Anyone Starting Chemo in June 2016
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I know this is nothing to do with our forum or cancer, but I still thought I'd share with you all....Dolly has a date on Friday with the absolute love of her life. Oh my, I am sooooo excited, like a teenager. He doesn't even care if my hair is thinning or grey and I have not seen him for two years!!!!!!!!!!!!!!!!!!!!!
D
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Good morning ladies!
Getting a bit verklempt this AM as I said goodbye to our oldest who's venturing to my hometown area last night for a few days. Before he left, he indulged me in some funny/cheesey/silly pictures (like the one below) to tide me over until he gets back next week.
I'm very proudly sporting a bandana made by my nephew. Which reminds me I need to do something with my wig to make it look presentable. I seriously can't believe my son is taller than me. It seems like just yesterday he was leaping around in Underroos pretending to be a Power Ranger. Time certainly does fly!
Surpavissu- Welcome welcome welcome! Let us know which chemo regimen you'll be on and we'll be supporting you along the way.
DistrictGirl- I'm on day 7 of AC today- been taking Compazine once a day at first tweak of nausea as I'm terrified of having a repeat of the 1st day (where I was either curled up in a fetal position on bed or hunched before our toilet - did I mention I have a SEVERE vomit phobia?
CarolAG- I'm with you on pimples on the head (that and my forehead). I need to get some stuff to deal as it's seriously messing with my mojo.
Dolly- You're RADIANT!!! The cut suits you so well...and a date on the horizon????? You do know you have to share every little detail here, don't you????? We won't let you go all mum.
Coffee-lover- how did 2nd go? And hurray for halfway through AC. I really really hope the Taxol portion is a lot easier. Fingers crossed!
SthrnYankee- Hope day 3 goes smooth as silk for you. And I'm with you on brain fog frustration. It's odd feeling like a bobblehead most of the time. Not a fan chemo. Not a fan.
Nextyear- JOGGING???? Look at you, you rock star. 8-) I may have to give that a brief go just because you've shown it can be done. I'll be doing radiation after mastectomy on oncologist's advice- I think both due to lymph node involvement and to reduce risk of recurrence.
boobsbgone- I too get the tears a flowing in front of a mirror. It's a huge adjustment to go from long hair to next to nothing. Hurray for supportive husbands reminding us how beautiful we really are. I'll be in a chemo chair "beside" you on 7/06. Do you have a morning appointment? You have beautiful eyes BTW- and I love the biker pic with your man. Made me smile big!
LJ- Oh boy. I was hoping for an uneventful day 13 (the day before next chemo infusion). Maybe I should say all bets are off and just go with the flow (even if that flow requires a lengthy nap). Were you able to reschedule your Look Good Feel Better?
Moondust- love love love love love how fab you look in purple. You're stylin' in your chair (and I envy your posture girl). I def need to get in on ChemoBeanie action- it looks lovely on you.
lilyp6- I wasn't digging on Yoga Booty. I'm an OCD sort and if I'm not 100% sure I'm doing something right (whether it be breathing patterns or pose), I tend to wave the white flag. I think I'm going to stick to walking and strength training as energy permits.
NattyB- I've been waiting on ordering stuff for Taxol portion of therapy- please keep me posted on how Elastogel has worked for you. Anyone else nearby who can be your "chemosabe" for infusions? I've already scouted out possibilities as I'm sure the weekly Taxol infusions may be too much for hubby's schedule. Don't be afraid to ask friends!
labscientist- So glad you've enjoyed my wee little channel! I've been thinking of doing a lipsynched version of "Since You've Been Gone" to debut my bald look for next video. What do you think? Too much? ;-) My husband is a Toxicologist- he earned his PhD at UC Davis. Thanks so much for supplement info!!! FYI: I've started off my day with Raisin Bran at your suggestion- we want to keep stuff moving along, don't we.
Heathet- checking in to see how you're feeling today! Let us know!
Keely- your wig is GORGEOUS. Can't wait to see you in it!
revnet- Glad you're feeling better. Hope it continues throughout the day and week!
Jo- Welcome....and I for one want to see your glorious purple hair.
Wishing you all a wonderful Thursday!
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Good for you, Dolly. Very exciting! Let us know how it goes.
It's so nice to read all these posts.I am still trying to get to know all of you.I guess my June 28 start made me a little late to the game.
