The Hermit Club

Spookiesmom

Love it Jazzy!

grammaB

Good one Jazzy!! We must have been posting at the same time!

Lily55

i am very very irritated beyond patience, men NEVER learn and i am worried about having had rads as everywhere i see it causes lung cancer and my breathing not been the same since then.....

Winter how r u ?

Teka

Lily55, "winter" if referring to member "wintersocks" isn't on this thread.

But I'm here.

Sadly, you continue to endure ongoing BC misery. I hope your breathing improves with time!

Lily55

hi teka and thanks........its not a normal feeling lung ........

Teka

Have you had a chest x-ray?

I had to be convinced no problem with left lung, but diagnosed and medicated for gerd.

duckyb1

Teka you are right.....I had a cough with what seemed like breathing difficulty........had a Rads too.....however medicine I was on including an AI which can cause a cough, which the cough can cause breathing problems.......finally went yo a Pulmonary specialist! they did 2 breathing tests....first was fine, but he wanted to check further with I think it was called..."Methocholine".........failed that test miserably.....guess what......

Asthma.....nothing to do with Rads, medicine, etc.......although my RO did tell me the very lower left side of my right lung could get hit with the beam, but would cause no damage........the asthma just happened....the pulmonary spec. said Rads had nothing to do with it, and probably had it before the cancer......

camillegal

Hi guys I've been busy.

Jazzy funny one.

Gramma Jazzy is right it takes so long for our bodies to recover and we don't realize it. I think every 24 hrs u'r body does amazing at first --then after a while as u feel better--u hit a plateau and u seem to go backwards (my theory only) for a while but with any big surgery u can loose many nutrients in u'r body over time and vitamins so u should talk to u'r onc. So this way u have a complete blood panel and they can make sure.

Ducky I like that, it turns into a career, cuz it does, and doesn't leave a lot of time for other things LOL

Teka above the sod.

Even tho this job is not CEO worthy It knocks me out???

And I really think if it wasn't for my GS I'd feel worse--he snuggles every nite with me and we talk and laugh and tell each other how much we love each other and it makes me warm and fuzzy inside then when he goes to bed my Katie-Kat comes and goes to sleep with me which I also love, I know I'd feel worse if I didn't Have that everyday now that I'm used to it.

camillegal

Lily I don't actually see that rads causes lung cancer, but again my theory, it could cause lung damage I mean after all it's all pointing near our lungs somewhere I can stil feel one area where it went in the front and where I went out the back and It still hurts not every day but every so often it's like a little pen knife that someone is sticking it in and another one out my back crossways and it's right where a tat was so I think it can go on for a long time, think of all the rad. we had with so many tests too. I know this has been said so often but when I'm in a room and the lights go off, I feel like the nite light. So again no one gets this at all unless they've lived it And feel what we feel, physically and emotionally with new things poppon up all the time.

Lily55

thanks for all replies, yes had x ray all ok but i can feel the dufference when i breathe from one side to the other

Lily55

this is post number 1452, how sad and needy do i feel now...........my oh my

Teka

You just like to chitchat.

Jazzygirl

Hi Lilly- when my treatment was being discussed, I researched some things about radiation and the lungs. I have had a life long issue with asthma, which is not bad and much better living in the desert. But I had read several posts about women who had compromised breathing issues after beam radiation. I talked to the oncologists about radiation and the lungs and they said your chest wall does get exposure, which means the heart and the lungs. I never heard anything about lung cancer as a result of radiation treatment (although we know too much rad exposure is not a good thing). I ended up doing a targeted internal rad therapy which is a less common treatment, and only for very early bc and without node involvement. I remember having some chest congestion during my treatments, but have never had any breathing issues since.

You might talk to your MO to rule out anything that could be related to the bc or related treatment, or your PCP can evaluate you for other breathing issues. I find now that anything that hurts or feels wrong, I wonder, is this a result of my treatment, or has my cancer spread, or is it a SE of the AIs? My mind automatically goes to the bc place. Do you have any doctors visits coming up for them to listen to your lungs and/or take some films?

SallyS70

Hi all. I was in the hospital for 3 days, so I am behind on reading posts. I thought I had been drinking plenty of fluids after my surgery last Wednesday, but I got dehydrated which caused pulse problems. I have been thinking of you all and hope to get caught up soon.

CCFW

del

CCFW

Photo of me and my "onco-shrink" (cancer counselor) from the Stillwaters Harvest Ball:

I could not have made it through this year without her.

She's the one with the breasts; I am the "Flat and Fabulous"

duckyb1

CC nice picture

camillegal

CC u'r so pretty and the breast lady is too.

Sally when u have surgery that dehydrates u to begin with in a way and it's funny but u'd never think u could feel that goofy and have the problems that u have  from being dehydrated..

Tomboy

cc, you are beautiful!

