Chemo and Breast Cancer

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Leia
Leia Member Posts: 265
edited June 2014 in Alternative Medicine

Today an article from naturalnews.com:

"New evidience chemotherapy for breast cancer causes brain damage." 

http://www.naturalnews.com/034157_chemotherapy_brain_damage.html

This has always been my wonderment; the extent that women will go, with breast cancer treatments, however small, to totally eradicate the breast cancer. I remember my doctors telling me that I should do everything possible to prevent my 2cm IDC from coming back.

But, it didn't make sense to me five years ago, and makes almost no sense, today. We can have all of these "treatments" yet at what cost? To ourselves. This article I've quoted says that chemo reduces brain function. 

Well, in any event, chemo makes no sense to me, at all. Any treatment, that kills your immune system as chemo does, is not anything I will ever do. And if I "eat right" to my death, that is what I will do. Because "having chemo" to my death is not an option.

Have you seen that movie, "My Sister's Keeper?" It made me sick what that mother did to that girl. Granted, a fiction movie/book, but unfortunately this happens all of the time.

For my part, I am trying to eat well, and live.  And I will not have chemotherapy and die. Some might say, chemo saved them, but at what cost, in the future. The fact is, as this article states, we don't know. 

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Comments

  • digger
    digger Member Posts: 590
    edited November 2011

    Hi Leia,

    So glad to see you posting here again of your fine diet and the terrible hazards of chemo!  How's the smoking coming along?  Still puffing away?  

    Here's an article (just one of many in the scientific literature) that shows that smoking significantly lowers a user's brain functioning:

    http://www.sciencedaily.com/releases/2006/11/061128140728.htm 

    So, instead of spending your time warning women of the supposed hazards of chemo, why don't you work on your own smoking first? 

  • bella76
    bella76 Member Posts: 113
    edited November 2011

    What if you had a huge 10-11cm tumor that was inoperable like me, well thanks to chemo it has now shrunk in half and I'm only halfway though.

    With a very aggressive fast growing tumor that grew from 2cm to 10-11cm in 12 weeks and had spread to lymph nodes already, what other choice did I have?

    Surely me changing my diet wasn't going to stop that sucker growing, Which mind you I did anyway.

    I read that Natural News website and am all for alternative treatments. Maybe If I had a small non aggressive cancer I would have chosen no chemo.

  • Ang7
    Ang7 Member Posts: 1,261
    edited November 2011

    Leia~

    I do not understand why you must continuously post these comments against chemo?

    I realize this is the Alternative thread but I do read it for healthy eating tips etc. and the chemo bashing is getting annoying. 

    I thought the Alternative area was to discuss Alternative Medicine?

  • thenewme
    thenewme Member Posts: 1,611
    edited November 2011

    There's apparently a

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Digger, you crack me up.  

    After all that has been posted about the king of quacks Mike Adams and naturalnews.com, it is a mystery to me why women with breast cancer are still getting medical advice from  that site. This guy is a buffoon trying to make money off of scared sick people.  There is a reason that he lives in south america and not the states.  Think about it.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

    As a person who had chemo, my brain function is just fine and probably better than yours - and no I don't eat perfectly all the time - I basically eat whatever I want just no junk food or takeaway. I have a very high IQ and still function in my job as a software engineer with no problems.

    I followed a link to Natural News from Evebarry's thread and my goodness - talk about brain washing!!! It was SO weird - like a cult news letter or something.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    I just read the article. What I found interesting was that the study showed, "the damage caused by chemotherapy was more likely to be increased in older women and those with less education, too." So perhaps your high IQ may be playing a big role Susie? (It's just a thought.)

    According to the American Cancer Society, medicine is trying to find ways to not only treat chemo brain, but also prevent it. Apparently, there are studies under way to establish which patients are most likely to be chemo brain sufferers. To do this, people's mental abilities are measured before treatment, then after treatment, and then compared. Those results should be interesting. 

  • Wabbit
    Wabbit Member Posts: 1,592
    edited November 2011

    Leia ... I really do not understand your compulsion to knock chemo repeatedly.  You had a Grade 1 tumor and no positive nodes.  In your early posts you admitted that chemo was not even offered to you.  

    Your situation ... even if the doctors had tried to give you chemo ... is much different than someone who has a higher grade, more aggressive, tumor and maybe positive nodes.  

    The problem is when you start trying to turn it into some big scary monster that is worse than cancer.  It's not ... it is strong medicine used to kill cancer cells ... and attempt to save lives.   Chemo is not the enemy ... cancer is. 

    I believed all that before my cancer too.  I was one of those "I'll never do that no matter what".  Then reality set in and my choice was surgery that might have to cut into my chest wall muscle or take the chemo and shrink the tumor back.  A little good information from this board from people who had actually done chemo and off I went ... scared to death by the way ... to my first chemo treatment.  And you know what?  It was not fun but neither was it that monster it has been portrayed as.   I got through it ... and I'm still alive and well ... with a fully functional immune system ... and I like to think a fully functional brain 5 years later.

