INSOMNIACS place to talk in the wee hours

4sewwhat · May 2014

Dutch! I do the same thing with my kids! Did you know "thirsty" is the new term for horny!! Mthey sprung that on me this weekend!

tangandchris · May 2014

Happy Mother's Day to all the mom's

I'm feeling low tonight ya'll, physically and emotionally. My pain is bad with this seroma and it just makes everything around me suffer. I feel like a shitty mom on mother's day. Little DD came home today from spending most of the weekend with grandparents and she was in full throttle spoiled brat mode. DH and I are both tired and neither have the patience. It's one of those days, usually one of us takes up the slack when the other couldn't..but neither of us had it in us. I'm just so bitter at cancer tonight, bitter and sad. It has taken alot, and even when I try to fight back and not let it take my peace of mind, it wins sometimes.

Spookiesmom · May 2014

Chevy:

Mr Dillon, Mr Dillon

Am I the only one that saw it? Who knows Chester? Geeze, I must be OLD!

dutchiris · May 2014

Gunsmoke? Marshall Dillon, Festus, Chester, and Miss Kitty? I saw Chevy say something now I can't find it.

camillegal · May 2014

Hi everyone I read everyone post ,but chit I forgot most and I don't double screen, whatever that is.

Susan don't worry about decoding and when u do figure it out let me know too.

Tang I'm so sorry u'r having a bad day and time actually and I know sometimes it seems to not end and it does get worse before getting better, pain is so hard to take not just physically but emotionally and it wears u out all by itself, unfortunately some have it worse than others too--It's acrap shoot but I think everyone suffers with this and it affects all around us. I'm sure U'll call the Dr. tomorrow o go to the ER. I know no one wants to go but sometimes u have to, u don't need to be in this much pain, and I feel for u--u need all of u'r energy for just you now, but it's not easy to do.

sas-schatzi · May 2014

susan--opened to your post--it's sunday night. If pain persists take him to your usual hospital as soon as you see this

Go to medical Records of the hospital you were at as soon as it opens. Sign the release forms for all records this visit. Need husband to do this unless you have Power of Attorney. He needs picture ID and sign the form.

You didn't say what studies were done. Minimum blood work should have been--CBC(often ordered as Cbc with differential----cbc includes a differential---always amazed the docs don't know this). CMP -Complete metabolic profile-- is his presentation should be the minimum ordered----it includes all hepatic function(liver). May have ordered CMP with hepatic function. CMP covers hepatic function.

Look at the Billirubin-------indicates if there is a malfunction of flow of bilirubin through the normal path down the common bile duct which the ER doc indicated. Blockage of the Common bile duct is very serious and dangerous to the health of the liver.

They should have ordered an amylase and lipase. Reason - a stone can fall down and block the duct from the pancreas. The amylase /lipase will skyrocket. But if the stone pops out of the ampule vater(sic?) ,the amlase/lipase drops like a rocket.

The importance is when duct to the pancreas is blocked , the pancreas starts to digest itself

keep him on clear liquids or nothing by mouth if pain persists.

If pain persists take him to your usual hospital as soon as you see this

Standard of Care should have been : CBC, CMP, Ct scan or ultra sound, Amylase/Lipase,

If he got through this episode: ask for an ultrasound of the Gallbladder asap.. \

Gallstones that fall and block the opening to the duct of the pancreas can be critical to the health of the pancreas.

If the doc that said "I'm a specialist, and I know" and an Amylase and Lipase---particurally and Amylase wasn't drawn. Wrong. Plus, still doesn't mean any thing--he could have filped the stone... things could have equalized... before blood draw

See your doc tomorrow after getting records sassy

susan3 · May 2014

thanks sas..will do tomorrow. He is out of pain right now and we got a name of doc in our system at a different hospital. They did billy Rubin and ultra sound. Billy Rubin was slightly elevated and many stones where shown in the ultra sound. The "smarty pants" doc wanted him back in 3 days to do a test where the put radioactive stuff in your blood and put you through a machine and watch if it stays where it is suppose to. Not sure why they would do that...which is why we r not going back. I was surprised they didn't do a ct scan ....but happy is is feeling better and we will get to the bottom of it. I get soooo disappointed in doctors when they don't listen to what you are saying. I am sure we all go through that to many times. I feel like I have to fight to make them listen to what is happening. It gets so frustrating not being able to have an intelligent conversation with a doctor. I had my gallbladder out 4 years ago so we kinda know the process. Thanks for the technical terms, that will help tomorrow.

