Chemo Starting Sep 09
Comments
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Hello SOSisters... glad to hear everyone is well. Aren't these storms just horrible? We had ugly weather again today with tornado warnings for a few hours. We all pay attention now!
RonnieKay - good to hear from you. Sounds like you have been very busy. Are you ready for Vegas? Sent you an email about activities.
Barbara - I am so glad your test results were good. I know it was a relief to hear all was well. I also have osteopenia and take Vitamin D and calcium. I have been off my Famera since January because of my heart problem. Go back May 9th, at that time onc will put me back on something. I try not to dwell on the fact that my estrogen may be going crazy in the interim! Hope the dermatologist can find the answer to your itching problem! When do you go?
VickiLynn - been missing you! Sent you an email about Vegas. Sorry to hear about your MIL, how is she doing now? Where is the youth ranch located? I know you were excited about going back in November and looking forward to working with the kids. Hope you can get caught up on all the news and let us know how you are doing!
Take care everyone. Thoughts and prayers are with you!
Jane
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MIL is recovering - able to use her hand and take a few steps, but she was most excited that the Rehab Center offers BINGO every day!
The Youth Ranch is in Grass Valley, California in the Sierra Nevada Mountains (sort of between Sacramento and Reno). It was a gold mining town and has rebuilt and kept the charm of the old downtown.
BarbAnne and Neece - I'm so sorry to hear about your friends and their struggles with cancer. Just heard from a friend of ours who went in for removal of an ovarian cyst yesterday and they found Stage III cancer - even removing part of her intestines. DH called her DH this morning and was a good ear for him. They certainly understood the angst of it all from a husband's point of view.
The photos of the storms are horrific. So glad that you're safe, Jane...
I discovered something about a year ago --- DH and I drove to the coast through the mountains and as we rounded a curve, there were purple wildflowers growing on one of the rocky ledges. And I caught myself smiling. It was the first genuine smile I'd had in probably a year. At least it felt that way. Yesterday, as we drove by open fields, there were wildflowers alongside the road - California poppies - bright orangegolden and little purple flowers close to the ground - and I smiled and remembered last year's discovery: Wildflowers make me smile. And every Spring I will remember the painful road to that discovery... and the joy that wildflowers bring.
love you all
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Hi everyone! I can't believe it has been two weeks since I posted last. Where does the time go?
Barbara - I'll be curious to hear what the dematologist has to say about your itches. Could it be an allergy? A friend of mine developed this horrible looking and really itchy rash on his fingers last summer and it took nine months of doctor visits to narrow it down to an allergic reaction to the latex wrapping on his tennis racket. I went to vote for the pet store and discovered I was too late. They came in 2nd...but that's not bad, right?
Vicki - I am so glad you are finally getting to the YouthRanch. You will be a breath of fresh air to those troubled teens. Keep smiling at the wildflowers! I hope your MIL is doing well and winning at bingo.
Jane - I too am glad the storms missed you! Tornados have to be so scarey...no warning and you never know where they are going to go. Kind of like our wildfires here in So. California. I also have osteopenia which the doc chalked up to my being small boned, thin, and a smoker for many years (not now). It bothers me a bit that the Femara is so bad on the bones but I'm doing what I can with extra calcium and exercise with weights.
Ronnie - Good to hear from you! Come back when you can say more...I always love your posts.
Patty
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hello everyone! I do hope your Easter celebrations were lovely.
Have been watching footage of tornadoes and storms on TV news. Awful stuff. i hope everyone is safe.
I had a hectic few weeks which is why I haven't posted for ages. Went to folk festival as planned over Easter and while in Canberra, my dad (who had come down along with my mum for the weekend at my sister's) got very ill. We thought he was having a stroke but turned out it was a bleed on his brain caused by a fall earlier this year. So he has spent two weeks in Canberra hospital, had surgery last week and is now (thank goodness) doing really well, all things considering.The Dr's drained the blood off and he has regained his coordination and use of his legs. Hope to bring him home by the weekend.
