Anyone Starting Chemo in June 2016

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  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Heathet, WTG with the bike ride! Any type of movement is great! Glad the SEs are manageable today.

    Dolly, I'm so excited for you!! Did this guy finally come to his senses after two years and realize that he was missing out on time he could be spending with such a wonderful sexy woman? Have a great time!!

    Jojok and Cody, I'm in your pocket today!!

    Pepper, you are brave to go out visiting during chemo. No wonder you are tired! My posture used to be terrible 8 years ago until I started training to improve it. Years of work at a desk and computer will ruin anyone's posture unless you work on it. I'm concerned about what cell phones are doing to the younger generation - even more time spent with head bent down and shoulders hunched! Just look at some of the young people walking around today - terrible. Take it easy! I am. I love the bandana!

    bbbb, it's good you got through to the nurse and found out why they are ordering the PET scan. It's calming to get things ruled out! Hope you are feeling better today. I'm functioning but taking things slow.

    Joey, I love your hair! Your ice cream looks good too, even though it is a low appetite day for me, one day after chemo. Good luck!

    Labmom, yay for you! Stairs are hard, but just take 'em slow. I refuse to take an elevator if I can take stairs instead.

    BoobsBGone, that is a beautiful photo of your foster kitten! She looks like she is doing well. We have 7 cats, all but one a rescue.

    DawnMarie, sorry you are feeling so emotional :( Take it one day at a time and concentrate on what you CAN do instead of what you can't.

    My port poke did not hurt nearly so bad yesterday as the first time. More cream, and with plastic wrap placed over it for 90 minutes helped tremendously.

  • Heathet
    Heathet Member Posts: 257
    edited June 2016

    oh my goodness my head is itching ! Can it be a sign?

  • ClarkBlue
    ClarkBlue Member Posts: 170
    edited June 2016

    Heathet my prescription is for 1mg once a day.. What is yours? Just don't want to over medicate..

  • labscientistmom
    labscientistmom Member Posts: 287
    edited June 2016

    Cody and Joeychen and Jojok: blessings to all of you on chemo day. Hope you have stuff to keep you busy or a visitor to chat with.

    bbbb: so glad you got the info you needed. Its great to know that the scans are for confirmation, and better to know. You might try aloe vera juice to help your tummy. Crackers to chase the liquid and pills might help too, in little bits. Hope it helps. I have more trouble with reflux on taxol that burns up my stomach and creeps up on me.

    Pepper: comfort and HUGS to you. So sorry for the loss of your friend. Glad you got to visit with the family. Hope you have a good restoring nap. Prayers that you can have a plan to bless that family through your challenges too.

    boobsBgone: thanks for the picture of your cute, too cute kitty. Glad you liked the headgear! Rock it girl!

  • Heathet
    Heathet Member Posts: 257
    edited June 2016

    ClarkBlue - mine is also 1mg it says take 1/2 tablet or 1 full tablet every 4 hours . I usually take 1 tablet about every 6 hours if my tummy is upset. Mine dissolves under the tongue so it works pretty quickly.

  • Coffee-lover
    Coffee-lover Member Posts: 47
    edited June 2016

    It stinks when I get so far behind on reading these! Day 2 has been pretty good for me. I went in for a saline infusion so I'm not getting the drop in blood pressure I had last time. Also, little meals have saved my life!

    One thing they did tell me - I have hypoglycemia. Something else to figure out!

    Dolly - so excited for your date! I want to live vicariously through you, just for a day. You have a wonderful spirit and I love to read your posts.

    Joey - love the hair. When mine comes back in, I'm going to celebrate - periwinkle I think.

    Here is my old furr-baby - Mandy - 14 years young!

    image

    Love this group!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Hi Ladies,

    Had my sister over today today and so not been online much. My hair ever since my hairdressing appointment, seems to be very very good. Much less hair come out today. I think clearly hair appointment got all the loose stuff out and I am now left with what I have for present time. I will report fortnightly what happens to hair.

