please help

livesstrong

Ulla - I wish I could help you - all the tamox. did to me is give me joint pain.

Sue - I'm hungry - what kind of chicken sub's do you have???? 

AE 

Anonymous

Thank you AE.....

I feel like such a whiner about these appts.

I will post pics of the house after I get it painted...I have stripped all the old siding off and it really does look like a run down shack!!!!!

and I will post pics of my flower beds when the roses start to bloom

Anonymous

Jule, it's not the house, it's the character that shows through. I'll bet I'd love your house, stripped siding and all because it reflects you. And I, too, am rooting for NED to show up at your door. You know that you must report immediately, don't you?

AE, I sent you a PM. Your Christmas mantel is beautiful. I especially like the banner. Doggone you, now you've got me hungry. I wonder how late Subway is open. It's 9:20 pm here...probably too late.  

Hmmm...I don't know if the house is a bungalow. What defines one? It's a smallish two story with dormer windows in the three bedrooms upstairs. The main floor is living room, kitchen, family room, laundry and half bath. It's a very typical design in this area.

Your dogs would love the inside, but forget playing in the yard...it's full of house...the largest house legally allowed for the lot. But they would have fun running up and down all the decks!

Off to start a new book. Since my eyes lost some of their sharpness and it's hard to find a place with enough light and comfort to read books, I "read" them on my mp3 player. It's so cool. Go to the library web site, find book, download, listen. It even checks itself back in. Perfect for lazy people like me! And I can read while I walk, wait for appointments, shop for groceries, and drive.

Judie 

portiasproudmom

Oh my goodness, ladies!  You have been busy today!

Ulla, I'm so sorry that the tamoxifen is causing you nausea.  I'm so lucky--so far, I've had no negative side effects from it at all.  I hope it's just temporary, as Lisa said. 

Judie!  You live in a mansion!!!  Please pm me the link--I'd love a tour of it.  It's absolutely gorgeous!  However, I have to say that your daughter's cozy little house would be more my style too.  It's so charming and inviting.  I love it!!

Lisa, your house is so pretty too!  I LOVE your favorite tree.  Flowering trees like that are gorgeous.  We had a huge cherry tree in the front yard at our old house.  I loved its white blossoms.  I think I want a pink one at the new house though.  Maybe we'll get a white AND a pink one! 

Jule, I hope you start to feel better!  Good luck tomorrow.  I'm sure you'll be just fine!  Please check in asap to let us know how things went.

Well, it's late and I'm sleepy.  Take care everyone!  I love you all!

Hugs,

Karen

portiasproudmom

Ulla, I loved the pics of you and your family.  You are so glamorous!  The flippy hairdo was so pretty on you.  I liked the reddish tint.  Very flattering!

Love and hugs,

Karen

lvtwoqlt

Jule, I am with you, My house is a small (800 sq. ft.) mill house that was built about 50 yrs ago and needs a lot of repair. Also I am not very good with the interdecorating. My furniture, when I moved in was everyone's castoffs. I was a single mother  moving out from her parent's house with a 5 yr old, 2 beds and 1 dresser and one cedar wardrobe, no living room furniture or kitchen table and no money to purchase anything new.

Sheila

NancyD

OK, ladies, I'm trying this photobucket thing. Hopefully, you'll see a picture of my home.

My parents bought this in 1960 when they had five children. The family grew to seven kids over the next couple of years. We've added an enclosed porch on the back which is our summer living room (I'll try to get a shot of that when the yard's picked up), and other than an extension to the kitchen, we've made do with four bedrooms as siblings have moved in and out over the last 45+ years. Currently, it's inhabited by my father, myself, my daughter, and two of my brothers who each have a daughter who occasionally stay over for a visit (one lives so close it's not really necessary).

Well, this seems to be successful so look for more pictures from me soon.

Ulla, I think your family is so beautiful...all of them, they're just gorgeous.  

