My Husband, My Life, My Love, My Family, My Cancer

Karenfizedbo15

Bearing in mind everyone’s not so great stuff... including my own.... this changing the car thing and the expense involved has really been on my mind. I told my MO at our last appt that 3 years ago when diagnosed as MBC I wasn’t sure about buying a new winter coat. I bought a new winter coat.

Now I need a new car, so how do I square thousands of pounds output to do that when I might only live for a short time? My heart says just do it and the head says don’t be so bloody stupid!

Micmel

Chiris~good to hear you’ve calmed a little. Mother’s little helpers. Those pills are. I have my pills I go too. I’m sending you good vibes.

Emac~ thank you for the congrats. I’m quite pleased myself. I’ll be starting month 50 soon on ibrance and I hit five years in January. I’m hoping to get five more.

mara51506

Karen, if you do not have a working vehicle or your current vehicle may need a lot of repairs, you should get yourself a vehicle for sure.

jensgotthis

Buy the car Karen and enjoy the heck out of it.

booboo1

Karen, buy something FUN! I see you in something red with a convertible top. You would be one hot Mama in something like that!

Mae, love your new wheels. Really like that color blue.

Today is my 35th wedding anniversary, and little by little, DH and I are finding our way back to each other. They say you have to go through the storm to get to the other side, but man, really? It’s been a very crazy roller coaster year, but he and I are trying to move on together. He found a sponsor (AA) and has been very calm and wonderful to me. Maybe he realizes all that he would have lost...not sure. But it’s so nice right now to enjoy some peace.

Hope you are all hanging in there. I read today that hospitals and clinics are overwhelmed with patients with mental health issues which they are struggling to treat. The fallout from COVID is going to be epic.

Micmel

Relationships are so difficult, you have to go with your heart. I just wish you happiness. Hopefully his awakening continues along with his meetings. Wrapping you in hugs. Sweet friend.

mara51506

Hoping the best for you and your husband Laurie as you have both been through so much from what you have said.

I have never had someone I know suffer an addiction besides myself, my father quit drinking before I was born. I was addicted to tobacco so I can understand an addicts mind when it comes to quitting. In my case, a brochial infection while on my first chemo caused me to be unable to breathe which made me panic and flush my cigarettes and I never went back. It is a beautiful day here. I woke up late thanks to the spring forward. I had to feed cats, slap on hair and just bust out about 10 mins after waking. I find it easier to be motivated once I get the first walk out of the way. Always aiming for three to four walks in a day. Just around my neighbourhood. Live in a nice area with many trees, a lovely little village area about 10 mins away with nice shops as well. This walking I view as my mental health treatment as I am usually more depressive otherwise.

Micmel

Sounds like a nice neighborhood. No wonder you walk constantly. That’s awesome. I’m jealous. Fatigue rules my days. But we’ll see new dose coming. Hoping hoping it makes a difference!

booboo1

Thanks Mel and Mara.

Mel, sometimes I swear I can feel your hugs across the miles. This blog has been a lifeline for me several times since my cancer dx. I will be forever grateful to you, woman.

And you, Mara, motivate all of us, whether you mean to or not. I think of you as my exercise buddy! Keep up the good vibes!

My love to you both.

GoldensRBest

booboo - Happy Anniversary! Congrats on 35 years. It doesn’t get to that number without work. God willing, we will celebrate 43 years in August. I pray your husband stays committed toyour marriage by staying committed to AA.

mara51506

Thank you Laurie, knowing that I may help in a small way to keep people going helps get me out the door. Done two half hour walks, looking for at least one more for the 10000 step minimum but I may go for four walks today. We will see how it all works out between walking and surveys and housework.

booboo1

Goldens,

Thanks so much for your support and prayers. One thing I realized recently is how impulsive I can be on 40 mgs. of Prednisone. My pulmonologist is starting to ween me off the stuff, and I’m really glad. I moved WAY too fast on the “moving back to PA” idea. I would have ended up alone in a one-bedroom apartment with not much going on. My sisters, of course, have been wonderful, but they were all relieved, I think, when I told them I was putting the brakes on. After several more heart-to-hearts with DH, we both knew that wasn’t what I really wanted, and neither did he. So lesson learned—make no big life decisions while on Prednisone!

I hope you are doing ok. It hasn’t been an easy road for any of us, that’s for sure.

Rosie24

Booboo, you sound like you're at a good place withDH. I'm happy for you, and happy that he now has a sponsor and wants to help himself.

Mara, I admire all your walking too. I try to get out most days but it's nowhere near what you're doing. The fact that you realize it helps your mood is good motivation, and a bonus for the physical benefits you're getting.

Karen, I agree with the others who said to get the car.

(Cross-posted). I saw my MO today, and she's adding to my Ibrance break (started based on liver ablation, continued for vaccine doses). I'll have almost 9 weeks off when I restart on April 15. I said I was fine with it if she was, and she said she was, and she said it twice. I'm going to start having tumor markers done so she has another way to follow me other than just scans. She said ablation changes the images so much she can't tell what's what and has to rely on the reports from the Interventional Radiologist. I was kind of surprised she even looked at the images but maybe it's common for MOs? MRI coming in May, IR requested for 3 months post ablation.

