I should start waiting tables!  That sounds great!  We are saving our coins, too, mainly cause dh won't put his coins away when he gets home, so we always have piles of his change laying around everywhere!  I guess it doesn't bother him, but it makes me crazy, so when we have 6 or 7 piles of coins, I pick them up and deposit them in jars, and a few times a year, I count them and roll them and take them to the bank for 'real money'.

The arrival hostess job...er, I guess I didn't explain it very well.  I inspect the condos to make sure that there is nothing wrong, either a housekeeping issue or a maintenance issue, and I do this before the renters come in.  They have already decided to stay there for a week, for their vacation.  Then I greet them, when they arrive, and give them their keys.

I'm hoping this makes sense.  I am in constant contact with the office, and they were calling me on my cell phone.  However, the tag I put on the doors when I was finished inspecting had the wrong #, so none of the renters could call me!

The dentist... OOOH, I HATE THE DENTIST!  I still HAD TWO cavities, in spite of me constantly brushing my teeth!  Maybe some good news for you, but I am not sure whether you had rads or not.  The dental assistant told me that rads do more damage to our teeth than chemo... I am not sure if I believe that, because I now have serious dry mouth issues, which are a big contributor to cavities, or so I've heard.  So now I have to go back in two weeks to get these 'tiny' cavities filled.  So WHY DO they have to dig a HUGE hole in my tooth, in order to fix a "TINY" cavity??  I HATE THE DENTIST!  Oh, I already said that... 

Also, did I tell you that I got a summons for JURY DUTY??  July will be a really sucky month, because I have dentist appts., jury duty, and an eye dr. appt., too.  Seems I have dry eye issues too.   Will these dr. appts. NEVER end!?!

Oh, the TV U/S...  I haven't heard a word from my dr.  My dh says no news is good news...  I told him, "I have these uterine fibroids, and they didn't just GO AWAY... so no, no news ISN'T good news."  Gees.... MEN!  Anyway, I am sure that they will just tell me "Yep you STILL have them."  I guess I'll have to start to make some noise, and I'll end up seeing a specialized gyn surgeon in order to get some kind of answers.  They all say that they just leave them alone and they won't bother you, especially if I'm not having any problems from them.  But, when you can't have sex without pain and bleeding, that isn't "NO PROBLEMS".  I am not sure whether it's the fibroids causing this, or just plain old premature menopause issues, and dryness there...  I don't know what to do...  Do you have any suggestions?

wishiwere

Yeah, we need to get a BILL signed that NO doc or dentist or other health care provider can leave their office for the weekend, untill ALL pts who've had test in the last 7 days are talked to personally! PERIOD!  IF the test aren't back, then then have a 3 day reprieve, but will be sent directly to JAIL for the time period if the rules aren't followed until the test results and follow up are discussed with satisfactory feelings on the pt side!   Good fairy tale hey?

 As for the fibroids, it's possible they are causing the pain and bleeding, but you said you are menopausal?  IF so, they may in fact shrink and/or disappear from what I've heard after menses have ceased, so that might be what they are waiting for.  My mother on the other hand had them so bad, she couldn't stop bleeding, so they did a hystericalectomy!   Love that word... J/K, but you know.....

The pain and bleeding could also be cyst on the ovary, or a condition from you say of the menopause by chemo and such.  The vaginal tissues (inside and out 'they' say) get thinned and loose elasticity and their natural lubrication to keep them supple.  When they happens, they can tear, bleed and so on, causing of course, OUR PAIN on sexual intercourse!  I told you of the tears I was in from just that tiny probe for the TVUS, didn't I?  That cover felt like it had a serrated edge on it!  And yes, I bled from that also And I put THE Danged wand in and SHE was very gentle moving it.  She wanted to stopped, and I said, NO!  Not that I enjoy pain, but I was NOT going to come in again and get it done again ANY TIME, so this was her chance to torture me!

I suppose today is day 10 for me to call and reminder doctor doolittle that he was supposed to be doing his job, you think?  What the heck, I may not call, I'm tired of doing doctors jobs for them, and I certainly do NOT get paid enough to take of it for them!

July sounds like your torture month. I will keep you in my thought as you trudge through it all.  I'll NOT clean in protest, K?

Harley44

Wish,

I absolutely CAN NOT believe that you haven't gotten your TV US test results yet!!  After all, you had yours BEFORE I had mine!  GEEZ! 

