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  • my3girls
    my3girls Member Posts: 3,766
    edited March 2008

    Good morning sisters.

    I am sorry I was away for such a long time.  I am not feeling well at all. The day after my last post, I woke up with a horrible headache, and upset stomach.  I went to work, the day at the airport was unbelievable! I felt terrible the whole day.  I came home and went to bed. I called in sick yesterday, and I am not feeling much better today.  My head only get's reliefe if I take a Excedrin migrain pills. I have to force myself to eat, nothing sounds good or tastes very good.  I am drinking alot of water though.  Olivia picked up my Eflixor last night. I just took 1 pill (it's 2 pills a day) and I took it on an empty stomach.  I now feel like I will get sick.  Not sure if it's the pill, or just my upset stomach. I so badly want to feel good again!!!!! This is so hard for me. I hope what I am experiencing now, is just a bug of some sort.

    Yesterday, since I stayed in bed, I finally read "Nordies at Noon".  I am glad I read it, but maybe it was not the best time, given my state of mind.  I enjoyed it very much.  But at the same time, it freaked me out.  The two ladies in the book...Patti and Jana...for those of you who have read it...they have the same dx as me!!!!  After hearing about my friend Jill....I am tying my best to stay positive...but it is very difficult to do.

    I think reading the book, and seeing how strong these young ladies are, and how their faith in God has helped them so much...I am trying to take on a new attitude.  I think this will be a slow process.

    Sorry about making any of you worry.  I just couldn't physically sit here.  I read all the posts..and I have to thank you all for your concernes, and thanks for the many smiles you brought to my face. 

    Karen, I have read that post you made...about sisters etc...I love it!

    Sue...I hope you are doing well since your last tx on Tues. Only 5 more.

    Ae & UB...thinking of you so much!  I love the hair!!

    Mel...thanks for the corona's...I think Ill save them for when my stomach can handle them.

    I'll check in soon.  I am really feeling weak, and nasueas.

    xoxo

    Lisa

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2008

    I just remembered something, back in the 70's there was a 'theme park' in Banner Elk (about 1.5 hour drive from my house) that was the 'Land of OZ'. I never went to it because it closed before I moved to the foothills. From what I hear about it, it was more of a nature walk through elaborate scenery from the movie starting in Munkinchin land and ending up at the Emerald City. They do open the park every October for one or two days. I did find this site that has information about the tickets and when it is open. there are also comments from people who attend this event.

    http://www.roadsideamerica.com/tips/getAttraction.php?tip_AttractionNo==3764

    Maybe one year we can all meet here and go up for the day, and all travel the yellow brick road together?

    Sheila

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Lisa

    http://community.breastcancer.org/topic/61/conversation/701922

    ARE  YOU ON TAMOXIFEN xxx

    You may have to copy and paste the link in your browser 

    Please rest up xxx I wish I was with you xx

    Sheila ...you have made my day with this link...I am gonna have a cuppa and read xxx THANKYOU A MILLION X

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2008

    Glad I made your day. This park is only open once a year now and it doesn't get much advertising locally when it will be opened but people come from all over just to go up the mountain the days it is open. When Jule said that she was within touching distance of the shoes, a light went off and I remembered about the Land of Oz. It closed in 1980 due to a fire and they never reopened to the public except for once a year, and that only started about 6 or 7 yrs ago.

    Sheila

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2008

    Hi ladies,

    I FINALLY have my neoadjutant treatment plan. TAC every three weeks for three doses, possibly a fourth if they see a need. If my pharmaceutical insurance OKs the drugs, I will start in a week, but I've been forewarned by my onc's office that this particular company (Medco) will stall for TWO WEEKS before approving the treatment. Have you ever heard of anything so inhumane?

    Well, my sister will be burning up the phone lines tomorrow trying to get them to approve the drugs immediately. I've been pretty patient with all the delays for tests and pre-treatment prep, but darn it, I WANT THIS PARTY STARTED.

