2005 ROCK-TOBER CHEMO GIRLS
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Laura your vacation pictures are stunning, as is your figure! Thanks for the compliment about Canadians. Going to the US a lot I do find that Canadians are more polite, but I love the activity in New York - even though Toronto is a big city, its pretty quiet - by 9 pm there is very little traffic on the main roads.
Michelle, the best thing for my hot flashes is my night-table fan. They have a good selection in Canadian Tire, and I don't sleep w. it all night, it's too cold, but if I turn it on during a sweat attack, it cools me quickly. I took a sleeping pill last Thurs. night and finally had a good night, but don't want to use them regularly.
Michelle, I'm sure we all understand your meltdown, sometimes when I think back, I am still stunned at what happened to me!
Linda -
Taking a break from cleaning bathrooms...
Kelly, have you seen the book "Goldie Locks has Chicken Pox?" Cute book - I just read it to Justin and thought of Teryn. It's put out by Scholastic -
back to cleaning... -
Where's our "Worldly One"?
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Dear friendsIm feeling totally overwhelmed both here and in my real life.
Ronniieheres a belated big hug for you. I remember your posting your picture with this dear friend of yours. Ill be thinking of you today and tomorrow.
GailI read your post about your self diagnosis of being AADD which Im sure I share. Mary-AnneI guess Gail and I have our issues too. So whats getting to me? I have too many things that I think I must do and some things I have to do and some that I want to do. So sometimes I dont know what to do and I do nothing.
What I really want to do is talk with each of yougive comfort where needed, share laughter and experiences and most of the time Im up for it but real life is getting in the way.
So will spend the day trying to clear off my desk here at work. (Michele, Im the boss and I feel like I cant spend time with you all until everyone goes home at night-then its time for me to go home too) O.K. Focus here. My desk!
Just a couple quick comments:
Sweet Sixteen (March Madness Basketball) Until this year knew very little about it but Son Matt lives in Eugene OR and his company does a lot of design work for the University of Oregon so he is a big fan and they have advanced to the Sweet Sixteen regionals. Go Ducks!
Jillwill be thinking about you too as you decide what to do. It cant be easy.
Glad youre back Mary-Anne.
Much love to all.
Cathy -
Cathy -
It's so ironic...I was posting my - "Where's Cathy?" post - the same time you were posting your update! -
I love the way we all keep track of each other and look for someone when they are not around for a while....
You are all such good friends and sisters! (((hugs))) -
Holy C***
Now they think my B in L has testicular cancer. he saw the consultant today, ultrasound on Wed, results next Mon, operate Tues if necessary. My sister is already on antidepressants as she didnt cope with me having cancer - who knows what this will do -
Geeezzzeeee - Can't this cancer thing just GO AWAY!!!
Debbie - your family will be in my thoughts and prayers. I am hoping that it is B-9 and they are just being overly cautious. -
Debbie -
SO SORRY! Gosh...I am sitting here shaking my head at this wretched disease...thoughts and prayers for B-9 are being sent your way! -
Ladies, today is the day! My last treatment for Herceptin!! I am so excited about it.
I have an appointment today with the onc so she can feel the breast and she is supposed to have put in an order for a mammo close to my house. Will find out mored today. But I am going to talk to her about this weight gain and joint pain. I cannot even put my rings on today my knuckles are so swollen.
My fingers, elbows, knees ... everything just hurts.
Debbie, so sorry about this!! Keep us updated.
I got this in my email today ... from my chemo buddy, she finished up her Herceptin 3 weeks ago ... And she called me today and will try to get by the chemo clinic. She has worn her "Miracle" earrings and necklace today in my honor ... I will be bringing my chemo bag for the last time and will unpack my heart and angel and find special spots for them! Here is the email ..Quote:
Oh, Kelly, I wish there was a way I could be there with you today to hug you and celebrate the moment you get out of that chair to go home forever! I am so PROUD of you for the strength you have had to endure the toughest time of your life with such dignity and grace. You, as well, have been such an inspiration to me. Know that my spirit and heart are with you today and that I will continue to keep you in my prayers always. I will be in touch soon so that we can plan our VICTORY dinner together with Carroll and David and Teryn. Go forth now, my little sister survivor, and we must continue to be an inspiration for other's who may need our support. In wellness and sisterhood forever, Diana -
PS ... now how do you stay so slim Miss V??? You look lovely even though I know your heart is aching for your friend.
