The Hermit Club

Jazzygirl

Good morning folks. Lots of rain here yesterday, which we are grateful for as we emerge from a severe drought. More precip coming tonight and thru the weekend!

Today's sunrise was spectacular. Here is a photo taken by someone in the city and posted in one of the FB groups. Enjoy!

SallyS70

Thanks Jazzygirl ... what a combination of colors! Is this an unusual sunrise or are you blessed with these frequently?

Jazzygirl

Sally- yes, the sunrises and sunsets are the best anywhere (except for Hawaii, where I saw spectacular sunsets this past August from the west coast of the big island). I have always thought that our more winter-like sunsets are the best. This is big sky country and little vegetation to block the views so we have good viewing. It was a particularly good one today.

I saw on your post you are feeling better and hope it continues. Don't forget to drink lots of fluids, herbal tea is one of my favorites this time of the year. Keep us posted on your continued recovery!

camillegal

Spookie good idea.

Skittle the 800 didn't make me tired, but I didn't notice a big change either in how I felt--but again take it during the time u'r off and see what it does to u.

camillegal

Jazzy that looks like a painting---Beautiful.

Sally, I'm Glad u'r doing better.

Lily55

Just saying hi - have a lot going on inside my head and dont seem able to create a succint post-- told OH last weekend I really have had enough and dont think either of us are happy.......hhis response is simply that he is not unhappy.........I realsied what really ps me off about him - he NEVER takes responsibility for his own emotions, i am expected to work on myself emotionally to get through while he simply stays the same saying "that´s me", or I am stressed.......like it the Titanic iceberg.....immovable....and I get really fed up with it, jeez I have worked so damn hard to cope with everything over last 18 months, even when I´ve been lousy its still been work to get out etc.......yet he can´t even work on normal bloody stress...........

Been to hosptial for two follow ups, both standard. coped fine in fact at first one walked through all cancer patients waiting there and felt good like I was not one of them (sounds horrible but it was first time I had not been traumatised by walking through the door), but today not so good as had a lot of pain when was examined internally and I mean a lot, stayed with me afterwards and now being sent for abdomen and pelvic scan, left feeling really sore and now show blood every time I wee......was fine til the doctor was not gentle enough, and it was a woman.........................

Loads more but I am rambling I think......i read every day but dont always comment......hoping everyone is doing fine and wishing Wintersocks would come and join us.............

blondiex46

Lily  I am so sorry for all you are going through my thoughts are with you.....a woman, wth is with that......as far as the hubby what is his deal?

Jazzy you say things so eliquently (I can't even spell today) that I love reading what you write.....

I sometimes lurk and sometimes write, please don't hold it against me....

am going in for surgery (open lung biopsy) tomorrow you will be filling my pockets, will be in the hospital for a oouple of days....they are trying to figure out why I can't breathe without oxygen, me just grateful that people will wait on me and I will get my meals served to me.....lol

 

bbl

SallyS70

Lily, I am sorry that your examination was painful. That combined with painful emotions is a lot to bear. You are in my thoughts.

Blondie, yes, we will be in your pocket. I hope the nurses don't kick us out at night!

dwill

Hello, my fellow hermit!  When reading your post, I really know I belong here.  Most of my friends are at a Pinerest party tonight but I am just happy to be home on this cold night even if I am alone.  Reconstruction surgery coming up on Tuesday!   I have finally started to feel better and now I am going back.  Oh well--it is the life of a Cancer patient.  Just thankful to be here!

camillegal

Lily it does sound like u'r husband is immovable, I don't know what to say to help you really. U'r living alone with u'r husband and that's sad for the turmoil u feel. And now pain too--I'm sure u'r Dr. checked for a bladder infection cuz those are painful, well at least mine are and I don't feel it with my peeing I'm just in real pain.

Blondie we're in u'r pocket but make sure u order enough food for us--Let us know asap what' going on.

Dwill I'm glad u found us, But I'm really the hermit, I even got a part time job I do at home. And u'r pocket on Tuesday.

Jazzygirl

Hi hermits- lots of news here tonight and another new person has joined us! Welcome dwill and glad you found us. Thank you for letting us know about your surgery next Tuesday. We will be here with you as you go in and come out of that. Nice group of supportive ladies here.

Lily- so sorry you are having challenges at home and that your exam was painful. I hope they can find out the source of your problems. You need relief on so many levels. My heart goes out to you.

