Post your tech glitches, errors, issues, etc. here.

nopink2019

How do we delete wrong info on treatments? There is no option to correct bad info. None of the diagnosis & treatments options make sense& I know what my cancer is & what I"ve had as treatments. The minutiea is cobfusing &not informative for forums

Rah2464

Mods when I click on a thread I haven't viewed before, I am dropped to the last comment on the thread, not the first. I would think we could always be directed to the last comment read whether or not we have visited the thread before. On threads that I have been on seems to be working correctly I drop to the last comment.

AliceBastable

serenitystat, I'll try that next time I have a message. It looks like it takes me to the right place.

Wonderland

I can't believe that it as been 4 months since this started. I will NOT direct anyone to BCO. Too complicated. HIre the tech team at Amazon - they know how to get things done correctly.

kathindc

Please get rid of the box asking if we’re sure we want to sign out! I wouldn’t sign out if I wasn’t sure. Had to check if that had been changed. Is that one of the clicks you count. I’ll just stayed logged in and let the site log me out.

AlwaysMeC

Skipped to the bottom, so apologize if someone already pointed it out...

My signature line is all messed up. For Phesgo it says, "en.treatments.targeted_therapy.targeted_therapy_medicine.short_options.phesgo"

I was able to add Kadcyla under the Targeted category, yet it still placed it as "other" in the chemotherapy category.

AlwaysMeC

Skipped to the bottom, so apologize if someone already pointed it out...

My signature line is all messed up. For Phesgo it says, "en.treatments.targeted_therapy.targeted_therapy_medicine.short_options.phesgo"

I was able to add Kadcyla under the Targeted category, yet it still placed it as "other" in the chemotherapy category.

Moderators

Rah, that is the intended direction for clicking a thread you've not been to, as many threads are pages and pages long and it may take a long time to catch up. We are open to feedback on this, however, and will take your note into consideration!

Alwaysmec, thank you for reporting this glitch. We will add Phesgo and Kadcyla to the list of treatments not appearing correctly. We appreciate your help!

--The Mods

MinusTwo

Mods - I agree with Rah. A thread should open up at the last post you read. If that is page one of 300 pages, so be it. Anyone has the choice to skip to the end. But people who are trying to keep track of treatments or surgeries or friends - we want to be deposited where we left off. Otherwise, why even bother to try to offer assistance or good luck or.....

Rah2464

Mods thanks for the response. I am thinking since there is a "last" button that might be better to put a user at the last post read as a default? That way you can choose how you want to proceed. Just my thinking

SarahMaude

I am an eternal optimist. I keep hoping that BCO can manage to overcome the site dysfunction that has plagued us for almost the whole time I've been in treatment. The lack of a vital community that I falsely believed would provide the kind of support I saw in its past years of hundreds of daily active users has absolutely impacted my level of hope and stress level. You know that lift you get when someone who has or is currently experiencing a common feeling or symptom responds with empathy or some positive suggestions? That's what we don't get. Yes, I have gotten support. There are a handful of newer members and a very few remaining experienced users who have stretched their arms to embrace me. "The mods" that I know from Thursday Zoom meetings and private message interactions are indeed caring and very supportive. I'm not sure who can help. Moderators are not coders or even the managers of the developers who can resolve our issues. But "we" the BCO community are obviously tired and frustrated with living in this abandoned and deteriorating "mansion." Being able to see what this community used to be and should still be is disheartening. The denied access, a basic, is better, but just today, I got that ironic message saying that due to a glitch, I couldn't access the tech glitches thread. I close with a pair of images that summarize my thoughts.

.

Cowgirl13

system is has been much slower. don't get to the last post I read. this board is going to flame out as the resources are being spent on the other side of the website--the literature suggestions matching a person's diagnosis. I don't believe the mods can do anything except report back the problems but BCO will never make available the resources that this side of the site requires. wait until you see the problems that will happen when the 'articles tailored to a person's diagnosis' part of the website is active. sorry to be so pessimistic but it's just how I'm feeling lately.

ruthbru

I am so sorry, sarahmaude. This should be THE place to go to get the support you need during this difficult time. You can always private message me if you need someone to vent to (if that feature is working).

nopink2019

Those of us stage 4 can change treatments every few months when they fail. At that point we might be interested in a forum that we never read before. The form could have been started years ago when this was such a helpful sight. But for a forum that you've never read you either start at page one or the end. There's no way just skip ahead two or three pages. Of course Pages used to be 30, now they're 10 so you can spend lots of time loading loading loading loading. Of course this is so little compared to what's wrong.

Anonymous

SarahMaude - I'm so sorry that this site isn't as vibrant as it used to be. I have had to step back because instead of being a place of sanctuary, it has been a source of aggravation.