And Jane, yes, you have the winning boys! Hotties...good thing they are thousands of miles away or I know some young ladies that would be looking for introductions. Are they interested in pen pals? LOL.

portiasproudmom

Ooooohhh!  I'm a sucker for bay windows, Nancy!  What a pretty house!  Seeing all your lovely homes makes me more excited about building our new one.  My dh has done some more research and has found that the interest rate for a construction loan may be lower than he originally thought.  That means we can probably afford a bigger house.  I'm thinking 2,800 sq ft would be plenty big.  The house we had designed for us last year has 3,600 sq ft of living space.  What the heck were we thinking???  Portia will (hopefully) only be with us for another three years.  Why would we need a house that big for the remaining three of us?  More for Mom to clean!  Forget that!!!!!!!!

bbl.  Have a wonderful day, ladies!

Hugs,

Karen 

portiasproudmom

Monte Cristo

Here's the house we're seriously considering. Looks a little bit like Beaver Cleaver's house, but that's okay!

Oh poop!  Click on the x's and look under the Autograph Series at the Monte Cristo.

Shirlann

Oh Wow, all these gorgeous women, delightful families and lovely homes!  This is great, now we can really know where each of us is each day and where we come from.  What fun! This giant pix is on Safari in Tanzania.  Hugs, Shirl

Shirlann

Now here is a poor photo (they are very hard to take) of my grandaughter in Mexico with a huge grey whale right at the boat's lip.  They come right up to you, you scratch them, they feel like inner tubes.   Hugs, Shirl 

geebung

Love your home Nancy - I really like wooden houses (we call them weatherboard here). You must be crowded when everyone comes to stay! I have a small house but there is a flat out the back which increases the number of rooms. The yard is too big for me now and I'm looking forward to downsizing.

Shirlann - your photos are great! Imagine getting that close to a whale - I would adore patting one. Lasst winter we went whale watching and I was so excited - one of the best experiences I have ever had. A whale (a humpback) breached twice in front of our boat. It was exhilarating! 

Hi also to Sue, Melody, Wren, Karen, Lisa, AE & UB, Mia, Dawn, Ann, Sheila, Judie, Jule, Ulla, Valsul and everybody.

Love to all

Jane xxx 

honeygirl

Well , I can truly say , I know all the beautiful women of the world! I am just in awe of you all. And Jane , were you ""10" when you had you're sons!?! You look crazy young for having children that age! And yes , they get my vote too for being very handsome. Is it Heath with the long hair? Is it still long? I love long hair on guys. If they wear it well. And he certainly does! Sue , I love the one of you as a little girl. So cute. You are such a petite thing! Simply lovely you are. Your house is lovely. I pictured you more in the country though.

Ulla , I love your flat. And I LOVE your livingroom curtains/drapes. Red in a kitchen is my favorite. You're whole family is so striking. Very glamourous. I love your dresses. You are very chic.

Karen , can I rent your house!?! That is just the right size for me. And its very lovely.

Judie. Wow. Yes , that is a masion. Very beautiful. That being said , I dearly love your daughters home. Picture perfect to me. Let me know if she is taking any boarders in!

AE , Shirlann , love the condos. AE , I like the brown bedroom. And your Christmas mantle is so pretty. Shirlann , glad you were able to download your pics. Thats a great action shot of Dusty. All your children and extended family are lovely.

Lisa , wow , your home is darling. That was so nice of your friend and sister to redo your bedroom. Its goregous.

Nancy , You have a big lovely home. I think its nice to have family able to come and go. Like a home base. I hope you are feel better with the SEs.

I'm gonna go look through the pics again...

geebung

Oh Melody, you are such a dear sweet thing! I wish I could meet you...maybe one day! Yes, Heath is staying with me at the moment but is sure to get itchy feet again soon. He is probably the easiest of my sons to live with so it's lovely having him here. But then, I am happy for him to go too as I like them to be out there growing and learning and working.

I often fanasise about a big house on the beach where we could all meet and talk and play for a few days...it would be like a reunion because I have really started to get to know you all already! 

Ulla

DEAR SISTERS ..

TODAY WAS NOT MY DAY AT ALL,,IT WAS MORE THAN HARD..

