please help

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  • EWB
    EWB Member Posts: 2,927
    edited July 2009

    Sue- so sorry to hear about your Dad, my prayers are with you all. Prayers that the doctors are able to find the cause and devise a course of treatment to get him back to health!

    Lisa--not fun to live like that...unfortunately that is what most of my days are like, but I don't have lots of options; thankfully I do not have to work--that was way too difficult--so I am able to plan my days carefully and do ok. Hope you and the onc are able to come up with another plan.

    Cathi- could not bring myself to watch the memorial--I was a bit offended to be honest..but thats another story. I feel sorry for his family (children) and the mess that I am sure is coming- fighting over custody, money, debts and all that stuff. They won't be able to grieve in private.  Wonder what kind of hell he lived in all these yrs. I pray his soul finds some peace and rest, long over due.

    Hugs to everyone.

  • Shirlann
    Shirlann Member Posts: 3,302
    edited July 2009

    Yes, I watched the whole thing.  It was so very well done.  Just right.  Poor guy, he was one lonely fellow, but he did have his kids.

    I felt sad that he was probably a pedophile, but as with many of them, he did not know it.  They think that "love" covers everything, and of course, not fooling around with young kids.  I wonder if anyone sat him down and truly explained to him what was what.  So many pedophiles truly do not get it, they are very defensive and believe any kind of "love" is okay.

    I saw a political "joke", not really a joke, it was St. Peter on a cloud and the devil down below, they were talking and St. Peter said, "I don't know, lets just flip a coin".  Kinda sad.

    My big boy is doing so much better!  Going back to work on Friday.  Whew, I can breath again.

    My hip is greatly improved, I went to acupuncture after the orthopod told me I had perfect hips.  But I still could'nt walk.

    All in all, okay week.

    Hugs and kisses to all, Shirlann 

  • gillyone
    gillyone Member Posts: 1,727
    edited July 2009
    Jule is south eastern Washington. I am on the Palouse and feel you must be near me. I'd say PM me but I have no idea how to do it - still finding my way around here.
  • my3girls
    my3girls Member Posts: 3,766
    edited July 2009

    Sue....honey...I am sorry your dad is in the hospital. I will pray for him, quick healing and for the doctors taking care of him. ((((((Sue))))))).

    Off to bed...a day trip to Atlanta, early tomorrow morning.

    xoxo

    Lisa

  • cloudhowe
    cloudhowe Member Posts: 236
    edited July 2009

    Hi Sue



    So sorry to hear your dad is poorly, hope he makes a speedy recovery. have you been to the hosp?



    Nettie xxx

  • geebung
    geebung Member Posts: 1,851
    edited July 2009

    Sue, I am praying for your father and for the doctors who are treating him. I hope he gets better quickly. Hugs to you.

    Jule - well done! Sounds like you really slogged it!

    Lisa - those side effects sound horrible. I hope you feel better soon and do better on different medication.

    Shirlann - that is so good that your son is feeling better.  Hope your hip continues to feel better. 

    Love to everyone. xxx

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2009
    Jule ! You done good! Laughing
  • NancyD
    NancyD Member Posts: 3,562
    edited July 2009

    Sue, prayers for your dad. I know what you're going through oh so well. I just got through with the same stuff with my dad.

  • 1Cathi
    1Cathi Member Posts: 1,957
    edited July 2009

    Hey Lisa,

    I was just rereading your post about the extreme fatique,  I have been taking 1000mg of B12 daily (per onco) sense rads and Tamox did me in 3  years ago,  the B12 really does give me a boost and a kick in the A$$,  maybe you can T/T your onco,  once in awhile when I forget in the AM, I can so tell by 2PM,  about dead on my feet,  just a thought.

    HOPE YOU FEEL BETTER SOON - XOXOXOXOXOXOXOX

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Gilly

    if you look at the top of your screen on the right you will see a box that says "Private Messages", click on that and you will see the PM that I sent you...just reply either here or to the PM and we will chat lots I bet!!!!! Glad, but sad to see a fellow Southeastern here.

    Thank all of you for the wishes and pats on the back about the ball pitching.....it was great fun!

    Hugs

    Jule

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009
    Thanks, Jane. Yes, that's the HumVee Connor is sitting in, wishing he could be with grandma.

    Way to go, Jule! Somehow I knew you'd find it in you to go beyond your expectations. That's just Jule.

    Oh, Lisa. You are touching a nerve here. I failed Arimidex and Femara. I was supposed to start Aromasin and have put it off for six months because of all the life trauma. I saw my oncologist the other day and she really wants me to start taking it. I know it's important, but the fatigue, depression and insomnia the others caused terrifies me. I HATE BOOTFACE! No part of our lives is unaffected. It's a tough call, Lisa...keep the monster at bay or enjoy life.

    Then there's my dear Elaine who does both. You are a true inspiration!