Blondie- prayers for you on the upcoming procedure/biopsy. I hope you can get some answers. Your attitude sounds very positive about being waited on! Please let us know how you are doing.

Cami, Teka, Kathy, Skittle, Granny, CC, Sally, Spookie, Markat, Florida, Spookie, and all the rest, hope you are doing okay this week!

Skittle

Welcome, dwill! Good gentle group here. Hugs for Tuesday. Hope you can feel better over the Thanksgiving holiday. Hope you have family to wait on you.

Sally, glad you feel a little better.

Jazzy, wow sun colors! Amazing. (Kathec--it could be a painting!)

Camille, thanks for the 800 info. I'll try it Saturday and see what happens.

Blondie, I'll share a pocket with this group any time. We love you.

Lily, sounds like he needs a priority readjustment... He doesn't know how lucky he is to be with you. (like the old song... you don't know what you've got 'til it's gone.)

Be safe and comforted, sweet hermits. Happy pie making to those who enjoy the kitchen. (pecan, pumpkin, sweet potato have been requested, so I'll be flour-dusted Wednesday.) Happy Friday.

simplelife4real

Hi All,

I had my last chemo infusion of Taxol yesterday. Now, I get a two week break before starting neoadjuvant AC. I'm really glad that the break happens to occur on Thanksgiving weekend.

Lily, I hope you find out what is going on soon physically. That's a lot to deal with on top of not getting the support you need from your husband. My heart goes out to you.

Jazzygirl

Simple- good to hear you are done with part of your chemo. Looks like you have some more coming up. Breaks are a good thing. Allows our body to recover and our emotions to have a wee bit of a break too. I hope you can have a nice holiday next week.

Jazzygirl

Jazzygirl

Tomboy

Hi all. lots of catching up to do here! welcome dwill these ladies are the best!

skittle, i know! that photo of jazzys night view would make an amazing painting. however, the only brush in my hands lately, is my neighbor asked if i would paint some doors and his guest bathroom, to get ready for a big christmas party he hosts every other year. So, i started yesterday with the doors. first coat, and my Le arm is ok with it so far! luckily it is not my primary arm, i am left handed. not a painting, but still fun for me, very meditative.

simplelife, glad you get a break for the holidays, enjoy.

lily,sorry that he doesnt know how to act, when mine does, i just try to wait for the time that he DOES. it happens just often enough to make me remember why i love him. but it is hard to remember, when they ARE being an A$$. and i do hope all is well with your abdomen. i totally get what you said about walking into a room with other cancer people, once you are done with treatments. i have often felt like it was important to show yourself, stronger and better, after, to give hope to the people just beginning. i am too old to be a child, but i could be the poster hag.

cami, i live in pajamas, and have even worn them to the store, and i found these great slippers from cabelas, kind of expensive, sort of like shearling moccasins. incredibly comfy, and i always wear them, always and everywhere. my boyfriends friend is here from out of town and this morning he laughed at our robes. he called them "rug coats"!!! i think he is just jealous! anyway, it is almost noon, so i better get dressed and go paint for a few hours. i will keep the slippers on, and think of you in pjs.

Blondie. make them be very careful with you, and your lung biopsy. Enjoy as much as possible a brief convalescence, i hope all your whims will be catered to!

Lily55

blondie hoping for answers for you and that you get fussed over x

CCFW

del

CCFW

 

CCFW

Thank you all for your nice comments about my other photo. Here is one from the luncheon. These are the friends (Maybe I shall call them my "Angel Peeps.") who were so kind and helpful to us on operation day and after.

You have all been so important in supporting me since I came on, I wish I could give you a luncheon party, too. Maybe you can go out and treat yourself to something nice and then pretend it is from me?

One more posting, then I'll shut up for a while.

CC.

CCFW

del

Tomboy

hey, cc, i just scroll back up and then down, an d write a note one at a time, untill i notice my letter getting really long, and then i stop! my memory is that shot. so if i dont say hi to every one, i for sure am wishing everyone weell!

Spookiesmom

Very nice jacket! Is it cold enough where you are to wear it?

I claim chemo brain, still. I'd forget my head if it wasn't attached.

Spookiesmom

See? Duh! I just looked to see where you live. I guess it is cold enough to wear it.

camillegal

Hellooooooo

Jazzy I love those pics. so funny--I remember learning the new way tp post and now I totally forgot Oh well, I'll figure it out again.

