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  • Lovegolf
    Lovegolf Member Posts: 513
    edited November 2011

    Nat

    The other thing I found to be of help is yoga classes. The health center at the medical center offers free class for cancer patients and survivors. you may want to check. It is not like a full work out, more like yoga on training wheels, but it does keep you moving and stretches out the muscles.

  • TorchSong
    TorchSong Member Posts: 348
    edited November 2011

    Hi all--I have the results back from the bone scan.

    My arthritis is apparently worse but I am CLEAR otherwise. Yay!!! 

    The upside to the scan was that I was able to visit a friend who was in the same hospital with a gallstone--we had not had a chance to sit and talk in a long time, and we were able to do that. She was well enough to want to talk--a lot, she was bored, lol--but wasn't allowed home yet. And of course, I had nowhere to be for four hours while waiting for the tracer uptake. So we got to talk lots

  • Lovegolf
    Lovegolf Member Posts: 513
    edited November 2011

    So glad you got the all clear!!!

  • Natters
    Natters Member Posts: 361
    edited November 2011

    That is awesome news, Torch! Not about the arthritis, of course, but about your bones.



    I am still trying to work out but my breast is getting Pretty warm and sore and tender. Just saw my RO who seemed to want to blame it on the BS? My lump was ages ago and is well-healed. How could I have an infection or cellulitis or what have you is many months out?



    Nat

  • TorchSong
    TorchSong Member Posts: 348
    edited November 2011

    Thanks, Nat--it's odd to be relieved I have arthritis at the age of 51, that's for sure.

    Sorry to hear about the tenderness, etc. Why did your rad onc think it was the surgery? Hope it gets resolved soon!

  • fairweather9
    fairweather9 Member Posts: 76
    edited November 2011

    Hi Everyone, I'm Marlene found out I have BC on 11/1

    I just started making my way through some of the threads here and they have been very helpful.  I finally finished up my testing on Friday and tomorrow is the big talk with my BS. 

    Its been a nice surprise to find out that with all the crap spinning around in my head, not a single thing has been an original thought or feeling, if you know what I mean.

    I wish we were getting to know one another under better circumstances but what can you do, guess you have a new member of the club.

    Marlene

  • Lovegolf
    Lovegolf Member Posts: 513
    edited November 2011

    Welcome to the club no one wants to join. There are great women here.  We are all willing to answer any questions and send all the positive thoughts we can. Do you know type on cancer and hormone status?  It seems odd to say but it does get easier when you know what i can call your "fight plan". You will find you are stronger than you know.

  • Natters
    Natters Member Posts: 361
    edited November 2011

    Hi Marlene, not glad to have you but glad you stopped on this thread to say "hi.". Hope you were able to sleep and that you have a good chat with your BS. Remember that even if you like this one, it's sometimes helpful to get a second opinion, if only to get more information. Good luck!



    Nat

  • fairweather9
    fairweather9 Member Posts: 76
    edited November 2011

    Hi Lovegolf and Natters,

    So I saw my BS today and have in a bit of shock here is whats going on.   I have been getting tests for the last week and a half, finally had a bone scan last Friday.  Today I went in to speak to my BS and she told me that not only do I have tumors in the right breast but also I have one in my spine and in my hip.  She wants to hold off taking the breast in order to start to treat the bone cancer.  Her thinking is that the treatment on the bone will help with the breast, or at least shrink the tumors in the breast.  I was in shock and thank god my partner was with me to ask questions as I was just a blank.  I had already decided not to get the breast rebuilt but forgot to tell the doctor that, I'm calling her in the morning to see if that makes any difference in her course of action.

    On the upside she did say that this is not unusual and very treatable.  She did qualify that by saying we are still gathering information but she is very optimistic. What she did tell me is that I am ER Positive and if I remember the letters right one of the breast tumors is DCIS non invasive  Since I could not sleep I thought I would do a Little thinking out loud thanks for listing.

    Marlene

  • Natters
    Natters Member Posts: 361
    edited November 2011

    Anytime, Marlene. ER positive is a good sign because that means they can treat it with estrogen-blocking drugs and also those cancers tend to be slower and less aggressive, from what I understand. And DCIS is always the best kind, if you have to get any, because it's not invasive. I am sorry to hear about the bone cancer and glad to hear that you have a supportive partner to get through this with - it's important to have her (or a friend, if she can't make it) come with you to all these appointments, because it is so hard to take in all this new information and accurately recall it later. It helps if your partner or a friend can take notes for you, and maybe remember to ask questions you might have. I try to write down questions as they arise, and then bring in a list of questions when I go in to see one of the DRs. Well, I hope you managed to get some sleep after sending your message, and that you are feeling more up to tackling your treatment.