    My dinner date has been postponed due to me just feeling very tired and I am planning on seeing Mr Lovely some time next week. I want to be looking my best and not be ready to fall asleep at dinner table (although he can be a bit boring at times haha).

    bbbb, I am sorry to hear that SEs finally hit you. Bummer. That is not on. Also sorry to hear about your anxiety over not knowing anything about reason for PET scan. I am not sure about you, but my experience of this whole BC journey is that they only ever drip feed the information to you. So they might just be wanting to double check you, but just thought it was so unlikely that anything was wrong, that they have just not informed you of their reasons for it. I find with my docs in Edinburgh, that they want to be positive and want to give you the best treatment, but that if they told you absolutely everything that you needed to know on day 1, you would probably run out of the doctor's office screaming and running for the hills. However I think it is best to just tell it like it is, as most of us just go and google anyway. So that being said, don't go and google. In response to pill taking, I agree that sometimes taking a pill can make you feel even sicker as you have to drink to take it. I was also given Buccastem which is a fabby wee anti-sickness pill that you slip between your lip and cheek. It dissolves over a 10 mins slot and was great for me on my first infusion day. But trick I would imagine with pills is to take them, BEFORE you start to feel sick. When I came in last Friday after chemo 2, I immediately took one anti-sickness tab (did not do this on very first infusion day and as a result was sick) at 7pm. As a result, I experienced no sickness at all on this time around. So take meds before they are needed and you then will not bring them back up.

    Acie - I hope you are not bubbling still......ARE you? Deep breaths and smile gorgeous lady...you are in control here! No more tears. Does no good and only assists in the eyelashes falling out haha....

    Labscientist, How is life going? I have looked at your Aquafor and have ordered some on Amazon today as my nose is a little dry now and am not wanting any nosebleeds. I will apply as you say with a cotton bud. Thanks for that tip. I have not been able to even think about coconut water. But have been eating lots of bananas for my potassium. How is hubby getting on with school hols? Does he have examinations grades to come out soon, for his pupils? How is it going with the not working thing? Are you getting a wee bit bored like me? Mind you, I am quite happy to be able to just rest and read and look after myself. When is next day at horrible chemo centre. I am happy just now as not back for another 2 weeks, but will cry night before next one....haha well not really. But I hate my time in that place. Muchos scottish hugs for my wee biker friend in California. OMG can I come visit? Do you live next to any stars? Granada Hills sounds so celebrityville. My hair is hanging on for dear life...I might just be able to get away with it for hot man next week. Knowing my luck, it will all come out the night before I am meant to meet him haha!!

    Pepper, Loved the pic of your gorgeous son. Wow he is a handsome wee thing. Great to see how all your family get involved in the hats and selfies. Love that. None of my family do selfies. Boring old lot. So sorry to hear about your neighbour and his passing away. One of my friends died a few weeks ago, actually on the day I was diagnosed with BC. It made me feel very uneasy. I was upset about her death, but also at back of my mind, if I am honest, I was also thinking, well that is another great person given to cancer, and NOW it's me next. Please do grieve for your friend but don't allow it to upset you to the point that I allowed my friend's death to.

    Boobsbgone - (still chuckle when I type that out), I like coming on here too every day. I often wonder what will happen when we are all well and healthy again? Do we just stop on this forum? Do we never chat again? Oh my...I am not sure I like that idea. I think we need to have a Facebook page after this is all over. Need to think of a good name for it though and seeing as you are the one good at the names, we shall leave that task up to you! Also love the pic of you wee kitten. So cute. Hope you are doing well with treatments?

    JoeyChen, Love that pic with the ice cream. Also that hair is PURPLE...one of my fave colours too! My dining room is purple. How did your day in the seat go? Is it just me or are those seats not just awful??? I would prefer a big comfy fluffy sofa. I am going to have to have words with the NHS. These chairs remind me of the dentist! They are yukky.

