I say yes, you say no, OR People are Strange

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Comments

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    Blue - glad you're back with your real name. What's PD surgery?

    Rosemary - that's how I do my roast veg when we have chicken - toss them in a bag with oil, S&P and herbs. When we have roast lamb, I cook them in the pan with the meat though.

    Time to get ready for work again - I'm in a workshop all day - eeek!!!

    Sue

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited June 2011

    and welcome susieq! :) At least for me, as I have been on and off the boards lately.

    PD = Parkinson's Disease

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    Thanks for the welcome Athena - you may previously have known me as SuePen - I changed my name as I never liked it.

    Oops - now I really have to go and have breakfast.

    Sue

  • PattyS
    PattyS Member Posts: 534
    edited June 2011
    Athena.....funny you mentioned the fireplace. It is so cold here today I tried to turn on the gas fireplace earlier to warm things up and realized my hubby had turned it off for the summer. Frown Thanks for the welcome. You all are a very welcoming group.
  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2011

    susieq, Nice to meet you. I like you're new name, but ndidn't know you by the old one either.

    I like the sound of sitting down by the fireside. I so do love fires. I can just mesmerise myself into oblivion or a while.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited June 2011

    A big welcome to all of our new friends!  We do love our dinner talk.  :-)

    Britchick -  I'm not sure what can be done about the dangerous posts you reference.  I would hope that a scared newbie would discuss alternative treatments with his or her oncologist before making a final decision.  Perhaps bringing such comments to the attention of the Moderators would be helpful, as past attempts at self-policing and/or offering contradictory advice seems to have gotten us nowhere.  It's a dilemma, for sure.

    As far as creating a separate thread to address dangerous bc myths...well, I'm sorry to say I think it would turn into a flame-fest.  We have a vocal group of alternative ladies here and I doubt they'd appreciate their beliefs filed under "myths."  Unless you had something different in mind?

    E

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Britchick

    I feel the same way you do.  Just can't think what can be done - EXCEPT : For BC.org to put some kind of a "warning" on those posts- something like :"This is an unproven theory, one person's opinion."  Something like that.   The last one about "Don't Do It" should have been spotted by BC.org muchearlier than it was.  And the "survivor" one - where somedear very young woman was IIIa and Her2Nu+made me so angry, and tearful.  I finally couldn't go to that thread. 

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    wow, Britchick, someone who doesn't post on this thread, "noticed" your post in 27 minutes Laughing

    Blue, you're the best!  BEST!!! tee, hee..

    Speaking of food, a lot of us "regulars" on the Aromatase Inhibitors SE thread, started by lowrider, are now gluten free, and it has REALLLLY helped eliminate the stiffness, joint pains many of us had. Just learned about Pasta products made of Quinoa/corn - supposed to be delicious.  Here's the website, if anyone wants to try Ancient Quinoa Harvest noodles - http://www.quinoa.net/

    Just in case anyone is considering a gluten fre diet, please don't try brown rice pasta. Not acceptable, even if slathered in the world's best pasta sauce.

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited June 2011

    Looking for the "Like" button, Blue!

    As it is about 100 degrees with the heat ratio here, I would gladly take some of that cool Colorado weather.

    We will be grilling chicken and veggies tonight.  I love my fresh herbs in the garden.  I cut them up and put them in the butter or olive oil.  There is a recipe for grilled corn in the Williams Sonoma cookbook that is divine!

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited June 2011

    Farkling good there, Blue.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited June 2011

    hola all! 

    I also was struck with wonder that Britchick's post was noticed by someone who doesn't read the thread.  But then I remembered what I figured out last night: TheTruth.

    TheTruth is that no one comes to any thread on this forum voluntarily, nosirreebob.  Nope, in fact TheTruth is that once you sign up (or for some singularly unfortunate people even think of signing up) you are assigned a "Watcher" (think buffy the Vampire Slayer) whose job it is to storm your home or office or coffee shop and force you--under penalty of violence to your person--to read threads you might otherwise find offensive and push the report button on your sisters-in-stupid-fucking-cancer hood.  Threads like this one, threads like Yan's.  Anyone who is of the opposite philosophical bent as yourself.  (I'm not sure but I think they are matching us with our evil twins by blood type. . . )

    Come on PEOPLE, admit it!  You know this is TheTruth.

