INSOMNIACS place to talk in the wee hours

Anonymous

Hey you nite owlies!

Loverly~ My vitamin D was normal when my bone mets were found. It did crash about a year after DX. I take 4,000 IU daily now. I am wondering if the D definincy was a result of my increased intake of Fiorect? Fiorect blocks the absorption of D.

Anonymous

Patty -- did you get any relief from your ablation and kyphoplasty procedures? I had an L2 kyphoplasty last year that needs to be re-done and a now my L5 needs to be fixed too. I've been waiting over a month now for my surgeon to be able to get the equipment for the ablations he wants to do before shooting in the bone cement .

So very happy you are finally get a break from some of your pain! My hip mets are usually fiercely painful. When they settle down it is the most wonderful feeling

PattyPeppermint

shep. Yes I got much relief from the kyphos and ablations but seems like it didn't take long before something else fractured. I know my hospital only rents out the ablation machine and I usually have a wait also. Must be very expensive machine.

Well it's after 1am and I am still going strong gonna say good night here and start some laundry. Gotta do what i can when I feel good.

Hootie hoo. You owls

susan3

good evening or good morning. Can't sleep either.

Holeinone, sorry about the spread,

I have nodes, rib, Lund and spine. But nothing has progressed to fractures . I guess I am one of the lucky ones. I can still walk 6 miles and bike 17. Occasionally I fall didn't my steps...but fir me, that's better than a bone scan..lol if I didn't break anything , than I guess my bones are still pretty strong. Lungs are print biggest problem . As long as I stray on flat ground I breath fine. Twice up and down steps and I am trying to suck in air.

Pp, my heart gets out to you with your bone Mets and fractures and horrible pain. I pray thing ease up for you. Staying positive has to be hard. I am very impressed with your food delivery. Can't believe that never crossed my mind. Ahhhhh chemo brain.

Hi lover

Hope everyone else is having sweet dreams

Loveroflife

Sleep attack. Bedtime for me soon.

Warning: I might not make sense cuz the sleep fairy has arrived.

Susan, don't stay up too late. Love the picture of Elena.

Patty, you too. Don't want you to pay for it tomorrow or is it later today? Thanks for answering my question about vit d.

Shepk, interesting. Was your D level at low, mid, or high normal? The bultalbital in Fioricet is related to phenobarbital (an inducer of cytochrome P450) which can affect the metabolism of D.

Nite nite

Anonymous

Patty - awesome the procedures helped you; I feel a bit more hopeful now. Every doctor that sees my spine scans shakes his head and tells me "you got a lot going on"......sounds like that is a phrase you hear a lot too As long as they can keep glueing us back together, that's the important thing! Don't wear yourself out - get some rest and save some of that energy to spend some fun time with your boys ♥

HiHo - Are you going to the surgeon for a consult or for a fixing Monday? Kyphoplasty ? Yay for the buggers in your liver going down! Chit about the lung mets. Can they be radiated or do you need chemo for them? Wish everything could be an easy fix.

Susan - Elena looks like a little starlet hiding behind those big shades! Always such a cutie. Are you saying you occasionally fall down your steps? Cut that out! Nothing good will come of it! All that walking and bike riding.....you are a tuff one! Hoping your lung mets fade away.

Loverly - I know my Vitamin D was normal, can't remember what range it was thouogh. I've been trying to chart out my meds by phenotype - interesting stuff. That's how I made the Fiorect connection. (yawning) I am nodding off while I am typing......

Wishing everyone a restful night's sleep 🌛🌌

Edited to clarify "Vitamin D was normal" - the other "D" wasn't the topic......don't want to alarm the SASinator ! 💩

PattyPeppermint

Susan. Amazing all those miles walking and riding. Wow. Keep up thd good work. Surely it's gotta help with energy and depression and do much more. Rock on.

One load laundry done. Not much else tk do since sis went so crazy on the housecleaning before she left.

I finished mg lastinrary book last night :-(. Now they won't. Be open Til Monday. Guess I am turning on the tv snd hope it bores me to sleep

Night all. Hootie hoo

JudyKRN

So, it's after 4am here and to think at around 8pm I wanted to kick my company to the curb and go to bed! I've always been a night owl but it's worse now. I've been having nerve pain radiating down my right arm. An MRI revealed the pesky tumor in my axilla (and arthritis, as well) is the culprit. I started radiation last Thursday, so I've had two out of 10 treatments. Until I get relief, I can only sleep on my back with my head elevated on 3 pillows. And it seems the couch is a better bed than my real bed. I am hoping this radiation garage gives me some relief.......

