The Hermit Club

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  • camillegal
    camillegal Member Posts: 16,882
    edited August 2014

    Lily I'm so glad u wrote more than one sentence this time. Before I came to BCO I never realized all that some of u go thru--it's got to be nerve wracking--I hope and I know it will be good this time.

    Jazzy I'm always trying ro be positive, but that looks painful to me--right on top--now slow down til u heal Missy.

    Bippy let us know how this last day went and tomorrow u can have coffee at u'r leisure.

    Chit 2 cups of coffee and again I'm ready for a nap.

  • Lily55
    Lily55 Member Posts: 3,534
    edited August 2014

    THanks - I am very aware that my current procedures are cosmetic (reconstructive yes) and not cancer treatment like poor Mags and Blondie are dealing with and I am trying to be less hermitty and ashamed of having had bc and been left mutilated in real life......took out funeral insurance recently and had to disclose my bc history and the anticipation was worse than the reality but I am still left with feelings of disquiet rumlbing away inside leaving me feeling unsetlled, even though I know the Agent will never reveal it socially or to anyone other than the relevant company personnel (we are a small community here...most people know you via one or two people removed)

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2014

    Lilly- reconstruction is very much a part of this process of treatment and it is very important you get what you need. I am on another thread with a woman who is also preparing for some re-do of her reconstruction as they screwed hers up too. Seems that more than a few women go through this, but think it is awful.

    I know you have ansgt about another surgery. Do you happen to meditate? I started doing it again recently and did it every morning this past week as I approached my little procedure yesterday. It helped me to stay calm, focused, and to do what I had to do. It helps me alot and thought I would offer it up as a suggestion to help you. 

    Thank you for telling us your date so we can be here with you as you go through this. We will all be in your pocket the day of as well as before and after.

    Cami and Sally- the bandage looks worse than the incision underneath. It is just a bigger bandage and covers more due to the anchoring of it. I plan to leave it on through tomorrow morning when I will take a shower and wash my hair (they told me today was okay, but will give it another day). Then I will put a lighter dressing and cover it with a cotton headband.  And I am slowing down to take care of myself, I promise! 

    One of my friends suggested I get a mohawk. No way!

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited August 2014

    Good morning, Hermies! Actually got a little bit of sleep last night, not a lot but it may be enough to break the insomnia cycle. My cousin has run off with a man. LOL a fellow from choir is taking her with him to our local tv station's version of antique road show and she took her mom's treasured box that purportedly belonged to Marie Antoinette. Who knows? Stranger things have happened. Ok maybe not. So I have the house to myself for the afternoon. Will I do something crazy? Will I watch soaps and eat bonbons? Will I dance around to 60's rock? 

    Probably not. I'll sit here reading BCO and Facebook, drink my good juice and take all my pills. Because I'm a boring person and I have no life. And I'm good with that, for now.

    Bippy, yay! Last day! What a feeling!

    Monis, have a great vacation with your family! Get lots of love & hugs, hopefully no drama like some of our families provide.

    Jazzy, take it easy and let your head heal. Can't have your brains falling out before you start your next chapter!

    Everyone, gentle hugs.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2014

    Mags- did you say you have Netflix? I saw a movie that really has stayed with me since I watched it called, Face of Love. Annette Benning and Ed Harris with a small part by our dear Robin Williams. It is a love story of sorts, but a lot more than that too. Excellent acting and good story line.

    I determined today a head band on the head not a good idea right now. Too much pressure on the incision area, so I am doning a cute little hat for now when I need to cover up. I think in a few more days, it may be more do-able.

    Speaking of heads and hair, how do you like you new wig Mags?

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2014

    Mags u r not boring. U'r healing for as long as it takes. And how exciting for u'r cousin, u have to let us know.

    Jazzy keep all pressure off of u'r head for heavens sake, u silly.

    Lily I hate to say this but a lot of women re not happy with their results. And I think the PS would know how to make this bettr but for some strange reason they don't Please don't think of u'rself as so different, u mind is in turmoil and u'r healing is hard on u. U'll get there Lily, but never be ashamed of how u look--please u'r heart is beautiful and that's the most important thing about u.

  • Teka
    Teka Member Posts: 10,052
    edited September 2014
  • SallyS70
    SallyS70 Member Posts: 947
    edited August 2014

    Lily, we posted at the same time earlier, so I just saw your post.  You have been through a lot.  We will be thinking of you on September 1st, and, of course you are in our thoughts now as prepping for surgery is a stressful time too.

