Chemo Starting Sep 09
Comments
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WOOHOO all you ladies with good news! How do you spell relief? N-E-D
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Wow, so much has been going on since I last posted. First of all...
ZIPEDY DOO DA Pamela! What fabulous fantastic news. I was so happy to read your post I nearly cried. And I loved your 'full of crap' line too -all of us who have been thru surgery and chemo know that's so true! I am sorry you need to have chemo but at least now you know once it is done, you will be on the road to a healthy life. (you are the sort of gal to grow old disgracefully so now you can!)
Take care of yourself during chemo though, won't you?And Catherine I am also so happy to read your good news. What a huge relief.
Wanda please look after yourself as oyu recover from surgery. It does sound like a major deal. Are you gettting PT to help now?
China what a hero with your weight loss. I am putting it on!! We ar emoving towardswinter here and I usually gain a few pounds at this time of the eyar. But I suspect it is also to do with me indulging myself a 'leetle' more than usual - I know it's been months, but I am still appreciating my taste buds so much!
Barbara Anne and Vicki lynn - happy birthdays to you both! Hope you had sepcial days that help to wipe out the nastiness of last year's birthdays for you both.
Do you know, this past weekend was a real turning point of some sort for me. I realised that I felt unequivocally HAPPY - for the first time in over a year. And, I am glad to report, the feeling has lasted all week. Mothers Day was especially nice with my family, the sun shone, and I just felt great and happy to be alive.
love to all, and to those who have not posted for a while but might be reading it all still - take good care and enjoy life.
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Awww Neece your post was so sweet. I have had a few of those moments, just happy. it is nice isn't it. Thank you for the wishes.
Pamela, yea for good news!! Sorry about the poo poo, but as they say s*$t happens
, I am happy for you, any how keep us posted we are all thinking of you.Catherine, Also yea for good news, big hugs to you too.
Patty and Vicki Happy Birthday!! I don't know what days yours are, but you said May so I am covering my bases. Oh and poo poo on your landlord Vicki, I am sure you and the hubs will find a solution.
I am sure I forgot something, but I don't want to scroll back a page....so I will post again if it comes to me.
Thank you to everyone who wished me a happy b-day.
Love and hugs
Barbara
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I know....
Wanda, hope all is well you are in my thoughts.
Jane, Olive Garden yum, hope you had a good Mother's Day.
Ok now I think I got it all
Barbara
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Hi to all....I am enjoying 2 days off of work because my boss is on vacation. I saw a friend today that I hadn't seen since before my hair fell out and as some of you know, I have been going "naked" for at least a month now. She loved it! My hair is coming in all crazy, but I am so thankful that it is hair! I have been feeling more thankful too Neece and a little more "relaxed" that cancer isn't going to dominate my entire day/week/month/year. I am still a little more "mindful", but not so paranoid.
Pamelajo-Keep the faith....still in my thoughts and prayers.
Vickilynn-Asked a friend to stop by the Lazy Dawg Cafe before I knew that it was closed. I do hope that you get it operational again.
Hope you all have a good weekend...
Kim
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Hello My SOSisters!
Finally after 4 LONG WEEKS I got my path.. report. It is B-9!!!! What I had is called enchondroma tumor, it weakens the bone. When I got my xray it showed a fracture, where as before I didn't have one when I left the hospital. I don't know how I got it! Good thing the rod was put in or else I would be in worst pain. I have PT 2 time a week which she comes to the house. I can't drive yet! Soon I hope!
I haven't read evryone post but I wish everyone is doing well and in great sprits! I will keep in check more often now that I am a little more mobile.
HUGGGGS Wanda
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Wanda! Wonderful news! It seems you still have a way to go on recovering, but the pathology report must be such a relief. Whew.
Patty
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Hello SOSisters. sorry I haven't checked in for awhile. No good excuse, just being busy doing things that don't have anything to do with BC!
