Mexaltrexate

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AlaskaDeb
AlaskaDeb Member Posts: 2,601
edited June 2014 in Managing Side Effects of Breast Cancer and Its Treatment

Does anyone know anything about a side effect of Mexaltrexate where there is swelling in the frontal lob of the brain?   Any treatments to reduce the swelling?

Thanks

John

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited October 2008

    Oh my goodness John.  I am so sorry Deb is obviously not feeling well.  Hopefully someone will be along soon with information. 

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited October 2008

    John,

       I have no help to offer, but have been searching for news of Deb on her blog and here.  Sending love and prayers to you, Deb and the girls.

     love,

    Bren

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  • Madison
    Madison Member Posts: 1,819
    edited October 2008

    John,

    I would like to add my love and prayers to you, Deb and the girls.......

    Madison

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  • kalyla
    kalyla Member Posts: 258
    edited October 2008

    John,

    I don't have an answer for you, but I hope Deb can get this resolved soon. What have the doctors said about it? I wish you and your family all the strength it takes to get past this new hurdle.

    Kalyla

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  • Ivylane
    Ivylane Member Posts: 544
    edited October 2008

    John:  Do you mean methotrexate?  I would call the doctor right away and ask.  Let us know how you make out.

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  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited October 2008

    blue16,

    Could be.  I thought Metho but did google & got Mexal.  

    Thanks for the help

    John

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  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited October 2008

    Kalyla,

    Dr.s said no tumors just swelling.   They said wait & see for now.  

    I just have trouble waiting.   I also have a call in to the oncologist to ask about drugs to reduce the swelling. 

    Thanks for your & everyones help.   Deb is so lucky to have everyone Praying & Pulling for her!

    John 

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  • cmb35
    cmb35 Member Posts: 1,106
    edited October 2008

    John and Deb,

    I am sorry to hear about the swelling, and the "wait and see" for an answer. Sending you all my prayers.

    Colleen

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    John:  I'm just so sorry you and DebC are going through this.  I will be praying so hard for you and your family.  High doses of Decadron can be used to decrease swelling.  Mannitol is a powerful diuretic used to decreased swelling around the brain - not the brain itself.

    I don't blame you for not "wait and see."  Definitely pursue this with the doctors.  What if its related to that port being in the wrong place the first time? 

    Hugs and prayers

    Nicki

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  • Naniam
    Naniam Member Posts: 1,766
    edited October 2008

    John, there is another site that Deb post and your question was posted to someone who Deb knows about.  She will know which site to go to.  He has answered the question and there are some drugs that can be take to help with the swelling. 

    Our prayers are with Deb, you and the girls.  We are just saddened to know that Deb is having a problem with this. 

    Brenda 

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited October 2008

    John,

       I'm going to send you a PM to Deb's logon here on BCO with the link to another website she is a member of.  You might find some helpful suggestions there.

    Bren

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited October 2008

    Deb & John,

    Crap.........................this just plain sucks.  Hope you find the answers you are looking for.

    Praying for you always,

    Valerie

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  • newvickie
    newvickie Member Posts: 3,939
    edited October 2008

    Deb...popping in here to send you big hugs and lots of prayers...no answers for you but hope the doctors come up with something soon!

    bugs and fishes

    V

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Deb and John: Hoping that the swelling will go down ...  I'm not good at waiting either ... so glad that you are there to advocate for Deb and that you don't just accept the wait and see.   I'm still praying for Deb and your family .. and I know that many more of us here are too!!

    Please give Deb a big hug from her sisters here!  

    Doreen  

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  • Calico
    Calico Member Posts: 1,108
    edited October 2008

    Just read this,

    I am so sorry Deb is going through yet another crappy bump!!

    Sending big hugs and good vibes and she is in my prayers!!!

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  • wishiwere
    wishiwere Member Posts: 3,793
    edited October 2008

    Prayers Deb, and Good thoughts, John, that you can be patient through this trial currently going on.  Deb, many, many prayers and gentle {{hugs}} dear Lady. So sorry to hear you are going through all this!  :(

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited October 2008

    Deb has to recover John from the effects of chemo.  Chemo reeks havoc on healthy cells too.  She is in the healing mode.  So awesome to hear there are no tumors.  Consult with the doctor about anything worriesome while Deb goes through this recovery period.  I am betting the spunky lady will do us proud.  Make sure she has lots of fluids and is nourished properly and gets lots of rest.

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited October 2008

    Bugs and fishes Deb.  One day at a time girl!  Hope you are feeling much better tomorrow.  Cancer butt's been kicked, now heal thyself!  Smile

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Just checking in to see if there is any news from John or DebC.  You are in my prayers.

    Nicki

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  • Harley44
    Harley44 Member Posts: 5,446
    edited October 2008

    John  & Deb C,

    So sorry to hear that Deb's having problems again.  

    Sending HUGE HUGS your way!

    Thinking of you, and just wanted you to know that I'm still praying for you both!!

    Harley 

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited October 2008

    Hope all is well with Deb, John family.

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  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited October 2008

    All,

    Thanks for the feedback.   Debs still quite out of it but.... I may be seeing slight signs of improvement.  

    I spoke to the Dr.s again yesterday.  They considered the Decadron but Deb reacts very badly to it.  So we are temporarily sticking with the wait & see.   

    Also,  I feel like the only thing I can do is feed her, keep her comfortable, clean...., kisses & smiles.... so that's what I'm doing.    I'll check the other site.

    Thanks & blessings to all

    John

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  • NANA45
    NANA45 Member Posts: 44
    edited October 2008

    You are an amazing family!  My thoughts and prayers are with you, love is the greatest gift you can give her right now.

    God Bless

    Sandy

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited October 2008

    So glad to hear you are seeing signs of improvement.  You keep on healing Deb.  You'll get there!

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  • Ivylane
    Ivylane Member Posts: 544
    edited October 2008

    John:  Thanks for posting... I've been thnking about you guys today.  Continued prayers for you and you beautiful family.  Hang in there.

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  • neesie
    neesie Member Posts: 1,924
    edited October 2008

    John.....thanks for keeping us posted.......sending major Hugs and good wishes from Michigan for Deb and your entire family.

    Hugs, Kisses, Smiles and keeping her comfortable..........sounds like you're doing a wonderful job!

    Neesie 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Praying for our DebC, John, and family.  Good to know you seeing some improvement.  Please give Deb a kiss for me.

    Nicki 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    John - you are an amazing husband ... and Deb is a very special lady and we love her sooo much.  Wanted to let you know that I'm continuing to pray for her and for your family. I am hopeful that the improvements will continue and that the swelling will go down.  I hope that some of the suggestions offered on the other site will help and you can get out of the wait and watch.

    Please let Deb know that we're all pulling for her and hoping she's past this bump in the road soon.

    Love and Hugs,

    Doreen  

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  • Harley44
    Harley44 Member Posts: 5,446
    edited October 2008

    John

    Please tell Deb C that I'm still praying for her... and you too!  You are a wonderful husband, and I can see that you love her very much!!

    HUGS
    Harley

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  • slonedeb
    slonedeb Member Posts: 562
    edited October 2008

    john thanks for the update please tell debc we love her and tell her i miss her a lot tell her i am adding a million extra prayers for her and playing the song ride out your storms everyday  love to your family deb from ky

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