please help
Comments
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Thanks Mel. Yes, I'm hoping tomorrow will be better. Boston is just getting nailed! I bet Tennessee is VERY hot and humid now. That will be nice is you could go and have some one on one time with your sis and mom, That's always fun to do. I bet you will miss having your son with you though. My son is 14 and I don't think I would miss him to much right now if he went away for a week. DO you remember the teenage years? UGH!!! I know I will get through it and it will get better, but boy is it challenging!
Have a great night!
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Mel, you always have the most wonderful way of saying things. So sorry about your sadness in finding your friend had passed away - xoxoxoxoxoxo
NETTIE - YEAH-YEAH-YEAH - CANCER FREE. HOW WONDERFUL.
Well off to bed soon, looking forward to getting into the pool Saturday and doing some leg /hip exercise, hoping it relieves some of the pain. Then we will have a houseful to head to the beach for the fireworks, wish you could all be here, but be happy be safe, ENJOY!!!!!!
Hope the weather up North is sunny and warm
XOXOXOXOXOXO
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Hi Guys,
Happy Independence Day!!!
We in Scotland just celebrated the 10th anniversary of Devolution and the setting up of The Scottish Parliament a few days ago! So not as flamboyant as your celebrations, but still a FREEEEEEDOM, Braveheart moment!
A very hungover me today - woke up at 10.30am -yikes, My wee cats were OUT all night ( thank god the torrential rain had stopped) and I am feeling every emotion under the sun. Mostly shamefaced, mouth feels like a litter tray, have drunk 2 pints of water and am still thirsty and .... yet ...slept like a baby. Got pure Hell from the furry, purry posse when I opened the door though. Not happy kitties.
All of yesterday feels like it happened to someone else ... including the fact that my surgeon has left. So I saw a rather hunky Irish consultant called Dermot Murphy. So we were waiting for ages - over an hour - as he had all of our medical histories to bone up on what our stats were. I am still in shock, and now hoping he hasn't made a mistake about my results!
It's my niece's 18th today, well it was on Thur, but we are having her garden party today, marquee etc and I feel sicker than I did on chemo!!! Self inflicted - shamefaced! At least if I start hurling like a champion I'll get looks of sympathy and not disgust as guests will just think I'm poorly coz of bootface. Actually, the family are all a bit worse for wear too, both because of my good news and the disappointment over the tennis result. I remember vaguely getting a call from my friend Heather in the middle of the night in tears. Checked on my log and yes, there is was. 4.05am, a 'tired and emotional' aye, right, Heather - crying about a bloody tennis match! Think she had a large money wager on Andy Murry reaching the final!
Need to go to hosp again as there is more fluid build up and need to get it aspirated before I get ready for Carol's party. She is off to Glasgow Uni in September to study Microbiology and Zoology and was top of her year at school, so we are kinda proud of her. There were 2000 applicants for the 70 places on the course because it is a springboard for all sorts of medical careers, both in human and vetinarian fields. She is a crazy, mad animal lover, so wants to be a vet. This way she can keep her options open though. Looking at 8 years of study though! She is a lovely, gentle lass, so we want to give her a nice day, and a big congrats.
Just occurred to me. Thank god I won't have to give blood today at the hosp as they would put me straight into rehab!
Now going to take some tea and anti emetics, and tread my well trodden path to Outpatients. Luckily, I only live 6 miles from Hairmyres.
With a glad heart, a thumping head and a sour stomach, I wish you , my American friends, a HAPPY INDEPENDENCE DAY and a great weekend!!!!!
Nettie xxxxxxx -
Happy 4th everyone -
Nettie - WOOHOO!!!! You have reached OZ!!!!! I am thrilled for you!!! Drink up girlfriend!
Cathi - thinking of you in sunny Florida - hope you ghget some relief in the pool and enjoy the day!!
Mel - a BIG hello to my friend, so good to see you.
Shirlann - that goes for you as well. I miss seeing you post around the boards.
Ladies- can you believe in less then 2 weeks UB & I will be with our Sue!!!!! I am soooo excited.
Enjoy your day!!
AE
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Hi everyone! Happy 4th of July!!! Hope you're all having a wonderful day filled with fun, family, friends, and fireworks!!