Sorry I didn't even ask you about your results, but I would have thought you'd have 'em by now!

I am considering driving over to my pcp's office and asking for a copy of the report, so I can take it with me, when I go to see my onc in a few weeks.

I read that Tamox. can cause fibroids to grow, so they may NEVER shrink!! 

Let me know what happens, when you call your dr.   Let's send them a bill for all of our running around, and calling them, to keep on top of our medical tests!  Then we can go on a shopping spree, with our well earned money!!

As always, no cleaning!   

wishiwere

Oh Harley!  I'm sorry, yes, I got those results, everything is okay.  He did them b/c of the bleeding and the pain with SEX~ remember?  When everything okay, then he said he had some more research to do on the premarin cream, and such (be/c I'm ER/PR+).  That's when he told me, IF I don't hear from him, to call and REMIND HIM!  Remember now?  HA!  I saw him originally for this stuff on:

Thur June 5th- vaginal exam and discussion

Fri June 13th- TVUS

Fri June 20- called about results and said to call him 10 days if I'd not heard as he still had 'calls' out to others about it?  WTH?

June 30- STILL WAITING!

wishiwere

OMGOSH!  THe NURSE Basically LAUGHED/CHUCKLED when I said he told me to call him to REMIND HIM!  WTH?  Did I mention I HATE DOCS!

So....yet ANOTHER WAIT for a return call.  She says, can we leave a message on that number when I gave her my cell number?  NO!  DAMNIT! I want a call and to talk to HIM!  NOT  freaking message?  For one thing, they have NO IDEA where i get scripts, so that means I'll have to CALL BACK IF he's found an answer!  OMG!  WHERE's MY SHOVEL!  GOing out to sharpen those tools! Good therapy....thinking about this crap while grinding them down to a honed edge! UGHHhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!!!

althea

wish, I gotta hand it to you for all the weeds you pull.  I pulled weeds Sunday and was barely moving Monday.  I intended to get my truck to the shop in the morning, but didn't get that done til afternoon.  Just got a call with the estimate.  $1100.  I still have June's phone and water bill to pay, and I sure as hell don't have $1100!  I suppose this belongs on the bitch thread, but I usually post here.  Well, I'm going to clean house this afternoon and say lots of prayers and hope a miracle comes to my door. 

AlaskaDeb

Hi all.  I have been busy and not posting much, but wanted to say HI!

I bought a new vacuum a couple of weeks ago, so I hope it doesn't get me kicked off   In my defense, I have only used it for about 10 seconds.  I make the kids vacuum!  I'm sure that using the vacuum makes my LE worse...right?  You guys will back me up on that won't you

Deb C

wishiwere

Oh most definitively is would make it far worse Deb! I have a d/w and dd doesn't in her new apartment.  We were going to do her dishes today (it doesn't count, b/c its NOT MY DIRT! ....anyway...I told her I had to dry, b/c I can't get my hand/arm in hot water!!    Works for me, but I just have to pray that my family never removes themselves from that 'ignorant' side of breast cancer and or medical jargon!

Althea!  Gardening (aka, pulling weeds) is just like any other exercise, dear!  You are SUPPOSED to warm up to it. In other words, if it's new especially to you, warm up to the hard job by doing stretches, or small jobs.  I pull 150 feet of 3/4 inch hose around an acrea every other day b/c we have sandy loam and it dries quickly.  Also, IF you mulch?  You cut down on the need for a LOT of watering AND a BONUS is the weeds are EASY to pull out of it, b/c their roots aren't tight in the soil but loose in the mulch.  And believe me, doing the little ones often is MUCH easier than getting the ones that are 2 feet tall and have roots to match!

Another hint!  IF you know you are going to weed an area in the morning...water it well the night before.  I mean water it well.  To the depth of the roots.  That will loosen the soil and allow for easy weeding also. Make sure you get ALL the root and don't just snap off the tap, b/c then you get a stronger and longer root for the next time!

Okay then. Lesson on weed pulling done for today...exam will be Monday, July 7th, 8am.  BE there with sharp pencils and NO notes written on your palms ladies!

sueper13

Wish,

For the weeding test, can we bring shovels?

Love,

Sue 

wishiwere

Sure!  Make sure they are the squared off edgers though, k?  I have some islands that need squaring off while you're here, and truly I will be so very thankful for the extra hands!  

