Lumpectomy Lounge....let's talk!

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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    yeah ml

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  • JerseyRenee01
    JerseyRenee01 Member Posts: 221
    edited January 2016

    MLP3:

    Awesome NEWS!!!!!!!!

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  • ayr1016
    ayr1016 Member Posts: 228
    edited January 2016

    MLP3: GREAT NEWS!!!

    I am learning so much here. I will now not freak out if I pee blue after surgery ;) I still do not have my surgery scheduled. I called again today. Waiting! At least I will see my MO for the 1st time this Friday.

    LTF: LOOOOVE the yoga pose. I practiced yoga about 6 years ago and I miss it so much. I stopped shortly after becoming a single mom because I did not have time for it anymore. I was getting so good with it too. I like the hot and more energy based yoga. There was nothing like sweating out all the toxins and releasing all the emotions pent up inside. It was an addiction (yoga). My goal is to get back to it again. Just need to find the right studio. I'm intimidated though. I am out of shape now (was not when I did yoga before) and feel like I have forgotten everything.

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  • ivy2
    ivy2 Member Posts: 17
    edited January 2016

    LTF that pose is amazing! You must have a steel core!

    MLP I had 4 nodes removed with none showing cancerous cells. The BS told me she would only take 2 but I guess things changed on the table. I had the blue dye injected as well and it takes a while to fade, I was told up to a year but I'm already noticing a change and it has been 5 weeks. I also had a bone scan and a full body CT but both were precautionary. Sending you good vibes from Australia!


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  • MLP3
    MLP3 Member Posts: 534
    edited January 2016

    Thanks everyone!

    Ayr- Make a list of questions to ask on Friday. And don't be embarrassed to read from that list. My docs were happy to see me prepared and well informed. And the wonderful group here helped a ton

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  • HawaiiMom
    HawaiiMom Member Posts: 113
    edited January 2016

    Aloha Ladies, I have been lounging in the November Chemo group but It is happily going inactive and I will jump to your group. I too am a lumpectomy lizard, soon will be faced with the decision to make it a mastectomy or have radiation. Will be back to visit soon...i need to go pick up a kid from school, first.

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    HawaiiMom, Welcome! We're glad you're here. You've probably discovered that we're warm, comforting, informative and a bit crazy. Please tell us why you are considering a mastectomy? Were your margins clear on your 2nd surgery (assume that's why you had #2)? Do you have genetics going against you? We're here and many have been faced with the same decision.

    HUGS!

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  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    Sloan...you are right...LTFly is kickin' it and us with Fitbit!. It is motivating though...of course, I just typed that and realize I've pretty much been a slug today. It's so dang COLD here...hard to get motivated. Yes, growing up dancing doing the dishes with the fam- great idea and memory maker! I want to meet y'all in Cali- wish I wasn't on the other side of the country!

    Marijen- you shouldn't have to be playing a guessing game! I am so sorry you are having all of these issues. Would it help to get a 2nd opinion...someone else to read all of the reports and help you get this all straight?

    1-step- everything was done day of at hospital. No dye- radio stuff. One stop shop- it was an ALL DAY thing though. Surgeon ran into trouble patient before me so instead of surgery at 10 after wiring me up- it was at around 2. Got to hospital at 7 so long day and back to my sister's house around 6.

    Molly- sorry your son has been sick...hopefully, no one else gets it!

    Peggy- how are things going with you today?

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  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    MLP3- YAY!!! That's great news! Love the request for pants with big pockets...it IS going to be a bit crowded in there!

    Welcome, Hawaii- sorry you have to be here but this is a group of wonderful warriors...smart and funny, too. You are in a god spot. You might want to see what MelClarity has to share with you..seems like y'all are trying to make a similar decision.

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  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited January 2016

    BTW- I ASSURE you all- that monkey has WAY more hair than do I at this point....something to aspire to have, no doubt!


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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    aloha Hawaiimom!!

    Sorry guys! I take a 30 minute walk every day, and also tend to dance around a lot when I'm doing things around the house. Also, I am on-site IT support, at work I am constantly running from one desk to another to help my colleagues with our new computer system! Don't worry though, I have to chemo on Tuesday and will have a few low days after I'm sure!!

