Chemo Starting Sep 09
Comments
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Neece- congrats on the good news, sorry about the fluid, hope that the outcome is quick and painless, I know..I know, not much is with this, but I can wish.
Catherine-Slow is good.
Jane- Glad you are doing well, and when you color in June I want a photo.
Patty- I think most hairdressers would have a fit, but I have gone hat less at work and now get grief if I wear a hat, so it was intensely important to me to tone down that red. But I was really surprised my skin and hair were strong, I guess chemo/cancer/reds or whatever I am a tough old broad!
Ginnie- I had weekly Taxol, and had various tolerable SE's, bloody nose, bloating (a carry over from Adriamycin and Cytoxan) Itchy skin and rashes and gosh I can't remember them all, it seemed like after an infusion my body would throw another one at me, but we are all different, and I can say everything that happened was tolerable. However by tx 8 my feet started being tingly/numb and even reducing the dose they couldn't stop the neurapathy so I was done. My onc said it is a sign my body is "full" and that it takes 8 to 16 weeks foe the numbness to go away, I am 10 ish weeks out from my last tx and it is much better but still there. Hope that helps.
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Hello SOSisters...went for Herceptin today. Met 2 ladies just starting chemo, I felt so bad for them. I sat there thinking how blessed I was to have that behind me!
Neece - so sorry you have to be aspirated. When will that happen? Is it painful? Seems like we all do the 3 steps forward, 1 back. You take care and let us know how you are doing.
Ginnie - wish I could help with your question. I did taxotere, side effects aren't as bad as the taxol. You might check with some of the other websites. There is a wealth of knowledge to be shared. Please keep us posted, we will send you positive vibes and answer any questions we can.
Catherine - the beach sounds great. We are planning a short getaway to Myrtle Beach, I really want a week in Key West (never been there, but sounds wonderful). Daughter & I have been talking about a weekend to Charleston and leaving the kids with DH (more fun for all). Glad your fill went well.
BarbAnne41 - glad you are doing well. Question for you, how are your heels? I ask because all of a sudden mine seem to be really bothering me. Feel numb, very uncomfortable to be barefoot and none of my shows seems comfortable anymore. Had numb fingers during treatment but they have gotten much better. I'm ready for a new photo, may post one sooner than June.
Wanda - thinking of you and hope you are resting and having a good evening.
Hope everyone is well, take care.
Thoughts & prayers are with you!
Jane
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Hello my wonderful Sisters!
Had a great time with my friend last weekend. Went to a great place and had seafood and margaritas. We had a great time catching up. Weather here has been beautiful - in the 80's.
Went for my pre-op for my surgery for placement of tissue expander today. Surgery is scheduled for April 27th.
Wanda hope you are doing o.k. Thoughts and prayers are with you. Barbara your hair looks wonderful! My hair used to be real fine and straight. Growing in thicker and kind of kinky. Kind of a silver color. My husband said he likes it. I think he just likes seeing hair on my head for a change.
I have posted a new picture with my husband and myself taken last weekend. I toasted all of you with my Margarita!!!
Love to all,
Barb T
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Wanda, know that I am with you and I love you! You are going to be fine
We all are going to be fine. Damn cancer. Damn the torpedo's........all steam ahead!Neece, take comfort in the fact that we've had so much surgery on our boobs that a little needle stick won't hurt at all in comparison
I have a pocket of fluid on my back under the flap scar, and I keep ignoring it LOL So far no one has said they want to aspirate. Hope they keep ignoring it too.I need a pep talk girls. Come on, be my cheering section. The cells they found in my scar tissue turned out to be triple neg. Now I don't know if there was such a small amt they got a false reading or if they truly are trip neg, but regardless, I'm back on the treatment plan. I've also found a lump up near the initial tumor site on my right side that I have biopsied monday. I know it's cancer. I'm just hoping that once they cut it out, they can radiate and kill all the little sob's lurking in the background. Whatever the characteristics, it's localized only in small areas of my skin, so it's totally treatable (they say). and all my scans came back neg for mets. sigh thank God.
but that's not the least of what's going on.........
17 yr old is still MIA and hiding out with her Dad. It hurts me. I called and asked if I could throw her a graduation party and she said no. I've done nothing to this child. I don't know what to do.