I HAD MY 6 WEEKS FOLLOW UP WITH MY RAD ONC,YESTERDAY AS U ALL KNOW HE GAVE ME THE TAMOX AND THE INJECTION BUT I DIDNT WANT TO TELL U HOW AWFULL WAS THE APPOINTMENT WAS I THOUGHT I CAN FORGET IT AND JUST GO ON BUT I CANTTTTTTTTTT.NOW I WILL TELL U EXACTLY WAT WAS THE CONVERSATION,,,,

1.HE ASKED ME NOW HOW DO U DO WITH THE PILLS??DUH??

I SAID I DONT TAKE THE PILLS ,,HE SAID WHY???DUNG??HE FORGOT WHO I AM AND FORGOT THAT WE AGREED THAT I NEED REST TILL I C HIM AND DISCUSSE THE TAMOXIFIN AND START IT ..I FELT REALLY BAD TO REMIND HIM WHO THE HELL I AM,,

THEN HE WANTED TO MAKE IT WORSE SO HE SAID OK ITS NOT A BIG DEAL!!!!!!!!!!!AND STARTED TO READ ABOUT ME ON HIS COMPUTERTHEN HE SAID ,,,

I WOULD LOVE U TO TAKE THE TAMOXIFIN PILLS DAILY AND I WOULD LOVE TO GIVE U SOME INJECTIONS TO SHUTDOWN UR OVARIES CHEMICALLY COMPLETELY ,,I FELT LIKE I WAS DYING THERE LISTENNING TO HIM TALKING IN THIS INSENSITIVE WAY..

I FELT ITS SO MUCH FOR ONLY 30% ESTROGEN +VE AND 15%PROGESTERON +VE..NO ONE HAVE TALKED WITH ME ABOUT SUCH INJECTIONS I WAS SHOCKED ..BUT I JUST SAID DONT U THINK IT WOULD BE TOO MUCH SIDE EFFECTS FOR ME ??HE SAID OK U CAN HAVE THE PILLS ONLY ..GRRRRRR...WTF IS ALL THAT ???

AM TALKING TO MYSELF???HELLOOOOO ANY BODY HERE???

THEN I BECAME VERY EVILE AND THOUGHT THAT I NEED TO PLAY ON HIM ,,SO AT THE END OF THE MEETING I SAID ,,I WOULD PREFRE TO ATTACK IT AGRESSIVELY ,,SO I WILL TAKE THE PILLS AND THE INJECTIO ,,HE SAID THATS OK AND GAVE ME PRESCRIPTION FOR BOTH,,CAN U BELIEVE THAT???

I TOOK MY MEDICINES AND WENT HOME ,,I TOOK MY 20MG TAMOX YESTERDAY NIGHT ,,GOD I FELT HORRABLE,,I DONT KNOW EVEN IF IT WAS TAMOX OR JUST MY MIND,,I SATRTED AFTER AN HOUR TO FEEL SEVER NAUSEA..I COULDNT SLEEP AT ALL AND WEN I DID FOR 2 HR IN THE DAWN I WOKE UP CRYING AND KEPT CRYING IN THE CLASSROOM IN THE SCHOOL AND WALKING BACK HOME CRYING AND EVERYTHING WAS BLACK AND DARK AND SCARY,,I WAS REALLY CRYING ALL THE DAY,,JUST CRYING AND I WAS IN NEED TO TALK WITH ANYONE,,SO I ASKED FOR MY SOCIAL HELPER ,,I TALKED WITH HER FOR ABOUT 2&A HALF HRS AT LAST SHE SAID ..U R SO HIGHLY EDUACTED AND AM NOT REALLY QEUALIFIED TO HAVE THIS CONVERSATION WITH U WE NEED TO ASK FOR A DOCTOR HELP...DUHHHH

I LEFT HER CRYING AND STILL NEED TO TALK,,A STRANGER IN A STRANGE COUNTRY KNOWING NO ONE AND DONT KNOW WER TO GO..MY DH IS IN A BUSINESS TRIP ,,AM ALL ALONE..