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Yipee for you Kelly!!!!!!!!!!!!! You might, I say might. feel a little lost in three weeks when you don't have to go for Herceptin but before long you will so enjoy hardly any appointments.Are you on an AI? Lots of these women have sore joints I think. Will you be getting another MUGA? My onc did not order anymore.
sooooooooooooooo.....my continuing MRI story. Today I was supposed to have my screening MRI. Well, the radiologist is still not happy with its' functioning. So canceled again. It did give me reason to go talk to her. I wanted to discuss how my BC was "missed" last time on the MRI. I am worried because I think I want to keep my "good" breast and so am relying on mammo and MRI to pick up any new cancer early(not at 9cm). She admitted today that she was just new at looking at MRI's two years ago and actually when she reviews it now she can see things which should have suggested a biopsy. And she says she should have done the other one to compare them. I told her to not feel bad as despite her advice to leave it alone as it was "fibrocystic" I did go ahead and have it biopsied two weeks later as it continued to grow. So in the big picture the two week delay likely meant nothing(although ,maybe I would have had 0 nodes...maybe).
Anyway the positive from the conversation is she has two more years experience and is very twitchy so will be on high alert( should be anyway for everyone). She thinks if I do get another BC it would most likely show on a MRI.
I hope I am making sense. The good news is that yes, my last tumor showed on MRI so yes, a MRI is a good tool for the future. The bad news is still that last time I was falsely reassured and should have had a biopsy two weeks( not significant?) earlier than I did. This makes me more tempted to leave my good breast alone as truly I think I would miss it. It also makes me want to have two radiologists review my films next time. What would you do?
Finally had a good sleep last night and feel like wonder woman today( well, not my breasts,LOL). I took an Elavil and did not wake at all. Could take over the world today. So I must try to get my rest.
Tracy , too bad we didn't live nearby, we could come by and help you move.
Cathy, just do your best, most of what we have to do can wait.
Well, I am off to take Patrick to the pool. He is training for the Special Olympics. At the rate he is going he will be ready in the year 2050.LOL. He is very cautious in the water and hasn't mastered the dog paddle yet.
Fists up! -
Kelly -
Cheers! Congratulations...you did it! Bottoms up...
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Where's ravdeb?
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Kelly!!!! Congratulations sister! You did it! Doesn't it feel great???? I wish we were all there to toast you with pink cheeta glasses! I hope you are out celebrating!
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tracy...i have tullips starting to bloom in the yard of my new house. so excited for spring. i am sending you good moving thoughts. picture me lifting some boxes...with my sleeve on of course. i'm telling you...do a search for lympha divas...you would never know they're sleeves, they're so cool.
debbie...i'm so sorry about your brother in law. i'm sending you good thoughts for nothing but good news. i'm here for you!
cathy...take those deep breaths and focus...you'll get everything done.
Kelly...WOO HOO! Congrats on being done with Herceptin. That's sooo exciting! Celebrate like crazy because you deserve it
Have a good night sleep ladies.
Love you all,
Amy -
Congratulations to Kelly for finally finishing Herceptin! You must be in a very celebratory mood!
Laura, you look happy and fabulous in your photos! Scrumptious in your two-piece cheetah suit!
Victoria, I am sorry to hear about Father A. I understand how you have gotten quite attached to him. Our parish priest is a source of light and inspiration to me. It still amazes me how selfless some people are.
Debbie: Thank you for my little English angel. Your handwriting looks so familiar! Thanks again for your precious gift. -
Very nice pictures, Cindy! You and husband looked like you had a great time...
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Ladies, Im hitting the road again today. Headed for Louisville for a big truck show.
