Fuzzy's Romp Room

crog234

You are so right Ducky. I shouldn't have just said a lotion with aloe in it....... Can't remember the name of it... Seems like my memory went on vacation!!!!!!!



Thank you all for your well wishes and yes it has been a long long long two years.... I will keep you informed on my progress...



Dunes I don't remember how long it took me to not have the urges. When I quit this last time it was for me, not for someone else because they wanted me to quit, not for money although that was a plus.. So because I quit just for me it was easier and the urges left pretty quick. Mind you my husband still smokes but not around me.. He has to go outside to smoke, but that's what we used to do anyway..



Hey SAS. We all have our vices that we will pay for someday...... I think I have been paying for mine the last two years... I loved smoking. I found out after I had picked a date to quit smoking that I was going to become a Grandmother. In never wanted my grandchildren to see me as a smoker. So that sealed the deal to me and I have never looked back.....



Cindy

ridergirl

Thanks ladies for all the wellwishes, pocket party gets in full swing at 130 tomorrow afternoon.

CINDY good for you hun soooo nice to hear good news

sas-schatzi

Dunes, this is part of a post I wrote to Fuzzy on 2/7 here.Hope it helps!

Fuzzy) Insurance, yes there is an Obama thing that my MH counselor told me about. I was trying to get DDBF set up with it. It's called PCIP---Pre-existing Condition Insurance Premium. WEB address www.pcip   Must be whole address b/c it hyperlinked on it's own. I'll test it after I submit. The whole story is on the web site. What's odd dear friend, is I was just thinking about posting this again yesterday b/c several had mentioned insurance problems. So fortuitous you brought it up. As you know a thought from yesterday may not carry over till today LOL

Crog the thing about your grands is so true. When I was prego I had one puff on a cig a day and sometimes didn't inhale LOL. If I inhaled I couldn't go beyond one puff cuz I had this stick figure in my head that went yeeck-yeeck!. Whats also, strange is the puff was off my secretaries cigarette. Neither one of us thought that strange YUCK!

There was an aloe I used in a routine I made up for incisions when I was in homecare in the early 90's It was pure aloe and perservative free "Earth something"  or " something earth"? Does that ring a bell for anyone?  It was great and inexpensive. DS got a 3rd degree burn right below his eye as a 3 y/o. I put aloe on it 2-3 x's a day for close to a year. Couldn't even see the scar. He walked into DSIL's cigarette. She had a friends child do the same thing and that child had to have plastic surgery. Aloe is certainly one of God's gifts.

Fuzzy mentioned BAG BALM. It's AMAZING. First contact was for my brittany who had pups. Then I used it when I was breastfeeding. MY Aunt a nursery nurse, it was used exclusively on newborn bottoms where she worked. I used it on my Mom's bottom when she had hospital aquired C-Diff. Then the hospital started using it housewide and did until a big company came in and convinced them they had a better product(also allot more expensive). Trivial Prusiut Bag Balm is made by a family in Vermont/Maine somewhere up there. They only produce a relatively small amount everyday and ship nationwide.

Linda-n3

I tried Bag Balm, hated the smell. Using cocoa butter, which makes me smell like chocolate, but works well for cracked skin and scar management. I agree that aloe is the go-to for radiation care.



Ridergirl, my heart goes out to you in your anxiety. I skipped rads because of the anxiety, and my woulda-coulda-shoulda occasionally kicks in and I wonder if it would have prevented my recurrences ... we will never know, I might have had recurrence anyway. I am not a number, and the statistics they use for risk reduction applies to populations, not an individual, and some people who get rads also still get recurrence, so I am not beating myself up over this. However, that being said, if you are trying to do everything you can to keep you healthy and prevent recurrence, this is one of the best ways to prevent local recurrence. And local recurrence may not sound that bad, but it is.



I have talked with many women who did just fine with rads, and all of them were anxious before starting them. Do you have a little xanax or other med to help take the edge off of the anxiety? Can you use yoga breathing, meditation, etc. to keep your mind on NOW rather than tomorrow? What will you do with your morning? I will check back here on Monday morning and will be in your pocket in the afternoon. It's OK to be anxious, but let's see if we can help you get through it without wasting too much of your precious time with negative feelings. Sending you lots and lots of lovingkindness.

thefuzzylemon

Crog! !!! WHOOOHOOO!!! That's great news!!!

