please help

Shirlann

Oh Karen, this is very good news.  If he is up and about, that is wonderful.  I sure hope you get a lot of years to be with him.

Ulla, stop messing up your computer!  NOW you will need a new computer and a new onc! Just kidding honey, you know I love you.

Oh, AE, how neat!  Brenda is a wonderful person, funny, honest, just a love.  We have lunch with our San Diego BC girls once a month, she is the life of the party.

Judie, how did the colonoscopy go?  

Hugs and kisses to all, Shirlann 

my3girls

A quick hello sisters.  Ulla...sorry to hear that your doc's are so cold and uncaring and that you still don't have your results. AE welcome back!  Karen...so glad to hear about your dad!! That is great news!  He is a fighter..hugs honey! Judie, Fumi...I am so not computer savy...I probably have a ton of viruses! Fumi..don't worry about your honey bear not liking what he sees! Are you crazy?? He already loves many things about you!! He will be so happy to see you!  As for the am I in Love..for me...I think I am afraid to really feel that I am or say that I am.  I am sure in time that will change. We had a wonderful late dinner on Saturday night!! It was outdoors, delicious and we talked and talked.  I have never had a man compliment me so much, in my ENITRE LIFE!! Neither of my husbands did that.  My dad did...haha.  He on an average compliments me 20 times in an evening...and it's not overdone..just gently and sincere!  I drove to his place yesterday after I moved Alise to Toledo in the morning.  We spent the afternoon and evening together..we went for a long walk at a National Park and sat by the lake and enjoyed nature..then we went out for dinner..back to his place..and he gave me a much needed full body massage!! OMG! All I can say is when the time comes for us to become intimate...I know it's going to be incredible!! He is so romantic and loving!  I am in heaven! Well..off to finish some laundry and then off to bed.  I love you all! xoxo Lisa

suebee92

Hello everyone!! I've been off this site soo long! I'm trying to catch up on everyone.

Lisa soo sorry to hear your news. Hopefully all is well? 

Well where to begin? I had my 4th surgery 3 or 4 weeks ago, went well ,and still recoupping.

Went to see my ps a week ago and found out i have yet another surgery. The implants he put in are to small. I have rippling and some scar tissue sticking out and a dog ear on my left breast.

I heard he was the best around now i'm starting to wonder?  I guess you gotta do things a few times to get it right? My husband does not want me to have surgery again but i should have it done right. There gonna be with me forever.

Had an oophorectomy also and the hot flashes and night sweats are miserable! Taking celexa and tamox. They make me sick to my stomach! I'm just depressed! I don't think the surgeries were half as bad as i'm feeling now! Not sure if it's becuz i have time to let everything sink in or not. where as before i had to worry about what comes next? THIS JUST SUCKS!

All in all my family and friends have been godsents to me. I shouldn't complain others have it worse off. I just don't understand why? why anyone has to go through any of this? UGHHH! 

Well i hope you all are taking care i will check in soon and more often. its just been really hard!

HUGS AND KISSES!

suebee 

portiasproudmom

Suebee!  It's so good to hear from you, sweetie!  I am SO sorry that you're having such a difficult time.  I can't believe that you have to have yet another surgery.  No wonder you're depressed!  Even when surgeries go well, without complications, they take a toll on your body.  It's also emotionally exhausting.  Your mood is absolutely normal.  I'm so glad your friends and family have been there to support you.  It sure means a lot at a time like this, doesn't it?  I've been blessed in that area as well. 

You complain all you want, honey!  This stupid, dirty disease is enough to tick off even the most positive person.  I'm a year out, and it STILL makes me angry. 

As for the surgery, I can understand why your dh doesn't want you to have it.  You need to do what makes you happy though.  Like you said, you're going to have them for the rest of your life.  You need to be satisfied with the way they look.  

Take care and don't be such a stranger.  We love hearing from you! 