Kelly-Welcome to the through with Herceptin club. Its quite and accomplishment for you with your set back!! Im feeling really good about my appointments being spaced out. I only had one MUGA but several echocardiograms and my last one, was a month after my last Herceptin and showed no changes.
Yesterday I did have a local appointment with my RNP who has become a good friend. She was very thorough in her questions and my concern about AADD was discussed. Ive always joked about it but seriously in the past few weeks my inability to focus on anything has gotten in the way of getting anything done. She prescribed an antidepressant (SSRI) for a month to see if it helps.
Debbie Im so sorry to hear about your brother in law. Praying for him and your family. Got my angel in the mail. Thanks so muchlike Mary-Anne it has joined my silver heart and will go with me on my travels.
Where is Ravdeb?
Have to hit the road. Will try to check in tonight.
Have a good day -
Good Morning Ladies,
I;m on the countdown for the first day of Spring which officially arrives on the calendar tomorrow! The temps are suppose to shut back up again by Thursday it will be 15 celcius.
I cant wait to see the Spring flowers start to bud .
Paula enjoy your wonderful weather, we just have to be patient for ours to arrive. I will keep an eye out for the 2nd half of that transcript as there seems to be too many women involved in one company for it to be coincidental and a random thing, something has to be going on there that caused this .
Victoria thankyou I wear my heart on my sleeve, it is hard to hide how you are feeling from your family and friends as they know you so well. This sisterhood is wonderful that way, everyone is on the same path and we support each other when times are tough. Continued healing thoughts in mourning your dear friend.
Jill I hope your friends daughter gets the help she needs soon. It must be so stressful to be in this position. Hoping for a resolution quickly.
Rosemarie I am getting used to wearing my sleeve as well. I dont have a glove as my hand seems to be okay. How is Kiersten doing?
Debbie444 sorry to hear about the possibility of your bil having cancer, this just does not seem fair and never seems to end . big hugs my dear sister for a glimmer of hope of good news.
Tracyseattle I can picture all the fresh spring flowers blooming in my head and hopefully we will have it soon here too! Can you get you rent a dolly to move the boxes to take some strain off your arm?
Linda thanks for the hotflash tip about the fan. I will have to invest in a small one as it will blow my husband right out of the bed if I turned on the regular fan.LOL.
Cathy (Worldly One) you are a sweetheart, cant wait to meet you in person and give you a big hug. You always know what to say and have the kindest heart. I now feel guilty for typing that one post at work I did have some extra time that day and my boss was away.
Kelly congratulations on being finished Herceptin. The email from your friend was very touching, loved it. Celebrate and live life with no more treatments!!
Maryanne isnt it amazing how a good nights sleep can make you feel the next day. Last night although I awoke my usual 4 times I must have slept more deeply in those periods in between cause I feel a lot better too. Hope you get your MRI soon, this must be so frustrating to have to hurry up and wait .
Amy what colour sleeve do you have?
Brenda how are you doing?
Have a super day ladies, the shower is calling me.
Love
Michele -
I am sitting here thinking how lucky I am to be a part of this thread with all you wonderful ladies. If I had gotten BC at another time I never would have met you all and I doubt I would have gotten the love, friendship and support that we have formed on any other thread. So Thank you girl's for being you...
Kelly, Congratulations on finishing your treatments......So glad you can put that behind you.
Michele, Spring? What is that? I am beginning to wonder. Still very cold here.
Jill, I think some of the girls have given you good advice. I hope that your daughter's friend get's the help she so desperately needs...It's nothing to take lightly, it has to be dealt with.
Debbie, I am wishing good thought's for your BIL and your sister. I will pray for a miracle.
Cathy, I sound just like you. I sometimes have so much to do it becomes overwhelming so then I do nothing. Maybe your doctor is right and it is some form of depression.
I have to go now, we are off to have our taxes done so everyone have a Wonderful day. -
I have the day off today as there is still no power at school. i had to go in and show willing, then the Head sent us all home, so i have caught up on the grocery shopping,had a tea with my friend - who has kept Mark and taken him to the farm, done two loads of washing and made tonights tea and tomorrows - and its only dinner time!!