    Sue, my heart aches for you. Your dad is such a dear and a huge anchor in your life. Somehow I think he must be a tough one and will do what is necessary to stick around.

    Cathi, I skipped the MJ memorial. I hear it was very well done. I'm going to check with my doc on the B12. I need whatever boost I can get.

    Shirlann, what a good-news double whammy! Yes, take a deep breath of fresh , lovely air.

    Welcome Gill! You'll find your way around in no time. My youngest is going to school over in that corner of the state. I got to meet Jule when I visited him last year.

  • sueps
    sueps Member Posts: 2,266
    edited July 2009

    Hi Sisters xxx

    Gosh I am so tired ... I really need a sit down job ... in all reality my head won't let me ever sit still! How will I cope when I reach 90 and my body is not in tune with my head! Do you think your mind slows down or will I get frustrated .. ? Notice I said NINETY .. for the first time I have HOPE ... a little flicker ... will turn into a warm glow with every passing day ...

    Judie you are spot on about my dad... he is a rock and seems he would go on no matter what. However I drove to work with a sad mind this morning... I dont know sisters , these past 12 months I think sad things... and something gnaws at me that there will be a sad time in the not so distant future.

    They are running tests they find something on his oesophrugus... well I am not sure how you spell it... hes having it done on Friday... he is in Lancaster about 70 miles from me but near his home in the lakes.

    He went to the toilet on Monday night and produced so much blood that they rushed him in. As you know he suffers from a blood cancer... walthonstrome... I am not sure how you spell it... it is not curable but treatable with chemo on and off... but the docs have to be careful with chemo as he had a triple by pass a bout 15 years ago... so they tend to give his blood a boost.

    Ok I am just going to think for a while

    Much love... xxxx 

  • gillyone
    gillyone Member Posts: 1,727
    edited July 2009

    Towhee - thanks for the welcome. What is your son studying?

    sueps -  I am from the UK, and if your dad is in Lancaster and you are 70 miles away I'm betting we are from the same neck of the woods, or at least I'm familiar with your neck. Want to tell? or PM?

  • gillyone
    gillyone Member Posts: 1,727
    edited July 2009

    Ignore me, I'm just trying to get this in my favorite topics and it seems I can't do it unless I post and I forgot when I just posted - aaargh. And I can only post 5 times in 24 hours as a newbie right now.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    gillyone you don't have to post on a topic to add it to your favorites.  At the top of the white portion of the page you will find an invitation to "Add to My Favorite Topics".  Just click there with your mouse and you're good. 

  • 1Cathi
    1Cathi Member Posts: 1,957
    edited July 2009

    If Only It Were So Easy For Us................ ZZZZZZZZZZZZZZZZZZZZZZZ

  • deborye
    deborye Member Posts: 7,002
    edited July 2009

    Sue, in a way I know how you feel, my Dad is elderly (81)  and has alot of health issues, he had a quardruple by-pass 12 yrs ago, has bad circulation, dementia, enphyzema etc.  He is in a nursing/rehab home right now due to a fall because he refuses to use his walker in his studio apt at the assisted living facility were he lives, he is a stuborn Englishman.  His parents came over from Tintwistle, Glossop, Derbyshire, UK.  He will be out of the nursing home by Tuesday and he can not wait to get to his apt.  he loves it there.  But in the back of my mine I know the time is drawing near, I am thinking sad thoughts also.

    Hugs and Prayers to you and your Dad.

  • gillyone
    gillyone Member Posts: 1,727
    edited July 2009

    Thankyou PatMom. I need to get my posts up to 25 then I believe the restriction will go away.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Gill, my son has a double major in theater and economics and may get a minor in geology. He's an eclectic guy! His primary passion is theater in every aspect. Acting is less appealing. Right now scenic design is catching his eye. He's doing a semester abroad in London next spring.

    I'm totally frazzled the past few days. I'm losing it big time. Bring out the net to catch me as I fall, okay? To top it all off I just read an article on the link between Lantus (a type of insulin) and cancer, particulary breast cancer. Guess who uses Lantus??? GRRRRR

    Have a good day! Smile

    Judie

  • ljb
    ljb Member Posts: 4
    edited July 2009

    I haven't heard anything about a link between lantus and breast cancer.  Could you please tell me more as I also have been using lantus for about 4 years now.  I had an abnormal mammogram, also a mammotome, & was diagnosed early April with DCIS in right breast, had a partial mastectomy in May and met with the oncologist last Friday. I am doing the CT & simulation next week & rads to follow after that.  I am still trying to decide on tamoxephin or not?  Any thoughts?  It's an emotional, scary time with lots of waiting. 

    Linda

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

     Emotional? Scary? hell yes!!! Waiting? That's the name of the game for sure. (((((Linda))))) Welcome to the yellow brick road. You'll make it!

