The Hermit Club

lizlori

Oh My flipping God Jazzy, saw the pic u posted on the 18th...absoult hunky tuna  (this was the popular saying in my high school days)  

Teka- yoo hoo....good report, so happy for you sista....

Hmm Betty or Wilma....I kinda of like Wilma, reminds me of a chubby farm woman....and the melon is quite chubby....DH and a friend is loading the pumkins as I write...glad I didn't have to help.

Cami....I hope you are doing well....I know you were having some rough days...as always thinking of you.

Blondie!!   Yeaaaa so cool to hear from you girl.....Sounds like you are a trooper as always....

Saw my kids yesterday....good visit....my ex husband even came out of his house to visit. Boy how things change....we hated each other, lots of mud slinging during the divorce....Later gators......

camillegal

Stunning Photo---just so beautiful.

Oh loading those pumpkins has to be rough no matter hat u use, they have to be so delicately treated or I would think they would break.

Jazzygirl

Lori- glad you liked the hunky picture. As Cami says, we need to enjoy the view despite all that goes on.

Let us know what the final name is on the pumpkin! We love those garden photos you shared!

I am glad to hear you saw your kids, and that you and your ex are at peace with one another. I have found the things that used to bother me no longer do, but new things get under my skin easier. I have become much more defensive and protective when those time arise when people want me to do things that may compromise my health like drinking when I no longer should, or being asked to help people move, being asked to work extra hours, etc. Sometimes it happens with people who know what I have been through, and others that don't. And even family who should know better!

camillegal

Jazzy good for u--u'll know if and when u want to do something again and if u don't fine it's up to you. I haven't vacuumed in years between my back and my LE there's no way--just simple things that I used to do I no longer do. That's the way it is.

Skittle

Happy Friday.  It's good to see smiles.  

Jazzy... wow.  Scenery like that--priceless!

Lori... are the pumpkins loaded with a tractor?  How on earth can they hoist it?  I'd be so scared of one squashing, after all that work and care.

Camille... thank you for the dance!  funny.  And, Teka, 

camillegal

camillegal

Everyone must be having one hellofa good time.  No one has been here.

Lily55

I have visited but not posted, worried about chest tightness and difficulty breathing again, it only seems to happen on AIs as did not have it when off them........now two months in to aromasin, but limits how much walking and zumba i can do........

camillegal

Good Morning Lily, did u talk to u'r dr. about this. I don't know if this is from the Als or u'r operation or what actually. I know I get a ribberband type of feeling around my front mosty I figure it scar tissue or something stupid. but sometimes I gett a littl concerned. but since my liver is pushing up my ribs it might be that too. There are a lot of reasons for this happening there are nerves and muscles all involved in that area too. But u should still have it checked out.Lily I'm not trying to scare you cuz like I said there's a lot of reasons--but getting it checked out is not going to hurt.

Lily55

I have had it checked .......nothing, but most tests ended up when i was off AIs.....as it only happpens when taking them i think it has to be them, i only get liver ultrasounds but bloods all ok..?



It was the same before my recent surgery, so not caused by that.....its a mystery

camillegal

Lily are u on any kind of anxiety meds?

Lily55

No, its not anxiety, its a crushing pressure on exertion, had heart tests too.......i also sometimes cannot breathe in the shower......

camillegal

The only reason I said about anxiety is because I have it (aways did) and I loose my breath--I do in the shower too and and I have to get out quick cuz i think I get dizzy and get a little nerveous bout it. I just thought anxiety can cause pain and difficulty breathing and I used to use a paper bag sometimes--I wish I could help more but that's how i deal with some of my problems and I did start paxil which caused me not to take the xanax as often cuz I really felt so many problems before cancer, now I blame everything on the Als and all the crap that was pumped into me. Oh Lily I wish I had some answers for u but that's all I know.

Jazzygirl

Good morning hermits- been busy getting home and garden work done this weekend. I have family and friends visiting starting next week, a couple of them will be coming to the house too for dinner, etc. Need some fall cleaning anyways. I planted more mums in pots and gardens and it makes me happy.

I am going to take a break this morning and go to the state fair here (last day) to see some of the exhibits of art, see some cool dancing in the indian village. And of course, the critters. Lots of walking and good exercise too.

Lily- so sorry to hear about the breathing issues. That is very scary and certainly a very worrisome SE to have from the AIs. It looks like you are aromosin. Any discussions with changing to a different AI? I know the doctors told me that they start you on one and then if you have too many problems, they will switch to you another. I am on arimidex and my SEs have been some weight gain, joint stiffness and foot pain, but all things I am learning to manage. I found SEs really set in around 2-3 months into taking them, so you may be getting the worst of it right now. I hope you can find some resolution here.

My biggest frustration with any sort of medication are the side effects that work at cross purposes to our well being. We are all encouraged to exercise regularly, keep our weight in check, yet the meds they give us make it hard to do these things. I have no doubt the meds I am on have contributed to a few recent changes with my health (and my PCP thinks so too). Just so frustrating!

Cami- how are you feeling this weekend?

To my hermits here and all the other hermits (Teka, Blondie, Skittle, Lori, Girlstrong, and all our quiet hermits like Laurie and Markat), wishing you blessings on this first day of autumn.

bgirl

To all my hermits old and new, I just wanted to check in.  Have been mostly taking a break from media this summer.  Time for some space to get out and do things with family.  My husband bought a sailboat and so trying to learn to sail.  Also was playing noon hour concerts at our church on the chimes (set of 15 bells) ... very public performance downtown, so definitely out of my comfort zone.  Trying to challenge myself to get out and live.  A big change from last summer when I moved to my parents and cared for my dad when he was dying of cancer.  And of course summer is bee season.