    Heathet, I am dead impressed with you doing 25 mins on a cycle. Wow. I think walking to Teso and back these days is super good! I have to admit to feeling tired more this time around. But tomorrow I am going to try to follow in your footsteps and those of Ms Pepper and get out and exercise and see if that might knock me out of my tiredness. I know it will.

    Ladies, it is almost beddypops time for me. I hope you are all doing well today and any SEs have been banished and we are all eating well and keeping ourselves occupied and doing nice things. By my calendar, most of us are going to be done by September...and this is now the end of our first month...OMG....how wonderful is that? June is now done with. We are the June thread and OUR month is gone, finished, done with....you all know what that means??? Yup we are getting closer to ticking off those months. Kinda ownderful when you look at the boring old month of June in that way...isn't it?

    We have ALL got this!!!! Oh dear, I am spending too long with you all and now starting to sound American! hahaha

    DD




  • labscientistmom
    labscientistmom Member Posts: 287
    edited June 2016
    image

    Coffee-lover: Your dog is beautiful! Glad you are feeling better this round!! The low glucose is totally not helping you feel any better. did they give you some info on managing that ? many small meals should help. Keep up the protein, and complex carbs, that's my struggle. Since we are sharing pictures to make us smile, Here's my Sophia in the bathroom rug spot the two cats fight over now to nap in for some weird reason:

  • WUnderlust
    WUnderlust Member Posts: 3
    edited June 2016

    Wow this place is busy busy, I have so much catching up to do.
    This has been a long week, celebrated birthday (yay 33!) on Monday, went in for study biopsy and MRI on Tuesday, Infusion #4 Wednesday, and just dropped off my mom whose been staying with me since chemo began. I'm sad to see her go as she's been so supportive and helpful but I need hang in there and stay strong!! I've been more tired than usual this week, thank god for those afternoon naps.

    Question for you ladies: Anyone planning to travel between their infusions? My MO said as long as I feel fine, air travel is allowed. I'm just a little nervous planning ahead since I won't know how I feel until it gets closer to the travel dates. My dear friend moved up her wedding last min to July as her father is terminally ill and as part of her bridal party, I really wish to be there to support her and family.

    Dolly - I'm excited for your date next week!!! It's putting a smile on my face :) Hope it'll knock out any fatigue, insomnia or nausea!!

    Pepper - Love your cheesy photo with your son, and you are rocking that bandana!

    Acie - Hate to be TNBC pals and sorry for the mixed emotions. I went through the same, and sometimes still have those weepy days when I think back to my perfect newlywed life, excitement living in a new city (DC->SF), and great new job..then poof..But turn the anger into motivation and focus on the treatment, know that this is just a temporary pause in your life and you'll be better in few months. My sleep was also disturbed the first few nights but its gotten better so hope you'll be able to sleep better soon.

    Jojok & Joey - Good luck, 1st infusion is always little nervous because you don't know what to expect. Hope they go smoothly!

    Cody - I'm on port but I was just tired being poked almost on a daily basis (Aside from standard tests, I was doing IVF before treatment, and needed blood drawn everyday)

    Moondust - The EMLA is money!! I hate needles usually but this makes so quick and (relatively) painless. Thanks for the rec on plastic wrap trick, will try it next week.

    labscientistmom - Sophia looks so comfortable. Looking at her makes me want to take a nap :P





  • Coffee-lover
    Coffee-lover Member Posts: 47
    edited June 2016

    labscientistmom-great cat pic. How do they pretzel like that?

    I didn't get any specific instructions except to eat more. My conundrum is I don't eat grains or dairy (although I just added steel cut oatmeal with no probs - yay!). I'm just sticking with my small meals, added some applesauce and will increase the amount of oatmeal. Oh, red potatoes with dinner. Yum!

    Have a good evening!