Hugs,

Karen

Wren

Suebee92, that is a bummer about needing more surgery and about the hot flashes, etc. I hope you feel better soon.

I also had four surgeries in 10 months and I am not done yet either. I have an excellent plastic surgeon but I also have minor details that need to be 'fixed'. My left side (cancer side) is shifting left, has a ripple (slight) and I have an extra crease in my cleavage... kinda hard to explain. Also, I had one 'dog ear' fixed at surgery and any other bumps and stuff my plastic surgeon said would be fixed when nipples were made. I won't know if I'm getting nipples and the minor stuff fixed at the same time or if those will be two separate surgeries until my next appointment, perhaps.

I know how you feel about wanting to like what we've worked so hard to reconstruct. On the one hand I am so happy to have something on my chest and to look OK in clothes, but on the other hand I want to know I have something that appeals to me when I am not wearing clothing too. I think it will be worth whatever it takes to get that look. I know that my breast surgeon said there is no reason not to have my reconstructed breasts look however I want them to...

Hugs to you all.

lvtwoqlt

Suebee, It is a bummer about more surgery. I liked what my ps did with my recon except for the tattoos. They ended up a funny shade of dark brown with orange tinge not the dusty rose I was looking for, and the overall look was not what I was expecting. I was glad when makeupchicknc (Earleen) started posting about her professional services for areolas, I jumped at the opportunity to go to her studio in Asheville to see if she could correct the tattoos. My mom thought that I was being a little obsessive about it, her comments were, the only people who are going to see them are you, you hubby, and your doctors, why change them? But I told her that it was for my emotional well being. I didn't want to come out of the shower every day seeing these awful colored areolas that reminded me I had cancer, I wanted something more natural looking not something that looked like it was colored in with a crayon.

Ulla, I hope you do get rid of that trojan in your computer. and I am hoping that you get your results soon.

sheila

geebung

AE - love your photo - what a lovely fairy! Glad you had a great weekend.

Ulla - I hope you get your computer all fixed up soon. Darned viruses! Have you heard anything from you drs? I think that they have found nothing of concern and are giving their attention to sick people but that doesn't excuse them for being slack and uncaring about how you and your worries. Have you tried calling them?

Judie - how did the colonoscopy go? It will be so good to have that over and done with. Guess what? - I went out to lunch with some friends and Bonnoffee pie was on the menu. I couldn'nt resist ordering it and it was soooo delicious! I thought of you and Sue as I ate it!

Shirlann - I sat up and finished Meredith Norton's book last night - couldn't put it down. Then I looked at a short video on Youtube of her reading some of her book. She is so beautiful.

Oh Lisa - I love hearing about Dennis! He sounds so kind and tender, romantic - ooohh - this is much better than a romance novel!! It's just a joy to hear you so happy and you deserve every bit of it.

Jule and Fumi - keep us up the latest with your two wonderful men too!

(((Suebee))) - you are having a rough time. So many surgeries and all the menopausal stuff... I am so glad that you have supportive friends and family but it is still a lot to cope with. 

Wren - I hope you and Suebee eventually get great results with your recons - you both sure do deserve it.

Sue - when are you getting some more time off? Are you having some summer there yet? What are your darling boys doing during the holidays?

Love to you all and also to Kaloni, Sheila, Ann, Nancy, UB, Melody, AnnNYC and anyone I might have missed.

Jane xxx 

geebung

Hi Sheila - just saw your post. I think that if I had had reconstruction that I would have wanted them to be the best possible! Good on you for going to the extra trouble to get the colour you wanted!

lvtwoqlt

Jane, the best thing is Earleen, because of a personal loss from cancer, gives the areola tattoos to BC patients as a gift showing that you are complete again. And it is just a 75 mile (hour and half) drive to her place. Anne is coming to visit her dad and friends (she grew up in the same county I live) and we are meeting next Tuesday to go to Earleen's for a luncheon. I will let everyone know how it turns out. This time I will take my new digital camera!

