Anyone Starting Chemo in June 2016
Comments
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Good morning ladies! Someone posted about an online trainer. How do I go about doing that? I have my walks but I really need some motivation for strength training and stretching. My ass is falling!
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labscientistmom good pt oints about the dyes in the gatorade. I have considered that but didn't plan out ahead for making sure I was getting enough electrolytes since I am taking in so much more fluid than normal. I have just ordered lots of coconut water from Amazon, it's still not fresh, but it's better than the dyes in gatorade. Thanks for the encouragement to go a little bit healthier.
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Day 5. When does this stop? I'm sorry ladies, but I'm having a harder time with this than I bargained for. I'm due to go back to work on Thursday and that just seems completely impossible to me right now. I feel like I've been dragged behind a truck for miles (literally, my skin even hurts to touch.) and I just can't stop crying. I can't even describe how completely wrung out I feel. I'm waiting for a call back from my MO to make sure this isn't any cause for panic, but nothing helps me mentally at the moment. Also started my day off with a gushing nosebleed. Starting to feel like I need an exorcism or something. More tears
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Ugh Knardo - I'm glad you called the MO, maybe there is something they can give you to help with the symptoms you are having. Hang in there honey, I'm so sorry:(
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KNardo88 - So good of you to call your MO and nurses, they should be able to help you navigate this! Keep listening to your body - especially when it comes to going back to work.
I'm so sorry you're feeling like this. This may not make any difference in how you feel, but I'm just imagining if you're feeling that worn out, think about how TERRIBLE those dumb cancer cells must be feeling!! It's working its magic my dear, unfortunately with terrible side effects.
Perhaps your MO can have you come in for a couple hours of IV fluids to help with energy and if you feel like you're not getting enough hydration?
Did you get a Neulasta shot? I've heard that can have its pro's and con's - not having it can cause weakness due to dropping WBCs, but having it can cause muscle pain and fatigue as well. Also, do you have a prescription for Ativan? It may make you super sleepy, but can help calm nerves if you feel like you could use it. May be worth having a discussion with your doc about it.
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I am about half way through my 1st AC treatment. It's not too bad. I haven't had any issues really the A part was nothing. The C part my eyes had a little burning sensation happening & a little sinus burning in my nose in the very beginning. The nurse told me this was normal & if it got worse to let her know & she would slow it down. I have noticed if I keep my mouth busy it goes away...I have been chewing ice non stop because the taste in my mouth is pretty.. yuck! I wouldn't really say it's metal or metallic tasting...it tastes to me like I just swished a bunch of peroxide in my mouth! It is not appealing at all! Anywho...it's all good. I have my hubby here with me & my 1st one is almost over! Yay! ....this is my 1st photo I've shared with yall too! I chopped my hair off ( it was way past my shoulders) 2 weeks ago for fear of it all falling out soon....I've even been scared to touch my eye brows (they are a hot mess)! The bottom pic is me before the hair got chopped.....soon i will share some bald pics.....I was thinking I'd go get a shorter pixie cut right before chemo made my hair fall out...I haven't yet & not sure if it's worth wasting money on at this point....maybe I should just let my teenagers & 10 year old shave it for me? Happy Tuesday everyone! Back to eating my ice...
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hi ladies! So much to catch up on! This is day 4 on taxotere and I'm really tired!! My concentration seems to be going and it's hard to stay focused! Going to try an exercise later. I wake up with a bloody nose which I heard can be common because the chemo tends to dry out the sinuses. I've had some water boiling to add moisture back and that seems to help. KNardo - if your not feeling up for work, don't worry about it. Listen to your body and take the time to heal - emotionally and physically. I have noticed drinking a ton of water does help with the itchy feelings and my moodiness. Your MO can give you IV fluids that might help. Happy Tuesday everyone!
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knardo88 oh honey, I am so sorry that sounds aweful. I agree w NattyB, thinknof it as the cancer cells are all dying!!! I thinknfluids would be good too. Keep hydratng and maybe protein shake or some chicken soup or both. My hubby is here w me @chemo (#6/12 taxol whoot whoot) and we just prayed for you. Peace and blessings to you, e & ((hugs))l
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pepper43 – yes, will take your advice, ask myself that question each time. I used to blog too, so not particularly self-conscious ordinarily, but this time… geesh!