Linda...bag balm doesn't have a smell..I wonder if it was a brand that they created with a scent. The stuff I used is literally used on animals. I'd seriously recommend taking the lid off and sniffing it...since its used on animals, they don't seal it like human lotions. LOL

Dunes....I think you asked me about what I loved to do....I love coaching. More than any other job I've ever had. Im pursuing this now. I really hope it works out. Im also applying for traditional employment. ..more for a back up plan I guess.

Sassy....this just in...I had a Sassy Flash this morning...going forward, consider this...if he needs cash, just like any business, the work needs to be completed first. Bam! Solved! LOL that's not asking too much. You get what you want, he gets what he wants...win/win. Thank you for the insurance info. If I don't land a job soon, I could be in trouble with that. I'll see what the universe has for me. I seem to be in a clearing right now so...we'll see! LOL

It was a great weekend with my youngest home. I have a feverishly busy week coming up. Mom should get out of the NH, moved out of her assisted living place and into a new one. A few doctor appointments, getting tax stuff together....oh man there's a lot!!

XOXOXO

dunesleeper

What kind of coaching Fuzzy? Inquiring minds want to know!!!!

Good luck with the rads Ridergirl. I'll be thinking about you. I'll probably just be getting out from my appointment with the dreaded nurse nancy. I will try not to pound her too black and blue. LOL. Once upon a time I was crazy enough to do that. I gave a psych nurse a good pounding. I wrote a "poem" about it. LOL They should not have locked me up in that attic. I hadn't done anything wrong. I was talking to my mother on the phone when seven of them (they always come in sevens) came for me and locked me up there. So let's see if I can remember it (oh, the psychiatrist stuttered):

I beat up my primary, Ruthie. She locked up my every key. I had nothing to lose but the strings on my shoes and the hate I could finally free. The many rushed in through the door, to help me down onto the floor. I tore at a skirt through the purple alert which I promptly apologized for. They wrapped me up snug in the white. Oh! To see me I seemed quite a sight. So I rolled me around making fun of the sound of Sh-Shulman's stu-tuttering might. The th-thorazine came a surprise, in the 400 mg size. So I lived while awake the strange dreams that we make when all touch of reality dies.

It was the medication they had given me that made me so crazy to actually wallop that nurse. However, I honestly don't know what I might say or do these days. I'll be as cool a cat as I can be.

Sas, I don't have an insurance problem, at least not for now. I am still covered through Maryland State Retirement. But thanks anyhey.

So I see my counselor at 10 am. I see nurse nancy at 1 pm. I'll try to make an appt with the ear nose throat doc before my counselor appt. On Thursday I take my exams. Eeeks. On Friday I will go to Hopewell for Nidra Yoga. Today I made some more guacamole and another big pot of vegetable soup. I'm really loving my vegetable soup and my guacamole. I do have to get started drinking my ick again though. Oh joy.

Chabba it is very cool that you have such a wild front yard. Fuzzy, you have a lot of nature around you too, don't you? I live in a row house, not an attractive town house, an icky flat-roofed row house. Trash blows down the alley and street. Lots of it ends up in my yard, which is larger than most of the yards here. There's lots of concrete and brick, rats and gangs. Really, it wasn't so bad when I moved here in 2000; but I'm stuck here for now. It's great to get away from the blight to take these hikes. I'm really glad I pushed myself to do this. Next weekend, if I can, I will do the Oregon Ridge hike on Saturday and the Loch Raven hike on Sunday. I'll have to see if I can afford the gas, since I will be driving nearly to Oregon Ridge on Friday to go to Hopewell. If it will really be a nice day, I think I should do it.

dash

Fuzzy, check your PM and your texts! Or I'll throw smelly tic tacs at you....

chabba

I did 35 radiation treatments.  There was some burning, like a sunburn that stops just short of blistering and that responded well to aloe vera and an oil my pharmacist recommended.  It has been 2 1/2 years since I finished radiation and the treated breast is still much denser  (from scar tissue due to rads according to my surgeon) than the other and also is occasionally painful.  If I had known before treatment what it would be like I would have had fewer aprehensions.

sas-schatzi

Well dear friends DDBF and I had "the talk". He's moving back to his old place. Not sure what will happen and not sure how I feel. Time will tell.

dunesleeper

Sassy, I'm sorry it did not work out the way you would have like it to, but I'm proud of you for clearly setting your limits. You deserve the respect you requested from him. Here's a virtual hug:

((( Sassy )))

I know. It's nothing like the real thing, and I won't be following it up with sex . We all love you Sas.