I'm enjoying a relaxing day at home ALONE! Yesterday was my mom's 81st birthday, and we had a barbeque over here for her. At the very end, Rhuel and Portia got into it again, and once again, I was caught in the middle. Portia left this morning to go to her Grandma's and it looks like she'll be moving in with her. I hate the thought of my baby being away from me, but I can't handle the stress anymore. I know it's not good for my health. I've been feeling like absolute sh@t for months now. I'm sure stress is somehow to blame (for a part of it, anyway). Plus, she's positively evil when it comes to her brother, and I'm afraid he's going to be scarred for life from all her verbal abuse. It's so hard. Think I'll go have a beer. Sigh............
Sorry to be a downer. I love you all and wish you all an awesome holiday!
Hugs,
Karen
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Mel, I'm so sorry to hear about your friend. I had a similar thing happen to me right before I was diagnosed. I'd been friends with a boy in High School (actually, he had a crush on me, and I didn't find out until after we graduated). I found out that he drowned while river rafting back in 1996. I hadn't spoken to him since college and it was a real shock. I grieved too. I just couldn't stop thinking about it. Then I was diagnosed with bootface a few months later. Life sure is fleeting and uncertain, isn't it? Yikes!! There I go again--being a downer!
Congrats, Nettie!! I'm so happy for you!
Hugs,
Karen
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Oh Karen, I so glad you have a choice! It will be better for all around. Maybe Portia will see that the grass isn't always greener on the other side...
{{{{{{{{{{{ HUGS }}}}}}}}}}}} (BIG ones!)
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Happy 4th of July girls. Very tired tonight. I went yesterday to my brother's cabin with my sister and her family(the one the is in from Arizona) and my brother and sil an sil and daughter. Ony there over night, back today, but for whatever reason...tired.
Read through quickly.
Nettie....YEAHHHHHHHHHHHHHHHHHH welcome to OZ dear...what GREAT news!! So happy for you! Hope your hangover isn't too bad.
Mel...Honey...great to see you, but so sorry about your longtime friend. That is difficult no matter what. Even if you had not been in touch for years, she was a dear friend and meant so much to you..(((MEL))))) Olivia made a big tri-fold poster with all the extra pictures for her party..she did a cute job. She is finally getting home tonight. Thanks for the comments on Wayne...I am really looking forward to meeting him.
Nettie...I figured Dennis would lose his hair. I know he went out shopping for hats before his first tx. I have been texting him, to keep in touch and email. I sent him a card...and his b'day is coming up. I just feel for him, because I know he is alone...that has to make it harder. I will keep praying for his healing...but stage 4...scary!
Hope everyone's 4th is going well.
Karen....I think it sounds like a good idea for Portia to live at Grandma's. Maybe even just the summer there will help. ((((( Karen))))), you take care of you...and try and destress...we all know how bad it is. I feel for you sister.
back to relax and do some laundry..no fireworks for me tonight...well...I wish...LIKE THE ONES IN MY BEDROOM....LOL!!!!
xoxo
Lisa
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Hi Girls
Just on for a second - I'm leaving this old beast on 24/7 as it takes ages booting up, so checking emails etc whenever I am upstairs. Saves the build up (203 emails when I got out of hospital). The old thing is having trouble opening up attachents, so will really need replacing!
Karen, I know a break from family strife will do you good. As kids, we had a very close and nearby extended family. My mums 3 sisters wee like mothers to us. So whenever we had the screaming meanies with beloved aged parents, we had rooms with our aunties, so it was kind of a revolving sleeping situation. And tempers calmed down very quickly. We all lived about 5 minutes away from each other. Teenage siblings often cannot breath the same air. happens in every family. Bet they will be mega close when they reach their 20's. But a wee bit of space when the hormones are zapping all over the place will be helpful. So think of this as as temporary as you want it to be, try not to treat it like a big deal (even if you feel it is) and hopefully enjoy the blessed sound of silence fro a while.