PamelaJo and Catherine - I am so thankful that you two have come through with wonderful news. Know that even though I haven't posted lately, I have been reading the posts and keeping up with everyone! Prayers and positive vibes work wonders!
Vickilynn - sorry to hear about the cafe. Hoping by now you have found a new "home" and will be back to work serving all those wonderful goodies. How are you feeling? I was doing so well, now the Famera is wrecking havoc with my bones. It does seem to always be something.
Neece - I'm with you, have experienced the happy, life is good feeling myself. In fact life would almost be perfect except for these stupid Famera pills. Normally I am content and appreciating every day, I kept telling myself when I got through chemo and radiation that I would take time to "stop and smell the roses" and I'm trying to do just that everyday. Glad you are feeling so much better and things are looking somewhat better on the home front.
BarbAnne41 - hope you are doing well and enjoying being another year older. I like your photo, I have to get DH to do a new one of me but I'm going for color this week. Then the new photo.
Wanda - congrats on the wonderful path report. Sorry to hear you had broken a bone, what kind of treatment besides PT? Was the tumor caused by the cancer/chemo/radiation? Glad you are doing well.
Patty - hope this finds you doing well and enjoying the weekend. Getting very warm in NC with afternoon showers on a daily basis. Must be summertime!
Barb0323- hope you are doing well. Haven't heard from you for awhile.
Everyone take care, please post every once in a while so we know you are doing okay!
Thoughts and prayers are with you.
Jane
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Jane - I'm sorry you are having trouble on the Femara. Does your Onc have any suggestions? It seems like a bit of a lottery as to who has problems and who doesn't.
Well ladies, I'm leaving for my first hair appointment in a few minutes. I'm so excited! When I told my son I wouldn't be here when he got home from school because I was getting my hair colored he said "Mom, I don't think the problem is the color. The problem is the length. So don't be disappointed if it doesn't look much better." Okay. He's probably right. But I know you ladies will be cheering me on anyway!
Patty
PS - Home from the salon. New pix is the result. No grey hair!
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Patty I LOVE your hair!!! Well done you.
I have had quite a few compliments lately on my "funky" hairstyle. I just smile....
And Wanda so glad for your news.
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Good Morning!
Sorry I am been M.I.A. for awhile. Been quite hectic at work. Many days working 11 hours. Just exhausted when I get home. Need the weekends to recover. I do have alot of catching up to do on the posts.
Just to let you know what I am up to. Had tissue expansion surgery 4/27. Get my first fill next Monday. I got the results of bone density scan. I had that because I am on Femara. It was determined that I have osteopena (sp). It is like pre osteoporosis. Put me on medication for that. Dr. said if I did not take medication I would definitely get osteoporosis as a result of the Femara.
Patty your hair looks wonderful! Mine is growing like crazy but still grey. The front is not as long as yours. I figure give it another month then I am going to have it colored and trimmed. It is a completely different texture. Used to be real fine. Now much thicker and kind of wirey. Wearing a wig to work. Minute I get out of work the wig is off. Real hot in Florida this time of year. Have bought several hats and they are nice and cool and have enough hair so that it does not look bad.
Well, have to get ready for work. Have a great day!
Barb T
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Good Morning
Just checking in to see what everybody is up to. I will have surgery to take out TE and put in implants on June 10th. I can't wait to get this over with.
Wanda- I am so happy to hear your great news. I have beent thinking of you.
Patty- great color. I am not sure if I am going back to my blonde or leave it my natural color.
Gald to hear everyone is doing everyday things and not just BC stuff.
THINK POSITIVE
Catherine
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Hello Ladies,
Here is to hair!!!!!! Let it grow...let it grow.
I just got back from my ps. I am scheduling a a breast lift and implant under my diep flap for December. I am really looking forward to being balanced. He also wrote a prescription for mx bras and a prothesis. I am sick of d cup (natural)/ b cup (foob). I was glad to hear that he would do laser scar removal (I have bad scars from the diep) a several months after the surgery. All good news.
I really wish the best to all.