I spent several extra days in Canberra then had to return to work a few days, then flew back down on the day of his surgery to support my mum, then flew home yesterday - now trying to catch up at work.
Whew!
Vickilynn hope your MIL is doing OK now too.
Also in the last week I had news that one of my closest friends (was bridesmaid at my wedding 11 yrs ago) is going in for surgery next week to remove kidney cancer.
Can't it all just stop???
Neece
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Neece - so sorry to read about your dad but glad to hear he's recovering well. And no- I guess it doesn't stop. I also just visited a friend who went in for removal of an ovarian cyst and ended up they found Stage III cancer throughout her abdomen and even had to remove 18" of intestine. Surgery was on Sat and we saw her Monday and the reality only hit her after I showed up. Her husband (they are both 70) cried on my DH's shoulder and she finally cried, too. We do all have a new understanding of what cancer does to someone and to their family, don't we?
Life interrupted. But it keeps on being interrupted!
Patty, Barbara, Jane - take care of those bones!
My regular onc. 6-month visit is next week. I don't expect anything earth shattering, though I'm still wondering about the cyst I had and pains in the ribs. I will probably be joining you osteopenic (if that's not a word, it should be) women soon.
OH! And I got to smile a LOT yesterday because my DH surprised me by driving to the coast (140 miles?) yesterday and there were wildflowers all along the route! The Trinity River was muddy and swollen and waterfalls surprised me along the way. He then treated me to New England clam chowder (my favorite, remember) in my favorite little diner by the fishing dock and a view of a mama seal hunting while her baby watched nearby.
Then, because it was too windy to walk on the beach, we sat in our car and watched the waves and big brown pelicans at my favorite little beach in Trinidad, CA. AWWWWW. It was a good day.
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Oh... I also wanted to post a link to the Ranch where we will be heading in June.
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Hello SOSisters...another doctor's appt out of the way for a year. This was just my regular old MD checkup. Haven't seen him since BC diagnosis, figured they were testing everything. Anyway good report except for some of my cholestrol numbers which can be controlled with diet and exercise. I know! I know!
VickiLynn - glad MIL is doing better. We have wildflowers along the highways here and they are gorgeous this time of year! I'm appreciating our blue, blue skies and sunshine. I have found I appreciate this spring so much more than last year. Will check out the website for your ranch, I know you will have wonderful stories to tell. We would have never guessed you like clam chowder!
Patty - we have been missing you! Know you must be busy, busy. I go back to onc on Monday. At that time we will talk about my going back on something other than Famera. Don't know what it will be but hope that the bone and joint pain will not come back. I was pretty miserable on the Famera but don't want a recurrence. It seems a shame that after chemo and rads we still have 5-10 more years of pills!
Neece - it's so good to hear from you. Sorry to hear about your dad. How's he doing now? Does he live near you? It seems like it's always something. I have a good story about someone with cancer, my cousin who I've mentioned before is through with chemo and only has 4 more weeks of rads. It's like she has finally seen the end and her attitude has improved greatly. I'm sorry to hear about your friend. I so agree that it needs to stop and hopefully someone will find the answer during our lifetime!
Well must wind up, almost time for American Idol. I'm voting for James and Scotty for those who are following along.
To our other sisters, please post and let us know how you are doing. We miss you and would just like to know you are okay!
Take care. Thoughts and prayers are with you!
Jane
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Hello!
Sorry I have been missing in action for so long! Have been working 12 hour days and pretty exhausted when I get home. I know, that is no excuse. I have not really had a chance to catch up on all the posts. Hope everyone is doing well,
Off to Chicago on Saturday to see my Mom. I am bringing her back to Florida with me on Monday along with my sister. They will stay with me until Saturday then I am going to fly back home with them on Saturday and return home on Monday.
Everything is going well.
Love to all of you.
Barb T
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BarbT - look at all your beautiful hair!!!! Guess it has been awhile since you posted. Have a great trip and visit with mom. Keep in touch.
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Barb I love your new pic too.
