Fuzzy's Romp Room
Comments
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ALL, I just wrote several paragraphs all chatty and amusimg and stupid, and hen it disappeared. So, here's the short version:
FOLEY, loved the pic, opiates are cheap pain killers so ask for them, massage helps too.
I felt rather nauseated the other day and proceeded to throw up twice all ovr the carpeted living room floor, gallons of diarrhea, vomit in the sink, sore butt, you get the picture. Dog had been bathrooming 24/7 too, so it was something we both ate. I'm better today, but it was VERY scary.
Princess FUZZY, Roller Derby Queen, what a scrapper you are! I'm glad you're doing stuff to distract thyself from thyself. I worry about you so much. You are like my husband in that he is quite secretive. I'm used to it, it's part of his mystery. The thing is, you two people in my life are so dang smart it's sort of pointless to talk to us numbskulls, I reckon. Hahahahahaa. My owne true sister, and to all my sisters, all my love, Gail
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Granny - I'm with you!!! in your pocket!!!
Ok Ladies, this is for all of us to remind each other of God's beauty in this crazy world.. I'm going to post a pic of beauty every day.. If this annoys you all, I will stop. Fuzzy you make sure to tell me if you don't want me to do this.. you started this topic, so you tell me please.. I just thought it would help us all.. These will be from my views as I am working at my desk from home.
"Good Morning world!"
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WOW - jealous - can you start a separate thread for them so we can have a place to go to where we just see beautiful photos? THen we can chill and feel connected and be reminded of something good??
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Any ideas on what I would Title my thread??? But I will have you know, I've never had a thread take off, so I'm not too confident in starting another.
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Beautiful picture. Thank you GmaFoley. It made me smile.
I just realized something. I was talking to Peaches about being angry, and I realized that I'm not feeling angry anymore. I seem to have come through the other side. When I was into the anger, I didn't think it had any sides to come through.
I've been applying for jobs. No luck. Now I am applying for volunteer opportunities. You wouldn't believe all the forms you have to fill out to volunteer for the Red Cross. I submitted the background check, but I still have to fill out the forms and send them in. It's like 10 pages. I don't know if I can afford to mail them. LOL.
I just filled out an online form expressing interest in volunteering at the hospital where the breast center is. They probably wouldn't let me volunteer for the breast center, so I didn't include that. It's a shame, but I guess I couldn't be much support to people going through chemo and radiation. I suggested clerical or ER. I volunteered in an ER in the 90's.
Trying to get a job is really tough. Best Buy shut me out because I don't have a year's experience diagnosing and repairing PC's. I guess I should have said yes to that, but I thought my computer operation's experience would be a stretch for that. The bells and whistles there told me if something was wrong -- and then I had to call the tech people to resolve it. They didn't want me doing it myself, so eventually I stopped trying.
What are some good part-time jobs for a 55 year old?
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I'd love to see your pictures here Gma. I come here particularly to keep tabs on all of you. LOL. It's nice to read about and see pictures of your lives. However, if you make a separate thread, I will add it to my favorites so that I can see when it has been updated.
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Dunesleeper - I have a part timer at JoAnn fabrics - you get a 20% employee discount
If you manage to get into a bigger store you can pic a department. I am in a little store, so you have to do all, except for the shipping and recieving. If you want an at home computer job - editing, like me - apply to the Press Release sites.. Only issue is you will have to be up with the stock market, me being on the west coast, that means 4am.. Other than that, the forest service has front desk openings.. sometimes you need to volunteer before you get a job there - but front dest is a M-F job. Can't think of anything other than that at the moment.
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Thanks GmaFoley!
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Granny - I might sound "betta" but not really.. I just keep going on because I promised my hubby, I wouldn't do anything stupid.. I'm posting the pictures for me as much as everyone else...