M0mmyof3

Morning all,

well during yesterday's adventure of weeding my flower bed earned me a mild sunburn. Didn't know it until my hubby was giving me a back rub that it had happened. Was wearing a tank top at the time, so only the shoulders and my neck area that got the sunburn. Looks like another hot and humid day on tap for us here. Under orders from hubby to not do much today because I exhausted myself yesterday.

PattyPeppermint

judy I also find the couch more comfy then the bed. We've bought new mattress twice but still sleep on couch mostly. Jokingly told dh we need to toss bed and out two couches pushed together in our bedroom.

Mommy. Take it easier today.

I finally slept like an hour last night. Running full steam ahead today. Woohoo.

Hootie hoo

Anonymous

Judy you came back! Good morning to you ☺

Ack, sleeping comfortably shouldn't be a challenge. Resting is supposed to be easy and, well, restful! I have cancer filled nodes in my left armpit and left clavicle as well as the danged shoulder arthritis. The mets in my neck probably aren't helping anything either. I can commiserate with your pain and numbness. I hate it. The numbness is always in my hand and will run the length of my entire arm depending on what position it is in. The pain comes and goes......

I've had rads bunches of times for bone mets. Sometimes I get relief in just a few days, sometimes it takes longer and sometimes there isn't any relief at all. Rads can take up to two months after your last treatment to show results. Frustrating when you need the relief right away. Hopefully you just need a few more visits for the results to show?

I always get nausea from rads and take Zofran before I go. Lots and lots of moisturizer to the treated and surrounding areas will help your skin feel better and offer a bit of protection from damage.

Check back in with us and let us know how you're treatment is going. We share all kindsa stuff here ranging from silly to serious. Good advise and good fun!

Be sure to share any pictures of obese men in their underpants that you may have. LoverofLife will be missing her traveling Hubby and those images would be of great comfort to her 💜

Anonymous

M0mmy ~ What a sweetie your DH is! Back-rubs...........ahhhhhhh! Vinegar is an excellent sun burn soother. Just add a cup or two in your bath and have a nice soak. The vinegar will draw all the "sting" out of the burn. The vinegar scent will rinse away after you bathe. Milk in the tub works too - just don't use both at the same time.....ewww! I use undiluted vinegar for bug bites and stings. It works almost instantly.

Chevyboy

For Loverly... It's like every time we go to the Grocery Store, these guys are in there shopping.... in groups.... with ALL their clothes on, but you keep thinking... OMG.... OMG....OMG!!!! Because you just KNOW they know what you are thinking, and you are trying not to think it, but they just KNOW!!!

PattyPeppermint

chevy. 🙌

JunieB

Good Afternoon Ladies,

I thought I'd only missed posting for a day and a half, but maybe longer, because I found I was 4 pages behind when I logged on today.

Holinone & Mags - So sorry to hear of your progression. I hope your doctors will come up with Tx's that will slow/stop those nasty cancer cells.

Wenchie - I know what you mean when you say how wonderful that first shower is. Don't be in too much of a hurry to get back to the mowing, that grass will keep growing and your mower will be waiting for you when you're ready. In the mean time, at least you have a nice husband who is willing to fill in until you get back to it. Bless him!

Tomorrow I go for my nearly 6 week post-op appt. Taking the train at 1:00 p.m.

I've been craving my chili recipe for awhile, so I cooked it yesterday. It has ground beef, ground pork, applewood smoked bacon, bell peppers, onions, and some other things. In the process I had measured out the 4 tblsp. of chili powder out, dumped that into pot, but when it came to the oregano I accidently grabbed the tablespoon again instead of the teaspoon. When I realize this I'm thinking, YIKES! now what. I decided to add an extra pound of ground beef and then adjusted the other seaonings. It is still tasty, but not quite what it would have been if I'd not made that mistake. I had used my 12 qt. stock pot and ended up with about 9 qts. of chili. Fortunately a couple of my neighbors like chili, so I shared some with them. Now I think I'm down to 5 qts. Freezer is full, so I'll be eating chili for at least the next week. There are worse things I know.