Chemo day I was a little nauseas in the evening.Day 2, went I started the zofran and steroids I felt much better so I have high hopes for today too.I still have a little nausea from time to time.Definitely reflux and I am burpy (ugh!).I am a little concerned about day 4 when I am not supposed to take those anymore.I guess we will see how it goes.
I am also not sleeping well.I had some anxiety problems when I got the diagnosis, which affected my sleep but since chemo started I have been waking at 3:00AM and cannot go back to sleep.Anyone else have this problem?
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Pepper... My Compazine says take every 4-6 hours and I take it every 5.5 on the dot, alarms and everything. Do we have different prescriptions or are you taking it in-between treatments as needed? Just don't want you to get nauseous again if you should be taking more!! Good luck today, you and I will be in the chair together 😊
-Keely
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Acie - I wake up 2-3 times a night- most often to urinate but other times just because. I'll wake up for good around 5 lately (unusual for me; I'm a snooze zapper). Do you have Ativan or a sleep aid?
ClarkBlue- I take as needed. I may do scheduled starting next week as I've heard AC gets progressively harder to deal with (and my day 1 was a real b$tch). I'll be in chair next Thursday with one of my little sisters. I bought my husband a Chemosabe shirt - he'll wear it for his next go round. Ha!
Feeling quite the rockstar this morning. Took my longest walk since first infusion. It was about a mile and MUCH shorter than my usual strolls but it made me feel like a warrior.
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I started my chemo yesterday and I too am a blubbering mess. I dont know if its the emotional rollercoaster of BC itself or the drugs. i am usually a happy go lucky person. I started with the AC and I watched that RED flow through the tube and thought, here it comes, body I hope you are ready.....Good luck to you and I hope each day gets better
4/18/2016, IBC, Left, 1cm, Stage IIIB, Grade 2, 12/20 nodes, ER+/PR+, HER2-
Chemo started June 29 2016 AC- plus Neulasta 4 weeks to begin then T-4 weeks
Still on the fence whether to do Radiation.....any thoughts?
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Okay so I need some advice... Just talked with MO and I asked about follow up care when all this treatment is done... She said there is none other than monitoring my bone density and hormonal care depending on what I choose (ovary suppression shots or remove them), or just Tamoxifen. I was shocked... No ultrasounds, no blood work, no mammograms, no MRIs... NOTHING. She said the protocol states that unless they FEEL something (a new tumor),that studies show there is no benefit to the tests. She said since I had the mastectomy, there is no breast tissue left. But I know of several women, one personally who had a recurrence and it was only found when one of her implants leaked 10 years after her first diagnosis. So she is back on chemo... Would they have found it otherwise???
I reminded my MO that my tumor wasn't palpable (neither breast surgeon nor I could feel it. It was missed by mammo but caught by MRI)and was 0.7cm and had already spread to my nodes and that she was in her words very concerned that such a small tumor was on the move and that's why we are being so agressive. So why would we wait until I feel something this time? Wouldn't it be too late?? She just kept saying that hormone therapy was my best preventative measure for long term. I know she's right and TOTALLY agree but I am very concerned about the lack of monitoring...
Should I be concerned?? Or is this fairly normal? I know that everyone is different as well as MOs being different too. Am I being paranoid? My hubby is a little annoyed at my questions and just says to do what doc says... But he doesn't do the research we do and doesn't see the recurrence rates of so many women. I need a good smack around to get my head focused and in the right place... C'mon ladies... SET ME STRAIGHT!!!
-Keely
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Pepper, Before I started chemo, sickness was probably my biggest worry too. Also as a diabetic I was worried that if I could NOT hold anything down then I could end up in hospital with severe hypos on my hands. But I was also so fearful of that sitting in front of toilet and being there for hours and bubbing, coz I don't like being sick either. I think for me it's the memory of being a child and being sick that panics me. When you were too young to know how to cope with it. But I sort of go with it like this now...just get into a comfortable position, knees on pillow, towel beside you, hair (not a problem for any of us) tied back and just let it flow naturally. Don't fight it. Don't be frightened of it. It is needed to get you better and once you do it, you usually feel sooooo much better. But I hear you Mrs...throwing up one's tummy contents is not a great activity. I think if your anxious about it, it makes it much worse. I will defo be telling you all about my lovely evening out on Friday. No way will I be quiet about this!!!! I am just hoping I can hide my thinning hair and not look so grey about the skin.