  • labscientistmom
    labscientistmom Member Posts: 287
    edited June 2016

    Dolly: hope you see this before you go to sleep! I would love for you to come visit, alas, I don't live the fabulous famous folk life, just live in the San Fernando Valley north and east of Los Angeles, north across the mountians from Hollywood and the beaches. If you come visit, we can do the tour of all the fun famous places you want to see. I would love to visit YOU in Scotland someday. I think there are continuing friendship forums on this website too, we can organize one! I felt pretty good yesterday, day 2 after infusion on Tuesday (my #6 of 12 is done, YAY). We ran errands, went to Costco, got some excercise. I was tired and stayed home while my husband took our son to art class, but still doing ok today, just tired when I am walking around, so taking it easy. My husband got baseball tickets to see the Yankees (he is from Long Island, NY) play in Petco Field in San Diego. I elected to stay home and conserve energy, as well as avoid the huge crown of germy people @the baseball game. Hope I can watch it on TV. They are staying with some college friends at the beach, so I hope they have fun! He is enjoying his "summer hols" as you say, although next week he is doing an AP Us History boot camp; 4 half day seminar thing for the new AP students to get them started on reading. He also has been invited back to teach a class for the third semester in a row at our local community college. That will help with the budget.

    As far as my not working, yes I miss it, but am thankful for disability, and grateful to be able to rest, concentrate on surviving the dailly grind of SE's, keep drinking constantly, making sure I am eating well and not worrying what I would do at work when I suddenly got dizzy. I love to read, actually a quite voracious reader, so yes enjoying reading many books. My next chemo day is Tuesday, for #7. I go to get my blood drawn again tomorrow. last weeks labs came back good, tumor markers still normal, whoo hoo! My friend is coming with me next week, as hubby has the AP boot camp thing. Not looking forward to how my body doesn't like the chemo any more, but concentrating on how BAD those cancer cells are feeling, YAY!

    Hope you get to see your sweetheart soon!! blessings and sleep well, A

  • SthrnYankee
    SthrnYankee Member Posts: 25
    edited June 2016

    Hey ya'll! Just checking in...today was day 3 for me...I don't feel much different than yesterday. Had a steroid reaction last night, my face & chest were fire red...felt like i was sunburnt....woo hoo..I'm glad that was gone when i woke up this morning!

    Today though I am kind of weird feeling...hard to describe, definitely not myself. Kind of foggy. Anti nausea meds seem to be working, some foods or drinks are not so great & cause my tummy to burn so I have learned to try a small bit first & see how it goes before I continue. I'm having trouble with fruits & veggies, they are not being easy on the tummy at all. Trying to stick with bland plain things...mashed potatoes, green beans & a plain cheeseburger have been my main courses today. Not all together...spread out through the day...I cant eat alot at once...no way....small meals. Water is ok sometimes & other times it is not, I have tried vitamin water, good Ole southern sweet tea (it was way too sweet), sprite, juices, even Kool aid & Gatorade....no good....so now I'm drinking tea with no sugar at all...it seems to be settling easier than water does. They doped me up on anti nausea meds from what my friend who is a nurse said she's never heard of them giving so much.

    Today was also my second fill for my tissue expanders. I love my plastic surgeon! But today he grabbed my bruised kind of puffy port (from infusion on Tuesday) & wiggled it around! Ouch! This was my second fill (the first was 50cc per side, today he did 100cc per side) he estimates another 4 to 5 fills & that part will be done, however we can not exchange for true implants until chemo is done. So I'll have these heavy bricks atleast until december :( oh well atleast there is a little shape now so I won't look so boyish when my hair starts to go?....I hope...

    Talking seems to make me queasy too...anyone else have that problem? I keep telling people to text me instead of calling, most don't listen....but I'd rather shoot a quick text & be done...talking makes my tummy turn.I'm going to head back to the recliner & Netflix & cuddle up with the dogs.