    But there is HOPE!!!!!!  The scourge of mandatory posting to threads of people you don't agree  or finding yourself hitting the "report" button causing unnecessary flooding by stress hormones with can be dealt with.  After considerable research I have determined there is a solution.  Simply take a nice roll of aluminum foil and fold one of those tin hats we all remember from childhood.  Be sure to squish it down tight over your head paying special attention to your ears (which we all know link directly to the brain . . . .)  This keeps your thoughts to yourself and prevents the Watchers from knowing you are on line or forcing you to follow and read and participate in threads you find personally offensive or forcing you to report people when you---being deep inside a nice person would never do were you not under extreme duress due to the Watcher standing behind your shoulder.

    Its even better than the ignore feature.  Trust me, I have been using this technique for months.  I am no longer forced at point of sword, gun or wet noodle to read threads I find incompatible with my Buddhist beliefs.  I no longer find myself posting argumentative messages (well mostly) just so I can disagree with the OP of a thread or tell someone they are stupid. 

    I am at peace.

    Try it today!!!! Don't delay!!!!!

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited June 2011

    Pork tenderloin and veggies on the barbie tonight.  Except for the broccoli, which always gets steamed (much as I do when trigger fingers abound). 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    I haven't seen anything useful on the new Alternative/Holistic thread yet - just a bunch of pictures - how does that help treat bc?

    I made it in to work - eating my apple/cinnamon muffin with a hot chocolate - my usual arriving at work snack. It was 6 degrees celcius this morning 42 in farenheit I think.

    Over here we have these things called 'lovely legs' ie they are chicken legs which have been skinned - very healthy. Tonight we are having organic lovely legs marinated in a honey/soy/garlic marinade (I already put them in to soak all day) and then baked - served with salad and little potatoes in their jackets - add Paul Newmans Ranch dressing and YUMM.

    Sue

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited June 2011

    to "the community" -- please note that this thread was started, among other things, as a place to express differences of opinion among people who knew they had differences of opinion.  As the OP says:

    "Let's try this again. Please don't be a child and go crying to the moderators.  Get a grip.  Life is made up of differences.  Learn from them and open your minds. NO TATTLING............OK???"

    The use of terms like "lobotomy" was agreed upon in good humor by all participants at the outset.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited June 2011

    On other topics, for Father's Day we went all out on an eatting festival:

    French toast stuffed with goat cheese and topped with strawberries macerated in cognac and scrambled eggs and lox for breakfast.

    Dinner was multi-course:

    amuse bouche of crackers with chicken liver pate

    appetiser of leek and black forest ham tart

    roast duck with roasted asparagus and beans cooked with thyme

    salad with vinegrette

    cheese---amazing cheese. . . .

    lemon bars made by my MIL.

    We had kir and pastis for appertifs and two types of wine. . . .

     MMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMM.

    As for all the other stuff---human beings want total control in their lives.  They just do. Always have wanted control and always will.   And they don't have it.   Death and getting sick are things that happen (along with getting old) to all of us.  No different today than it was in the time of the Buddha.  People gravitate towards crazy diets, alternatives, etc because they think they will be able to have control over their lives. 

    Life is short.  Death is inevitable.  Enjoy life while you are here. . . . . 

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2011

    3monstamoma, You are right life is short so we should at least try to enjoy it. For me that is in watching the sunrise and sunset, and spending time with my family. I feel so grateful to have a great family who has been there with me through it all.

    One thing more I really have to add have the support of everyone here.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    Thanks for the welcome girls - I was quite outspoken on the Alternative Survivor thread and also got very upset about wornoutmom. As someone who had HER2+ve bc I know how important chemo/herceptin is and mine was just a tiny wee thing - still I did the treatment - no one in their right mind would not do it. I also get upset when people who have not had chemo run it down. To me, it's fear talking. You don't know what it will be like until you do it - none of us wants to have to do it, but we want to be here for a long time and make the right choice for ourselves and our families.