    I am really quite ready for my hair to fall out, I busted a game yesterday so now it is supershort, I'm starting to hope I'm not gonna lose it but I know that's false hope. I just want to get the show on the road and start dealing with it.

    image

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    HappyHammer, things are interesting. I have been having some shortness of breath (nothing new but since I'm doing so much lifting and running up and down stairs thought I should mention it to my PCP) so my doc said I should have a stress/echocardiogram test. I'll call tomorrow and get that scheduled. I had one done 2-1/2 years ago (pre-BC) and it was fine. However, I've had 33 rads since then and sometimes that can cause problems no matter how careful they are.

    And I do worry since I'm living alone and I'm not on a schedule. I don't work so if something happened no would miss me right away - concerning.

    But on the happy side, my realtor here is affiliated with some relocation service and he's found me a realtor in Spokane (where I'm moving to this spring/summer). I just talked to her and we seemed to click. Now if only all the stuff I don't want would magically go away

    HUGS!

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  • Brutersmom
    Brutersmom Member Posts: 563
    edited January 2016

    PontiacPeggy,

    Have they done a chest x-ray to make sure it is not lung inflammation from radiation?

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    BrutersMom, no they haven't. I finished rads 15 months ago, if that makes a difference. Anything is possible. I'll keep it in mind and mention it. Thanks.

    HUGS!

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  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    I hope all is well Peggy and it's something simple. We would notice your absence.

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  • blamoms
    blamoms Member Posts: 113
    edited January 2016

    I. Got my results today. All 3 of my lymph nodes are clear woohoo. I am stage 2b grade 3. Triple negative.I am Hers negative and no hormones were found. I will be doing chemo and then radiation. They have put a referral through to. The Oncologist and will take a couple of weeks to hear back. I don't know how long chemo will be but I am sure the oncologist will tell me. I sat in the room for 45 mins which let me tell you everything goes through the your head.


    I went into work afterwards to see if I can work a few weeks. I am going to try to work through my first chemo and see how I The nurse navigator asked if I had morning sickness with both pregnancies I said yes. Well apparently studies show if you are sick with morning sickness you will be with Chemo. I have never heard of that before. Now to wait for the phone call

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Blamoms, Sorry you will have to have chemo but at least you know what has to be done now - no guessing or waiting (well, not too much waiting). I hadn't heard about the relationship between morning sickness and chemo either but since I didn't have chemo, that isn't surprising.

    HUGS!

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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Peggy hope it is nothing!

    Blamoms sirry about Chemo but no lymph nodes is great! I don't know much about triple negative but don't worry too much about Chemo (if possible) it will be what it is and you may tolerate it well, lots do! Try to enjoy this time and remember, chemo sucks for a reason (it is a badass cancer killer!).

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  • octogirl
    octogirl Member Posts: 2,804
    edited January 2016

    Peggy, I hope they figure it out and it is nothing! Sending HUGS!!! and darn straight we'd notice your absence! Molly is right!

    Octogirl

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  • octogirl
    octogirl Member Posts: 2,804
    edited January 2016

    Hi Blamoms...I have never heard that about chemo and morning sickness: but FWIW, my nausea was much worse with pregnancy than with chemo! There are good drugs for nausea these days, I wouldn't assume you will have problems. Personally, I worked all the way through chemo, only missed two or three days of work. There are several threads on these boards for women doing chemo, you might find them helpful as well.

    Hugs to you!

    Octogirl

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  • Brutersmom
    Brutersmom Member Posts: 563
    edited January 2016

    Peggy I was told it can happen up to two years. It is most common 6 weeks to 6 months. Just a thought if the heart test come back good.

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    Thank you for all the encouraging words! I just remembered that I had a chest x-ray last June that was fine. I am a former smoker (quit 17 years ago) so there is that to throw into the equation.

    HUGS!

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  • 614
    614 Member Posts: 851
    edited January 2016


    Dear Peggy:

    We would ALL miss you if something were to happen to you.