Teka

CCFW

SallyS70, hydrate & rest.

Hubby & I went on a day trip to "The Vermont Country Store" for a few X-mas stocking stuffers.

Time to watch "NCIS" then "The Voice".

Skittle

cc--pretty, pretty! Family tartan? (As a little girl, I bought a thistle pin in Scotland, with great dreams of pinning a family kilt... Never came to be.)

Teka--wow. I've only seen the catalog. Can't imagine how fun the store would be. Is it sort of like LLBean, only "vintage" feel? Lots of goodies, I'm guessing.

Camille--tired from your new job? Learning lots of computer speak?

Lily--we're all needy in a way. We needy each other! Not sad... just human. Think how sad it would be not to need others! Hugs are healing.

Jazzy--thanks for the fun clipart/fun. It's great to have a smile when unexpected.

Sally--hope healing is going well and you're feeling better. Gentle hugs.

MO today and bone scan. MO happy with numbers from blood work (!!!) Told me to take 800 mg ibuprofen for foot pain. Had never heard of such a dose. He says he takes that for migraines. hmm. But all sounds as good as it can at this point--yay!!

Ducky, gramma, Hope all is well with you both. Strength in numbers, even as hermits. :-)

Jazzygirl

Sally- I am sorry to hear you were in the hospital with dehydration. Surgery can throw you off in so many ways, and I hope you are feeling better now and every day. Certainly not the thing I expected for you, but we are all different how we react. I had a pretty violent reaction to the anesthesia in the recovery room after my lumpectomy and proceeded to vomit immediately when I woke up. Just be sure to keep drinking whatever tastes okay to you. Water, hot tea, etc.

Skittle-wow, is the dose of ibuprofen short or long term? I am personally careful with the pain meds as they cause other problems if taken for the longer term. I hope it helps your foot pain. My feet are better since I went on the "AI vacation." I hope they don't get worse when I go back on but will see what happens. I am glad to hear everything is looking good. Another successful visit to the doctor!

CC- what a lovely photo! It is funny how you create images in your mind of people you have never met (just like when you read a novel). I am not sure I had really figured out what you looked like, but as Kathy says, lovely photo and beautiful ladies.Where is that faux fur you won?

Cami- I am glad you are working and despite it being hard to work some days for most of us that so, it gives us some structure and the cash does not hurt either. Going back to work after my healthcare crises last year surprisingly enough help me to stabilize a couple things that were quite frankly coming undone! I am sure you are doing a great job and hope you find it enjoyable.

Teka- Ooh I love the Vermont Country Store. When I used to live in CT and would go up to ski in Vermont all the time (early 1990s), I would often go there. I still get there catalog and love their things. Like the old style merchantiles of the olden days. I hope you found some good things!

And I am watching the Voice this season too. Who are your favorites? I like Tess Ann and Caroline the best.

Hope everyone else is doing okay. I am super busy with work but just wanted to say yo!

Tomboy

how is everyone doing? Hope all are well. Was surprised to see no one here, today. love to all

Teka

A rainbow from our porch this week!

Family illness, need to take a time out from public & private posting!

camillegal

Teka what a view, now did u get the pot-------    of gold??, Missy

Skittle it's always nice reading you. I've taken 800 for that drug and I guess it works better than 400, just try it and see how it feels at least. OK so good test results? I hope tha'st what I remember I hope,1````````````````- My cat just did this and I have no idea how to undo this. so.....

Jazzy u sound good--maybe a little tired tho, Oh don't give me credit for having this little job, I'm answering the phone when it rings on TV I am hermitting a lot this week tho, well that's how I feel this week it'll pass soon.

Teka

I do have an antique piss pot!

Skittle

Ooh! Camille!! I am honored to get the first hermit cat posting! How fun. (Maybe your sweet kitty is saying, enough of that keyboard! Cuddle me a while!) Yes, blood work was great, said MO (huge sigh of relief)... waiting on bone results, though. Wonder if pain is an indicator of bone loss?? Did the 800 make you sleepy or groggy at all? Upset stomach? I am really wanting to stop hurting, but the huge dose just sounds a little scary to me.

Jazzy... the 800 is "as needed," he says. I hesitate to take it at school until I know what it will do. Will wait for Thanksgiving break and then try it out. Eager to feel better, whiney self that I am.

Teka... wow! Pretty. Do you hike your hills? They look steep. I'm guessing they are gorgeous in snow.

kathec... where are your creative energies taking you today? Paint? Mosaic? Enjoy your talents!

Sally... better? Blondie... breathing softly? Lily... doing ok? Peace at home, I hope.

Hugs to all. Hard to believe Thanksgiving is soon upon us.

Spookiesmom

I've put this on some other threads here ya go!!!!

Teka

So true!!

SallyS70

Spookiesmom, thanks for the cute turkey message. It woke me up with a chortle.

Skittle, I am doing better.