I know I've shared in the past how my Mother has a VERY narcissistic personality and has always (I think) gotten great pleasure out of saying/doing things to cause me great emotional pain. Well just when I think I am beyond it all, she manages to yank my chain AGAIN. Two days ago she let it slip (yeah right) that she is selling her condo and buying a house. Well that isn't the issue. The issue is that she has been friends with a particular woman for approx. 10 years that takes her out to lunch/dinner, etc., goes berry picking each year, and so on, and is apparently going to be half owner of the new house. My Mother also informed me that that woman will inherit the house and all of the furniture when my Mother dies. My Mother and I have never had a normal/good, Mother/daughter relationship, but this is especially hurtful. For pete's sake she cut off all communication with me for 5.5 years because I tried to find info. about my biological Father. I guess I shouldn't be at all surprised. The only reason she has even started talking to me again was because the woman she's buying the house with hid the fact that she was so close to my Mother when I told her about my Dx, and she proceeded to tell my Mother about it rather than waiting to let me decide to do it myself. I GREATLY despise deceitful people.

I truely don't need this added stress and wish we had just left things the way they were for the previous 5.5 years.

In speaking with my sister, it turns out her Mother is just like mine and we have very similar stories. Ironic that our Father would marry the same type of woman twice.

I want so badly to move somewhere way far away from here, but won't give up my MO & Orthopedic Oncologist (less than 50 O.O.'s in the whole U.S.).

Well guess that is all for now. Will check back later. Thank you for allowing me to vent to you. Hope everyone has a good Sunday afternoon.

M0mmyof3

Put some Solarcaine that had aloe in it on this morning before I got dressed. Hubby would only let me clean my fish tank today and then he made me lay down for a bit because I had overdone things yesterday and my right hip was hurting. Before that we had to fix my recliner for the second time in a month as a couple of rivets busted thanks to when my friend from Tennessee was here a couple of years ago. She plopped down hard in my chair and sprawled out in it which caused the initial damage. Foot rest is completely broken and won't go down to close at all, even with the repairs my hubby and I have done. Trying to hang on to the recliner for as long as I can. Would love to get a new one but with having to have put in a new hot water heater in while hubby was laid up, we just can't swing the cost of a new one right now. So right now where the damage occurred, it's being held together by bolts, nuts and washers. Dang awkward to get in and out of the recliner.

feelingfeline

Jazzy, sorry that your Mum hurt you with that announcement, cannot blame you in the slightest for feeling hurt.

Anonymous

Chevy I want to shop were YOU shop 😜

Patty ~ I nodded off several times mid sentence while I was typing last night. Finally put myself to bed and was wide awake again! FFH and I sleep in different rooms - he snores and I move around to much changing positions, re-arraigning pillows, flipping covers off and on, turning the fan off and on..... ugh.

Will you sleep better tonight after being awake for long? I listen to my "sleep" playlist to help me drift off. It usually works...if I hear one of the songs from my list during the day it always makes me tired 💤

HiHo ~ In your pocket tomorrow. I'll have to bounce in and out though. Tomorrow is my day o'scanning. My hospital is a long drive away....I'll have to be up at 4:30 to get ready. That's my usual bedtime! Hope you get to sleep in a bit before your day 🙂

Feline ~ So sorry for your neighbor. Damned cancer. It just seems to be everywhere. (sigh) You are a sweet friend to look after her dog. Prayers for comfort and peace.....

Mags ~ Your baby kitty is a witty bitty fuzzy-wuzzy wittle wovie! 😻 (nope, no crazy cat lady here!) What have you named that little angel? Ohhh that little tummy and teeny feetsies I am sure if everyone had enough baby kitties all the time there would be an end to all the ills in the world. No more war, sickness nor sorrows. Not sure about an end to poverty as we would be buying enormous quantities of kitty toys and such..... Oh, yes, and we would need lots and lots of those pretty cowboys to help wrangle our kittens!

Wenchie ~ A girl's feelings for her tractors run deep, I know it must be hard to see them out without you. I'm sure DH will be good to them. Gentle ((hugs)) to you!

Chevyboy

JazzyBug.... Well honey, your Mom has a lot of balls to act the way she does, and then TELL you the stupid things she does. She has no filter, right? You don't need to be around this type of behavior, whether it is from a neighbor, or a "mother".... and I use that term loosely. Just move on. Don't expect anything more from that person. Neither she nor her life-long friend are worth your good nature!