Chevyboy

((((sas))))  I know how you feel....  But honestly, it just takes time... for you and for him.  Nothing gets "fixed" being together, so I think being apart is what you both need.  Not for just a week or two, but for a couple months.  Sometimes you will think you are falling apart.  But if you have a lot of friends, or church, or someone to talk to, it makes it easier. 

Just remember Nothing is Forever....  But if things don't change, you just can't lose yourself in his life....  You have to have your own. 

duckyb1

Sas.....good decision.....time will tell...The real point is this.......you deserve to be treated with complete respect all the time....not some of the time....I am a believer in "everything happens for a reason ". Never accept less then you deserve, and always believe that you deserve the best. Because you do.

Linda-n3

(((((Sassy)))))

Nurses are some of the worst when it comes to wanting to rescue the world, and you remind me so much of my youngest sister.  She was also in an abusive relationshp early on, a police officer who threatened her with a gun one night. She ended it, moved away for safety (he was still on the force in a small town, and now one would have believed he would do something like that). She had put up with his crap for over 2 years before that - he ruined every good thing in her life, including her capping ceremony, her graduation, her first job .... I know several ER nurses who dated plice officers - we all seemed to see the dregs of humanity and had that in common, ran into each other on night shifts in the ER ... and then when you see someone that you think is a decent human being, you can really fall hard for them, forgetting that we are all human and all have human failings.  But relationships are built on trust that each will work really hard on making sure their own human failings do not harm the other partner.   Give me a call if you need a shoulder and hugs.

And on top of this, NONE of us needs the DRAMA of some of this crap.  I am doing so much better by taking a leave from my job right now - no student issues, no deadlines for reports, no pressure for scholarship/publication, no committee meetings on my calendar and all the drama that goes with dealing with all the different and conflicting personalities on those committees.... I don't even watch many of the TV or movie dramas right now, just comedies and love stories. Am in it for the belly laughs, along with beauty surrounding me.

Happy Monday?

dunesleeper

This was shared on facebook, and I am reading it now. I have a feeling it would be a good thing to share here.

http://kriscarr.com/blog/happy-anniversary-celebrating-a-decade-of-thriving-with-cancer/

sas-schatzi

Heh dunes it was and then I took the dogs to the wildlife refuge thanks and thanks friends sassy

sas-schatzi

Rider-yoohoo How'd it go?????????? Thought of you much riding through the wild life refuge.

sas-schatzi

notes of trying to keep loss at bay-----------wild life refuge trip, Schatzi was beautiful as usual, standing at the window(15 MPH). Dini appeared to be in awe. Could be the first time he ever saw such open space and ducks. Neither dog barked once, but I had the radio blaring country western. Usually, when I enter the park, I put classical  music on.  Dini's nose was snifing the whole time. Once I almost drove off the road b/c of watching his reaction. This is a wonderful driving refuge. It surrounds Kennedy Space Center. A man named Cruickshank, saw the opportunity to get the area declared a "national wildlife refuge" when NASA chose  the area for our spaceport activities. NASA needed an area far from developed areas. Wildlife needed areas far from developed areas. He was a leader in the Audobon Society. Cruikshank made it happen. A blend of science and of nature.

When first here in 1992, taking the bus tour of KSC, as we we were going by the Vehicle Assembly Building-VAB--52 stories high(it's where they put the shuttles and rockets together--hence the word assembly)), in a two tiered bus, the tour operator turned off the tape and said "If you look in the canal to our right you will see an alligator". I thought the bus would tip b/c everyone rushed to the right.

My thought having both in view at the same moment---a prehistoric animal that survived eons, and a place that prepared vehichles that sent us into space. Says it all.

I've told this story here I know, but since I'm so close to the "Wild life Refuge". I so love this story from a volunteer that witnessed it.

Eagles nest have been documented to be used for 50 years.

This vlounteer(1972-2008) witnessed-- the fledging of an eaglet over three days. The eaglet kept coming back to the nest. On the 3rd the parent eagles tore down the nest. The eaglet had no where to come back too. Tough Love.

