please help

Anonymous

Debbie

I had a lump show up after treatment ended...I had it biopsied and it was a stitch that had not dissolved from the original Sentinal Node Biopsy 4 months prior and had built up scar tissue around it...

I will PM Lori and talk with her...thank you for bringing her post to our attention!!!!!!

Jule

honeygirl

Hi everyone. Sue , sure hope your dad is feeling better. He is in my prayers. Yes , I do go to Amber's blog. She or her husband hasn't post in a while. My prayers are with her, her DH , and her sweet children. I hope she is having the best quality time possible with her family. Love to you Amber.xxxx

Jule , Way to go girl!!!!! I knew you could do it. Did you get some pics of it? If so , please post.

AE , UB , Soooooooooooo happy that chemo is working!!!! Now , I still say , if you loved me , you would take me with you to see Sue. Just sayin'...xxxx

Cathi , I hope you are feeling better. I loved the pic of Brandt. Such a cutie snoozing in the sun and water. God , I would love to do that. Hows Jaclyn doing? Any "new"news? I hope you all are having a good start to the weekend.

Lisa , So sorry to hear you are feeling bad. I hope you can find an AI or back to tamox , and you won't feel so achey and tired. I hope Grandma's night with the boys was fun. Pix please. And your date is tomorrow night , right? Keep us informed! I hope it is great.

Makraz , where are you???????????? I hope you are having fun in the sun. And that your boys aren't getting you up to early!lol Miss you.

Jane , hope you are having a wonderful time with you niece. Whats the weather like there? Is it cold and snowy? Its hot and humid here. Take care. Prayers for you and your mom.

Shirlann , glad to hear your son is doing better. Anxieties suck! Hope he is free and clear of them. Glad to hear the acupucture is working for you. Hip pain is so crippling. Glad you are getting help. Hows Walt doing? Hows the fur babies? Pics please.

Barbe , Ivorymom , Wren , Mdmouse , Nancy , Kaloni , Judie , Karen , Patoo , Hollyann , Sheila , Netts , Cheryl , Footprintsangel , And all my sisters here , have a good weekend , and know that you are loved.xxxx Mel

1Cathi

Lisa hope you feel better soon,  it takes a few days for the B12 to kick in. Trust me while I have not actually written a will yet,  I have planned my funeral several times,  and thought about who and where my things should go - NORMAL as you said.

Great news UB -  AWESOME.

Mel - you didn't mention anything about how your doing - XOXOXOXOXO Hope your down days are all up

Sue hope dad is better.

Well its off to bed,  Alexcis will be here in the AM for the weekend and swimming in our pool for the first time -  if the rain stays away that is.

XOXOXOXOXOXO Cathi

barbe1958

Lisa, what are you going to wear? How are you doing your hair? Where are you meeting? What time? High-heels or flats? Make-up or no? Come on! Tell us!!!!!!!!!!!!!!!

livesstrong

meg - potato chip fortified with calcium?????? hahahahahahaha - love it.

Mel - good to see you - sorry I expect my suitcases will be way to full - I always overpack. I give our Sue a huge hug from you.

Cathi - enjoy the pool!!

Barbe - I was thinking the same thing about Lisa - we need details!!

Hugs all around. 

bbl

Anonymous

I did a very basic Photobucket tutorial for a friend. It's a small slideshow, bare bones, no music, crude graphics, but she found it useful. I adapted it for this board in case it might be of use to anyone. I know posting photos here is sometimes problematic. (copy the link and paste it in your browser)

http://www.youtube.com/watch?v=inZILKZxbb8

It's hot in Seatle today! Hope everyone is having a great weekend (Lisa???)

Special hugs to Cathi. Regular hugs to all except AE 'cause she's leaving me behind.

And love all around....Judie

Makratz

HI Ladies,

I am back from vacation and I missed you all. 

Sue, hope your dad is getting better. 

I have a lot of catching up to do over the next few days.  It's good to be back.  Hugs and prayers to all.

Linda

barbe1958

LINDA, BABY, I missed you!!!!!!!!!!

