please help

NancyD

Ack! I woke in such joint pain a few days ago!  The weather has been playing havoc with the arthritis I already had compounded by the AI I take. The last few days have been torture. Yesterday, I thought my left wrist HAD to be broken...I couldn't even put my purse over my shoulder cause the wrist didn't want to bend without such an ache.

Well, silly me, I finally realised all I needed to do was take some ibuprofen, and VOILA!  I'm almost pain-free. So today, the sun is finally shining and I'm able to move without cringing.

Val, your trip is getting closer. I'm almost as excited as you, I bet. I'm a vicarious traveler. I'm not much for the actual travelling, but I love to hear about others' trips and look at their pix. So plan to take plenty and post them here pronto!

{{{Hugs}}} to the ladies who ares still going through chemo (Cheryl, Nettie...anyone else I missed). I have been finished now for almost ten months. My hair is back (much longer now than my avatar photo which was taken last winter), and I don't think I have any lasting SEs from it. 

Shirlann - I hope Marshall knows what a special mother he has, and will learn his lesson and listen to you more in the future. I'm 58 and still learn from my father's wisdom. And if I want to do something "right", I channel my mother's spirit and think, "What would she do?"

Well, back to work. My coffee break is over. 

my3girls

Good to see you Nancy! Glad the ibuprofin is working.  What AI are you on? I went off the Arimidex and just started Aromasin..hoping to tolerate it much better.

I told Val..that at the end of summer craziness....I am DEFFINATELY planning to come to NY and see you two!! Hopefully all flights will cooperate!

I still can't believe you are 58..no way!!! G/f...you look great!

EWB

If, or should I say when, you come to NYC, let me know; would love to get together. I am only 30 minutes from NYC. In fact Nancy- why don't we meet up some time this summer?

my3girls

EWB...that would be great...Val is in NJ too!

livesstrong

A NYC visit sounds great!!!  How does sometime in September sound?

Hugs!

lvtwoqlt

I have been on the phone all morning trying to sort out my medical spending card charges and tracking down my husband's prescriptions the doctor faxed in on Monday. It is frustrating. I used the medical spending card a total of 4 times in April and May to pay for the therapy on my hand all at Quest 4 Life rehab services. The administrators denied the first charge and last charge but approved the two charges in the middle. I unfortunately have missplaced three of the receipts. I called to find out why they would deny and approve charges from the same place within 3 weeks and the reason I got from customer service - once I finally got through - was that the approved charges were an even $100 but the other two charges were for an odd amount (162 and 38). My first visit charge was 162 for the consultation and testing, the other charges were just amounts to get me up to my $400 deductible when the insurance would start paying 80%. I got through to the therapy office and they are going to fax me the receipts so I can send them on to the medical spending card to verify the charges.

As far as Donald's prescriptions. He was running out of his meds and we had to get a new prescription. The doctor's office has saturday hours and we went by Saturday morning to see the doctor and get the script, the (new) receptionst told us that Saturday's were for urgent care only and wouldn't let us see the doctor so we had to leave the renewal form for them to fill out. (We have had appointments on Saturday before to get donald's scripts filled, that is why we changed to that doctor's office 2 yrs ago) I wrote the medical spending card number on the form and checked for overnight delivery. The doctor's office didn't call to say they had faxed in the script but I checked online at the mail order pharmacy to see if they had the order in house, which it was but it didn't say the type of delivery (standard or overnight). I had to call the pharmacy to find out how it is scheduled to be shipped and they did confirm that it is overnight.

Each call took about 30 minutes for a simple question. What ever happened to customer service?

Sheila

my3girls

Sheila..don't you hate making those phone calls?  I have to fight to get something taken off my credit card..I have called once..and it's still there..and they keep charging this monthly fee! GRRRRRRRRRRRRRRRRRRRR

Customer service..is down the drain..it's all automated..mostly!

Val...September would be absolutely perfect!!!

sueps

YOOOHOOOO Sisters tis me! 

Just got in from work .... and want to say HELLO xxx

Well I only got conjunctiv stupid itis now !!!!  My eye is so infected.....I havent had this since pre DX ... WHY WHY WHY am I getting soooo rundown again... 

Oh and this old man walked through my shop door today.... well it only turned out to be my DAD ....hahaha he travelled 100 mile round trip to see me ... I couldnt stop hugging him...he say well if the mountain wont come to mohammed then mohammed go to the mountain !!!!!!!!!! I LOVE HIM SOOOOOOOOOOOO MUCH!!!

