Mexaltrexate

AlaskaDeb

All,

As one comment said, No news IS good news.  I've noticed improvement. 

Deb now knows me & can identify the girls in pictures.  (they are at a swimming meet this weekend)   Deb & I have spent the last few days,  Doing the necessities,  plus I have her walking.   As you all probably know she is one tough girl.  Yesterday she told me she wasn't going to walk with me.  It took me 5 minutes to convince her to go.  It was a great sign!  She also seems to be surviving my cooking.  The girls cringe when I'm going to cook!  (I'm actually o.k.) Deb's just excellent.  Well I'm babbling.  

Thanks for all the concern, comments, prayers.   Keep up the fight!

John 

jezza

Hi John

I don't post that often but I read the forums most days. I always read Deb's posts. She has such a way with words!

I have been following her story and hate that she is going through all this.

So pleased to read your post and to see that she is a little better.

I guess I just wanted you to know that ppl are thinking about her and wishing her well as far away as Australia. She has touched so many!

Hugs

jezza

Daffodil

John. you are a treasure! I am glad the girls are doing their thing, as that brings Deb such joy. I hope you are able to read her the prayerful posts all over this forum!!!

Blessings from Maryland~~~~~~~~

pinoideae

Ahhh, good news John.  Keep walking Deb, it's good for the circulation and overall general health.  Sounds to me you are in the upswing.  I thought you could, I thought you could.  Always good for all to hear more "inspiring stories".

 Bugs and fishes Deb.

Anonymous

John:  You made me laugh this morning - yes we all know how stubborn DebC can be and what a warrior she is.  This is such good news.  Thanks for your updates.  It helps - DebC is loved by many here.

Harley44

John & Deb,

Thanks for posting again, John, to let us know that Deb is doing better...  SUCH GREAT NEWS!

As some of the others have said, she is a very special lady, and her comments have helped me tremendously in my bc journey.

You are all in my prayers!!

HUGS
Harley

Ivylane

John:  Thanks for postinng....we were getting a little anxious......you sound as though you have the identical sense of humor as Deb!  We are holding you and your family close.....continued prayers for improvement.......

neesie

I am so glad to see a post on Deb....any improvement is a good sign.....and glad you were able to get her to go for a walk............knowing Deb, I can almost picture that conversation!...............Give her more hugs from all of her friends.  You have no idea how many people this lady has helped..and her humor is amazing!

Hugs,

Neesie 

Anonymous

I've been soooo worried about Deb - and it's great to see a post from you John.  Deb's stubborness is showing through!  Love it ...  thank you for posting and letting us know  how she's doing.  Please give her a hug and let her know that her sisters here have her back ...  we're with her.

 Keeping my prayers for Deb, John and the girls going!

Love and Hugs,

Doreen  

livesstrong

John,

 Thanks for the update - Deb - you just keep right on being that stubborn lady you are - its lets everyone know you haven't given up yet!!!

Hugs,

Valerie

mthomp2020

It's great to hear that Deb is showing improvement - everyone has missed her here.  We'll keep sending out those vibes and prayers. 

Hanna60978

.

LisaSDCA

John - thank you for keeping us updated on Deb's progress! I know she values your persistence in getting her to do what needs to be done - even if she doesn't think so at the moment.

GO DEB!!!  We need you back here, woman!

Lisa

wishiwere

Wishing there were more updates, but I understand why not.  Sounds like John is busy taking care of our dearest friend!

Deb, please know there are many good thoughts, prayers and cyber {{Hugs]} coming at you hourly lady!  Take heart that we are here and keeping a vigil praying for a turn around for you lady!  Fight hard dear girl!

Carol1220

John and Deb,

I am keeping you both in my thoughts and prayers.  My best to Deb.  Carol 

lewisfamily503

Dear John,  You sound like the BEST guy in the world!!!!  Deb is blessed to have you to support her !!!  God bless you and your girls and of course, DEB.  Deb is a HUGE part of this place and please know you are all our prayers.  Deb has been a supporter, a friend, a confident,  and a role model for SO many women here.  Her selfless posts are an inspiration for so many women.  She has approached this disease with humor and also, with diginity.  Now in her time of need, I pray we can garner our strength to pass along to her some of the love and energy she has given to us.  May god bless you all and shine love and healing upon your family.