Can you hear me now?

Makratz

I can here you now, Barb!  Missed you too!  I missed your awesome sese of humor and all the laughs you share with me!

Hope you are doing well and MIck is a rolling stone.  How did the dr's appts go??

barbe1958

Had the ultrasond yesterday finally! I see the doc on Tuesday. Mick has been a pain in the back. He's gotta go! It's still about a centimetre which is too friggin' BIG!

Have your damp spots dried up some?

Makratz

Good luck at your appointment on Tues.  I bet it's a pain in more than your back!!

Still damp and raining although we must have had a few dry days while I was away.  I usually love when July comes around and my lawn burns up, then we don't have to mow it very often.  Our lawns are all green and lush and need to be cut 2 times a week!

Anonymous

Welcome home Linda!

I missed a lot while I was away...what (or who) is Mick, Barbe? Whatever, good luck from here, too.

Makratz

Thanks Towee!  Mick is a kidney stone.  She named him after Mick Jagger!

cloudhowe

Oh AE,



I am soooooo very happy UB tumour has shrunk!!!!!!! When I saw the great big beast living in my breast shrunk from 5cm to 16 mm I cried all that night, and I didn't cry during treatment. Thye feeling of beating bootface is overwhelming, isn't it?



Sorry you can't make it up to Scotland this trip, would have loved to show you round Glasgow. It's a fabulous city. Maybe next time. I know you had a really tight schedule.



I as seeing my Onc consultant on Thur, hope he concurs with the breast surgeon about my prognosis. Still having to face rads and a year on intaveneous Herceptrin for a year.



Girls, can you advise me - I don't know what has come over me the past few days. I feel overcome with a feeling of doom and helplessness. Maybe it's an anti-climax. All of my circle are so relieved about my progress ..... and I just feel like someone has pulled the plug on me. I am more tired that I was on chemo, literally have to summon the energy to vacuum or shower or anything!!!!. I was told by everyone that neo- adv takes a long time to recover from but I am getting really impatient with myself. My cousin is visiting for a long weekend and I should be really happy as he is one of my favourite people on the planet. He has popped out for a pint with his childhood buddies and I am sitting here fighting back tears. I will try the mega dose of vitamin B12, I am a veggie, so need my B vitamins boosted anyway. I feel life has become pretty joyless, nothing is giving me pleasure. I cannot share these feelings with anyone so forgive me. I hate self pity. Money worries don't help and I will have to think about finding a new job soon, except that my energy is non existant and my confidence is shattered. Is this normal?



Sorry ignore all the above. I should be happy that I have been put on the road to restored health.



Going to have a nice hot shower, than settling down with Sunday papers. Sorry for being self indulgent girls. Good to get it off my chest.!! Talking of which, I don't even think I will need any recon. The scar is ugly but the flesh is just dimpled. Might still be post op swelling, but no real dent. I had to have the wound of the lymph removal drained a couple of times, but I am healing well. JUST TIRED!!! And SICK of it! I can't even enjoy our unusually lovely weather as it is exhausting me.



I am getting a new wig tomorrow! That might cheer me up as my old one is beginning to look tatty. My hair has started to grow back, but colourless and feels more like fur on a puppy's tummy tan hair. I'll get it shaved tomorrow. I am having to pluck my brows daily, and my lashes are back albeit shorter than before



Thanks for letting me rant. I feel like an ungrateful cow!!!!!



As always, love you lots like jellytots!!!



Nettie xxx

barbe1958

Cathi, I'm took your advice and had DH get me some B12. I went to take one, and it's 50 mg! Do I take 20 of these every day to get to your 1,000 mgs????? Or did you find BIGGER ones?

livesstrong

Hi all,

Linda - Welcome Back!!!  Missed you around here.

((((nettie)))) - what you are feeling is normal, you are comng to the end of treatment and it's only natural to feel what you are feeling.  Shirlann always say it's Post Tramatic Stress and she is right.  It does get better - I promise.

Barb - you are too funny - Mick? - hahahahahaha

bbl

hollyann

Welcome back Linda!....