If eagles have a documented history of reusing nests for extended years, how did this pair "know" to get the bird to "go" "to fly" "to be on it's own" If it never came into there frame of reference for all the eaglets that they raised? But they knew what to do when one wouldn't go. The wonderful question is --How?

ridergirl

Made it through first day of rads ok - took about 1/2 hr with positioning and all but the tech said i was lined  up perfectly so i guess that sounded good. Had both hips and spine done today but apparently they only do hips once so from here on will just be the spine so it will go quicker. They  said i could have nausea/vomiting after treatment because the spine is so close to stomach/ bowels and also in about 7 - 10 days  I may get diarrhea. Was a little nauseous late this aft but will take a zofran 1/2 hr before treatment tomorrow.  All these little things they neglect to tell you ahead of time.  Who knew????? 

The area on my back that was radiated feels like i have a sunburn, and apparently may turn pink/brown like i have a tan.  All told the hospital part of the day was not as bad as driving home 1 1/2hrs in freezing rain with DM in the passenger seat panicking(she doesn't do highway driving, or winter driving).  Have told her i reslly really want to go by myself from here on. Thanks to all you ladies for being in my pockets, i could feel you there while i was laying on the table, and whoever was poking me in the ribs, Cute but not fair!!!   Tomorrow 445 come one come all.

dunesleeper

Rider, I'm glad the hospital part of your day wasn't too bad, and I sure hope your meds control the nausea. That it will be going quicker from here on out is good news too. Hang tough.

Sas, the wild life refuge sounds really nice. Dang. Being in Florida sounds really nice!!!

sas-schatzi

Rider wish I could be helpful, have no knowlegde ---of the area/study of  radiation, but so many have given you such great support and suggestions re:threads. Babe ,I wish I could give you more

sas-schatzi

Dunes-we have the reverse of up north, please, don't get me started on Fire Ants, Silk spiders, roaches, snakes UGGGH. I pay 90$ a month whicn is extremely high end to not see a bug--------why, b/c I've seen those big and small and want nothing to do with them erghhh  and ugghhh

dogeyed

CINDYrog, I cannot wait for you to get your leg!  It will be like Christmas.  Sit in the sun and look at this miracle just for you.

For those talking about lotions for rads, the one I was prescibed was "RadiaPlexRx Gel" felt good, but when the burn blazed the last couple weeks, my stooopid radiologist gave me steroids, which I personally do not like but it worked, but SO hard to get off, why couldn't she have given me an ordinary pain pill?

DUNES, you beating up those Nurses7 was hilarious!  I presume you've eaten a cold lunch soup, Guacamole soup?  Mom made one and they come in cans.  Hey, girl, if you OWN your ghetto driveby place, remember how I said I downsized and sold our house, broke our hearts, but we wound up with an even better place a few neighborhoods over.  Just to think about.  And rental, good grief, I'd be gone long ago, unless you basically like it.  Love your pics... but your writing is rather good, you know.

FUZZY, my owne true sister, I feel your struggle.  I do dearly love sparkly things. My eyes are not very good when I'm walking around the house, so I pile my sparkle rings together so they catch my eye when I walk by,and on a mirror I put a VERY inexpensive elastic bracelet of cut glass, a row of maybe five, and candlelight is a big deal for me, too.  I had a vanilla tealight on the other evening, and Smokey came up and could smell the scent, and I described to him what it was, and he just loves it when we both focus on someing together and I share what I know.  I made a few copies of stuff for you.  Bye!  GG                                                                                      

 

    

                                                          

ridergirl

SAS you're here, along with all my other sisters. Thats really the best gift you can give me, all of you.

Dogeyed the pictures are beautiful.........I so love sparkly things :-)

Anonymous

edited for typos

GG - that may be a way to navigate my bedroom at night w/o a light.

Sassy - the trip to nature preserve, I was w you.  We take Danny Boy to state parks here often.  We also walk him alongside truck on quiet country roads, as in no traffic, and he loves it.  I know it is not so safe, but we cannot begin to give him the length of walk or briskness he requires for exercise.  We never go in snow or ice and he stays back from vehicle.  I walk w him some now when warm enough.

Cindy - how is the new leg?  Venturing out yet?  

Dunes - there were geese and ducks melting ice on the lake - they gather and sit on the ice to get open water, sometimes it is open and freezes so quickly.