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  • Wren
    Wren Member Posts: 324
    edited March 2008

    Lisa, I'm so sorry you have been feeling sick. I think there is a bug going around that makes you feel nausea, etc. I had it for about a week and a half... just couldn't eat and I was very dizzy... Try to just eat things that sound like they will agree with you, even if it's rice and crackers all day or something.  I hope you feel better soon.

    Sue! I'm so happy for you getting your back pay so you can go do something fun with your boys. What a relief to finally get some help so you can =be= sick at home to recouperate if you need to be. I'm just so relieved.  I think you will have a load off your mind in one way or another now, even though I know you will work and work and work...  Now, hopefully those steroids will stop keeping you awake.

    Nancy, glad to hear you at least have a plan. I think I have Medco too...  they may be slow, but at least they will come through, I believe... keeping my fingers crossed for you.

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Gosh Nancy thats terrible....how can insurance companies rake it in and then play with peoples lives at such a traumatic time....it makes me livid when I here about them ... I count my blessings for the NHS. The nurse was telling me each sickness pill costs a mere $18 ... .... I hope you're sister works wonders on them....You have a great sister Nancy .... Lets hope the party  starts sooner than later xxx

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Thankyou so much wren xxx it has taken a shed load of pressure off of me...even though I will probably work work work...just to know though that I dont have to is immensley relieving  xxx

    I hope you are feeling better lately .... I am sick of steroid induced days...I dont know whether I am coming or going or gone ...Give me strength xxx

    After nxt Tuesday it will be 4 to go before rads....what a loooooooooooong journey !!! 

    I love you all xxx

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2008

    Sue, my onc actually said that he thinks they do it hoping people will die before they have to approve the meds (to save money). It was an awful thought, but he seemed truly upset, too, that it is the way it is.

    I even offered to pay up front for the first dose, but that will just mess things up so we'll follow through with the insurer. My co-pay will be reasonable. 

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008

    Hi Everyone!!!!  Got back a little bit ago from UB's treatment.  6 1/2 hours!!!!  Lordy be, it felt like days.  All went well, his white count was down a wee bit so they decided he should have the Neulasta shot. So he goes back for that tomorrow.  Thank Heaven the oncky's office is 10 minutes away!! 

    Sue, you'll get a kick out of this - it was "English Tea Day" in the chemo room.  A local caterer brought in pastries, finger sandwichs, cookies, scones and plenty of English Breakfest!!!  How nice was that!!  There was so much there they told us to take some home.  The scones (sp) were d- lish, so I scaffed 3 of them.  We get home I put my purse on the kitchen counter, next thing I know big old Delbert steals one of the scones and starts running around the house with it!!!!  hahahaha.  Goofball.  UB is calling him scone head now.  hahahahaha

    Lisa - so glad to see you post, but sorry to hear your not feeling well.  We have so kinda funky virus going around here in Jersey so I think wren is right.  Rest up and I'm sure you will be feeling good as new soon.

    Jule - OMG!!!! You found Dorothy's shoes!!!!!   You know what that meas ladies- road trip to  DC then off to the Carolina's to check out Oz. 

    HOW COOL IS THAT!!!!!

    I know I missed speaking to most of you but want to spend some time with UB.

    bbl,

    Valerie 

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008

    Nancy - HORRIBLE, HORRIBLE, HORRIBLE I HATE WHEN  INSURANCE COMPANIES PLAY GOD.

    GOOD LUCK,

    AE 

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2008

    Nancy, I fought my insurance company from June till Jan to pay part of the bill for my reconstruction. They said that AlloDerm was considered experimental for breast reconstruction. My PS said that he had used it for over 5 yrs. We took it to the 2nd level appeal with review from PS outside the insurance co. This week when I was back in the office to get my rebate check (they held the deposit I paid last May until the insurance settled), the billing clerk said that since my surgery last June they have had multiple rejections from insurances for the same reason and they are having to appeal each and every one.

    I am with you AE, I don't like it when insurance companies play god with our lives.