Oh Vickilynn terrible story of your friend. We certainly do have more insight into how that must feel now, than before 2 years ago. I hope she gets good care.My dad is home today from hospital. he lives an hour away from me, but as my mum and dad were in Canberra visiting my sister when he got sick, she has driven them home today. I will be going to see them both tomorrow.
Visited my dear friend Z_ who is back for yet another hospital stay as the try to contain the pain she gets from her bc mets in her spine and thigh. She looks very ill. And next week will be visiting with my other friend in hospital after her kidney surgery. Feel like I am spending as much time in hospitals now as I did
in 2009!I might have mentioned I am participating in a trial for Tamoxifen to see how different patients metabalise the drug. Turns out I am a low metabaliser (determined through blood test) so the Dr has upped my dose from 20 to 30 mg daily. I was having pretty mild se's so it will be interesting to see if the increased dose changes that. However I am glad to do this as I figure, if you are going to be on a drug for several years to reduce your chance of recurrence, may as well make it as effective as possible.
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It is so disheartening...the cancer stories just go on and on. A colleague lost her fight with colon cancer two weeks ago. She was diagnosed about the time we were all starting chemo. A friend of mine was in a motorcycle accident a few months ago and the CT scan they did to search for internal injuries revealed a tumor on his kidney...cancer! They removed it and probably saved his life. On the positive side...my 80-year-old neighbor who was diagnosed with three cancers just before Christmas - colon, lymphoma and CLL - has finished her chemo and the PET showed her to be NED. Almost a miracle! So don't lose hope!
Neece - I'm with you...good to know you are low metabalizer of Tamox so you can get the proper dose. Otherwise, why take it? I hope your Dad is doing well at home. (((Hugs))) to your friends in the hospital.
Jane - I've done really well on the Femara until recently when I began to feel kind of crippled up..my joints ache after sitting and I'm really stiff. I've been exercising and doing lots of stretches thinking it was just due to needing more activity...but that wasn't working. So now I'm trying a gloucosamine concoction and that seems to be doing the trick. Is it Femara...or is it aging? I say Femara! The Idol kids are all so good, but James and Scotty are my favorites too.
Vicki - Your daytrip to the coast sounds wonderful (your husband, too!). I was thinking the other day about how wild flowers make you smile. The small thing that makes me smile is the little prisms of light I see on my dining room wall every morning when the sun hits some glass balls I have in a bowl on the table. I'm not sure why this makes me happy but I just love coming down the stairs and seeing little lights dancing on the walls.
BarbT - Good to hear from you! You are always so busy. Love the hair!
Happy weekend everyone!
Patty
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HAPPY MOTHER'S DAY to you all. (Is that an Australian holiday too?) Headed to a picnic with kids and grandkids and kayaks (!) at the lake. I'm looking forward to it. Also celebrating my birthday a week early... this will be my last year to be "in my 50's". Wow. That's mind boggling.
Patty - now I'm smiling thinking about you smiling
Isn't your birthday this month, too?Neece - Hope your Dad is doing well.
Jane - definitely James. What a star... but they all really are amazing singers/performers, aren't they? I didn't think I'd get hooked again on the show, but when someone told me how great everyone was, I had to check it out. Hope you get on the right meds on Monday.
Barbara - Hanging in there? Hope you're doing OK at home these days.
Barbara T and Ronnie - Keep checking in. We miss you.
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Hello SOSisters....Happy Mother's Day tomorrow to all of you!
Barb0323 - I'm so glad you checked in and we know you are okay. I love your new photo, isn't it so nice to have hair again! Sounds like you will have a very busy week this week. Glad your mom is doing well, it's so hard when they lose a spouse.
Neece - thank you for participating in Tamoxifin study! Somewhere down the line a BC patient won't have to go through as much because of trials like yours! Glad you dad is home, know that it will be easier on you have him home. I'm sorry to hear your friends are not doing so well, I'm sure you are a source of inspiration for them.
Patty - sounds like you are getting the same symptoms I had before they took me off Famera. The doctor had actually put me on Celebrex which was wonderful and did relieve my aches and pains. Since I've been off the Famera all my aches and pains are gone! It's definitely the Famera. No aging for us. I voted twice for Scotty this past week and once for James. Of course, Scotty just lives up the road so feel I must vote for the hometown boy. They are now down to the best so the next couple of weeks will be very interesting.