Oh, and for those recovering from surgeries.  I'll be sure to water well on sunday night, so the soil will be soft as butter and easy to dig in, k?  AND....if you bring the LONG handle shovels, you won't even have to Bend over ladies! I believe they make those ergonomic handled ones now too, so for those of you with good range of motion in one arm, you might want to try those instead of teh standard type!

althea

Y'know, it's been three years since I finished chemo and I still feel like I have chemobrain.  I know to water before weeding, and did, but there were some spots that I missed.  It's been so long since it rained last that even if I didn't have chemobrain I would still have trouble calculating how long it's been.  So that translates to dry cracked ground as hard as cement.  And I tugged hard on some weeds that didn't budge.  So I'm not feeling quite as wimpy as take a moment to give myself a bit more credit for what I did. 

I would love to have sandy loam in my yard.  I just watched the weather forecast and we're supposed to get some rain this week.  yee haw!

Deb, so good to see you posting.  Darn tootin you need those kids to vacuum.   

Hanna60978

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wishiwere

Oh {{Hanna}} I certainly hope you didn't cause adhesions dear lady!  And yes, that IS the word my feeble brain lapsed on!  I hate that!

Do NOT pull weeds till you are ready, although if you are sitting and not bending over tugging, you should be fine with just your hands/shoulders/back adn NOT the tummy muscles!  Be careful!

The coin rollers.  It's her coins, so I'm not going to buy one, but I'll suggest it to her as she does collect a tidy sum. Fortunately the girl knows how to save and has a nice chunk in the savings for a 25 year old.

Oh pooh on the doggy house for what happened!  Goodness, life is WAY to short to continue to harp on old news....especially BAD news, so let it go and tell him we said to LET IT GO TOO! there, that should help! HA!

Enjoy that sundae...I'm thinking some chocolate Moose tracks is in order again!  I tell myself I can only have it IF I do my ride and tonight I did an extra 1/2 mile, so I'll celebrate while you mope and together we can shine!

Hanna60978

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Harley44

Sue,

Chemo sucks!  Sorry you have such unpredictable se's.  I'm praying that the rest of your tx will be pretty uneventful.

Deb,

No, don't vaccum!!  It is bad for your LE, I was told not to do any repetitive motions, so NO cleaning!!!

Wish,

I am truly sorry, I can't seem to remember S*IT these days... I can't even keep my own information straight, and now my schedule keeps changing on an hourly basis...  

Now I have jury duty the week of July 21, and had to change my onc appt. to July 11th.  I still have an opthalmologist appt. on the 14th, a dentist appt. on the 15th, and another ps appt. on July 30th!  This is the month from HELL!! 

I called my pcp dr. today, and the receptionist told me that they ONLY JUST GOT my TV US results!  I find that highly unlikely.

Thanks also for the weeding tips, but I would rather have you here to pull them for me...  although, I pulled some weeds this morning, and it was good exercise.

Hanna,

Thanks for the vote of confidence!  I only applied for a job at CVS, but I haven't heard from them yet.  I was told that I failed one of those questionarres that they make you fill out, for a job at the local grocery store.  WTH??  So I had another test on the CVS online application, and I am guessing that I screwed that one up, too. 

I went to pick up my final paycheck at the dress shop, and I couldn't get out of there before my boss showed up, at 9:30.  Anyway, she asked me to come back to work, and I just might, but only a shorter work schedule.  As it is, July is just about shot, with all those dr. appts and jury duty, so I guess I may work ONE day a week!!   You are right... I just started that 'saturday' job, as an "arrival hostess", inspecting the condos after they have been cleaned by housekeeping and then greeting the renters, and giving them their keys. 

I am so sorry to hear about your accident in the garage!   I know that my dh isn't very understanding about any kind of 'issue' with the car.  Sometimes, when I return home from driving to Wilmington or Whiteville for a dr. appt., he will inspect the car for any damage.  One day, he came into the house, after one such inspection, and he was angry.  He said "Did you follow a truck too closely?  Did you get a 'rock chip' in the windshield?"  I wouldn't talk to him the rest of the day, I was so mad!!

I better get going.  I've got to make some lunch.  Some days, I even forget to eat!

wishiwere

Harley, tell her you'll come back only if you can 'borrow' the clothes she wants you to wear rather than having to pay for them.  That way you can wear the nice clothes AND make a pay check!

Did you ever ask for a medical deferment or exemption or what ever it is we finally decided is the correct word for it, for jury duty!