My 19 yr old has suddenly decided she is a lesbian and her girlfriend dresses like a boy. I have nothing against someone's sexual preference, but why couldnt she pick a girl who looks like a girl and dresses like a girl!!!!!!
My best friend is gone to Iraq!
ugh. I need some positive words and prayers ladies. I'm drowning in stress.
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Pamela I am here for you girl, praying thinking and focusing. Darn ( I am sure you can correct the real words I would of used for that) teenagers, I have a 16 year old, they just push the envelope so hard it will make you crazy. Hear me when I say all of it is temporary, tell them you love them, mean it, and stop focusing on it, the more focus you give it, the more energy it will have, trust me, find some positives and give those your energy. Not to ignore the other, but to let it go, it will truly be fine.
Clear scans are the shiz baby, triple neg cells or not, AND you are right small amounts CAN give fluky path reports. It is treatable and we are all here with you.
I am sorry about your friend leaving for Iraq my hugs thoughts and prayers are with you and your family.
Funny thing is I was jumping on the Internet to do something else not even check the boards and as I was clicking I thought what am I doing I didn't get on here to check this, I guess something inside me must of heard you talking :-)
Keep your chin up we are all here for you
Barbara
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Hello SOSisters... another beautiful day in NC - I do love spring weather, all the azeleas and dogwoods are blooming.
Neece - I don't even know what to say....first you are just too tough to let a few small areas get to you. Those will be OKAY! The teenage issue is another whole story. My daughter is now 34 but the crap she pulled as a teenager still makes me furious. Would I handle any of the situations any better now than I did back then, probably not. I can tell you that this daughter who gave her dad and I such a terrible time is now my best friend and a wonderful mother to her kids. You hang in there, I know how tough just being a mom can be, much less a mom with cancer. Remember you are our warrior survivor and you can do it all! My thoughts and prayers will be with you.
To everyone else - hope all is well. Check in when you have a few moments, we miss you!
Thoughts and prayers are with you!
Jane
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Pamelajo.
Your news just sucks. But keep focusing on that "totally treatable" part my dear. It's local, it's shallow, it's small. I'm cheering like mad for you!
I don't have teenage daughters but having been a pretty difficult one myself I totally agree with Barbara. Tell them you love them, tell them they can always come home, tell them you will always be there for them. With a mom as wise and strong and resilient as you, I know they'll come around.
Patty
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Hello my sisters! I just caught up on all the news... some of it good and some not so good. So thankful that we've had each other to listen, to encourage, to care, to cry, to laugh...
Your poems get to the heart of it all, Neece. Thank you for writing and for sharing.
You were all in my thoughts for many reasons. I have been without tx since the first of December and I am finally feeling like I'm on the "upswing" of things. Today was a monumental day --- I took my hat off all day in the cafe!! Nobody ran away or made any comments... it's very white and doesn't show up well (except for my reverse skunk black stripe down the middle)... I've been thinking of doing it for a few weeks, but finally took the plunge. Truthfully, however, I really got used to my hats and like them a lot!!! But it is nice to have the choice.
I finally also got over the feeling that every pain was because the cancer had spread... but then I'm reminded by PamelaJo's and Wanda's emails that we have to be ever vigilant about this. My prayers are with you both.
And reminded too that the drama of our lives continues... with family and relationships and work. But in that phrase is hope --- that life does continue for us. I was thinking how circumstances took me to the place of diagnosis and just a month later may have been too late.
So even through the tough times, we can celebrate life... for however long we have.
Looking at the ocean, or driving through the redwoods, or sitting by the lake, brings life into perspective for me. Cancer has done the same thing... it just isn't as pleasant!!!
love you all,
Vicki
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Had my biopsy on the lump today. Got a bit of good news if not the best news. The lump appears to be UNDER my skin and not IN it
I'm sooooo relieved. The radiologist looked very closely on the ultrasound and said that although I don't have much fat there, I have enouogh and the lump seems to be in it Keep your fingers and toes crossed for a good outcome here babes. I'm still needing a cheering section and lots of prayers.
Love and hugs to all of you....