Now i am going to make some biscuits and take the carpet up in the bedroom. If i have time before tea i want to varnish th efloor - that may have to wait.
Spoke to my bil yesterday. H ethinks it is cancer but he isnt too wound up about it. He has been monitored for cancer all his life as his dad and uncle died of stomach/bowel cancer so he has been waiting for something. As he put it, he has it somewhere that can be cut off and not missed so lets get it done if necessary. his bil had it a couple of years ago, only left telling anyone about it for a few years ( why??) so he had to have really extreme treatment , but he is fine and has just been given th eall clear.
Jill - how are things going? I can never remember having issues like that to deal with when i was younger.
Ok - off to vaccuum th ecar out before it rains
Hugs to you all
Debbie
P.S - tracking down the last few angels i need - dont give up hope !! -
michele...my sleeve is plain ugly skin color. i only wear it for the gym and if i'm lifting really heavy things. but at the young women's conference, there was a vendor for lympha diva and they had sleeves in black, red, blue, etc. so that it would blend better with clothes and look cooler. than they had animal print ones and stripped ones. so cool. i want to get one, but aren't sure of my size, although i think the site probably helps you.
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Hi Ladies..
I've been so busy and it took me so long to get through all the posts here!!
Cathy..have a safe trip! It was good to read your post. You are so nice!
Jill..I hope things work out with that girl and she gets help. I still say to go to the school counselor/advisor and have her see if she can deal with it so that confidences aren't broken.
Mary Anne...So, when will the MRI be?
Debbie...oh..I get so angry when I hear about another person who has cancer! When I was in chemo, there was a 19 year old boy with testicular cancer..he is the son of a friend of my dh's. It's pretty curable like Victoria said. I hope he will be okay.
You sure are on the go, Debbie. What a busy person you are. I can hear your British English in the last post with all the teas.
That tree I posted..it's not a flowering plum tree. I'll find out the name and let you know.
Am really tired. Have my cousin's daughter here and her friend from Chicago. I had never met her. She's 23. She is in Israel for a week and staying with us til Thurs when she flies back. She is just wonderful...beautiful and full of life, an artist..I'm crazy about her! Her friend is funny and so nice. She had been in Israel on a kibbutz for 5 months..a kibbutz close to here (I taught there for a year) and she wanted to go there so we spent a long time there walking all over and right onto the beach where I do my walks. It was great. We spent a lot of time walking and shopping and I'm beat. My daughter took them bowling and for dinner so I could rest, go to bed and catch up on things!
I'm overwhelmed with things I need to get done before our holiday and can't seem to get it all together. I have so many things to do and I'm busy with my cousin (which is great!) and hopefully will not be too tired after they leave to get all the things I need to get done.
There will be a general strike here tomorrow and my dh may not be able to fly in tomorrow night as the airport will be closed. I think my cousin will be okay because I went to a travel agent to ask her and she said she never heard of the airports being closed for more than a day because "they need to bring over medications and dead bodies". I'm like..hmmmmmmmm... but I know that people who die outside of Israel often want to be buried in Israel so I guess that's what she meant. But it sure sounded weird!
V.. I hope you are healing from the terribly sad loss. You look lovely in the picture, but sad.
Kelly...CONGRATULATIONS on finishing Herceptin!! That's great! Yay!
Tracy Seattle..you are working so hard! I wish I could help you!
I know I missed some of you..I wanted to reply to each of you but I'm really tired. I'll perk up towards the end of the week. -
Hi Girls -
Just popping to say HEY...I'm still crazy busy, but...it's a good thing. The noise here today, everyday lately, HAS BEEN ANNOYING! Today the drywall was delivered - there was a huge (70ft) crane in our driveway - hoisting the drywall and delivering it to the rear of the house! Nail guns, compressors, hammers, oh my!...help me! LOL And Buddy, hates the noise too, so I have to console him constantly! Calgon.... LOL But it's okay...I keep reminding myself, "you'll forget the pain"! I've finished designing all my Easter products - WHEW - now it's on to wedding, Mother's Day and Father's Day. Rarely a lull - except for July - but then it's on to Christmas Products!
