The Hermit Club

camillegal

Oh Mags there is a script u can get, I still have it, but u have to give it time anyway--I always think when it's over it's when it's ready to be over. But that's my stupid attitude, so I just live with it, bit remember this is usually jut thru chemo and then again u might not have it next time. Do u get it every 3 weeks, I forgot. Every time u might get different SE's, make sure u take u'r vitamins and drink preferably something with electrolytes (water) in it. Sorry this is happening, wear Depends too in case u can't make it to the bathroom--it really helps cuz u don't have to worry about getting there to fast. This is the only thing I know about thru all of this. LOL

Jazzygirl

Mags- so sorry you are suffering through the D again. I agree with the others, you may need something else to manage the continuing D. You may be at risk for getting dehydrated quickly. Call the MO for something to help with this, as they are there to help manage all this stuff. 

Teka

*Hermits*

blondiex46

Mags so sorry..make sure u r drinking to get the chemo out of u.. the big d is annoying. Not sure which is worse beib constipated or having d. 

Jazzy so glad to hear about the dr appt cause u haveen running urself ragged..

Cammie u r the best

Teka (((((big hugs)))))

Going to mo tomorrow,  discussing hornonals , we will see what I decide. 

Luv

Me

Jazzygirl

Blondie- vacation will force to me to slow down and relax. You are right, this girl needs to dial it down a notch or two. I took things easier today and am going to bed early to get some good rest. I hope you sleep well my friend.

Jazzygirl

Good morning hermits- off to get blood work done and a visit to the eye doctor for second eye test. Have a good day!

SallyS70

Jazzy, why a second eye test?  Hope you have a great trip! 

Mags, hope the big D has settled down.  I did not have chemo, so I don't  know about preventative meds. 

Teka, I sure do like the graphics you post.

Cami, what's Joey up to with his summer days?  It's already bouncing around the 100 degree mark here, so I don't see kids playing outside much.  But then again, kids don't seem to play outside like my kids did.

Blondie, hi.

 

Teka

Fortunately my son & daughter enjoyed the out-of-doors until teenagers then hooked on computers!

magdalene51

Big D and I had a quiet night. Started rumbling so I took Imodium and Gas-X before bed. I'm going to call the MO in a bit and see about a rx.

duckyb1

Shore this weekend................

Teka

Shade this weekend.

Lily55

did you know that every bull in the bull run is stabbed to death in the bull ring straight afterwards?  A very cruel so called cultural event 47 bulls died yesterday for human fun.......who are the real animals? 

Jazzygirl

Hi hermits- I hope everyone is doing well today.

Sally- the second vision test is something called a detailed visual screening test and HRT (takes photos of the optic nerve). They discovered a few years back I have something called "drusens" that are small califications in the optic nerve that can affect your peripheral vision. I have them in both eyes, but where they are located in each sort of compensate for each other. However, I have noticed sometimes I leave things behind since I have some minor impact to my peripheral vision so I just look around to make sure I don't leave anything behind. No impacts with my driving and doc said today no change, everything is stable. I will never go blind from it, a question many people ask around this. So my vision stuff is done now until 2015. And thanks for asking about this too!

Mags- I hope you were able to reach the MO for something to help with the GI SEs. 

Teka- shade looks so nice. Computers have their purpose, but nothing as nice as being outside in the fresh air.

Lily- I had no idea they did that to the bulls. How awful. Never a good thing to hurt animals for human pleasure/entertainment. 

I went to lunch today with a music friend (Jazzy plays with him in latin jazz classes/groups) and he just had an appendectomy. Fortunately it did not rupture like mine did, and I wanted to go see him but we ended up deciding on lunch at one of my fav salad places in town (kale chicken ceaser salad). He wanted to get out for a bit so we did today. He has a blood cancer and goes for maintenance chemo, so this was hard on top of all that. 