Your impatient and somewhat strung out friend,
Pamela
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Yea Pamela- some good news but will keep the prayers and positive thought coming.
By the way....
BarbT love the photo and the toast, maybe someday we can actually toast each other in person.
Jane heels are healing, but if I push things I get stiff and some unexplainable feeling in my heels, I don't know how to explain it, sort of numb and stiff...anyway if I don't act like superwoman I am okay. Hope your numbness is better.
Love to you all
Barbara
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Hi to all of my Sisters!! I have been enjoying our unseasonable California 80's this past weekend although we drop about 25 degrees tomorrow with a cold front/rain/thunder...yuck.
Pamelajo: I read your post and I wanted to cry. You have made it through SO MUCH and you will continue to fight...you are not a quitter and you have been the cheerleader for so many of us and now it's our turn. I can't remember if you had radiation after chemo...my cancer was 4 tumors in the right breast on both sides and 4 lymph nodes in the right arm. Apparently the chemo was for anything that might have escaped the lymph system and radiation was to attack the collarbone area where they migrate first and my back...I had 4 different "shots" of radiation every day. I have been fearful since your first post about this wondering when I go in for reconstruction will my scar will show cancer cells?
But you know what?...We can NOT live the rest of our lives in mortal fear of a recurrence.
As to your other issues, I agree with BarbaraAnne to not let your daughters see that you are giving any of your energy that you need for yourself right now...tell them and show them that you love them...that is all that you can do. Trust me, the Prodigals will return and they will be so sorry that they ever acted out and caused you unnecessary worry and pain.
As to your friend leaving for Iraq...my son spent 2 tours over there and I have to say that could've been partially to blame for my cancer....the constant stress, worry and fear. I could not have made it through surgery, treatment and reconstruction knowing that he was in harm's way...that being said, they are trained to do a job and they are trained to take care of eachother...your friend is prepared. You need to support him/her with prayer and lots of letters and e-mails and care packages. Let me know their address and I will send some too. JOURNAL, JOURNAL, JOURNAL!
Vickylynn: Congrats on going "without". I am enjoying the freedom and with my eyelashes coming in thicker...I almost look like a girl again!! LOL! I hope that everyone has a great week. Tomorrow I am getting my port OUT! Whoo Hoo...
You are all in my thoughts and prayers...
Kim
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Hello Sister
Just reading everyone's posts and catching up.
No news here to report. Just livng day to day as best we all can.
Pamela- The news sounds promising. Hoping and praying for B9 results. I will keep you and your daughters in my prayers and hope things will work out. You really have ALOT on your plate right now. I am hoping you can find some peace of mind at this time.
Wanda- I hope you are getting stronger everyday.
THINK POSITIVE
Catherine
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Pamelajo - Fingers, toes, arms, legs, everything crossed for a good outcome for you! Hang in there girl.
Kim - I loved your thoughtful post. I'm not going wigless yet, but I am really happy with my eye lashes! They are thicker and longer than they've ever been. Hope they stay that way. Best of luck on your de-porting!
Patty
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hi everyone
Happy to say that I had the fluid aspiration today and it wasn't too bad - I was very anxious about it and certainly felt the needle going in, but the Dr was extremely kind AND competent and once the needle was in I didn't feel a thing. Pamela you are right after so much surgery it was really hardly anything. I need to go back next week for another aspiration but this time I won't be so anxious. The main thing was it was a very long day - an hour'sdrive to the hospital, THREE hours' wait to see the Dr (had a 9 am appointment and got in at 12 noon) and another hour home. I am tired now!!
Pamela I am also cheering for you and hoping that this latest lump will prove to just be a hiccup and nothing to worry about. You are amazing. I am so sorry you have more worries. None of us need that kind of stress just now, especially after all you have already endured.My family have been going thru a difficult interpersonal time in the past month involving my son and his girlfriend and the stress is horrible. Just when you need everyone to be really supporting your full recovery it seems things are more likely to blow up! I do hope you can leave it in the background for a while and focus on overcoming whatever hurdles remain for your recovery. easier said than done I know... Remember you are very loved by everyone on this thread!!
Exciting to read of people's progress - ports coming out, last treatments, reconstruction surgery, going hatless.... all steps inthe right direction at least.