I WENT TO THE GYM ,,TO A LADY WHO USED TO BE A RAD NURSE BE4 SHE WORK HERE,,I TALKED WITH HER FOR ABOUT ANOTHER 3 HRS ,,AND I FEEL THAT I HAVE MADE A DECISSION BUT NEED UR DISCUSSION AND SUPPORT,,,

I WILL NOT TAKE THE TAMOX OR THE INJECTIONS ,,I FOUND THAT IT WILL SYTILL BE RISKY AFTER I TAKE OR EVEN WHILE I AM TAKING IT,,I FELT THAT THE QUALITY OF LIFE IS MUCH MORE IMPORTANT FROM ITS LENGTH ,,AND IF THE LIFE THAT THIS DRUG WILL GIVE TO ME WILL BE SOMETHING LIKE THAT ,,I DONT WANT TO LIVE IT AT ALL..I DO CARE ABOUT HAVING A 2 YEARS FEELING HAPPY AND HEALTHY RATHER THAN LIVING 5 YEARS FEELING AS I DID YESTERDAY AND ALL TODAY ..THE PROBLEM IS MY TUMOR RESPOND IS WEAK,,THERE IS ANOTHER 70% OF MY CANCER CELLS WHICH NEVER RESPOND TO THE HORMON,,WHICH MEANS SO MUCH IF U LOOKED TO THESE FACTS DEEPLY..

NEED ANY ONE TO SHARE WITH ME ,,PLZ HELP

geebung

Thank you for the compliments Mel.  I actually have lots of wrinkles around my eyes... I think I look my age close up! That's why I wore my glasses in that avatar photo - they make me look younger!

NancyD

Oh, Ulla, to make a decision like that without your husband there...it's very scary and very strong. At least, don't put the idea of tamoxifen completely out of your mind until your DH returns.

I know you have the deep desire to have a child, and the dr seems to be discouraging it completely. Maybe it's time to think "outside the box" so they say. Maybe there are other ways to have your dream child...and then you would have a life worth living for, tamoxifen and everything! 

Ulla

DEAR NANCY,,PLZ TRY TO FEEL ME..ITS NOT ABOUT BABIES AT ALL..ITS JUST ABOUT THE QUANTITY OF THE LAFE THAT I WILL LIVE SINCE GOD DECIDE TO TAKE IT,,

I DONT WANT TO LIVE FEELING LIKE I DID YESTERDAY AND TODAY,,I JUST CANT TAKE IT ...IT WAS HORRIBLE FOR ME ..AND THE NURSE SAID IT SE ARE REALLY STRONGER ON WOMEN UNDER 40..

THE ONC TOLD ME THAT THEY DONT GIVE IT TO PATIENT WHO HAVE 10% +VE I AM 30%OK I CAN TAKE THAT RISK..I JUST CANT TAKE IT AND FEEL LIKE I DID

NancyD

I can understand not wanting to feel bad from the medicine. Pain and other s/e's can make life unbearable. Was it worse than chemo se's?

I have been in natural menopause for several years, so some of the se's that would come with tamoxifen are just part of my normal everyday life. I've learned to deal with hot flashes, sleepless nights, thinning hair, and menopause weight gain. But those sound minor compared to yours.

I'm so sorry that they have been so bad for you.  Can you see a different dr? 

geebung

Ulla, poor darling... I feel unqualified to help because I am not on tamoxifen (even tho my bc was 84% positive for ER). Just wanted to send you my love & support. It is a hard decision to make but you must do what is right for you.

xxxx Jane 

Shirlann

My dearest Ulla.  Honey, how about trying the drugs for just a few weeks?  Then, if things stay this bad, stop them.  Very often your body needs to get used to new drugs, and it will.  Just another idea.

I am so sorry you are so alone, dang it, I wish we were closer, you need your family near by.

Whatever you decide, it will be fine.  You just do the best you can, and if plan A won't work, go to plan B.  Since no one has a crystal ball, no one can tell you for sure just what will happen.

Just know you are loved here, and we all care about you, and you are precious to us.

