Chemo Starting Sep 09
Comments
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Pamela - Well that just sucks. Seems like there should be a local treatment to zap those nasty little guys. Toes, fingers, everything crossed for you.
VickiLynn -- Glad to hear the cafe is doing well and your rib is healing. Sounds like your compensating techniques for chemo brain are working, but how frustrating! Tell Marvin to send one of those cinnamon rolls to me.
Neece and Catherine - Good luck with your surgeries this tomorrow. I'm beaming positive thoughts your way.
China - You ended rads today, right? Good girl! Now for the de-porting and biopsy...hope everything goes just fine.
Barbara - How those heels doing? Healing?
The American Cancer Society was passing out vases of daffodils to all the patients at the radiation clinic today. That put a smile on all our faces.
Patty
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Oh Pamela I was so sorry to read your post. You have absolutely had ENOUGH to deal with. Please let us know as soon as you know more. I will worry until then as I know you will be.
Catherine hope your op went well. I am sitting in bed in hospital with laptop - day 2 after surgery which seemed to go well. One foob is a bit bigger but am hoping that is just post surgical swelling.
Love to all.
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Hello SOSisters... sorry I haven't posted for a few days, been busy working. Almost through with radiation, have 1 more regular txt and 5 boosts. My poor breast is very very pink and very tender. I am putting lots of cream on and hoping it will be better soon.
ChinaBlue - you are going to have a very busy week next week. How are you coping? I'm sending you positive vibes, know your biopsy will be clear. Will say a prayer each eveing, let us know as soon as you get the results. Congrats on finishing radiation - isn't it great!
Patty - we should finish radiation within a few days of each other. How are you fairing? Have you decided on which hormone therapy you will be doing?
PamelaJo - sent you a PM. Please post and let us know how you are doing. We love you and we're all praying for you and sending positive thoughts!
Catherine - thinking about you. How did your surgery go? Hope you are doing well and pleased with the results.
Vickilynn - sounds like you are really enjoying the cafe. You will get the hang of the cash register. I'm sure all of your receipes are delicious! How is hubby doing? Glad your rib is healing nicely.
BarbAnne - how are you feeling? Staying warm in Michigan?
Neece - glad your surgery went well and you were able to post and let us know. How long will you be out of work? Does it seem like this journey is coming to an end?
Everyone take care.
Thoughts and prayers are with you!
Jane
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Good to hear from you from the hospital Neece...surgery now officially behind you, let the healing begin! I hope surgery went well for you too, Catherine. China, I hope everything goes will with the deporting and biopsy...please let us know. Pamelajo, you are in my thoughts.
25 rads down, 3 to go. Wow, that went fast. No complaints...skin is doing fine. I was surprised to learn on some other boards that the skin reactions can come even after rads are done...but even if that happens it will be short lived. Jane, you are right behind me....hooray for us!
Happy Saturday everyone!
Patty
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Pamela - positive thoughts and lots of prayer for you!!!!!!!!!!!!!!!!!
Patty & Jane, right behind ya!
Anita - Almost done too??
I have 6 left - red itchy rash on chest - topicort ointment ordered. says common in caucasian women with previous sun exposure - I am prone to sun poisoning especially on my chest! Tightening noticeable on te, but no skin effects yet (fingers & toes crossed)
Catherine - I too will have a te replaced - am praying she'll do it sooner than later, really would like to have some kind of boobs this summer!! If the redness from radiation that extends to the non radiated side subsides, she'll do - hopefully 4 weeks will be enough time!!!!
Neece - can't remember what your surgery was, glad you're doing well, will wait for details
Love to all!!
Vicki - I can taste the cinnamon roll - Have such a sweet tooth these days!!!
Di Di
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Hi Ladies:
I have been away for a long time dealing with family issues here as well (so sympathize with you Neece). I have 4 more rads to go and I am looking forward to being done with it all. I am burned up the right side of my neck and even the right side of my back...my PT says that I have "slight" lymphadema in my right arm and now extending to my back. Plus I have a couple of freckles that are bleeding. It would really suck to get skin cancer from treatment to get rid of breast cancer.
PamelaJo..So sorry to hear about the pathology report. I too had a bilateral mastecomy 8 days before you, but won't go for recon until another 6 months or so. You are in my thoughts....I too am jealous of your hair!
Vickilynn..Glad to hear that you are enjoying the cafe...sounds like your community really needed something like that...kind of reminds me of "The Whistle Stop Cafe"(Fried Green Tomatoes).