DistrictGirl – thanks so much for putting up your supplement regime. So helpful. I'll be sure to post the same when I see my naturopath on Thursday. You and I have the same treatment and close diagnosis. Will be interesting to see what he recommends for me. I might just print your list and bring it in with me.
NattyB – The facebook thing, right? Yet another thing to do. I didn't initially post because my 9 year old daughter was out of town and I didn't want her getting wind of what was happening through a relative or friend who saw it on FB. Now that my daughter knows, I feel like FB is the last communication hump to get over.
KNardo88 - I am so sorry. My heart goes out to you.
KNardo88 & Heathnet – I'm having an uncooperative nose too. Just adds to the fun. I did try Ayr for the first time this morning. It's a gel that you can use to moisten things up. Never in my life have I ever put anything up my nose except a finger and a rice krispy when I was 5 (my mom called the paramedics). Now I'm swabbing with a q-tip and inspecting daily to see if the nosehairs are still there!
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HEATHET: my nose bleeds every day now, not to run down my face but up in my septum and sinus behind my cheek bone below my eye. it hurts & a bummer to have bloody tissue every am. My MO says take Aquafor ona qtip and smutch it up in your sinus. I have been doing this each day as I get it to clot and it does help. Not pleasant, but...helps.
southern Yankee: you look amazing!! Whoot whoot, one down!!
Hi to everyone else!! 6 done for me! HUZZAH
pepper: thanks for info on 21 day thing. I will focus on the % of protein/ carbs/ fats. I have fitness pal to track my small meals & calories. if u have advice on calorie target that would be helpful. maybe I can get video for excercise bands. I have been walking mostly. I have some bands from PT after carpal tunnel.
Supplement list: melatonin at bedtime, L glutamine, multivitamin w/B12, probiotic, fiber gummies, calcium/magnesium/zinc w vitD, flaxseed oil, fish oil &evening primrose (omega 3/6/9)
The big problem w antioxidents on chemo or rads is you don't want to protect the cancer mutants along w/the healthy cells.
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KNardo88 sorry to hear of your struggles. I have had the experience too of just barely touching my skin was painful. I wasn't sure if it was the chemo meds or the cold capping that maybe had caught up with my head and shoulders. 24 hours later though, and while that sensation is still there, it is not nearly as noticeable. feels more likes sore muscles now, instead of skin painful to even the slightest touch. I hope you recover quickly from that
Not fun. -
Good grief,
I have been away for just a few hours and the boards are burning with posts. This is quite a busy wee (just for you Labscientist) thread. I think that is great that we are all here for each other and helping each other out however we can. I am not sure what I would do without you all. I feel like you are all members of the family!
Labscientist, I love that you and hubby are actually praying for another person during your own chemo infusion. How lovely are you both???
Knardo, I am so sorry to hear you are feeling rubbish. But as has already been said, with every nauseous feeling, with every ache and pain, with every bleed or headache, know that this means those cancer horrors are getting their final warning form your chemo! How wonderful that chemo is. View it as your best friend. Love it, and just take comfort in knowing that you are going to get there. You are strong and you have got through the pain of a diagnosis, a biopsy, tests and scans and now this chemo is just ONE more hurdle on the way to health and a glorious and free life again. I love the example Labscientist uses when she says your life has been 'hijacked' by this cancer. It has and this is the best description for it. But the chemo is going to get you out of that hijacking situation. First of all, DO NOT worry about a workplace. They can and will manage without you. If you are not fit to return, then do NOT. Take time to get strength back. I find dozing helps me big time.
Pepper and NattyB - in terms of ovaries, I will ask more questions about this. I will see what experts say for my situation. I am not sure if we are automatically checked for BRCA or not. I will need to ask. But next appointment, I am going to ask for my full lab report and for information on staging etc. I STILL have no official stage.
Krekre, I opted for keeping my business as mine and only shared with very close family, like mum, dad, sister and brother-in-law and that was it. My nephew and niece don't even know as they were doing school exams and we did not want them to worry. I have told one or two very good friends and nobody at work. I am off work for 6 months, so I am guessing that they have sussed something pretty serious is up, but again, I can state, I went insane for 6 months and just could not come to work!!! I am sure they will buy that one from me!! haha. But seriously...you decide who you are comfortable telling. I think in terms of moving on and forgetting about this awful period in our lives (well as much as we can do that), we are maybe able to do this better if less, rather than more, know about it. However maybe that is just me. Maybe I am just way too secretive .