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Grandma Foley, when a storm comes, the storm brings the calm and the rain is the view. Here it is okay to be up, down and sideways. We bounce off the padded walls that Fuzzy made here, I imagine they have polka dots. If the pain is to much, here is where we scream. If we are staring at the clouds or are on the tops of the trees looking down into them (your place) then we share that here too. edited to add.... PS, I like your photos being shared on here, I have too many threads to go too and have narrowed down a lot, so seeing the sunrise in OR or a snowstorm on the mountaintops is a nice touch. I work in a lovely place too, a meadow in ffront down the hill and a ridge of forest land all around the house. The sunrise here is the most lovely on the meadow with the forest behind.
Lily, I see you are riding the wave. Hugs for you too. My tests came back that way too, with the two nodes larger and two more with active cancer, those being too near lungs for comfort. Hugs, and hoping you find distractions to keep you loose and well, distracted. For me, Hubby always does it I guess.
So this Hubby. ggggrrrrr. sweet guy though. Yesterday he came home with a massive boil wanting to come to head low on his shoulder. That lump which was very un-boil-like when it started two years back was a boil. But it seemed like yet another of his fatty cysts. It moved around, would go the wrong way (whatever, his words) and be painful. Figured from past w him, fatty cyst growing into muscles like it did in his forearm, but he can be in pain if he wants. I tried. Me, go to the dr, dr, dr, dr, go go go go, you're to see her when I see her, we would get there and he would be like, ah, nah, it's nothing, didn't want it touched, his body his choice. Always saying that when we got me better, then he would take care of himself, you know the drill, right.
So yesterday the 'boil' wanted to come out, it was leaking a bit in the shower at work. I started poultice / drawing salve. Started high dose natural antibiotics and all I have for staph. Letting it drain slowly, no pressing. Will use a hot bottle soon when it does head better than this. If it was a fatty cyst, then the Ojibwa tea he has been drinking often lately has liquified it and is bringing it out, but just guessing.
And I need my bandages and tapes. I have half of my kitchen with sterile boxes filled with herbs, meds, bandages, homeopathics, flower essences, bentonite powders and charcoals. ORGANIZED. The bandages are - were - on the bottom shelf on N end with all other guazes and splints. But not today. Gone. Set the tone for my morning. First time, I had to use paper towels and women' pad tied on w a wrapping guaze. He SAID he had pulled every box out of that corner cupboard (bandages were in front and on top). I hunted the house, hunted cupboards again. When sleeping I was dreaming about those bandages and guazes.
Then I stood way back and leaned over to the floor and looked and there were the bandages. He had reorganized the cupboard when he was getting out the tea box.
The reason I am so ticked it is reminded me of a day I forgot, memory crap and all, of when my Newfie BearBear got lost. Don't know what I was thinking, bcz he never 'went' anywhere that I wasn't. Anymore than these bandages would have walked to another cabinet. We spent hours searching for him. 90 degrees out, mosquitoes and poison oak in the woods where I was searching for two hours, in town searching, around the blocks of the country too and back home and I leaned over and looked under the porch and there he was were Hubby said he wasn't four hours before which made us decide he was lost. Dog was cool, sleeping. Me, not.
Calling our NP after their lunch hour to see if they can see this 'boil' today.
Off to work.
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GmaF.....i dont care if this is an act you sound sooo much betta.....yeah we all have to act sometimes but it sure gets us throu the day betta.Love,love,love the pics.stay here with them...everyone seems to like them and if they dont let them tell you so....i sure doubt it.
went to see the surgeon today as you all know.....brought my tape recorder and after all the pre testing bull my date is March 12th.I really wanted it sooner but it is what it is....
ill be back
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Hey, Gran, at least your on your way.....that expression ....it is what it is.....I say that all the time.....my 21 year old grandson had it tattooed on his arm....could have killed him....then his brother 20.....tattooed on his arm...."What doesn't kill you, will make you stronger",my other saying......,he almost did get killed, and of course they laughed and blamed me....good thing it wasn't' STFU...been known to drop that bomb more then once.
Glad to see you took care of things....hugs sweetie.. -
GmaF - called it something like Nature photos for inner calm and peace? Or "a place to rest from the the rollercoaster"
Gran - at least you can plan now..............x
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GmaFoley, love that photo. I say post to this site everyday. Your two photos are very calming.