Hello to everyone.

moth

Hi everyone, back from my weekend off

Saw my MO today & she's going on research sabbatical for 3 months April-June so I'll be seen by someone else. Eeek. Oh well, I'm sure it will be ok. She & I did go over my treatment plans & my "if --- then ----" discussions/flowcharts which weren't really new to me but it's good, we're all on the same page & the filling in MO will be aware of where I'm at. If all goes well - fingers crossed - I just stay on current treatment & she comes back to me in July. If I have progression during that time, I know what options we should be considering.

booboo - oh man, steroids! Yes definitely be careful with big & small life decisions on steroids. I know we warn people about this after general anesthesia and on psychiatric meds but we don't tell people this about steroids ... they can really change your perceptions & reduce impulse control and that's important to know. I'm so glad that you and your dh & finding a way through this. Whatever happens, you're doing big relationship and growing stuff - it's hard work! Pat yourself on the back!

I'm continuing my steroid weaning - one more week to go & then the steroid withdrawal wall will hit, I guess. So far I've only shopped, & even that, I did put in some restrictions on myself & made myself pause before hitting 'buy'. Oh & I've been eating everything....

I wish steroids had fewer SEs because honestly I feel so good on them. I'm genuinely happy. Too high a dose & I'm kind of manic but at lower dose I'm just cheery & doing stuff.

I'll go back & catch up on everyone's news. Hugs

booboo1

Rosie, thank you. I am hopeful that with lots of good counseling, we can get back to a place of peace and harmony in our house. Let’s face it. Neither of us is getting any younger, and I think the prospect of him being alone in FL didn’t sit well with him either. We have loads of fun together when we go and do stuff, and this past weekend reminded us both how precious life is.

Moth, it’s so true what you said about steroids making you feel so much better. I feel the exact same way. I can almost feel normal again....minus the decision-making of course . If it didn’t make us even more at risk, I’d like to stay on them. But between the up-up feeling (sometimes I’m almost shaky) and the urge to eat everything in sight, I know they are not a good option. Anyway, good to hear you are weaning off of them too.

Tanya, it looks like you and I can now think about having lunch together. I’ll send you a private msg. to pick a date. I am getting my first vaccine on Friday, and my second on April 9th, so anytime after that should work. I’m a little nervous about getting it, but not enough to not go. Fingers crossed that all goes well.

illimae

Karen, I vote for the new car too. I’ve been having a blast zooming around in mine. Enjoy it for as long as you can and if the time comes, your family can continue to use it or sell it.

Micmel

Good Morning ladies, hope everyone slept well. I did ok. Trouble falling asleep. Don’t know why. Odd. It’s breezy and chilly here today so not walking for today. Was going to try. Walk to the mailbox. Direct deposit stimulus checks are coming ladies. Wednesday for a lot of direct deposit people. That will help so many families during this covid crapola. I’ve never washed my hands so much! Available for any pocket duty!

Bliss58

booboo1, Congrats on the 35th Anniversary. I'm very happy for you that the relationship has turned a corner. Sometimes it just takes tough love and that was telling him you'll be leaving which DH obviously didn't want.

I also echo what you said about Mel and Mara - caring and inspiration.

Karen, get that car and enjoy it while you can. I felt the same about the new house we're building. I thought, what are we doing? But then decided, why not and enjoy it as long as I can. Maybe only 2 yrs, maybe 10, but this will be my FU to cancer and why not enjoy being out of the cold even if only for two years?

Now, back to packing! Hugs to all.

mara51506

Not walking today, taking the day off,walked two days in a row with the 10000 steps. I feel more like doing odd chores that pop in my head as the day goes on.

moth

We got notice that our power would be cut while they do some upgrade in the neighbourhood. Anytime between 0930 and 1630, for who knows how long. So far it's on but it's weird waiting for it to turn off at any moment.

I've already been up & about, gave dd a lift to work.

mara51506

I accidentally deleted the other post. I have done some deep cleaning behind my sofa where the row of shelves are. Moved heavy duty winter boots back there until next winter hopefully. Had to pull out a lot of furniture to accomplish and was horrified how much cat hair was trapped underneath. Good thing that I vacuum and dust most days because I hate to think how covered my place would be without that.

I am also taking the day off walking, just taking a casual day today. I will get my walking tomorrow as I get my Herceptin. Might get up early, do a half hour walk, have a good breakfast and head to the hospital.

candy-678

Hello all. Just reading along. Not much going on.

Micmel

Took a shower and a nap a d watched some television for a while. Not too much going on here either. Chilly and grey outside. I got my subscription box today. I’m happy with it!

mara51506

Glad to hear you got your box Mel. I enjoyed nothing myself, ordered a small supper and am just sitting on the couch.

dutchiris

I had my appt with the gyn onc yesterday. I will have have my ovaries removed and possible hysterectomy in approximately 3 weeks. I have to hold my Ibrance until sometime after that. If it's ovarian cancer I may need chemo. It's going to be a long 3 weeks.

mara51506

Thank you for the update dutchiris, I am sorry that you are having to wait to find out if you need chemo or have ovarian cancer. I will be in your pocket all the way offering my support to you.

Micmel

We will all be waiting alongside you. Holding your hand.giving positive vibes and thoughts! I’m sorry you have to wait for anything. Torture! Sending hugs

Micmel

Good Morning Mara~ hope you have a good day. It’s grey and rainy here again today. I’m sure a nap will be in order at some point for me. Can’t wait to start the new medicine. Doseage.

candy-678

dutchiris- Prayers for you. Gentle hug from here.

Tanya_Djamila

Dutchris waiting with you. Tany