Gentle hugs, Shirlann

AnnNYC

Ulla,

I hate when doctors can't remember who I am or what my story is!  At the very least, they should look at your chart to refresh their memory before you come in the room!

If you want to speak to another doctor, I think that would be a great idea.  My recollection of starting tamoxifen is that my doctor told me to start with 10 mg every other day for a week (or two???), then 10 mg every day for a week, then 20 mg a day.  In fact, there seem to be reports that 10 mg/day or 10 mg every other day might be as effective as 20 mg/day to prevent recurrence.

There is also the issue of genetic testing for the CYP2D6 alleles -- the gene that produces the liver enzyme CYP2D6, which is responsible for metabolizing tamoxifen into the active metabolite endoxifen, which is what provides the protection against BC.  About 7-10% of the population have two "null" alleles and are poor producers of CYP2D6 -- and therefore poor metabolizers of tamoxifen.  Apparently there is controversy about whether to test premenopausal women for this allele at all -- but if you are already having strong feelings about not taking tamoxifen, finding out how well your body metabolizes and uses this drug might be something you want to know.

If you want me to send you some links about these studies, let me know.

Hugs,

Ann

geebung

Great advice from both Ann and Shirlann. I hope this makes your decision a little bit easier Ulla. Big hugs to you and please know that I am thinking of you.

Love Jane xxxx 

honeygirl

Hi Ulla. Big , big hugs to you honey. Ulla , no one can make you take the drugs. If your gut is telling you no , then don't take them. Its your life. You are the only one who is gonna live it. You have to do what you want. You have done everything the docs have asked of you. And all you went through without any antidepressants. I think that was cruel in its self for the docs not to give any to you. And then tell you to be strong and do more of what they want. Doctors take an oath to preserve life. They are doing what they are suppose to. But they go home everynight and live their lives. And thats what you have to do Ulla. Its your body , your life , your decisions. Whatever you decide , you shouldn't have any regrets. So my suggestion , is to gain as much knowledge about the whole situation. Take some alone time and try to clearly think of all that is involved with your desision. What ever you decide Ulla , I , and I'm sure all your sisters here will stand with you and walk beside you no matter where the road takes you. Love you honey , xxxx Melody

livesstrong

Ulla, for what its worth - I'm with Shirlann - give it a month - if you still feel the same way- then change things up if you think its right.  At the very least, wait for your DH to come home and discuss it with him.

I was on tamoxifen for a year - they only problem I had was joint pain - it made me feel like I was 100yrs. old - BUT - I didn't stop taking it  - I just learned to live with it.  I'm on Ameridex for 2 months now (because of my age) and I don't feel nearly as bad.  I figure it's a a small price to pay for keeping bootface away!!

I've never even heard of the injections - is this new??  I'm confused about that.

Anyway, I think you should just hold on till your DH comes back. 

AE 

portiasproudmom

Ladies, can you all please say a prayer for my dear little niece, Jada.  She's been ill for several days, and today she wouldn't wake up from her nap.  I don't have details about what they think is wrong with her, but she's hooked up to an IV and the docs seem to think she'll be okay.  I'm sitting here, shaking like a leaf, scared half to death.  Please keep her in your thoughts and prayers.  Thanks so much.

I love you all.

Karen

portiasproudmom

Whew!  My mom just called again and it looks like Jada has the rotavirus.  She must have been severely dehydrated, and that's why she was so weak and wouldn't wake up.  Chase had it when he was 18 months old (same age Jada is now) and we had to take him to the hospital.  He was hooked up to an IV for fluids too, but didn't have to stay overnight.  Anyway, she finally woke up, and it looks like she'll be fine.  What a relief!

Hope you're all resting peacefully.

Hugs,

Karen

Anonymous

Oh, Karen! How terrifying. I would have had trouble sleeping if you hadn't written the second post. What a relief.

Ulla, I think you are well within the area of reason. With such a low percentage of hormone dependence, I'd think about it, too. Is there any way to get statistics out of your doctor or health workers? If taking Tamoxifen increases your odds by 1 or 2 percent, why go through it unless you are driven to do every possible thing. It is you decision, and either way is very reasonable. 