  • labscientistmom
    labscientistmom Member Posts: 287
    edited June 2016

    Coffee-lover: turkey breast, or chicken? also you can get applesauce pouches from Costco online or Target called Happy Squeeze with Kale and mixed fruits. And maybe try Purely Inspired Organic Protein shakes, they have pea protein, lots of veggies and are very tasty. I ordered on Target.com or Amazon, whatever you can find cheaper. Here's my other cat Mocha, who pushed Sophia out of the corner, now napping in same spot:

    image

  • labscientistmom
    labscientistmom Member Posts: 287
    edited July 2016

    SouthernYankee: glad you are getting thru it, sorry the eating is rough! I am glad you have dogs to curl up with. I get the sunburnt thing with the steroids too, especially in the inner side of my lumpectomy breast where I have lymphadema a bit, it gets red and swollen too. Always glad when that's over! hope you make it thru the rough today, and tomorrow is better!

    WUnderlust: I am traveling in a couple weeks actually. Only about an hours to hour 1/2 flight, but then we will drive for another 1 1/2 hours too. I am hoping it all goes ok, the doctor says it will be fine, just take snacks and lots of water. My hubby & son are doing baseball game tomorrow, but I stayed home to keep my strength for two weeks. Hoping and praying that God is merciful and SEs won't kick my butt, and I can not get sick from germy people on the plane. (can you say lots of hand sanitizer??) Hope we can meet up with some friends in the area too, but we are mainly going to spread my sister's ashes in a hummingbird sactuary in Ramsey Canyon in Arizona near the Mexico border. Finally got the trip organized after a couple years, she lost her battle with stage 4 breast cancer @end of 2013. I miss her a lot. I hope your trip for the wedding will all work out. I will pray for your trip if you could pray for mine? blessings, A


  • lilyp6
    lilyp6 Member Posts: 214
    edited July 2016

    Joeychen: Yes, Kaiser has pretty much been all over things for me, and I've been able to reach my oncologist, surgeon, and Coordinating Nurse pretty easily online. They also seem to be trained in sensitivity - all the way to the folks at the front desk. I'm sure your friend would know how that works. They make a point to be kind and compassionate for the most part. I hate to think that they are overworked, but I believe they might be. I just try to thank them and make a connection when I can.

    I loved the picture with your hair and the ice cream! I had a rough day today - lots of fatigue and digestive issues. I'm starting to feel better and feel like I can get back to that happy place that you are showing us in that picture.

    I'm also loving everyone's "cheesy" pics and pet pics. Be well tonight, ladies.

  • SthrnYankee
    SthrnYankee Member Posts: 25
    edited July 2016

    My baby boys...snuggle butts : )image

  • ClarkBlue
    ClarkBlue Member Posts: 170
    edited July 2016

    SthrnYankee - are you taking Compazine? We figured out today that it was the culprit in making me so foggy and weird... I was taking it too often. So I switched to Ativan and half a Compazine. I'll take Ativan every 6 hours and a half of Compazine every 8-10 and see if that helps with things. I felt like my nervous system was way over stimulated and was unable to talk to anyone, watch tv, read a book or go on my phone so I'd just sit and wait for the hours to pass!! Lol

    SEs for Compazine were strange dreams (good lord yes!!), neurological issues, agitation, Etc. it's an antipsychotic! I know I'm crazy but sheesh hahaha

    -Keely

  • SthrnYankee
    SthrnYankee Member Posts: 25
    edited July 2016

    clarkblue/keely- No I don't have Compazine. They have me taking Decadron (Dexamethasone), Zofran (Ondansetron), & Phenergan (Promethazine). I just go back & forth, sometimes I feel very over stimulated like itchy, things crawling on me, queasy, talking & interacting with people sometimes worsens it. So yeah I just sit around quietly & wait, it goes away & I can then watch a little TV or talk, even washed some dishes & laundry earlier, but then I had to go back to my chair. It's just weird. I don't know if it's meds or just the chemo. I get a little dizzy sometimes & one of the anti nausea meds causes that they said. I'm just so ready to be done & I'm only 3 days out from my 1st of 4 AC infusions. I will get one every 21 days. Then I start Taxol infusions once a week for 12 weeks. I pray Taxol doesn't make me feel this way. My MO says alot of women work through this, I don't know how. I haven't worked since my surgery