    Those who don't want to do chemo are not forced to take it.   We all choose our own risks.  I do object to these campaigns to 'demonize' chemo.  They reek of trying to influence women to ignore their doctor's advice.  

  • Kaara
    Kaara Member Posts: 3,647
    edited November 2011

    white rabbit:  Good post....I agree....the choice to do chemo is ours alone.  While it's nice to have our doctor's good advice, we must also keep in mind that he is governed by a set a guidelines put in place by the AMA.  We need to be our own advoctes and research our type of bc, along with our age, and other statistics, and then make an informed choice.  We should also make sure we ask for the oncotype testing so we can find out if chemo will even benefit our cancer.

    I'm just beginning this journey, having just been dx with IDC grade 1 stage 1.  I will definitely be doing surgery, and based on that outcome, will consider all of my options for treatment.  I will give serious consideration to anything my doctor advises me, but the final choices will be mine. 

  • peggy_j
    peggy_j Member Posts: 1,700
    edited November 2011

    As an FYI, the LA Times pubbed an article about the same study. The tone of the LA Times articles feels very different to me than the one referenced above.

    Study of breast cancer patients suggests 'chemo brain' is real

    http://www.naturalnews.com/034157_chemotherapy_brain_damage.html

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Here's another article on the same study from Huff post

    Brain Changes Seen In Breast-Cancer Survivors

    Huff Post

    Many cancer survivors report feeling they've lost some mental sharpness following treatment. This common phenomenon has come to be known as "chemo brain" or "chemo fog," which is somewhat misleading because it also occurs in people who have not undergone chemotherapy.

    Although recent studies have shown that up to 75 percent of cancer survivors do indeed experience altered mental function -- and that these changes can last for five years or longer -- doctors often downplay complaints about chemo fog, says Shelli R. Kesler, PhD, of the Stanford Cancer Center, in Palo Alto, Calif.

    "[Patients] often are told it's not real, they're imagining it, it's just due to stress," she says.


    In a new study published this week in the Archives of Neurology, Kesler and her colleagues provide more evidence that the phenomenon is real. Using brain scans, the researchers found that breast-cancer survivors show changes in key aspects of mental function that can translate to real-world difficulties. And these changes were particularly marked in women who had undergone chemotherapy....It's not clear that chemotherapy is directly to blame, however. More than half of the patients in both breast-cancer groups took tamoxifen, an estrogen-blocking drug that also has been linked to cognitive impairment, and most of the women in both groups also underwent radiation therapy. Either treatment could affect the brain, Kesler says. Even surgery could be a contributing factor, because general anesthesia can have lasting effects on mental function...

    ETA: You'll have to click on  the title to read the entire article.

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited November 2011

    Just a few thoughts about chemotherapy and the immune system.

    Chemotherapy does not "destroy the immune system" -- it kills certain fast-growing cells, leaving the recipient temporarily somewhat immunocompromised, but this is a transient condition.  The immune system bounces back.

    Some chemotherapy drugs -- like cyclophosphamide -- actually enhance certain aspects of immune system activity, which appears to contribute to the effectiveness of cyclophosphamide against cancer.  See:

    http://www.ncbi.nlm.nih.gov/pubmed/21444678
    http://www.ncbi.nlm.nih.gov/pubmed/18540827
    http://www.ncbi.nlm.nih.gov/pubmed/17255288

    Finally, the "immune system" is not always a friend!  This doesn't relate to cancer, but to autoimmune diseases, in which treatment with immune-suppressants (like prednisone or other glucocorticoids) or even chemotherapy (cylcophosphamide or methotrexate) can be life-saving to stop the immune system from attacking healthy, essential cells of the body.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    My own oncologist told me that the significant cognitive decline I am experiencing on a day to day basis is due to chemo and for that reason has referred me to a neurologist. I cannot function without the med he has prescribed.

    However, I really have to question the conclusions of this study, as I would like to think that I am neither "old" nor have "a lower educational level". 

    Looking forward to a more serious study on the subject.

    ETA: The chemo cut my blood cell counts by half.  I had to inject Neupogen for 10 days after infusions and nearly 18 months post chemo my WBC is still not back to normal.  I therefore have to conclude either that chemo permanently "damaged my immune system" to a point or that it is still causing decreased bone marrow function.  Neither conclusion is very appealing.

    "Myelosuppression - Causing the blood marrow to slow production of blood cells. This results in fewer red blood cells, white blood cells, or platelets available to perform their normal functions in the body"

    http://www.neulasta.com/patient/glossary/chemotherapy-glossary.html

    P.S. Perhaps, the company meant to say "bone" marrow, as opposed to "blood" marrow.....