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How is it a small piece of rubbery plastic can make me so happy? Yes, I got a prothesis that fits into a special bra. I am BALANCED for the first time since last August! I am no longer hiding in bulky sweaters, jackets, scarves or big blouses. I feel myself standing straighter. It is stupid, I know, but I am so happy.
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Hi Ladies....I just stopped in to cheer you all on. I was in the Sept 08 chemo group and just wanted to tell you to hang in there. There is light at the end of the tunnel. I'm in complete remission and have had my hair cut 5 times since my chemo ended in Jan 09. Hugs to you all....and lots of well wishes!
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I haven't lost one hair yet. KNOCK ON WOOD. ugh LOL
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Hello SOSisters....I have my first hair appointment tomorrow. Will wash away the grey and see what magic my hairdresser can work on my hair. I can't do anything with it, it's straight, curly, wavy - a mess! I will post pix afterwards.
Patty - I love you new hairdo! Ours may look very similar when I get finished tomorrow. I so want to get rid of my wigs. I actually had my 6 month checkup with onc today. He said as long as I can manage the bone pain with Advils he doesn't want to change my rx. Said all the hormone therapies have se's - no great advantage to switch to something else.
Neece - Isn't it great to get compliments on your hair and have your own little secret? Glad you are doing well.
Barb0323 - sorry you are having to work so hard. Sounds like you are quite busy. Hope your fill goes well on Monday. I have bone denisity test on Weds. I already have ostopenia and suspect I will also be taking another pill. I'm already having my own "personal summer" every few hours with hot flashes, hope that pill for stronger bones won't have any se's!
Catherine - sounds like you are almost to the finish line. What is your natural color and how long where you a blonde? I was a brunette and am going to be one again but I'm going to get the lightest shade of brown I can get. I have gotten used to my white hair and don't want to go to dark.
ChinaBlue - I don't think it is the least bit stupid to want to be the same size on both sides. You go girl! Glad you are happy with your prothesis! Now it's time for t-shirts.
Genia - thanks for the encouraging words. As you can see by reading our posts we are all on the mend - some setbacks here and there but we have such a wonderful group of supportive ladies. We will all be delighted when we have had to have 5 haircuts!
Pamelajo- How are you doing? What can we do for you? Sending positive vibes and lots of prayers. You hang in there warrior sister, we are here for you!
Hope everyone else is well. Question for you - anyone had a blood test and been low on Vit. D? I talke D already but onc said he would bet mine is low. Have to have blood test on Friday.
Take care. Thoughts and prayers are with you!
Jane
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Gosh...such great news from everyone.
Barb T - Good luck on your first fill. Booblets on the way!
Neece - You've got a great shaped head for short hair so I can see why you get compliments.
Catherine - Yes! It is almost over! Surgery isn't much to look forward to, but won't it be nice to come out of it with something...instead of without something?
China - Hooray for foobs!
Pamelajo - Glad to hear your hair is hanging in there. I hope chemo is treating you kindly.
Jane - Tip on the hair color: My hairdresser was surprised by how "light" my hair came out. She was expecting a darker color. She surmised that chemo hair doesn't take the dye like regular hair..especially the really white tips from the first growth. Turned out to be a good thing for me because I didn't want it any darker than it turned out.
Hair again (or still for Pamela)! Boobs again! Happy days on the September 09 board!
Patty
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Patty, you are so right about hair color. I got my hair colored today. I went to my regular salon and told them I did not want any red in my color. My guy assured me he would take care of it. Now, I am sitting at home with red hair. Ug. I will call tomorrow to see if it can be fixed. I was really looking forward to going to work topless, I guess I will have to put it off a little longer. Back to the wig.
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Hi China: Didn't realize there was anyone else on here from my locality. Sorry to hear about the red hair. That must be very disappointing for you. I'm three and a half months PFC and feel I have enough hair to color but I'm afraid that the white just wouldn't take the color properly. I guess there are still chemo drugs in the hair shaft that can react with the colorant making it unpredictable.
