INSOMNIACS place to talk in the wee hours

Anonymous

Where is everyone?

Well I am relieved there has been no more talk or photos of blue pee. JunieB! I am so shocked you were part of all that!

Lookie ~ Yay for a surgery date! Boo for the awful "boyfriend". That must have been an awkward birthday gathering for your DS. Glad it went okay. Can you change the wedding into a party instead so you don't loose your money? It could be a celebration of the disaster that was averted

MammaRay ~ Sleeping any better? Hoping you were able to have some fun while you were away!

Patty ~ Pain sux. When my meds aren't cutting it, I just start taking valium 'til I don't care. Sometimes it works...... Hoping for you to get some relief soon. Sending prayers for comfort your way. You have pics and videos of your travels to Essex? I've heard so much about that place - you need to post some pics for those of us who don't get around much

Susan ~ Hope your treatment went well and that you are having a comfy week.

Jazzy ~ You found your sandals! I envy those fancy toes of yours - such pretty polish! My DS played steel drum in school for several years. I love the way it sounds. The family all pitched in to buy him his drum; it was $600 or so. His teacher had a connection in Trinidad. The drum is beautiful but took about 6 months to get here. Awesome that your teacher can hook you up with a used one. You are going to have so much fun with it!

Chevy ~ That video of the Sound of Silence was really good. I hadn't heard that version. Beautiful. Excellent advice you gave about the Jekyll and Hyde tendencies of our mens. They can be such booger heads!

Wren ~ To see Simon and Garfunkel live and from the 4th row - wow! Art Garfunkel will be playing here in a few weeks. Not the same without Paul Simon. The tickets are $80. I will pass.........

Kath and Loverly ~ My FFH also hates me hanging out here. He is forever and always a fart face. And quite often a great big poop head. I look forward to the day I accidentally back over him in the driveway ten times............(shhhhhhh)

Wenchie ~ You sound GREAT! In your pocket for your appointments. I do a double take everytime you write about an FU and BS. Makes me think someone is ticking you off! Hope your pain fades away, your feet shrink down and those drains come out! How's your mom doing? Glad your family is there to help you both.

HiHo ~ Were you having scans this week? Keeping you in my thoughts and hoping for good news.

Sensi ~ You've been in Funky Town too? I've been back and forth myself. Wish I had some wonderful words of wisdom and comfort for you. Things get chitty and then they get better. (sigh) Hope your MO is able to help you figure out a good treatment plan - one that keeps you healthy and feeling good. ((((hugs))) You have Chance to snuggy and visits with Loverly and Smaarty coming up - that's some happy stuff

JunieB ~ Jazzy found her sandals, I just know your blanket will show up next! I continue to be in awe of your strength and fortitude. Just home from surgery and walking to and from the bus stop for PT? Amazing! Hope the hip stays happy and the muscles stop getting sore. Did you go see Tarzan yet? The Secret Life of Pets looks good too. I want to go see Finding Dory in 3D. DS and I both love 3D movies; I need to see if he wants to go. I'm so happy for you to be able to talk with your sister and have such great conversations! A sister and a friend - so wonderful

Sassy ~ Hope you're keeping your nose clean! (hee-hee)

DS got the report back from his gallbladder CT. All looks good. PCP gave him the option of following up with a specialist or to continue with dietary changes and see what happens. DS is going to wait and see. So far he has been feeling good. My foot is still swollen and colorful. I can now wear a sneaker without laces woo-hoo! It would probably heal faster if Marti would quit stepping on it...........

Yesterday FFH finally installed bars in the tub. One horizontally on the back wall of the shower and one vertically at the edge to get out. Still waiting on the dang ramp.

Off to try to sleep..........

Sweet Dreams to All!

Jazzygirl

Shep- Where is everyone? Hard to say. I have been busy working and still working, but home today which gives me the space and privacy to check in here.