Acie, glad you have one under your belt now. That was number 1 yes? I think for most people, most SEs are done with by day 4 or 5 and that is why the docs only give us tablets for those days. So I am sure you will be fine on your day 4. By SE I mean of course the big one, being sick!!! BUt I have noticed this time around that constipation is a nasty one for me by maybe day 5 or 6. So next time around I am waiting til day 3 and then taking Senekot. I think by the time we all get this totally sussed and know how to manage all chemo SEs we will be stopping the stuff haha. But you certainly learn as you go and record it all so you don't forget! In terms of sleeping patterns, oh boy, I agree with you. Let's face it, there is nothing like a wee cancer diagnosis to stop you from going to bed and sleeping right through, well in the initial phases that is. Have you tried Lavender on your pillow? That will surely help you sleep. Spray on pillow and I will be surprised if you don't sleep well. But it is important for us all to get good quality sleep. No laughing, but I sometimes put dolphin music on my phone and fall asleep to that. They are so soothing. Youtube has loads of them.
Dawn, Chemo is a bugger!!!! It does all sorts to us. I too have had weepy days and now just refuse to. I will not have it interrupt my life tooooo much. I get the treatment, tolerate the 4 or 5 days after, then make an effort to do other stuff. Today I am baking organic scones. Tomorrow I am getting dressed up for dinner in a nice fish restaurant (well I am not getting dressed up IN the fish restaurant, I promise to dress before I get here). Do I want to do these things right now??? In all honesty not really, I'd rather snooze and watch TV, but it is important to do as many normal things as possible. Have your several days after chemo to be 'ill' then make sure to enjoy your wonderful life. You have so many things to be thankful for. Look around you, look at those beautiful flowers in your garden, look at those wee birds that jump around the trees, look at your kids or even enjoy a TV show that makes you 'belly laugh' as Pepper would say. Nobody's life is easy. We are all getting our wee difficult bit just now, but YOU will come out of this in the next few months and be the better for it. You will be healthy, well, cancer free and you will have less reason to worry about recurrence because you had this awful treatment. Imagine if you had refused this treatment??? Lots to be thankful for...LOTS! Chin up lady....walk tall! Feel better very very soon!
Labscientist, I am going to go out just now, but when I come back, I am going to give you posts the full attention they deserve. I am interested in a few things you have mentioned recently and need more advice. Huzzahhhhh as you'd say. Shall I send you an organic scone over in the mail?
DD
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Keely, I am being monitored with mammos regularly after treatment ends. As in once 3 months after, then once 6-8 months after, then every year after that for life. I to be honest am concerned about that level of mammos, as I believe they are just as damaging. One mammo = 1000 chest xrays!
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So, what do MO and SE stand for? Any other acronyms I need to know?
danmarieg - I feel ya. We (my husband and I) did lots of crying and I had many mixed emotions on my first chemo. Honestly, now I am a little angry and I miss the carefree life I had.
Anyone else angry? I hope this passes like initial shock and anxiety did. I am trying to have a good attitude but it comes and goes for me.
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I think MO is Medical Officer and SE is side effect!
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good morning everyone ! I'm feeling much better today. Yesterday was day 5 and the morning started out good. I had my follow up appointment with my MO to check my levels. Of course everything is down but that is where I'm at in the cycle. My levels should start to come up in the following weeks - neulasta will help that. I was exhausted when I got home and then to my surprise my period started! By the afternoon I was an emotional wreck - lots of crying and it didn't help I was watching sappy movies! I had to take some Ativan because I started feeling nauseous and overall I just didn't feel good. My temp was up and down highest was 99.4 so I finally called my MO at 6:30 last night. She prescribed me a "just in case anti-biotic." She said that can be normal but to call or go to the ER if it was 100. She told me take Aleve and take the antibiotics at any sign of a infection and call. It's good knowing I have a back up antibiotic just in case! I took an Aleve and took Ativan. I slept like a baby! I'm feeling much better this morning!
Dolly - you will have so much fun on your date! Keep us posted on the details!
Dawn - chemo is emotionally hard! I think we all need those moments to break down and cry! It's not only the diagnosis of BC but everything that goes with it - it's overwheleming! But that chemo is wiping out all those nasty little stragglers !! Just keeping honoring your body and emotions, encouraging your your body to work with the chemo knowing the end result is to rid yourself of any unfriendly cells! Talk to your MO about radiation - they'll be able to advise you. Get a second opinion if you're not comfortable !