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Hello SOSisters....I went and got hair color yesterday, supposed to be a light brown. It has a reddish tint to it and I HATE IT! It wasn't that I was going to go wigless yet just not long enough for me but I so dislike the color. Told my husband I rather be bald (I sort of half mean that). Anyway now I will have to decide if I'm going to just leave it because I will have to get it redone in 4 weeks (grey and more grey) or go back and make her change it.
Hope everyone is doing well. I keep telling myself this hair thing is a small thing in the scheme of things but.....
Take care. Thoughts & prayers are with you.
Jane
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Jane don't settle. We finally have hair. Let's look beautiful.
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Hey ladies
I have to say I love you but I warned you, scroll back a few posts. I said I tried to color my hair and it came out red!!! I ended up putting in two more dyes that weekend to balance it out. It is the white mixed with ANY GOLDEN TONES in the dye. The only thing that helped was a neutral medium brown. Not too dark, and NO GOLDEN TONES!!
Patty you look lovely!
Barbara
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Hi girls. Had tx #2 a/c today. Things did not go well finding a vein, so they sent me over to the hospital where the outpatient oncology nurses got it on the first try. I refused the pic line and port. NO MORE CUTTING.
Got home and the BS nurse called. Apparently the last lumpectomy on my mastectomy did not come back with clear margins in their eyes. Like I could give a flip about that at this juncture. She wanted me to schedule more surgery. Ummmm, no. I put my foot down and counted to 3. They got a 2mm margin but want 3mm. Too friggin bad ladies. Cut someone else open. I asked my onc about a lump I found today (which he thinks is nothing but a little welp on a tendon, but wants to watch it.....all said with his eyes squinted and a funny wink). I asked, well, if it is cancer, shouldn't what I'm doing now get rid of it. He said ABSOLUTELY!!! So, if there is something between 2mm and 3mm, or a brown hoo hoo hairs width in hick terms, then it should nuke that too.
I'm so sick of this.
Anyway, dunno if I told you all about the prayer blanket that was made for me. A guy I work with has 5 children. One of which is 15. Annabel. She came with Paul and his wife to see me in the hospital after recon. Anyway, she found out I had to do chemo again, so she went and bought me a bright purple fuzzy blanket, took it to church, and had 40 people pray over it and anoint it with Holy oil from Isreal to "ease my side effects". I think it's working. Things haven't been too bad really. Considering I've lost all ability to deal with "bad news" "missed attempts to hit a vein" and general "bullshit", I'm doing well. My patience level is a big fat 0.
My mother in law who had a stroke is moving in with us too btw.
My plate is full. I have random pieces of stuff rolling off my plate and splatting my shoe.
LOL, but.........I think chemo has killed my "bummer" gene. Without patience, I'm still bubbly and able to crack jokes at will.
I'm so glad all your hairs are coming in. I'm having some mild shedding, but 14 days out from the first tx, I feel my follicles are hanging in there. Just blessed to have the opportunity to mourn my hair LOL
As for dyeing....... I dyed black after I tipped the ends in hot pink. It LOOKS MARVELOUS!!!!! blue black. sorta punk/goth. It fits me. I miss my red hair, but oh well. Who knows what shade I'll decide on when it comes back in next!
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Hi girls. Had tx #2 a/c today. Things did not go well finding a vein, so they sent me over to the hospital where the outpatient oncology nurses got it on the first try. I refused the pic line and port. NO MORE CUTTING.
Got home and the BS nurse called. Apparently the last lumpectomy on my mastectomy did not come back with clear margins in their eyes. Like I could give a flip about that at this juncture. She wanted me to schedule more surgery. Ummmm, no. I put my foot down and counted to 3. They got a 2mm margin but want 3mm. Too friggin bad ladies. Cut someone else open. I asked my onc about a lump I found today (which he thinks is nothing but a little welp on a tendon, but wants to watch it.....all said with his eyes squinted and a funny wink). I asked, well, if it is cancer, shouldn't what I'm doing now get rid of it. He said ABSOLUTELY!!! So, if there is something between 2mm and 3mm, or a brown hoo hoo hairs width in hick terms, then it should nuke that too.
