The Hermit Club

camillegal

Jazzy keep u in the loop. I don'g mean around our necks,

CC u'r doing 2 walks---u'rlike Mighty Mouse Wow Good Luck and just stop by whenever u can.

lizlori

Hello Everyone

So I too am wondering about these "check-ups" with the surgeon. My six month check was an absolute waste of time. I was never examined, and the Dr. couldn't answer any questions because "he didn't have my file". It was just so annoying, and needless to say I am not going to the next appt...

Did some baking.....so fun to do on these cool fall days.  For the first time in ages, I am appreciating the change in season...

Way to go CC...on your walks. Its dissapointing to here about a charity wasting money, I hope you express your thoughts to the people in charge.

The pumkins are still growing...I cover them up with heavy blankets at night (to retain the heat) the watermelon is doing well also. I really have to bundle him up too. Watermelon don't deal well with cool nights.  Boy I am starting to feel like I am their mother...lol  Contest this weekend, but other pumkings will go to future contests...

No word on the results of all my tests....no news is good news??  

Take Care everyone.......

BayouBabe

Lori - if only the doctors paid as much attention as you do to the pumpkins and watermelon. I agree and find some of them pointless. Definitely keep no news is good news in your heart!

camillegal

Lori I love how u talk about the pumpkin and the watermelon--they should have names, u are like their mommy. LOL U'r Dr. forgot u'r file? OMG That's crazy.  And BB is right.

Girlstrong

So glad I found this thread!! I am feeling like a compete hermit, wall flower etc. I don't want anyone to see me and I really don't want to talk to anyone I don't have to. I think this is in part due to the fact that I don't feel like myself. I feel like I am in some one else's body. Maybe it's the wig, maybe it's the side effects of the meds. Ladies, help me get through this, I know this cant be good and I don't want to isolate myself further. What have you done to get thought this mess??

Spookiesmom

Sounds perfectly normal!! Now is the time for you to be good to you! Go back to the little girl who said I don't wanna, and you can't make me.



You've been through a lot. It takes time to process it all, grieve, and feel better. The time span varies by person. Hang in there, it does get better!!

camillegal

Hi Girlstrong, please don't be so hard on u'rself---that's why we're here. It happens to alot of women under these horrible circumstances and it will slowly pass and u'll feel like being with special people more and more. But right now let it be like Spookie said don't wanna don't do it. U'r not u'r self now, u r mentally and physically going thru a very stressful and miserable time--so give it time. It does get better but at it's own pace. And there are still times I hermit myself as some of us do and I don't feel guilty about it at all. So just go with it.

Teka

Girlstrong,

Welcome to somewhat normal!

Not that easy an answer, but here goes.

Foremost, I have an excellent rapport with my off-line BC medical team.

Sweet bunch of ladies & gentlemen on the threads.

Jazzygirl

Girlstrong- welcome to this thread. I am sorry to hear you are struggling right now. Choosing to be away from people at this time has it's benefits. We have all had our experiences with too many questions, judgements and well meaning, but exhausting people.

Your body is going through a lot to cope with the treatment and all the rest that goes with this. Be patient and kind to yourself and don't expect to feel normal. I am 6 months post radiation treatment and still don't feel like I did before. Everything has changed, but you will get through it and it does get better. Trying to get good rest, a little sunshine each day, something good to eat were things that became very important to me during my active treatment process.

I found this web site within a month or so of getting diagnosed and this thread really helped me (still does!) with everything one goes through. There are women here of all ages, going through different types of therapies, etc. We talk about cancer treatment, movies we have seen, what is growin in our gardens.  We are a judgement free zone where you can be sad, angry, frustrated and all the rest. We get it here. 

We are glad you found us and will be here for you as you continue through this journey.

lizlori

Welcome Girlstrong!

I am also so glad you found this thread....so many awesome gals here. Some days I am in a slump and I read the threads and laugh... Its a good place to vent and not worry about being judged

Give yourself time, and do what feels right. I have found that my family is the only ones I can talk to.....our lives have been turned upside down, and now its a journey to try get to a new norm....

Lilly-how are you doing?

Cami-all of the pumkins have names: Scar, Pretty Boy, Stumpy, Cowboy, Champ....Champ is the heaviest at 1250lbs.  This weekend we are going to take Pretty Boy to a contest, he is a little over a 1000. Champ will go to the oct. 5th contest. My husband is expecting me to help transporting this...gulp.....we are letting the watermelon grow....no name for it. Any ideas for a name??  Last night I ended up going back out  and put tarps on them, cuz it looked like it was going to rain...Thanks BB for the words of support...

blondiex46

sorry checking in, am ok, still have oxy lung dr. is amazing, took 60cc's of fluid out of my lung, going to test it to see if their is cancer in the lining of that lung (of course there is) getting a CT scan tomorrow to check my lungs AND to check the abcess cause the pain is back from that....I am so fortunate to have you guys thanks for caring....Still have the oxy they still don't know why I can't breathe, got inhalers, said didn't think it is was COPD not sure what it is, hopefully the CT scan will tell them something....still loving to hermit, have to go out for the next 3 days....still napping.