Moondust, I am indeed from the beautiful and lovely Edinburgh. I am your typical Scottish lassie, green eyed, a wee lilt to her voice and partakes in eating the shortbread and haggis every week! I love the bagpipes and my country even more. No different to you mad Americans. Laughed about your comments on Glaswegians. You are quite right, Edinburgh is wayyyyy better than Glesgae!
Districtgirl. Hope you are feeling OK after chemo? I am very interested in your advice on supplements. I am trying to find out information online about this stuff but would certainly appreciate any advice anyone has on this.
Bbbb - how are you doing? Keeping well I hope?
If I have missed people, (I know I have but I am tired today) then just give me a row! I deserve it.
I am going to hairdresser tomorrow as my lovely friend has secured me an appointment with his lovely brother who is going to look after me. I am looking forward to this trip and will find out about any stuff we can help to boost hair growth ladies, after chemo. I have now not washed hair for 6 days...OMG ...It is awful. I hate that. But tomorrow, I will get it washed and cut and feel lovely. I am only 4 weeks into chemo and I have full head of hair. But I have grey hairs...and cannot do anything about them!
Dolly
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hi everyone,
I am so grateful to read what everyone shares. I think I have chemo brain because I can't seem to express what I want,but am wishing everyone better results each day.
Anyone know the answer to this: I'm going to get neulasta at my chemo Friday. I have been told that steroids will help with the bone pain, but read clariton helps. Someone on this chain posted they are using clariton. Does anyone know if this works instead of or in addition to steroids? I don't want to bother my oncologist with this since I can ask Friday, but am looking for advice. I'm kinda scared of this shot but know I need it.
Hope everyone's day is better today than yesterday!
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this much hair has come out in the past hour while I'm at work! Yikes!!!! -
Nextyear I am using both steroids (the day before, day of, and day after infusion) and claritin In my regiment. The steroids are not related to the neulasta as far as I know. They are to help with chemo medication side effects. I did/am experiencing some body pains even with the Clairtin, but I was imagining based upon some reading I had done that I would be in a ton of pain. For me, it's been some consistent mild discomfort.
Sore skin to the touch in my head and shoulders, aches throughout the hips and legs and traps, but for me it has been manageable. It has been a nuisance, but I've been injured far worse. Not sure if that helps you, or if the claritin is helping me, but my experience has been some discomfort, but nothing I can't manage or deal with. I hope the same if not better results for you.
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This was me on June 17th for my first chemo. Now 1/2 my hair has come out in the last hour -
That's quite a pile Llroseworld and how super fun for that to be at work - I think I will be in the same boat soon. Noticed today that I shouldn't have worn a dark blouse to work... Some people worry about dandruff on their clothes haha. You are so beautiful and have a great smile! What kind of chemo are you getting - sorry if I forgot from earlier.
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Llrose, that is a fair old clump of hair. But it is just hair and NattyB is right you have such a beautiful face that you will get away with it totally!!!!!
Hair grows 1.25 cm every 2 to 3 weeks. That means it will be back on ALL our heads before we know it!
Well done on your chemo. When is next one? You beeen OK?
Dolly
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hi everyone!
I just finished my first session (AC). Feeling ok, but the stomach is flipping a little already. Hoping tomorrow will be a good day. It's nice to get over the fear of the process. Only 15 more to go. Ugh!
LJ I think the wig looks fantastic!
Moon dust I really like your hair. It looks great!
LLroseworld Your look great in your photo and it was so smart to, have a sign! I wish I had thought of that.
I just wanted to say hello and check in. More to come.
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thank you revnet. I'm doing the same steroid, dr is adding 1/2 a pill more for neulasta but I will definitely ask about Claritin. Glad your pain is limited. Wishing you luck and pain free days ahead!
Llroseworld- my hair did the same. My husband and youngest eventually shaved me to stop the molting. Tried Mohawk first, then my son used his skill to carve in the word cancer with a line thru it. I wore that proudly until the little nubs fell all out yesterday. I even went out without a hat to show it off. Don't sweat the hair loss, it will grow back eventually. Besides, this is the first summer I am not dealing with frizzy hair!