Acie - talk to your MO about Ativan. It's great at controlling nausea and helping you to sleep! It's also an anti- anxiety med. They may have other options for you too.
Pepper - love the pic of you and your son. I am also developing pimples on my forehead! I've never had a problem with acne but now it's all over my forehead! I'm using s gentle exfoliating wash and that seems to help a little!
Just got 25minutes in on the exercise bike! So proud of myself!
Happy Thursday everyone!
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Acie,
I was so angry after chemo one, I marched around my wee cottage shouting and screaming for a good half hour. Shouting at the cancer to go and telling chemo she was not going to drag me down....I then sat down calmly and smiled and knew I was in control of myself. Anger is totally normal.
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Awww Heathet, how lovely to read that first paragraph and see you are feeling good. Well done. I think 5 days is pretty much the standard period of time til we start to feel OK again.
D
Go have a nice day watching sappy movies. Watch 'An Affair to Remember' it's my absolute favourite.
Gosh....This will be just like my date on Friday hahaha....
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Ok the chemo finally kicked me to the curb last night! Had been feeling ok, long day yesterday, went to church and left a little early because I just wasn't feeling right. Stomach was really flipping. Decided to go ahead and take the second nausea medicine but it was too late! Was miserable all night! Today I feel really drained and weak. Took all nausea meds ad prescribed and stomach not doing much but I feel like I have been hit by a truck. No energy! Took a shower and had to rest because it wore me out. `Was about to call the doctor to see if there is anything I can do better and they just called me! Well, it was to schedule a ultrasound and a PET scan next week - why, she couldn't tell me (just the scheduler!) - now I'm worried - nothing was said about this before. I already had CAT scan but never got results! I have put a call back into the nurse to see what's going on and find out why these tests are ordered.
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Thanks Dolly. That makes me feel so much better that I started to cry. What a roller coaster.
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well, here I am, not sure what's actually going in right now, they're waiting for the pharmacist to prep the steroid via iv (my first infusion so not taking it via tablet this round)Man, my hair has already faded so much since I did it about two weeks ago, so I'm also going to show you a pic of when it was fresh. Can you tell I love purple? I even like my ice cream to match! Haha
Oh, and I just came out on Facebook, my phone keeps beeping at me
I'll take all the support I can get.Cheers,
--jo
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love your hair and your great smile!
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Acie - MO stands for Medical Oncologist (cancer/chemo doc).
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Dolly - sooooo excited for you and your date!!!!!! Please update is and tell us all the dirty details... 😈
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Joeychen, I get docetaxel and they don't give me Benadryl. They give me extra steroids in the drip. The steroids prevent the allergic reaction also. Good luck!
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Heathet - woo hoo!!! Turned the corner... Fantastic news. And thanks for mentioning Ativan... I have some at home and remembered that's what they give me for nausea on infusion days so I asked the nurse about it today and she said I definitely should take it and scale back on the Compazine and see how that goes. How often do you take it? It was a prescription for anxiety originally so is the dosage and frequency the same
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Clarkblue - on days 1 through 4 I take it about every 4 to 6 hours. After that I take when I start feeling nauseous or when I'm feeling a little anxious which is usually at night. Yesterday afternoon I started feeling icky in the afternoon so I took some and then right before bed. It really helps me sleep!
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Oh my, love the updates - i look forward to being on this page several times a day. and I do not even like my computer.
Dolly, enjoy your date to the fullest, how exciting
Labscientist - thank you for the link to the headwraps - I ordered a few, right up my alley.
Joeychen - love the purple on you, makes you light up. my ice cream matches my hair (brown/chocolate)! LOL
bbbb- hope you are feeling better quickly. keep your spirits up, not knowing is the worst part, then you will get a plan (or new plan) and kick cancer's ass!
Acie - I finally got angry a few days ago, wondering what the hell happened to my 'normal' life and now stuck with stupid BC and all the annoying SEs. It is ok to be angry and it is ok to be hurt, scared and frustrated. Just do not let it overwhelm you. acknowledge that you have the emotions, let them happen and then let them go so you can continue to fight and heal emotionally. we all can agree, we are all by each other's side through this!
here is a kitten to make all of us smile: (her name is Kenzie, she is my foster kitten)
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Acie: MO is medical oncologist. RO is rads oncologist, SE is side effects. On the home page for discussion boards where your favorites is on left side is a list of acronyms & such.