I am still suffering from "chemo brain" at work and just plain exhaustion from radiation. I changed my hours so that I can leave work at 1:30 and it helps to go home and have an hour or two to myself. My hair is coming in pretty quickly. I now have eyebrows and they do resemble caterpillars....but joy of joys I am getting eyelashes and they seem to be coming in thicker...I have even worn a little mascara on two occasions. I hated the "Uncle Fester" look that I had before getting eyebrows!
I hope that everyone has a great weekend...here in Central California we are gearing up for a high of 79 tomorrow and I think we might go for a motorcycle ride. Then rain from Tuesday on...oh well, we do need the water.
Kim
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Hey ladies!
Well, I must say I am doing better since my last post. LAT flap surgery is a bitch people. LOL Really, I woke up from anethesia and thought WTH have I done....... but now, other than these irritating drainage tubes (6) and some tightness in my back and chest, I am really doing well.
As for the pathology report.... well, it is what it is. Local recurrence is not a rare thing, even when you have had a mx. Apparently it happens quite often since they cannot get all the tissue out during the mx. If you had radiation, more than likely you won't recur.... I didn't have radiation.
My oncologist can kiss my country ass. She called me and said "Pam, I heard you had reconstruction." I go "yea", she goes, "well, I've got bad news. the path says there is cancer in the scar tissue that was removed". I'm flabbergasted and I go "what does this mean".....and she says "well, I won't sugar coat it, but it doesn't look good" I said.....am I gonna die? and she said, well....we will have to do some tests, but this is not good.
Well yea........any cancer is bad just in the fact that its cancer, but for pity sakes... I had 2 tumors in my right breast and one in my left with 2 lymph nodes involved, had the double mastectomy, took two rounds of chemo before she shut me off for being toxic, and it didn't spread anywhere else........so why should I think it has now?
Come to find out, my PS called the next day once the pathology report was in and he was far more comforting. He said that cancer indeed was found in the scar tissue, but it was so small, and the report says that the cells did not expand past his incision.....so basically, it's gone. I do have a lump up where the initial tumor was, but he said if it comes back hot, we will just do an excisional biopsy and maybe plant a radiation seed in there. He said he looked at this situation as a blessing.......it was found early (again) and we now can follow up. Had I not had recon, I might never had known it was there till it was too late.
All my bloodwork is perfect. I think if it was in my bones, liver, lungs or brain I'd be having some sort of symptoms by now since I'm over a year from detecting the first cancer.
Everything is going to be fine. I go for scans Tuesday and they will all be clear, I know it. If they aren't.......I'll just deal with it. This damn disease will not be the end of me. I'm going out with a bang, not a friggin whimper.
Can you continue reconstruction while doing radiation? Neece, do you know?
I go Monday to see Dr. Hottie to get my drains out YAY!!!! I hate drains.......
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Hi Pamela I am so in awe of you and really like your fightin' attitude. And yes your PS approach MUCH more encouraging. Enjoy the getting out of drains visit. I too hate drains. I went to sit up in bed this afternoon and accidentally put my hand on one tube as I did so and nearly reefed it out of my side! Ouch! Then later went to bathroom and got the drain tube caught up with my PJ bottoms and ouch! again. I only have two this time at least - one in each side. If they are not draining too much overnight I can maybe go home tomorrow. yay for laptops and wifi broadband in hospitals as I can at least read your posts while here.
My new boobs look pretty good - a bit red around the dressings and the right side (the original reconstructed boob from 2002, now with a brand new implant to match the new one) does look slightly larger than the left side - but I'm not worried about that. Just glad to have new boobs and have the te out.
Pam I am not sure if your recon can proceed if you are undergoing radiation. I know in Australia they usually like to have rads complete before recon so that tisssue damage has a chance to heal. Not sure if that applies to the kind of recon you had though, whether that is just for implants.
Please let us know about results on Tues. I will be waiting to hear.
Domegal if you haven't already done so please go see a specialist PT or OT about lymphedema. You need to get on top of it as quickly as you can so it doesn't blow out too badly - pun intended. I am wearing my compression sleeve and glove while in hospital and DH and I will start lymphatic massage again once I am home. Not worth letting it go because it becomes much harder to treat. And radiation is a definite high risk factor for le - not that I had rads - I am just lucky I guess!