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mary-anne/wonder woman -
Having your results read by 2 Rads. is a great idea! All the best to your little guy with his preps for the Olympics.
Michele -
I'm the same way...I always think if I drive someone else's car...that's when I'll rear-end someone, run over a deer or lose concentration and hit a mail box! LOL
Brenda -
Thanks...
Graycie -
I hate that dirty five letter word - TAXES! LOL
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Hope you all had a happy and productive day. -
Hello to everyone!
It's been so fun to check in with you all and see what's up.
I want to second Graycie's message of gratitude for our friendships and sisterhood. It seems like a miracle to me.
So glad to see our "travelers" back and so sorry for the loss of your dear priest, Victoria. I understand feeling close to a dear spiritual companion. Hope you will cherish your good memories of this man.
Just to let you know the latest on my friend's daughter. Her cancer has been diagnosed. It's very rare. Only about 100 people world-wide have it. It is also very lethal. I had a talk with my friend on Sunday. She is amazingly strong. The young lady was scheduled for more exploratory testing on Monday because they still have not located the original cancer. It is likely somewhere in the digestive tract but is notorious for being between layers of tissue, not as a solid mass, but more like a spider's web. She has this spidery, filmy stuff in her lungs. Anyway, for a reason I do not know, she is now in intensive care and sedated, but the latest update was that she is stable. I assume something occurred during the colonoscopy / endoscopy. We have been asked, as friends and youth group leaders, to fast and prayer for her. It is our belief that this exercise of faith can be effective and meaningful.
I have to say this is an amazing experience to be joining my church community in what is nearly likely continuous prayer for this young woman. It is bringing us closer as a group in our church "family." But, I have to say it also makes me think alot about how prayer and faith works. I believe that it does. Oh, I just wish she didn't have to be the person having this experience.
When I was diagnosed, I came to a point where I just said, in my heart, "Thy will be done" and after that, I felt at peace about my own future. Somehow, about this young woman, I'm finding it harder to get to that place of acceptance.
So, for me these are times of serious thought, prayer, and concern. I agree with Tracy's sentiment. When will this cancer (bleep) end???
Be well and I hope there is happiness and peace for all,
Mary -
Mary - thanks for updating us on your friend's daughter's condition. Very, very sad... You say it lethal.. but it there a chance? She is young, right? There is gotta be SOME kind of treatment out there for her.
I hate cancer. And with every day passing, with yet another person being diagnosed, i hate it more and more. I hate what it did to me, to my family, to you - my friends. I hate this black cloud that will hang over our heads every day for the rest of our lives... And i hate that there is nothing we can do about it.
sorry.. just feel a bit frustrated.
love you all! -
Mary, I'm so sorry. She's young, so she's strong and she'll fight as hard as she can. It's so disgusting...that's the first word that comes to mind...of so many cancer diagnoses. Like all bad things, you have to find something positive, and I'm glad the community in your church is rallying behind this woman. No one young should experience cancer. No one old should experience cancer. But, I think we gain a wisdom that we are lucky in a way to have. Maybe that's me trying to find something positive in all this. I'm thinking about you and keeping you in my thoughts constantly. I send you strength...for your friend and for you.
Deb...I envy your walks on the beach so much. Right before I had surgery right after diagnosis, I went for a long walk on the beach and it just calmed me. We go to Emerald Isle, NC every year for New Year's with about 10 couples. We have bonfires, cook dinner together, play board games, etc. But, my favorite part is the walks I take each morning on the beach. What a great way to start your day. You totally reminded me by the way of the next holiday...gotta get my Matzoh! I love it so much! I could eat it all year
Ladies, there was a really good article in Newsweek about breast cancer and exercise...I'm posting the link at the end of this post. Made me so happy and feel positive. Just to fill you in also...my period is still gone, but my doctor said it's a good thing, that it's part of the Tamoxifen, so I'm excited. But, after reading this article, I wonder if Tamoxifen plus consistent exercise has really lowered my estrogen. I say it every time...it's exciting what they're discovering
http://www.msnbc.msn.com/id/17662260/site/newsweek/
here's an exercise "snack plan"
http://www.msnbc.msn.com/id/17662259/site/newsweek/ -
Happy Spring, Its Here Finally .