Ok sisters I am just going to rip my eye out and flush it down the toilet... cya later ...and be good !! xxx 

sueps

Ok shall I put a PG Tips or a tetley tea bag on my eye 

What is the most popular tea bag and coffee in America...  

my3girls

OH SUE!!!!!!!!!!!!!!!!!!! I love your dad.............how incredibly sweet! You are such a lucky girl..your DADDY LOVES YOU!! That just gave me chills!

Sorry about your eye...dang it....you know why you are getting all of these ailments?...because you are RUN down MISSY!!  Sleep, slow down..take care of SUE!!! AE & UB will get after you when they get there...haha

xoxxo

Lisa

lvtwoqlt

Sue, isn't your dad a gem, traveling 100 miles to see you.

I don't know about putting teabags on your eyes with conjunctivitis. I agree with Lisa you are trying to do too much.

brands of tea bags, regular tea we have Tetley, Lipton, an of course the store brands. then if you get the specialty flavored teas there are quite a few different brands. I usually use the Food Lion store brand tea bags and I make sweet iced tea with that by the gallon. for a cupa hot tea, I like any of the peppermint tea with lemon and honey in it.

1Cathi

DO THE TEA BAG SUE -  Any brand will work,  I only drink tea when I am feeling really really sick,  I am a coffee freak.  But when I was going through treatments I could not stand coffee for some reason and I drank warm tea by the gallons then,  it always made me feel so good inside.

AND I ECHO WHAT THE OTHERS HAVE SAID - Love your dad - YOU NEED TO SLOW DOWN AND REST.

livesstrong

Hey Missy - Lisa is right - you don't want ME & UB givng you a tongue lashing when we get there, do you??????  You better rest up because we'll have allot of pint raising to do and you need your strength. xoxoxoxoxoxoxoxo

Lisa - September sounds great - we need to pick a date.

Heading to the gym.

TTYS,

AE

livesstrong

Hey Missy - Lisa is right - you don't want ME & UB givng you a tongue lashing when we get there, do you??????  You better rest up because we'll have allot of pint raising to do and you need your strength. xoxoxoxoxoxoxoxo

Lisa - September sounds great - we need to pick a date.

Heading to the gym.

TTYS,

AE

livesstrong

Darn computer posted twice.

NanaOfTen

Cathi, I, too, have stopped drinking coffee since I started chemo. I used to put away almost a pot a day now it taste awful!

My onc doc's office called today. Looks like my light at the end is pushed farther away. They are starting me on a new chemo, Monday. called Aredia, it's to stop bone mets. Will find out how often I have this one, but I am scheduled for the AC the following week - I have two more AC's left, the 29th of this month and 23rd of next month. So am not too happy!

I am mostly resting as when I stand up I feel like I'm bout to faint. No fun this AC. and after last tx I had a couple of days with chest/back pain with a feeling of being choked - doc said next time to get my bottom to the er !!!

Sue, so nice you have a lovely relationship with your dad. So many of you do. I envy you all.

xoxoxoxo

Cheryl

Makratz

SUE,

WHAT A NICE SURPRISE!!!  I hoep you got to spend some time with your dad!

Cheryl, I know it stinks when your plans change, but hopefully it willl stop any bone mets in the future.  You ned to rest and take it easy.  Will keep you in my prayers.

Hello to all my other sistahs!!  Busy day today!!

Wren

Sue, Your dad is so sweet! What a wonderful surprise. I hope you slow down and relax a bit.

And to everyone else... I'm still here... just nothing to write about, but I read you all daily.

I'm in a funk so I'm working all that out... I've gotten two new baby kittens to help distract me and I love them. They are Siamese little girls named Melody and Harmony... my duet...

My kids graduated from college and I'm feeling the empty nest even more now (even though my son plans to move home for a few months) It's just so many changes in my life.

Anyway, I love you all and will post more when I can put my thoughts into some kind of sentences...

Hugs!

barbe1958

LOVE the cat names! 

Cheryl, I didn't know you had bone mets! {{{{{{{{{{{{{{ Cheryl }}}}}}}}}}}}}}}

NanaOfTen

Barbe, no, no bone mets. this new chemo he is putting me on is to help prevent it, so I don't get it.

{{{{{{{{{{{ Barbe }}}}}}}}}}}}

juli0212

Cheryl:  I hope the new drug does help stave off any mets.  I was on a clinical trial that added Gemzar to the dose-dense chemo treatments.  That is to stave off recurrence of breast cancer. Good luck with the rest of your chemo treatments, may they fly by for you with the least amount of s/e's.  I was pre-menopausal at age 47 (totally), but TAXOL put me in menopause in ONE DAY.  Now on tamoxifen, but am considered post-menopausal...will be switching to an AI soon.