But you know, that is what makes you the way you are! We need people in our lives that constantly hurt us, and try and make us feel inferior. We all have those.... until we learn to realize we are only accountable to ourselves. It is our only job in life, to keep ourselves happy, and not to let hurtful things come into our hearts. We've all been around people like this.... We gotta let them go. Then we can go on being proud, and responsible for ourselves....Hold your head high, and just take care of yourself!

Sometimes we let them go from our loved ones lives! If they are constantly hurting someone we love or care about, we have to figure out how we can shelter these jabs and barbs to our loved ones..... because it not only brings them down, but us too. Oh man, I can't count the times my in-laws were plain old B-tards not only to me, but to their SON! He was not the favorite... But we had each other, and that's all we needed or wanted.

When we look back on terrible behavior from someone we have trusted or cared about, we should think.... "I don't need this in my life...." Why did I/we put up with it so long? We are always trying to protect somebody, or "fix" someone.... just stay as sweet as you are..... that's all that counts.

Maybe someday things will change, but not likely....

Anonymous

JunieB~ WOW.....words fail me. You are a strong, caring, capable GOOD person. You have been the best daughter you could be. Your mother has chosen her path in life long ago. Let her continue on her journey of negativity on her own. You don't need her and she doesn't deserve you. I'm so sorry for all the hurt she's caused you. I think your sister has come into your life at just the right time. So wonderful you are continuing to get to know each other and are getting along so well. A "new" family, new beginnings, new happiness 😇

Chevyboy

Good post Shep!

M0mmyof3

Jazzy, so sorry that your mom has hurt you like that so many

Jazzygirl

JazzyJune- sorry about your mom and the way she is treating you. Going to PM you some thoughts on this.

Lookforward

Junie - your Mom must be a very unhappy person to be so toxic , unfortunately she probably is not going to change. Step back from her , she is not adding anything positive to your relationship . You have found your sister and it sounds like you are forming a bond with her

Wren44

Junie, I'm so sorry your Mom treats you that way. Do you suppose she and the 'friend' are actually a couple? And she's afraid to come out to you? Naw, she would do it if she thought she could hurt you. I'm not surprised your sister's mother was similar. They say you marry the parent you had problems with and try to make it come out differently. In any case, you are a shining light and can be proud of yourself for not retaliating. Must be tempting though.

Shepkitty, My son played Norah Jones' first album for nap time when GS was a baby. To this day it makes me sleepy too.

JudyKRN

OMG! Jazzy! YOU have a narcissistic mother TOO??!! My mother is horrible! She treated me so badly when I was diagnosed in 2005. I haven't even told her about my recurrence. Not to protect her, but to protect ME! She's 92 and still kicking. I am so sorry your mother hs treated you so badly, as well.

JunieB

Thank you so very much ladies for your support. Reading your kind words feels so foreign to me, since they are not words I've ever heard from my own mother. But, despite all of her cruelty over the years I've tried and tried to somehow gain her approval if not motherly love. Never will happen, yet the thought of actually walking away from the one person who brought you into the world seems so unnatural.

I do have to admit though, at that time during this latest conversation I wanted very badly to blurt out "Good news Mother, the man you've hated for 50 some years is dead so you can give up the hate." and "Oh by the way I have found my Sister." But I know it wouldn't give me the solace I'm hoping for, it would only lower me to her level.

I have another friend who told me on Friday that when my mother heard about my recurrence, she was genuinely upset about it. I told my friend that I don't believe it. You don't treat a person the way she does if you have actual genuine love for them. Personally, I believe my mother would be really pissed off if I had the audacity to die before her. However, she could certainly milk it for all the sympathy she could get as the victim (in her mind). She's nearly 81, so who knows how long she will be around. The other woman who apparently is the daughter (in my mothers' mind) that I'm not, does have medical power of attorney & is the emergency contact for my mother. So if my mother becomes unable to live independently, I hope that woman is prepared to deal with all of that too.

Guess that's all for now, I am emotionally drained and am gonna go lay down. I'll be thinking and praying for you Shep and Holeinone tonight and tomorrow.

Sleep well & sweet dreams to all!

JunieB

I have an appt. on the 21st with Palliative Care and will discuss this situation with them as it relates to my Quality of Life.

Again, Good Night to all!

sensitivehrt

Have a good week all

PattyPeppermint

Jazzy June. Vent on. So sorry your mom has treated you this way. She is supposed to be the one person you can count on for love and support. Darn. Really glad you can talk about it. Wish we could pick our family but no deal.