please help

Sueps,

I am too triple negative and have the same worries as you are having.  I am still VERY new to the whole breast cancer thing.  I don't have any history of it in my family and I am only 35yrs old.  I found mine lump by complete accident on Christmas morning 2006.  I had just had my annual physical in November 2006 and nothing was detected.  I was too young for an annual mammogram so I just did self exams.  Then BAM!!!!  my wonderful dog kept wanting to bury her nose into my boob.....LOL!!!  yeah, yeah I thought she was was just being perverted but I truely believe she "smelt" the cancer.  It was only 4 weeks from then that I found the lump in my left breast.  It measured at the time the size of a half dollar, but by the time I had surgery it has grown to the size of a golf ball.  FREAKY!!!!  So needless to say, my dog now runs the house.....LOL!!

But back to my point, sorry for digressing.  Everything that I have read about or my doctors have told me is that I being triple negative and the aggressiveness of the growth that I have do not have a very good prognosis.  I even had the genetic testing done and they could not find a link as to why I got breast cancer.  So I am right with you in worrying if I will have to go through this all over again.   

sueps,

I had a left mastectomy with 2 nodes removed.  Then I started chemo treatments.  I had 4 A/C and 4 Taxol treatments.  Once my treatments were over, I had my right breast removed with bilateral TRAM reconstruction.

It is VERY devasting to find out the triple negative results.  As my loving DH told me, I can't do anything the easy way....LOL!!!  and  he is right.  I can't do anything the easy way, I guses that is just who I am.  LOL!!! As crazy as it sounds, being diagnosed has put my life a little bit clearer in my "eyes".   I take each and everyday and appreciate it as if it were my last.  If anything, cancer has taught me to NOT sweat the small stuff.  And laughter is an EXCELLANT tool in recovery.

Hi Sweet Sue, HOW ABOUT ME????

I am your Triple Negative best pal!

And I am just fine after 9 years.

Let's just say that negative scans and negative nodes are a huge 10 for you.  Being Triple Negative is waaaay down the worry wart line.

I would give it a 2, maybe.  So you have the biggest factors in your favor.  Don't worry about the Triple thing.  I guess I was kinda lucky, no one knew much about it back when I was diagnosed, and I really didn't think a thing about it. 

So buck up, sweet Sue, you will be fine.  On the worry wart scale, you are doing great!

Hugs, Shirlann

Hi Sue! Ok , deep breath , hold, blow it out... Now , I just read on bco , that the latest findings are that young women with ER , PR - are much more Likely to gain the full benefits of chemo than those with ER , PR +. The worst thing I see about your results is the grade 3. But it was caught early , hasn't spread , not even to a node and there is no edvidence of it in your blood. So that tells me , they got the bootface out at surgery , and you will be getting chemo for precautionary reasons. So Sue , be specific here and tell me what you are seeing that is so upseting? I think the main focus is on what everyone tries to convey to us all , get a mammogram , early detection is the key. And it sure sounds like you are "early detected"! {{{{{{{Sue}}}}}}}  Clear nodes , clear vessels , 24mm , bootface is now in a jar in the lab , This all sounds pretty teriffic to me! Hang in there , its only gonna get better. Hugs and much love , Melody

Me too, triple negative, and the biggest thing I learned on this board was NOT to read too much except what you read on this board. LOL.. These ladies that I have met here put the scientific community to shame with their stories of not only survival but rebirth.

I have had my second chemo - so far still working FT - and honestly, even this.. the "crash" week - I feel better than I did a year ago? Why? I guess I was "sick" and didn't know it - if you read the triple neg board, you will find that many/most of the women there had their tumors appear "overnight" and had done everything right to pay attention to their bodies but still - it literally just showed up unexpectedly. Was it brewing there awhile undetected? I suspect so in retrospect but nothing in the world that we have now had picked it up, cept my own sudsy little hand in the bath and it was literally THERE and 3.5 cm. That is from what I have gleaned here, one of the amazingly typical thing of triple neg. (sudden appearance of a full blown lump) The rest is all individual as we all are.

