My Husband, My Life, My Love, My Family, My Cancer

mara51506

Emac, glad to hear I have been helping you with my walking. I like doing shorter walks and letting the steps add up as well, I even walked on the spot for a few minutes at home before I was dressed. Trying to control my weight due to the bean love I have but I also like feeling stronger. Start short, maybe a few rounds of a 10 minute walk. Short enough to not tire you out but still supply energy. Half an hour at a time is ideal though I did have an hour long walk with only a short break to pick up an order at the restaurant.

Mae, love those turtles, that is great and sounds like perfect weather. We are warming up and going to be sunny the next few days as well. Your scenery is prettier I think. I am waiting for the trees here to get their leaves. It is so pretty and I feel like we almost have the most mature trees in this area.

I am going shopping tonight so although I don'tneed more steps, will wind up with more since DB offered to take me. I was sort of hoping he would ask.I also had a nice nap after all that walking and watch The Falcon and the Winter Soldier on Disney+ I love the Marvel movies. Good so far.

BevJen

Booboo,

Good luck with the vaccine tomorrow. I had Pfizer and with the first shot, I had absolutely no issues -- not even a sore arm. The second one caused a bit more, even a low grade fever for about 6 hours -- up to 100.3. I just felt kinda tired that day, did nothing, and by the next day I was normal. You will do fine.

mara51506

Booboo, good luck, last time I had a flu shot, I waved my arm around a few times and that avoided a sore arm like I used to get. Glad you are getting your vaccine. It should make you feel safer during the pandemic.

Not sure which one I will wind up as there will be 4 possibilities here but won't have to worry as we are still projecting September for everyone who wants the shot to have had one.

Karenfizedbo15

Congrats on baby Jack BevJen...post us some pics when you can - we all love new babies!

Mae loving your outdoor & local wildlife pics.
I did some ' forest bathing ' with a friend today. Lovely warm ( for us) sunshine...it's a relaxation thing and we both enjoyed it. Plus the time to blether with a like minded person.

Started cycle 3 Xeloda today after a proper chat face to face with my Onc. Dose and timeframe reduced, Zometa delayed until we see how that pans out. No way am I suffering the last 3 weeks of SEs again if at all possible!

Micmel

Hello Ladies ~ getting settled in to hope insomnia doesn’t get me. I had a good nap today and sometimes that happens. I think we are a bunch of strong women. I have to say when I sit. Back and read it. Astonishes me. I’m wondering how kitty is ? She hasn’t checked in and I’m certain she was hospitalized. So I’m concerned. I worry about our little living room family. Good to see Tanya check in. Gotta see my peeps. BooBoo. Hope things are continued smoothly for you. You dreserve the best.
Lynne~ always a genuine pleasure to see you here. I adore you as well. You’re for sure an OG. Don’t have too many of us left anymore. Mae is also one of them. I hope you’re alll resting completely comphy. I know I am. I feel lucky to have a warm bed and unhide blankets (which I’m throughly addicted too) I have five of them. They are the softest thing ever.

illimae

Nighty night Micmel. My bedtime is 10pm, so I’m done posting tonight.

A good sleep to all

50sgirl

Candy, Any updates

candy-678

Morning 50sgirl. Updates? If you mean on the nausea with contrast thing, then No. They just called me the one time to confirm appt and told me to fast to prevent nausea. No idea why they are seeing an increase in nausea. Hoping will not be the case with me. Monday scan day is looming. I am trying not to think about it.

I had a leak with my kitchen faucet so I am going to the store to buy a new one and I am on the list for my plumber--- could be up to a month wait. Can use the bathroom sink for dishes I guess.

50sgirl

Up to amonth wait for a plumber? Wow. There are lots of faucets to choose from. When I shop for things like that I find something I like, then I look at the price. That usually makes me change my mind because I like expensive things but refuse to buy them.
How long do you have to fast? I swear that knowing that I can’t eat makes me want food. I know it’s all in my head, of course.

candy-678

50sgirl- Yeah a month wait. Crazy. Also told would be $180 minimum for them to come in-- 2 plumbers at $90/hr 1 hour minimum. Stupid. But what can you do. I asked if men's group in the church could do it and they are "too busy". ????? It is what it is. Yeah, I tend to have expensive taste too, but will buy the less expensive faucet. Esp with the cost of the plumber.

They told me to fast 2 hours. I have a 2 hour drive to the cancer center, so that will work. I plan on eating a bowl of cereal early and take my morning meds, but nothing else. Scans at 10am.

booboo1

I’ll be there with ya, Candy. As you are driving there, think of me in the seat next to you. You can be Thelma! Hey, gotta find our fun when we can. Seriously, though, I’ll be thinking of you.

booboo1

Hey Lynne. Hope you are doing well. I was wondering how you are doing on Verzenio? I think that may be my next chemo. I’ve pretty much exhausted all of the others, so not sure if that one is tolerable?