Lisa, good luck with Wayne. I love hearing your dating exploits and your unerring optimism, gives me hope for the future and a smile for the present! Hope it works out dollface. I know I said before Lisa, but FEC is cruel but wow, so effective.By the sound of it, and the number of treatment Dennis is getting, his dosage will be quite mild so hopefully the s/e will be mild too. Of the 5 of us who have had or are getting FEC in my circle, one girl was neither up nor down, one is currently being constantly sick, she keeps having to be taken it to hosp and they might not give her FEC next time, and the rest of us suffered the usual drech! Both Sharon and I now need NO MORE CHEMO, and we had very agressive cancers. the other 3 are still getting chemo. But it seems to be soooo good at killing the beast dead. I hope this helps, please tell Dennis it saved me and Sharon and prob the other 3 lassies getting it now. And hair, it does grow back. Oh yes it does!!
We are in the midst of a heatwave, having had 2 summer free years! I am upstairs for a quick shower. Got to be very careful in the sun now and keep my "at risk" arm well protected so slapping on the factor 50 - almost sun block - and then out to read for a while in the garden in the lovely late afternoon.
Can any of you gals advise me about rads? Both Sharon and I will be scheduled to start as soon as we recover from surgery and get the all clear from the Onc consultant, but we don't know anyone who has had this treatment so advice from personal experience will be really helpful. I will also be on Herceptrin for a year too - one day every 3 weeks for the whole day in hosp, 18 sessions in all. Anyone had that treatment?
Thanks for all your good wishes, I can see a light at the end of the tunnels, and it's emerald green!
Nettie xx
PS: UB & AE - when you are in the UK, can you spare a day to pop up to Glasgow? Or Edinburgh? It's not too far from Wigan, about 3 hours by car. I know Wigan, my brother lived there a few years back, in a wee suburb called Asram.
I'd love to show you a wee bit of Scotland. If you can squeeze this into your itinery, please, please let me know!
Carol (my niece) had a lovely birthday, and so did we. Managed not to be sick. Thank God for anti-emetics!!!
Off for a cooling shower ........ -
Nettie, compared to chemo, rads are a walk in the park. The side effects build up slowly, if you have them at all. They tend to be fatigue and skin irritation. I never felt the fatigue, but I did get some skin burns towards the end of my treatments.
For me, the biggest problem was the inconvenience of having to go five days a week for six weeks. The treatments only take a few minutes and don't hurt at all, but I since I worked, I had to schedule it around my normal work hours...either late in the day or during my lunch break.
I have very fair skin (Irish redhead kind), so I thought I'd be burning after my first treatment, but I actually held up pretty well. Most radiation oncologists have a favorite ointment to prescribe. Mine like calendula cream and gave away free samples, as much as I wanted. They all work about the same...just keep your rad area slathered with it after your treatments. Good luck and have no fears about it.
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was trying to post a pic from the cabin this weekend..from my files here..but I don't remember how..and I think I have to use photo bucket, which I can't access from here.
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I only read the rest of page 411. Just popping in to say congrats Netti on the good reports, you do deserve a drink or two to celebrate the good news.
I will be off line most of the this week. office is closed for the 4th of July holiday. John is letting me get on his computer occasionally this week. We are going this afternoon to see Transformers.
Sheila
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I hope everyone had a wonderful holiday weekend!!!!!
We went to in-laws so was quite the mix of family there....about 50 people with kids....was great....we grilled kabobs, ate until we couldnt walk then watched fireworks until about midnight then wondered home.
Sorry to those of you who have discovered lost friends...it is always so very sad...I lost my most best girlfriend when we were barely 21 to a clot that reached her heart...she had a 1 1/2 yr old little girl. Even though it has been all these years I still miss her and wish she were here to share in our lives together.
Nettie-CONGRADS!!!!! Rads are tiring but very easy compared to what I have heard about chemo (I didnt have chemo)....it does take awhie to get over the fatigue that they cause and be sure to get something for your stomach as alot of ladies have heart burn issues during the last few treatments.