    Dear HappyHammer:

    CONGRATULATIONS!  I love the monkey.

    Dear Blamoms:

    I'm glad that you finally got the results and you now know what to expect.  We are here to support you.  Good luck.

    Dear MLP:

    Good luck on Thursday and Friday.  Congrats about the genetic testing results.

    Dear LTF:

    Amazing. You are my inspiration. I tried yoga once with my daughter.  We were watching a yoga DVD and doing yoga.  My daughter said to me, "Mom, what are you doing?"  I said, "I'm doing what the yoga instructor is doing."  My daughter said, "I see what she is doing.  You are not even close to doing that.  I can't figure out what you are doing!"  Apparently, I need to keep things really simple.  Walking and only walking is what I am capable of. lol

    Good luck Brightsocks  and Ary.

    Dear Molly:

    I hope your son feels better soon.

    Dear Brit:

    27 nodes!  Wow.  You are a trouper.  Good luck with your next round of chemo.

    Dear Hawaii:

    Welcome and good luck with your decision.

    I know that I am forgetting 2 people.   Sorry.

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    BrutersMom, as we know, anything is possible!

    HUGS!

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    I'm glad you'd miss me (thank you!!!) but that wasn't exactly what I meant. When you're working you're expected to be at work and someone often checks if you're not there. I don't have that safety net. The kids are out west. Even when hubby was in the nursing home, he would have called or had me called if I didn't show up. It's a rather unsettling feeling.

    HUGS!!

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  • april25
    april25 Member Posts: 772
    edited January 2016

    Peggy -- Good luck with the heart-tests. Probably a good idea to get it all checked out no matter what. They usually don't discover anything. You've been doing all that work climbing stairs and cleaning things out--so maybe it's just all the extra exertion?

    (I get rapid heart-beats and palpitations and have some calcificaton in the arteries and they still never find much in the ekgs and echos and ultrasounds... Which is good, I guess!)

    HappyHammer -- I'm so glad your rads are over! I hope you never worry about venting about it. Rads aren't terrible, but they are no fun, either, and if you can't vent here, where could you vent? We all definitely know how rads can be like! Hope you heal up quickly from it.

    Sloan & Molly -- Hope to see you soon, Sloan. I'd love to talk about travel. Sorry I won't see you, Molly, but work is work.

    --

    I've never been on a Rick Steves tour. I bet they're fantastic. I was traveling with my dad before he passed, so having a good tour to go on was just fantastic. We were taking Tauck tours for a few years there. And my sister's family with my little (at the time) 9 year old nephew would also go (fun to have 3 generations).

    ---

    I had everything done at one time and place (Cedars-Sinai Breast Center) for my LX-- wire thing in the morning, then the dye must have been done during surgery, because I don't recall it happening at all.

    Only 2 nodes taken for my SNB.

    --

    This forum is so cool! I LOVE all the cute pet photos. And foodie talk. And travel talk. And talk about friends and not-so-good friends. And downsizing and de-cluttering. And yoga head-stands during chemo and playing tennis shortly after surgery... And astounding stories about jumping in open graves at a funeral! Wow!

    No wonder it's so active! All that and all questions about lx's and weird swellings and aches and pains and other things answered, too.


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  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Blamoms, great news about clear nodes!! I would put together a list of questions for your medical oncologist about treatment options and what his opinion is about whether you should consider BMX due to your triple negative status. The positive news is TN generally respond well to chemo and your recurrence odds decrease after 5 years. There's a Triple negative group if you haven't seen it already Triple negative thread.

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited January 2016

    This IS a cool forum. It helps that we are all a bit "off-center." And so loaded with information and warm, accepting comfort. Can't ask for more.

    April, so far every time I've been concerned about my heart, it's turned out fine. I'm paranoid I guess.

    HUGS!

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  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    Poodles, I just read your graveside saga. Maybe grief and living with her crazy husband drove your SIL off the deep end. My sincere condolences to you and your husband.

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  • Molly50
    Molly50 Member Posts: 3,773
    edited January 2016

    April, we'll have to try to meet at some point. I know you will love Sloan.

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