    Sheila

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  • geebung
    geebung Member Posts: 1,851
    edited March 2008

    Lisa, I am so sorry you are so sick. You have been through a very rough time lately. I hate having a sick tummy - especially with a bad headache. You poor love - I do hope you feel better soon. Sounds like it is a nasty tummy bug - they often seem to strike in the late winter and spring. I think you were brave to post when you feel so horrible.

    Sheila - the Land of Oz place sounds great - wow - I can imagine all of us going together - what fun!

    I think a truckie's job must be such a difficult one - deadlines to meet, staying awake, coping with inconsiderate drivers, eating on the run and being so far from their loved ones so often. Your dh sounds like such a good man.

    Sue - those rotten steroids - how long will the effect last? I hope you can sleep tonight. I am just so happy that you can now take days off if you don't  feel well enough to go to work - I do hope you will take advantage of this when you need to.

    AE - big hugs to you and UB. What a long treatment day - you must have both been so pleased to go home afterwards. The English tea day sounds great. I loved hearing about Delbert and the scones - what a character he is!

    Nancy - that really stinks about the insurance company. I hope your dear sister is able to prevail against them on your behalf. These big companies just think about money - not the individual people who are at their mercy.

    Love to Wren, Melody, Dawn, Karen, Valsul, Angie, Karyll, Lucy, Mamhop, Ulla, Shirlann and everybody.

    Jane xxx 

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2008

    I just got a call from my onc's office and the insurer is DENYING THE DRUG COVERAGE!!! I have to appeal it, and that can take 2-3 weeks. This is crazy. I think I'm going to go ahead and pay for the first round myself (everyone in my family is offering $$) and go from there.

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Nancy that is abslolutely diabolical ...I am so sorry for this stress...YOU JUST DO NOT NEED IT FOR CHRIST SAKE...T WOULD BE DIFFERENT IF IT WAS ONE OF THIER RELATIVES.....ASS FREAKING HOLES!!!!

    PLAY HOLY HELL!!!!

    Please let as all know how you get on xxxx

    Well sisters I am well and truly bushed on last nights sleep ..so I am going to lie down in bed and hope for the best..I have to be up early...

    I am going to lie in bed and think of you all ...have your faces in my head as I drift off...bringing me comfort xxx praying for you all...I will miss you though..I wear my heart on my sleeve and I want you to know ..you are all very precious xxx

    SWEET DREAMS XXXX

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  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited March 2008

    Oh lord, Nancy, that is beyond outrageous.  How can they not pay?

    "A$$ FREAKING HOLES" -- Sue sure got that right!

    Fingers crossed for your appeals, Nancy -- and thank God someone can lend you the $ in the meantime.

    I am so sorry (this is when my son says -- "But it's not YOUR fault, Mom!" and I say, "I know, I mean I'M SORRY IT'S HAPPENING!").

    Love to all,

    Ann

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2008

    Well, I took a Valium, but I might need another before the night is over. My brother said he had a similar problem when he had double bypass surgery a couple of years ago, but it was reversed on appeal.

    I'm not worried about the coverage in the end, and I'm not worried about paying for it with cash, if I have to. Fortunately, I just got my 2007 company bonus, and my family is well enough off that we can handle it. I'm just worried about potential delays in treatment.

    Oh, and the Neulasta shot IS covered, but not the TAC...even generics.  Hm-m-m makes you wonder what drug companies are paying to get on the "approved" list. Now that would be a great story for an investigative reporter to work on, for sure.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Ok, I found the pics of Dorothys shoes....let see if I can figure out how to post them here...

    [IMG]http://i198.photobucket.com/albums/aa151/jpann39/Dorothysshoes.jpg[/IMG]

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Well heck, that didnt work!!! lets try it this way

    Dorothy's shoes"

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Yea!!!!! it worked.....here's the other one that is a close up of the shoes....mine you my daughter has these printed, framed and on he wall......

    Dorothy's red shoes"

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Sue hope you enjoy them.....