VickiLynn - the picnic with family sounds wonderful! So the big 59? Celebrate! This is what I'm going to do for my next birthday and the one after that, and the one after that.........
To all of our sisters who don't have time to post much, we miss you, think about you and hope you have a wonderful Mother's Day!
Take care. Thoughts and prayers are with you!
Jane
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Now I get to wear hats just 'cuz I want to!!!
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Hello SOSisters....hope everyone had a wonderful Mother's Day! Well, I'm going to join the tamoxafin sisters, Barbara did your doctor decide what you are doing to be taking? I told my onc about your itching, he said it's very rare. Anyway, I won't actually start new pill until next week after they educate me on all the side effects. Tamoxifen is not as hard on the bones and better for the heart. Only negative is probably weight gain. Ya know I just can't win. I lost about 15 lbs when in was in cardiac icu, only gained a few back. Oh well, fat and happy! VickiLynn - love the hat!
Take care. Thoughts and prayers are with you.
Jane
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Hope the Tamoxafin works well for you Jane.
Went for my 6-month onc. visit this morning. Going for bone scan and bone density on Thursday... pain in my ribs and hips so it's time to get it checked out. SIGH.
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Good morning SOSisters..... having that first cup of coffee and messing with the boys before I get ready for work. Looks like another beautiful NC day.
Vickilynn - I was glad I got my bone scan and density test, answered those questions lurking in the back of my mind when I was hurting so bad from the Famera! At least these tests are painless. How was the rest of your visit?
Where is everyone? I miss you!
Thoughts and prayers are with you. Take care.
Jane
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Vicki - Love your hat! You look so cute. Happy Birthday (early). Yep, I have one this month too. Same as you...59. Oh dear. Good luck on your tests tomorrow!
Jane - I hope you do well on the Tamox. Thanks for the assurance that my creaky bones and joints are due to Femara, not age. Whatever the cause, the gloucosamine pills have pretty much cured me. Yah!
Patty
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Hello SOSisters...
Looks like May is a good birthday month. Patty what day is your birthday on? Know VickiLynne's is on the 14th. I feel so young, my birthday is in July and yes, I will also be 59, but you two will be older than me
Working hard, about the time we get one system up and running smoothly, they reinvent the wheel and off we go again with something different. On the other hand it keeps the old brain gears working and most days are a challenge.
Everyone take care. Post often. Thoughts and prayers are with you!
Jane
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HAPPY BIRTHDAY VICKILYNN. I'm right behind you girl!
And...Happy 2-year From Diagnosis anniversary to me. I can't believe it was 2-years ago yesterday (yep..the 13th) I got the official bad news and 2-years ago today that I had my first cancer-related doctor visit. Dare I say that time has flown? Not the first year. As we all know, that one pretty much sucked and went slow as molasses. But this past year since the end of treatment has gone by really fast. I've got my hair back, I'm feeling really good, I'm living a healthier lifestyle and I'm just appreciating life more. I'm even ready to embrace the fact that I'm a cancer survivor and can't wait for the TATA reunion!
Patty
P.S. to Jane: WHAT? James off American Idol? I can't believe it!
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Hello SOSisters..... hope all of you are having a great day.
VickiLynn - Happy 59th Birthday girl! I feel I can say that since I'm right behind you and Patty in July. What a wonderful, wonderful birthday it will be - what are you doing today? Share all details, we all want to know.
Patty - on one of the other sites they call the anniversaries - cancerveraries. Mine will actually be in July. But yes it is amazing what a difference a year makes, I'm also feeling good (at least until my new prescription) and appreciating every day and I'm with you and really excited about the reunion! I feel like not only am I a cancer survivor but a bad heart survivor too - I have no room to complain about anything. But.....I can complain that they sent James home, I couldn't believe it. I voted for him twice and Scotty twice. Since Scotty is just up the road, they had Scotty McClerry day today complete with concert aired on our local station. He is such a nice young man. Daughter, grandaughter and I are going to the American Idol tour in Raleigh in July. We have seats in the nosebleed section (only ones we could get) but it will be fun! When is your birthday?