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Hello SOSisters.... had last of 28 radiation txts today, now start my 5 boosts and will be finished next Monday! YEAH. Then all I will have left is Herceptin every 3 weeks until September.
Patty - glad you are almost done. My breast is very red and very tender and the technician said it will probably get worse before it gets better. Glad you have had an easy time - I haven't been plagued with the fatigue (at least so far). I have been reading the other websites too and feel very fortunate to have gotten along so well.
Didi- glad you are almost finished too! Doesn't it seem so nice to be able to see the finish line? Now everything is just one more step towards the end of this horrible BC journey!
Kim - sorry you are having such a time with radiation and having to go through family issues too. I also am rejoicing in eyebrows and eyelashes. Don't quite have enough eyelashes to use mascara yet but I've got a fine set of fuzzy weird looking eyebrows. I hated the no eyebrow look - kept my bangs from wig pulled down to cover sparse/no eyebrows. NC is getting ready to have about a week of high 70"s, low 80"s weather - all sunshine. Can't wait!
PamelaJo - okay I really dislike your onc and love your PS! Sounds like the PS isn't so concerned and I know you must feel so much better after his phone call. I agree with you, I think you would know. I'll be thinking of you tomorrow when you go for your scans, please let us know how they turn out asap. Have you done radiation before? You take care and you keep that attitude, we all need to be like you - no wimping out!
Neece - glad you are doing well. I can't imagine how aggravating it must be to have those drains. How are you feeling otherwise? How are hubby and son getting along? Things getting better between them? Glad you like your new boobs. I saw one of those magnetic bumper stickers today at the cancer center - said "save the ta ta's". I'm going to get one for my car.
Everyone take care!
Thoughts and prayers are with you!
Jane
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holy crap womens! had my first te fill today 100 cc's........ felt pretty good to start but once i got home, OUCH on the left breasticle! PS said it would hurt for about 24 hours, then get better. I can handle that. Got 4 of the 6 drains out.
AND, he said that the pathologist cut my scar tissue into 15 samples..... this was a small scar, keep in mind..... and he only found cells in 3 which could only be seen within the microscopes viewing field. PS isn't concerned. He said if there is other cancer in the breast, we'd just take it out and plow ahead. I adore him.I am getting a new onc. That bitch is dead to me. Pardon my cursing, but you do not EVER call a cancer patient and tell them their cancer has returned and their future looks bleak, without 1. a path report and 2. a follow up phone call.
Fight on sisters, fight on. On a light note, my boobs look great!!! LOL Hubby can barely keep from drooling. I'm already at least a B cup. It's fantastic considering where I was before.
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Pamelajo...you are too funny! I am so relieved that your hunky PS has a much more reasonable view of things. Three cancer cells hardly warranted the scarey and pessimistic call from your Onc. Glad you are firing her. Hooray for your hot new B-cups!
Kim...I've suddenly been hit with radiation fatigue myself. Spent the entire day on the sofa yesterday and didn't feel the least bit guilty about it (well, maybe a little when I saw the piles of laundry waiting at washer this morning.)
DiDi, Jane, Kim...we are all almost there! Only two rads left for me. My mom thinks we should have a party to celebrate...I'm thinking I'd rather have a nap.
Neece - I hope you get those drains out and go home soon. I never did figure out what to do with those things so I can totally relate to your trials with out of control tubes and bags. Ouch is right!
Sounds like a lot of us are on the same "hair" schedule. I've suddenly got the caterpillars above my eyes, with the little hairs sticking straight out. Not a great look but better than nothing. And my eyelashes are back better than ever...yipeee!
Patty
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hi everyone am happy to report I am home, drainless too! Hurray for that. Feeling OK just tired.
Pamela go girl and cha cha for B cups! That's my size too now. I really like my new boobs now I can see them (half of dressing removed now). One is still quite bruised but they are a nice shape. My DH likes them too! Have to decide what to do about nipples - last time I had a tattoo nipple done by PS but it has faded a lot - so I need to decide if I want to get that one re-done along with new one, or what to do. Decisions decisions.
love to all and you rads girls, go gently OK? SO glad most of oyu are coming close to the end.
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Neece - Excellent news! I'm so glad you are home and drainless. Hooray for perfect size B!