    Im hungry so going to go try to find something that might taste good in the fridge then come back and check to see what you all have been up to today...

    Hugs

    Jule

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Jule ..I cannot thankyou enough for these pics...those shoes are just lush and beautiful  !!!

    It is 1am here I cannot sleep due to steroids...I have had 2 hours sleep since Tues and have work in 6 hours ...... god help me please xx I have taken 3 sleeping tabs 2 diazepams and 3 strong pain meds

    I am wide eyed amd wired ..grrrr  xxxx

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Those pics are giving me nice shivers lol...they are absolutely magical....I am so happy you are on the yellow brick road ..Jule....

    I have to go to bed ...my boss will kill me tomorrow if I walk in with binbags under ma eyes LOL ....

    I love you all xxx

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited March 2008
    Hi SueSmile! Oh my , aren't those shoes beautiful! Thanks Jule for posting them. I can just see you in them now Sue. Following the yellow brick road. Although , tonight a sleepless one. Sorry. I wish I knew what you could do to go to sleep. Nothing that would probably would work if it wasn't for those darn steroids. I wouldn't take anymore meds tonight. Maybe a cup of tea and read for a while. And when they do finally wear off , you are gonna crash like a rock. Damn bootface. Is there any chance of staying home tomorrow? I would hate to have the steroids wear off while you are at work! Oh Sue , it is so late. You have got to get some sleep.xxxx
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  • Shirlann
    Shirlann Member Posts: 3,302
    edited March 2008

    Hi Sue, Lovey, one hand left, just one hand!   YEAHHH, then rads will be a piece of cake. 

    Lisa, I don't like you so sick.  NOT FAIR!  Enough already, you are better, I hope.

    Jule, the shoes are sooo lovely.  I understand there are 3 pairs, all worth a small fortune, of course.  Thank you for finding the pix.

    WHERE IS ULLA!!!!!   I am getting worried.  Let's hope it is fun things not bad things keeping her off the site.

    I am beginning to pack, we go to Fr. Lauderdale to board the ship, about a 5 hour flight from here.  Then, to Trinidad, St. Bart's, and St. Lucia.  Then 3 ports along the coast of Brazil.  Then up the Amazon.  Fly back from a town called Manuas in Brazil to Miami, then home.  About 17 days counting the flying.

    Sue, now sleep when you can, honey, and drink, drink, drink.  Wash that stuff out of your body and kidneys as fast as you can.  Soon it will be just a very nasty memory.

    Love you all, my precious sisters. Shirlann

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited March 2008

    Lisa , so sorry you're so sick. There are alot of "bugs" going around right now. Do you have a fever? If you're not feeling better soon , you should go see your doc. You may need some meds. Hugs and prayer are with you sweetie.xxxx

    Hi Jule , when you step in the "pile" just think of it as an organic foot mask!lolol

    Boy , I wish I had you're job! That is so awesome. How long have you worked there?  What all do you do there?

    Thanks again for posting the pics. Those shoes are so beautiful. I wish I could try them on. But I'm sure it would work out like Cinderella's stepsisters. Trying to squeeze a size 8 into a 5!lol Well , I hope you found something good to eat and are having a nice evening.xxxx

    Ulla honey , don't worry. You did what you felt was right with giving Erik to your friend. You know she will take good care of him. I just don't understand men. Something that gives you joy , upsets him? Maybe he is insecure with himself. Take care sweetie. xxxx

    AE , wow , 61/2 hours! I bet you both are beat. But then again , if he got the steroids like Sue , UB maybe up awhile! Praying the chemo is kick some bootface a$$! Love to you both.xxxx

    Nancy , I am sooo appalled by what you are going through. It is totally inhumane. I am so disgusted by these insurance companies. We pay them very well to do what they are suppose to do. Take care of our needs if something should happen. Its not like you are wanting to have botox injections! We are talking about your well being. God , who do they think they are?! Sorry to go on here , but this has always upset me. It happens alot. Good luck to you and you are in my prayers.xxxx

    Hello to all my sisters. Hope you're all having good moments.xxxx Mel

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  • Wren
    Wren Member Posts: 324
    edited March 2008

    AE, I am LOL @ "scone head"! What a sense of humor UB has and what a funny dog!  I love it.