  • labscientistmom
    labscientistmom Member Posts: 287
    edited July 2016

    SouthernYankee: I havn't worked since my surgery either. I love the beautiful dogs, boxers are such sweethearts and I love the spots on the white one's belly! So sorry its rough for you. Hope you get better sleep. I have felt the crawling on me and weird dreams, I think that's the dexamathazone steroid. Blessings, and prayers for a better day tomorrow!

  • pepper43
    pepper43 Member Posts: 103
    edited July 2016

    Morning ladies,

    Let me get in on the furbaby fun. Here's ours (my handle sake Pepper). This is her doing what she typically does- making eyes with your food and looking so cute you can't resist giving her a piece.

    image

    Seriously, how can you resist that face????

    dawnmarie- I am definitely doing radiation - mainly due to lymph node involvement, but also with intent to reduce risk of remission. What does your oncologist recommend?

    Keely- hmmm, I think that might be typical for follow-up care but I'm not sure (we haven't even gone into that with my MO). My oncologist told me that 99% of recurrences are in places other than the breast. Not sure if that comes into play. Are you having a bilateral?

    Dolly- no laughing over dolphin music here! I use ASMR videos on YouTube to start my chemo naps. It's funny how people respond differently to it- my hubs goes into a near apoplectic rage at the whispering in ASMR whereas I find it incredibly relaxing and soothing.

    Azie- oh heck yes, I'm angry. When I first found out, I just wanted to power walk around our neighborhood cursing (I was even planning on blaming it on Tourette's or something). Time hasn't wiped the anger away but it's settled down a bit with a treatment plan. I don't have a family history of bc. I nursed my kids. No signs would have ever pointed me to BC - which is a big reason why I waited 3 years in between mammograms (so yes, there's some self-anger there for not doing it annually- wondering if I could have caught it in situ had I done that). Anger's a natural part of the mix of emotions.

    Heathet- so so glad you're feeling better. What type of face wash are you using BTW? Things are getting desperate over here.

    bbbb- 6'6!! Holy cow your son is TALL! Pictures pictures!

    Jo- I LOOOOOOOOOOOOOOOVE your purple hair. Purple's my fave color too. I had to lobby hard for it on my Prom committee back in high school. ;-)

    boobsbgone- Kenzie is ADORABLE!

    labscientist- Costco workouts rock! Which reminds me I need to make a trip. 6 people in the house make for rapidly disappearing food. Love the Sophia pretzel pic. 8-) If you're looking for another good read, check out Loose Ends List by Carrie Firestone. She's a friend of mine. It's meant for young adults but I think it's perfect for us grown ass women as well. A little raunchy, a lot touching. I just finished it.

    Jojok- How did your infusion go?

    Coffee-lover- Mandy's so cute!

    WUnderlust- Happy belated birthday!

    moondust & wunderlust- a friend whose husband battled lymphoma gave me the tip to use Saran Press N Seal on the EMLA cream. I'll be giving that a go next infusion.

    SthrnYankee- You should be turning a corner soon! Yesterday was my day 7 (and aside from the wake of a friend), it was absolutely wonderful. Felt the most "normal" I've felt since infusion.

    lilyp6- Hope you'll be feeling even better today!

    Off for my early am walk now. Not sure if any of y'all would be up for it, but I'm open to starting a secret FB group for those of us who want that FB connection as well. Secret means only we know about it, know who's in it and sees the posts.

    Have a fabulous Friday everyone!

  • Cody3110
    Cody3110 Member Posts: 25
    edited July 2016

    Congratulations to everyone for completing the month of June! Hope everyone is doing well today.