Sheila

nowheregirl

Hi sisters,

             

           

My Tuesday is over. The pain in my groin and lower back is 99% gone so I started doing the 40 minutes workout program yesterday. Apparently my bad leg is holding up OK. Oh have I ever showed you the bathing suit I bought a couple of months ago? http://www.aliciasimone.com/as_pages/product.php?number=149

I started doing a diet when this arrived because when I wore it and looked myself in a mirror, it looked totally different and I was like a giant pig. I have to wear it in front of Scotty (My Mr.McDreamy) when we go on a "4 days 3 nights getaway" and visit the spa together so I really do need to lose more of my weight. I know he wouldn't care but I do!!!

              

Today was a good day. Usually it's a bit hard to talk to Scotty in real time as he's a morning person while I've never been good at mornings. The time differences between us (he's 3 hours ahead of me) doesn't make it easier. But he's on-call this week (he's a computer system engineer) so he's staying up for longer hours. He emailed me 8 times today and of course that made me happy. Though don't tell anyone that we were mainly talking about what kind of rubbish bins we have and how we separate our garbage. *lol*

            

              

Judie- I hope your colonoscopy goes smoothly and uneventfully today. Have fun with your granddaughter.

               

             

Jane - Have I ever told you that I'm a HUGE fan of this bloke? I was so sad when he lost his wife to this damn disease. Oh I miss looking at him on TV.

                

                     

Ulla - I'm sorry you got nasty stuff and a trojan virus on your PC. I don't really think there's anything Judie hasn't said. I used to use AVG but like you, I did get a trojan. After doing a lot of research, I finally got new anti-virus software called Avira for free. http://www.avira.com/en/pages/index.php

While AVG only detects about 87.46% of viruses, Avira can detect about 94.26% of them. Though here's one thing. Avira doesn't have an email scanner so if you receive emails through an email client such as Outlook Express, I wouldn't recommend Avira. You may want to get Avast for free because it does have an email scanner and can detect more viruses than AVG. http://www.avast.com/index.html

If you use web-based email such as Yahoo Mail, Gmail atc, you don't need an email scanner as they have an anti-virus filter and it blocks viruses.

                    

                    

Valerie - I am so glad you had a terrific time at Pinkstock. I do believe that the rainbows you saw there were our precious sisters who got their wings. I did see a beautiful rainbows with Donna (djd) just a couple of days after Kelly (sedgymum from Australia) passed away and it brought tears to our eyes.

                   

                   

Sheila - Earleen is a member of our picture forum and she looks like a great person. Have fun at the luncheon!

         

                

Shirl - Good luck with your diet. I've lost 17.6 lb's so far since I started a diet in May but am still wanting to lose more!

              

               

Jule - So how are things going? I hope today is going great for you. Have a beautiful day!

                  

                  

Karen - Happy Anniversary! Where are you going for dinner? Hope you have a lovely time!

                     

                      

Lisa - Wow I'm on coud nine for you! A long walk at a National Park does sound romantic! Now I'm envious! Can't wait to go for a walk with My lil' Pooh bear.

             

                 

Suebee -  I am so sorry you have to go through this. That sucks big time! You have every right to complain. Just vent away, we are here to listen.

              

                        

Wren - I hope you are having a great Tuesday. By the way, what bird is that in your avatar?

                   
Oops, I should have been in bed much earlier but I still do have to respond to the email Scotty sent me tonight. I hope everyone has a lovely day today!

            

xo
Fumi

portiasproudmom

I love the swimsuit, Fumi!  What a pretty style.  I like the colors too.  I'm sure you look great in it.  I bought a new swimsuit last summer, and I haven't worn it yet.  I hate my stupid port, and I avoid wearing anything that exposes my lump.  Sooooooo ugly!