For me-Im feeling wonderful but extremely nervous about this evening...today is the day I pitch the ceremonial baseball for the agency that I work for...David and I have been practicing until I start feeling it in my arm then stop as it is the same arm that I had the SNB and I in NO WAY want to cause lympdema(sp?).....I really, really wanted to pitch the ball the full 60 1/2 feet but its not going to happen
the best I can do is 45 to 50 ft......but I will be happy just to get the silly ball the they guy that is suppose to catch it without looking like a dork!!!!!! Wish me luck ladies!!!! I suspect that Im going to need every ounce of it that I can get!!!!!!Well, gotta run its a 3 hr drive to where the game is in Spokane so want to get a few things done at home b4 heading there....
Hugs to all
Jule
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Jule- have a GREAT time, what an experience. FUN FUN FUN
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Hi All,
Sounds like a good holiday for the most part for everyone. Karen I am so sorry for all the junk you are dealing with, it sucks, teenage girls can be such monsters sometimes - I remember as though it was just yesterday - xoxoxoxoxoxo.
The 4th was great even Dumbass said nothing stupid - AMAZING. The fireworks as always were awesome. On Sunday Ed Jaclyn and her DH worked like dogs to finish up the above ground pool we bought for the kids to have here, lots of digging and leveling and all that stuff, it's not huge but big enough for Alexcis and the others to have a grand time when we just wanna stay home, and plenty big enough for me as well to just relax in. Think it was a bigger project than Ed planned on, he is finishing up the ladder, pump filter today and then he will lay patio block around it. He is so anal that nothing can be one inch out of place, but he's not hard to work with - the kids just listen to his instruction and get it done - but he is anal. LOL.
XOXOXOXOXOXOXO TO ALL
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Cathi...anal can be good...it means the job is always done RIGHT!!
Jule...all the best to you tonight pitching! You go GIRL!!!
back to work...I think these new meds are taking effect...boohoo...I was feeling sooo good when I was not on an AI!
xoxo
Lisa
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You are so right Lisa, he does not do a job badly, I always tease him about being so anal though. He got that from his dad.
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Knock'em dead Jule!!!!
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Jule - good luck! I'm sure you'll do fine!
Nettie - congratulations on finishing chemo. Sounds like it has really done its job well. I'm glad you're having some lovely sunny weather.
Karen, I can imagine how you feel about Portia moving out for a while. You will no doubt feel torn between the peace and quiet in your household and missing her. I am sure it will work out for the best - it's wonderful that she will be with her Grandma.
Just want to wish all of you in the US a (belated) happy 4th July. Sounds like many of you had some great celebrations.
My niece is visiting me for a few days so must away.
Love to you all. xoxo
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Karen, step-family business is never easy. Portia is being perfectly normal. You were all hers for nine years. Along comes a new husband. Okaaaaaaay...maybe. But a new brother at her age??? How disgusting. Suddenly she is not only sharing you, the others need most of the attention and she's left out. Tough situation, but have faith in the good parenting you have done. It will come out eventually. I went through a somewhat similar situation. It was a nightmare. My kids and I all survived. Just barely.
My life is being turned upside down again...maybe. More later. For now, I've scheduled surgery to get larger implants and tidy up the remains of the dog ears, maybe do nipples. I don't know. I was happy with the idea of being flat-chested, and would have remained so if I had Cathi's figure.
However, I ended up concave because they took so much tissue out, and I'm ...ummm.. a bit portly, shall we say. It was the Tweedle-Dee look and I felt uncomfortable no matter what I wore. It's amazing how much big knockers camoflauge the belly! So, I just went for a one-step implant...no expander, just to correct the concaveness. I have been satisfied with the result, but they are a full cup size different. At my followup today, the surgeon explained why...I won't go into that...and said it could easily be fixed and the rest tidied up. Why am I doing this? I thought I didn't care a whit about boobs. Maybe I just need something to occupy my mind right now. Sheesh!
'nuff for now. I am checking in every day and it feels good. Thanks for being who you are, collectively and individually.
OK, just one quick Connor story: He was invited to ride in a HumVee in the 4th of July parade. He is nutty about vehicles right now. I didn't attend, but the rest of the family did. So just as the parade is to begin, he climbs out of the Hummer and says he's all done and wants to go to grandma's. Period. No enticement of glory, food, entertainment had an effect. (buttons popping here) He wanted ME more than he wanted to ride in a HumVee!!!