Anne 

NYCarol

Our brains are so fragile.  It takes time to recover from the "assault" that happened to Deb's brain.  Trying to be patient is so hard, but I pray every day that she is slowly but surely improving.  She has more courage than anybody I know. 

God bless your family.  I know this must be so difficult for you and your daughters. Big hugs for all ((()))

 Carol

Anonymous

Good Morning DebC:  Thinking about you today.

sueper13

John, such good news!  You can see from the responses how much Deb is loved here.  I guess that doesn't surprise you either, since you know her better than anyone.  I am so pleased to hear signs of improvement and so grateful.

Keep the faith, and keep on fighting.  You are all in my prayers.

Sue

Gitane

Warm hugs to you Deb.  May each day bring you a little more strength as you recover.  Thanks, John, for taking the time to come here and let us know about Deb.  We love her so.

Ter

Dear Alaska Deb and John,

I know we havent been real close, though your always on my mind, as I love your pic, and I have a bad thing of never laughing too much, but your pic at least makes me smile.

My thoughts and prayers are you with and John, and I pray the pain stops, a;nd yes this disease sucks..

Many gentle hugs

Ter

Anonymous

DebC, John, and Family.  I'm thinking of you all and sending lots of hugs and prayers your way.

Nicki

ilovemysweetmomma

hey John, I'm not sure if you're still looking for drugs to reverse the effects, it sounds like she's on her way without them; however, I thought you might want to ask the doctor about this one drug.  Here is an email I got sent to me. 

"First, although high-dose repeated MTX can as your professionals observe induce encephalopathy, this is almost always both reversible and avoidable by using what's called folinic acid rescue therapy, with or without aminophylline, as numerous studies and critical reviews have attested, and I would agree with the review findings of Ian Cohen at Tel Aviv University published last year that increasing evidence strongly suggests that MTX-induced neurotoxicity / encephalopathy is largely if not exclusively due to inadequate folinic acid rescue, appreciating the fact that higher doses of MTX require a disproportionately higher dose of folinic acid than MTX to prevent toxicity, a strategy found to be safe and effective in in children."

lewisfamily503

Checking in again,  I think of Deb often and wish all of you the best!   Please let us know how things are going when you have the chance. Deb has a LOT of women here who support and love her!  All the best, Anne

gsg

Thanks for the update, John.  There's not a day that goes by that I don't think about Deb and your family.  I hope Deb continues to see improvement each day.  Look forward to your next update.

Anonymous

Ok I'm getting worried.  Has anyone heard anything.  DebC please, we are praying so hard for you.  Know that we are with you.

Nicki

Anonymous

I'm hoping that John's earlier message (several days ago) that no news is good news is still holding true.  Still lighting my candle every night at 6PM PST and saying a prayer for Deb, John and the girls -  hopeful that Deb is continuing to get better and stronger each day. I'm also hoping that we'll get another update soon -  or even better,  See a post from Deb!

Doreen  

wishiwere

Does anyone have a way to call her home? I'm worried too, b/c we've not had an update since Saturday morning   ANYONE?  Prayers will continue and so many good thoughts going northwest! Deb, John and girls...thinking of you all!

Traci-----TripNeg

Hi Ladies,

I'm assuming that John won't mind me posting this last email. I emailed him today for permission but have yet to receive a response. I sure hope I'm right......

I r'cvd this at 1:54 AM Sunday.

Thanks!  I truly believe that the prayers & well wishes do work. 
 
Deb is doing a little better.  We are spending quality time together.  So it isn't all bad.  She is tough.  She is starting to have opinions on things, like IF we are going for another walk and where to.  Normally, I would lose these arguments.  Now she is just protesting.  A very good sign!
 
She also is eating well, laughs at me & gives kisses.   She now knows my name and can identify our girls by their pictures (they are out of town).  She is now using sentences again.  So she is making improvement. 
 
We are all going to get through this stuff.  We just have to keep the faith.
 
Thanks for your support.  
 
John

Keep praying girls......

Hugs, Traci

wishiwere

Oh Traci, thank you SO very much for sharing!  Any news like that is good, great! Improvment is fantastic!  Keeping the prayers, good thoughts and {{hugs}} going north! 

Keep up the good work Deb & John!