Quality of life was why I declined chemo. The standard chemo would give me 3%. Aggressive chemo goes up to 5%. I am 64 and have a chronic autoimmune disease. The chemo would probably affect my well-being for the rest of my life and could even make me bed-ridden. It was an obvious decision for me. If I were the age of most of you guys and in good health otherwise, I'd be right there with the rest of you, lined up for the needle. One must weigh one's values.

I wonder if Tender has access to the numbers. I haven't seen anything about the benefit of Tamoxifen related to degree of hormone dependency. It would be most interesting.

In the meantime, here's my reaction to all your tears...

One day at a time, my dear, one day at a time.

Hugs,

Judie 

Ulla

DEAR SISTERS ..THANKS FOR UR ALL SUPPORT ,,IT SEEMS THAT I AM PASSING SOME DAYS WORSE THAN THE CHEMO OR RADS DAYS,,DH JUST CALLED ME FROM MY FAMILY HOME AS HE IS WITH THEM AND HE CRASHED THERE AND COULDNT HELP TO KEEP IT AWAY FROM MY FAMILY,,HE TOLD MY DEAR MOM AND FATHER AND THE OLDER SISTER EVERYTHING ABOUT MY ILLNESS

AND MOTHER IS DEVISTATED ,,SHE IS VOMITTING ,,CRYING HYSTERICALLY WITH DISBELIEVE ,,HER BLOOD PRESSURE JUMPED TO 18/10 ,,SHE TOOK THE PILLS FOR IT AND COULDNT KEEP IT IN HER STOMACH..HER PULSE IS JUMPED FROM 66 TO 88 IN 5 MINUTES,,THEY MANAGED NOT TO TELL MY LIL SISTER AS SHE IS SO FRAGILE AND WILL HAVE HER HIGH SCHOOL EXAMS WITHEN 3 DAYS SO BETTER NOT TO KNOW NOW..

I WAS ON THE PHONE ALL LAST NIGHT AND TILL NOW ,,EVERYONE I SPEAK WITH IS CRYING AND I AM TIRED AND SICK OF CALMING DOWN EVERYONE AND BE THE MOTHER FOR ALL OF THEM ,,MOTHER PHONED MY SISTERS IN UAE(DUBAI)AND TOLD THEM WHO CALLED ME SO CRYING AND TRYING TO KNOW AS MUCH AS POSSILE,,IT WAS VERY HARD FOR ME TO TELL EVERYONE EVERYTHING SINCE THE BEGINNING,,I FEEL SO TIRED AND IT IS SO UNHELPFULL FOR ME WHEN I AM TRYING TO FOCUS AND TAKE A DECISSION ABOUT TAMOX..

ANYWAY 2 OF MY SISTERS R DOCTORS ,,I TOLD THEM HOW I FEEL ABOUT IT AND THEY JUST SAID THAT I SHOULD BE CONVINCED WITH THE TREATMENT SO I CAN MAKE USE OF IT COZ THERE IS NO WAY THAT IT WILL BE USEFULL FOR ME AS LONG AS I STILL FEEL SO BAD ABOUT IT,,

NOW FROM ALL WAT I HAVE HEARED I WOULD LOVE TO ASK FOR HELP ABOUT NUMBERS AND STATS,,OF THE BENIFITE OF TAMOX RELATED TO THE PERCENTAGE OF HORMONE RESPOND IN THE TUMOR CELLS,,AS JUDIE SAID I WOULD NEVER GO FOR A 2%OR EVEN 3%,,U KNOW THAT I ACCEPT THE RISK MORE THAT THAT,,