How is everybody, will catch up, did read a little bit, so we have a newbie, welcome....

bbl

Girlstrong

Ladies--thank you so much for making me feel like I am not crazy or alone in all of this.  I thank God so much for my supportive family but I have to continue to be strong because they are going through this too!!  I think that the more i share and talk things through the better I feel.  I saw my MO this morning and everything went well.  My tumor is responding after first 2 treatments and so I need to celebrate that!!!  My MO said that patients with positive attitudes do better overall.  That is the side that we all need to be on.  I will do whatever it takes to stay on that even keel. 

Teka

MO gave you a thumbs up!  

Excellent day ;o)

camillegal

Girlstrong good MO visit, always good to hear some good news and attitude is a big play in this so just really think that everything is going ro be all right, it really does get better--I know my Docs said my attitude got me thru all of that stuff, but it really wasn't that I had an attitude I had a don't tell me anything, I'll go thru this stupid--I don't recommend it, but it sure worked for me, I never even knew what Chemo I got--if they started talking seriously I'd tune thm out- my Onc did get upset with me sometimes but she finally got me and just hugged me instead of words--so my attitude was stupidity and that was so easy for me to have. It came naturally,

Teka

Lily55,

Like you, I am also gaining weight!

I so dread seeing PCP in October.

Jazzygirl

Blondie- it is good to hear from you and sorry you are still having breathing problems. Sounds like they are looking for the root cause and I pray there is no cancer in your lungs. I hope the CT scan helps to find what is going on. You have been struggling with the breathing issues for awhile now.

Lori- how about the name Betty for the watermelon?

Girlstrong- it sounds like your tumor is responding to the chemo. That is encouraging news. It sounds like you have a great and supportive family. Hang on to that and just focus day to day on what you need to do to get through your treatment. We are here for you.

Cami and Teka- 

Went to yoga last night (gym) and tonight (outside full moon yoga in the beautiful north valley here). What my soul needs this week.

Jazzygirl

camillegal

We may be hermits but we can enjoy the view.

Jazzy BETTY? Why not Wilma the watermelon--Were u watching the Flintstones like me. LOL Jazzy I love how u keep active and take care of u'rself and really enjoy it.

I'm barely awake and I think I have a cold from Joey, Poor kids he's fine now but told me not to go near him, but I couldn't help it. LOL

Jazzygirl

Cami- I knew you would like that! So sorry about your cold, lots of soup and liquids and rest!

Full harvest moon beautiful over the mesa this morning.

Girlstrong

This put a smile to my face!! Needed that since today was a chemo day

camillegal

Girlstrong We do get off subject every so often, but it's good for the well we'll say mind. LOL

Jazzy u'r knowing me better and better

camillegal

Jazzygirl

Girlstrong- glad you like they "eye candy." You will see that out here from time to time, along with other neat photos from folks gardens, or funny things people like to share. We need the humor to help us through our hard days. I hope you are doing okay post chemo and into this weekend. 

Cami-not sure why Betty (and I love the Flintstones) but it just came to me. I like Wilma the Watermelon even more!

Getting into my low carb/high protein diet. I was doing that for quite some time last year after my two surgeries and my body does generally like it. Eating some carbs, but managing them with a certain amount of grams per meal or snack. I got some good advice from a friend who has struggled with severe diabetes for years and she just told me I need to be disciplined about my eating and exercise and can turn this around. 

Got a massage tonight that was divine after such a wicked day at work. It really helps my sore feet the best.

Skittle

Camille, hope your cold gets better quickly!  Joey's too!

Had to drop off for a bit.  (Feel like I've been danced upon by a herd of clogging elephants.)

Hope Laurie, Markat and our other mia hermits are ok.  I worry when absences are long.

Blondie,  hugs headed your way.  Wish we could all pitch in somehow. 

Pumpkin stats are amazing.  Will the watermelon taste sweet--or does the phenomenal size take over? 

Jazzy, I love and admire your persistence.  Wish I had the patience for yoga.  DD2 has encouraged, but I just can't get into it somehow.

Oh--dd2 has a job!!!  The hunt is over and we all feel so blessed!!  Happy dance!

Girlstrong,  Teka is right.  You found a good place.  These ladies have been endlessly kind and patient with me.  Say anything, and you are among friends.

Be safe, all.  May the weekend bring moments of peace to you and yours.

camillegal

 Happy Dance

Teka

Jazzygirl

A photo of Northern New Mexico to the north of where I live, and one of my favorite places in the world (Taos). Just had to share this beauty with you this morning from one of our NM fan pages on FB!

camillegal

Oh Jazzy this is georgeous, it look like a painting.

Teka

Lovely photo!!

Jazzygirl

Another one, that is even more stunning!