I'm enjoying yours, Lisa's and Jule's stories of new, exciting relationships.  Nothing compares to that feeling of butterflies in your stomach and the anticipation of seeing the person again (or for the first time, in your case).  Rhuel (don't ask me what the origin of his name is--it's a family name, and it's pronounced Rule) and I have been together cumulatively for 15 years.  We were together for six years in our late teens and early 20's.  Then we were apart for 13 years and now we've been together again for nine years.  Definitely no more butterflies, but the comfortable feeling of knowing you're with your forever (hopefully) life partner, is nice too.

Love you all. bbl.

Karen

Shirlann

Oh Fumi, I LOVE the suit, if I get one, we will have to exchange photos.  (in private, hee hee)

Suebee, one thing you might try.  By accident, they found that the anti-depressant Efexor, or Effexor, helps a whole lot with hot flashes.  And, of course, it would help with the blues, too.  Worth a try, honey. 

I am an anomaly.  I have no problem losing the weight.  The last big diet, I lost 49 pounds.  I follow rules very well, just did great (as I have done through the years, 5 Nutisystems, 3 Jenny Craig, many of my own, and 4th time on WeightWatchers).  BUT, I look great, buy a few new clothes, everyone says I look wonderful, and I last about a month, then I go buy 3 giant Reese's Peanut Butter Cups, 2 Snickers, and 2 butterfingers, and that's it.  I usually now, only take about 3 months to gain it all back.  I am thinking of acupuncture.  I am obviously a yo-yo dieter, so each time the weight comes off slower and I gain it back faster, plus more besides.

Ughhh, Shirlann 

Ulla

hi dear dear sisters..

at last i have heared the preciouse NED

AFTER HUNDRDS OF PHONE CALLS TO THE HOSPITAL WHERE MY ONK OFFICE,,TALKING WITH ALL THE NURSES ..ONE OF THEM SAID WAT EXACTLY JANE SAID IN HER POST,,((IF THERE WAS ANYTHING WROUNG U WOULD HAVE HEARED OF US SINCE LONG TIME)))WTF IS THAT???CANT THEY THINK AND FEEL OUR WORRIES??

ANYWAY I DONT WANT TO WASTE THE TIME FEELING ANGRY ON THE STUPID STAFF..

WE WILL CELEBRATE THAT TODAY,,,

AND BY THE WAY SISTERS ,,I NEED BIOTIN FOR MY HAIR AS I AM OUT OF WAT DEAR KAREN SENT ME..CAN ANYONE SEND ME SOME???I WAS LOOKING FOR THE 1000MG PILLS BUT THEY DONT HAVE IT HERE IN SWEDEN...

ANY HELP WILL BE PRECIOUSE..

LOVEEEEEEEEEEE UUUUUUUUUUUUUUUUUUUUUUUUU

geebung

((((((((((ULLA))))))))))!!!!!!! YIPPEEEEEEEE!!!!!!!!! I am SOOOO happy for you! You have had so much worry and for so long. Go and celebrate with you dear hubby and know that we are all celebrating with you too. Big hugs!

Jane xxxxxx 

Ulla

oh dear jane thanks alot ...i love u so much and am soooooo happy

geebung

Fumi - I love the suit. You will knock Scotty's socks off wearing that! I love all your pics!

Karen - how is you dad? I was so thrilled to hear that he has been up and out of bed. This has been such a stressful time for you all - still praying that you will all have strength for now and the future.

Shirlann - good luck with WW. I wish I had your focus and determination. I've lost a bit of faith in my ability to diet successfully...at the moment I'm just trying to exercise a lot more - maybe that will help to shift a few kilos?

Love to all you sweet people (including all the others that I haven't mentioned here!)

Jane xxx 

lvtwoqlt

Ulla - great news on Dancing with NED! I also thought that no news is good news!