Yes I get mad @cancer hijacking ky life, but concentrating on the goal. surgery cut it out, now I am killing all the leftovers dead!!!
Dolly: I am do happy for you!! A date w your sweetheart is awesome. And yu so deserves it!! plz don't be hard on yourself any more. You are working hard to keep your hair w the yucky cold capping and it looks really lovely! Your pics were amazing!!!
JoeyChen: love the purple and you do have a wonderful smile. Love & (hugs) & blessings to you as u are on the chair.
Heathet: glad u are better!! Sortof good days are a treasure. If u put some Aquafor on the breakouts after cleaning, it helps them clear up faster. I like Simple facewash for cleaning. the steroids add to this problem, did they tell y'all that?
Clarkblue: hope u keep feel ok. glad u slept well.
Keely: if u want more monitoring, thank insist on it. Especially if it was not palpable. They can do MRI or mammos or tumor markers. There should be tracking & monitoring. Its your life& peace of mind and survival at stake so do ask for more if u want it!!!
Pepper: got an hour of walking & pushing cart @ Costco yeserday. & I even walked up the stairs to the chiropractor office. Yay me!
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Well nice nurse called me back and answered questions about PET and Ultrasound. Found something on CAT scan which they think is nothing but can do PET to be sure so I say BE SURE! Feel better about that just don't like being in the dark about why. Relieved! Also asked this nice nurse a MILLION questions while I had her on the phone and feel much better about how I am taking meds for SE and how I should be feeling and other things I can do to help. I got reassurance that I am doing the best I can. I was worried I was taking too much of the anti nausea meds (well not too much but do I still need to be taking them??) She assured me I was taking them as directed and I should continue on that regimen until AT LEAST Saturday when I can expect for the nausea to finally subsize. With the meds - SE's are pretty well controlled - Without - well not a good time! I have been trying my best to drink water and she advised that sometimes a sprite or gatorade would work too to help with rolling tummy. Coconut water was a bust! Anyone have any advice on taking pills? I have never been a pill taking person and every time I start to take on of the MANY pills I get nauseous all over. Any hints would be appreciated!
Dolly - Wishing you a great night out on Friday - How wonderful to be enjoying the normal things in life - like a sweet dinner out with a wonderful guy!
JoeyChen - love the purple hair and the ice cream!
Heathet - Kudos to you for riding the bike for 25 minutes. I felt like wonder woman changing out the laundry today! Tomorrow I will attempt the treadmill (Maybe??)
Pepper - I know how it feels to have your children be taller than you! All of mine except the 10 year old are taller than me, with my oldest son towering at 6 ft 6 inches! He still listens when I talk and knows who's boss! Love the pics with the bandanas!
Dawnmarieq- Hoping today is a better day for you! You still are a happy go lucky person ! This will NOT change who you are - we are forced to change alot during treatment, schedules, work, sleep, the list goes on, but we are STILL the same person! You will feel like yourself again! Hang in there! Glad you are part of this forum, I have found it to be so helpful in SO many ways! Calms my fears, makes me realize I'm not going crazy, helps me know I'm not alone in this battle, there are many other wonderful women fighting and fighting well! And now I have to do 25 minutes on the treadmill so I will not be outdone by Heathet and her 25 minute bike ride! Haha
Blessings to you all from South Georgia!
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Flying in quickly before taking a much needed, holy crap I overdid it today nap. Just got home from visiting hours for a neighbor who passed from colon cancer- leaving one of the nicest, sweetest women I know a widow far too early in life and 3 beautiful children. Heart is heavy.
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well today is my start day. So far I've done the Perjeta. Now the wait period. Then Herceptin after that the big guns Taxotere and Carboplatin
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In chemo, #4 taxol and herceptin. Saw my MO this am and she reduced the steroid by half. Yeah! I decided against a port and get infusions through an IV. Do anyone else use an IV
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Jojok - good luck!! I have about a 1/2 hr to go on mine, and so far it's been fantastically boring, no reactions to anything. I hope the side effects will be so obliging as well. May yours go even better
Maybe when I'm done I'll go have a samples lunch at Costco, haha. It's only 5 mins away and I need trash bags.
Cheers all,
--jo
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