I would pop in and read your updates, just to see how you were doing, but didn't post.  I found BCO board, especially at the beginning of summer to be so very slow.  Was sorry to hear that Laurie P's surgery had to be redone and that she had so many problems after.  Jazzy, glad you are moving forward from your radiation treatments.  Cami, sorry you are still on the roller coaster with your health, but glad you are still here to be a gentle soul willing to reach out to all.  Skittle, Teka ... still a woman of many words, Blondie and others, I think of you often.  Hope Markat is quiet because she is enjoying her beautiful family.  Know that you are all in my thoughts and prayers whether I post or not.

camillegal

Jane it's good to hear from u, but better for u getting out and doing things this year. I'm hppy for u.

Jazzygirl

Jazzygirl

Hi b-girl- good to hear from you and glad you are slowly getting out and about. I work in a difficult environment on a project for my client so when I am not doing that, I still choose a lot of solitary time when I don't have to be with people. We just all need our hermit time, all this takes some much out of us. I find I have to keep trying things to determine what fits and what no longer does. I love that you are playing the bells at the church, music is healing!

My rad treatments are actually done, they finished in March of this year. I just had a follow up with the rad onc last week as part of my first six month follow up process. Thank you for thinking of me!

Teka

Jazzygirl, some butt.

bgirl,

Lilly55, sadly the possible side effects & interactions mentioned for any specific medication has probably happened to at least 1 patient (

camillegal, going to relax and spend the day with Joey?

camillegal

Teka yes

blondiex46

Jazzy that is sooo beautiful!!

bgirl thanks for checking in!!

Lily I am right there with you, the tightness in the chest is really bad when I can't breathe, do they know why it is happening to you?  Not me think it may be the fluid? They did put me on 2 inhalers they seem to be working I guess...I can't breathe in the shower either, started taking baths but then decided to take the oxy in the shower with me, so that is what I am doing now..showering with oxygen....should be a country and western song....

Thanks Jazzy but there is cancer in my lungs, both of them, in the lining of the left lung, but apparently not in the lining of the right one...

got the results of the ct scan, the stupid fluid I had drained is back after 2 weeks so have to get it drained again, the fluid around the heart is minimal, abcess is not back little bit of fluid not enough to drain, so the pain which is still there is the diverticultis or broken ribs that are there, whatever....will look at the report when I get to chemo on wed. that is what the lung dr. told me, still don't know why I can't breathe but thinking it is the fluid issue...and he doesn't know why it keeps coming back....other than that get things accomplished a little at a time, baby steps....

Skittle

bgirl... When is best to start a hive?  Spring?  Am considering trying again.  (We had bees years and years ago, and I'm ready to give it another go.  Not enough bees on the planet!)  and I second Jazzy--bells!  How lovely.  I have never had any musical talent.  I once loved to sing, but just a hummy sort of happy life soundtrack... not for audience.  Sometimes I get hummy in the classroom without even knowing it, and I get quizzical looks from my kiddos, and realize my music is leaking...

blondie...  you have a very straightforward approach.  I hope I can be quietly calm if my dx ever goes there.  I had to laugh at your country song.  They've covered every other woe. 

camille... you be careful with dizzy spells!  I would hate for you to fall!!  We're all so fragile at this point, I wonder if someone should invent a bubble-wrap shower/tub combo.  pop/pop/pop!

Lily--hope you feel better soon!  Impressed by your zumba!  I couldn't even keep up with the intro to the dvd.  I wanted so much to have fun while getting into shape, but it was too much for me.

May all hermits have gentle weeks ahead. 

camillegal

Skittle may YOU have a gentle week ahead with all of u'r kids.

Skittle

Thank you, Camille!  It was an awful morning, but by afternoon, it was doable.  (Faculty meeting went on too long, but it was all congratulatory about being #1 in the state in literacy...  Our math folks were cranky since the students came in #6 in math...  But I'm not a fan of standarized testing... oh, well.)  Hope you are over your cold...  Hugs.

camillegal

Wow Skittle u teach in a very competitive school. Well I guess so many of them are now, it's got to be tough on teachers, cuz kids who can do all the work will do it and the goof around kids will still goof around.

Most of u still or again have such smart brains, I'm as stupid as a green bean now a days. I'm so glad for u to have that come back to you.

camillegal

Thought I'd go to bed now.

Jazzygirl

Cami- I will take a glass of that red please!

CCFW

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Spookiesmom

Ok Jazz, you can have the glass, I'll take him.

camillegal

Spooki I know the wine was the bonus--is Jazzy all right??? LO

C u make perfect sense about hermiting. When u don't feel right and it keeps on going everything takes a lot out of u. And with me--some people think OK it's over, well cancer wise I'm OK but all the SE's are painfu and I never feel really well. So even getting ready to go out is a big deal, then conversatin and reg. shoes on (LOL) and hrs of not feeling well, by the time u get home u'r exhausted physicall and mentally. It drains u, before all this I did alot, now I limit myself cuz I know how I feel but realy don't say much except to my close family and friends, of course some are laughable cuz they are so crazy and I still go to Drs alot and have tests and they wear me out. So it could very well be we're just to strangely tired to be unhermited,u sound organized with it tho--which I am not.