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  • Lovegolf
    Lovegolf Member Posts: 513
    edited March 2010

    Hey Deb  I know what you are talking about the beer belly.  Good to hear from you.  I have old bra that has light weight cotton stuffing in it. I wore it one right after surgery and never again.  I guess I will just walk more and work out for the beer belly.  I am just now feeling like I can work out my upper body . 

  • dswope
    dswope Member Posts: 70
    edited March 2010

    Hey golf!  Good to here from you again. 

    Didn't you just have surgery again to get rid of the "fat flaps" under your arms?  No wonder you're just ready to work out again.  It still amazes me how helpless we felt in the beginning of all this, and here we are now.  Done with the worst of it (I hope!), and just getting on with life.  No, it never really leaves your mind however, it does ease up a bit for those of us that were fortunate enough to have caught it in the early stages.  Sometimes I stay away from the boards because I really don't feel like I can be much help to those that are going through so much more than I've had to.  And, it's just a reminder of what may be to come.....rambling!  Stay in touch! 

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Hey ladies :)

    Good to hear form you!!

    I had the immediate reconstruction with the tissue expanders after bilateral masts last March and had my exchange in December. Got my new foobies for X-Mas. I still have a couple more surgeries to get through before I can say I am "done". I am having some issues with lymphedema so it has been kinda ongoing for me. I am glad to hear that you are doing well and "moving on" so to speak. I haven't been as lucky to be able to forget about it yet, lookng forward to that day for sure :) You all take care and I will be checking back, I'm at work so it's hard to have enough time to post. HUGS!!

  • Lovegolf
    Lovegolf Member Posts: 513
    edited March 2010

    I doubt we ever forget.  I did have surgery 10/28 and it has helped sp much.  The red hot wire feeling across my chest is gone.  This place were a great to me when I was going through it all. I am walking next month in the Komen here.  It is 2rd year we have had one.  Last year was the day after my lumpectomy.  I am carrying all of yall's names with me.

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Yes I agree, I used the wrong word, forget. I know we will never forget. I just meant that I will be glad when the first thing that comes to my mind each day isn't my BC, or some side effect of it. I did komen last year and it was amazing, one of the hottest days of the year too! TTYL :)

  • newby2u
    newby2u Member Posts: 4
    edited March 2010

    Hi I am April and have been with my lady for 2 years. I was just diagnosed with BC on Feb 17 of this year. I will going through mastecomys April 6. I will not no what my treatment will be until then. I hope I can check in with you ladies for support. I appreciate it

  • GML
    GML Member Posts: 90
    edited March 2010

    Hi April and sorry to welcome you to the site...I'm sure you will find a great deal of support here.  I had mastectomy back in September of 2009 and just had prophylactic mastectomy of the other breast in late February.  Had chemo, no radiation (for reasons too long for this particular post) and am now on Tamoxifen.  It can be a long and scarey journey but there is a lot of information contained in this website and a lot of women here who will be more than happy to give you support.  You will be amazed at how much you will learn about breast cancer.....Good luck with your surgery.

    GML

  • cancersucks
    cancersucks Member Posts: 156
    edited March 2010

    Hi April,

    This board is amazing and the ladies are a wealth of compassion and knowledge. Let us know how we can help you? I've been through the gamet. I had a bilateral mastectomy, chemo, now hormonal therapy coming up. You can private message me anytime with any questions. I'm sorry you have to go through this, I hate that any of us do, but take it one day at a time. Hang in there, and we're here for you, we're all in this together!!! You found a great site for support! CS

  • chainsawz
    chainsawz Member Posts: 3,473
    edited March 2010

    I agree - this site is an amazing resource for information and support!  I also had a bilateral mastecomy and chemo like the others and hopefully we can give you info or guide you to the right place on this board :>    

  • Lovegolf
    Lovegolf Member Posts: 513
    edited March 2010

    April

    Welcome to club no one wanted to join.....I had bilat mx 5/1/09.  Will be glad to answer any questions.  What type of cancer?  Stage etc?  

  • newby2u
    newby2u Member Posts: 4
    edited March 2010

    Hello to you all and thank you so much for welcoming me to this forum club. I was told I have IDC probably at stage 2 or 3. I will have to wait for my sugery to see if any lyph nodes are involved. I also will be having an MRI ? or something to do a scan soon. They will call me when they have the date set up to go. I will be seein about the chemo soon to. It is a pleasant place to know you are here and going through or have been through so much of the same and are willing to share your stories to everyone here. I appreciate you all very much. 