Hope you r doing well

Tang..hope you feel,high tomorrow. Don't beat yourself up..it is quit a roller coaster ride we are all on. The lows are low and the highs are high..haven't found the middle ground yet, but if I do, I will give you all the secret! Feel better hugs your way

sas-schatzi · May 2014

Tang, I had a seroma on the snl(3 ) side. Whether there was any connection, I don't know. I forget how many days post op, the area around the entry point of the tube looked like it was getting infected. PS, pulled the tube and put me on antibiotics. I developed a seroma on that side. He chose not to aspirate. It took more than two years to resolve. It's never behaved right i.e. use the arm too much, I have axillary and upper arm swelling.

My research gave NO clear indicator of what the correct approach was----translation ---sorry, they don't have a clue as to the correct approach

But your new PS, ask him about drains.

Cleveland Clinic In Ohio ----there is breakthrough research on doing surgery without drains on flaps.

Contact ChickaD. She had the surgery and didn't realize it was revolutionary. It's a break through. But the guy hasn't published yet. Plus, even if he published. doesn't mean your new doc could do it successfully. Talk to ChickaD.

4sewwhat · May 2014

Tang,

I hope you get to feeling better soon. I do understand why you feel like a crappy mom. I have so been there, done that this past year. My two younger (almost 10 & 12) Do not have the same parents that my almost 15 & 17 year olds had. Between DH loosing a long time job 5 years ago, then financial trouble, then the ankle fiasco, then the farging BC we are just in a different place right now. Our 12 yo is really struggling and just doesn't give a crap about anything. So many times we don't have the gumption to fight the battle, we end up walking away so we don't say or do something that is going to make it worse. Makes us feel like chit.

Your kids are going to come out stronger more compassionate people for this horrible time your family is going through. You will get through, even though it is so tough right now.

**editing after seeing Sas's post. When I had my fin pulled 2/15 we did not put in a drain. Ended up going back in on 3/14 to install one and redo the incision. (Told him to clean up the mess he made and give me my pretty scar back) We pulled it after 3 weeks and boob started to grow again. Fortunately it seems to keep flowing out with the old and in with the new but doesn't keep getting bigger.

OK, the point of all that is yes, I agree you should ask about a drain!

sas-schatzi · May 2014

Tang and $4444--get the kids into therapy------wish my parents had-------three kids with polio--sucks.... we just survived as my parents floundered.

Today there is so much that can be gained by contacting a Social Worker requesting available resources.

In the 50's and 60's , NOT

I'm still screwed up from that time.

What's fun---with everything that has happened in the last 5 years----------is I am at a point of immense happiness and on the defense again

sas-schatzi · May 2014

44444444444 I have no idea if he would have reinserted a drain if that would have accomplished the purpose, I think having a different PS for me would have been better. Wasn't happy with his overall job-----but he was recommended by all . CHIT.

When I came down her in 1992, I asked myself "Have I come to a Medical Wasteland" . A medical waste land is where there is substandard care. Well I was surprised for along time.

But saddened over this thyroid thingy...........found such substandard care by people that I believed in for so long. Plus, the national care post-- NAI131 or any implant or post home therapy sucks. Chit

chabba · May 2014

Up in the middle of the night again with severe bone and joint pain in my right hand,arm and collar bone.Can't even use my right hand. Pain was at a level 9.9 when it woke me. Don't like to take a higher than prescribed dosage but have tonight. Been up just a bit less than 3 hrs and have had 3 Vicodin. Pain is now at about 8.

Going back to bed and hope to sleep. Have appointment with MO in a couple of weeks but will call later today to see if I can get in sooner. Unexplained pain, especially of this magniyude, frightens me.

camillegal · May 2014

Good Morning all--

Chabba doe u usually get pain in that area? or is this the first time? I hope u'r sleeping right now and wake up feeling better. but just call u'r Dr. anyway.--I'm sorry it got so bad.

Chevyboy · May 2014

See you guys? I could be saying something important, and y'all just skip right over it!

SPOOKIE! You GOT it! Ha, ha! I even said before, I called my leg "Chester" and nary a word from you guys! But YOU picked up on it! I'm so excited! I forget how I said it now...

Yes Dutchess! We used to watch them all the time... Wasn't Miss Kitty a Tart? Must have been why I liked her! And Chester with the limp! MAN, I could pull something over on you guys, and no-one would even notice!

Cammi! I'm doubling-screening! But it's a secret how I do it! I've TOLD you many times, but now I give up... my knowledge is now stuck in my own head.... sniff.