Patty
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Family reunion time! I'd like to say I've taken up a great hobby (sweet of you to think so, Jane) or been lost on a tropical island or something exciting but I've just been livin' life and really have missed all of you. My husband kept saying I needed to get back in touch because I always talk about my September sisters, but I knew I was so far behind on keeping up that I felt lost just thinking about logging on....how stupid is that!!! I started reading from page 42 & feel so sad that I haven't lived through some joyous & difficult moments with you. After a couple of pages, I thought I had just better log on or I'd put it off even longer. Needless to say, you've all been such a great support to me...and you continue to be to each other...how wonderful is that! I will catch up on my reading but in the meantime I'm happy that some of you have beautiful new boobs and that treatment has ended...or is very near to the end for all of us, and I pray constantly that we're all healed and that soon, our difficult days are just faded memories.
I'm days away from 5 months post chemo & have felt pretty normal...until Femara, that is! If I say something that doesn't make sense, I blame chemo brain and "almost" everyone falls for it
Those who know me well just roll their eyes and know the mouth is still faster than the brain! I've been on femara almost 3 months and they say symptoms go away....they lie My hands are weak and sometimes I get achy but ibuprophen helps alot (I just long for the days I'd forget to take a vitamin...the only pill I ever took!). I had zometa in January and will have it every 6 months for 3 years...it gave me the full bout of symptoms for 1 day, chills, fever & aches, and then I forgot about it (although it sort of reminded me of neulasta..yuck). I'm finished with herceptin in Aug...so only 6 to go! My MUGA (heart test) and bone scan were great and I, as well, look like a schnauzer One of my favorite students who works at Starbucks said it's more like a sheared Shitzu!! EVERYONE...even my onc, can't help from running their hands through it..and if they don't automatically do it, I tell them too! It's so soft and shiny and white and CURLY!! I also get the comments that I should keep it short...4 people, all different ages, said I "rock" the short hair. I had to apologize for my hairy legs at the doctors and realized it's time to shave again (better check under my arms!). I admire those of you checking your breasts (and am glad you have, after finding more lumps!) I'm having a hard time even touching mine. A friend who went through this at 30 years old said it's because they betrayed me and my DH got mad that she said it, but I think she might be right. I was always diligent about checking...and after reading your posts, I need to buck up, right!!!Better end...or you'll wish I'd never shown up again!! Dearly love you all & hope to stay in better touch. Little Hank and I spend most days at the libraries, parks and gyms...I truly think he's been my best medicine!
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Welcome Back!
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RonnieKay so happy to read your happy post. Missed you but I am glad to know you were away as you said living life! that's so totally the aim of the game right? It just got hard to remember that last year and sometimes still so.
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glad to see you back Ronnie!! I know what you are saying about everything. it's just so grand to be able to live again....... and the hair! Everyone touches my hair. LOL It's been compared to felt, velvet, rabbit fur....LMAO
hugs
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Hi Everyone
Just a quick hello. Surgery went well on Thrus. I forgot how much the expanded tissue can hurt. I was in pain and had to take the pain meds for 3 days. I didn't come back to work until Tues. and had alot to do. I'm off to the PS office in 2 minutes and then home to rest. I develpoed a really bad head cold that I can't shake. I am glad everyone is doing ok.
Wishing everyone a Happy Easter or Passover
THINK POSITIVE
Catherine
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Ronnie - It is great to hear there is life after BC treatment! Can't believe you are already five months from your last chemo.
Catherine - I'm so glad your surgery is behind you. Take care of your cold!
Pamelajo - Bless your fuzzy little head.
Last rad done this morning. TAH DAH! DONE!
Patty
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Hello my beauiful and funny sisters! I am glad everyone seems to be doing ok and great for some. I just found out I have a tumer on my fumer bone next to my left hip and my bone dr is talking about putting steel rod in the bone to help it and raditon after surgery.! He said that is what needed to be done does any =one have any site or sujestion to check it out? It was from the breast cancer cell. Any help I would love to have to look at
Love and Hugs to all
Wanda
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I'm so sorry Wanda. I don't have a site to tell you to visit, but I do know that a friend of mine who actually had "bone cancer" had a portion of his arm bone removed and radiation afterwards..........and he's doing just fine now.
All my love and best wishes to you.
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Hi Ladies
Hooray Patty no more rads!!!!
Wanda- check out stage 1V breast cancer site. You should be able to get some help there
THINK POSITIVE
Catherine
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Both bone scan and ct scan came back clean
There was a spot on my spine that the radiologist was concerned about (I knew it was an old injury) and they compared it to the bone scan done last year, and it hadnt changed so hallelujah..... -
Thank you I will check it out! Happy Easter!