I'm so sick of this.
Anyway, dunno if I told you all about the prayer blanket that was made for me. A guy I work with has 5 children. One of which is 15. Annabel. She came with Paul and his wife to see me in the hospital after recon. Anyway, she found out I had to do chemo again, so she went and bought me a bright purple fuzzy blanket, took it to church, and had 40 people pray over it and anoint it with Holy oil from Isreal to "ease my side effects". I think it's working. Things haven't been too bad really. Considering I've lost all ability to deal with "bad news" "missed attempts to hit a vein" and general "bullshit", I'm doing well. My patience level is a big fat 0.
My mother in law who had a stroke is moving in with us too btw.
My plate is full. I have random pieces of stuff rolling off my plate and splatting my shoe.
LOL, but.........I think chemo has killed my "bummer" gene. Without patience, I'm still bubbly and able to crack jokes at will.
I'm so glad all your hairs are coming in. I'm having some mild shedding, but 14 days out from the first tx, I feel my follicles are hanging in there. Just blessed to have the opportunity to mourn my hair LOL
As for dyeing....... I dyed black after I tipped the ends in hot pink. It LOOKS MARVELOUS!!!!! blue black. sorta punk/goth. It fits me. I miss my red hair, but oh well. Who knows what shade I'll decide on when it comes back in next!
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Hi girls. Had tx #2 a/c today. Things did not go well finding a vein, so they sent me over to the hospital where the outpatient oncology nurses got it on the first try. I refused the pic line and port. NO MORE CUTTING.
Got home and the BS nurse called. Apparently the last lumpectomy on my mastectomy did not come back with clear margins in their eyes. Like I could give a flip about that at this juncture. She wanted me to schedule more surgery. Ummmm, no. I put my foot down and counted to 3. They got a 2mm margin but want 3mm. Too friggin bad ladies. Cut someone else open. I asked my onc about a lump I found today (which he thinks is nothing but a little welp on a tendon, but wants to watch it.....all said with his eyes squinted and a funny wink). I asked, well, if it is cancer, shouldn't what I'm doing now get rid of it. He said ABSOLUTELY!!! So, if there is something between 2mm and 3mm, or a brown hoo hoo hairs width in hick terms, then it should nuke that too.
I'm so sick of this.
Anyway, dunno if I told you all about the prayer blanket that was made for me. A guy I work with has 5 children. One of which is 15. Annabel. She came with Paul and his wife to see me in the hospital after recon. Anyway, she found out I had to do chemo again, so she went and bought me a bright purple fuzzy blanket, took it to church, and had 40 people pray over it and anoint it with Holy oil from Isreal to "ease my side effects". I think it's working. Things haven't been too bad really. Considering I've lost all ability to deal with "bad news" "missed attempts to hit a vein" and general "bullshit", I'm doing well. My patience level is a big fat 0.
My mother in law who had a stroke is moving in with us too btw.
My plate is full. I have random pieces of stuff rolling off my plate and splatting my shoe.
LOL, but.........I think chemo has killed my "bummer" gene. Without patience, I'm still bubbly and able to crack jokes at will.
I'm so glad all your hairs are coming in. I'm having some mild shedding, but 14 days out from the first tx, I feel my follicles are hanging in there. Just blessed to have the opportunity to mourn my hair LOL
As for dyeing....... I dyed black after I tipped the ends in hot pink. It LOOKS MARVELOUS!!!!! blue black. sorta punk/goth. It fits me. I miss my red hair, but oh well. Who knows what shade I'll decide on when it comes back in next!
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HAH! I was WISHING my hair had come in red and curly!!!! But I've been warned --- don't try to color it because it sounds like the RED you're all getting isn't so great. Love Pamela's idea --- why not do something really different?
