The Hermit Club

Lily55

Nothing for months, back to work today, mega busy, hassly etc and day before hospital phone, two appointments for scans tomorrow, and does him indoors even offer to come with me.......nooooooo......he just does not get it at all........

Teka

Lily55,

....and probably never will!                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                              

Positive results!!

Skittle

Teka... thanks for the calm advice.  I guess we all take breaks and breathers and have our time away for "normalcy." 

blondie...  sorry... what is what?  I'm so confused.  (Easy these days.)

Jazzy...  the state house/senate are tabling efforts to rewrite teacher insurance.  Our costs are supposed to triple and there's a major battle going on.  Many experienced teachers are seriously considering quitting.

Lori... we have to learn a foreign language to understand all that goes on.  Wow.  Sounds like you're dealing well with the bombardment of info and dealing well with it all.

Lily...  no, I wonder if any of the he's get it.  Mine is crazy-kind-hearted but is clueless as to mental/emotional impact of bc.  He is still pretty much in denial and deals with se's as if they're the flu or common cold.  He won't use the c word.

Camille...  feeling any better?  Hope the D leaves you in peace for a bit.

Hugs and good wishes.  

Teka

camillegal

Lily I do hope the tests turn out good. and that's what counts now.

I'm confused who just went back to work--already---

Jazzy I don't understand anything with all this insurance by now I should, but I don't.

Skittle u must be so tired--I still have some stuff going on--I got my blood path today--not bad, but not normal so I double up on some stuff and I see another Dr. 2 weeks from today. So I'm a little tired and little weakish but really not bad, .

Blondie I'm glad u a little better do u have the oxy stil 24/7 tho. I want to know exactly what they find. 

blondiex46

k Cammie have to go to the drs. on Friday love being able to breathe!!

camillegal

So happy u'r feeling better, but u did say u still have the oxygen right.?

camillegal

OMG no one has been here in all these hrs. Everyone is growing up and out. LOL

Skittle don't give u'r kids so much homework, Oh math is hard for Joey and harder for me--I try to explain it then I get more confused--I never did this stuff at this age OMG.

I hope everyone is doing OK, well at least decently.

camillegal

Skittle

blondie--LOVE your ladybug!

Camille--the only homework I give is 30 minutes of nightly reading... a book of their choice, as long as they read.    Our math teacher gives homework assignments on Monday, and it's due Wednesday.  Nothing intensive or time consuming...  But, you're right.  I am always always exhausted... (and... prepare for whine...  my feet are killing me!!!  Gotta love se's.)  sigh.  But, it's nothing compared to not being able to breathe or having the giant D as a constant companion or the many other severe bodily woes that other hermits are having to bear.    Sorry Joey has a lot of homework.   Hugs to you both.

Teka--  wish there were a teeny emoticamel to add to Cami's laughing specimens.

All, take care.  Hugs for midweek.

camillegal

Skittle it's funny I did tell Joey I know a few teachers from here and he did ask how much homework do they give out.? LOL But u hit the nail on the head when I said this to my DD---At this age they should choose their own books to read, what is interesting to them not need to read--that happens in HS--or it did, but when u'r nine u want u kids to enjoy reading and give them enjoyable books for them to pick. Oh Skittle u sound like such a nice teacher and a nice person too. U'r kids are very lucky to have you. Oh I could never stand like u do, u'r feet have to be so sore at he end of the day--I hope u get a chance to reward them.

Lily55

Liver and lungs all ok, lovely technician who looked at my pancreas too.....all shows as normal...

camillegal

Woop=Woop Lily.

Jazzygirl

Lily- such good news everything looks clear on all your films and scans! Congrats and big sigh of relief!

Skittle- I found yet another thing to help the sore feet with the Ais. I got this massage ball from a company called Giam and roll it on my feet before I get out of bed in the morning (and any time I am home). It helps to loosen things up, less pain when walking. Only $15! Here is the link:

http://www.gaiam.com/trigger-point-massage-ball/05-60558.html?start=8&cgid=5010000

I had a great visit with my first set of cousins who came through the area this week. Tomorrow night is a friend from back east who is in town will be coming to hang out.

Cami- I hope you are doing okay this week. You are right it has been quiet here lately, so I thought I needed to pop in and say hi! 

Blessings to all the to other hermits out there. 

blondiex46

hated homework for the kids and when I was in school, figured I leaned enough, lol and for the kids it is more problems for the parents trying for the most part getting them to do it.