Skittle let us know about the 800

My work was slow today, which I was glad..

Kath I'm glad I have a fellow PJ wearer, What u'r doing is a lot of work, I hope u do take it easy and don't overdo.

Blondie must be resting and hope doing well, she said she's going to be in the hosp. a couple of days.

Wishing everyone a good weekend

Skittle

cc--great photos! Interesting luncheon venue. Brat pack photo. (I grew up on old films and music.) Looks like a great group! (and as for responding, once, long ago, I did take notes. I felt so frustrated that I couldn't keep up... Then I realized people were forgiving and if I didn't comment directly on what they were up to, they would understand I didn't neglect them intentionally, but just couldn't keep up.... which is often.) I enjoy the personalities of each hermit. There's such a varied wisdom, heart, experience, and history. It's like a mixed up salad bowl of hermits, and I enjoy the tossed-together unpredictability.

Jazzy--loved the fa la la. I cut and pasted it to my dd1 who is surrounded by her rescue menagerie.

Simple--yay, break! Perfect timing. Maybe food will taste like food. :-)

Hugs to all, and happy weekend.

Kathec--I need to paint cabinets (oil). Any words of wisdom other than run away?

Camille--I took 600 and had a nosebleed, which I never, ever do. I'll try 800 tomorrow, though, to see if the pain goes away. 600 didn't cut it at all. (sigh) Will keep you posted.

Be well, if you're able.

Jazzygirl

Hi hermits- just in from happy hour with one of my wonderful friends/one of the strongest of my bc supporters. We have both been so busy with work (both single self employed gals) but we both felt so happy to connect tonight and commented how we have missed seeing each other. There is just something so heartfelt in that kind of connection. I am going to her church in a few weeks to hear a performance she is doing and also had wanted to check out this place as I was in their prayer circle for a long time and Karen bought me this lovely small quilt from a group of women at the church who make quilts for people going through cancer treatment. Last winter, I would put that on top of me at night and felt the love of those people, none of whom I knew except for my friend. Now I am going to go connect with that community next month and looking forward to it!

CC- I love that jacket and no doubt you look stunning in it. Great for the holidays and also the winter, I hope you wear it out and enjoy it! It is always good to have a garment in your wardrobe that is a conversation piece.

And I try to read through the daily postings (or longer) and try to share feedback or helpful things where I can with those who post. I don't feel I always have a lot to say about husbands or children, since I have none, but understand the human relationship challenges that go with living through this and post treatment. I care about everyone here and try to find way to connect with each person here. We all have bc in common, but find we often find a whole lot more beyond that.

And I LOVE posting photos for Teka and Cami!

Going to breakfast in the am with another friend I have not seen in awhile. Out of my hermit shell for awhile, until I feel ready to retreat again.

Sleep well hermits!

camillegal

OMG I've missed all these posts,

CC I love that jacket, and that is the big color for winter fauxs this year, so u are definitely a fashionista with that and the best part now u can wear that with Jeans or a dress I love it.---It's funny about addressing people some of the girls can double screen, I can't-I can scroll up of course but if it's on the last page forget it, and I thoroughly enjoy ever one I read but when I'm done and start writing sometime I don't remember who goes to what and I know after I left so someone out, but I know like Jazzy or Skittle whoever said it everyone has kind of the same problem so I figure we all understand--I can not remember much--so that's what happens to me. 

simplelife4real

CC, cute jacket! Thanks for posting the picture.

Jazzy, love the fun holiday pictures....I needed a laugh tonight.

I was hoping I would escape the steroid crash I get each Taxol treatment for the last infusion, but alas...I did not. I go though a period of uncontrollable sobbing each week that lasts several hours. I have learned the best thing I can do for myself is to just go to bed and go to sleep. The crashes hit quickly and hard. Tonight, the sobbing probably lasted for about an hour. Hubby found me in a heap on the basement couch, immediatedly helped me get into bed and I was able to fall asleep in a matter of minutes. I just woke up. It's a couple hours later and the crash seems to be over and done. I hate those things! It's a nightmare while I'm in the middle of it. Thank goodness, that was my last Taxol infusion.

I have a two week break before I start up the dd AC infusions....I wonder if I will go through the same crashes with them too. At least there are only 4 infusions instead of 12, so a lot less opportunity for crashes. Sorry, I'm such a downer right now, but it was a rough night.

Kay