I will say I have had lots of compliments on my toes this week! I even saw one of the providers on my project team looking at my toes under the table at a meeting. Or was he looking at my legs? Hard to know, lol!

I have my stucco guy (there is a guy for everything at this house it seems) working to patch and repair some areas today. Getting those summer projects done day by day, week by week. I should be out a couple weeks now from the new patio set arrival. Whoot whoot. Then I need to pick a day to have my par-tay in late August or maybe even Sept. I have not had a party here in a long time and feel this summer is the time to do it.

The weather here is so hot, Hot, HOT again. Monsoons came for a bit, but then disappeared. More files everywhere and the worst of all are about 30 tanks in the fracking areas up in the four corners areas that are on fire. Not just the smoke but the toxic fumes from petroleum in that area. NM is a hot mess right now.

Wishing you all a good day and feeling positive Junie will find her green blanket.

Jazzygirl

Lookforward

Loverly no Barbie boobs for me, but I wouldn't mind her waist.

Junie nice to hear you are up and moving, I bet it feels good. Sore muscles are annoying and let's hope your counts go up. Have you started any new projects. Itis wonderful that you have a connection with your sister, how far about are you in age?

Gangster of love, yeah for shoes and tub bars being installed. I bet that foot still hurts to walk on, especially when trotted on by Marti. Good news about your sons gallbladder. I thought I was having gallbladder attacks last year, but I was fine . Doctor said he sees this in breast cancer patients, it a build up of gas from treatments and surgery , the symptoms are the same, pain ,vomiting, etc.

Jazzy you are right about repairs to the house, we need to replace our gutters and are waiting for a estimate to be done.

My DD wedding was a destination wedding In another province, we just have accept the lose. His parents put the deposit on the house where we were going to stay and they are using that to meet family that are flying across the country for the now defunct wedding.

Sensi I feel bad that you are in a funk and we all go through it. Meeting the ladies for lunch would give you some needed support

sas-schatzi

Oh Ellen's so right. Pavlov conditioning.......chocolate

All lower extremities that swell should be elevated. Good to do at night, and one-three 15 to 20 minutes periods a day. At least above heart level. A bit higher if not uncomfortable(best).

No one has clot problems, right? Then do foot pumps---toe point then bring toe back towards nose. This milks those veins. Greater the swelling the more days it takes to get the swelling down.

sas-schatzi

Je suis Nice, Je suis la France. Screw Islamic Jihadist.

JunieB

Shep - I just don't know what came over me in regards to the blue pee thing, but I just had to do it.

Glad to see you finally have the bars in the shower/tub. Now who do you have to call to get that ramp done?

Backing over your FFH would not be worth it. I think you enjoy your freedom too much. Right? Besides Marti & Pris need you too much.

Tarzan movie was amazing. I have to admit the actor playing Tarzan is amazing too. Yikes! We're gonna go see Ghostbusters next Tuesday, but will wait for the Secret Lives of Pets & Central Intelligence to come out on DVD. I promised to cook dinner on the day we rent the DVD's. Something simple like a Fritatta & a salad.

Jazzy & Shep - May miracles NEVER cease! I found that green crib blanket I've been looking for! Bottom drawer in back of closet. Go figure!

Lookie - My sister will be 48 next month and I'll be 57 in December. So approx. 8 1/2 years between us.

Yes, it does feel good to be up and around. The first week and a half home I was sitting a lot and my legs swelled up bad. MO had me take Lasix for 3 days. Legs are better now, plus I am walking more. Also, P.T. did A-Stim on my right thigh today and that helped too. It really feels like the healing is rolling along quite nicely. My 6 week post-op is next Monday.

As to new projects, I have finished 2 of the crib blankets that will be part of the diaper bag sets I'll be doing, but at the moment I am knitting a pink crib blanket for a special order from a nurse at the rehab hospital I was in. Have to have it done by mid August, but am trying to get it done by August 1st.

Patty - Sorry your experiencing so much pain in your back.