I am reading this amazing book published this year by an Australian writer Brenda Walker, called "Reading by Moonlight - how books saved a life". It is all about her experience of bc a few years ago and how she turned to books and literature to help her travel and understand the journey as she went thru surgery, chemo, radiation and reconstruction. As an absolute bookworm myself, I understand about escaping into a book and she describes the moment, packing her bag for hospital for her first surgery, deciding what book to take! An important decision for a reader! It's a great book, quite beautifully written, about literature and how it can help us to understand and interpret (and endure) difficult experiences.
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Hello SOSisters....where is everybody? I'm all for enjoying our healthy lives but I'm missing everyone! Hope all of you are well!
Pamelajo - I talked to my triple positive and they are going to talk to your triple negative and we're going to wipe each other out! All will be well. Please know that I am with you in thoughts and prayers and I am sending you all my positive vibes. When will we know results? Hang in there warrior princess!
Vickilynn - so good to hear from you and delighted to hear you feel you have finally turned the corner. Kudos to you for going hatless, I'm still wearing my wig and don't intend to "unveil" until July when I celebrate my birthday with haircolor, haircut, massage, manicure & pedicure. I deserve it - it's been a heck of a year. Last year I went skydiving (in a simulator). Glad the cafe is going so well, I'm so happy for you.
BarbAnne - thanks for responding on the heel thing. It is so weird, I didn't have this stuff when I was doing chemo. Now in addition to the heel thing my bones are aching like crazy. I refuse to linger on this as we tend to do now that we have done the BC thing. Anyway I have a dr. appt week after next and will complain then if not better. How are you doing?
Kim - can I just tell you I'm envious of your eyelashes? Mine seem to be taking their own sweet time coming back. If they would grow as fast as the hair on my legs I could do a mascara commercial! Glad your son is not in Iraq, I live in Fayetteville, NC, home of Ft. Bragg. You can only imagine how many friends, coworkers are related somehow to our brave men and women in the military. I'm a military brat myself.
Catherine - missing you and your wonderful posts. Glad you are keeping busy! Feeling good?
Patty - when do you get deported? Are you in Sept. like me? I am thankful that my port has not been a problem. Last time I got Herceptin the man in the chair across from me was being poked and poked because they couldn't find a good vein. I felt so bad for him and wanted to tell him the advantage of a port but who knows maybe he had one and had it out or something. Hope you are doing well.
Neece -glad your aspiration went okay and you won't be as anxious next time. How horrible to have to wait for 3 hours to see the doctor. I must say my doctor's are fairly efficient and on time which I have appreciated since I usually do my appointments and then go back to work. Hope your family issues are getting better, we all go through them and the stress takes it out of you even when you are 100%. I'm a book worm myself but read mostly fiction.
To everyone else - take care, know we are thinking of you, wondering how your are doing. Please post when you have time.
Thoughts and prayers are with you!
Jane
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My results are in. Triple neg in right breast, definitely not in the skin. Tumor is less than one centimeter. I'm going in for surgery to remove it Monday.... Won't start treatment till the end of May. Good times.
I'm hangin in there, but dammit this is worse than the first and second time. I feel like this is never going to end. I know it will and this is just a hiccup but for pete's sake, stick a fork in me, I'm done!
Anyway, DH is being super wonderful. I'm constipated, and my foobs look great. They won't have to take the recon down to fix my problem here so that's a plus.
Love to you all. I'll check in again soon. Trying to stay away from all things breast cancer so as to not drive myself insane. This is the only thread I will visit.
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Pamela I am so sorry-jeez we are here for you girl, try to stay positive. Love and hugs.
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Pamela - I know it has to be tough. Hang in there. We are all there for you....
Have surgery Tuesday to have tissue expander put in. Hair is growing but kind of ugly. Silver color kind of matted down looking. Been real busy at work with the volcano situation in Iceland. Had quite a few people stranded in Europe.
Love to all,
Barb T
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Hello SOSisters... hope all of you are having a good weekend.
Pamelajo - hang in there warrior princess. We are all praying for you and sending you every positive vibe we have. I know you are sick of all this BC stuff but you can handle it. You can handle anything, no matter how tired you are feeling. Please post whenever you can, we will be anxiously waiting to here how you are doing!