You're in our prayers through all this Pamela... so hard to hear about doing that A/C... I didn't do well with that at all. You seem like a stronger person than I.... but I don't think I could put up with my MIL moving in!!!!! Hope she's a helpful one!
Anyone else struggling with this issue? I've now had 2 invitations about Relay for Life (which is fine) but there's something about being labeled a "survivor" and being honored for it that bothers me. What about those who didn't survive or won't survive? I'm a survivor not because of anything I've done. And my oncologist isn't calling me a survivor until I've lasted 5 years without recurrence. It just made me cry when I read an invitation to a special "reception" for us the week before the relay. I know it encourages others to keep giving to research, etc. Maybe it's just me.
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Hi Vickilynn,
You are a survivor and certainly it is because of what you (and your medical team) have done!!! You were the one who weathered the treatments and got through it intact. You deserve to be honoured as we all do.That is certainly not to say that those who don't survive, have not done all they could - in that sense it is the luck of the draw and no fairness involved - however, you should still be proud of what you have done.I understand the oncologists' definition too - but 'survivorship' can mean many things at thesame time I think.
Pamela I am in awe of oyur humour. I think if my MIL moved in (lovely though she is) I would want to go back to hospital permanently! lol.How are your se's going so far? I think your hair looks terrific too.
Everyon, my little family has had a breakthrough of sorts this week - my DH invited son and his GF to a concert with us on Thursday night and the GF and DH spoke (PLEASANTLY!!!) to each other. A major event in my book. I was so relieved. She is staying over tonight, as she used to do before all the unpleasantness happened. I don't think things will be as they used to again, but at least the rancour has receded now. It makes me very happy! I hope it lasts.
I am interested to read all the hair stories, the good and bad. It is a comment on how much our hair means to us. Understandable that now we are getting some back, we want it to look good.
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Pamelajo, I am unclear about your journey. It says at the bottom of your entries that bc is a secondary cancer from Hodgkins lymphoma. Ug. You had a bilateral mx in July and chemo in September. When and where was the lumpectomy? Did you find a lump after the mx? Are they giving you the same chemo? Please forgive me if you have stated all of this.
On a separate note, how come the bs nurse called about the margins. I would really want to hear from the doctor. I am sure by now you got a chance to give him a good talking to.
Is your onc going to order an ultrasound for the lump that you found?
I admire your spirit and sense of humor. You are great!!!! Man, I love your hair idea. Please keep the thread updated. I know I am not alone in thinking about you. Hugs.
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I am going to the Relay for Life that is being held at my 14 yr old's high school. I am going to be her team's chaperone ( so I will be there all night long) and I am on a teacher's team.
My feelings are mixed on the word survivor. It doesn't feel right. If I use that word, it implies that my cancer is over and done with. I don't think it will ever truly be over for me. Whether it ever grows again in my body or not, it will forever be in my thoughts. My way of thinking about life is different now. My body and spirit has scars. My family has scars from it. The word stirs up so many emotions. Maybe because somewhere in my head, the thought of mortality scares me.
I also feel uncomfortable with being honored. It is not an honor to have cancer. However, I do want others to know that I got through the surgery/chemo/rads. So, if someone in my community is facing cancer, maybe I could help them. The way that all of you wonderful wonderful women helped me.
If the American Cancer Society wants to use the words honor and survivor, so be it. No one knows what to say. I certainly do not. I want to help others and this is one way I can. I have decided not to attach too much meaning to their words honor/survivor. I will show my support for those lives that cancer has touched.
On a lighter note, I went back to my hair salon and got the red toned down. It is still a little red, but darker. I like it. I am officially going to stop wearing a wig! I really have just 1/2 inch of hair, but it does cover my scalp. I wonder what my 4th graders will say on Monday when I go to school.
Neece, I am happy that things are settling down with your family. Family problems are the pits.
Enjoy the weekend. Happy Spring.
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