Hey Susan, Loverly, Wren, Kath, Feline and Sassy!

Oh yeah, Smaarty too. Yes I remember you're on vacation. Hope you're having a great time.

Well off to bed to continue reading my book that is due back at the library next Tuesday. Sleep well dear ladies!

JunieB

Oh Yes, here is the elusive green knitted blanket that I've been looking for for months.

M0mmyof3

Been busy this past week. Had to see the APRN at the cancer center last week. Boring as usual on that front. Had a bit of bad news over the weekend though, one of my aunts passed away. Didn't even know she was ill.

PattyPeppermint

mommy. Sorry to hear of your loss

Waving hello to all

Hootie hoo

feelingfeline

M0mmy, condolences.

PattyPeppermint

morning ladies. Hope y'all are off to a great day

Hootie oo

WenchLori

M0mmy, so sorry to hear about your loss. Sending healing prayers to you and all of your aunts family and friends 🙏🙏🙏

Loveroflife

Well, good morning, afternoon, and evening. DH is leaving today for Ecuador. Need to take him to airport and DD2 to camp. BBL ,Lord's willing. Happy Friday!!

sas-schatzi

Mamma sorry

Mommy condolences

Patty have you been following me on FB?

HI everyone, off to my other world

PattyPeppermint

sas. Yes

kathindc

Hootie hoo, Patty. Glad to see you posting.

Sorry MammaRay.

Mommy, may your aunt rest in peace.

JuneBug, happy to hear you found your blanket. I'm still hunting for my little book I keep my passwords in. That's been a couple of months now, grrr.

Lover, only you could find an orangutan dressed as a Rastafarian.

magdalene51

Greetings, Owlettes. My apologies for an extended absence, I'm almost caught up reading posts, determined not to miss anything, although there's no guarantee that any given piece of information will be able to hang on in this brain. I'm sure I have an excuse, if I could only find it. I didn't actually intend to take a break, it just sort of happened. But circumstances have brought me back to this safe place. You might note my updated signature.

To be honest, I was not really surprised when the MO told me the spot in the left lung they biopsied is cancer, though I was surprised he called me at 7:30 in the evening to do so. He warned me two years ago that my chances of recurrence or mets would be close to 50% even with aggressive treatment. So in some sense I've been waiting for the other shoe to drop for two years. It's gonna leave a mark.

My friend asked me if I cry when I tell someone about it, I said no, I've already done all that. She wanted to know how I get through it, and I told her, the same way you get through everything in life, you do what you have to do.

In some ways I feel somewhat detached from it all, almost as if I've compartmentalized it – something I've never been good at before. I have a bright spot though, a new kitty who fell into my life and won't let go. You may remember my mentioning my primary care doc and how we discovered our DHs work at the same company and know each other, well since then she's become a really good friend and advocate. She's going to try to find time to sit in on the MO consult a week from Monday (it's just downstairs one floor from her). Well a week and a half ago, she texted me a pic of this kitten that had been abandoned by the clinic. I agreed to at least foster her, since Doc said her hubby would divorce her if she showed up with another cat. She was only 5 weeks old at the time, and we bonded immediately. She's a really sweet kitty as long as she's asleep, when she's awake she's a fireball. She has no sense of personal space or table manners, and her teeth and nails are like needles – and I have torn up arms to prove it. But she has the most lovable face, and she's going to be a long hair like our last cat Rufus (before Sophie). The dogs are warming up to her, she and Rose have begun tentatively to play together. I will post some pics in another thread. I wanted to type this on the laptop before I shut down for the night and the pics are on my phone.

So I'm back, and it looks like it will be permanent this time. I have much to learn, thankful for all the ladies who have lowered the learning curve for me. (Hootie hoo Patty Peppermint!) And always for Sassy who is a gold mine of information with a solid gold heart to match.

Love you all.