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Hi April and welcome to you :)

    I also had bilateral masts last year for DCIS and IDC. All of us will be here to help you in any way we can through your journey. As much as I would like to say not too get stressed I know you will, but take deep breaths and just show up as some ladies put it. At some point there will be someone who has gone through what you will be going through soon, so you will have allot of support and encouragement here. Good luck to you and keep coming back whenever you need someone to talk to.

    All my best

    Dee~ 

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    BTW LoveGolf, I wanted to ask what they did for your hot wire feeling in your chest? Did they cut some scar tissue ? What caused the hot wire feeling? I am experiencing some of the same thing and was just curious.

    TTYL Smile

    Dee~ 

  • anniej
    anniej Member Posts: 5
    edited March 2010

    Hi everyone,

    My name is Annie. I live in Australia on the Gold Coast. Diagnosed with Br ca 07 and unfortunately now have mets in my pelvis. Im currently recuperating from an acetabular rebuild/hip replacement op in Nov. 

    My partner and I have been together for nearly 11 years. We use to live together but this whole cancer thing has brought about some changes and at this stage she is living elsewhere. She found it hard to live with my mum, who came over from NZ to care from me. They get on a lot better now. My partner does try her best- she is Irish and  grew up in an environment where it was considered weak to discuss feelings. My brother has just arrived ex NZ as well because of my 2nd diagnosis. We havent all lived together since the 80s!!  I have been fairly self sufficient until recently, so thats why I have joined up. I have found these forums to be really helpful. Im also getting some counselling thru the cancer council.

     Im just looking forward to the day I can walk out onto the tennis court to have a bash and I cant wait to try my hand at golf, and, and, and ... hold on girl... one day at a time !!! LOL. 

  • cancersucks
    cancersucks Member Posts: 156
    edited March 2010

    Annie , Welcome to this thread and I'm sorry that you are going through this, sorry any of us has to go through this. You're right it's one day at a time. I had to be in touch with siblings I was etsranged from because they were homophobic, then BC hit me and BAM! They were all back into my life, not because they wanted to but because my mother is an amazing charming, strong, matriach of the family, and did I mention she's Irish (so she guilted them all into it) Anyway, it's over (hopefully) BC has sure put a fire under my ass. I am moving to be close the the ocean and adopting some kitties (sisters) and going to actively stay out of any drama. I would like to die in my sleep preferrably in my 90's, a crazy old cat lady, that's the goal!!! Hang tough ladies! Happy Weekend!!.

  • cancersucks
    cancersucks Member Posts: 156
    edited March 2010

    New Feel free to PM me anytime with any questions, 

    Nice to see you checking in Dee1961, the thread missed you, she kept me up all night crying and calling out your name :)  I get the hot wire thing as well, bilateral was in December, feeling is still there but not as bad. I hope I'm still cool wit'cha even though I don't drink :( I'm just not cool, very geeky, I'm a dork, I can't help it. Night ya'll!

  • newby2u
    newby2u Member Posts: 4
    edited March 2010

    Hello again everybody,

    I wanted to say that I have had a hard time with feeling down a lot more lately. Not feeling like myself and worried about what my future holds. I guess that would be normal under these kinds of circumstances. I wisj it would just all go away, like waking up from a bad dream. I am sorry Annie that your lady could not hang in there with you and I guess to that I am afraid that will happen in my relationship too. I am sorry I am probaby making everyone depressed :(  Blessings to you all

  • cancersucks
    cancersucks Member Posts: 156
    edited July 2010

    Hey Newby2u,

    Something would be radically wrong if you were going through this experience pretending to be happy about it. You are going though a rough period right now, the waiting and feeling out of control, not knowing where you're at. It's only natural, but you'll get through it. If your girl did  leave you now I think that would scream volumes about her character. Don't always believe what you think. Hang in there and focus on asking your medical team questions. The things that you need to know so that you can make the best decisions regarding your treatment; Take a break from researching, that's very important, researching to much can leave you feeling stressed out, burned out and overwhelmed. You should pick up the "Anti Cancer A New Way Of Life." by David Servan-Schrieber MD, PHD, I'm currently reading it and it's very good. Hang in there and keep us posted on how you are doing. (((((hug))))) CS

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Hi Annie and welcome :) I hope you are feeling up to getting out to your tennis game soon. I have a very close friend that just had a hip replaced 5 weeks ago and he is doing very well. Hang in there Newby2u, like CS said it is natural to feel down, I mean getting diagnosed with cancer isn't the news anyone wants to hear. We are here to hold you up anytime you need us. No worries CS, I like crazy, non drinking, cat loving, geeky dorks.