The stats are old, they are based on 5 or even 10 year ago drugs (thats when they started those trials) AND they are still to this very moment, finding out new things every day. Maybe before you or I or any triple neg has a recurrence, they will have an actual full blooded solution. (I pray this for everyone, not just triple negs of course)

Blessings to all.

Karyll 

Hi Sweetie, I am so sorry of how your feeling. I am a triple negative too. Just calm down. Take some deep breaths. Go take a nice walk and smell the fresh air. Please, you need to try to stay positive through all this. I know it is hard, and it is a continous battle. But, you just got to grip on. Take each day as it comes and enjoy them. Make the best out of each day. If you have any questions or just want to talk to me feel free. I am here. You can always email me too. Take care sue. My email is kkelley39@yahoo.com

God Bless,

Kaloni

A good cry is sometimes just what the doctor orders....



Cleansing, connecting, and oh so humanizing.



We're all sorry too, Sue.



Tender

Hi Sue! I'm so sorry you are feeling so bad. I'm not triple neg. so I don't know how you feel. I hope you get some help and comfort from the triple neg. thread. Scream , laugh , cry , obtain info , do whatever you feel the need to do. But I will be here always to listen , and help anyway I can. Take care sweet sister , I'm thinkin' of ya. Hope tomorrow is a better day. Hugs and prayers to you , Melody

Oh Sue , I have felt what you are feeling and where you are. I just got through it by thinking of my son and family. When it came down to it , this is what I love and this is what I wanted. I would do all that was told to me so I could be with my loved ones. I know my son is 24 , and doesn't need me in the same way your boys need you. But , I can relate to him as an adult and have soooo much to share and help him with at this stage in his life. And grandchildren , I want to be there for that. I accepted this challenge , and gained all the knowledge I could about what I was going though and made the best desisions I could. I want to be there for my son and I want to be there to complain about my familylol , so I looked at my c@$%$r and what I could do about it and thats exactly what I did. Your docs are going to help you with your game plan and the best treatment you can have. Thats what they are there for. Question what ever you feel you need to. Get a complete understanding of your treatment. And feel that you did everything you could to fight this. This is a devasting diasese. It takes a toll on us , thats for sure. BUT , it is treatable and you can rise above it. Sue , my hearts aches for you , and all of us.

Lord , please bless Sueps with comfort , peace , and please calm her fears so she can feel hope and be able to do what is right and guide her always Lord , Amen.  I love ya Sue , take care. Melody

Sue , I am so sorry you are feeling frightened. I hope your walk helps. I am here if you need me. xxxx

My dear, dear, Sue,

You really sound despondent this time. That's worrying me. None of us want the fear of the unknown. None of us want the pain of surgery and treatment. We are all right there with you.

The only way out is through. I wish there were others. I wish we had more choices.

It is common to think we don't want to burden others when we feel that life is bleak. The true burden is for us to take the easy way out and leave behind the burden of unimaginable grief and anger over how we ran away from life without seeming to care about anyone else.

Please understand that allowing yourself to feel hope in no way diminishes the magnitude of what you are going through.

I am still mad, and expect that I will never get over the anger about having my life turned upside down. I don't want this. I don't want to have my body cut up and poisons put into it. But most of all, I don't want to die a coward. I have things to do. Life is different, but not over.

Choose the things in you life that you have control over and invest your energy into those. You are staring in terror at the huge rocks on the shore and neglecting the open water. You can't paddle through rocks, you know.

I believe in you, Sue. You must hold on to all the outstretched hands we offer to you and know that you will get through this.

With love,

Towhee 

Oh my!  If that doesn't cheer you up, Sue, I don't know what will.  Where do you find these things, Towhee?  Too cute!

Sue, I hope your walk cleared your mind a bit and that you were able to rest.  I'm worried about you.

Love you sweetie,

Karen

WE ARE HERE FOR YOU!!!!