    Nancy, I am spitting mad for you. I think a call to a local TV station to out your crappy insurance could help them uncover a good story --even if it's nothing new, it certainly is bad press... and perhaps the insurance company would respond faster... &^*(^*!  I just don't do a good rant--I need Sue to rant for me... LOL...

    OK, Shirlann, I am soooooo living vicariously through you. I am dreaming every day of a vacation--somewhere warm and sunny where I can just enjoy the scenery and forget my cares for a bit.

    You absolutely must post photos!!!

    Those ruby slippers.... just stunning really... we all need a pair!

    Lisa, I hope you feel better soon--and Ulla, check in when you can...

    Hugs to everyone else.

    ~Wren

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited March 2008
    OH AE , I forgot about scone head!!lololol That was to funny. I love UB's humor and I love Delbert's moxy!
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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008

    HAHAHAHAHAHAHA!!!!!! Mel - Love the pic!!!  Old sconehead looks just like that!!!!  Damn dog even ate the napkin it was wrapped in!!!  LOL.

    OMG, Jule, those shoes are magical!!!  Its almost as if you DID have the chance to try them on they WOULD transport you to another place & time.  Love them!!!

    Sue - Just wanted to thank you for answering UB's emails.  You really lift his spirits.

    Ulla - where did you go????  So sorry about poor Eric.  I wanted to tell you that when UB & I were at the oncky's the gentleman across for us was asking about an article he read about sugar & cancer!!!  The problem was I couldn't hear his oncky's response.  Small world, huh?

    Speaking of small worlds - I woman walked into the room today to start her treatment and I told UB that she looked familiar.  It took me awhile but I remembered I met here last year when I was going thru rad's!!!  The machine had broken down that day and they asked us all to wait until it was fixed.  We were there so late they ordered dinner for us! This woman was there that day and we sat and talked for hours.  Unfortunately, she had a reoccurence - but she was very optimistic.  What are the odds of me seeing her today???  Unbeileveable.

    Lisa - hope you are doing better today.  Some kinda crud is going around - allot of ladies on the boards are complaining.  Feel better sweety.

    Hey Sue - did my first mystery shop tonight - it was fun!!!  UB went with me and was a big help, he should have been,  after all he is a Private Investigator!!!

    Well, off to bed I go,

    Hugs all around,

    AE 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Mel,

    Ive worked here just over 5 yrs now...My job is actually office manager, but my boss is very cool and allows me to work in the field with the scientific techs when extra hands are needed..Ive learned a tremendous amount since beginning my job and my job is now classed as "office manager/scientific tecnichian.....mine you Im the ONLY one in the state of Washington to ever be allow to work in two job classes. The pay scales are very different as well as the insurance that the state pays for field workers and office workers is a huge difference....The power that be above us fought with my boss for 3 yrs before they finally agreed to make it work for me....I really love my job and the people I work with...I actually manage 3 offices the majority of the year but at certain times I go out and do biology studies with others.

    Im sorry to hear that part of the group is not feeling well, but I cant stay longer this evening as Im extremely sleepy now that I have thawed out....of course yesterday was a beautiful bright sunny day and I was stuck inside....today-----burr cold, rainy, windy and only about 40 degrees so with working the fish in water made for a VERY cold girl today.....and my rain gear leaked so I was wet all day too!!!!! But I still love my job!!!!!!

    Hugs to all of you and I will spend more time here tomorrow evening....I wont be here during the day as I have to drive 75 miles to one of the other offices I manage for the day and that one generally needs my full attention as I only physically go there once a month so cant play on the net :(.....

    Night to all of you sweet ladies, rest well....

    Hugs

    Jule

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