50sgirl

Laurie, I would love to tell you that Verzenio has been a breeze, but that would be a lie. I have had the bigD every day for six weeks. At my MO’s direction, I tried Imodium, Imodium and Miralax, Lomotil (an Rx medication, Colestipol (Rx medication) then a double dose of Colestipol. Nothing has worked. I have an appointment with MO on Tuesday, and he will decrease the dosage of Verzenio. I also have no energy and very little appetite. The good news for you is that my experience seems to be the exception. Most people have been able to control things with Imodium or Imodium and Miralax. My MO started me at a high dose of Verzenio because I am taking it as a monotherapy. It was worth a try, but it is time to cut the dose. I don’t mean to scare you. I really am the exception. After Verzenio, I only have a couple of chemos left. I got a second opinion from a doctor at Dana Farber, and she agrees with everything that has been done and is planned. The only discouraging thing she said is that the chemos that are left will probably only work for 6 months. I guess I will have to prove her wrong! I feel too good to have things end that quickly. I think of you often and include you and your dh in my prayers.

Hugs and prayers from, Lynne

Kittykat9876

Hi everyone, I'm still here Mel, I've just felt pretty blah lately, I've been reading along and cheering, commiserating with everything that's been happening, but I've had no news to write about. I had a neurasthenia shot after last chemo which thankfully kept me out of the hospital, next chemo is Wednesday morning, in your pocket for scans on Monday Candy, hopefully you'll not get nausea from the contrast.

I'm glad things are going better for you and dh booboo, some things are definitely worth going the extra mile for and I genuinely hope that you can revive your lifelong partnership.

Congrats on the new grand baby Bevjen, I second the pics please. Love the new wheels Mae, and those wildlife pics are amazing. We've had a bit of a heatwave here, so I've not been venturing out much except for necessities and doc appointments.

Waving hi to everyone, thanks for thinking of me Mel, it means a lot, I hope the dose reduction helps with your fatigue, its the worst feeling.

Well, it's 2.30 am I really should try and sleep. Night all.

Anonymous

Lynne - you proved everyone wrong with Adriamycin over the last year, you could absolutely do it again I hope you get that D under control soon and can get back to planting your garden!

50sgirl

Sondra, thank you for your supportive words. They brought tears to my eyes. It is amazing what a big effect a few kind words can have.

Hugs and prayers from, Lynne

booboo1

I agree with Sondra. I’ve been so impressed with your determination to fight this disease, Lynne. You give me hope, and I sincerely thank you for your courage and perseverance. I am fighting right along side you and all of the others here. May God bless you in a mighty way!

mara51506

Lynne, I have mostly read you but have followed along with your story and I could only wish to be as strong as you. I know we all have to go through our own situations as we have no choice, sometimes the strength that people like you show, give me strength to face whatever uncertain future I may have. I thank you.

I took a rest day from exericse yesterday which was a mistake, lazy for myself and depressive when I had internet trouble. Woke up, made bed, sorted towels before I even had my tea and got out the door right away. I am in a good position to meet at least my minimum walking goal, it is sunny today as well. Taking advantage before I must walk in the rain.

Still in pockets for any scans coming up. I have a chest CT coming up due to concern about some glassy looking stuff. That is in April.

Micmel

Very nice outside here today as well. We ran a few errands. But it's definitely worth getting out today to breathe that fresh air.

Checking in for scans this week and any pocket duty needed. I'm available!

So far I can't tell much of a difference from 125 to 100. But then again it is only three days. I was on the other doseage for 4.5 years. I hope hope hope the fatigue goes away. I need for it to be the key ... I'll trim medicines if I have to not to feel so zombie like. I hate it.

mara51506

Don't blame you for feeling that way Mel, that is why I have long rejected other anticonvulsant pills or depression pills when doctors thought I needed dose adjustments. I just said no way, was not interested in lightheaded exhaustion, no life for me. I am still very anti drug other than cancer drugs except for what I know works.

Had 3 lovely walks so far, aiming for two more half hour walks after lunch, want 15000 steps today. I feel more energetic after each one. I will also need to walk off some real anger I am feeling, came across the story of a youtuber making fun of someone with cancer because she was wearing a wig, calling her deformed and just being a vile person. I tend to be easily triggered about these things, no excuse to make fun of someone with cancer. Not sure why a person would put themselves through that, would have hung up far sooner. Just a horrible person.

candy-678

Hello all.

Yesterday was a blah day. Thoughts of Monday's scans.

Today opened windows and trying to get in the mindset that I just have to dig deep and face tomorrow.

Only notes I have are JACK5IE (Ibrance Thread) results of PET this week. Any more?

mara51506

Good for you candy. Yesterday was blah for me as well. Will be thinking of you and in your pocket for monday.

BevJen

Candy,

Best of luck tomorrow. Hope results are good. Take some deep breaths.

candy-678

Thanks all for the pocket duty. I will think of you all tomorrow. I will post either tomorrow evening or Tuesday. Loonngg day tomorrow. CT chest and MRI abdomen at 10am, then blood draw, then MO at 1pm and Xgeva shot. 2 hour drive there and 2 hour drive home.

Tanya_Djamila

Candy I’m with you for pocket duty tomorrow. I’ll be a backseat driver while you fast and drive your 2 hours. Anxiety just sucks.

Micmel

thinking of you Candy! I am tagging along. Hugs my friend. Sending good thoughts your way

Chicagoan

Thinking of you Candy-hope all goes well tomorrow.

Rosie24

Thinking of you, Candy!

Micmel

illimae

Hi all, today was a great day! Last night DH suggested we go to the beach today and I never pass up a trip to the beach. Weather was in the mid 60’s and sunny, we saw some cool pelicans up close and had great seafood and cocktails. It was such a relaxing day, best I’ve had in a while.