Case in point:

Mods, While I'm glad to see you respond to a complaint, this complaint would not have been necessary if you and your tech team took the time to review and correct the translations tables as I've suggested more than once.

AliceBastable

I've been having problems loading a jpg file onto one of the forum pages. So I'm going to try to load one here as a test.

ETA Huh, it worked here. Just another screw-up, I guess.

ThreeTree

Here's an interesting glitch, but not exactly new: BCO apparently does not consider the discussion board part of their "main" work and focus. In the copied post below, the moderators have referred the poster to an "article" on the "main site". What on earth???!!! They are going to try and push these "articles" down our throats and make them their focus come hell or high water. Never mind the discussion board, never mind what their consumers want. Interesting, the poster was looking to the discussion board and it's members for support, but BCO refers her to "articles", and tells her that "they" and the poster's medical team can help her. No mention of support from others with breast cancer. This was in response to a new poster looking for advice from others who have breast cancer:

5 hours ago moderators wrote:

Hi Jenna!

May we suggest that you check out the following article from our main site: Mastectomy vs. Lumpectomy.

We know it's not easy, but hope we can all help you make the best decision along with your medical team. Keep us posted.

The Mods

AliceBastable

ThreeTree, If they're going to do that, the Mods need to come out from behind their damn anonymity curtain and give, at a minimum, their personal histories with breast cancer. I have no idea if any of them (however many there are) have had cancer. Otherwise, they have no business diverting someone from the discussion boards. I'm beginning to picture them as Dementors.

LW422

threetree--it does appear more and more like the forum is being moth-balled. I'm beginning to believe that they are shoving the "virtual meetups" and directing people to the "main site" so that the discussion forum can slowly die. I just noticed this exciting new development...

Well, what about those of us who don't care to participate in "virtual meetups?" What if we want to check in and ask questions during times where the "virtual meetup" isn't going on?? WHY are these other so-called features of this website being pushed while the forum is left in a damn sad mess. I'm so angry right now. We all need to seriously find another place to gather on the internet. They don't "HEAR US" here.

ThreeTree

Alice and LW422 - I agree with you both 100%. These "virtual meet-ups" like LW said, won't help those who are not interested in participating, and won't be available when you just want to randomly check-in or are experiencing a crisis. I also assume that they will be "taken over" by the moderators and "moderated" to hell, i.e. they won't just let the people with breast cancer discuss and help one another, but they will be "moderated" in such a way that given topics will be provided and then as members attempt to freely discuss amongst themselves, they will be "guided" and "managed" toward whatever BCO really wants to steer people toward. These won't be free discussions by, for, and amongst the discussion board members. And yes Alice, I also wonder how many of these BCO people, if any, have had breast cancer or any sort of cancer. I did hear that one of the newer moderators has had some sort of cancer (not breast) and I would presume that she is the exception and not the rule.

Also just noticed another new poster who seems to have been pounced on by BCO and sent to an "article" and/or "virtual meetup" reference, before many discussion board members could respond to the new person. This is since the new post from "Jenna" that I noted above. It looks like they are trying to head new people off at the pass to try and sell them on their "articles" and "virtual meetings" before they can ever get familiar with, much less comfortably entrenched, in the discussion board.

Moderators

Dear Members,

1) Our Moderation Team is here to guide and help members affected by breast cancer and ensure this community remains safe and constructive. In that vein, we ensure civility throughout the discussion boards, and require members stay respectful to all who participate here -- including the Moderators. Please review our Guidelines here and note that if these Guidelines are not followed, we do reserve the right to ban or remove members who are in violation.

2) Our Moderation Team has ALWAYS posted links -- to our main Breastcancer.org site, to helpful and relevant threads, and even to third party sites -- to members in order to help them gain more information. Our intention is, and has always been, to assist those without information to gain insight and knowledge about the situation they're facing. Your speculation of our motivation is truthfully disheartening and disappointing.

3) The Virtual Meetups were created during the COVID-19 Pandemic as an additional resource to members who could no longer safely visit with friends/family/support groups face-to-face, and have been extremely successful. With the technical issues that the relaunch created -- unintentionally stifling the Community -- we added additional Meetups for those who found it difficult to use the Discussion Boards due to the glitches. These additional Meetups have also been very successful. Many members in those Meetup groups will surely be happy to tell you how much they have benefited from the discussions there, and how thankful they are for that resource. The topics discussed there are free-flowing, and the support is overwhelming. Before speculating what goes on there, we'd encourage you to join. Or don't. No one is forcing anyone to participate in any resource we provide. Again, we are here for those who need help.