    Jazzy, it's good to hear that you are slowing down to heal.  The thought of taking that bandage off makes me grimace.  I hope the tape comes away easily.

    Mags, please say you will update us on "the box."  Dark chocolate---raspberry bon bons ... yummmm!

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited August 2014

    Mags alone time is good, 

    Last day, exciting something to look for when to

    Lily I think of u often

    Jazzy, no pushing youself. Let it heal make sure u carry a big pocketbook to catch the brains if they fall out

    Hugs to everybody else

    Me still not feeling well, who knows what is up, yep them kids live here. Decided not to do hospice,  have a limpmon my leg n think ther3 is one on my arm, so have to figur3 that out first

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited August 2014

    Well, cousin's little box turns out to be a sugar bowl, French, but not as early as Marie Antoinette. But for such a small thing, it's actually worth about $250.00. Best thing, she had a great time doing it.

    Jazzy, I'm not that crazy about the wig, I might take it to my hairdresser and have him style it and maybe trim to shape. Can't remember if I posted a pic? I actually took one. I haven't worn it out, but I wore it on our anniversary, since DH seems to love it, but it was off before the end of the evening.

    The afternoon flew by, DH came home early, we watched sciency stuff on tv. Best thing: quiet tummy.

    And so to bed. Nini Hermies! Hoping to sleep all night. (Glass of wine might help?)

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2014

    Blondie I think of u all the time, now u found something else too. Chit--u are going thru way to much. and I'm so sorry.

    Mags my D got me up now and I didn't make it to the bathroom, PITA literally. took some pils, hope it's not an all day thing. My tummy doesn't get upset and I get no warning it just comes whenever it feels lke it==drat. But at least during the day I'm awake.  Now I am tho.

    My sister had an MRI cuz she said her head was not feeling right--they found her mets on her skull years ago--But the MRI was good so she was relieved, don't know why she's not feeling right tho. And her other tests came out good too. So the mystery shall remain.

    Well at least I have TV to watch for now. Hope I'm done.

  • Lily55
    Lily55 Member Posts: 3,534
    edited August 2014

    blondie this may not be your thing but i started to feel a lot better when i took curcumin, it is anti cancer but also anti inflammatory and i really noticed a difference after two weeks of taking it. For best results you need to take the liposomal version as its not absorbed well otherwise

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2014

    Good morning hermits- checking in here before I get my day going. I hope everyone has a good day. Or at least a reasonable one?

    Blondie- I am sorry you are not feeling well. I am going to PM you to talk a bit more one on one if you are willing.

    Mags- yes you did post a picture of you and the new wig when you got it. I was watching something on QVC the other day with some cute wigs and it made me think of you. Perhaps you only will wear it when you really need to. In most cases, you are staying close to home right now and may not need to wear it. My sister wore hers to work during her chemo treatment and said by the end of the day, it was just too hot and very itchy. Her hair grew back nicely, and yours will too.

    Lili- curcumin is the active ingredient in turmeric, yes? I have heard a lot about that as an anti-cancer agent.

    Cami- I am sorry to hear the D is plaguing you. I hope it eases up and you can rest. No doubt you may be working today too....

    The compression bandage is off and incision looks okay. I was able to shower and wash my hair, and that felt SO good! I have really come to appreciate the value of being able to take a good shower after some of my procedures and treatments the past few years. Simple pleasures are the best, and a nice hot shower is one of those in my book. I now have a gauze pad on top and headband to secure everything up top.

    I woke up a bit headachy this morning, but that just comes with the territory with having surgery on one's scalp. Took a couple Tylenol and already feel better. I am going to go out this afternoon, I have an apt this afternoon I must do, but otherwise, taking things easy this week.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2014

    Good morning again--my eyes are closing, right now--but Jazzy that noggin of u'rs take care of it.

  • SallyS70
    SallyS70 Member Posts: 947
    edited August 2014

    Cami, I hope your D passes quickly.  So glad your sister's tests turned out well ... so scary.

    Mags, it's interesting that the sugar box is worth that much ... and nice that your cousin had fun ... interesting fun.

    Jazzy, take good care of yourself ... you are so wonderful about taking care of us:  now it is time to take as good care of yourself!