Everyone have a good evening😀
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I've been trying to do some research as to why I'm so disoriented during those days, so I decided to look up some side effects of the medications. Welp, turns out the anti-nausea Compazine, is an antipsychotic!! Hoo-boy... I'm not sure I like THAT at ALL!! I have another prescription for Zofran... any of you take that by itself? If so, are you happy with it?
Also - I bought some Senekot to help with constipation. It was awful the first treatment, so for the second treatment I took some probiotics and dulcolax - but still got stopped up and ended up taking milk of magnesia which made for diarrhea which was relieving but it lasted a day or two. SO, I bought some prunes and some Senekot. For anyone who has had constipation and are taking these, how often and how much?
My hair is not ALL gone... it will be 6 WEEKS since my first infusion - 4 weeks since I lost my hair, and I still have the same hair I had since buzzing it... I've had it shaped by a friend, and there are definitely bald spots, but I'd say it's done falling out - no need to wear a cap at night... I've been searching for info on it, and it seems like experiences are all over the place - some go completely bald and some don't... not sure when the completely bald would happen... maybe that's still going to happen??? I've had 2 infusions so far and you'd think that by now it would be all over... but then again?????
EVERYONE: Be careful taking antioxidants or cell-protecting supplements/foods during chemo... They are WONDERFUL for keeping your cells healthy and releasing free radicals, however they will ALSO PROTECT CANCER CELLS from the chemo. My MO told me not to take them during chemo, but once I'm done she HIGHLY recommends them. Just a word of caution...
SthrnYankee - you'll be okay - just take it one day at a time. Take your medication as directed and don't go rogue lol... that's where you can get into trouble if you get behind taking them. I started taking the L-Glutamine yesterday for the neuropathy. If you are planning to ice your hands and feet you probably don't need to take any, but I think there are a few gals here doing both. I love the pics - your simply adorable!
lilyp6 - my periods are ridiculously heavy - started mine during my second treatment - that was fun. It seemed to last a LOT longer than normal. I know my hematocrit and hemoglobin levels were low as well. I just make sure I eat lots of green leafy veggies and broccoli since I rarely eat red meat either.
NattyB - I drove by a natural healing center the other day and saw that they offer nutrition services... I think I may make an appointment as well. I get that restless leg thing too... Like Pepper43 - the 3 of us are very highly ER+ and PR+ so shutting up our ovaries and lowering body fat is key... just trying to figure out the best way to do all that...
Daczahow - I'm sorry - looks like this is your second round of chemo. I would not be looking forward to it either... Hopefully this board will bring you some help.
Kdlee - I can't speak to your chemo SEs as we are on different regiments... you'll know how things go after your first treatment. My MO said that how we react to the first treatment is indicative of how we will react to the remaining treatments... some SEs just get a little worse like fatigue and aches.
Labscientistmom - LOL, I do love the days I'm hyped up on steroids... Those days I'm unstoppable!! You mentioned that you are taking Omega 3-6-9... I did some reading about Omega 6s and thought they caused inflammation... read that our diets usually result in an imbalance of Omega 6s and Omega 3s (waaaay to much Omega 6s) and as result, we really only need Omega 3s... would be interested to hear what you've read about that as well... Although maybe your diet is much better than mine lol... I'm glad you mentioned the antioxidant caution as well - you must have read "AntiCancer" ???
krekre - I haven't "come out" on FB yet... I don't want it to be all I talk about - but I do admit that I wish some of my FB friends knew about my situation - but how do you bring that stuff up? I've been slowly telling people as I can - but I guess I'm just not ready for FB to know yet. If it gets out then so be it, I've told everyone that it's not a secret so they are free to tell other mutual friends that they think would want to know.
DistrictGirl - I have my MM card... I hardly use it - maybe I should try it more often for some of my SEs. I plan on asking my MO about it on Thursday. Watch out for the CoQ10 as it is a cell protector... don't want to protect those cancer cells during chemo!
Pepper43 - I am taking the following supplements: Omega 3 (reduce inflammation), Biotin (hair/nails), Keratin (hair), Vitamin D3 (reduces inflammation), B6 and B12 (not sure LOL), L-Glutamine (neuropathy). I too am HIGHLY ER+ and PR+ so am very much considering the Oopherectomy...I worry about AIs and bone loss though - I too am trying to get my fat percentage lowered to get rid of as much estrogen as I can...