Yay Lily!!

Jazzy aren't you tired, you have been entertaining all week....

Cammie, how ya doin?

Went to the MO yesterday and him and the lung dr. want me to go to a thorastic surgeon for him to check out the lung to see what the problem is and how come I can't breathe cause they can't figure it out. don't know if there is more fluid in there they don't want to wait, they want to take a biospy but I have to go to the lung dr. tomorrow so I will find out more and who they are referring me to....I just want to be able to breathe without the use of oxygen and wonder if that will ever happen....thanks for caring

Teka

Hubby & I are on a mini-vacation in Florida.   We traveled by train which got held-up because a trespasser got squished by another train.

blondiex46, no harm getting a 3rd opinion!

Lily55, thumbs-up!

Jazzygirl, great, enjoying family & friends!

Skittle & camillegal, reading is the best homework with a sprinkling of math!   I still have weak math skills.

Come on weekend!!!

lizlori

Hi Hermits,

Its been a cool muggy day. Slept horrible again last night, I really just need to take my sleep meds. I keep thinking I don't need them.  

Lilly girl, way to go with the good news!! I went for my mri yesterday, waited 45 mins only to be told I couldn't go through with it, cuz of the tissue expanders. Good thing I am getting my implants soon, then I can have it done. Hopefully the lesion on my liver is just a hemanginoma (sp)

Had my psych appt today...is hard talking to  a male Doc, but he seems pretty nice. He doesn't give me a lot of advice or any "home work"....he just said I need time to heal and let my anxiety ease up, not to mention my chemo brain.  Idk...seems like I am just a different person now.

Blondie, it is so good to hear from you.  Sounds like your Doc(s) are pretty attentive eh?I hope the surgeon has some answers for you......

Has anyone heard if those good feet inserts work? Don't know if you tried them Skittle.

Well it's an hour before DH wakes up, going to get supper started.  Have a good night....

Skittle

Camille, thank you for the deeply kind words.  (Teachers don't hear them often.)  I hope Joey likes his teachers.  It seems a major obstacle these days.  As a whole, there's no respect and no love of learning.  It's all tech and text and Miley Cyrus/slasher video games mentality.  Scary future.

Jazzy, thank you for the link!  I'll definitely look into it.  (Have tried Ruth's raisins, Claritin, and Topricin...  so far, no change.)  You are so active--I guess I should try yoga again.  (So little patience at this point, sorry to say.)

Lily, Yay!!!  So happy for you.

Lori,  Hope you can get some sleep.  Have you tried melatonin?  Worked great for me years ago.  I tried inserts... no results.

Teka, Florida???  Color me an envious green.  Hope you have a great time.

blondie, best wishes to find relief.  Hoping you can breathe well soon.  Maybe some dr will have that ah-ha moment and solve the troubles.  Good luck tomorrow.

Happy Friday, all!  Will be off to the doxie derby.  :-) 

camillegal

Hi everyone---Still floopy but I have to check in with all of u.

Blondie (((prayers))) for this Dr. to find good answers for u.

Lori don't feel bad about how u feel, u'll level off somewhere, and if u'r not quite the same so what --everyone wi have a new person to get to know--let them get used to you. There's lots of healing with all this crap.

Teka oh I'm glad u'r on a mini vacation, it sounds good just to get away--enjoy.

Skittle I really only say how I feel, and I;m always right.

Jazzy I love u'r ideas, that ball thing sounds clever actually, it would give u'r feet to activate muscles.

OK TTYL

Jazzygirl

Blondie- oh yes I am tired between work, company, and some home repair stuff going on (got another contractor coming tomorrow). I get to work at home tomorrow and then have visitor number 2 coming over (friend from NJ) and our evening should be low key. I hope to have some recharge time this weekend at some point.

I really do hope the thoracic surgeon can help determine what the root cause of the breathing issues may be. Getting off the oxygen will help you in so many ways.

Teka- how cool you are doing the train trip to FL and sorry to hear about that terrible accident. My cousins that were just here are doing a 3 week train trip around the country and were on their way back home to D.C. They love traveling by train and you sound very up on this trip! Enjoy!

Skittle- the yoga does help the joint stiffness in general. The feet are their own "final frontier" and the worse of the SEs from the arimidex. I keep trying things in the attempt to deal with the problems. I have accepted my feet are going to hurt with this med and trying to manage it so I can get around. I certainly walk like an old lady now.