Love to you all
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Pamelajo...Excellent, excellent, excellent!
Wanda...So sorry to learn about the tumor. I hope you find the advice and support you need. Positive thoughts coming your way from me.
Patty
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My biopsy came back as fat necrosis. I have never been happier about fat!
My port is out.
I gave all of my chemo drugs to my rad nurse so my medicine cabinet is clear.
I finished with rads!!
I don't have a doctor's appointment scheduled until May. OMG.
The sun is out and my kids are home for Easter.
Happy Day.
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Yea Patty for being done!!! Woo Hoo!! What's up next?
Yea Pamela for clear scans another Woo Hoo!!
Yea China for fat and port removal!!! Woo Hoo!!! I know what you mean my next anything at the hospital is a check up mammo on the left breast( the one that had cancer), on May 28th and a follow-up with the onc on June 1st, it is awesome to get your life back isn't it?
Ronnie Kay- So glad to hear from you, I only have a baby fine buzz cut still and people want to rub it, I understand. I can't wait for bangs. I hear you on the boob part. I was really very good up until my diagnosis, and my cancer was not feel-able, so only the mammo got it, I think my feelings are a mix of what your friend said, betryal, and well I couldn't catch it before with the self-exams, whats going to make it so now? By the way even doctors gave me exams and the didn't feel it either, deep in the tissue, so I understand, we can support each other in our "ugh not a breast exam"
Wanda-I am so sorry about the bone issue-keep us posted on how it goes. I will keep you in my thoughts.
Jane, Holly, Kim, Anita, VickiLynn, Susan and anyone else I am forgetting hope you all are well and can enjoy the weekend.
Barbara
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Happy day before Easter ladies!
Hope that silly rabbit is good to you
Fixing Mr. Pamela ham, mashed potato's, mac n cheese and deviled eggs. I'm thinking I may empty some egg shells and paint them afterwhile. Not much else I can do with my foobs aching the way they are........ but I wouldn't trade em for anything.
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Good morning, ladies. Just a short note to wish everyone a Happy Easter!!!
I have a lot of reading to catch up on, so I will write more later. Started tamoxifen this week and so far I don't notice any difference. How long before those who took it noticed anything?
Worked in the yard the last couple of days and boy, do I feel it, I am going to take it easy today. Take care and I hope the weather (where ever you are) is as nice as it is here.
Love, Holly
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Hello SOSisters.... Happy Easter. It has been a wonderful day, I am so thankful for feeling good again and having energy and just enjoying life in general.
PamelaJo - glad you like your new tata's. Congratulations on the clear scans, know that was a relief for you. So happy you have such a wonderful PS. Sorry you are hurting but know that will go away shortly. When do you get the other 2 drains out or have you already and I missed it?
Patty - Hope you are having a great day. Congratulations on finishing radiation. I was suppose to finish tomorrow but the cancer center was closed Friday so I won't graduate until Tuesday and then I'll get to ring the bell. I have a major tan on my breast, wonder if it will ever go away?
Neece - glad you are feeling better! When do you go back to work? Are you sore? You and PamelaJo must be so excited to have your new breasts and know that you only have checkups from here on out.
RonnieKay - yep, I keep thinking you must have gotten quite the hobby! Glad you are doing well and just enjoying life. I am enjoying everyday and don't have much patience with grumpy, complaining people these days. Don't they know every day is a treasure? I'm also on Femara, have hot flashes and night sweats. Can handle those but I am now waking up with aching joints especially in my hands. Intend to mention next time I see onc, don't know if it's a side effect or just old age
.Catherine - so glad your surgery went well! Are you feeling better? Hope your cold is about gone. Are you now finished?
Wanda - so sorry to hear about your tumor. How did they find it? I wish I had a website to suggest but don't. Do want you to know I'm sending you positive thoughts and you are in my prayers. Please keep us posted on how you are doing.
ChinaBlue - HOORAY for fat, being deported, cleaning out your medicine cabinet and finishing radiation! Woo! What in the world will you do with yourself and all this free time?
BarbAnne41 - hope you are well and enjoying the weekend. Do you have anything left to do or are you completely finished?
Holly - good to hear from you. Glad all is well with you. It is beautiful here in NC but we have a coating of green pollen on everything! It happens every year but is particularly bad this year since we didn't get a late frost.
Wishing all of you a wonderful Sunday. To all our sisters who haven't checked in lately, we miss you! Take care.
Thoughts and prayers are with you.
Jane
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