    I finished #4 chemo out of 12. Doing good with little side effects. Saw the MO yesterday and my steroid pre-meds were reduced by ½. MO also said to expect total hair loss this week and I am finally ok with that. Everyone here was a big help getting me over that hurdle. Feeling good today, just a slight headache and the ususal flushed face.

    Pepper43 - secret FB group sounds good, but since the posts on this site are public we would need to make sure of the members allowed are to join.

    Pepper43, sthrnYankee, labscientist, coffee-lover, boobsBgone - love the fur baby pictures. Nice distraction. I attached my fur baby Gidget, a white bull terrier.

    JoeyChen - love the purple hair and the ice cream!

    WUnderlust - happy birthdya

    SthrnYankee - so far Taxol has been easy. I was instructed to take power glutamine daily to prevent neuropathy. So far so good, no neuropathy. I could work on Taxol and have chosen not to.

  • Cody3110
    Cody3110 Member Posts: 25
    edited July 2016

    Forget my fur baby pic in the last post. Here she is.image

  • Heathet
    Heathet Member Posts: 257
    edited July 2016

    Pepper - I think starting a Facebook page would be great! I use the neutrogena deep clean exfoliating wash 2-3 times a week and then cetaphil cleanser daily. I also use witch hazel.

    I am drinking a ton of water but I notice sometimes when I pee it burns. I don't have a fever or anything but I'm wondering if I have a UTI or is it all the meds working their way out? Anyone else notice this? I have a prescription from my MO that I can take but I may need to make an appointment to find out. The other problem is I'm still having my period! I wish that would end!!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2016

    Heathet,

    I seem to remember being told something on my first day about urinary infections SOMETIMES being a side effect of most chemos. I think I was told to just get an antibiotic??? Why don't you try some cranberry juice as that might ease things a bit. But would defo ask about this.

    I don't think the chemo itself causes the UTI but it does something to the vajeejay tissues and dries them up a bit and so means that it is harder to fight off the bacteria we all have down there. Hmmmm just another lovely wee embarrassing thing to have to declare to the MALE doctor.

    Dolly

  • pepper43
    pepper43 Member Posts: 103
    edited July 2016

    Secret FB group started! I called it June Chemosabes. To add you, we'll need to be FB friends (you can unfriend me after getting in group; my feathers don't easily ruffle). You can friend request me here: https://www.facebook.com/profile.php?id=1626126145 - just be sure to PM me with your forum handle and say hey Pepper I want in on the group and blammo, you're in.

    To make sure you're YOU (and since this is a public forum), leave a comment here or PM me that you've friend requested me. This way I can ensure it's just us in group.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2016

    Labscientist,

    Just got your message today. Went to bed last night reasonably early. Although not early enough really. I am glad you are doing well since Tuesday. How many more times do you have these weekly infusions for? Am I right in thinking that you told me you do at some point move over to a two or three weekly chemo plan? Good on you for getting out to Costco and walking around so much. I am being very lazy but I am really feeling the tiredness this time around. I went out to the local garden centre with my mum yesterday and had a scone and cup of tea and then felt like I really needed my bed. I think I have also not been eating quite as much carbs too. My appetite has become a wee bit less brilliant than it was last time too, although that IS NOT a problem for me. Any weight loss will be greatly appreciated.

    You see now....you might NOT think living in the Fernando Valley, East of LA and across the mountains from Hollywood sounds that exciting but for me it sounds thrilling. Be warned, I may take a wee holiday and you should probably NOT answer the door to strangers any time after Christmas!!! haha. I am glad hubby has got some extra tuition during hols and that this is going to assist with bills and you being off work. I often sit in shock when I hear you all talk about your medical bills and cost of scans etc. I am so lucky to be living here and not have to worry about that. So extra tuition is good. But I hope he does not tire himself out too much and definitely has a break and good rest before he goes back after the hols.