THEY TOLD ME THAT I ALLREADY HAVE THE RISK OF RECURRENCE 35% EVEN AFTER I TAKE THE TAMOX,,SO IF I DIDNT TAKE WILL THE RISK BE 45% OR 50%..I WOULD PREFER TO GO WITH THAT,,SOME TIMES THE ONE NEED TO PICK A RISKY CHOISE AND ENJOY THE GIFT OF LIFE,,I WOULD PREFER TO LIVE SHORT BUT HEALTHY AND HAPPY MORE THAN TO LIVE LONGER BUT SUFFERRING SEs,,I AM REALLY TIRED AND I WILL TRY TO KNOW MORE AS I HAVE ANOTHER APPOINTMENT WITH MY SURGEON FOR FOLLOW UP NEXT MONDAY,,AND WILL WAIT DH TOO..IF I COULD TAKE IT AS U SISTERS SAID ,,1 EVERY OTHER DAY THEN 1 EVERY DAY THEN TO HAVE THE GOD DAMN 20MG PILL DAILY I THINK IT WILL BE EASIER FOR ME,,THE MAIN THING THAT DRIVED ME CRAZY ABOUT IT IS THAT IT WAS AS BAD AS CHEMO FOR ME..I FELT THE SAME SEVER NAUSEA..HEADACHE..AND DEEP DEEP SADNESS AND DEPRISSION ALL THE NEXT DAY THAT I NEVER BEEN ABLE TO STOP CRYING AT ALL..I WAS WALKING AND CRYIG IN THE STREET LIKE A CRAZY WOMAN THE PASSING CARS WER SLOWING DOWN HESITATED TO ASK WAT IS WROUNG WITH ME,,I JUST FELT SO MISRABLE AND COULDNT FEEL ANY BETTER TILL LAST NIGHT WEN I FELT ITS OUT OF MY BODY,,THEN I RECIEVDE THAT PHONE CALL FROM DH AND THE ALL CRYING FAMILY WHICH TURN MY ROLE FROM BEING THE CRYING ONE TO ACT AS THE MOTHER OF ALL..

I WOULD LOVE TO HEAR FROM ANYONE KNOWS ABOUT THE NO,S AND STATS IN CASES LIKE MINE WEN THE HORMONE +VE RECEPTORS R SO LOW LIKE IN 30%??WAT IT WOULD GIVE ME??

MEL??UR 84%HORMON +VE WHY U R NOT ON IT??I WOULD LOVE TO KNOW PLZ..

ANY WORD CAN MAKE A DIFFERENCE FOR ME ,,I FEEL THAT ITS JUST TOO MUCH FOR ME ,,I AM SURE IF IT WAS 50%AT LEAST I WOULD GO FOR IT ,,BUT THEY EVEN DONT GIVE IT TO PAITENT WITH 10%SO WHERE THAT PUT ME??

I WOULD PREFER TO IMAGINE AND BELIVE THAT I AM A WOMAN FROM THE 1950 WHEN THERE WAS NO TAMOXIFIN AND STILL THERE WERE WOMEN WHO COUD LIVE AND MAKE IT,,,

I AM SO SAD,,CONFUSED AND VERY DEPRESSED ..

EVERY SINGLE WORD FROM U WOULD MAKE A GREAT DIFFERENCE FOR ME..

THANK U SISTERS FOR ALL UR WORDS..

KAREN U TOOK MY HEART OUT WEN I READ UR POST ABOUT PRINCESS JADA..I REALLY FELT BETTER WITH UR SECOND POST ..AND I TOO WOULD HAVE SERIOUSE PROBLEM IN MY MIND IF U DIDNT POST IT,,THANKS AGAIN ..PLZ GIVE HER A KISS FOR ME WEN U C HERE

NancyD

Ulla, with two sisters who are doctors, you will probably have a lot of medical advice from them that should make sense. Now that they know about your condition, I'm sure they will be in their medical libraries for hours looking up something that will help you.

If the tamox made you that crazy (nauseous, crying, depressed), then yes, it might come down to a quality of life thing. But definitely work with your doctor to try and ease it into your body.  If it doesn't work, it doesn't work, but a few weeks of trying may be worth it.

I know we in the States say things like "change you doctor" all the time, but it might not be possible in other countries that have socialized medicine. However, your doctor must have some kind of supervisor...or the hospital must have some kind of system set up to deal with situations where doctor and patient just don't match up well. Talk to the social worker again about what system they have that might help you get another opinion, or another doctor that would work with you and your special needs. Obviously, your body is not reacting normally.