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Yes im planning alrite....have 3 weddings comin up plus a reunion in April....the nurse told me i should be good to go if everything goes as planned....tryin not to think of Murphys Law...hahaha.
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Bobogirl....punk it out sweetie!! You can't just keep that in!! It needs to be shared with the world! Get metallic eyeliner, cut holes in your clothes, funk out your hair....just TAKE THE BREAKS OFF!! WHOOT WHOOT!!
GmaF....hello hello! Did we hook you up with your personalized padded room? You get freedom in the Romp Room. Its a gift. You never have to apologize and you can say anything You want...and you can expect the same from all of us. Welcome to the family.
GG: you're not going to believe this. I got a wicked blister from the rollerskates...and a virus that caused vertigo!!! UGH!!! I feel really messed up. How are you sweetie? You've been on my mind a lot lately.
<br />Where did Sassy SAS go?
Sorry I've been away. This vertigo thing is not easy...and the script makes me very very sleepy.
Ok...I have an event happening this Friday afternoon and I'm nervous. Could I request some prayers/happy thoughts from ya all? I'm so nervous that I don't want to say what it is until its over...nothing medical so no worries!
Lily...any word on those test results yet? -
Thank you Fuzzy - I am glad Granny sent me this way and as long as you don't mind, I'm going to post a peaceful picture of the day.. if I can keep up... I will keep you in my prayers and you will do fine Friday - whatever you are doing..
I just got a call back from my pain doc.. My hip is still not settling down and I asked him if I should totally rest or move around a little - light walking - He told me to totally stay off and rest.. He will shoot it if needed - all I have to do is call.. Me stay still - you all might have to duct tape me to my chair.. BTW - I am on pain meds because things hurt so bad.
I'm glad I found this place... thank you for all your hugs..
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Prayers and happy thoughts coming your way Fuzzy.
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GmaF----I knew you would like this thread.These sistas are wonderful and they keep on comin back.
Keep posting those beautiful pics.Im your biggest fan.
Love these sistahs
grannydukes
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Fuzzy girl all my toughts are with you for fri,
I have t oget xrays tomorrow and then see ortho again,,,,,,,,,,,,,hoping he dtill agrees to no surgery :-)
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Helloooo, took some time off, grieving things, 4pages to catch up on , now writing and forgotten most. previous method of writing notes to rspond to didn't do so, blank except for two. Welcome GMA --saw you many times on OMG, but been ever so long since I posted on there. Forgot your problems already, I haft to reacclimate, a break takes the brain awhile to start storing again. But Granny directed you right --this is a caring place, and many will help.
Granny, sorry for your trouble, but glad that you didn't have surgery yet. Please , ask for a consultation with the Certified Enterostosmal Nurse. Sounds crazy, but this is the story. These certified nurses have to go through a semesters training ---5 days a week for x weeks(12?) . In southeast USA it's at EMORY UNIVERSITY. They learn colostomy /urostomy/incontinence retraining/ wound management. In this training they are trained in how to mark the best spot for the colostomy opening on the abdomen(in your case) and urostomy(not your case). Marking the spot may sound easy, but these nurses are taught to take into consideration the things that a doc may not i.e. where does the abdomen fall to in a natural standing position. Plus they can do a whole lot of teaching pre-op that prepares you for post-op stuff. They are worth there weight in gold. Most hospitals these days have at least one on staff. Make sure that the the a referral for home visits by this nurse is done, if the home health agency hasn't got a certified ET nurse. Also, ask for home health referral --all services.
These nurses are trained in the most State of the Art manangment of the 4 problems mentioned above.
I was catching up on reading----and saying to myself "oh shit". , But now you have time to do this . Granny so sorry about your son. I'm coming close to my one year anniversary on my brain surgery, i did okay, and it ended up benign. Letting it grow though didn't mean that it wouldn't turn nasty. SpecialK came and stayed with me several hours post-op in the ICU. BLESS SPECIALK.