    Do we have tumour markers done in every blood test they do for us? I did notice a blood result on report for a CA 125 or something like that...when I looked it up it was a tumour marker. What does that tell them? I am guessing it says there is no signs of malignancy in certain parts of the body yes? Geeeez. It's all very serious stuff.

    Good that son and dad are getting off for a cool wee trip away. It will actually be quite nice to have the house to yourself probably and indulge in TV and cuddling up on sofa with cats.

    I like the idea of a friends for life thread or forum. It is nice to think that we can all stay in touch with each other and check up the other is doing well. That would make me very happy indeed. I feel like I have made some really lovely and special friends on this. Big shout out to LJ for setting up this thread and getting us all together.

    Pepper's idea of FB is a lovely one, but I am a little hesitant as I have family on my FB and I have not told all family members and so would not want them making any links with BC. But I am guessing Pepper could give it some sort of less obvious name...like Pepper's keep fit page!!! haha.

    I am going out to supermarket today. I hate going as I end up coming out with nothing. That's the problem with going organic! But I am baking more scones today and going to use rice milk as have now stopped milk and should also not be taking soy products due to my hormone levels.

    Hair is still here....OMG...read a page too last night, that said when using the Cold cap, your first and only BIG huge shedding off hair is after about 3 weeks of first chemo. So I have had that. After that it is down to thinning gradually over the weeks. Of course that does not mean that I might not still end up with little or no hair, but if I can just keep it til Tuesday!!!! That's my date night. We are off to The Witchery for lunch (it is very very nice place) and then we are spending the day together...I am sooooooo excited. I cannot wait. Have been playing around with outfits and then being very strict with myself and giving myself a row for acting like a school kid. Haha... he is the one wee bit of happiness I have had these last few months. I think God is being 'good' as you would say and giving me something to smile about!

    Here's a thing have you found yourself associating things with your chemo and having them then make you feel sick? The conditioner I used to put in my hair, I had to chuck it out today as even looking at the bottle made me feel ill? How bizarre. Anyone else done this? I should probably eat lots of burgers and crisps during next chemo in THAT case. Haha Dolly goes all skinny malinky just in time for her trip to LA...I might get picked up for a photo shoot, made a star, end up snorting cocaine, partying too much and getting a face lift and boob job...errrr Nooooooooooooooooooooooo to the boob job. Can't be doing with THAT again!

    D

  • pepper43
    pepper43 Member Posts: 103
    edited July 2016

    Dolly- it's completely secret. Nobody except members even knows that it exists. I know how to go commando.

    image

  • boobsBgone
    boobsBgone Member Posts: 103
    edited July 2016

    Pepper - love the idea of FB group, but have the same concern as Dolly. none of FB peeps have knowledge of my BC and plan to keep it that way. I do not want an oops that someone saw it. if i post, how do my friends not see it? Oh, and your pup is adorable! I love animals so much, i have too many some people say. I say I have just what i need. LOL

    Dolly - I just tried rice milk this morning, not too bad, just have to get used to it. since chemo, milk/milk products upset my tummy pretty bad. no issues with the rice milk, phew. I also find it difficult to grocery shop, most of the things I am used to eating do not taste right or upset my tummy. it is hit or miss if something makes me feels good when I eat it. I just started buying organic, every little bit helps, so I am doing it!

    My hair started coming out in week 3 after my first chemo. Really weird experience for sure, and I already had it short (right before I mohawked it! still weird for sure. but it will grow back, so i just keep saying that out loud.

    power on sisters!

  • lilyp6
    lilyp6 Member Posts: 214
    edited July 2016

    Pepper - I'm in for the FB group as soon as I get a chance! Have been longing for an easier way to post. Cheers!

  • pepper43
    pepper43 Member Posts: 103
    edited July 2016

    BoobsBgone- it's secret. truly. No one knows it even exists except people in group. You can't even find it on FB unless you're invited.


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