    I hope everyone has something good that is unexpected happen today.  Unexpectedly, my brother called me yesterday.  We usually communicate by email.  Talking with him was a treat.

  • Lily55
    Lily55 Member Posts: 3,534
    edited August 2014

    yes Curcumin is turmeric 

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2014

    Sally- it is so nice when someone calls you that you normally communicate with otherwise. My BFF in Connecticut called the other night to check in on me post surgery and it is always a heartfelt conversation when we do talk.

    I know exactly how you feel. Phone calls and face to face with folks is a rare treat anymore. Glad you had a good chat with your brother.

    And I am taking very good care of myself this week!

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited August 2014

    Still not feeling good cant put my finger on it, slept most of the day, grandchildren were here. 

    Jazzy that is fine what sally said

    Hugs to all

    tomorrow am supposed to hang with friends at a pool in jersey. 

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2014

    Blondie I do hope u feel better by tomorrow and can enjoy u'r friends. (((HUGS)))

  • SallyS70
    SallyS70 Member Posts: 947
    edited August 2014

    Blondie, I hope you feel better tomorrow so you can hang with your friends.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited August 2014

    Thanks me too, I will go anyway dont want to disaapoint people.

  • Bippy625
    Bippy625 Member Posts: 890
    edited August 2014

    hi hermettes, my hair is givin up the ghost. Day 13, there it goes!  Behold!  The year of suck begins in earnest!  I would seriously rather shave it than touch it to have loads of come out in my hands....like it is doing. Well, part of it all.  At least i need not worry about styling it for months!  I hope i have a fine lookin skull.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2014

    Bippy- you have a good attitude despite what is going on. Sorry the hair is going. 

    Have you thought about going to a wig place to get something for the interim? Wig shops have other cool stuff like little baseball caps with hair hanging down. My sister got one of those during her chemo, and wore it when she would go out to the store, etc. during that time. 

  • Bippy625
    Bippy625 Member Posts: 890
    edited August 2014

    jazzy, you have been in my thoughts. How you doing today? 

    Blondie, ditto! How are you? 

    I bought a wig and a little beanie before chemo, and will get some skull caps too....i got my hair cut short already, and got the wig trimmed a tad.. suddenly i am fee of a lifelong hair obsession. I hated any grey, always colored it, and kept it very coiffed. My hair and boobs were my best features!  Ha. Well, i suppose i will have to develop a personality now :). Seriously, it is liberating in that when i am done with tx, no more expensive coloring, etc. for me. I simply do not care if my hair is grey now. 

  • Teka
    Teka Member Posts: 10,052
    edited September 2014

    *Good Morning Hermits*Nerdy

    Yesterday, I did OK with 6-month follow-up visit with MO.

    January will be the 5th year out from BC diagnosis, but not until May for the 5th year out yearly mammogram.


    https://fbcdn-sphotos-g-a.akamaihd.net/hphotos-ak-xap1/t1.0-9/1044780_686838158061832_5878132120096654039_n.jpg

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2014

    Teka- congrats on making it through another follow up and heading into the home stretch to your 5 year anniv. I bet it feels good to have things done this week. Now you can relax and enjoy your weekend!

  • Lily55
    Lily55 Member Posts: 3,534
    edited August 2014

    Wow well done Teka.....you kept that quiet.........

  • Teka
    Teka Member Posts: 10,052
    edited September 2014

    Jazzy and Lily,

    Thank You!!

    I'll sweat bullets come time for the 5th year mammogram!Shocked

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2014

    Oh Teka good for you.

    Jazzy it sounds like u'r taking it easy for once   Thank you.

    Oh Bippy--just get u'r head shaved, it's much easier on u. Wear pretty scarves and earring too that sparkle--I think I wore my wig once, but always wore different hts and scarves---while I was working anyway but when I was home I went a la naked--But I did have ugly hair so it was no loss for me. I really feel bad for women who have pretty hair. And when I'd pull up my underwear I'd have to move my boobs, so another no loss for me.

    I already had calls this morning--we did get loads of rain and North or South of us (I get cofused ) got a lot of flooding so we were lucky--Big Thunderstorms tho during the nite, my cat hid so it woke me up.

  • SallyS70
    SallyS70 Member Posts: 947
    edited August 2014

    Teka, so happy that your 6 month follow-up went fine.  

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