Lookforward

Mags I am very sorry to hear you have progression, healing thoughts to you and your husband

Cherey

Hi, I havent shared on this topic before. I had a really emotional day today and I'm up feeling frustrated about how irritated the skin on mu left side feels now. I'm on my second week of radiation and I freaking hate wearing bras now. My other breast is a D cup so I don't feel comfortable not wearing one at all. I do use Aloe gel and it is SO soothing. I put lotion on top. I'm also using lavender oil which helps as well. At night after I put on everything and wear a cotton t-shirt it feels so much better. During the day I put same on my skin but the fabric close to my skin is irritating.

I have four more wks of this. Im not sure how to deal with wearing a bra. If anyone is up still thanks for reading.

magdalene51

Anonymous

Mags ~ (((hugs))) Glad to see you back, so sad you've joined the "IV Club". :-(

Baby kitties are the best medicine for anything. Looking forward to seeing lots of pics of your little fuzzy.

Sending thoughts of comfort and healing 🌷

Loveroflife

Mags, I have been thinking about you and wondered how you were doing. First it's Hiho and now you. Sigh. I'm glad to see you back, but wish it was under different circumstances. The kitty is so cute. I must admit she does have a lovable face and I am not a cat person. What's is her name?

Loveroflife

Did we scare JudyRN away? ShepK, what did you do?

Welcome Cherey! I didn't have radiation but I think both Jazzy and Ms. Chevy did. I think they will come along to give you advice even if you don't need any. We are good at that here.

Jazzy, I love the quote from Ellen Degeneres. Ok, we are coming to your party.

JunieB, you are one tough cookie. It has not been six week yet and you are out and about. Good for you! It's not easy to find a good church. It should not be that way. Our church is currently going through difficult time. Very sad that even churches have politics.

Sensi, you have some tough decisions to make. I would be in Funky Town too. Hugs

Kath, DH is better now when I am on BCO after we had the discussion. I realized that the little child in him just wanted (and jealous for) my love. He is an affectionate guy and loves to cuddle. I usually get on BCO with my phone before bedtime and can't type when he gets lovey dovey. I would get annoyed and he took it as a rejection. Poor guy. So, I try to be mindful of his needs. Sometimes, I hide in the toilet and pretend I'm on the throne.

ShepK, yay for the much needed rails. I wonder if the symptoms your DS is experiencing is from stress.

Loveroflife

Patty, hooty hoo. So glad to hear that the pain in your hip is better. Hopefully, the back will follow the hip and give you some relief. Praying that Xeloda is tough on those boogers.

Mamma, I am sorry

Mommy, sorry about your aunt

Lori, your post about your GS put a smile on my face. Very sweet.

Forward, I would love to have Barbie's waist too. Mine is heading its way to looking like the Michelin Baby's.

M0mmyof3

Thanks all for the condolences. I can take comfort in knowing that she is in a better place.

feelingfeline

MamaRay cancer=stress. I hope that you can find a bit of tranquility that you can snatch and hold to.

Mags so so sorry about recurrence, no words for such news. Best wishes as you make decisions about your treatment.

For your beautiful kitty - well gosh what a cutie. Please do go on the "cats cats cats" thread and post some of your pics to the adoring audience on there!

(cats cats cats is here if you are interested https://community.breastcancer.org/forum/156/topics/834322?page=66#idx_1974)

I am minding my next door neighbour's dog at the moment. My neighbour is dying. Her husband is at ICU with her as she is expected to go home to God today. I am not a dog person, but Molly is a sweet dog. I have been to TOO many cancer funerals. My neighbours recurrence was discovered very late. Girls get out there and live. (I am talking to myself here) I am going to take Molly for a walk now.

queenmomcat

Cherey: not awake but reading in sympathy! I got the short form of radiation (and I think have skin like oxhide?) but can sympathize about the needing to wear a bra! Is it ALL cloth that's irritating your poor aggravated treated breast, or just the bra?

M0mmyof3

Mags, sorry to hear about the recurrence. Kitty is cute!

Lookforward

MammaRay take care of yourself