The Hermit Club

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    image

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Hi reposting this on some threads, may be old news to some, but to good of info not to pass this on,Sassy

    Cam00205Bluebird144…NJJoined: Apr 2013Posts: 393

    13 hours agoBluebird144 wrote:

    Knitted Knockers Charities is a non-profit that exists to provide free patterns for knitters and crocheters to be able to make knockers and help mastectomy patients get freeKnitted Knockers made by volunteers.

    I love my Knitted Knockers! They are light and soft and warm. Unlike my silicone prosthetic which is heavy and cold when first worn, then it later causes me to sweat.

    I wear my knitted knockers inside a regular bra or tucked in the pocket of a mastectomy bra. They are beautiful, and a godsend to those of us with an uneven mastectomy scar.

    image

    Knitted knockers website:

    http://www.knittedknockers.info/

    Fall down seven times, stand up eight.

    Surgery 09/09/2009 Prophylactic Ovary Removal (Both)Chemotherapy 02/06/2013 Adriamycin, Cytoxan, TaxolSurgery 07/19/2013 Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection, Axillary Lymph Node Dissection (Left); Reconstruction: DIEP flap (Both)Surgery 08/20/2013 Reconstruction (Right)Surgery 08/28/2013 Mastectomy (Right)Radiation Therapy 10/14/2013 3-D conformal external beam radiationSurgery 01/24/2014 Reconstruction: Tissue expander placement (Right)

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  • Teka
    Teka Member Posts: 10,052
    edited March 2014

    sas, I'll share this with daughter who loves to knit!SillyHeart

    Okay, I can download the pattern.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited February 2014

    they are so cool Sassie

    Jazzy she is lucky to have you as a friend, you are awesome!!

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  • Teka
    Teka Member Posts: 10,052
    edited March 2014

    sas, daughter took information!

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    ThumbsUp

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  • Furfriend2
    Furfriend2 Member Posts: 299
    edited February 2014

    very cool-love the knockersHappy

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    image

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Hi Folks, I recently found out some info that has pissed me off in re: the drugs given to me during treatment for BC. I was almost killed with my one and only chemo. Taxotere was the culprit. I "failed" all three AI's b/c of s.e.'s. All of this could have been avoided had my MO paid attention to the Cytochrome450 genetic testing. Of the six genes tested, I have abnormalities in three. All are major players in the drugs I was given. Had I been tested, it would have been known. The drug choice and /or dosage modifications could have been made

    Rather than rewrite the details here The link below will take you to a thread that has the posts that I have written in the last few days.

    I'm not trying to sell Genelex. Other laboratories are doing genetic testing. But Genelex is the only company right now that provides the application of the genetic results to the drugs we are taking. Other companies, I'm sure are trying to build the same business model. It's the future of drug administration.

    Why? Patients will no longer except being experimented upon with drugs that can harm them. If the docs won't do this because it's the right thing to do it. Then we have to PUSH them into doing the right thing.

    http://community.breastcancer.org/forum/73/topic/7...

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    Good Morning----

    Jazzy I love the new avatar, unless u had it all this time and I didn't notice.

    I haven't been out in weeks, and weeks--except for Drs. but now the weather is my excuse, pretty soon I won't have an excuse. More cold this week, Joey's home sick so he's Mr. ring all the germs in the world into the house and Marty is Mr. Lysol spray and wipes OH---

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  • sandpiper1
    sandpiper1 Member Posts: 952
    edited June 2014

    Cami sending you masks and gloves and isolation gowns..

    16+ hours after the start of work I am finally home. Long story. 

    TY for the links Sas. My sister and now I, suspect I have some problem metabolizing meds d/t multiple SE's, including a severe multitude of SEs to Tamoxifen. My 19yo son had the same SEs to oxycodone as I had.....to the T. hmmmm

    Anywho I like The new avatar too Jazz. I feel like the cat. I just want to put my head through the blinds today. 

    cannot get ahead, but could be worse. 

    <3

    Have a wonderful Tues. folks 

    extra hugs to all

    xoxo 

    Piper

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    Sas- your genetics testing and treatment options post makes one think. I do feel like I am a research project sometimes during all this. I think the genetics testing around bc is evolving very rapidly right now. My BS has a new panel being run on me as of this follow up (should hear more in a few more weeks as 3-4 weeks is commonly the follow up time frame on genetics testing). I am going to read your link when I get the chance. I did not have chemo, but know that could be a future discussion, should I need it. I agree that with better information, doctors need to be working to further tailor our treatment.

    Cami & Piper-Glad that you like the new avatar, I changed it last weekend. I play the saxophone so I wanted to change my avatar to go with that. 

    Cami- no doubt you must have some cabin fever but know you said you have also been lower energy lately. Maybe you can ease out with the spring thaw? I hope Joey feels better soon. Lots going around still. Change of seasons and unusually warm weather taking it's toll here with lots of colds. 

    Piper- you had a long day. I hope you can get some good rest.