Jane, I too am starting to exercise more. I am trying to get in shape for the local Komen for the Cure 5k walk in October. Last year I only did the one mile but my goal is to do the 5k. I am reading Dr. Oz's book "You on a Diet" and he said that doing a total of 30 minutes of walking a day - even broken down into 3 ten minutes sessions - followed by stretching will help you lose weight. I also go to a yoga class once a week. After the yoga class last night I walked 10 minutes and this morning before it got so hot walked again for 20 minutes (I added another loop to last night) then came back to the house and did some yoga stretches to cool down. I am going to try walking twice a day like that to increase my stamina as well as shed a few pounds.

Ulla

thank u so much sheila..

am soo so happy ..i even cant think well...

.

i love u sisters

Anonymous

Im at work and only have a moment but wanted to say:

ULLA!!!!!!! What WONDERFUL NEWS!!!!!!!!!!!!!!!!!!!!!!!!

Gotta run, but will bbl to visit with all of you.

Hugs

Jule

livesstrong

Ulla - YIPPEE!!!!  Dancing with NED - isn't it grand!!!

AE

Ulla

thank u thank u dear dear sisters..u mean the whole world for me..

i love so much..

we will have a dinner out tonight..

c u 2moro

Anonymous

Fumi has Scotty,

Lisa has Dennis

Jule has  Mr. "knocked my socks off"

And now Ulla has NED!!!

I'm thrilled for all of you, but especially Ulla!

Sadly, suebee has way too much on her plate. I'm so sorry. Your feelings are very normal, but I guess that doesn't help the depression. It will resolve, dear one. You are strong. We are here for you. 

lvtwoqlt

Suebee, I just reread where the tamox is causing you some nausea. It has been suggested to start the tamox in smaller doses and build up to the 20 mg to help prevent the nausea. I don't remember nausea when I took it for 6 months.

There definately is romance on this thread. Unfortunately my hubby just told me that he is being sent to Mi tonight and  he won't be home until Saturday sometime. It is hard to judge when he will be home because of the driving restrictions that the DOT puts on the drivers and the availability of loads coming or going.

Sheila

Shirlann

Oh Ulla, I had to pop in and say HOOORRRAAYYY, this pretty, sweet girl of ours was due some GOOD NEWS!!!!   Yeahhhhh, I am so happy.  Its about time things went well for you.

I'll come back tomorrow and talk with everyone, oh, I lost 5.6 pounds my first week (most of which is water, I am sure).  I always do well with someone weighing me weekly, like a 3 year old.  Sighh, this is expensive, I figure I am up to about $200US per pound!   hahaha

Love and hugs to you all!  Shirlann 

Anonymous

Way to goShirl!!! I'm rootin' for you.

Oops...you werent' supposed to see that. I'll just be watching from the sidelines... 

Since I can't seem to join the in love and dancing crowd, I'm going to head over to suebee's group and commiserate.

Results of my colonoscopy yesterday: They found and removed 7 polyps . I'll get a biopsy letter in the mail in 10-14 days. Until then I'm paralyzed with fear. Colon cancer risk factors: History of breast cancer . diabetes, (those are big ones), history of a polyp before age 60 (I was 57...just one, but big), not enough fiber, too much sugar (that was me until the past couple of years), overweight, not enough exercise...my profile exactly.

Any calming and/or healing energy wafting this way will be recieved gratefully. You guys are so uplifting!

                                                                                                                                 

      

portiasproudmom

First of all, yippeeee for Ulla!  I'm so happy for you!!!!  I hope you had a wonderful dinner with your dh! 

I have to go buy some more Biotin next week, I'll get you some too.  I still have your address.  Sound good?

Take care, sweetie!  We love you!

Hugs,

Karen

portiasproudmom

Judie, I'll be praying that your biopsy results are b9.  It just never ends, does it?  It's always something.  I'm sure you'll be fine, but I know the waiting for results is horribly nerve wracking.  Hang in there, hon!  Love you, Judie!