Barb0323 - love the new picture. Glad you are doing well. Can only imagine all the headaches with your stranded travelers. Have you gotten everyone home? I'm not liking my hair, it's definitely white with bits of gray - ugly. Plus it's too short to stand up and it does looks like it's matted down. I am so wanting to be natural again, but got to get these ears covered first! Good luck on Tuesday, let us know how you are doing.
To all - I'm missing you! Hope everyone is okay and just enjoying Spring. Take care.
Thoughts and prayers are with you.
Jane
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Oh Pamela, my heart sank when I read your post - I know you will be OK but i just so wish you didn't have to face more surgery and treatment. Please let us know how the op goes. You know we will all be thinking and send you warm gentle hugs wherever we may be.You are the best!!!!!!!!!
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Pamela, I am sending hugs and positive thoughts. I didn't know that you can get a bc lump in your breast after an bi lateral mx? Hang in there. We are here for you.
While I haven't been posting for a while, I have been reading your posts. Neece, my hair looks just like your picture. I have been on a fitness rampage (running, lifting light weights, crunches, stretches, dieting). I may be a bit obsessed, but I figure worse things can happen. I have lost 18 lbs. My goal is only 10 lbs away. Today, I have to get my blood taken for tomorrow's Zometa infusion. It has been a whole month without any doctor's appointments. What a great month!
I wish everyone the best. Happy Spring!
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Jane- I am sure your ears are beautiful! But I know the feeling of wanting to keep something covered.
BarbT and Jane, I averted the matted down effect by using Pantene Waxing spray, a little spritz and some tousle and I have spiky waves. I am with you both on the color, that Natural Instincts was a life saver, I couldn't take the hats any more.
Chine- Hats off girl, no pun intended, I want to loose some weight and get back on a program, but I know I will have to be "ready" or it will be half-hearted at best. Congrats and let us know how the Zometa goes.
Neece- Sorry about the drama ala son and girlfriend, I know having a 16-year-old daughter that it does come in waves, hang in there girl this too shall pass.
Pamela still think and praying for you girl, keep us posted when you feel up to it.
Patty How are you doing?
Hope it is nice wherever you ladies are
Barbara
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Hello All
BarbT- I hope everything goes well with the tissue expander. I go tomorrow for my second fill.
Pamela- I am praying that everything went well yesterday. I am so sorry you have to go through this again. Your are in my thoughts everyday.
THINK POSITIVE
Catherine
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surgery went well. The bs said she got all the tumor and even took more tissue just to make sure. Did you know all recurrences in the breast are from left over tissue with cells? I didn't know that. my bs keeps saying its hard to tell whether this is new cancer or regrowth of old.......she was leaning to new. Well according to all i've read, local recurrence in a mastectomied breast is due to left over cells from primary surgery. hmph, sorta ticks me off even though i know a surgeon can't get everything, but why blow smoke up my ass? I'm brighter than one might think by looking at me all teary eyed and confused with fear.
anyway, i go see my new onc tomorrow. dunno what if any chemo they will give me. i know i cannot do the usual remedy. i get too toxic. but, bs says there are alternatives. I also will have an appt with the rads onc later in may once the surgery wound heals.
everything will be ok. triple negative or not, everything will be ok. i keep catching these little buggers early and thats key to longevity. i've got too much to do to stop checking myself......and you girls have to do that too. you never know what this nasty stuff is gonna do and while we hope and pray it is gone for good 30 percent recurrence is high. know your foobs/boobs.
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Hi all..
Pamelajo: Love your attitude and thankful that your surgery went well. I have been waiting for the "other shoe to drop" since treatment ended, but am through with that. The good thing is that you had reconstruction lined up and they were able to catch it early. Keep up the Amazon Warrior spirit.
Barbara: Thanks for the Pantene Wax Spritz tip...my hair is poking out all over the place and I am already needing a second trim from my hairdresser! Still love not wearing anything on my head.
Hope you are all doing well....and getting on with life. Fighting hot flashes constantly, but even that is just another stage in this road that we are traveling.
Have a good week...
Kim
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Pamelajo sending hugs and more hugs
Cancer Sucks!!!!!!!!