Today is the first day of spring if you havent guess already and the temperatures for the next week or so are here to prove it.
We went and reviewed the costs and plans for our kitchen upgrade, gulp the final pricing is now at $4800 from our original ballpark $2400 as we made so many changes to add glass cupboard doors, pot and pan drawers, a moulding piece to make two separate banks of cupboards appear as one and added the cost and installation of a new dishwasher as we currently dont have one now. We are also buying an extra pantry cabinet that is separate from the actual cupboards and the same colour. It will stand on its own in front of one of our windows and has a built in section at the top for the microwave, and lots of extra cupboard space for cans, boxes, etc.--very cool looking and nice. My hubby has to go back to the store today after the kitchen department changes our paperwork to exclude the original microwave stand and take another $200 off also as thats what they charge to remove the cupboards from the wall. My hubby is going to save us the money and do it himself. Once the paperwork is modified and signed off by us today, they will place the order and then arrange for an installation date with the installer, but it looks like the second week of April is a possibility.
We also get to pick out our own slate colours as they come in a different range of colours, need 72 tiles to do underneath our cupboard area. We also have to seal the tiles on our own before they install them otherwise they charge us for that.LOL.
Maryanne Happy Happy Birthday sister, celebrate and enjoy it!
Cathy which antidepressant did you doctor prescribe? I am on celexa and find it generally keeps me on an even keel and I dont feel that it numbs my feelings in any way.
They generally take 3-4 weeks to get fully into your system, but I did notice a huge improvement from the way I was feeling last April. You make me tired thinking of all the traveling that your job requires.
Gracyie I feel the same way and am thrilled to be a part of this wonderful group of ladies, not thrilled that I got bc. This experience has been made easier with this wonderful sisterhood to share it with. Speaking of taxes, I think I will just hold mine right here at home until our deadline of April 30 as I owe money to the government this year. Our disability providers did not take enough tax off of me. I will do my hubbys return this week, he normally gets money back due to overpayment on some statutory benefits with his firefighting job.
Debbie444 you sound like Molly Maid and seems to have lots of energy, pulling up carpet, staining floors---are you doing all this yourself? Your bil sounds positive which is a good thing if he does have to deal with cancer but I do hope that it is something else.
Amy the animal print sleeves sound cool, I could get one with puppies on it.LOL.
Victoria I can so relate on the weight gain issue with AIs, mine has all gone to my tummy and waist too.
Deb enjoy your visit with your cousin, she sounds fun and full of life. Do get your rest, listen to me I sound like a momJEnjoy your walks on the beach and think of us in the colder climates walking through snowbanks, not much of a comparison.
Laura hopefully the pain of your renovations will be over soon, poor Buddy Love. I can see him shaking from the noise as he is so littleJ
Mary I;m shaking my head right now and really sorry to hear this lastest news about your young friend. May a miracle be found and prove the doctors wrong. Too sad for words.
Shower time once again.
Love to all my sisters.
Michele -
HAPPY BIRTHDAY MaryAnne!!! Hope you have a wonderful day!!
so excited to hear about Patrick - I know he's excited.
Michele - I know you guys are putting a lot of work into your house but it will certainly be worth it in the end. Before we left Tallahassee we had just upgraded our kitchen and painted, etc. and we sold the house the first day it went on the market. Soooo, good luck!
Cathy - travel safely! You are always on the go! Hope your work load evens out for you!
Laura - if we stay in this house I want to finish our basement too! Very exciting! hang in there Buddy love!
Amy - thanks for the links - I feel better now that I'm actually exercising! that's good news!
Ravdeb - hope you're able to get some rest!
Kiersten is off to a great start - life is good - I know this may be somewhat of a honeymoon period but I'll take it! She CAN be really sweet, in fact, NO BODY believes me when I talk about her tantrums - she just keeps it all together and then unleashes at home. Yay me...
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