I could tell it helped him to get out for a bit to have something good to eat, but he was tired after being out for a short hour. I remember that well after my big surgery and encouraged him to take it easy and rest when his body says to. Takes a long time to recover from abdominal surgery no matter what kind you have. It was good to see him today, been worried about him. It was a good visit.

Jazzy is going to work on packing now and then has a massage later.

duckyb1

Horrible about the bulls.........never knew that.......how inhumane.......where is PITA now...........they are more concerned about "furs" then killing innocent animals for the "fun of it"..........very sad........

Jazzygirl

Interesting e-mail sent today from the one friend I told who "disappeared" after I got diagnosed. We have not really kept in touch much for a good year and a half. Today she surfaced on e-mail to ask how I am doing and talk about a few things. She lives back where I will be visiting this coming week but I have said nothing about being there and we don't have mutual friends so no way she would know. Well it looks like she will be gone on a trip this coming week anyways.

She made a comment to say "sorry we have lost keeping in touch." More like "you decided to go away when I got breast cancer."  

I am not going to respond right now, I will park it and also if I do respond, I will keep things light and superfacial and won't say anything about my trip back to CT. No need to bring things up that will only create more explanations from me.

I remember Teka once said we can say something simple as "check ups going fine, no signs of reoccurrence." I think that is sometimes all people need to know?

camillegal

Wow Jazzy that's strange she contacted u now after all this time and Teka is right keep it short, BUT knowing me I would say Yes we lost touch, well I was busy with my cancer and u were busy with u'r life. I know I'm a bitch--That was nice that u went to lunch with u'r friend. It's  good thing for him.

Lily after all these years I never knew that about the bulls, that makes me sick.

Sally we don't have extreme weather yet so Joey  is outside a lot swimming and stuff, he comes in makes hos lunch and goes back out--he's 10 now. So there are lots of things to do, But when he's home it's computer like crazy and he tries to teach me, but somethings I've learned but others just to complicated for me. We do have the air on tho the humidity is a little high.

Good pics ladies

Lily55

Surgery follow up all positive on whats happened this time BUT, and its a big BUT, for the first time surgeon mentioned that maybe i would be happy to stop doing fat transfers BEFORE I had a complete "breast" as I am so difficult and had such an extensive and rare infection...........I could not even mention this til now as I am beyond upset.  

I feel even more isolated and different now...........and I still cannot wear normal clothes as I am missing so much tissue above still, yes its better than before but still horrible.......and I am VERy aware of it living in hot sunny beach area where everyone has perfect bikini bodies, two breasts and doesn´t have to wander around like a hunchback hiding themselves, or sit down with an arm in front of their chest to hide side views etc................

camillegal

Lily I'm so sorry. Did he give u any other options? There must be something else or maybe waiting a while til u get more strength and u'r immune system is better?????

Teka

Lily,

I no longer wear a compression bra, let the girls hang, but hide smaller BC breast behind a shoulder bag which also makes a good sling to rest arm.   I've found the only way to be out & about during the Summer.   Yes, everyone does notice the difference in boob size!

Lily55

He said before last procedure that my only option is fat transfer as so much fibrosis, necrosis and as result of rads I don´t have good blood flow there, its one reason why i am using the Brava.  Iit seems my so called modified radical mx actually took some muscle away too, so I have ribs and skin in places, no tissue so harder for fat to settle.......it is better than it was before this last fat transfer, and feels better too, BUT its the first time he has ever mentioned stopping before I look normal.........and you can´t have fat transfer done more often than every 3 months, minimum.....he was not saying No but said review after each procedure.......I told him its already been too long since I have felt normal and it is no exaggeration to say every day I am hyper aware of my abnormality......and how I am just not like other people.

.I am a lot healthier than I was before but I am a difficult challenge clearly.........there is not even any room to put in a TE to inflate!!

Teka

Jazzy,

I think all friend needs to know is the following------------------------

I'm still above the sod.