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Hello SOSisters.... wanted to check in and say hi to everyone.
ChinaBlue - do you have any exercise motivation to spare? Sounds like you are doing all the things I just keep thinking about! My hair also looks a lot like Neece's, only it's white with dabs of gray. Glad you are doing well.
BarbAnne - thanks for the Pantenne tip, I will have to get some and try it. Altho don't know how pretty it has to be to wear in the house, still hanging on to the wig for a while. I may decide to color before I let go of the wig, just have to see how it goes.
Catherine - how did the fill go? Hope all is well and you are doing good.
PamelaJo - so glad to hear the surgery went well. My thoughts and prayers have been with you. I hate the thought that you might have to try the chemo/rad thing again. But being our warrior princess we know you can handle whatever needs to be done and we will be supporting you 200%. I so agree with you that we need to be vigilant about doing breast checks and talking with our doctors about anything bothering us - even if we don't want too. Let us know as soon as you can how today's appointment went with the new doc.
Kim - I'm also fighting the hot flash thing and some days it is so tough! It's okay if I'm home and can get rid of wig and several items of clothing, a little tougher to do at work and sweating like a pig. I keep telling myself this is good for me but I sure do get hot!
ChinaBlue - couldn't have said it better myself - CANCER DOES SUCK! Heck of a way to find out just how incredibly strong we all are and how much we can handle!
Hoping that everyone else is doing well. Post when you can, we miss you!
Thoughts and prayers are with you.
Jane
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Dr appt went well. I do like the new oncologist. He thinks that if we attack this as aggressively as possible, I'll live another 40 years....... so, next Friday I start 4 rounds of A/C every other week and 12 weeks of Taxol after that. Then, I get radiation. He feels this is the best chance I have never to have another problem.
He also says that he will not leave me high and dry like the old onc did. If I cannot handle the chemo, we will find something else...... and he will, I believe him.
I have a PET scan scheduled for Tuesday, although he says every indication is that nothing has spread, he still wants to make sure because he doesn't like surprises and doesn't want to treat me with A/C when I might need something else.... so I'm trying not to flip out. I think if my bone scans and ct scans came back clean this will too.
I'm hangin in there. Could some of you ladies who have taken this treatment give me some helpful hints on what to expect? I'm all knowing about C/T......but this is new.
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Dr appt went well. I do like the new oncologist. He thinks that if we attack this as aggressively as possible, I'll live another 40 years....... so, next Friday I start 4 rounds of A/C every other week and 12 weeks of Taxol after that. Then, I get radiation. He feels this is the best chance I have never to have another problem.
He also says that he will not leave me high and dry like the old onc did. If I cannot handle the chemo, we will find something else...... and he will, I believe him.
I have a PET scan scheduled for Tuesday, although he says every indication is that nothing has spread, he still wants to make sure because he doesn't like surprises and doesn't want to treat me with A/C when I might need something else.... so I'm trying not to flip out. I think if my bone scans and ct scans came back clean this will too.
I'm hangin in there. Could some of you ladies who have taken this treatment give me some helpful hints on what to expect? I'm all knowing about C/T......but this is new.
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Pamela- I am so happy you like your new onc, but holy crap..All of us A/C-ers have advice but we all had it a bit different too. So here are a few things off the top of my head --suck on ice or a Popsicle during part of the tx --it will help prevent mouth sores. Make sure you are taking the stool softener/laxative (snekot was the best) at least the three or four days around chemo cause the roids for AC are really binding. Moisturize, drink plenty or water, and when the water tastes like crap add lemon. Oh and some pepcis type stuff helps with the heartburn etc...Honestly AC didn't kick my you know what until number tx 3, 2 was not a cake walk , but 3 really kicked it in full. But it is all doable and we are here for you.
I am sure if your bone and ct scans are fine your PET will be too. But my onc put me through all those hoops too, I know the stress and anxiety you are feeling and i am thinking and praying for you.
Do you have to have your port put back in? Another Heart test? Does your new onc have a date he wants to start?
Oh and many of us maybe all, had to have Nuelasta after AC, so thats a bonus shot to look forward too.
Oh girl we are all here for you.
Love and comforting hugs
Barbara
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