Working things out with DDBF, thats why i've been absent. But gave me an idea that I'm going to write to the Mods. A line in the profile that says 'Taking a break". Ergo, people won't consider a problem
L&H&P's to all sheila
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I am finally in Rehab to learn how to walk with my prostetic... Got here Tuesday and started with Physical Theray yesterday. I was very sore and tired last night. That is the least of my problems though.
We learned the other day that my Mom does not have long to live. We have brought hospice in. She is 94 but that doesn't make it any easier.. Now that's not all. My dad who is 96 is not doing well either. I was told by his doctor 2 days after my mom went to the hospital that he is at the end of his life and it won't be long for him. We have also brought hospice in for him.. So not only am I dealing with my situation I am faced with both parents dying within the next few days or weeks. I know if my mom goes first it will probably be a matter of days for my dad... I am sad to be losing them but they both had great lives and got to do most of everything they wanted to... Their one wish was to be able to stay in their home and so far we (my brother and I) have been able to make that happen.. They have been married for 70 years. They both have dementia. We are lucky that they both still know who we are and that they will not die of that disease. I am great ful for that.....
Cindy -
Oh, CINDY, I know it hurts and is tiresome to fool with a prosthetic, but it's espeically hard when your two lovely parents are finally coming undone, how lucky they have been for you and your brother to keep them straight. Life is an unending struggle, but well worth it, despite the fearsomeness of such grandeur. i became a dropout for a while. But I keep hoping soon I'll push hard enough to keep things peaceful, tho.
SASSY, you've had to slosh thru so much hell, and that brain thing would have scared me so bad. I've had lots of scares with my head, and I still don't undersand some oddball things that EFF up my day, but the pictures always look fine, relief. And it's funny to me that you brought up the colostomy, because a few days ago when I thought I was going to explode from diarrhea, gas, vomit, the usual stomach disagreeance, I told Richard if it went on much longer, I was going to take a marker and put a circle somewhere in my guts and take a sterile pocket knife (rinsed in hot water & alcohol) and pop out a cork of myself, so as to let everthing fly outta there, an then plug 'er back with duct tape until it was all over!!! Hahahah! I don't mean to be silly about something so serious, but I really WAS that sick.
And yes, FUZZY, it's like I've got this side dream world where we see each other regularly, lots of castle stuff, maybe a couple murderous crows (on TV last nite), Apaches on paints just loving a ride at sunset, tromping thru a jungle with our machetes. And then we have this here world, and as long as you're in it, I''m okay. My "rest" period is over starting next week,andI have SO many things to do, several days a week thru March, and then it will ease off in April so I can enjoy the good weather. And of course I shall pray for all good things, as I always do, for you, dear one. Just remember, whatever happnens, things have a way of working out pretty good.
Foley, LOVIN' them pictures. Keep 'em coming. We sure as heck ain't got nothin to complain about!!! If you'll glance back thru the pages here, especially DUNES, lots of personal pics of our animals, other stuff, and then stock pics and cartoons for fun. Someone was talking about their big gray rabbit, and I've mentioned how we had a couple rabbits, one was a big white one with the very original name, "Big Bunny." The other one was Duchess, who would shoot across the kitchen in a single bound, a little brown bullet, when the raisin box came out. Well, when BB died, I let her play in the morning in the den (mosly they just got to visit in the front of the house after work), which she ate every speaker wire in that back den, much to husband's dismay. Once I explained she had lost her best friend, he got over it.