  • thats-life-
    thats-life- Member Posts: 1,075
    edited November 2011

    i would like to understand why people feel a personal need to defend a toxic drug/therapy...as if it is a reflection on themselves, an insult to them personally, to question its long term effects, and short term efficacy Why is it that chemotherapy cant be discussed as the crappy option for BC that may not be necessary in a number of people, without a drive to defend it, and to insult those who may have read enough to see the pattern of failure...including scientists, who are facing that they may have got it very wrong, who are now beginning to understand the nature of cancer....what is the anger about?...are people angry to think they may have harmed themselves? or that they may find that chemo didnt help them?...why is chemo so valiantly defended by women...please read 'THE EMPORER OF ALL MALADIES' written by an oncologist Siddhartha Mukheriee...for a detailed understanding of the limited benefits and potential danger of chemotherapy with Breast Cancer.

  • Ang7
    Ang7 Member Posts: 1,261
    edited November 2011

    thats-life-

    What bothers me are those that put down chemotherapy when they have never had it.

    It makes sense that I would defend chemo as I believe without it I would not be enjoying my life right now...

  • Wabbit
    Wabbit Member Posts: 1,592
    edited November 2011

    I simply think that spreading hysterical fears about chemotherapy is dangerous to those who may need it. 

    When the statements about the horribleness of it all is coming from people who have never even done it themselves ... those of us who have done it and found it to be tolerable tend to want to speak up and give the other side of the story. 

    I watched my tumor shrink while I was having chemo.  So I have a little problem with 'learning' from internet armchair quarterbacks that it doesn't work and killed my immune system, my brain function, etc. etc. etc.  Obviously I am a blithering idiot who doesn't realize she is dead according to some of these so-called facts.

    My bottom line is ... don't do it if you don't want to.  But don't use exaggerated claims to talk anybody else out of it either. 

  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2011

     

    Here's another, less twisted account of Stanford's chemo brain study:

    http://www.medscape.com/viewarticle/753663?src=nl_topic?src=stfb 

    There was a time when I respected Mike Adams for saying what others wouldn't about Big Pharma and our pharmaceutical crazy society.  But no more due to self-serving, sensationalized headlines and extremely unbalanced analysis, like the above.   JMO...   Deanna

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    I wish that those who push chemo would stop coming into this forum to scold and demean those who choose not to have it. We all have the right to decide what treatments to have and what we want to subject our bodies to in our quest to heal. I thought that this forum was created as a safe place to discuss Alternative treatments that do not include chemotherapies. There are other forums for those ladies that are interested in those treatments, including one for those who combine the different types.



    I do resent those who come here only to criticize and try to intimidate others for their treatment choices. Ladies should not feel afraid that they will be deemed and mocked for their treatment decisions. I thought this forum was specifically created for those who wish to discuss non-conventional and alternative treatments, without constant criticisms from the conventional treatments women.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

    If that is what this forum is for - why do we keep reading posts that attack chemo - how about not even talking about it - that would work. It annoys me that most (not all) of the people that bag chemo are not HER2+ve and have no understanding of just how serious this type of bc is. People that refuse treatment that may help them have blinkers on.

  • Wabbit
    Wabbit Member Posts: 1,592
    edited November 2011

    It was indeed created as a place to discuss Alternative treatments.

    I did not - and will not - come here as long as the posts are about Alternatives.  The original post of this thread however was a rant full of misinformation about chemotherapy.  That crosses the line from discussing Alternatives into spreading misinformation about conventional treatment.  You should expect responses from those who have had chemotherapy if you do that.

    If I were on one of your other threads knocking daily coffee enemas you would have a valid point.  But I'm not.   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    So are you the topic police? Do you make it your mission to monitor what is discussed here? Why come here at all if you do not agree with the discussion or topics? Why not stay in the other forums and contribute your opinions to those to whom it might matter. Why come here to the ONE forum created for those ladies that may not necessarily be interested in your conventional treatments. Stay out of this forum if the topics upset you so much. There are so many others here in which to share your vast wisdom.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011
  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited November 2011
  • Ang7
    Ang7 Member Posts: 1,261
    edited November 2011

    If this is "the ONE forum created for those ladies that may not be interested in conventional treatments" then why does Leia keep talking about chemo? 

    If it has nothing to do with Alternatives than she should just drop the subject.

    I agree with WhiteRabbit-I would not be posting here except that the topic is a slam on chemo.

  • Wabbit
    Wabbit Member Posts: 1,592
    edited November 2011

    It says 'Chemo and Breast Cancer' ... it's on Active Topics.  Just an innocent clicky and here I am. 

    Do you by chance have a list I could refer to of when and where I am allowed to post?  Or should I check with you each time and find out if you are willing to grant me the right to contribute to a subject I might have some experience with? 

    One more time ... I do not care what treatment Leia (just for example since this is her thread) has or does not have.  I am not going to argue with her or anybody else about what treatment they choose for themselves.

    My only concern is with misinformation that - left unchallenged - might have an adverse effect on somebody else reading the thread.   I think we would all agree that having heard both sides of the issue anybody and everybody is free to make their own choices. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Some people only come here to cause trouble. You are one of them.

  • Wabbit
    Wabbit Member Posts: 1,592
    edited November 2011

    That's probably why I've never participated in the board before and only have 4 posts. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    That's 4 too many.

  • Ang7
    Ang7 Member Posts: 1,261
    edited November 2011
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

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