Alright all of our sisters, where are you? We worry about you when you don't post. It doesn't have to be much more than I'm okay but we sure would love to here from you!
Take care, thoughts and prayers are with you!
Jane
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Thank you, thank you! So far: Stayed in bed longer than usual, went out to breakfast with my hubby at Denny's where I got a FREE Grand Slam breakfast because it was my birthday!! Went to see Rio, the movie, at a local theatre and got in FREE because it was my birthday!! I loved the movie by the way... music and dance and color and just plain fun.
I am thinking about going to Cold Stone Creamery and get a FREE ice cream because it's my birthday : )
Son, wife and daughter are taking us to dinner tonight (and they are actually paying for it!!!) so right now I'm going to take a nap.
Oh - and son is bringing my mail when he comes... (Jane).
Just a relaxed and fun day. Go see Rio. Like I said, I loved the music - a lot was written by Sergio Mendez (of Brazil 66 - remember him?). I didn't see it in 3D because it's too scary. HAH.
I will see the dr. on Wed and get test results from my scans.
Enjoy the rest of your weekend. Looks like rain here tonight and tomorrow.
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The dr. called tonight to give me the results of the bone scans... no sign of mets!
I do have extensive arthritis (especially in my lower back) and osteoporosis - esp. in my femurs! I guess that explains my bone pains.
Her advice: "Take calcium, Vitamin D, lose weight, and keep moving" - I think she was talking about exercise and not moving from town to town... but maybe both help!
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Hello All.
I've been off the cancer board radar for awhile since I'm still in treatment. I'm on xeloda now for skin mets. It's done well clearing them up but some are still there. Might be hope for me, but I'm not counting on it.
Anyway, got a divorce, bought a house, remodelled the entire thing and now I'm just working 50 hours a week. YAY. so, not much time for chat. Just lettin you know I'm still breathing.
Hope all of you are ok and cancer free. Have a wonderful day ladies.! huge hugs to all
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Sisters!! I am so sorry it has been a while since I posted, Prom, work, DH, all the other things about life have kept me busy..so
Happy belated Mother's and Birthdays! Mine was the 8th of May I turned 43. Vicki I am sorry about the arthritis, that's what my doc said about the osteopenia. Love your new photo man do you look cute and happy.
Barb glad you checked in and love you photo!
Jane and Patty!! I fell away from watching Idol a few years ago, do you like the new judges?
Jane weight gain wouldn't surprise me, I did put myself on a new diet and I got a treadmill for my birthday, which I really, really love, I forgot how much I missed tread milling...and no excuses, I feel like I am starting to lose weight...I will cry if it comes back when I am back on Tamoxifen.
So the docs...the dermatologist took two punches sent them out for "biopsy"..... I hate that word....and yesterday I went back to get the sutures and get "the report" good parts...no weird cell production and no weird clotting, which is found in cancer patients...so that's good...they say it looks like a reaction to a drug, really????, and it looks like it has been scratched excessively...again really???, I say well I have itched for a year so that would make sense I scratched, and it started when I started Tamox, and has decreased dramatically when I am off it....I still don't think the dermatologist or my onc belive it is the Tamox...but whatever, I am not far enough into menopause to switch to amimidex, so at the end of June I go back on Tamoxifen for another year, and then hopefully switched....until then the Dermatologist gave me these pills that are like a better form of benedryl to take at bed time and a cream to apply twice a day...and if worse comes to worse I may have to stay on both the cream and the pill when I get back on Tamox if it starts all over....it is a waiting game...
But I am thrilled about the no weird cells and clotting cause that makes me feel less stressed about my Mammogram June 1st.
I did have a thought though...and i am running this by you all..I wonder if they took out my ovaries if I would then be menopausal enough to switch..hmmmmm
Thanks again ladies, I promise to be better about posting!
