INSOMNIACS place to talk in the wee hours

Chevyboy · January 2014

Oh Wow!

Teka.... sorry, we posted at the same time! I don't even know what that is..... I'll look it up.... sorry about that! What can they do?

Chevyboy · January 2014

http://www.webmd.com/digestive-disorders/tc/divert...

Okay Teka.... see if this helps.... Have you already been diagnosed with this?

Where is Sass? I think we need to call in the big guns for THIS one!

I came back to edit this.... When I had a bleeding ulcer, one of the gals I worked with told me "Oh, just go get a gallon of Aloe Vera juice, and drink it with everything." I didn't believe her.... BUT on my way to work the next day, I stopped and bought some, and drank it...about 1/4 C mixed with juice... And that pain did not COME! I drank more at night, with hot tea.... So for about a month, I drank Aloe Vera 3 times a day. I have it on hand, but really don't need it anymore.... Honest, it works!

You can buy it at Walmart for under $8 a gallon. Mix it with anykind of juice, 3-4 times a day or even Tea! DH sometimes drinks it straight. Brotherinlaw drinks it whenever he has digestive problems.

It is worth a try, and doesn't cost much.... It is a natural cure.... and it won't hurt you!

camillegal · January 2014

Hi everyone--been a little busy, everyone wants back up generators, cua of this stupid weather and CA I wish u would get some rain u guys really need it---And I have a lot to catch up on ut I don't remember who said what Damn--I can't write it down anymore cuz I can't read my own handwriting it's so bad and I used to have such pretty handwriting--OH well that's neither here nor there--I love that saying.

Stellina I don't think any Dr. cn make u takes meds, it's u'r decision, I'm not advising u not to take them I'm just saying that is u'r choice/

OK now someones' sister might have cncer ONG I hate to hear that. I certainly hope that the test results are good, but I do know how it is, a couple of months after I got it my sister called and said I have breast cancer, my reaction u bitch now who's going to make my favorite foods. Plus she just wanted more attention. We have a whole different out look, then she accused me of giving it to her, cuz she was with me so much--bitch. It's really tough and we both said now we were glad our parents passed away, cuz they would go crazy for sure. So we were kind of on our own and I really missed our parents, my dad died just the year before.

And so many are sad, it's OK to be sad or grumpy, or even sleepy or bashful it's what happens, no one can always be happy and everyone has every right to have sad times--this is no walk in the park, unless u'r walking and a mugger with a knife is following u and their are holes in the pathway and no lights and no one can hear u. Then u can think of ot as a walk in the park. continued

sas-schatzi · January 2014

MADDY YAY---I thought it was thursday, So, nice, it's friday.

So tired DBF keeps waking me up at 5am. SEX Morning sex. Never knew it existed. It is so much fun.Your not tired, It's warm and toasty. But then he went off to work. Staying up all day is no longer in the menu.

sas-schatzi · January 2014

Please, Chevy, don't beat your self up. Thy Birds wrote a a song "Turn Turn" and it's good, but let me try.

Lacee, my beautiful Lacee.

The turn of your head

with a smile, and snowflakes

on your nose..

You will be in my heart and

with me always.

Your time was now.

My time will come.

We will meet again

my sweet Lacee.

My beautiful Lacee

with snowflakes on your nose.

Chevyboy · January 2014

Yes! Lacee with snow on her nose! Thank you Sassy..... I'll print off your note, and put it in her scrap-book! xoxoxo

sas-schatzi · January 2014

Chevy OH Chevy My Chevy I'm tearing up. Gosh.

Chevy you didn't print it till I got the last line in did you?

camillegal · January 2014

OK Page 2--my computer jumps.

Chevy u'r still feeling miserable and who can blame u it's still to soon for u. Just be whatever u feel like Oh and by the way if I looked like that girl u posted I wouldn't care what anyone called me--no one.

Sas a book about relaxing I told u that's what I know about, and I do it so well.

2nd I remember u saying about the owl with the head upside down, OMG that's really upsetting to me--I know u all find beauty in the owl, buuut anything with wings I'm not thrilled about, including airplanes.

Geeze I'm sorry I'm not addressing everyone personal, but I have to reread again in order to--u guys have been busy today, And I have to relax between calls--so I clean out my webs in my head. Like my old oven I used to dust it to clean it-I never used it. I'm not proud of it, just truthful.