Lori- I definately feel the same way as you do about not being the same after this on any level. The SEs make us different but the whole experience changes you. In some ways, I don't think that is a bad thing either. 

On another subject, we have a freeze warning for tomorrow night as a cold front moves through. I also find my new lower carb diet to manage the blood sugar issues is working and have lost 4 pounds the past few weeks (7 total in the past month). Being very disciplined.

Hope everyone has a good weekend. Balloon fiesta starting and will post pictures of that if you want to see some cool special shape balloons?

Teka

Husband & I need to get serious about dieting!

Lily55

THank you all.....on the subject of exercise

I thought I did not do much but yesterday took dogs for one hour walk and at end of day had done 12000 steps.......

Emotions - my therapy seems to consist of me being told its all about finding a new identity and for me to talk as i amble through all of that, big problem is I dont want to find a new identity I want my old self back!!!  I was happy as a normal person, now every day is such bloody HARD work emotionally, from the minute I get up to every situation i go into, can people see, oops I bent down, did anyone see my feet through my top......can anyone see at that angle, oh no i leant in to a mirror etc etc.......sometimes I forget and then it hits me like a wave..........all this stuff takes energy of course......

Blondie - is it possible your lungs were damaged by radiotherapy?  I knnow whjat its like to be so tight you cannot breathe and its exhausting struggling to get enough oxygen, there MUST be an answer somewhere.

Sorry I cant reply to everyone personally, my head is fuzzy today, too much going on...xxx

Jazzygirl

lizlori

jazzy...love the picture.....

camillegal

That's why u'r called Jazzy

Jazzygirl

Cami- actually I play jazz music! Not regularly but when I can. Been in a salsa band at one point. I love all things jazz!

Cold here today, big winds out west today.

lizlori

cami....paralegal? What kind of instrument you play jazzy?

Jazzygirl

Lori- violin, flute, soprano and alto saxes. I was classically trained on the flute and violin in my youth, and picked up the saxs in my 30s and now do all jazz and salsa related playing with all instruments. Have not been playing since before the bc though. Trying to get back into it. Everything takes awhile to get back to.

I have been getting out to listen to jazz here as the concerts come up I want to get to. Went to one last week that was great and going to one in Santa Fe in a couple more weeks. That seems to be best for now.

The cleaning people here today asked me if I just moved? I tend to have areas with piles that never have gotten attention since everything hit last year. They are a new team, so they thought maybe I was a new resident in my home. I said "no, I have lived here for almost 10 years, I am just busy and a slob!" We all laughed. Well, I don't have to tell any of you how hard it is to keep up with things anymore!

camillegal

Oh Jazzy u r so disciplined--How thrilling t to play so many instruments. Oh I always like Jazz from yrs ago. A man I dated for yrs loved play jazz (piano) like u he was classically trained, but on Sundays he had a baby grand piano and I'd lay on the couch and request the old standards and he'd just play and play and I enjoyed that time so much--My kids were young and he has a young boy and they played in the pay room and they wer happy and so was I. Oh u have to start doing this again, it's like therapeutic. Well it would be for me.

Tomboy

hey everyone. i am not playing at all yet. it is hard to be a hermit , i guess i start feeling bad if i dont make myself try and get out and do something with someone, and its usually fun. bet then i get mad at myself for not staying home and getting some writing or art done. when i go out, it is an errand mostly, and when i stay home it is for chores. or laziness. what is wrong with me! why cant i allow myself to do those things that are supposed to make me happy, or used to make me happy? like, why do i say i am an artist when i am not doing any? and this was way before bc. just working, and keeping a house used up most of my time. this week my boyfriends friend was in town. he has started going to my treatment center cause he might have cll. so, i have known him for 15 years, and he is not easy. he is really smart but hard to get along with, and thinks he knows better. i do like him cause he has been fiercely loyal to my man, but we are both so relieved when he goes. so now, my boyfriend has a headache and neither of us can sleep. i was looking at my still hands, and they started looking dead. and i told myself to get over here and write about it cuase there is plenty of time to be dead later. whoa. jazzygirl, thats pretty cool that you play. do you sing, too? anyway good night to all, youve no idea, what it means to me when i close my eyes at night and imagine us all safe in our beds, for now.