ALL MY BEST to all of you still going thru treatments...they DO end, and we continue the fight!

LOVELY to hear about a Dad who cares...as echoed by many above...Sue, you must know how very very lucky you are.   Some of us have become estranged by NEED from our fathers, and are doing fine with that.

1Cathi

Cheryl,  sorry for the change in plans,  sending many prayers and hugs your way.  I am back to being a coffee nut now,  heck I have you beat by a few pots ad day,  I seriuosly know I drink way to much, but hell, I love it and I am drinking it until I can't. Be careful with those dizzy spells. XOXOXOXOXO

Hi Juli -  I grew up in Amsterdam NY, spent a lot of time in Albany, when I married I moved to God forsaken Cobleskill NY-  I still have a dughter in Cobleskill,  looks like she may be moving this way though come August.

sueps

Good Afternoon Sisters xxx

It is my day off today ... and I am enjoying the rest even though I have only been back @ work a day ... I just love to slob !

I went to get some herbal eye bath as my eye is so irritable... the tea bags were lovely nice and relaxing... but I just need something else. I have a 6 hour course tomorrow and then a rally for god knows how long... zzzzzzzzzzzz all work related and I just hope my eye clears tomorrow or I will be twitching all day lol

Wren , you dont know how much it means to read your posts ... I am so so warmed to see you again , I adore what you have called your kittens...  and I love Siamese cats, I had them as a young girl... one we called Ming ... he was so clever. Are yours related  xxx

Well I am blessed to have my dad very much... he never cease to amaze me with his support. I spent an hour with him in my shop yeserday and after such an endearing visit I was walking on air and all loved up ... hehehe

AE ...errrrrrrr dont you worry , I have plenty strength to lift a pint pot... well a few shots of vodka... and I am willing to drink UB under the table hurr! hurr !  

Ok I am off to bathe my eye again and make it look like I have done some chores before the boys get home from school..

Much Love

xxx 

sueps

(((((Cathi))))) I am so sorry to hear about your pain... it breaks my heart to know you are so uncomfortable... I dont understand why your doctor wont adjust your pain pills....I am praying your pain may subside xxx

Anonymous

Ladies

I received an email from Judie...she is doing well but busy as always...she said that she has kind of migrated to Facebook as most her family use it but does miss everyone here.

She wanted me to wish everyone well here and to say hi to all for her.

Im at work so cant play much just yet but will be back in awhile...

Jule

barbe1958

{{{{{ Cathi }}}}}}}}}} You know what you have to do.... otherwise, it will ruin the rest of your summer anyway.... we're here for you.

Makratz

Cathy sorry to hear about your continued pain.  Is it time to call the Dr.?  The summer of Cathi can still happen, but please take care of yourself.  We need you, you kids and grandkids need you.  Take care!

portiasproudmom

Hello everyone!!  So sorry that I've been AWOL.  Portia's out of school and I don't get any time on her computer.  Rhuel is going to buy me a new laptop at his company's discount price.  We'll see how long it takes.  I HATE not having internet access!!!  It's sad how dependent I've become on it.

Portia had her braces removed and she looks so pretty!  We're going in today to get her retainer.  I'll have to post a pic while she's gone one day.  I've got to run for now.  She's chomping at the bit to get back on the computer. 

Big hugs to Sue, Cathi, Cheryl, Jane, and anyone else who's having a hard time.  I love you all!

Hugs,

Karen

Makratz

Hey, Karen.  We missed you too!  I bet Portia is gorgeous!  Post some pics.  DH had to get me a laptop too for the same reasons.  Thank God he did!!

my3girls

Hi sisters!

Cathi..sorry about your unbearable pain. I know it's the summer of "Cathi", but maybe you better just go and have a scan done.

I get a bone scan done tomorrow...just to be sure, since I complained so much about pain..but I truly think mine was from the arimidex..cause alot of it has gotten much better.

Sue...better rest up for all the pint drinking you will be doing with AE & UB!!! I wish I was there with you!

Val...we will pick a day in Sept!!

Karen..good to see you! I bet Portia just is so estatic to have those braces off...I am sure she looks beautiful!

Sorry your eyes are still bad sue...tea them up! lol

Cheryl..sorry about your A/C treatment extended....it's a tough one...I remember!

Ok..back to work..and then home to scrap some more..almost done...2008 is where I am...only 1 year!!!!

xoxo

Lisa

Oh..thanks Jule...for the report on Judie...I MISS HER!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

maybe I have to join facebook!