Fantastic thunder rolling over us, so we're in for some rain.  Sure hope it's enough to actually soak the ground and not the sprinkles we got last time! OR the hail!  I'll see if I can share a pic from my phone from that last storm!

Harley44

Wish,

Yes, I did ask my onc for a letter of exemption, from jury duty.  The nurse called me back and told me that he said I can't get out of jury duty.  I'm guessing that if I were getting chemo now, he would give me this exemption, but since I am finished with my tx, I will have to have my whole life turned upside down.  My onc told me to move my onc appt. from July 22nd to an EARLIER date.  I am assuming that means that they will be on vacation the last week of July, so thus the reason for me getting an earlier appt. 

I had to re schedule every appt. for July, and tomorrow, I may try to get that ps appt. changed to July 11th, also, so I can go to my onc AND  my ps on the same day.  They have offices just up the street from each other, in Wilmington.   I have never had to balance so many appts in my life!  Maybe I'll just call and cancel them all, except the onc. appt.

Hope you don't have a doozy of a storm!!   

althea

I had a case of shingles last time I was called for jury duty.  It was six weeks after my second reconstructive surgery.  I had been thinking things were finally going to start getting better for me, and boom, shingles.  My FORMER primary care doctor made a condescending remark that really ticked me off.  I asked for a note with my dx so I could send it to the courthouse, and he made said something like, well, if you think this is reason to not perform jury duty, I suppose I could write you a note.  LIke I want to sit elbow to elbow in a room with a thousand people while I have a viral disease erupting on my torso!  Geez, we should start a 'doctors suck' thread.  lol 

Hey harley, maybe if you wear socks that don't match, fall asleep and drool, maybe they'll cut you loose.  Maybe alaskadeb could make you a button that says 'hang the guilty bastard', just to clench it.   

sueper13

Yeah except the button Deb makes would say shoot, shovel and shut up!! D'ya think they'd get it?

Doctors who think that makes them superior do suck.  I never got the whole "Doctor as God" thing..I have always considered them my medical employees.  When I have gotten a condescending remark, I have found a new doctor.

Surprisingly, doctors seem to like me.

Go figure.

Sue 

Harley44

Althea

That was SUCH a rude comment for your ex-pcp to make, about people 'just wanting to get out of jury duty'!  I mean, come on, we have been through HELL, with dx and tx for bc, for crying out loud! 

Well, when my onc decided that, to save money, he was going to change my chemo drugs from Taxotere & Cytoxan to Adriamycin and Cytoxan, I was MAD!  I told him "I think if You do this, if will KILL me!"  Just like that, he backed off.  My dh says that sometimes you have to stand up to them, or else they will think that you are a door mat, and they can do whatever they want. 

Just for my jury duty report date, I kind of wish I had that bald chemo thing happening.  Now, I have hair that is kind of wild and crazy looking, with some of the curl still there.  Maybe if I make it stick out like Kramer on Seinfeld, and get a Novacaine shot in my mouth, I'll be drooling, like that episode when Mel Torme met Kramer, and thought he was mentally handi-capped!!  Do you think that might work? 

Sue, 

You are right, they are OUR employees!  Maybe I could borrow some of you ladies, and we could bring our shovels and stand outside the courthouse, chanting...

What is your secret?  My drs. seem to like me now, but there was a time, when I was getting all kinds of condescending remarks.  I thought it was because I question them, and I don't just accept what they tell me.  Boy, I really thought this bc dx was going to be a tough one, since I couldn't just let the dr. plan my tx, without more information, about WHY I needed this tx and not that one.  I guess that is why I had to have a 2nd opinion onc.  My first onc said "there are lots of risks, you just have to trust me."  WTH? 

So even though I had to fight with my current onc, when he wanted to change my chemo from Taxotere & Cytoxan, to Adriamycin & Cytoxan, I refused.  Now we get along ok. 

Shirley,  WHERE are you??  I am getting worried!  Please post soon. 

Harley 

wishiwere

Welllllllllllllllll..finally back with power!  Yes, it was a doozie!  WHAM, BAM, THANK YOU MA'AM AND THEN!  NO POWER! Since 5:49 yesterday!  Oh my what a fun night alone in the dark!  Oooooooooooooo~

Harley, I shouldn't tell you this...but....They will question each of you pretaining to your experience in the type of case coming before you..... and that many times will get you kicked out of the jury pool.  Surprisingly, it's quite often they find a reason to NOT choose you.  Then again....with our luck.....you'll get on the pool!   Good luck in failing that test!