Nettie gentle hugs to you......Livesstrong is right...What you feel is normal.....Although the tiredness could  be low red counts........I had gotten so fatigued from low red counts I had to have a blood transfusion of 2 pints!......And I didn't even do chemo!....I can only imagine how hard it is on you lovely ladies who DO do chemo!.......

Barbe...LOL   MICK???.......He's one of my favorite Stones!......... (pun intended!)    So glad you got your appointment with the oncologist!......How did the ultrasound go?.....

Towhee thanks for the help with photobucket........I am practically computer illiterate!......Might I suggest you start a totally new topic with this thread?.......it would be so helpful to all the ladies here......

Have a great day all!.......

NancyD

I agree with the PTS diagnosis, Nettie. We get so wrapped up in the active fight, that when a period of relative calm hits, we feel like we've been cut loose...adrift. We finally have time to digest and absorb, actually realize what has hit us. And it's another shock to our bodies. It hits us emotionally and then physically. Depression, fatigue, crying jags, anxiety are all symptoms.

You've started to recover, your hair is growing back...but it's not the same. And seeing that it's different can set these feelings off. I'm at 17 months from diagnosis... 11 months from end of chemo. My hair looks normal to others (ie, not a chemo cut) but it's not "my" hair. I think I won't feel back to my old self, emotionally, until my hair is back to the length it was when this started.

Anonymous

Oh, Nettie, how normal you sound. It's awful, isn't it? This is one place you can say anything at all, so do use us as the understanding ears that we are. You are describing a perfect clinical picture of depression. But with the experiences we share, we understand that it is part of the process and must be accepted. Do consider drugs. An anitdepressant can help move things along. This is not just depression for no reason...self-indulgent and shameful. This comes from a very clear source and is part of the battle. And it does get better.

Thanks for the info Linda. Perfect name for your tormentor, Barbe! How often do you have to take your B12 to get a thousand pills? Maybe you should get some B50s!

Lucy, I don't see a forum for help with posting. It seems like there should be one.  I just did a little visual for those who need it. I'm glad you found it helpful.

Cathedral bells are ringing...guess I should go do something, eh?

my3girls

Oh Nettie...you indulge in your self-pity all you want sweetie! We all understand and can relate...since most of us have done the same!

UB...great news!! Val...I bet the two of you are on cloud nine about now!! Have a wonderful trip! I will be in Chicago when you leave for Sue's! Travel safe..and give that crazy girl of ours a HUGE HUG FROM ME!!!

Mel...good to see you!! How are things going with you? What about your ex?

Welcome back Linda..hope the vacation was good....and that you are staying rain free! It's been pretty nice lately here in Ohio.

Well ladies...I am in constant discomfort and tottally exhausted. Cathi..I took your advice and got 2 bottles of 1000mg of B12 on the way home Thursday. Took one Fri. morning, and I felt great that day...almost like a good coffee buz. I had the boys overnight on Friday, and that went well...Alise was around to help.  Then I took one on Sat. morning, but it didn't seem to do much.  After the boys left, I layed down...and that was it for me for the rest of the day!! Tired...slept..hurt...CRAZY!

My date was cancelled.  Here is how it went.  His trip in was just from late Friday until Sat. evening. He drove in with his son's groomesmen from Rochester. On the drive in, he found out that his son had the whole day planned on Sat. He had tux fitting for 9 people in the am, then a shower for his soon to be daughter in law to attend in the afternoon...then they drove back.  He wanted me to meet him at 8am on Saturday...if I could. Well, it would have been to difficult for me to do.  So, hopefully we can work something out another time. So..tha'ts my news...lol

Living with this constant discomfort and pain. My hands feel like they are crippled sometimes. I find it hard to do simple movements. I see the oc on Tues. ...I am going to talk to her about not taking anything for awhile, and trying something natural.  I can't do this!!! She should have my results of my scans...maybe she will tell me bad news...maybe that is why I hurt.

back to work...xoxox to all!!!