  • sinee
    sinee Member Posts: 1
    edited November 2011

    Hi Ladies, This is my first time here ~ so I wanted to say hello ~ I was diagnosed in Sept. of 2010, and have gone through chemo, surgery(lumpectomy) and rads. Having a bit of swelling and redness, and went to check on cellutis and that is how I found this site. I am on the boards with CSN cancer services network also...I enjoy sharing info and recieving info...my partner and I have been together for 15 years, she just had her mamo, and has a spot on her left breast. So we will carry on and see what becomes of it~hopefully she is just fine. I was so hoping to find a Lesbian page such as this and was considering starting my own on csn...and here you are..so hello to everyone, I am sure we will get to know you in time. {hugs}}} Sinee

  • Natters
    Natters Member Posts: 361
    edited November 2011

    Sinee, I have my fingers crossed your partner's spot turns out to be nothing! Are they going to biopsy, or watchful waiting, or another test? My partner is too young for regular mammos (although she had a diagnostic one before met her) but I will be worried so much for her when the time comes. I never used to worry about mammos before - I was ignorant.

  • Lovegolf
    Lovegolf Member Posts: 513
    edited November 2011

    Hi sinee

    Hope your partner get good report. I know it is scary.  Let us know

  • Lovegolf
    Lovegolf Member Posts: 513
    edited April 2012

      3 years today for me. Am carrying survivor flag tomorrow in Komen. All of you here were so much help and comfort. I will carry your names with me.

  • Cateyesjc
    Cateyesjc Member Posts: 13
    edited July 2012

    Hi All,

    Great to know there's a BC forum for we Les gals!

    I am 39 Single,  What a "great present" I received for my coming Birthday! (19days to go)

    I've just diagnosed with StageII BC (ER+/PR-/HER2+).  Yell 

    My First Chemo will start on 6August2012 (6 months treatment) then follow by RT (1 month) and Herceptin ( 1 Year) and 5 year Hormonal Therapy medication.

    Wish myself to become stronger and stronger to overcome all these treatment!

  • Lovegolf
    Lovegolf Member Posts: 513
    edited July 2012

    You will get stronger.  This thread has been quiet for some time. There maybe another more active.  Sorry you are here at all.  Most of here are through treatment.  But will check more to see how you are.

  • Natters
    Natters Member Posts: 361
    edited July 2012

    Good luck with everything, Catey! Hope your center is providing you with lots of resources. Like, in my city, they will send people to clean your house if you're getting chemo. Do you have friends to drive you around and keep you company? Wishing you strength and peace.

  • Cateyesjc
    Cateyesjc Member Posts: 13
    edited August 2012

    Hi Love & Natt,

    I am great that I found this forum while I browse thru internet like never ending things to search and search anything related to my BC!

    I am from Asia Country and it seem that there isnt such kind of BC forum in Asia region (especially a session for Lesbian!) here.  And I too after read some threads posted up in this forum realised that treatment procedure for chemo look different...  I met the doctor at the Center on Monday 31/7/12, and she just let me know how the treatment schedule timelines will be and never mention anything about putting a " port " .  

    Natt,  I had moved back stay with my parent since when I start to visit hospital follow by all checkup/biopsy/MM/US etc....with upcoming Chemo treatment I never know yet how my body will react to all sorts of side effects and yes, is better to have someone to take care of me during the period of treatment.  My own living place and my parent place arent that far, so can just drop by weekly once to do some simple house cleanning to keep it clean and neat.

    The fear, scary, worries wont get out of my mind so fast ...my thoughts, my feeling just go up and down like sitting in a roller coaster it will just appear when ever it like any day any time...  Sometime pressure from my mother do make me frustrated, she blame herself " Why! she gave birth to me and I grown up with this kind of sickness..." she will nag on me like everything is fine in the pass,  why things get worst now (my health) when I moved out stay alone since last year!...

    I do know she is very upset on all my BC things, and I do not want my parent to be sad about my BC!  I am adjusting myself everyday to be more positive and look like everything is same as before (which arent that easy) wont want to increase the worries on my parent (they are olds, they should be having a wonderful retiring time and not worries).

      

  • Natters
    Natters Member Posts: 361
    edited August 2012

    Catey, even if your parents are sad about your BC and stressing you out, they are your parents and they love you, and they are probably happy that you moved back in so that they can help you. My mom said it doesn't matter how old we get, they always worry about us like we were still little. I'm relieved to read that they will be there for you thru the side effects.



    I didn't have chemo so I can't speak to that as much, although I did drive a friend to her chemo appointments a few times. She doesnt have family around here so a bunch of us took turns helping out. She had 2 rounds of chemo, one before surgery and then another one afterward. She had warm blankets and a port and she was encouraged to read, sleep,play with her phone, talk, play cards, or whatever to relax during the appointments. Not sure how diffreent it will be in your country?



    Now she is on hormone tx although it might be different from yours because she is older than you. But she is doing great, working and socializing and just back to normal- or the new normal. I'm on Tamoxifen and the side effects are very do-able, of you end up taking that after your chemo.

  • Cateyesjc
    Cateyesjc Member Posts: 13
    edited August 2012

    Natt, Yup you're correct!   In the eyes of every parents we in the role as their childs are always "little kids" to them like we never grow up LOL ! :)

    Well, I'm not sure "how different" the chemo treatment here since I'll start first chemo on 6Aug2012.  I need to have a Heart Scan first instructed by the Center Doctor,  they said if my heart show that is strong and is able to endure the drugs used in the chemo treatment then only they will start the first chemo sessoin.  Maybe I will update "how the different" chemo treatment here later at other forum thread session.

    Hope everything work out fine & I'll be strong enough to overcome it !  

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