Love and hugs
Barbara
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Pamelajo - It is so good to hear from you. You have been missed terribly. You have been, and continue to go, through it! Please keep in better touch or we'll all have to fly up there and find you! Did you hear about our reunion? Actually got to meet Patty and Ronniekay this year and in Sep. Jane is coming to Vegas where we're joining with another group from this website for the weekend. Sure would love to have you there, too. Sorry to hear about your continuing battle.
Barbara - Happy belated birthday wishes to you! Glad there's no sign of cancer (we're dancing with NED) and that lets me breathe a heavy SIGH. I don't like dealing with my aging body though! Keep up the treadmill... I can't fit one into my trailer or I would! But the sunshine today will be good for walking. DH is driving me to the coast to celebrate that WE don't have mets to the bones (he was really, really worried but hadn't even talked to me about it this time).
Jane and Patty - They voted off the wrong person last week on Idol!!!!!!
After several days of heavy thunderstorms and too much rain, it's going to be in the 70's today and lots of sunshine. I will enjoy!
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Thanks Vicki---I am dancing with NED with you!! I do love the tread milling, a half an hour to ones self is truly luxurious. Celebrate on that coast for me too. All it has done is rain for 4 or 5 days here, now mind you I am not complaining with all the floods and storm damage in the south, but we went from 80's and sunny to rain and forties....I am surprised us Michiganites aren't all dead from the flu!
Pamela--You must have posted right when I did. Big hugs to you girl, I am sorry for all the illness and drama, but we have all been thinking about you.
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Hello SOSisters....went yesterday and heard about the 900 side effects of Tamoxifin (well maybe a few less) but here we go again. Took my first pill last night and am hoping for wonderful results, translated means no side effects. I took a CPR class today, DD called and asked how I was - I said, "had CPR today" and she said "WHAT???". I had to remind her I am healthy and well. I have gotten to the point I don't say much about how I am feeling because I will worry DH & DD.
VickiLynn - so happy to hear your results. We will do a happy dance for you! Do you have my doctor by chance - I got the same speech. I have been walking on the treadmill but the problem is that I'm not consistent. I don't mind walking, just get involved doing other things and forget.
PamelaJo - I'm am so glad you posted. We have been so worried about you warrior sister! Please PM me your new address, email and phone number and I will add you to our list and send it back to you! We have really missed you and as busy as you are, please check in with us more often. We love you and need to know you are okay!
BarbAnne41 - Happy belated birthday. Did you do something fun? I'm delighted to hear no weird cells or clotting! YEAH! Well now we will be Tamoxifen sisters. You don't know how much I dread being back on the pill cycle. I have felt so much better for the last few months being pill free. Of course, getting the heart back in rhythm may have helped. I think the question of the ovaries is best left to your onc. I'm post-menopausal so don't have that worry.
Well I must sign off - need to do my walking before American Idol comes on. I do like the new judges, they seem kinder but then they had really good choices this year. I am rooting for Scotty since they voted James off.
Take care. Thoughts and prayers are with you!
Jane
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Just got home and I'm wiping the sand from between my toes : ) It was windy and a bit cold, but I got to the beach, took off my shoes, rolled up my jeans and walked into the cold Pacific (up to my shins any way) and turned to my husband (who was sitting in the car as it's hard for him to walk in the sand) waved, and did a little soft-shoe, line-dance on the beach!! He said afterwards it made him smile... sure made me smile!
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Oh Vicki that sounds just delightful, I am pea green. Nice to give our spouses a smile. :-)
Jane I know exactly what you mean, being off Tamox since March I feel more like me, and I even have a sex drive....so I am NOT looking forward to it, and I now know that when I get back on it I am going to have to be diligent about forcing myself to be happier, keep walking and my sex drive, you know the fake it til you make it...I can't let myself slip back into that, pill or no pill.
I can be your treadmill coach and send you PM's about what I did? I don't want to everyday, but the lure of a half an hour with headphones in and no one bothering me is just too much to not..Let me know if you want to be treadmill buddies. I can email you if it is easier.
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