Lisa

barbe1958

{{{{{{{{{{{{{{ Lisa }}}}}}}}}}}}}

I think I have to find B52's!!!!!!!!!! hehehehehe

my3girls

Thanks Barbe....I really, really really...need a hug...sure wish you were closer!! I am feeling so down about this pain....sometimes I just sit and tear up.

I just do not feel like myself.  I loved how I felt before starting this aromasin and being off the arimidex for 1 month....

I am just praying it's nothing else but the s/e's.

the b52's...lol...almost forgot about them...lol..thanks for the laugh!

barbe1958

{{{{{{{{{{{{{{{{{{{{{{{{{{{{{ BIG HUGS }}}}}}}}}}}}}}}}}}}}}}} Lisa!

Anonymous

Lisa, dealing with all the crappy ramifications of bootface never ends, does it? I couldn't tolerate the other two AIs, and have been putting off starting Aromasin. Not taking anything puts me at much greater risk, but if Aromasin causes side effects that make life miserable, how does one make a decision?

Go with your gut, dear friend. Shed the tears, Feel the hugs. I love you!

Judie

lvtwoqlt

Just checking in, I go back to work tomorrow after my vacation and my son is at work tonight so I can use his computer some. I will be busy the first few days back and not able to post, due to catching up on a week's worth of work waiting on my computer.

Nettie, I also agree that we do suffer some ptsd after treatments are finished.

Judie, glad to hear that your visit to the ball-park went well. this morning on GMA Sunday they had a story on how badly some of the presidents and other goverment officals (mayors) have done throwing the ball out at the ball park and I am sure that you didn't do as bad as some of them.

I can't remember all that I read but I am getting ready to log off. See ya'll soon!

sheila

portiasproudmom

Hi all!!  I still don't have my new laptop (Rhuel told me he had it ordered), so I'm stuck using Portia's when she's not on it.  I HATE this!!

Big hugs to Nettie (what you're feeling is very normal--I felt the same way) and Lisa.  I'm praying that your scans come back clear, Lisa.  I was convinced that I'd get bad news after mine, but it ended up being things totally unrelated to cancer.  I just know that you will get good results as well!!  Sorry your date got cancelled.  Maybe it was for the best.  You want to feel wonderful physically when you meet him, don't you??

Meg, I'm so sorry to hear about your osteoporosis.  I was diagnosed with osteopenia a while back and have been taking Fosamax.  Isn't it fun feeling like a little old lady?  Stupid bootface!!!!  I'm sure my bones were fine prior to chemo!

Well, Portia is still here.  She didn't want to move in with Grandma because there's never any food in her house.  I had to laugh at that one!  I know it's because she just loves me so much.  I'm such a fun mom, after all .  She and Rhuel have been pretty much avoiding eachother, so it's been fairly peaceful around here.

Love and hugs to all,

Karen

Makratz

Nettie,

I hope you are feeling better today.  I am sending good vibes your way.  It really stinks when you feel like that, I know I still do from time to time.  Hang in there.

Lisa, praying for good results and also that youo feel better.

Karen, LOL about Gramma having no food!  You're right, she loves you and you are a GREAT mom!

Hugs to everyone!

portiasproudmom

Hi Linda!  Welcome back from vacation! 

I'm off to fix dinner for Portia and Chase.  Portia spent the day with Grandma, so I'm sure she's starving--LOL!!  Rhuel and I were totally bad today, and ate things we're not supposed to eat, so no dinner for us.  We just have to start losing some weight.  He told me that there's no way we're both getting new, larger wardrobes.  I guess I'll either have to lose weight or keep wearing sweats all the time.  I'm such a fashion diva!!  LOL!!

Hugs,

Karen

Anonymous

"{{{{{{{{{{{{{{ Lisa }}}}}}}}}}}}}

I think I have to find B52's!!!!!!!!!! hehehehehe"

Barbe, that would be da' bomb!!!

lvtwoqlt

Just a quick pop in. I got to work this morning to find 350 electronic faxes to go through. It took me over an hour and a half to sort through them before I could start entering orders.

Sheila