Rider - feel for you, and I get it about just as soon drive alone.  Hubby did really well this last time though, because he flubbed so badly the times before. LOL. 

Lilly of the Valley I promised

Joyful gatherings of dancing flowers on the forest floor. Fragant so you can smell them from all the way up there.  Aids in standing in our own power --- in loving ourselves unconditionally --- helps us chose wisely who we invite into our lives and space (seriously, a quote from Tree Frog Farm perception) --- instills that we are beautiful and perfect as we are --- the childlife innocence and simplicity of being in our bodies --- where we only know how to respond with loving behavior --- playfulness, lovingness, joy, simplicity --- for when one feels disconnected from spiritual potential - a knowing of the Earth as a school for love lessons.

Well, I think I could use some of that stuff.

LOVEEssa

crog234

Well I didn't get the leg today :-(. I have an appointment on Thursday with the Rehab Doctor and someone from Hanger will bring my leg. I guess maybe I will get it then. I walked today with it holding on to the parallel bars... I did ok but have to stop thinking about the walking and just do it. Easier said that done. I hope with lots of hard work I can forget what I am doing and just walk "normal".... The "legman" says it will come eventually.....



Rider. Will be with you tomorrow at 4:45....



Cindy

thefuzzylemon

Crog - you are incredible. You are strength.

Sassy - damn it. I'm sorry. So very sorry. I think heartaches are the absolute worst pains to experience. But you know, I am so proud of you. I hope this works out to make to happy, content, and at peace with it...busy on Thursday?

Dunes - hey baby! So, my coaching...I specialize in career and life...but, I could probably coach on just about anything. I stay away from coaching on relationships though...that's normally in pairs and its easy to get "attached" to clients. I do live in an area that sees some wildlife!! I just love it. Deer, Turkey, chipmunks, thousands of birds, cranes, ducks, fox, we had a cougar running around for a while...all kinds of critters...opossums, raccoons, skunk...LOL I love em all (ok, not the cougar...).

GG my my my all mine GG sister/love/friend/angel...thank you for those pics. I'm so Happy when I see your posts. You make me happy. When you're away, I'm missing you terribly. We've been together a long time...longer than just meeting here, that's for sure.

Romp Room...a special thank you, sisters. You all, as a group, allow me to work through situations, fall apart, kick & scream, laugh, cry, ask questions, give my thoughts....you've helped me heal a thousand times. AS A GROUP!! That speaks to the character of everyone. You are all so special - collectively and individually. I'd be so lost without you...

duckyb1

And us you Fuzzster......you have a goodnight...sleep well dear friend.....hugs

thefuzzylemon

(((((Ducky)))))

Lily55

I wish non cancer people and medics could read this thread and see just what we all go through, some of you far more than me - it just is everything nightmares are made of and more............talk about strength...........

Anonymous

So I have been sitting with this quietly for a few days, not sure what to say or where.  The results of the PT scan that is. 

I thought I was super depressed yesterday since I could not wake up, but turned into illness last night and almost called the ambulance due to the extreme gut pain, but was only a fart crosswise w turds passing by a urinary tract infection.  Pulled out the ammo and within 8 hrs am much improved, no more going onto knees or waking up with agony.  Had not felt that pain since the tubal pregnancy, omg, when I was stuck on the pot from the pain.

The PT scan results I got on Monday - what I am doing has not been enough to back it up.  The two cancer nodes are larger, and there are two more at hilar and subcardinal (by bronchial / lungs) which are cancer plus several low activity (possible infection level) lung nodules which have increased in size since last June.

The onc said, these are not life threatening, he, an oncologist said that chemo for this is overkill, rads cannot be done for these, which I already knew about the axilla nodes at main artery.  He is sending me to Indianapolis to Dr. Kathy Miller at IU Simons Cancer Center for Phase 1 or 2 trial, he described a pill tx he wants me to take, w her approval and discretion. Plus an immune tx w that.  I go February 27th.  He said she is a world class breast cancer oncologist.

Ditto Fuzzy, the group you allowed to come together in acceptance of one another no matter what has done the same for all of us, all we have to do is put ourselves out there for being held up.  Ditto, Lily55.

LOVEEssa

So I am not super depressed.  I feel like what I need is at my fingertips.