Geeze again I hope this wek-end is better for all of u------TEKA what u have is painful--OMG everyone is hurting---BTW I'm not 5'1" and small --when I started this I was 5-7 and big now I shrunk and lost some weight but I ain't little-I have a nice belly too thanks to 3 hernias--that's what I blame it on LOL Oh I just want everyone to feel better. Really.<3

Holeinone · January 2014

Teka,

Have you had it before? Are you on anti-bio tics? Both Sas & I have had colon resection. You DO not want to go there. I spent about 4 months in 2011 bedridden from diverticulitis....that was my wake up call to eat better, take care of myself, 2 years later...the bc dx....damn, life throws us some punches..

Blessings, thinking of you & your family.....

tangandchris · January 2014

Did someone say something about sex??

What is sex, I used to have it, used to enjoy it...but now, oh I just don't even know. Poor dh, but I don't even know how he could be attracted to me. Does this part get easier? lol

sas-schatzi · January 2014

Cami You can so appreciate this---I spent 4 hours on the phone with several govenment agencies. Then took DBF for an eye glass tes,t we went early for paperwork and picking out glasses.. I went next door for FOOD-----said WTF a nice glass of wine would be nice--had three.

DBF now has a temporary license. Lost it b/c of child services. Some 7-8 years no license. Then it compounded with tickets for no license. He is clueless about lawyers, law, rights, wife committing fraud, CSE not doing their job on and on.

You know the unemployment thing where you have to fill in 5 employers-----I made him make the calls. DUH he has some great leads, but a drivers license is required,

sas-schatzi · January 2014

TEKKKKKKKKKA, Did you not read my stuff on the constipation thread. POOPER literally. I have a whole section on diverticulosis/itsis..........CHIT girl. Nothing to mess with. Read all 11 pages. There is a routine in there someplace that will work for you. PROTECT THE COLON AT ALL COST. It can be done. Read the whole thing then we will have a firside chat on the constipation thread deal?http://community.breastcancer.org/topic_post?forum...

sas-schatzi · January 2014

Stelinna-soooo glad to see you, We love our International Savoire Fair here(did I say that right?).

Get a third opinion? Just don't know--clueless. It would seem no. But I saw my printed range in color. Then I just did what they told me. Failed so to speak---All AI's Arimidex, Femara, and Aromasinj. Each had side effects. I reached a day with each that I just said "Fuck it, their done , no more"> BUT I did take them for awhile . total time---perhaps 2 1/2 years. Don't have a clue until it's over, what it means.? They are poisons. They interact with drugs, They can make pre-existing conditions worse.

Try looking at the drug on "dailymed.org.nih.gov" the first drug listed is the original either drug producer or the first one to bring it in to this country. They have to have all the clinical studies pre approval and post marketing, through the FDA. What's nice about that is it's in one place.

Jazzygirl · January 2014

Stellina- saw your post about hormone treatment. It looks like you are 37, so they usually recommend tamoxifen if you are pre-menopausal and an aromatase inhibitor if you are in menopause.

What you need is information to make an informed decision about what the benefit is to you for taking the meds? Did your MO give you any % of risk reduction with taking the meds and without taking them? Did you have an Oncotype test on the tumor too?

I will tell you the information I had that helped me to make a decision to at least try it. I saw two different MOs during the course of my initial treatment, and based on my pathology and Oncotype score, it was determined I have a 15% chance of reoccurrence. Both MOs I talked to (including the one I am seeing for the longer term) said taking an aromotase inhibitor would cut my risk down to 7-10%.

There are risks with any of these meds, and the one I worry about the most is the risk to my bones (slightly osteopenic to start). So I am ensuring I do bone strengthening exercises and take CA and Vit D to keep things good on the bone front. And I told my eye doctor so he can keep an eye on my eye health for any concerns there. My doctors all watch me very closely these days.

The other thing to remember is that these drugs are usually recommended for a long period as they are cumulative. Currently it is a five year protocol, and my MO says there is evidence women do even better if they stay on it longer. I think there are much better statistics around tamoxifen than there are around AIs. As several have said here, look on line for data and also consider a second opinion.

I decided I would give my recommendation to do an AI a try. My MO said they have to balance the risk vs. benefit with these meds. For some women, like myself, I have a lower risk of reoccurrence and we have to balance that against putting me into osteoporosis at a young age. You may have a higher risk based on your pathology, and it may be why they are wanting you to take the meds. The information will help you to know better what risks you are living with either way.