Big hugs,

Karen

portiasproudmom

Jane, my dad is still the same.  Thanks for asking.  Can you believe that those fools gave him Haldol again??  I was SO mad!  My poor mom called me this morning from the hosptial, crying because he was in such a vegetative state that he didn't even know she was there.  It started to wear off a bit by late afternoon time, thank goodness!

My SIL, my mom, and I are going to tour some nursing homes and assisted living facilities on Friday.  At this point, he can't even walk, so he will need some short-term rehab before he goes back home.  The doctors are telling my mom that his heart is in really bad shape.  We doubt that he'll last another year.  My mom is finally starting to accept this fact.  I feel so badly for her.  Sadly, her whole life revolves around caring for him.

Hugs to everyone,

Karen

geebung

Oh Judie - you need a break! It's not fair that you have this worry. I'm sending you lots and lots of positive energy, hugs, and praying that you will get a huge, fat benign result. Love to you xxx Those dogs are soooo cute!

Karen, why on earth would they give your dad Haldol again, knowing how badly it effects him?! Poor man! And it must be so hard on your mother, you and the rest of the family. If you can find a good nursing home he would probably be looked after very well there. My mother is in a small, caring nursing home and I don't think she could be looked after better. It isn't the most glamorous place but it has wonderful, attentive staff. Your poor mother must be exhausted with looking after your dad (before he went to hospital) and the worry of all this must be wearing her down. I hope and pray you will find just the right place for him - not too far away from where you and your mum live so that visits won't mean a lot of travel time. Or, if it is a retirement home with a full range of care, perhaps your mom could live in the assisted living part and your dad could be in higher level care? Then they would be close to each other and she could see him whenever she wanted to. Please keep us posted and know that we love you & care about you. (((((Karen)))))

Shirlann - wooooow! That is a fantastic loss! It does help to be weighed every week - keeps you on track and the classes are encouraging.

I am going to try to just change my bad habits - not eating as much, bulking up on green veg, eating whole foods and exercising as much as I can.

Sheila - I bought that You on a Diet book last year and it's great! I love the diagrams - funny and informative, scientific without being too complex. 

((((((Suebee)))))) - you have so much on your shoulders. I'm sending you gentle hugs, loving thoughts and energies. I hope you can find something to help you soon. xxx

Sue - are you having Thursday off? I hope so! Do you get annual holidays or have you used them up for surgery etc? Surely that was covered by sick days...?

AE - looking forward to seeing some photos!

Lisa - I can't remember - did you have a dr's appointment this week? How are you? - Enjoying Dennis's loving attentions no doubt!

Jule - are you planning a trip to your special man's place this weekend or is he coming to you? Hope you have many joyful times together.

Fumi - how many weeks until you go to NZ? I'll bet you're counting down the days. I love the anticipation of an exciting event!

Nancy - how are you coping with work and chemo? I hope you are not exhausted. Hoping to see you check in here soon. 

Ulla, Melody, Wren, Ann, Kaloni and everybody - love and hugs to you all.

Jane xxx 

NancyD

Hi ladies,

Just a quick note before I'm off to work. Thanks for reminding me, Jane, that not everyone is a mind reader and can "feel" I'm doing OK.

Ulla, I am so happy for you it made me forget my pains!  Now that's HAPPY. I hope you had a most wonderful evening out...relaxing, good food, good company.

Karen, prayers for your Dad.

AE...where's the report on Pinkstock? I see it mentioned, but nothing in depth.

Fumi...the NZ countdown is on. One of my good friends is from NZ. Though she lives in Nebraska now, she will forever be Kiwi Girl. Her description of her homeland has made that one of my travel destinations when I get the time and money. What else have you done beside buy a bathing suit? That just doesn't seem to be enough. I would have splurged on a few more special items. Maybe you have but you're not telling us?

First day back yesterday was tiring, but I made it through. I seem to have bounced back from chemo #5 very quickly. I can't tell if I have any s/e's...they've become such a part of my life, LOL. Last one in two weeks!!!.