People, I don't want to jinx it, but I think I'm over my upset stomach. i still do not want to eat anything except cereal and soup. Can you blame me? I had to quit cooking a long time ago, my fractured twisted back from a car wreck won't let me. That's why I'm a little concerned about all the crap I gotta do in March. But the results... I'm going to take some before and after pics for myself, so I'll be proud. I wish I could do everything I want to do, but just a few things every few months is all I can manage. I'm tired now , too, so will part ways. Fuzzy, your twinkle startlight eyes so pretty I want to own them (maybe you can sell stock), you know how much you match my poiny of view, my owne true sister, a twin in life and other worlds, laser lights come shining thru them from your heart and back to yours, I receive all you can give and more. Love to all my sisters, too. GG
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Crog so sorry for all that's going on, facing the loss of both parents at the same time --can't be fathomed. But making sure all things are covered is important. You and family may have everything covered , but just in case the link below is from MA 111 's thread. She passed away last summer. Bon(bonnie) has taken watch over the thread. Bon did a recent synopsis of the whole thread that discusses what to be prepared for in the event of death. She combined many suggestions over the whole thread into one page. It's a resource that encompasses so much. Hope you find value in it . L&H&P's sheila
http://community.breastcancer.org/topic_post?forum_id=8&id=770023&page=25
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Cindy, I'm so sorry you are going through what you are.. I lost my dad to pancreatic cancer 38 years ago, but my mom is going strong in the nursing home.. she was on her death bed when we put her there... 8 years later she is doing better.. she has dementia too but she still knows me.. It is never easy to watch a loved one die, but you will see them again someday.. ***Cyber-HUGS*****
Sas - Nice to see your name again!
Dogeyed - nice to meet you! and thank you.
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No still waiting on MRI results......circulating tumour cell results (NOT tumour marker tests which are notoriously unreliable) show my cancer is NOT under control as I am 50% above the safe level so it COULD mean ther are tiny mets already but it could mean they are just cells circulating waiting for an opportune moment so I need to get a more cytotoxic regime in place but waiting for the recommendation (natural stuff or drugs used in other countries) and in a few months time have another test to check it is working - I am trying to convince myself I am doing well as I am keeping a step ahead of cancer (once a cancer gets to 2 mm, yes mm, it creates angiogenesis and its own blood supply and then starts to grow until it can be seen on scans..........so I hope I am beating them by finding out about them earlier and hopefully stopping them before this happens or before it happens too much)
But I am panicky feeling all the time whenever I cannot distract myself and my stomach churns, heart pounds etc.......
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I call this - Evening Sunset - Took this standing on our front porch.
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Gail--talk about schollsing through so much....all here will get what i'm about to write, some will well remember me writing it, some are new.
Jan 23rd 2009--day of breast biopsy. 11:55 am I get a call from MO's office from a nurse. She says Dr. L wants you to know that you have a brain tumor. I asked what/where/what kind/whats it mean---forget all else--with each question the nurse responded "I don't know". I say to her "I'm leaving the house at 12:15 TO HAVE A BREAST BIOPSY scheduled for 1:00pm THAT WE KNOW IS GOING TO BE POSITIVE FOR BC" . SHE'S SILENT ON THE OTHER END. I THEN SAID "WELL WHEN THEN THE SHIT HIT'S THE FAN". Oddly on her end there was nothing that I remember. No sorry's for what was happening.
Went to steriotatic biopsy, reviewed all films before radiology doc got there, had bx, talked /questioned him---found out he did two years in Europe under the guy that invented the procedure while the guy was inventing it. His staff never knew this. Yet they worked with him for years. Very cool. Definitely knew the Doc knew what he was doing.
Reviewed films with doc and pulled out films that I did comparison from mammo to MRI, said "Blah,blah,blah" and he said yes to each blah. I then said "This tells me it's very aggressive" He looked me straight in the eye and said with a preceptive sadness "Yes".
Well still floating, BC and Brain tumor in one day----fuck'em.... er cluck'em.
Then three months later Greg was dx'd with Lymphoma--he passed Aug 2010
Last few years sucked big time. Now coming out of it. Oddly, recently realized that my life no longer revolves around doctor appointments, lab trips, radiology diagonostic trips. One doc visit this month(Feb)--routine endocrine visit. Between Greg and I, in 2009 there were 200+ visits and 2600+ miles. Similar in 2010, but predominantly Greg visits to all.
All of which can change with one phone call. I take the phone off the hook much of the time. LOL
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Awwwwww Cindy----so much on your plate right now.
I know its very heavy.
Mine is too.
Im gonna just look at that pic.that GmaF posted for a while.That makes me smile.
Beautiful...today nothing else is important...
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Couldn't help myself - I found this old picture. I took this picture when I first found out I had BC and it was a good reminder there is Awesomeness in this world.. Have to share it with you all!
Morning Sunrise
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