4) The Discussion Board Community isn't going anywhere. We've said it once (or more!) and we'll say it again. Our goal is and has always been to get a new platform for the Community so that it can once again be thriving and a helpful resource. We are simultaneously researching this to implement a plan and working on the current glitches. We hope you can understand that taking time away from this work to address each and every response here will only be detrimental to our goal.

5) The intention of this thread is to Report Site Glitches. If you have complaints about the Community, the Moderation, which programs do or do not appeal to you, or any other aspect of Breastcancer.org, please feel free to email us at comments@breastcancer.org.

Thank you for your understanding, and for being part of this important Community.

The Mods

Spookiesmom

hmmpf my hip boots don’t go high enough for that last mod mess

Anonymous

Mods,

If you want to reduce posts to this thread, perhaps you can work with your tech team to fix the glitches that continue to stifle the community. Imagine if you reviewed and fixed all the incorrect or missing translations when I first suggested it. Imagine if your tech team just wrote a script to quickly remove treatment details on request so that members can update their profiles. What I described shouldn't take that much time. You would have fewer complaints here. It’s an efficient use of your time.

Trying to silence us with threats instead leads to more distrust. We do not feel safe. Congrats.

ruthbru

I think recommending information is wonderful. I think virtual meet-ups are wonderful. I would like these discussion forums to be wonderful too.

AliceBastable

Dear Mods,

So, any complaints about the mods or the non-tech running of this site is to be sent directly to them, so no other members can see those issues? More hiding behind the anonymity curtain? Look, none of these complaints would have happened if the powers that be hadn't effed up the discussion boards in the first place, and then ignored or downplayed the tech issues for MONTHS. We're frustrated! And yeah, we're gonna take it out on you as our only point of contact. Sorry, but that's par for the course for front line personnel. This site isn't going to get donations from members at this rate, and if the site dries up, it's not just the members who'll be looking for a new on-line home.

P.S. What spookiesmom said.

ThreeTree

Moderators - I am sorry if you all have taken my comments personally. My intention was not to direct negative comments toward you, personally. My issues are with BCO as an organization and the direction it appears to be going, given what many of us see happening here. I don't believe that moderators have that much to do with any of that, as the overall direction is a choice of the organization's "leadership". Please just realize that so many of us found something here that we needed and appreciated very, very much - something we had not found anywhere else. That "something" was the direct and free sharing among the many members of this discussion board. We are sad and disheartened that that is now gone and that no new people are able to experience what so many of us had. (Remember too, that we have no way to know what might be going on behind the scenes, so imaginations can and will run with what is seen.)

Also, I was not criticizing the new virtual meetings, and I agree that they were a nice addition, especially with Covid. I think they are a nice option for many who are interested in them and that they should stay. I am also not criticizing the fact that you would like to present articles on different breast cancer topics to members of this group. They are also an additional option that some might find helpful. To date, however, a lot of us have found the articles on here to be pretty "watered down" and lacking in substance and detail. These same topics are invariably covered better on other sites and can be found easily. What wasn't found easily elsewhere was the quality and nature of the discussion board, and from all I can see, you (not you moderators, personally, but BCO as an organization) don't seem to realize what a gold mine you have had in that discussion board. Articles and virtual meetings are nice additions for some, but it seems that these options are being given far more focus and emphasis than the discussion board; the feature that I feel is the heart of the BCO site.

MinusTwo

What THree Tree said about the "gold mine". If I hadn't been 'sucked in' by the excellent discussion boards & information from other members, I would have just stayed with Susan B. Koman. I agree, the Mods have no control. And no we aren't pointing at you directly. But - Please, PLEASE see if you can influence the powers that be to fix some of the issues we've brought up over & over. We really don't want to 'grouse & complain', but it's a fact that over half of the people that I regularly communicated with for over 10 years on the discussion boards are now GONE!!! And the camaraderie is compromised.

Miriandra

"...Our goal is and has always been to get a new platform for the Community so that it can once again be thriving and a helpful resource. We are simultaneously researching this to implement a plan and working on the current glitches...." (my emphasis added)

Really?! This sounds like BCO has also gotten tired of the incompetency of their current web administrators, and they are looking for a tech team that will be able to make changes as needed by the user base. That would be lovely.

LW422

"Your speculation of our motivation is truthfully disheartening and disappointing." ... the Mods

Having this discussion forum debacle has been "disheartening and disappointing" for a lot of people who really need this place.

pinger2474

Hello - I am trying to search for “D&C" on community which is short for Dilation and Curettage but no one is going to spell it out. However it keeps removing the & sign and searching for DC instead which is not what I want. I also tried it within quotes but that didn’t work either. Thank you for any help. I used to be able to do this before without any issues.