    Speaking of colds, I am home with a the start of one today. I was very tired on Sunday, thought it was from the busy week. Then yesterday I was sneezing all day and thought it was from allergies as things are blooming here (some on schedule, some to early). I woke up today and felt really tired, achy, and sneezy too. So this girl decided to stay home from the client site and do a bit of remote work and rest. I got as far as getting dressed, lunch packed, car out of the garage and then said "chit, I don't think I can do this today." Back to my bathrobe and bed I went. There are so many people at work sick right now.

    Hope everyone is having a reasonable Tuesday.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited February 2014

    Reasonable, love that Jazzy

    hope everyone is having a good day and Cammie, hate germs~!!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    image

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  • chabba
    chabba Member Posts: 5,065
    edited February 2014

    Beautiful!

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  • sandpiper1
    sandpiper1 Member Posts: 952
    edited June 2014

    Jazzy that is so beautiful. Along with all of the great pics over on the peaceful contemplation thread. I was looking them all over as I needed some peace today. :)

    Hope everyone is feeling better, well and warm.

    My heart has been warmed today by some genuine giving  and caring souls. Honest ones too.

    My car broke down at work, 40 min from my house. Thankfully I wasn't broken down on the highway in these freezing temps as the roads were also very icy and there were accidents everywhere. Waited 2 hours for a tow, but got home eventually, tow truck driver drove me home after we dropped the car off. Strangers were going out of their way to make sure I was ok until I got towed.

    My neighbor gave me 3 goodie bags and some home made chicken soup and rode me back to the garage to pick up my car. 

    My bill for repairs

    zero, nada, zip

    The parts that went bad were replaced/fixed in Nov 2012 and still under warranty at the garage. Good thing I had it towed to the place I get most of my car work done.

    I thanked them for their honesty. Because I would have never known if they were screwing me over.

    Today, I am feeling a little more like there are still loving, giving human beings in this world. Yep, I have become quite cynical over the years.  I need days like today to remind me of that spirit with which I so often look for.

    Going to try and hit my treadmill.....TY ladies for sharing, just lending me your ear and your kindness too

    xoxoxoxo 

    Piper

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    Hi hermits- working through this nasty head cold. I did not sleep that well last night and been doing some work/calls from home again, but have way less energy today. Some of the congestion is clearly, hopping in the shower for a good hot soak under the shower head helps. Hopefully I will start getting on the other side of this tomorrow. First three days of a bad cold are always the worst!

    Hope everyone else here is doing okay today and are germ free!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    image

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  • sandpiper1
    sandpiper1 Member Posts: 952
    edited June 2014

    Hilarious Jazz.

    I found this one that made me LOLOL!

    image

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  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited March 2014

    deleted

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    Love the pics.

    Piper an aggravating  day u had but a nice ending--see there are good souls, it's when u don't look for them they seem to show up.

    Jazzy I hope u'r feeling better today.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    Piper- oh yeah, I know lots where the wheel is turning but the hamster is done! I work with a lot of people like that, they show up to work but really don't do much. Makes it hard when they are on my project team. 

    Cami-I am feeling better today. The weepy part of the cold with all the sneezing, nose running, etc. seems to be waning. Just congested and got a bit of a cough. I do need to go to work today, but won't work a full day. I won't be on site tomorrow as I usually work remote on Friday's anyways. 

    I am going in for my six month mammo tomorrow as part of the current 6 month follow up. Fingers crossed. If all is good, then I just need to wait to hear anything from the latest genetic test my BS suggested I do. I probably won't know anything on that until sometime in March.

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  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited March 2014

    deleted

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    I came home from church on Wed. eve. to find my furnace not working. When I turn it all the way off, then turn it back on its kicks on for a couple of minutes, then nothing. I got up this morning and it was 52 degrees in my house. I called my landlords 3 phone numbers....cell & business. He's always great at calling right back and gets things taken care of right away, so I'm afraid he might be out of town. The wind chills are below zero, and we're expecting 6 inches of snow. I pray he calls in the morning. My bedroom is like an igloo.

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    OMG if he doesn't call back maybe he'll call someone first so he can assure u it will be fixed, today--so many people are having this problem now of course, I know u know what to do for u'r self, but if he can't get someone can u go somewhere til it gets fixed.? 

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  • sandpiper1
    sandpiper1 Member Posts: 952
    edited June 2014

    Oh goodness Soteria. I do hope you have heard from someone by now. 

    HAHA Onc. Seems as if our spring is going to come in with a vengeance. There is a huge snowstorm headed our way this weekend.

    Single digit temps right now. I am going to be so happy when we actually have temps above 35. 

    Jazz Sending good vibes for a smooth and clear Mammo

    I think I am going to make a big pot of veggie soup today. 

    Sending warm hugs to all and a virtual bowl of soup

    ;)

    Piper

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  • SallyS70
    SallyS70 Member Posts: 947
    edited February 2014

    Soteria, hope you have gotten a call from your landlord by now.  (((hugs)))

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  • Teka
    Teka Member Posts: 10,052
    edited March 2014

    Piper,

    I'll be waiting for a bowl of veggie soup!

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited February 2014

    image

    WTH....lost my fav again.....but here I am.......LOL

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited February 2014

    image

    I don't think that is happening for my East Coast friends.....Brrrrrrrr...

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