Continue to the conversation with your MO, while you complete your herceptin treatments and consider a second opinion with another MO to get his or her opinion on the tamoxifen. I had two opinions with ROs around my radiation treatment and with MOs the antihormone meds, and it really helped me to make the decisions that were right for me. It is good your MO may be collaborating with other doctors, but think talking to a second MO might help to give you a bit more info for the decision you are struggling with.

There are women here who opted out, those who have started them and then did not finish, those who are still on them and not sure if they will get through the five years (like me). No one can live our lives or live in our bodies. Keeping asking questions until you know.

Good luck and wishing you the best!

sas-schatzi · January 2014

Wren HAPPY ANNIVERSARY, WHAT A NICE MEMORY-----AND WARM

Golfgirl---yes , it was supposed to be a mind teaser." I'm tired of learning, do you have a book on how to play?"Which meant I would be learning. Your okay, maybe your golf game is quicker LOL . Take more drugs, then you won't care.......I'll have some wine with you

OH Enerva--feel for you my twin and multiple others in the family have had BC it doesn't get easier. Your owl is regal HRMPHH your Highness!

Stellina, my post went to the computer netherworld-------------get a third opinion, -------look at dailymed.org.nih. Look at first listing. They are ususually the first producer. Way short from last response , but now getting way tired.------glad you are back sweetie.

Lost my motor L&H&P's sassy

sas-schatzi · February 2014

DUH, I was trying to catch up on posts from 266----which post to the end, DUH -----STELLINA my post is up there

Holeinone · February 2014

all is quiet...hmm...

Nicky we miss you.

Tang, I hope your weekend is good, hard to have company when your dealing with this shit, I have a very good friend, that still, after 6 months, sobs when she is around me...I have to tell her to get her act together.. It's ridiculous to have to cheer her up, especially when I was sick with chemo...

Last day of January...:-) my SIL turned 59 today, I will in 4 months...

Hugs & appreciation to you all...

Njmom3 · February 2014

Tang - I was wondering about that sex thing too... Since my mx in dec. it's been non existent. Now granted I had another operation last week, so I have not healed completely, I have not had any te fills, I still have a drain and going for a port and starting chemo next week. So where do I fit DH in (no pun intended). He has been so good to me, and I do miss our closeness, I am Only 47 certainly not ready to close that chapter of my life, I hinted the other day about giving it a try, and he said he is afraid of hurting me. It's killing me to feel like I am neglecting him, even though he would never complain, but I also wonder if physically I am repulsive. In my mind this is the issue, but I'm sure to him it's not... The mind is my worse enemy! Anyone know if it's ok to be intimate while on chemo? Everything else changes so why not this?

Holeinone · February 2014

Njmom & Tang, ( Tang brought it up first..lol..)

No worries on having sex, sounds like you are both in good stable relationships with DH. There are no restrictions that I know of, besides feeling like s*€t, that would stop you. Chemo does cause vaginal changes, dryness & aging before its time...ha. Ha...not funny, but sometimes it is funny...cause if we don't laugh we will cry...

It sucks...both of you are young and still have chemo ahead. Somehow we all make it through the nightmare of these treatments. My lumpy was easy compared to your mastectomy & reconstruction.

Getting the port is simple, compared to what you already have been through. I had mine put in one week after lumpectomy, BS pulled my drains then. I had no idea, that they looked like that until Blessings posted a photo of them....Yikes!

Blessings2011 · February 2014

Dear Owlettes:

My sweet MIL took her last breath on earth at 8:50 last night. Her oldest daughter was holding her hand and telling her to "Go to Jesus." She took two more breaths, and did.

She was ready, we were ready, and it was wonderful how the whole family finally came together to say their goodbyes.

Now DH and I are responsible for all the arrangements....

Thanks so much for all your kind words.... they are MUCH appreciated!!!

Chevyboy · February 2014

Sweet Blessings.... I'm so sorry.... It was beautiful reading what you said... how you described her...

We are all sorry.....And now she is in a warm, peacful sleep....... xoxoxoxo

camillegal · February 2014

Blessings so sorry for u'r family's loss, but u'r family made her passing as easy as can be. She is happy now and at peace.

Chevyboy · February 2014

Morning gals... CAMMI! Good Lord, the way you talk to your Sister is just.... well, not so nice! Are you guys okay together, or do you pull each other's hair out?

I think I know what you mean though... I'm that way with DD that lives close to us... We just make each other laugh!