    The article raises a need for further research, but since I'm already diagnosed, I'm going to have my doctor change my insulins.  Even if they find no connection after a few years of research, I'll feel better now and there are other insulin options.

    http://www.diabetologia-journal.org/cancer.html

  • 1Cathi
    1Cathi Member Posts: 1,957
    edited July 2009

    Oh Judie,  MORE TO WORRY ABOUT.  I swear every time you turn around something else we have been doing or taking for years is linked to cancer - WTH,  it is not safe to breath the air,  drink water, etc,  etc.  XOXOXOXOXOXOXO

  • my3girls
    my3girls Member Posts: 3,766
    edited July 2009

    girls..short post here.  Today is not much better.  This will be day 3 without the Aromasin. I am sure after taking it for a month, it will take more time to rid itself from my system. Someone from the natural thread pm'd me and said she was on the same AI that I was, and now takes a natural product which is keeping the estrogen away, with NO side effects. I pm'd her to tell me what it is!

    Cathi, I think today I am stopping at the drug store for some B12! I can't take this. Tomorrow I am having the boys over for a night with grandma. Then I have my date on Saturday night! I want to feel good!

    I have been feeling low too.  I think just because I don't feel well. In fact, it made me think about not being here.  I actually went online and made a simple will (needed too anyhow).  Now I just need it notorized and wittnessed.  I hate to think that way...but...sometimes we do.

    bbl girls...you are all my strength when I need it...and I love you all so much!

    xoxo

    Lisa

  • livesstrong
    livesstrong Member Posts: 1,799
    edited July 2009

    Hello all,

    Jule - YOU DID IT!!!  You go girl!!!  

    Judie - loved, loved, loved the Connor story.  He is adorable.

    Sue - we need an update on your Dad.  You know, UB's bootface is a blood bootface. 

    Seaking of UB - he got his CAT scan results today - the new treatment is working!! Bootface is skrinking!! woohoo!!  The scan did show something going on in his lungs (he has been complaining of shortness of breath) but the onky seems to think it is only an infection and put him on antibiotics.  We are relieved to say the least.

    One more week and we will be on our way across the pond to see our Sue!!  Sorry, Nettie, I wish we had more time but we won't be able to see you - this time!!!lo.

    A big Hello to all our new ladies - you will love it here - the best bunch of ladies I ever cyper met!

    Hugs,

    AE

  • hollyann
    hollyann Member Posts: 2,992
    edited July 2009

    Oh lovely!   Lantus now?......What next for us diabetics?....Metformin causing it too???....I sure hope not!..........

    Love the baby sleeping pic!.....he is sooo cute!!!!.....

    Well gonna break down and take a pain pill for the lower back....Heating pad is definitely NOT working!.....Bone scan supposedly showed only osteoarthritis, but I can't recall it ever hurting this much!.....Cry..........

    Hope all my beautiful slacker buddies are doing well tonight........

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    You are excited, aren't you  Auntie Em! The typos are so Freudian...giggle...

    Me, too!!!

    Can the news get any better? Big, big hugs to both of you.

    Judie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Oh, no! You fixed them. No fun...but I'm still happy!

    Hollyann, if you are taking an AI, it will speed up the osteoarthritis and it will hurt. Ain't life wonderful?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    PS to Sue...You and your dad were so prominent in my thoughts that I made a Banoffee pie...from scratch...boiled condensed milk in the can for the toffee and all. It's perfect. But who will eat it? I live alone!!!! I'm diabetic!!!

  • EWB
    EWB Member Posts: 2,927
    edited July 2009

    I'll have some..anything with boiled condensed milk for the toffee sounds fabulous!

    Such great news for UB, be sure to keep each other safe this week...you got a wonderful trip coming up. So cool!

    Hugs for everyone (gentle ones for Lucy)

  • dkhancock1948
    dkhancock1948 Member Posts: 433
    edited July 2009

    Was there someone on this thread that found an enlarged lymph node after surgery was done and rads were done? There is this lady that posted this and has had no response.  She is really anxious.

    LoriL wrote:

    Hello ladies!

    I had bilateral mast 5/28/09 with a negative Sentinel node biopsy at that time. About 2-3 weeks ago I noticed an enlarged lymph node (a little smaller than the size of a marble) but reasoned that it was from the recent surgery. I started rads 3 days ago since my margins were close, and mentioned the lymph node to my Radiation Oncologist today. He believes it is likely from the surgery, but wants it biopsied just to be on the safe side. Now I'm REALLY worried! 

    My surgeon was certain that he had identified the correct Sentinel node, but I know that they are not 100% accurate. Has anyone out there had a negative Sentinel node biopsy but then found to have cancer in other nodes???

    I was able to get in to see my surgeon tomorrow- I'm hoping he will do a needle biopsy right then in the office. I swear, this is almost worrying me more than I was before the initial cancer diagnosis! I have been breathing a sigh of relief as my Oncotype Dx was low and therefore chemo wasn't needed. But, now, my mind is just racing! Help! 

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