Yes Susan! I KNEW Sass would know what to do with your DH! You could even highlight, copy, & print it on like a blank email, and PRINT it to take with you, so you can remember! That's what I'm doing now, with this new "draft"...(blank email) and typing away, and then when I want to post this, I just "high-light" then R.click "copy" and then move over to our Insomnia thread, click where I want to post this, and R.click "paste!" And then this will go there... But you would do the opposite, if you want to print it... That's the only way I can remember stuff, is to either print it, or save it in my favorites...

http://www.mayoclinic.org/tests-procedures/bilirubin/basics/definition/prc-20019986

I looked that up Sass, because they did this with my DH when they thought he had Prostate Cancer... Mis-diagnosis, by an ER surgeon!

It turned out to be Epiditimitus... instead! Something that can be handled with Cipro, but so painful, he could not get out of bed! His boss carried him into the ER...

Has had it one more time many years ago, but at least we would KNOW next time...

So I'll be your assistant Sass! Yay! I'll be the front-man, before we call in YOU.... the big-guns! So are we done with Susan? We need to fix Tang now!

Did you see THAT? Tang is at wit's end! Yeah, I had a Seroma too, but nothing like what is going on with Tang! I didn't have near the surgery that you went through.. I didn't have mine aspirated either, but ours are totally different.... Can you just go somewhere else, to get another opinion? I just HATE when you guys are in trouble, and can't get anybody to listen!

That Seroma pocket STILL shows up in every Mammogram, but it has gone way down... I can still feel a lump there, but nothing like before.

4444444444! You are a sweetheart....! Such a nice heart-felt note to Tang... I loved that.... still don't know what a "fin" is... but I'll just go along like I do.... Okay Tang.... so ask about a drain.... I mean WE'LL even put one in FOR you!

LittleBB! THAT is amazing, that your DH is putting in your floor! Is it a Laminate, or hard-wood, or tiles? I know you will LOVE it! I put some of our Laminate in... But finally called a guy in to do the Living/Dining rooms! Too hard on your back, and knees, and brain, Ha! But it all came out beautiful! This was 2 years ago... So happy you get someone in to clean your house!

Ah Geez Chabba! Can you get to the emergency room? I mean it's just too hard on you to go through so much pain! Maybe if you could see someone ELSE? Sometimes our Doc's think they know us, but another opinion wouldn't hurt! There has to be a reason for all that pain! Can you get in today, somewhere?

I mean SASS, would tell you to raise 3 kinds of hell, with someone!

Oh hey, Hi Cammi! We have a lot of gals with so many things going on today! I wish we could help them! You doing okay? I'm fine, just that it is 32 degrees out, a lot of snow from last night and YESterday, so I don't know if we are going anywhere today either!

Just wish our friends felt better.... Love you all! xoxoxoxo

4sewwhat · May 2014

Good Morning!

Just dropping in quick then back to work! DH just left for San Diego and I have the double doody again!!

Sas, my 12yo, Well 12 in September! His issues stem from being an almost teenage boy, 3rd boy in the family, don't want to shower or do my homework, only want to stare at a screen, etc... Tooth Brush, why would I want to put a foreign object in my mouth? Reading, that's what pops up in the speech bubbles, right?

He has 2 older brothers that don't want much to do with him and he craves their attention. Age diff is only 3 & 5 years, BUT he is in 5th grade, they are in High School. Plus 12yo is one that was born with part of his brain missing. He is really smart but has to work a little harder at it and he, at this point in life, is LAZY! He also has 3 AP siblings that almost everything comes easy for and to him it is just easier not to do it than to expend the energy!

I am so thankful to say that for the most part my BC has had very little impact overall. Never a pain pill, ever, and not a single day in bed from anything. The hair thing helped too because they didn't see that and I didn't feel it when I saw myself. I don't talk about it on BCO much because I have been so fortunate through all my treatment and surgeries and I don't ever want to make anyone not that blessed to feel bad. So I just don't like to say anything. Plus, you know there are THOSE people out there that think you are bragging, gloating, etc...

OK, nuff of that! Plastic Surgeons! Yes, world of difference. I know this because I have been "interviewing"!! I have seen 4 and going to another tomorrow. Someone IS going to fix me the way I want and SOON. Actually my guy is pretty on board so I keep landing back in his office. Hence the surgery on the 21st! Nemo is tired of swimming in clockwise circles and rolling to one side to float!!

Ok, I gotta get a move on. Crappy couple of days ahead, so I want to say to EVERYONE.........

4sewwhat · May 2014

Translating for Chevy................I changed my avatar when I lost my "fin" (aka boob) Nemo has a big left fin and a tiny right fin. I have a big left boob and a tiny right boob! Not for long I hope as my PS is getting ready to move my excess thigh lining to my tiny fin next Weds. Pre Op is tomorrow. Really sad when you are on a first name, recognize you in the grocery store, basis with the nurses from the OR!!