    Laughing

    Peace    Dee~

  • cancersucks
    cancersucks Member Posts: 156
    edited March 2010

    Thank you Dee, I promote that!! :)

  • anniej
    anniej Member Posts: 5
    edited March 2010

    Hi everyone,

    Thanks to all welcoming me.

    April, it doesnt matter how you feel. This is what these forums are for. I have just joined cos Ive had this situation  for over 2 years and have been soldiering on and basically fell over like a pack of cards. We all need to have a safe environment where we can bitch, moan, tell each other when we feel like crap, feel scared,and other emotions that come with this beast as well as feel that we can also write and say, hey, I had an ok day today. It doesnt matter how you feel, someone will know EXACTLY where you are and I would say, that would probably be the all of us!!!!! So just write away.

    CS is reading anitcancer-anew way of life. I recommend everyone reads it. It is FANTASTIC.

    Well, I have to go. I have to drive, well, get chauffered to Brisbane for some pre chemo class- I say wtf, Ive already done 6 mths of that but hey, life and cancer wouldnt be anything without some sort of  daily interruption (snide snigger!!)

  • GML
    GML Member Posts: 90
    edited March 2010

    Newby....it is perfectly normal to feel "down" and not at all yourself during this period.  My head was spinning for a long time as I tried to take in all the information.  For a very long time I would wake up and wonder if it wasn't all a bad dream.  At this point (all treatment is over for me except Tamoxifen), I feel like it was all a blur.  My partner says that I'm 99% of being back to my normal (normal, lol) self.  Give your self permission to feel what you feel during this time.  You'll need it.

  • Lovegolf
    Lovegolf Member Posts: 513
    edited March 2010

    It is so alright to feel down or feel like it is a bad dream.  I was sure they would call and say so sorry not you but that did not happen.  So you figure out how to fight it and get to the other side...to answer about hot wire...yeah PS trimmed up the site and it has really helped.  There was a trigger point like place that he took out.  I now roll over at night and do nt wake up and play golf...so all is right with my world. Dee if you have detailed questions just pm me.

    All the new folks hang in there and fight like hell

  • cancersucks
    cancersucks Member Posts: 156
    edited October 2010

    everytime my cell rang  thought there might be a slight chance it was the hospital saying "Sorry, our bad, you don't have cancer." Fat chance! Fight Like Hell Indeed!

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Hey everybody,

    I just wanted to pop in to say hello. Busy day at work today but it looks like it is really nice outside. I wish spring would get sprung already. Hope everyone is doing well! :)

  • chainsawz
    chainsawz Member Posts: 3,473
    edited March 2010

    Hi dee!!  All my bulbs are coming up and blooming.....I love spring, too!!   

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Woke up to snow and ice yesterday! Ohio weather is insane. We had 70 degrees just 4 days ago and now we are back to winter. The roads were the worst I have seen all winter. Some roads were even closed down. Today it's nice and sunny, supposed to reach up to 60 :) I did have some bulbs coming up too Chainsawz, I will have to check to see if the ice got 'em. Annie and April, haven't heard from you, are you doing okay? Wishing you all a wonderful day! Bring on the spring!

  • Lovegolf
    Lovegolf Member Posts: 513
    edited March 2010

    yeah bulbs here up and blooming.  It is to be 80 end of week....On 4/17 the Komen walk is here.  I am walking and carrying the names of everyone on this board with me.  that day is one year since lumpectomy.  Everyone here was so supportive this past year. Thanks is not enough.

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Thats awesome LG!! It is awfully quiet around here lately.

    I guess everyone is out enjoying the beautiful weather.

    I am waiting for the weekend  to BBQ! Tongue out 

  • dee1961
    dee1961 Member Posts: 1,672
    edited March 2010

    Thats awesome LG!! It is awfully quiet around here lately.

    I guess everyone is out enjoying the beautiful weather.

    I can't wait until the weekend, gonna have a BBQ! Tongue out 

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