And I hate to mention this, but WTH are you talking about? I mean, "muggers, holes, no lights, knives"... WHAT???? There IS an easier way to make money you know. And "no one can hear you".... Yeah, I got THAT part! And you're "continuing" with this story? Aaargh!!!

Miss Sass... talking about sex again.... How old IS this dude? Sounds good to me though... Yes, kiddles, there still IS such a thing!

Just not the same... Not the same WAY, nor the same ANYthing, but there still IS. Just have to be imaginative... and not having the power go out is a plus. You can GET there, just takes a little longer...

As for "them".... it takes strength, will-power and endurance to get THEM there. Mind over matter...

And again.... Love your poem Sassy... That is the sweetest thing!

Cammi.... with the second installment... YOU silly, are just the cutest little person! You don't even like Planes? Chickens I can get, but airplanes? I think they call those things Aircraft now... I'll bet you never even flew on one? And you have an oven? This whole post of yours takes me back to the 50's...

Tango, your DH doesn't care what you look like! He just wants you... He just wants YOU to feel okay with everything... Think about how you can make HIM feel more desirable... I think he is afraid for you.... Afraid you won't want to anymore... You've lost part of "you"..... but he doesn't care... You are still "his".... all of you...

I know about just plain not wanting to, but sometimes if you do ANYWAY, it will make you both happier.... Take it from an old "sage," Ha, ha!

So Sass.... Does this problem with your DBF have anything to do with living in stupid Florida? He can't get a license? Now there's a problem! You guys put all your energy into getting him a license!

Jazzy is right Stellina... You guys are still young... I think I would at least give it a try... ! Being older makes things more "iffy".... but my friend... my friend who had BC before I did, took Tamoxifen for the 5 years, and did great! She had a Mastectomy... She was diagnosed 11 years ago!

Njmom... Go back a few paragraphs.. Don't think about what you think you look like... BeLIEVE me, he doesn't worry about what you look like, just how you feel! I don't know why it would matter, being on chemo... Just don't go gettin' pregnant..... And getting OLDER, like me, ALSO changes things .... but you can compensate for that! Just think of sex, as your best friend! Helps you get back to normal mentally. But I like to have the lights OUT, and a cute camisole on... or just anything... even 10 blankets.

So now that I've maybe cured the ills of the earth, I will take leave... carry on gals.....

camillegal · February 2014

OK now my thinking about sex---this might be R rated so if u feel faint of heart--don't read it.

If u have this feeling of not being comfortable with how u look--get that out of u mind, don't let that be the reason. U 2 h=seem like u've got good men for DH's and when they are like that u never repulse them, they are worried and u need to relieve their worry (kind of wrong word, but not really), it sounds like u can really talk to and with them and they will listen, that the way to start with communication about this, then u will ease into the actual act as u become closer Being so young I think they have more fear than u think and now it's in u;r area of expertise as a woman to make them feel comfortable. It's not easy at this time, but I think they sound worthy LOL

Sas of course u should have wine--wine if good for the body and soul--it's in the bible---Jesus took water and made wine, he didn't make cocaine so how can wine be bad for u. I think a book for relaxation is on top of u'r list to read--there has to be a book--even about meditation, u could put u'r energy to that thought. Now don't become like Chevy cuz u won't help any of us then--so u have to find balance--all balance is good in every aspect of life, in drink, food and yes even sex but mostly in movement--when u'r young movement has no litmits, but as u get older there are limitations--after all u don't see a senior winning any Olympics against a 20 yr old, but when they were 20 they could have. Don't start with senior Olympics, they are all seniors. So it's time to step back and enjoy the universe that was a gift for u.

Chevy I'm still being a tad gentle with you because u need some hugs and I can't do it in person, So I do it in printery. (((HUGS)))

Jazzygirl · February 2014

Blessings- peace to you and your family on the passing of your MIL. May she rest in gods hands and be always in your hearts.

Chevyboy · February 2014

Oh! So now miss Gloria Stienham (or whatever) is giving us all advice about how to DO it... Ha! Actually she is absotootly right! This gals knows what she is talking about! I mean she SHOULD!.... Loopy This gal WORKS for her money! I don't think my DH would spend too much time "talking".... Gotta remember, he is Italian, and they generally don't have any right or wrong buttons.... And what do you mean balance? We TRIED that once, on a motorcycle.... T'ain't easy kid!

Yes... Cammi, thank you for being gentle... and thank you for being you... You hugged me in "printery"??? Is that even a word? I don't care... I love you too!