Chevyboy · May 2014

444444444! So proud to "know" you! You are amazing... You are a very patient Mommy.... and still have a sense of humor... ! (((hugs)))

Chevyboy · May 2014

Teka · May 2014

Chevyboy · May 2014

Chevyboy · May 2014

Oh hey, Hi Teka! We're both up having coffee, right?

Teka · May 2014

FierceBluebird · May 2014

Hope everyone enjoyed their weekends. And those in pain find relief!

I'm also a member of the sad moms club. My son seems to have given up also. He's 16 and a junior in high school and at a critical grade. Doesn't study for tests. Refuses to take sats and no interest in college now. He's still in ap courses but failing one and grades horrendous. I sent him to talk to a counselor but he won't talk and gets angry about it. I have no energy to do much more. I've tried talking to him as well, but he just shuts down. It's very frustrating. On top of dealing with bc, it's an extra heavy load for a mom to bear. 4swewhat, you have such a positive outlook. I'll try to keep my chin up. I love Nemo.

Cleaning For a Reason is a national organization that matches local cleaning companies that get donated cleanings to help women in treatment. Cleaningforareason.org.

Teka · May 2014

Son would probably benefit from an outdoor summer job involving a greenhouse with fresh air & physical exhaustion! Loopy Winking

4sewwhat · May 2014

FBB,

Is there a Dumpsters for a Reason?? Cuz that's what I need!! I went to the principal to talk about my kid and the counselor talked to him too. He gets what we are telling him, just doesn't want to do anything about it. We even threatened to hold him back and make him do 5th grade again with his sister!!! Nope, doesn't give a chit. Now everytime Nick has to empty the trash can he calls Collin and tells him it is vocational training!!! He tells him he is gonna need a job!! Nope still not sinking in.

He did tell the counselor that I tell him we are trying to help him and he needs to help us help him. He gets it, the little shit!! I asked did he like getting yelled at (mind you I don't raise my voice when I "yell"). He shrugged and told me he was just used to it! I will break through that thick head somehow!! Of course this is the kid I used to tell to be careful and not spill something so he would look at me, grin with a glint in his eye, and dump it right on the floor!!! Now you know why we walk away sometimes!! So we don't kill him...........................

Good Luck, I know it's tough.

Holeinone · May 2014

FierceBBird & 4sewwhat,

Super mom, I'm not. Made plenty of mistakes.....

The best thing for my son was he got obsessed with kayaking. I always told both kids, find something you like, stick with it and you will have that passion & joy of being accomplished at something.

I pushed tennis on my daughter, she did play High School tennis, but quit her senior year to kayak. She does triathlons, & stills plays tennis..

My DH was a good kayaker so taught DS when he was 11-12. Sports are the easiest for boys, but sadly for some sports you have to start in first grade to be able to play in High School.

I know there is no easy fix, It's so hard for kids to "fit" in, feel good about themselves. So many things out there, besides video games...my kids got hooked on chess for awhile. I tried to get DS to hike in the mts. He kept yelling at DH & I "this is stupid". Lol....DD loved it..

FBBird, I do not want to be insensitive, I realize you are not able right now to haul your DS to the Mts. To hike or ride bikes...just keep encouraging him to find his passion....whatever that may be...

tangandchris · May 2014

I'm a little embarressed now...kind of wish I hadn't posted my "dark and twisty" side last night. I do have a drain put in, but the site where the drain is going in is causing me pain. I've talked to my nurse navigator about it and she's gonna call me back after she talks to docs.

Anyway, feeling better today mentall/physically. sorry for the dump last night

4sewwhat · May 2014

We all need that once in a while Tang!!! Glad you are feeling a little better. I found if I kept my drain tube taped down tight so it couldn't wiggle it didn't hurt too bad. YOu prolly are already doing that, just thought I would throw it out there.

Golf Girl! My boys never were interested in sports but 2/3 dance and they all play instruments and sing. Of course the girl child is the adventurous one!! Two of the kids want to do everything under the sun! I keep telling them to pick a few and get good at them!! The time will come. I think the frustrating thing is when you know they are capable just being lazy!!

Off to shower so Cami isn't the only purdy smellin' one round here today!!

Holeinone · May 2014

Tang, no worries, please do not feel bad. We all come here to be honest, and not burden our DH or kids. We will have a super, duper, partay for you when this shit is behind you.

I had unbelievable fatigue the month after PFC... ( Post fu€king chemo ) Not everyone does, but I was recliner bound. Long, slow stinkin process.

4sewwhat · May 2014

Oh my gosh, what a day and it is not even half over for me..

INSOMNIACS place to talk in the wee hours

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