Love,
Judie
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Oh Judie - how lovely! I think that is so sweet that Connor wanted you instead. Just shows what a very special person you are.
I think it's great that you are having the implants etc. The way you feel about your breasts, lack of them, lopsidedness, whether to reconnstruct or not... often hard to know what to do and your feelings can change - so I think you should just do what feels right, now. For me, I am fine with being lopsided - at the moment. I may well change my opinion in the months, years ahead.
I love the photo of Connor - so pensive...Is that the HumVee he's sitting in? He's probably thinking - "Hmmm, nice - but I'd rather be with my Gran".
xxx
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Oh Judie too cute! (I hear the buttons landing!) ehhehehhehe
Glad the DUMBASS kept her pie-hole shut Cathi!
Great news Nettie!
Keep us posted Karen....
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Good Morning!!
All went well at the game last night...I did as Meg instructed.....took a deep breath, aimed and hurled the ball.....I threw it 56 feet!!!! the catcher caught it without a glitch...
Apparently they have never had a woman do a ceremonial pitch in that ball field or for the agency I represented there last night...I guess it is quite a unheard of thing....all the team and stadium staff met me as I walked off the field, each one shook my hand and expressed their thoughts on my pitch.
Im sorry for those of you having issues....and thrilled for those of you having good times....
Judy-call me anytime you'd like...Im always around to chat if you need....
At work and need to catch up with things as Ive been off since Thursday afternoon......tons of emails to go through...YUK!!!!
Hugs
Jule
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Judie...I smiled sooooooo big when I read your Connor story!! I would have my buttons popping as well! Loved it! Good luck on your upcoming surgery....I hope it all goes well..and you are very happy with the results.
Jane...enjoy your niece!!
Ladies...I am a little puzzled...but I think I have it figured out...I will take all input.
I went off the Arimidex..remember? I was off for a whole month...felt GREAT!! Little pain..had ENERGY (thank God..during grad time) and all. Anyhow...onc..put me on Aromasin. I have been on it now for...over 3 weeks...and starting this past weekend...I am NOT ME! I am TIRED...and I don't mean a little...but completely fatigued! I could sleep constantly...my bones don't ache as much as the Arimidex made them...but my muscles are "limp". I have not run in a week...too tired to get up. It's all I can do to make it in here to work! My hands hurt...like I have severe arthritis in them. I feel very weak, and out of it. I really think the 3 weeks on this...and these are my side effects. I have NO appetite, so I haven't eaten very well...but I know that's not the reason for my fatigue. Even when I do eat well...I am still dead! I decided to stop it as of today. I CAN NOT FUNCTION like this...even if it get's better...later...I can't do this until then. I see my oc next tuesday. She mentioned that after a month, if I did not agree with this pill...then I can go back to tamoxifin. I want to see if by next tues...if I don't feel better from not taking this...then I will know for sure if it was the culprit.
Back to work...slowly..hope I am doing the right thing...but I can't live another day in this tired fog!
xoxo
Lisa
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GO JULE!!!!!!!!!!!!!!!!!! WE KNEW YOU COULD DO IT!!
CONGRATS!!!!
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Judie Connor is a doll baby for sure, being Grandma is great. Also thanks for the compliment on the fiqure very much appreciated, and I say you go girl - do what makes YOU HAPPY. I have said it before if I had not had rads and the tissues damage I do have I would have most likely tried implants, but wasn't up to the extra surgeries and the pretty high risk the PS suggested because of my rads damage, I know it works for many, but didn't want to chance it. But I'm cool with it all 98% of the time, its actually pretty darn nice in the hot sticky nasty humid weather not to have to wear a bra anymore = and hell I save on laundry - LOL - Yeah right in my previous Almost B size.
Jule saound like you had a good pitch - yeah!!!!!!
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Dear Sisters
Please pray for my lovely dad he is in hospital with internal bleeding. I am very sad xxx
thankyou so much
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Oh Sue!!!!!!!!! My prayers are with you and your Dad... please keep us posted.
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Prayers for dad Sue - XOXOXOXOXOXOX
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So did anyone but me watch the Memorial for Michael Jackson???? I cried like a baby,
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