KNardo88 - UGH, those damn SEs... silly question, but are you taking everything as prescribed?? I get the nosebleeds as well... what did your MO say?? I'm excited to see what your naturopath says about supplements - please post when you get the chance!
Heathet - so glad to see you up and at 'em!! You're on the upswing girl - you'll have the next 3 weeks to get better and better. I too get nosebleeds - I've read its the low platelet counts... not sure what to do about it, but wait it out??
Dolly - Read a book called AntiCancer - it is fantastic and full of information about what to eat and what supplements to take. I think someone else mentioned it before me - but I apologize I cannot remember who it was!! I hate taking credit for something that someone else did...
Nextyear - I get the Neulasta shot - I take Claritin AND Alleve. I take Claritin 2 days before shot and through days 4-5. I take Alleve around Noon on day 3. Even all of this never seems to take the pain completely away, but then again, I always get a little twingy in my hips every now and then so maybe I'm just susceptible...
Llrose - Oh my - that is quite a wad of hair - and at WORK! How awesome... ugh. You okay???
Love to you all,
-Keely
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I'm new to the discussion boards and need to get caught up. In the meantime, I started weekly Taxol and Herception treatments on June 9. Thursday will be treatment #4. So far my side effects have been minimal. The day after treatment my face is flushed and hot and on day 15 I started losing hair. It is now day 19 and I am still losing hair, but slowly. I did not cut my hair when I started chemo and I am waiting to see what happens. What is everyone's experience on hair loss
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Hello everyone! Day two after 1st treatment and still feeling ok! Had to type my password in four times to get into this site so chemo brain may be coming on! Had neulasta shot today and hoping for minimal SE - took claritin and advil - we will see! Seems like everyone in the house is waiting for me to crash and walking on pins and needles around me (which I am taking FULL advantage of!) but I refuse to bow to the SE's!
Welcome to all the new faces! This such great place to share, learn and be encouraged! We will all get through this together!
Blessings to all from South Georgia!
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bbbb,
I just love that you got away with little or no SEs.
Dolly
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Hey Keely,
So that is both you and Labscientist now mentioned NOT taking anti-oxidants foods and supplements during chemo. Does that mean we should NOT bea eating things like broccoli and spinach and fruit and veg? Should I be going for an unhealthier diet during chemo?
I am confused....can someone tell me what to eat pleeeeeeez?
Worried I am doing more harm than good with all my healthy and organic eating.
Dolly
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Dolly - oh gosh I'm sorry... Not trying to cause confusion!!! I think where I'm coming from is the really obvious antioxidant foods like blueberries, cranberries, etc you want to stay away from eating tons of.
For example, when I'm done with chemo I'm going to make a point to eat a lot more chia seeds, flax seeds, blueberries, cranberries, sweet potatoes, and take antioxidant supplements to keep cancer at bay. While I'm on chemo I'm just making a point not to go hog wild on them nor take supplements due to my concern over protecting the cancer cells. I will still eat these things, they have a ton of vitamins and nutrients that are wonderful...I'm just not going out of my way to eat a ton like I will when I'm done with chemo. Does that help?
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Thanks for that Keely,
I have been eating all that sort of stuff. So I will stop and eat normal bananas and apples and stay off my blueberries and blackcurrants etc. Actually tonight for some reason I cooked some oven chips and a piece of fish for some reason. I was worried it was too unhealthy. Now I am not feeling so bad.
Thanks
D
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...I still eat healthy as much as I can... Fish, salads, greens, veggies, beans, etc. and am staying away from sugar, white carbs and meats. I just stay away from the obvious antioxidants... You're doing great Dolly!! Chips and a piece of fish sounds perfect!!! I had Indian food today... OMGsh it was just what I was craving. Back to salads tomorrow Hahahaha
Mmmmwwwaaah...!!! (That's me throwing you a big kisseroo on your cheek) 😘
I just noticed your link... I going to see if I can find more updated research... I know the book "Anti-Cancer" is where I got all of my information and it's a faith new book... But I will see if I can find some info that has been released this year. A lot of studies have been done in the last 6 years... Lol
I love how you research! I am much the same way so I love to hear more and am very open to discussing these things without getting defensive. I will see what I can find!
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I give up!!!!
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