    Sue

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited June 2011

    Patzee wrote:

    "There is room for everyone on these boards to speak out and have their opinions noted."

    Unless your name is BlueDahlia, apparently.

    Dinner was fish & chips at an old Irish pub in Doolin, followed by the best peanut butter fudge I've had in ages.  

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    Sock puppets again

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    I am glad that when I first came to this site that I didn't read about someone suggesting not doing chemo and treating my cancer with alternative treatments only. I think we all realize chemo is very hard on the body but sometimes you have to hit it with the big guns. All the ladies I spoke with were either going through their treatments or had completed them. They were very positive and told me I can get through surgery, chemo and rads if that is to be my course of treatment. My mother went through chemo  treatments twelve years ago for BC with positive nodes and as of today has not had a recurrence. She has not regretted her decision. The first time I called and told her about my diagnose she told me to  listen to my doctor and follow all treatments he offers.  I trust my oncologist completely, After getting a low onco score back he and I together decided that it would be safe to forgo the chemo and do the tamoxifen for five years. Only time will tell if I made the right choice. Women need to make informed decisions with their doctors and not be told they can cure cancer by positive thinking, eating and changing bad habits.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited June 2011

    Agreed, Patty! 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2011

    Patty - apparently talking to your cancer can make it go away - WOW!!!

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Susie........I did not realize that!!  Glad that wasn't suggested to me. lol

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Britchick.....I don't understand it either????

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited June 2011

    I evaluate the situation based on personal knowledge.  Over time, I have known 4 women with breast cancer.  Two of those refused varying types of conventional treatment.  Of the two, one wouldn't do surgery but tried chemo alone.  The other did surgery but refused chemo and I believe radiation.  Months later after putting their families through hell, they both died.  In one case the cancer had progressed to brain mets and she ended up dying in a nursing facility.  In the other case, a mother was forced to bury her oldest daughter.

    Of the other two women, both did everything their doctors told them.  One died of old age.  The other is still alive and kicking.  When I got my diagnosis, my head and my heart went to the memory of these women.

    Cancer is not something to be screwed with.  It plays for keeps.  But like I said, people don't like to accept that they really don't have a lot of control in their lives.  And I do get that -- when I was initially diagnoised I tried to figure everything out by myself, tried to figure out where I went wrong.  A dear friend flatly told me to stop--that doctors spend years and years learning this stuff and I simply can't learn as much as my doctor.  This doesn't mean I walk in ignorent but it does mean that I take the advice of experts.

    The fact is, I didn't do anything "wrong."---I have eatten organic for YEARS, eatten locally grown stuff, not overindulged, not overweight, not out of shape, don't consume chemicals in my food, don't smoke etc etc etc.  I still got stupidbreastcancer.  Sometimes, sh!t happens.

    If you think the comments on these boards about alternatives make you cross, don't ever set foot in one of the cancer cure conventions. . .. . that will take you to a whole 'nother level of angry.....

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Summertyme.....it's like coyotes that wait for their prey and then pounce as soon as the opportunity arrives. Just my observation of the situation.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited June 2011

    OMG .. Blue got deleted again?!?  Whatever for .. I didn't have a chance to read her note.  Something about lobotomy maybe.  Any long time reader of this thread knows that 'lobotomy' is just a word we use. 

    What a sad state of affairs.

    Bren

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited June 2011

    Agreed.  And soon.  Please.

  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    3monstmama.....I for one probably have done everything wrong to my body so I initially blamed all my bad habits for the cancer. But then I remembered my mother and her mother who never smoked or drank, got plenty of exercise, were never over weight and still got BC. It will be wonderful if one day we can pinpoint exactly what causes cancer and fix it. And I agree, "s**t happens" and it is, what it is. It's how we handle it that is so important right now.

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