Lily55

Teka - its very different when you have nothing on one side.........nothing hangs properly and I could never go anywhere hanging loose.  I don´t even go out in the garden like that without a disguise on, and even then I feel ultra self conscious. I´m a DD cup so its pretty noticeable

Teka

I'm a 44 DD/E with lymphedema, just glad not to be in pain!

I feel uncomfortable when individuals look at my breast.   I'm an old bag!

*Hugs*

Jazzygirl

Hi hermits- got a nice massage to unkink my body before I fly this weekend. Going to relax at home tonight and then tomorrow finish up and get ready to go Sunday am! 

Cami- my initial response I wanted to write was "thanks for touching base, you still SUCK!" She went on and on about going to visit some distant relatives next week who are aging and have cancer and on the way out. I thought that was odd to share, given how she has been with me but perhaps she knows she has been a turd and trying to make herself look good in my eyes. But I don't care what she does for others, I care about how she treats me. I may do a Teka and say I am still above the sod or just not respond and send a generic Xmas card. I think she is hoping we can just pick up and go on, but Jazzy cannot pretend things are the same.....

Lily- you really need some good reconstruction options. It must be terrible to live around all the bikini beach bunch with all this going on. I am sorry things are so hard. 

Hope everyone sleeps well. Sweet dreams hermits!

Lily55

Jazzy i wish!! There is only this option. I consulted other surgeons before and none were positive and warned high risk of failure of DIEP, they dont seem to do TRAM here, no room for TE so lat dorsi not an option plus post rads plus post infection makes it more risky and difficult. I do agree with the surgeons as i can see and feel the challenges they face myself.......I am struggling to keep myself going really

camillegal

Jazzy u must be really serious talking in the third person LOL

Lily I wish I could give u comforting words but I know u feel terrible and like Jazzy said it doesn't help being around bikini people. And I'm sorry there are no more options for u, but I'll tell u what I would do if I were you, of course it's stupid but this is how I think. There is a new show on the E channel called Botched and they fix mostly breast and noses and do what other PS's have said can't be done and what PS's have screwed up but of course they have turned down people that they can't help but have help people that other PS's wouldn't have ever done--but Lily I write to everyone about things some I get accomplished and other not so much.

Jazzygirl

Good morning hermits- slept well after having a good massage.

Lily- are there a couple things you know make you feel good every day? Do you know what those are and can you be sure to incorporate them into your day to help you along this difficult path? It is so hard to feel positive when things work against you all the time. Those bikini people may have their skinny bodies, etc but you are so much more than them. You are a fighter whether you see that or not (I do). You have your life and all the possibilities that go with the future. I want you to be happy again.

Cami- I like writing in third person, LOL! I decided I am not going to write back to that woman, but do the thing I had told myself I would do.  I will send a Xmas card to let her know I am okay and that is it. I don't want to re-engage into the e-mails and lets pretend like we are the way we were. She cannot be the kind of friend I want in my life (you know the ones that don't split when things get hard). I have made my decision and feel good about moving on.

Last day before I head back east. Going to check in on line for my flight in an hour, head to aqua zumba and then do some music downtown for a few hours as part of the NM Jazz Festival. Oh and I saw Natalie Cole is going to be here in August and just got a ticket to that! I saw her out in Southern Cali a few years back and it was one of the best performances I have ever seen anywhere. Can't believe she is coming here! Diana Krall and Natalie Cole concerts all in one summer! I am one lucky Jazzygirl.

Teka

Wish my lovely flower bed.

Teka

Jazzygirl

Hi folks- fun afternoon (although hot and steamy here today) with the kick off of the NM jazz festival featuring a creole band. Great music and got to see a friend I have not seen in over a year and nice visit there.

Sharing a funny photo of some of the folks dancing. The guy without his shirt on in the cut off is a fixture in this town and always shows up shirtless with the cut offs at every outdoor music festival. He always gets out there and shakes his thang too.