I have to say.....I emailed the BC coordinator about to get my records transferred to another onco b/c of the problems and she called.  They REALLY don't want to lose me she says.  HA!  What ever!  Soooooo now the other onco (the head guy) who did NOT have room for me in october is going to review my file and possible take me on.  She says he's more suited for me and mentioned that this isn't the first time it's been requested.  I said I'd talk to him, but no guarantees I'd stay with them.  I'm just too far frustrated and still no answers about the problems on arimidex, so I'm really considering hard whether to WAIT for him to decide after his 'vacation' or to just do the trade now.  So danged frustrating! I'm sure they feel since I'm done with chemo it's no BIG deal, but to me it is.  I feel I'm having more SE's now than during chemo.  AND....I have still NEVER been told what to watch for for recurrence, or anything in regards to FU, except to see him every 6 months or so.  IT's nutty!

Hanna60978

 

wishiwere

Didn't she have kids there and were leaving next monday?  Perhaps they are just gone for a long weekend?  Man, I hope all is okay!

Harley44

ok everyone, I confess... I have Shirley tied up in my trunk!  Just kidding...  I just talked to Shirley today, and she is doing fine, but her kids are there, and they are having fun and doing family stuff together. 

I am hoping to meet with her again, when I have my  next onc appt., on July 11th. 

Wish,

I have done jury duty before, so I know the drill.  They don't kick you out unless there is a specifice bias that you have that pertains to the trial that you will be on.  So just going in there and spouting off all kinds of comments won't get me kicked out. 

I don't usually mind jury duty, but it is just not a good time for me.  July is the month from HELL, I have so many dr. appts it isn't funny! 

Oh, btw, I finally got a call from my pcp dr. office today, while I was out at the pool at my friends house, and we went out to dinner, so when I got home the office was closed.  I guess it will be closed for the ENTIRE July 4th holiday.  The message was " Please call dr. Blizzard's office." No explanation, like maybe "Your us test results showed no change from last time.... so I am scared because I am thinking there is something like uterine cancer... 

spar2

Harley, have been missing you.  So you have a new job or is that still up in the air.  I also have the bleeding and pain when we try to have sex.  The dr. said it was dry and cracked from no hormones from the arimidex, even with lub i still bleed so we don't do much anymore.  I have been retired for a year but dh and i talked and with our finances we are going to have to find jobs and i am already depressed about it.  I do not want to work anymore.

Last time i had jury duty i got out of it because i didn't even live in that county anymore.

I'll be in your purse eating chocolate and drinking wine while you go about your business at all your appointments so if you get lonely just open the purse.  love ya.

Hanna60978

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kes

Well, Am I Pooped!! Worked 5 days in a row. One night I did not get home until 6:45 pm. My hips are aching from getting in and out of my car all day.

Hanna,  Yes, I used to be a Nurse in a Hospital for 20 years and I was always at least 20 lbs lighter. NEVER sat down. You are so kind to tell the staff to sit down a while on the couch in your room. Those 12 hour shifts were BRUTAL. I remember them well. And 12 hour night shifts are even worse, especially if there is a full moon. Now I do visiting home nursing.

Wish, I don't think that I can make it to the weeding exam on July 7th. I think that is my wedding anniversary. Sorry.

Have a busy day tomorrow, DD (8 yrs old) to the Dentist, then Wal Mart, then grocery shopping, and then 1 more store so the DD can spent the money for passing that Gramma gave here. And house is a mess. Oh Well.

Wouln't it be great to be Bewitched and just twitch your nose and all is done. Or how about I Dream of Jeannie? She could do the same thing. I used to love those shows.

DH bought 4 ducks for the pond for the DD. I love to sit and watch them. They are too funny. And all 4 of them travel together in a little pack. Can't remember what kind they are now. Memory is too over worked this week. Today I could not remember where a lady lived that I saw yesterday. I had to look up her address on a map of the city. SCARY!!! I could not believe it. I will post again soon if I can remember this thread.

Take Care All,

Kerry

kes

Harley,  Glad to here that Shirley is doing well. That is not right for the Dr's office to leave that kind of message on a Thursday of a long weekend. Why didn't they just hang up and call on Monday. Hope all is well. I know that it is worrisome, but that does suck to do that. Try and have a good weekend.

Kerry (The non Cleaner, because I am too pooped)

Hanna60978

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